Journal of Psychosocial Oncology最新文献

{"title":"Survey of families’ psychosocial needs in the context of pediatric cancer: a first step toward the participatory development of a group intervention","authors":"Mélina Rivard, Julie Tremblay, Zakaria Mestari, Léandra Desjardins, Élodie Bergeron, Christine Lefebvre","doi":"10.1080/07347332.2024.2404570","DOIUrl":"https://doi.org/10.1080/07347332.2024.2404570","url":null,"abstract":"Pediatric cancer is associated with stressors that increase the risk for distress across family members. Psychosocial support varies and may not meet family needs and preferences. This study invest...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"57 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2024-09-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142253056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Disparities in fertility preservation discussions among sexual and gender minority cancer patients and their cancer care providers.","authors":"Imani N Wilson-Shabazz,Christopher W Wheldon,Michael J Hall,Sarah Bauerle Bass","doi":"10.1080/07347332.2024.2396466","DOIUrl":"https://doi.org/10.1080/07347332.2024.2396466","url":null,"abstract":"BACKGROUNDCancer providers are advised to inform their reproductive aged patients about fertility preservation given the potential for treatment-related infertility. How consistently fertility preservation discussions (FPDs) occur is understudied in sexual and gender minority (SGM) cancer patients. The effects of bias and heteronormativity may reduce the rate of FPDs. We identified the frequency and correlates of FPD in a sample of SGM cancer patients.METHODSData were from the cross-sectional 2020 OUT National Cancer Survey. The sample was restricted to those diagnosed with cancer between the ages of fifteen and forty-five. FPD was measured with a single item. Multivariable logistic regression was conducted to determine factors significantly associated with FPDs.RESULTSAverage age at cancer diagnosis was 34.97 (SD = 8.34). Respondents were mostly non-Hispanic white (77.6%) and college-educated (63.4%), and 32.6% reported FPDs. In the multivariable model, identifying as lesbian (Adjusted odds ratio [aOR] = 0.49; 95% CI: 0.24-0.99), pansexual (aOR = 0.34; 95% CI:0.12-0.94), or queer (aOR = 0.24; 95% CI: 0.08-0.70) was negatively associated with FPDs compared to bisexuals. Being treated more than ten years ago (aOR = 0.47; 95% CI:0.26-0.85) was also negatively associated with FPDs.CONCLUSIONFindings suggest potential bias against some SGM patients based on sexual orientation identity in FPDs, though changes over the past decade may have increased the frequency of FPD with patients more broadly. More research is needed to investigate why some SGM patients of reproductive age are not being counseled about fertility preservation.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"5 1","pages":"1-18"},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A bibliometric analysis of studies on death anxiety in patients with cancer.","authors":"Wen Li,Hongli Li,Jingcheng Wen,Dong Pang,Yuhan Lu,Hong Yang","doi":"10.1080/07347332.2024.2398098","DOIUrl":"https://doi.org/10.1080/07347332.2024.2398098","url":null,"abstract":"Purpose: This study evaluates the evolution and focal points of research on death anxiety among cancer patients over the last three decades, utilizing bibliometric analyses.Methods: We analyzed publications related to death anxiety among cancer patients from January 1994 to January 2024 using data from the Web of Science Core Collection. Bibliometric indicators such as the number of publications, leading countries, institutions, and research themes were examined.Results: A total of 2,602 papers from 286 institutions across 97 countries were identified. There has been a significant increase in research interest, particularly between 2014 and 2023, with a peak in 2022. The United States and Harvard University were found to be the most prolific contributors. Major research themes include quality of life, palliative care, mental health, and cancer-specific concerns.Conclusion: The results highlight the rapid development in the field of death anxiety research among cancer patients, with an increase in publications and emerging research themes. However, there is limited international and institutional collaboration. The study underscores the need for enhanced cooperative efforts to advance understanding and research in this area, suggesting directions for future research.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"18 1","pages":"1-28"},"PeriodicalIF":2.1,"publicationDate":"2024-09-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142204659","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients.","authors":"Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau","doi":"10.1080/07347332.2024.2384441","DOIUrl":"https://doi.org/10.1080/07347332.2024.2384441","url":null,"abstract":"<p><strong>Purpose: </strong>This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.</p><p><strong>Method: </strong>Fifteen semi-structured interviews were conducted in 2022.</p><p><strong>Findings: </strong>Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.</p><p><strong>Interpretation: </strong>Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better \"fit in\" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.</p><p><strong>Implications for psychosocial providers or policy: </strong>The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-13"},"PeriodicalIF":1.5,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using a community-engaged research process to plan, implement, and evaluate a cancer education program to improve knowledge and screening intentions among African American men.","authors":"Whitney George, Malakai Miller, Elizabeth C Stewart, Derek Wilus, LaNese Campbell, Bishop Calvin Barlow, Tilicia L Mayo-Gamble, Claudia Barajas, Cornelius Hill, Vincent Johnson, Lawrence Reed, John Williams, Jennifer Cunningham-Erves","doi":"10.1080/07347332.2024.2379822","DOIUrl":"10.1080/07347332.2024.2379822","url":null,"abstract":"<p><strong>Objective: </strong>We assessed acceptability, feasibility, and preliminary efficacy of a culturally appropriate, cancer education program to improve cancer knowledge, attitudes, subjective norms, and screening intentions for oropharynx, colon, and prostate cancers among African American men. We detailed the community-engaged research process used for African American men to design, implement, and evaluate the program.</p><p><strong>Materials and methods: </strong>We recruited 84 (61 in-person, 23 online) African American men over 2-months across 4 churches in Middle Tennessee in 2021. A single group, pre-post-test design was used to evaluate the 2.5-h hybrid program. Scales used were: <i>General self-efficacy for cancer screening</i>; <i>attitudes toward cancer</i>; <i>general cancer knowledge</i>; and <i>subjective norms related to cancer</i>. One-item measured <i>cancer screening intention</i>. Taba robust partial correlation measured the degree of association between changes in means of each explanatory variable with changes in means of each outcome variable. IBM SPSS version 28 and R/RStudio version 3.6.0 was used for data analysis. We conducted three focus groups (<i>n</i> = 17) to assess program acceptability. Microsoft Excel version 26 was used to conduct thematic analysis for this data.</p><p><strong>Findings: </strong>Quantitative Significant differences were found in the pre/post comparisons of knowledge (mean difference: 0.22; <i>p</i>-value = 0.015), self-efficacy (mean difference: 0.23; <i>p</i>-value < 0.001), and prostate cancer screening intention (mean difference: 0.19; <i>p</i>-value = 0.049) scores. This indicates the mean score for knowledge, self-efficacy, and prostate cancer screening intention was significantly higher post-intervention. <b>Qualitative</b> Focus group themes were: (1) Impact of Program on Participants Psychosocial Health (2) Perspectives on Life after the program. (3) Views on Programmatic Components; (4) Recommendations for Program Improvement.</p><p><strong>Conclusions: </strong>Results demonstrate our program is feasible, acceptable, and could increase cancer screening intentions and behavior. Psychosocial providers should demonstrate cultural awareness and humility when providing services to address the psychological and social needs for cancer screening among African American men.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-24"},"PeriodicalIF":1.5,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141989132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of emotion regulation through mindfulness in oncological patients: A pilot study.","authors":"Carmen Yélamos Agua, Sofía Luque Suárez, María Ruesga García, Rosario Sepulcre Canto, Renmaly Angulo Belisario, Tamara Hernandez Baute, Carlos Hortelano Luna, Sira Izárbez Loriente, Mercedes Márquez Fernández, Montserrat Parejo Espinar, María Isabel Sánchez Jiménez, Ruth San José García, Elísabeth Berzal Pérez","doi":"10.1080/07347332.2024.2389094","DOIUrl":"https://doi.org/10.1080/07347332.2024.2389094","url":null,"abstract":"<p><strong>Background: </strong>Traditional MBSR or MBTC programs do not delve deeply enough into emotional regulation, which is especially relevant in oncological patients. The aim of this study was to analyze the benefits of a mindfulness-based emotion regulation program in adult oncological patients.</p><p><strong>Method: </strong>Psycho-oncologists from the AECC developed a mindfulness-based emotion regulation program. The Five Facet Mindfulness Questionnaire (FFMQ), Trait Meta-Mood Scale (TMMS), and Hospital Anxiety and Depression Scale (HADS) were administered before and after the program. A single-group pre-post test design with repeated measures was employed, utilizing the General Linear Model.</p><p><strong>Results: </strong>Ninety-seven adult cancer patients completed the pre- and post-program assessments. Statistically significant improvements were observed in all FFMQ subscales, increased clarity of emotional discrimination, mood repair, and statistically significant reductions in anxiety and depressive symptoms.</p><p><strong>Conclusions: </strong>Regardless of the phase of the disease, the results of this study suggest that emotional regulation may improve and anxiety and depressive symptomatology decrease after a mindfulness-based emotion regulation program in oncological patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-16"},"PeriodicalIF":1.5,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding and tackling cancer inequities: What opportunities does intersectionality offer researchers, policymakers, and providers? A scoping review.","authors":"Mar Estupiñán Fdez de Mesa, Afrodita Marcu, Emma Ream, Katriina L Whitaker","doi":"10.1080/07347332.2024.2361642","DOIUrl":"10.1080/07347332.2024.2361642","url":null,"abstract":"<p><strong>Problem identification: </strong>We summarised the international evidence relating to the role of intersectionality in patients' lived experience of inequities along the cancer care pathway. We produced guidance to use intersectionality in future research.</p><p><strong>Literature search: </strong>We included 42 articles published between 1989 to 2023 that used intersectionality to guide the study and interpretation of inequities in cancer care.</p><p><strong>Data evaluation/synthesis: </strong>Articles predominantly comprised North American (<i>n</i> = 37), followed by European (<i>n</i> = 4) and Asian (<i>n</i> = 1) studies. Similar compounding effects of racism, homophobia, and discrimination across countries exacerbated inequities in cancer care experience and cancer outcomes particularly for women of color and sexual/gender minority groups. Professionals' knowledge, attitudes, and behaviors toward minoritised groups affected patient-provider relationships and influenced cancer patients' psychosocial responses.</p><p><strong>Conclusion: </strong>Intersectionality provides a framework to assess the personal, interpersonal, and structural processes through which cancer inequities manifest within and across countries.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-28"},"PeriodicalIF":1.5,"publicationDate":"2024-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141908011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A powerful safety net: Social support moderates the association of quality of life deficits with suicidal ideation in long-term childhood cancer survivors.","authors":"Tamara Schwinn, Judith Hirschmiller, Elmar Brähler, Hiltrud Merzenich, Jörg Faber, Philipp S Wild, Manfred E Beutel, Mareike Ernst","doi":"10.1080/07347332.2024.2379827","DOIUrl":"https://doi.org/10.1080/07347332.2024.2379827","url":null,"abstract":"<p><strong>Objectives: </strong>Cancer survivors are at risk for suicidality. We aimed to expand the knowledge about protective factors and their interplay with risk factors by testing social support as a modifier of the association of Quality of Life (QoL) deficits with suicidal ideation.</p><p><strong>Research approach: </strong>We surveyed <i>N</i> = 633 childhood cancer survivors (CCS) using validated questionnaires (EORTC Core Quality of Life questionnaire QLQ-C30, Patient Health Questionnaire PHQ-9). The interaction of QoL and social support was investigated using multiple linear regression analysis.</p><p><strong>Findings: </strong>CCS reporting suicide attempts and current suicidal ideation (SI) had lower QoL. CCS with SI reported less social support. QoL and social support were independently associated with SI and interacted: among CCS with less social support, low QoL was more strongly associated with SI.</p><p><strong>Conclusion: </strong>The results highlight the need for interdisciplinary survivorship care, and to focus on risk and protective factors to strengthen suicide prevention.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Subjective well-being among Iranian breast cancer patients: Exploring the influential role of psychological capital.","authors":"Hossein Mohsenipouya, Zohreh Motallebi, Nouraddin Mousavinasab, Alireza Sangani, Nitai Roy, Mohammed A Mamun","doi":"10.1080/07347332.2024.2381546","DOIUrl":"https://doi.org/10.1080/07347332.2024.2381546","url":null,"abstract":"<p><strong>Purpose: </strong>Breast cancer is a prevalent and emotionally challenging condition that profoundly affects women worldwide. Effectively managing the mental and emotional dimensions of this disease is crucial for the holistic well-being of patients. Psychological capital (PsyCap) has emerged as a pivotal psychological construct with the potential to effectively address these challenges. This study aims to explore the influential role of PsyCap and its constructs on the subjective well-being (SWB) of Iranian breast cancer patients.</p><p><strong>Methods: </strong>A total of 173 breast cancer patients participated in this study, selected through a random sampling approach. Face-to-face interview data on socio-demographics, PsyCap, and SWB were collected using a structured questionnaire. The analytical procedures encompassed independent sample <i>t</i>-tests, ANOVA tests, Pearson correlation tests, and stepwise multiple regression.</p><p><strong>Results: </strong>The findings revealed that the majority of participants fell within the 41-50 age group (38.7%), with an average age of 46.50 ± 11.76 years, and 35.8% had tumor growth in the upper left lobe. The average PsyCap score was 107.93 ± 1.52 (out of a possible score of 144), whereas SWB scored 196.51 ± 1.90 (out of 291). Notably, PsyCap showed a positive correlation with SWB (<i>r</i> = 0.119), accounting for approximately 8% of the variance in SWB. The final regression model showed the substantial predictive roles of PsyCap (1.667), self-efficacy (-3.692), age (-2.977), and education (-3.939) in shaping SWB.</p><p><strong>Conclusions: </strong>Focusing on understanding and addressing factors like PsyCap, self-efficacy, and educational support could improve SWB, offering a potential avenue for comprehensive and individualized psychosocial care for women with breast cancer.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effectiveness of live music intervention on psychological distress among adolescent and young adult patients undergoing hematopoietic stem cell transplantation.","authors":"Qian Sun, Ying-Long Duan, Cheng-Yuan Li, Jian-Fei Xie, Andy Sk Cheng","doi":"10.1080/07347332.2024.2373232","DOIUrl":"https://doi.org/10.1080/07347332.2024.2373232","url":null,"abstract":"<p><strong>Objective: </strong>To explore the effects of live music to decrease psychological distress in adolescent and young adult (AYA) patients undergoing hematopoietic stem cell transplantation (HSCT).</p><p><strong>Method: </strong>A quasi-experimental study was conducted. Sixty patients undergoing HSCT were divided into two groups, receiving either 4 week of live music (<i>n</i> = 31) or standard care (<i>n</i> = 29). Psychological distress, anxiety, the severity of symptom clusters and symptom interference were measured.</p><p><strong>Results: </strong>When compared with the immediately and 1 month after intervention, patients in LM intervention group had significantly lower psychological distress and anxiety level than wait-list group. AYA undergoing HSCT reported significantly milder general symptom cluster and neurological symptom cluster at T3 than at baseline.</p><p><strong>Conclusions: </strong>Live music intervention showed a positive effect on relieving psychological distress and anxiety in AYA patients undergoing HSCT. However, further researches are warranted to explore the effects of live music intervention on symptom cluster.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2024-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}