Journal of Psychosocial Oncology最新文献

{"title":"Relationship between problem solving dimensions and psychological distress among cancer caregivers.","authors":"Sarah Stolker, Kyle A Pitzer, Cathryn Koplitz, George Demiris, Shannon M Canfield, Debra Parker Oliver, Karla T Washington","doi":"10.1080/07347332.2025.2476142","DOIUrl":"https://doi.org/10.1080/07347332.2025.2476142","url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk of psychological distress. Problem-solving abilities of cancer caregivers may influence coping and be relevant in anticipating the level of support needed from palliative care.</p><p><strong>Objective: </strong>Researchers sought to evaluate the relationship between problem-solving dimensions and psychological distress, specifically symptoms of anxiety and depression, among family caregivers of cancer patients receiving outpatient palliative care.</p><p><strong>Methods: </strong>Researchers conducted a cross-sectional exploratory study using data from an ongoing multisite clinical trial. Using block-wise linear regression models, they examined the relationship between psychological distress and problem-solving dimensions.</p><p><strong>Results: </strong>Results identified positive significant associations between negative problem orientation and symptoms of anxiety and depression, and between avoidance problem-solving style and symptoms of depression.</p><p><strong>Conclusion: </strong>Study results shed light on maladaptive problem-solving as influential in cancer caregiver coping, especially as it relates to risk of psychological distress.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-03-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of care partners co-surviving in the context of living with metastatic breast cancer.","authors":"Robin M Lally, Gisele Tlusty, Katherine Tanis, Katherine Lake, Julia Jobanputra, Melanie Cozad","doi":"10.1080/07347332.2025.2465576","DOIUrl":"https://doi.org/10.1080/07347332.2025.2465576","url":null,"abstract":"<p><strong>Objective: </strong>Explore experiences of women and care partners living with metastatic breast cancer (MBC) in the new environment of extended MBC survival. Care partner results are presented.</p><p><strong>Design: </strong>Qualitative descriptive interviews with conventional content analysis.</p><p><strong>Sample: </strong>Twelve care partners nominated by 1-to-5-year MBC survivors participating in the overall study.</p><p><strong>Methods: </strong>Semi-structured interviews conducted over phone, Zoom, and in-person.</p><p><strong>Findings: </strong>\"Becoming a Co-survivor\" entailed 5 categories: Meeting New Challenges, Changing Supportive Roles, Navigating Decisions, Emotional Toll, and Coping. Sixteen subcategories provided depth and dimension. Qualitative differences depicted journeying from heighted emotions to increasing expertise and mutual communication between survivors and care partners over time.</p><p><strong>Conclusions: </strong>MBC care partners possess varied characteristics, and experience challenges influenced by time since MBC diagnosis, necessitating further study.</p><p><strong>Implications for psychosocial providers: </strong>Acknowledge the variety of persons who assume care partner roles, assess needs, and design programs to address psychosocial challenges presenting along the survivorship continuum.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social risk factors screening preferences among breast and prostate cancer survivors: A qualitative study.","authors":"Laura C Schubel, Jessica Rivera Rivera, Mandi L Pratt-Chapman, Joseph Astorino, Teletia Taylor, Robin Littlejohn, Judith Lee Smith, Susan A Sabatino, Arica White, Bryan O Buckley, Christopher King, Jeanne Mandelblatt, Christopher Gallagher, Hannah Arem","doi":"10.1080/07347332.2025.2463389","DOIUrl":"10.1080/07347332.2025.2463389","url":null,"abstract":"<p><strong>Objectives: </strong>This project aimed to understand the experiences and preferences for social risk factor screening among racially, ethnically, and linguistically diverse cancer survivors in the Washington, DC, region.</p><p><strong>Methods: </strong>Semi-structured interviews were conducted with English, Spanish, and Amharic-speaking breast and prostate cancer survivors. Data were inductively coded to identify themes, and differences by race and preferred language were evaluated.</p><p><strong>Findings: </strong>Twenty-two interviews in English (<i>n</i> = 14), Spanish (<i>n</i> = 7), and Amharic (<i>n</i> = 1) among participants who identified as Black (<i>n</i> = 8), White (<i>n</i> = 5), Asian (<i>n</i> = 1), Other (<i>n</i> = 6), and multiracial (<i>n</i> = 2) were completed. Participants reported unresolved needs during treatment including transportation, healthful food, mental health care, financial help, and employment assistance. COVID-19 exacerbated many needs. Most participants did not recall discussing needs with oncology teams, but all participants were open to having these conversations.</p><p><strong>Conclusion(s): </strong>This research reveals that cancer survivors might benefit from culturally appropriate strategies that address social needs.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-19"},"PeriodicalIF":1.5,"publicationDate":"2025-02-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143415830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Getting support when cancer invades your family: changes in wellbeing in young people accessing a community cancer support organization.","authors":"Pandora Patterson, Fiona E J McDonald, Richard Tindle, Kit Bibby","doi":"10.1080/07347332.2025.2452863","DOIUrl":"https://doi.org/10.1080/07347332.2025.2452863","url":null,"abstract":"<p><strong>Objective: </strong>A preliminary examination of the psychosocial wellbeing of young people impacted by a family member's cancer, and changes after engaging with a community cancer support organization.</p><p><strong>Methods: </strong>Five-hundred-and-sixty young people attending a community cancer support organization self-reported distress and unmet needs at baseline and 6-month follow-up. This included young people who: had a brother or sister living with cancer (\"siblings\"); had a parent living with cancer (\"offspring\"); had lost a brother or sister to cancer (\"bereaved siblings\"); or had lost a parent to cancer (\"bereaved offspring\").</p><p><strong>Results: </strong>Between 36.1% (siblings) and 57.6% (bereaved offspring) reported high distress; 61.6% (siblings) to 88.1% (bereaved offspring) endorsed 10+ needs. Distress decreased significantly for offspring and bereaved offspring, and unmet needs decreased significantly for siblings, offspring and bereaved offspring. Between 50.0% (siblings) and 63.6% (bereaved siblings) showed significant improvement in distress, unmet needs, or both.</p><p><strong>Conclusions: </strong>Many young people impacted by family cancer have elevated distress and unmet needs. Engagement with a community cancer support organization may improve their psychosocial wellbeing.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143400408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"COVID-19, a natural experiment. Did it create an opportunity to reduce racial disparities in psychosocial oncology and change how we deliver care?","authors":"Amy K Siston, Kristen C Jacobson, Marie B Tobin","doi":"10.1080/07347332.2025.2458693","DOIUrl":"https://doi.org/10.1080/07347332.2025.2458693","url":null,"abstract":"<p><strong>Purpose: </strong>There is evidence to support the acceptability of telehealth among oncology patients, but inconsistencies regarding access and use in underserved populations.</p><p><strong>Aims: </strong>This study used the COVID-19 pandemic as a natural experiment to test whether implementation of telehealth for patients referred to a psychosocial oncology (PSO) service would 1) increase PSO access and utilization and 2) reduce racial disparities.</p><p><strong>Methods: </strong>Demographic, medical and appointment completion data for patients referred to a PSO service at an NCI-Designated Comprehensive Cancer Center from March, 2018 to March, 2022 were examined. Descriptive and multivariate logistical regression analyses at both the patient and visit level were conducted. Outcomes were patient follow-up (i.e. ≥ one scheduled PSO appointment) and visit outcome (completed vs. canceled/no-show).</p><p><strong>Results: </strong>The sample included 934 White and 610 Black adult patients (69.8% female) aged 18-95 (<i>M</i> = 56.0, SD = 15.3) who scheduled 5,782 PSO visits. Follow-up rates significantly increased post-COVID among White (66.2%-72.2%; <i>Z</i> = 2.17, <i>p</i> = .03), but not Black patients (73.6%-70.4%; <i>Z</i> = 0.88, <i>p</i> = .38). Among <i>N</i> = 1,089 patients who scheduled at least one PSO appointment, telehealth had a significant effect on visit outcomes (<i>X</i>² = 466.6, df = 2, <i>p</i> < .001). Completed appointments increased (52.5%-79.2%), while rates of canceled (21.8%-11.2%) and no-show appointments (25.7%-9.6%) decreased. Moreover, telehealth resulted in a significantly greater increase in completed appointments for Black patients (44.7%-74.3%), in comparison to White patients (59.4%-81.4%; <i>X</i>² = 4.02, df = 1, <i>p</i> = .045).</p><p><strong>Conclusions: </strong>Black patients were less likely than White patients to show an increase in follow-up with PSO services following onset of COVID. However, among patients with one or more scheduled appointments, the use of telehealth significantly decreased racial disparities in appointment completion rates. Findings suggest that the relationship between telehealth and racial disparities in PSO care is nuanced.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-13"},"PeriodicalIF":1.5,"publicationDate":"2025-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143256968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"More than an extra set of ears: A video-based analysis exploring the role of companions in routine oncology visits.","authors":"Berit Hofset Larsen, Jennifer Gerwing, Tonje Lundeby, Pål Gulbrandsen, Reidun Førde","doi":"10.1080/07347332.2025.2457964","DOIUrl":"10.1080/07347332.2025.2457964","url":null,"abstract":"<p><strong>Purpose: </strong>Patients with advanced cancer commonly bring a companion to medical appointments, often a family member. Despite increasing focus on family involvement, few studies are based on observations of real-life consultations. This study aimed to explore how companions contribute to the information exchange process during advanced cancer outpatient visits.</p><p><strong>Methods: </strong>Data were ten videos of routine oncology visits. We identified when and how companions participated using microanalysis of clinical interaction.</p><p><strong>Findings: </strong>Companion participation varied greatly. They tended to speak up spontaneously, contributing medical, personal, and contextual information that might otherwise have remained unsaid. They both brought information into the discussion and facilitated information exchanged between the physician and patient. Companions displayed few of their own concerns.</p><p><strong>Conclusions: </strong>The findings suggest that companions may be an important resource during oncology visits, not only for the patient, but also for healthcare providers aiming for person-centered care to the individual patient.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-22"},"PeriodicalIF":1.5,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143256976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A mixed methods pilot study of a virtual therapeutic writing intervention for adolescent/young adults with cancer.","authors":"Chelsea S Rapoport, Alyssa K Choi, Siloh Radovsky, Melinda A Chen, Mary Devereaux, Megan Korhummel, Shea O'Donnell, Vanessa L Malcarne, Dennis J Kuo","doi":"10.1080/07347332.2025.2454497","DOIUrl":"https://doi.org/10.1080/07347332.2025.2454497","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate the feasibility and acceptability of a virtual therapeutic writing intervention for AYAs with cancer.</p><p><strong>Methods: </strong>A single-arm pilot study of the intervention was conducted at Rady Children's Hospital San Diego. The six-session intervention was facilitated by a writing coach over two to three months, during which time participants produced written work regarding their experiences with cancer. Primary outcomes were measures of acceptability and feasibility, assessed via quantitative and qualitative methods.</p><p><strong>Results: </strong>Study enrollment and retention rates were 75% and 83%, respectively. Participants rated all intervention sessions as highly enjoyable, helpful, useful, and satisfactory. Qualitatively, participants reported that the intervention helped them cope with their cancer and they would recommend the study to others with cancer.</p><p><strong>Conclusions: </strong>This virtual therapeutic writing study is feasible and acceptable among AYAs with cancer. A randomized controlled trial should be conducted to test the efficacy of the intervention for improving psychosocial outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The patient and caregiver experience of CAR T-cell therapy: A qualitative analysis.","authors":"Maija Reblin, Irene Liang, Djin L Tay, Kedar Kirtane, Dana Ketcher","doi":"10.1080/07347332.2025.2460060","DOIUrl":"https://doi.org/10.1080/07347332.2025.2460060","url":null,"abstract":"<p><strong>Background/purpose: </strong>Immunotherapies, such as CAR-T, have revolutionized cancer treatment for some cancers. However, these treatments often require active participation of a family member or friend to act as a caregiver at home for several weeks after infusion. Given the novelty of CAR-T, there is a need to better understand the experience of patients receiving these treatments and their caregivers.</p><p><strong>Methods: </strong>As part of a larger study, patients receiving CAR-T and their caregivers were recruited to participate in semi-structured interviews about their experiences in treatment within a week of hospital discharge. Guided by the Dyadic Cancer Outcomes framework and using an inductive approach, trained coders qualitatively analyzed interview transcripts to identify key themes.</p><p><strong>Results: </strong>Ten patients and nine of their caregivers participated in interviews in 2021. Three key themes surrounding CAR-T experiences were identified: individual, relational, and contextual. Firstly, the CAR-T experience impacted physical and psychosocial aspects of life for patients and caregivers. Secondly, the isolating and intensive nature of caregiving after discharge affected relationships between patients and caregivers. Thirdly, social contexts such as food, housing, and travel costs complicated the treatment experience.</p><p><strong>Conclusions: </strong>Although CAR-T is a novel treatment, the experiences of patients and especially caregivers are often similar to those receiving other forms of cancer treatment. However, due to the requirement of a constantly-present caregiver in the weeks after therapy, these experiences may have been intensified. Future work is needed to develop inclusive, family-centered programs to help support patients and their caregivers through cancer treatments.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-11"},"PeriodicalIF":1.5,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143068819","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Correlates of multicaregiving and singular caregiving among cancer caregivers and associations with caregiver well-being.","authors":"Katrina R Ellis, Youngmee Kim, Kelli Peterman, Hillary Hecht, Rachel Cannady, Kassandra Alcaraz","doi":"10.1080/07347332.2025.2450253","DOIUrl":"https://doi.org/10.1080/07347332.2025.2450253","url":null,"abstract":"<p><strong>Purpose: </strong>Compare demographic, care provision, and health-related characteristics of individuals fulfilling multiple illness-related caregiving roles (i.e. multicaregiving) versus singular (cancer only) caregiving and investigate factors associated with caregivers' mental and physical functioning.</p><p><strong>Design: </strong>Cross-sectional national survey.</p><p><strong>Participants: </strong>Family caregivers who self-reported illness-related caregiving for cancer survivors only (singular caregivers: <i>n</i> = 465) or for one or more family members with illnesses in addition to the cancer survivors (multicaregivers: n = 109).</p><p><strong>Methods: </strong>Descriptive, logistic, and linear regression analysis.</p><p><strong>Findings: </strong>Singular caregivers and multicaregivers were similar on demographic, care provision, and health characteristics. Caregiving group was not associated with caregivers' mental or physical functioning. Several caregiver and care recipient characteristics were associated with mental and physical functioning for singular caregivers; however, only age was associated with multicaregivers' mental functioning.</p><p><strong>Conclusions: </strong>Uncovering correlates of multicaregiving can help describe who may serve in these roles and how concurrent care responsibilities may influence caregivers' well-being.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-15"},"PeriodicalIF":1.5,"publicationDate":"2025-01-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014000","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Subjective cognitive functioning in patients with cancer: A network approach.","authors":"Gabriel Baník, Ivana Piterová, Matúš Adamkovič, Denisa Fedáková, Michal Kentoš, Miroslava Bozogáňová, Mária Dědová","doi":"10.1080/07347332.2024.2449000","DOIUrl":"https://doi.org/10.1080/07347332.2024.2449000","url":null,"abstract":"<p><strong>Purpose: </strong>The current study aimed to (1) examine the sociodemographic, clinical and psychological factors related to subjective cognitive functioning (SCF); (2) analyze the complex mutual interconnections between SCFs; and (3) address patients' perspectives on SCF and supportive care.</p><p><strong>Method: </strong>A heterogeneous sample of oncological patients (<i>N</i> = 566) was recruited.Items inquiring about the senses, attention, memory, spatial functions, decision-making and speech were administered. A network of subjectively perceived changes in cognitive functions was estimated while three open-ended questions addressed patients' perspectives on SCF.</p><p><strong>Results: </strong>Within the network, deficits in spatial perception, attention focus and problem-solving ability had the highest strength index while the deficits related to the senses were the least influential.</p><p><strong>Conclusion: </strong>The findings indicate that psychological-based interventions focused on higher cognitive functions could improve patients' quality of life. The presence of supportive care and available information could strengthen SCF intervention and prevention for patients with cancer.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-22"},"PeriodicalIF":1.5,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143014015","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}