Robin M Lally, Gisele Tlusty, Katherine Tanis, Katherine Lake, Julia Jobanputra, Melanie Cozad
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引用次数: 0
Abstract
Objective: Explore experiences of women and care partners living with metastatic breast cancer (MBC) in the new environment of extended MBC survival. Care partner results are presented.
Design: Qualitative descriptive interviews with conventional content analysis.
Sample: Twelve care partners nominated by 1-to-5-year MBC survivors participating in the overall study.
Methods: Semi-structured interviews conducted over phone, Zoom, and in-person.
Findings: "Becoming a Co-survivor" entailed 5 categories: Meeting New Challenges, Changing Supportive Roles, Navigating Decisions, Emotional Toll, and Coping. Sixteen subcategories provided depth and dimension. Qualitative differences depicted journeying from heighted emotions to increasing expertise and mutual communication between survivors and care partners over time.
Conclusions: MBC care partners possess varied characteristics, and experience challenges influenced by time since MBC diagnosis, necessitating further study.
Implications for psychosocial providers: Acknowledge the variety of persons who assume care partner roles, assess needs, and design programs to address psychosocial challenges presenting along the survivorship continuum.
期刊介绍:
Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.