Cancer fatigue and hair loss experiences among American Indian men.

Abstract

Background: Little is known about the cancer symptom experiences of Indigenous populations, particularly concerning fatigue and hair loss. Hair loss can have many detrimental effects given the significant cultural importance of hair in Indigenous communities. Gaining a better understanding of the unique perspectives of American Indian male cancer survivors as they manage these two distinct symptoms is essential for improving symptom management and quality of life measures in this underserved population. Methods: A multi-pronged study explored the barriers, facilitators, and cultural constructs associated with cancer symptoms. Focus group sessions with American Indian cancer survivors and caregivers in the Southwest gathered data on survivor experiences, with male responses isolated for analysis. The subsequent randomized control trial intervention (N = 231) tested an educational toolkit and "Talking Circles" designed to help survivors and their families better manage cancer symptoms. Results: Study findings report on the unique fatigue and hair loss experiences of American Indian male cancer survivors. Conclusion: The insights gained prove valuable for educational and intervention programs targeting the mangagement of cancer symptoms among Indigenous populations.