Brad Zebrack, Tara Schapmire, Penny Damaskos, Michael Grignon, Sophia K Smith
{"title":"The essential and evolving nature of oncology social work: Accomplishments and impact, 2010-present.","authors":"Brad Zebrack, Tara Schapmire, Penny Damaskos, Michael Grignon, Sophia K Smith","doi":"10.1080/07347332.2024.2404577","DOIUrl":"10.1080/07347332.2024.2404577","url":null,"abstract":"<p><p>This paper demonstrates the essential nature of oncology social work and the critical role that oncology social workers (OSWs) play in the achievement of high-quality cancer care that improves patient outcomes, contains cost, advances population health, reduces provider burn-out among healthcare providers, and does it in a manner that addresses disparities and achieves equity. To this end, this paper's purpose is two-fold: (1) to review and demonstrate OSW contributions to the advancement of comprehensive cancer care over the last 15 years, and (2) to consider next steps for the Association of Oncology Social Work (AOSW) and the Oncology Social Work profession to achieve its mission and calling. To enhance the viability and security of OSWs and the professional organizations that support them, this report summarizes a breadth and depth of work and includes recommendations for the profession.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"739-768"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Daisy Neal, Jenna L Morgan, Thomas Ormerod, Malcolm W R Reed
{"title":"Intervention to reduce age bias in medical students' decision making for the treatment of older women with breast cancer: A novel approach to bias training.","authors":"Daisy Neal, Jenna L Morgan, Thomas Ormerod, Malcolm W R Reed","doi":"10.1080/07347332.2023.2214548","DOIUrl":"10.1080/07347332.2023.2214548","url":null,"abstract":"<p><p><b>Objectives:</b> Despite NICE guidelines to 'treat people with invasive breast cancer, irrespective of age, with surgery and appropriate systemic therapy, rather than endocrine therapy alone', older patients receive differential treatment and experience worse outcomes. Research has evidenced the prevalence of ageism and identified the role of implicit bias in reflecting and potentially perpetuating disparities across society, including in healthcare. Yet age bias has rarely been considered as an explanatory factor in poorer outcomes for older breast cancer patients nor, consequentially, has removing age bias been considered as an approach to improving outcomes. Many organizations carry out bias training with the aim of reducing negative impacts from biased decision making, yet the few evaluations of these interventions have mostly seen small or negative effects. This study explores whether a novel intervention to address age bias leads to better quality decision making for the treatment of older women with breast cancer.<b>Methods:</b> An online study compared medical students' treatment recommendations for older breast cancer patients and the reasoning for their decision making before and after a novel bias training intervention. Thirty-one medical students participated in the study.<b>Results:</b> The results show that the bias training intervention led medical students to make better quality decisions for older breast cancer patients. The quality of decision making was measured by decreases in age-based decision making and increased efforts to include patients in decision making. These results suggest there is value in exploring whether if anti-bias training interventions could usefully be applied in other areas of practice where older patients experience poorer outcomes.<b>Conclusions:</b> This study evidences that bias training improves the quality of decision making by medical students in respect of older breast cancer patients. The study findings show promise that this novel approach to bias training might usefully be applied to all medical practitioners making treatment recommendations for older patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"48-63"},"PeriodicalIF":2.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9876701","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Noël M Arring, Carolyn K Lafferty, Patricia M Clark, Debra L Barton
{"title":"The experience of women in a phase II trial of hypnosis and progressive muscle relaxation for body image: informing future research questions.","authors":"Noël M Arring, Carolyn K Lafferty, Patricia M Clark, Debra L Barton","doi":"10.1080/07347332.2023.2206406","DOIUrl":"10.1080/07347332.2023.2206406","url":null,"abstract":"<p><p>This study examines feedback from two interventions, hypnosis and progressive muscle relaxation (PMR), to improve body image in a randomized phase II trial. Eighty-seven women were randomized either to hypnosis or PMR. Sixty-three women (72%) were motivated to write comments about their study experience. These comments were explored in an unplanned qualitative analysis. Thematic analysis generated five themes, suggesting both hypnosis and PMR may improve body image through the ability to relax and manage stress, sleep better, improve mood and create a mind-body connection. Sexual health emerged as a theme for participants in only the hypnosis group which suggests hypnotic suggestions for body image may improve overall sexual health. Additional research is needed to assess this further.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"148-158"},"PeriodicalIF":2.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9711734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emily R Haines, Lauren Lux, Catherine Swift, Melissa Matson, Daniel Kleissler, Jacob Stein, Julie Childers, John M Salsman, Andrew B Smitherman
{"title":"The Adolescent and Young Adult Needs Assessment & Service Bridge (NA-SB): A single-arm feasibility pilot study.","authors":"Emily R Haines, Lauren Lux, Catherine Swift, Melissa Matson, Daniel Kleissler, Jacob Stein, Julie Childers, John M Salsman, Andrew B Smitherman","doi":"10.1080/07347332.2023.2192715","DOIUrl":"10.1080/07347332.2023.2192715","url":null,"abstract":"<p><strong>Purpose: </strong>In this pilot study, we evaluated the feasibility of implementing the Needs Assessment & Service Bridge (NA-SB)- an intervention to address the pervasive unmet needs of adolescents and young adults (AYAs) during cancer treatment.</p><p><strong>Methods: </strong>We conducted a mixed methods single-arm feasibility pilot study of NA-SB at the North Carolina Basnight Cancer Hospital. Eligible participants were AYAs ages 18-39 in active cancer treatment. After receiving NA-SB, participants completed a postintervention survey assessing their perceptions of NA-SB. We interviewed participating providers to assess their implementation experiences.</p><p><strong>Results: </strong>On average, AYA participants (n = 26) rated NA-SB's feasibility as 4.5/5, its acceptability as 4.5/5, and its appropriateness as 4.4/5. 77% of participants agreed or strongly agreed that their needs were met in the study period.</p><p><strong>Conclusion: </strong>This pilot study generated preliminary evidence to establish NA-SB's feasibility as well as proof of concept for the intervention as a viable approach for identifying and addressing AYAs' unmet needs.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"16-31"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10518024/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10329607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Dorothy Leahy, Kelly E. Irwin, Gerd Murphy, Paul D’Alton
{"title":"Cancer care for people with significant mental health difficulties (SMHD) - patient perspectives","authors":"Dorothy Leahy, Kelly E. Irwin, Gerd Murphy, Paul D’Alton","doi":"10.1080/07347332.2023.2291203","DOIUrl":"https://doi.org/10.1080/07347332.2023.2291203","url":null,"abstract":"People with significant mental health difficulties (SMHD) experience inequities in cancer care. This study aims to deepen understanding of cancer care for individuals with SMHD.We conducted semi-st...","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"22 1","pages":""},"PeriodicalIF":2.1,"publicationDate":"2023-12-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138692840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Larissa L. White, Shauna Goldberg, H. Spencer Feigelson, A. Burnett-Hartman
{"title":"Depression, anxiety, & loneliness among cancer survivors during the COVID-19 pandemic.","authors":"Larissa L. White, Shauna Goldberg, H. Spencer Feigelson, A. Burnett-Hartman","doi":"10.21203/rs.3.rs-1829156/v1","DOIUrl":"https://doi.org/10.21203/rs.3.rs-1829156/v1","url":null,"abstract":"PURPOSE\u0000To assess the impact of the COVID-19 pandemic on depression, anxiety, and loneliness between those with and without a history of cancer.\u0000\u0000\u0000DESIGN\u0000This prospective observational study used a quantitative approach.\u0000\u0000\u0000PARTICIPANTS\u0000Adult members of the Kaiser Permanente Research Bank (N = 104,640).\u0000\u0000\u0000METHODS\u0000Participants completed a series of surveys from May to December 2020. The difference in score of depression, anxiety, and loneliness were estimated using linear mixed regression.\u0000\u0000\u0000FINDINGS\u0000Among cancer survivors, 21% and 19% met the thresholds for increased risk of depression and anxiety. Among cancer survivors, younger age groups and females reported increased depression, anxiety, and loneliness scores.\u0000\u0000\u0000CONCLUSIONS\u0000This study highlights the continued necessity of addressing mental health needs and social support in cancer survivors during and after a public health emergency.\u0000\u0000\u0000IMPLICATIONS FOR PSYCHOSOCIAL PROVIDERS\u0000Cancer survivors may need particular resources after cancer treatment to strengthen resilience and improve quality of life.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"1 1","pages":"1-14"},"PeriodicalIF":2.1,"publicationDate":"2023-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43951548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Disparities in health-related quality of life among lesbian, gay, and bisexual cancer survivors.","authors":"Michael A Hoyt, Katie Darabos, Karen Llave","doi":"10.1080/07347332.2023.2210548","DOIUrl":"10.1080/07347332.2023.2210548","url":null,"abstract":"<p><strong>Objective: </strong>This study compared health-related quality of life (HRQOL) among lesbian, gay, and bisexual (LGB) cancer survivors and their heterosexual counterparts in a US population-based sample of cancer survivors.</p><p><strong>Methods: </strong>The study utilized data from the <i>All of Us</i> research program. LGB survivors (<i>n</i> = 885) were matched for age, gender identity, marital status, income, education, and cancer site with heterosexual survivors (<i>n</i> = 885) using 1:1 propensity matching. Physical, mental, and social HRQOL were assessed with items from the Patient-Reported Outcomes Measurement Information System (PROMIS).</p><p><strong>Results: </strong>Relative to heterosexuals, LGB cancer survivors reported lower HRQOL in mental and social domains, but not in physical HRQOL. Older age was associated with higher HRQOL across domains. LGB survivors identifying as Black/African American were more likely to experience lower social HRQOL than White survivors.</p><p><strong>Conclusions: </strong>This study highlights several disparities in HRQOL that exist between LGB and heterosexual cancer survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"661-672"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah A Kelleher, Hannah M Fisher, Kelly Hyland, Shannon N Miller, Grace Amaden, Allison Diachina, Alyssa S Pittman, Joseph G Winger, Anthony Sung, Samuel Berchuck, Greg Samsa, Tamara J Somers
{"title":"Hybrid-delivered cognitive behavioral symptom management and activity coaching intervention for patients undergoing hematopoietic stem cell transplant: Findings from intervention development and a pilot randomized trial.","authors":"Sarah A Kelleher, Hannah M Fisher, Kelly Hyland, Shannon N Miller, Grace Amaden, Allison Diachina, Alyssa S Pittman, Joseph G Winger, Anthony Sung, Samuel Berchuck, Greg Samsa, Tamara J Somers","doi":"10.1080/07347332.2022.2152519","DOIUrl":"10.1080/07347332.2022.2152519","url":null,"abstract":"<p><strong>Objective: </strong>Develop and pilot test a mobile health (mHealth) cognitive behavioral coping skills training and activity coaching protocol (HCT Symptoms and Steps) for hematopoietic stem cell transplant (HCT) patients.</p><p><strong>Design: </strong>Two-phase, mixed methods study.</p><p><strong>Sample: </strong>HCT patients and healthcare providers.</p><p><strong>Methods: </strong>Phase I was patient (n = 5) and provider (n = 1) focus groups and user testing (N = 5) to develop the HCT Symptoms and Steps protocol. Phase II was a pilot randomized trial (N = 40) to evaluate feasibility, acceptability, and pre-to-post outcomes (e.g., physical disability, pain, fatigue, distress, physical activity, symptom self-efficacy) compared to an education control.</p><p><strong>Findings: </strong>Qualitative feedback on symptoms, recruitment strategies, coping skills, and mHealth components (e.g., Fitbit, mobile app) were integrated into the protocol. HCT Symptoms and Steps were feasible and acceptable. Pre-post changes suggest physical disability and activity improved while symptoms (e.g., fatigue, distress) decreased.</p><p><strong>Conclusions: </strong>HCT Symptoms and Steps have strong feasibility and acceptability and shows promise for benefits. Larger, fully-powered randomized trials are needed to examine intervention efficacy.</p><p><strong>Implications: </strong>HCT Symptoms and Steps may reduce physical disability and improve health outcomes post-transplant.</p><p><strong>Clinical trial registration number: </strong>NCT03859765.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 5","pages":"539-557"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10247893/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10159267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth A Rohan, Jennifer E Boehm, Ruvini Samarasinha, Karen Stachon, M Shayne Gallaway, Grace Huang, Diane Ng, Nanmathi Manian
{"title":"Diving deeper into distress screening implementation in oncology care.","authors":"Elizabeth A Rohan, Jennifer E Boehm, Ruvini Samarasinha, Karen Stachon, M Shayne Gallaway, Grace Huang, Diane Ng, Nanmathi Manian","doi":"10.1080/07347332.2023.2250774","DOIUrl":"10.1080/07347332.2023.2250774","url":null,"abstract":"<p><strong>Background: </strong>Responding to calls for additional research that identifies effective distress screening (DS) processes, including referral practices subsequent to screening and receipt of recommended care, we engaged in qualitative research as part of a larger (mixed methods) study of distress screening. This qualitative inquiry of oncology professionals across different facilities in the United States examined routine DS implementation, facilitators and challenges staff encounter with DS processes, and staff members' perceived value of DS.</p><p><strong>Participants and methods: </strong>We conducted key informant interviews and focus groups with staff in 4 Commission on Cancer (CoC)-accredited oncology facilities (a total of 18 participants) to understand implementation of routine DS within oncology care. We used a rigorous data analysis design, including inductive and deductive approaches.</p><p><strong>Results: </strong>Respondents believe DS enhances patient care and described ways to improve DS processes, including administering DS at multiple points throughout oncology care, using patient-administrated DS methods, and enhancing electronic health records infrastructure to better collect, record, and retrieve DS data. Respondents also identified the need for additional psychosocial staff at their facilities to provide timely psychosocial care.</p><p><strong>Conclusions: </strong>Results reinforce the value of DS in cancer care, including the importance of follow-up to screening with psychosocial oncology providers. Understanding and resolving the barriers and facilitators to implementing DS are important to ensure appropriate psychosocial care for people with cancer. Insights from oncology staff may be used to enhance the quality of DS and subsequent psychosocial care, which is an essential component of oncology care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"645-660"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10964759/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10185783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}