Journal of Psychosocial Oncology最新文献

{"title":"The interaction of family functioning and disease- and treatment-related factors on quality of life for children after cancer.","authors":"Emily L Moscato, May V Albee, Ashley Anil, Matthew C Hocking","doi":"10.1080/07347332.2024.2354298","DOIUrl":"https://doi.org/10.1080/07347332.2024.2354298","url":null,"abstract":"<p><strong>Purpose: </strong>Children with cancer experience low quality of life (QOL), yet heterogeneity underscores a need to understand how risk and resilience factors interact. This study evaluated if family functioning relates to QOL differentially depending on diagnosis and treatment intensity.</p><p><strong>Methods: </strong>Participants included children (ages 8-14) who completed treatment within six months for either brain tumor (BT; <i>n</i> = 42) or non-central nervous system solid tumor (ST; <i>n</i> = 29). Caregivers and children rated QOL and family functioning. Treatment intensity was categorized as low, moderate, or high. Cross-informant moderation models tested hypothesized interactions.</p><p><strong>Results: </strong>Child-reported family functioning significantly interacted with diagnosis and treatment intensity in models of caregiver-reported QOL. More maladaptive family functioning was associated with reduced QOL for children with BT and moderately-intense treatments.</p><p><strong>Conclusions: </strong>Children with BT and moderate treatment intensities are sensitive to family functioning, highlighting an at-risk group to target for family-level intervention. Future work should evaluate these associations longitudinally.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-06-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cognitive performance and mortality among patients receiving autologous hematopoietic stem cell transplant.","authors":"Ellen Johnson, Sung Won Choi, John Stratton, Alison Sylvia, Flora Hoodin, Kristen Votruba","doi":"10.1080/07347332.2024.2342843","DOIUrl":"https://doi.org/10.1080/07347332.2024.2342843","url":null,"abstract":"<p><strong>Objectives: </strong>Patients undergoing autologous hematopoietic stem cell transplant (HCT) are at risk for death and remain understudied relative to those undergoing allogeneic HCT. Cognitive functioning may be a useful indicator of mortality risk. We examined cognition among patients who underwent autologous HCT and its relationship to mortality.</p><p><strong>Methods: </strong>Participants (<i>N</i> = 51; 11 patients deceased) completed tasks of processing speed, working memory, executive-mediated learning, and visual recall using the computerized CogState battery prior to HCT, 30 days post-autologous HCT, and 100 days post-autologous HCT.</p><p><strong>Results: </strong>Slower processing speed (HR = 3.00) and more errors on an executive-mediated visual learning task (HR = 2.78) prior to HCT were associated with an increased risk of death following HCT. Our sample size limited longitudinal analyses of whether cognitive change predicted survival, however descriptive cognitive data of the deceased versus living patient's performances over time suggested different patterns of performance across groups.</p><p><strong>Conclusions: </strong>Pre-HCT cognition may have utility as an indicator of mortality risk following autologous HCT. More research is needed to examine whether cognitive changes after HCT could also predict mortality.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141082509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Incorporating the Distress Thermometer into preoperative vital signs in patients undergoing ambulatory oncology surgery: a pilot feasibility study.","authors":"Jennifer R. Majumdar, M. Assel, Aimee Dannaoui, Alexandria M Fatata-Haim, Jillian Fromkin, Christian Nelson, Vincent Laudone, Sigrid V Carlsson","doi":"10.1080/07347332.2024.2351038","DOIUrl":"https://doi.org/10.1080/07347332.2024.2351038","url":null,"abstract":"BACKGROUND\u0000Despite the extensive literature supporting distress screening at relevant transitions of care, the implementation of distress screening remains limited in ambulatory surgery settings. Our multidisciplinary team completed a pilot study to assess the feasibility and acceptability of including a standardized psychosocial assessment, the Distress Thermometer (DT), with the collection of admission vital signs by Patient Care Technicians (PCTs) in patients undergoing oncology surgery.\u0000\u0000\u0000METHODS\u0000We assessed feasibility by the response rate and acceptability through discussions with the PCTs.\u0000\u0000\u0000RESULTS\u0000Of the 189 men who underwent radical prostatectomy at our center, 71 were approached with the DT scale, and all patients who were approached completed the DT with no missing data. The staff reported no issues with data collection. A total of 21/71 (30%; 95% CI 19%, 42%) reported a clinically relevant distress DT ≥ 4.\u0000\u0000\u0000CONCLUSION\u0000Our results demonstrated that incorporating the DT into vital sign collection was feasible, acceptable, and provided a valuable assessment.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140964041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The voices of breast cancer survivors with chronic pain: A qualitative thematic analysis of patients' challenges to pain management.","authors":"Chiara Filipponi, Marianna Masiero, Davide Mazzoni, Mariam Chichua, Sara Marceglia, Roberta Ferrucci, Elisa Fragale, Florence Didier, Gabriella Pravettoni","doi":"10.1080/07347332.2024.2348595","DOIUrl":"https://doi.org/10.1080/07347332.2024.2348595","url":null,"abstract":"<p><strong>Objectives: </strong>Recognizing the limitations of the current pain therapies, the study aimed to explore the unique needs and obstacles related to pain management in Breast Cancer Survivors (BCs) with Chronic Pain (CP).</p><p><strong>Methods: </strong>4 focus groups were conducted involving 17 BCs with CP (Mage = 51, SD = 7.99) with varying pain intensities. Thematic analysis was applied to transcribed discussions.</p><p><strong>Findings: </strong>Three key themes emerged: (1) Challenges to pain management, including \"Doctor-patients communications barriers\" and \"Contextual and societal barriers\"; (2) Self-management needs, encompassing \"Psycho-social support,\" \"Care-related needs,\" and \"Shared decision-making\"; (3) Treatment preferences and perceptions of pain management, with subthemes like \"Treatment preferences,\" \"Institution preference,\" and \"Decision role perception.\"</p><p><strong>Conclusions: </strong>This study emphasizes tailored support systems targeting patient hesitancy, countering pain normalization, and addressing healthcare providers' attitudes. It underscores the importance of integrating caregiver and peer support. Findings advocate refining healthcare provider education, adopting a comprehensive multidisciplinary approach, and strategically incorporating eHealth tools into such care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140946179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"You can be cured, but cancer never leaves you behind\": an interdisciplinary approach into the embodied cancer experiences among adult Colombian childhood/adolescent cancer survivors.","authors":"Natalia Godoy-Casasbuenas, Yazmin Cadena-Camargo, Nicole Rodríguez, Esther de Vries, Gili Yaron","doi":"10.1080/07347332.2024.2345112","DOIUrl":"https://doi.org/10.1080/07347332.2024.2345112","url":null,"abstract":"<p><strong>Purpose: </strong>Childhood or adolescent cancer survivors (CACS) are an understudied population in Colombia and, in general, in Central and South America. Worldwide, studies typically focus on high-income settings while approaching CACS' experiences from a biomedical or psychological perspective. However, both perspectives miss an important aspect of survivorship after childhood or adolescent cancer: the affected individual's subjective experiences of having a disabled body. This qualitative study aimed to explore the embodied experiences of Colombian adults who survived cancer during their childhood or adolescence to better understand how CACS relate to their altered body and world.</p><p><strong>Methods: </strong>By integrating phenomenological insights and conducting comprehensive life-story interviews, we explored the various ways in which survivors' cancer experiences affect their bodily sense of self-from the acute phase of the disease until well into adulthood. A total of ten life-stories interviews and one focus group were carried out with seven CACS. All participants were survivors of a different type of childhood/adolescent cancer. The results were analyzed thematically, focusing on the embodied aspects of participants' experiences.</p><p><strong>Results: </strong>We developed three main themes regarding the embodied cancer experience among participating CACS: Firstly, participants' body changes because of the cancer and its treatment, which makes them aware of their body. Secondly, they adapt to this experience in different bodily ways. Finally, they carry bodily traces of their cancer experience in the present as well as into the future.</p><p><strong>Conclusions: </strong>The CACS participating in this study report that their experience with cancer has been embodied throughout their lives, changing their sense of their body and how they relate to it, and leaving traces into the present and their imagined future.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140860780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sedentary time transitions and associations with quality of life in cancer survivors during the COVID-19 pandemic.","authors":"Alyssa R Neville, Allyson Tabaczynski, Alexis Whitehorn, Denise Bastas, Linda Trinh","doi":"10.1080/07347332.2024.2346560","DOIUrl":"https://doi.org/10.1080/07347332.2024.2346560","url":null,"abstract":"<p><strong>Background: </strong>Patterns in sedentary time (SED) and its impact on quality of life (QoL) in cancer survivors during the COVID-19 pandemic remains unknown. The purpose of this study was to 1) compare total and domain-specific SED before and during the pandemic; and 2) examine its association with QoL in a global sample of cancer survivors.</p><p><strong>Methods: </strong>In an online survey, cancer survivors retrospectively self-reported domain-specific SED (e.g. transportation, television) before and during the pandemic via the Domain-Specific Sitting Time Questionnaire. QoL was assessed via the Functional Assessment of Cancer Therapy (FACT)-General and FACT-Fatigue. Paired <i>t</i>-tests compared daily SED before and during the pandemic. Analysis of covariance compared QoL among: those who remained high (>8 h/day), remained low (<8 h/day), increased (<8 h/day to >8 h/day), or decreased (>8 h/day to <8 h/day) daily SED.</p><p><strong>Results: </strong>Among cancer survivors (<i>N</i> = 477, M_age=48.5 ± 15.4), 60.8% reported that their SED remained high, 19.7% remained low, 7.5% increased SED, and 11.9% decreased SED. Computer and television screen time significantly increased (<i>p's</i><.001), while SED during transportation significantly decreased (<i>p</i><.001). Sub-group analyses revealed that those who reduced SED who were normal or underweight (<i>p</i>=.042) or were meeting physical activity guidelines (<i>p</i>=.031) had significantly less fatigue than those who increased or remained high in SED, respectively. Those who remained high in SED with <3 comorbidities (<i>p's</i> =.005) had significantly better social well-being than those who increased SED.</p><p><strong>Conclusions: </strong>As we transition to a post-pandemic era, behavioral strategies for cancer survivors should focus on reducing screen time to improve QoL and fatigue.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140865453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"D-CRSE: Diminishing chemotherapy-related side effects through patient education, a mixed-methods pilot study","authors":"Shelby Labe, Gavin Jones, Hannah Dailey, Joanna Bhasker, Rhea Kanwar, Madison Crago, Britney Fitzgerald, Daniella Mikhail, Sonia Hafiz, Courtney Kramer, Junjia Zhu, Monali Vasekar","doi":"10.1080/07347332.2024.2345124","DOIUrl":"https://doi.org/10.1080/07347332.2024.2345124","url":null,"abstract":"Patient education materials regarding self-management of chemotherapy-related side effects are limited, which may result in patients using disreputable sources. We created a brochure that educates ...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140838936","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reel reflections: the role of entertainment media narratives in coping among young adult cancer survivors.","authors":"M. Collins, Allison J Lazard, Francesca Dillman Carpentier, Maria Leonora Comello, Catherine Benedict, Erin E Kent, Clara Yu","doi":"10.1080/07347332.2024.2337043","DOIUrl":"https://doi.org/10.1080/07347332.2024.2337043","url":null,"abstract":"INTRODUCTION\u0000Young adult cancer survivors (YACS; ages 18-39) report a significant psychological burden. Entertainment media narratives (e.g., books, movies, shows that are produced for mass consumption) might be an effective tool for reducing this distress, although little is known about present use among YACS.\u0000\u0000\u0000METHOD\u0000YACS completed a survey about their use of entertainment media narratives to cope with cancer using an adapted version of the Brief COPE. Additionally, YACS reported their use of entertainment media narratives to start conversations about their experience with others, and they described features of entertainment media narratives that they found helpful in coping.\u0000\u0000\u0000RESULTS\u0000We recruited 108 YACS from three recruitment sites. Most participants were White (n = 65), female (n = 54), and recruited from Prolific (n = 56), an Internet-based, crowdsourced data collection platform. Participants were, on average, 30 years old and 45 months from the completion of their primary cancer treatment. YACS who used entertainment media to cope with cancer (n = 32; 29.6%) were significantly younger and significantly closer to the end of their primary treatment. Compared to nonusers, users of entertainment media narratives to cope were also more likely to identify as Black; identifying as Black was associated with a 2.05-factor increase in using narrative entertainment media to cope with cancer even when controlling for other demographic differences. Additionally, compared to their peers, Black YACS reported greater use of narratives to start cancer-related conversations. Emotional and inspirational storylines were the most helpful story features.\u0000\u0000\u0000DISCUSSION\u0000Some YACS, especially Black YACS, use stories to cope with their cancer experience. YACS patients could find stories useful in exploring their cancer-related emotions, although the exact benefits are still unknown.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140656688","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of women with breast cancer disclosing cancer-related cognitive impairment symptoms to health professionals: a Systematic review and meta-synthesis.","authors":"Susan Hamilton, Melissa Oxlad, Yianni Sianis","doi":"10.1080/07347332.2024.2342836","DOIUrl":"https://doi.org/10.1080/07347332.2024.2342836","url":null,"abstract":"OBJECTIVE\u0000Cancer-related cognitive impairment involves changes in cognitive domains among people diagnosed with cancer. This review aimed to explore and synthesize the experiences of women with breast cancer disclosing cancer-related cognitive impairment symptoms to health professionals.\u0000\u0000\u0000METHODS\u0000A systematic review and meta-synthesis was conducted to generate synthesized findings from existing literature. Six databases were searched from inception until mid-October 2022, with eligible studies appraised using the QualSyst Quality Assessment Checklist.\u0000\u0000\u0000RESULTS\u0000Three synthesized findings were generated from eight included studies. Findings highlight that women initiated conversations disclosing symptoms and frequently experienced dismissal or minimization from health professionals. Women rarely received information about cognitive impairment symptoms before treatment. Women reported that health professionals could be more involved in managing cognitive impairment symptoms.\u0000\u0000\u0000CONCLUSION\u0000This meta-synthesis highlights the importance of health professionals providing information before treatment and following up on cognitive impairment symptoms.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140676419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social robotics as an adjuvant during the hospitalization process in pediatric oncology patients.","authors":"Soraya Colina-Matiz, Juan Hernández Leal, John Carlos Ariza-Vargas, Olga Rocio Beltrán Higuera, Cielo Ovalle-Chaparro, Natalia Lucía González Suárez, Judith Medellin-Olaya, Nadia Carolina Reina-Gamba, Catalina Correa-Mazuera, Iliana De Los Reyes Valencia, Juan Sebastián Lozano-Mosos","doi":"10.1080/07347332.2024.2335170","DOIUrl":"https://doi.org/10.1080/07347332.2024.2335170","url":null,"abstract":"<p><strong>Objective: </strong>To describe the experience of implementing social robotics as an adjuvant during the hospitalization process in pediatric oncology patients.</p><p><strong>Methods: </strong>Before and after cohort study, applying an intervention with the Lego Mindstorms EV3 kit in patients between 8 and 17 years old that are hospitalized with a cancer diagnosis. We excluded patients from the intensive care unit or when their treating physician recommended so. The intervention consisted of a three-phase workshop: an open architecture story, building a car robot using the Lego Mindstorm EV3 kit, and cooperative playing activities such as races and passing obstacles.</p><p><strong>Results: </strong>Thirteen patients received the intervention with robotic lego. The median age was 15 years (IQR = 3), and 84.6% of the population (<i>n</i> = 11) were male. We found significant improvement in the language (topic management <i>p</i> = .011 and communicative intention <i>p</i> = .034). Other characteristics improved, but not significantly (self-care activities index, catching). No adverse events occurred during the intervention.</p><p><strong>Conclusions: </strong>The results of this pilot study suggest that implementing social robotics during hospitalization in children with cancer is a therapeutic adjuvant and safe intervention that promotes better communication, self-care, and a physical activity improvement. For future studies, the impact of this intervention could be measured in hospitalized pediatric cancer patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2024-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}