Di Zhao, Yuanyuan Li, Miao Zhou, Qing Wang, Guopeng Li, Meiling Qi, Yingtao Meng, Ping Li
{"title":"The effect of mindfulness and psychological capital on mental health of breast cancer patients: Based on polynomial regression and response surface analysis.","authors":"Di Zhao, Yuanyuan Li, Miao Zhou, Qing Wang, Guopeng Li, Meiling Qi, Yingtao Meng, Ping Li","doi":"10.1080/07347332.2023.2233951","DOIUrl":"10.1080/07347332.2023.2233951","url":null,"abstract":"<p><strong>Objective: </strong>To explore the combined effects of mindfulness and psychological capital on mental health of breast cancer patients and to examine the mediating effect of positive emotions in their relationship.</p><p><strong>Methods: </strong>A convenient sampling method was used in this study, and 522 breast cancer patients aged 18 to 59 who received chemotherapy in a tertiary cancer hospital were enrolled. Polynomial regression with response surface analysis was mainly employed to explore the relationship between mindfulness, psychological capital, and mental health. A block-variable approach was used to verify the mediating effect of positive emotions.</p><p><strong>Results: </strong>In cases of congruence, mental health was better when mindfulness and psychological capital were both high instead of being both low (the slope of the congruence was 0.540, <i>p</i> < 0.001); In cases of incongruence, poorer mental health was found in breast cancer patients with low psychological capital and high mindfulness compared with those who had high psychological capital and low mindfulness (the slope of the incongruence was -0.338, <i>p</i> < 0.001), and the combined effects were a positive curve (positive U-shaped) related to mental health (<i>β</i> = 0.102, <i>p</i> = 0.040). In addition, positive emotions played a mediating role in the relationship between the block variable (mindfulness and psychological capital) and mental health, and the indirect effect was 0.131.</p><p><strong>Conclusions: </strong>This study expanded the research on the effects of mindfulness and psychological capital in improving mental health as well as the conflict between the two variables related to mental health by employing a new analytical technique among breast cancer patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"190-207"},"PeriodicalIF":2.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10147578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Elizabeth K Arthur, Emily A Ridgway-Limle, Jessica L Krok-Schoen, Ulrike Boehmer, Michele Battle-Fisher, Clara N Lee
{"title":"Scoping review of experiences of sexual minority women treated for breast cancer.","authors":"Elizabeth K Arthur, Emily A Ridgway-Limle, Jessica L Krok-Schoen, Ulrike Boehmer, Michele Battle-Fisher, Clara N Lee","doi":"10.1080/07347332.2024.2323471","DOIUrl":"10.1080/07347332.2024.2323471","url":null,"abstract":"<p><strong>Purpose: </strong>To summarize and critique research on the experiences and outcomes of sexual minority women (SMW) treated with surgery for breast cancer through systematic literature review.</p><p><strong>Methods: </strong>A comprehensive literature search identified studies from the last 20 years addressing surgical experiences and outcomes of SMW breast cancer survivors. Authors performed a quality assessment and thematic content analysis to identify emergent themes.</p><p><strong>Results: </strong>The search yielded 121 records; eight qualitative studies were included in the final critical appraisal. Quality scores for included studies ranged 6-8 out of 10. Experiences and outcomes of SMW breast cancer survivors were organized by major themes: 1) Individual, 2) Interpersonal, 3) Healthcare System, and 4) Sociocultural and Discursive.</p><p><strong>Conclusions: </strong>SMW breast cancer survivors have unique experiences of treatment access, decision-making, and quality of life in survivorship. SMW breast cancer survivors' personal values, preferences, and support network are critical considerations for researchers and clinicians.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"709-732"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140159300","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brandon Knettel, Linda Minja, Elizabeth Msoka, Clotilda Tarimo, Victor Katiti, Wei Pan, Judith Mwobobia, Erika Juhlin, Elizabeth Knippler, Melissa Watt, Gita Suneja, Stephen Kimani, Dina Abouelella, Blandina Mmbaga, Nosayaba Osazuwa-Peters
{"title":"Culturally-informed adaptation and psychometric properties of the Cataldo Cancer Stigma Scale in Northern Tanzania.","authors":"Brandon Knettel, Linda Minja, Elizabeth Msoka, Clotilda Tarimo, Victor Katiti, Wei Pan, Judith Mwobobia, Erika Juhlin, Elizabeth Knippler, Melissa Watt, Gita Suneja, Stephen Kimani, Dina Abouelella, Blandina Mmbaga, Nosayaba Osazuwa-Peters","doi":"10.1080/07347332.2023.2241458","DOIUrl":"10.1080/07347332.2023.2241458","url":null,"abstract":"<p><strong>Background: </strong>Cancer-related stigma impacts patients' emotional health, care engagement, and cancer outcomes, but few measures of cancer stigma exist. We culturally adapted and assessed psychometric properties of the Cataldo Cancer Stigma Scale (CCSS) in Tanzania.</p><p><strong>Methods: </strong>We administered the CCSS short version (21 items), plus 12 locally-derived items, to 146 adult cancer patients. We conducted exploratory factor analysis, examined internal consistency/reliability, and assessed convergent validity with relevant measures.</p><p><strong>Results: </strong>We identified a 17-item cancer stigma scale with strong psychometric properties and four subscales: enacted stigma, shame and blame, internalized stigma, and disclosure concerns. Stigma was rare except for disclosure concerns. Stigma was positively associated with depression and anxiety and negatively associated with social support, quality of life, and illness acceptance.</p><p><strong>Conclusions: </strong>The scale provides valid, culturally-informed measurement of cancer stigma in Tanzania. Future studies should assess associations with care engagement, which will inform interventions to reduce stigma and improve outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"286-298"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10837313/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10130024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amanda Kastrinos, Carma L Bylund, Kelsey Bacharz, Allison J Applebaum, Carla L Fisher
{"title":"Understanding the role of parents' information sharing and withholding on emerging and young adults' caregiving and coping during their parents' advanced cancer.","authors":"Amanda Kastrinos, Carma L Bylund, Kelsey Bacharz, Allison J Applebaum, Carla L Fisher","doi":"10.1080/07347332.2023.2276940","DOIUrl":"10.1080/07347332.2023.2276940","url":null,"abstract":"<p><p>Emerging and young adult caregivers (EYACs) who provide care to their parents are a hidden, unsupported population of caregivers. Research identifies information sharing or withholding as a key aspect of caregivers' ability to cope and adjust, which may be especially critical when a parent is diagnosed with advanced cancer. The goal of this study was to examine the impact of parent information sharing/withholding on EYACs' caregiving and coping experiences. We conducted in-depth, semi-structured interviews with 33 EYACs between the ages of 18-35 who cared for a parent that died of advanced cancer. Interview transcripts were thematically analyzed. Three factors played a role in how parents' information sharing/withholding affected EYACs' caregiving/coping: 1) <i>topic,</i> 2) <i>timing,</i> and 3) <i>who is included.</i> Findings highlight the adaptive functioning of parents' information sharing and negative outcomes associated with information withholding, illustrating how parents' disclosure decisions function to promote or inhibit EYACs' care involvement and coping.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"412-426"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11070447/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71487365","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Suzanne C Danhauer, Gretchen A Brenes, Janet A Tooze, Tebianne Abubaker, Alexandra Thomas, Dianna S Howard, Nicole Puccinelli-Ortega, Karolina Jimenez, Kristi D Graves
{"title":"Cultural and linguistic adaptation of a telephone-based cognitive-behavioral therapy (CBT) intervention to treat depression and anxiety in Hispanic cancer survivors.","authors":"Suzanne C Danhauer, Gretchen A Brenes, Janet A Tooze, Tebianne Abubaker, Alexandra Thomas, Dianna S Howard, Nicole Puccinelli-Ortega, Karolina Jimenez, Kristi D Graves","doi":"10.1080/07347332.2023.2296045","DOIUrl":"10.1080/07347332.2023.2296045","url":null,"abstract":"<p><strong>Purpose/objectives: </strong>The purpose of this study was to transcreate a manualized cognitive-behavioral therapy (CBT) intervention to address depression and anxiety among Hispanic cancer survivors.</p><p><strong>Design/research approach: </strong>Stakeholders reviewed the CBT workbook for language, content, and cultural relevance. We designed semi-structured interview guides to elicit intervention feedback.</p><p><strong>Sample/participants: </strong>Stakeholder participants were Hispanic cancer survivors (<i>n</i> = 4), bilingual mental health providers (<i>n</i> = 2), and oncology professionals (<i>n</i> = 4).</p><p><strong>Methods: </strong>Transcreation was conducted by initial translation of the workbook followed by incorporation of stakeholder feedback. A bilingual (Spanish and English) interviewer conducted stakeholder interviews. The study team discussed themes/suggestions before refining the workbook.</p><p><strong>Findings: </strong>Stakeholders reported enthusiasm for the intervention. We gathered significant feedback regarding wording, images, and resources for the workbook.</p><p><strong>Conclusion: </strong>Development of culturally appropriate mental health resources for Hispanic cancer survivors is critical.</p><p><strong>Implications for psychosocial providers or policy: </strong>By broadening research on psychosocial care to the Hispanic population, we increase the reach of evidence-based psychological care. Future research should fully evaluate the adapted CBT intervention among Hispanic survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"558-572"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11190035/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832301","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Mediating role of resilience between family functioning and quality of life in patients with advanced colorectal cancer.","authors":"Liqing Jiang, Meng Wang, Ying Chen, Quan Liu","doi":"10.1080/07347332.2023.2231431","DOIUrl":"10.1080/07347332.2023.2231431","url":null,"abstract":"<p><p>To better understand the relationship between family functioning, resilience, and quality of life (including physical and mental component score, PCS and MCS) in patients with advanced colorectal cancer (CRC) to predict and improve their quality of life.</p><p><p>A cross-sectional study was conducted in which a total of 165 patients with advanced colorectal cancer participated in a one-time survey. Measures included the Family Functioning Assessment Device, the 10-item Connor-Davidson Resilience Scale, and the SF-12 Health Survey Assessment Scale. The data analysis methods included descriptive analysis, pearson's correlation analysis, <i>t</i>-tests, and nonparametric tests.</p><p><p>Of the patients with advanced CRC, 47.27% and 72.73% had moderate or low mental and physical health components, respectively. The results indicated that in patients with advanced CRC, family function was negatively correlated with resilience (<i>p</i> < 0.01), family functioning was negatively correlated with MCS (<i>p</i> < 0.01), and resilience was positively correlated with PCS (<i>p</i> < 0.05) and MCS (<i>p</i> < 0.01). The mediating analysis revealed that family functioning regulated MCS through resilience (effect value = 13.17%).</p><p><p>Our findings suggest that the MCS of patients with advanced CRC is influenced by both family functioning and resilience. PCS in patients with advanced CRC appears to be influenced by resilience but not by family functioning.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"175-189"},"PeriodicalIF":2.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9770134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Olinda Santin, Hien Thi Ho, Chi Linh Bui, Huong Thi Nguyen, Hung Quang Ta, Ngan Thu Tran, Minh Van Hoang, Thinh Huy Quoc Dang, Thanh Minh Pham, Hiep Nhu Pham, Hoa Thi Chau, Hoai Thi Khanh Nguyen, Kha Van Vo, Thuy Thanh Pham, Lan Hoang Thanh Dao, Dung Xuan Ho, Penelope Schofield
{"title":"A pre-post evaluation of a digital intervention to improve psychosocial outcomes of caregivers of people living with cancer in Vietnam.","authors":"Olinda Santin, Hien Thi Ho, Chi Linh Bui, Huong Thi Nguyen, Hung Quang Ta, Ngan Thu Tran, Minh Van Hoang, Thinh Huy Quoc Dang, Thanh Minh Pham, Hiep Nhu Pham, Hoa Thi Chau, Hoai Thi Khanh Nguyen, Kha Van Vo, Thuy Thanh Pham, Lan Hoang Thanh Dao, Dung Xuan Ho, Penelope Schofield","doi":"10.1080/07347332.2024.2345115","DOIUrl":"10.1080/07347332.2024.2345115","url":null,"abstract":"<p><strong>Objectives: </strong>To evaluate a co-designed intervention using digital resources \"Vietnam Cancer Caring Coping\" (V-CCC) on the health literacy, depression, and quality of life of caregivers supporting a cancer patient in oncology hospitals in Vietnam.</p><p><strong>Methods: </strong>A pre-post quantitative evaluation with adult cancer caregivers across regional Oncology hospitals in Vietnam (Ho Chi Minh City, Da Nang, Can Tho, and Hue). Participants completed baseline and follow-up measures of health literacy (HLS-SF12) depression (PHQ-9) and Health-related Quality of Life (5Q-5D-5L). Participants accessed and reviewed V-CCC for a 2-week period.</p><p><strong>Results: </strong>Two hundred and thirty-four caregivers completed pre and post-tests. Most participants were female (<i>n</i> = 143, 61%), married (<i>n</i> = 165, 70%), aged 18-44 (<i>n</i> = 155, 66%), lived rurally (<i>n</i> = 157, 67%). All health literacy scores of participants in post-intervention were significantly higher than that in pre-intervention across all domain's healthcare, disease prevention, and health promotion as well as the total score (<i>p</i> < 0.001). A significant reduction in the proportion of caregivers reporting PHQ-9 moderately severe/severe depression post-intervention was demonstrated (10.2 <i>vs.</i> 6.1%, respectively (<i>p</i> ≤ 0.001). No significant differences were observed pre and post-intervention across four 5Q-5D-5L health dimensions: mobility, self-care, usual activities, and pain/discomfort. Regarding anxiety/depression as measured by 5Q-5D-5L the proportion of participants who reported having moderate, severe, and extreme problems in pre- and post-intervention was statistically significant (32 <i>vs.</i> 24%), respectively (<i>p</i> = 0.0028).</p><p><strong>Conclusion: </strong>Co-designed digital resources can reduce health literacy inequities and improve psychological outcomes for cancer caregivers.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"875-887"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141876310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Soraya Colina-Matiz, Juan Hernández Leal, John Carlos Ariza-Vargas, Olga Rocio Beltrán Higuera, Cielo Ovalle-Chaparro, Natalia Lucía González Suárez, Judith Medellin-Olaya, Nadia Carolina Reina-Gamba, Catalina Correa-Mazuera, Iliana De Los Reyes Valencia, Juan Sebastián Lozano-Mosos
{"title":"Social robotics as an adjuvant during the hospitalization process in pediatric oncology patients.","authors":"Soraya Colina-Matiz, Juan Hernández Leal, John Carlos Ariza-Vargas, Olga Rocio Beltrán Higuera, Cielo Ovalle-Chaparro, Natalia Lucía González Suárez, Judith Medellin-Olaya, Nadia Carolina Reina-Gamba, Catalina Correa-Mazuera, Iliana De Los Reyes Valencia, Juan Sebastián Lozano-Mosos","doi":"10.1080/07347332.2024.2335170","DOIUrl":"10.1080/07347332.2024.2335170","url":null,"abstract":"<p><strong>Objective: </strong>To describe the experience of implementing social robotics as an adjuvant during the hospitalization process in pediatric oncology patients.</p><p><strong>Methods: </strong>Before and after cohort study, applying an intervention with the Lego Mindstorms EV3 kit in patients between 8 and 17 years old that are hospitalized with a cancer diagnosis. We excluded patients from the intensive care unit or when their treating physician recommended so. The intervention consisted of a three-phase workshop: an open architecture story, building a car robot using the Lego Mindstorm EV3 kit, and cooperative playing activities such as races and passing obstacles.</p><p><strong>Results: </strong>Thirteen patients received the intervention with robotic lego. The median age was 15 years (IQR = 3), and 84.6% of the population (<i>n</i> = 11) were male. We found significant improvement in the language (topic management <i>p</i> = .011 and communicative intention <i>p</i> = .034). Other characteristics improved, but not significantly (self-care activities index, catching). No adverse events occurred during the intervention.</p><p><strong>Conclusions: </strong>The results of this pilot study suggest that implementing social robotics during hospitalization in children with cancer is a therapeutic adjuvant and safe intervention that promotes better communication, self-care, and a physical activity improvement. For future studies, the impact of this intervention could be measured in hospitalized pediatric cancer patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"811-821"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140337220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rachel Telles, Sharaf Zia, Breanna B Greteman, Premal H Thaker, Frank Penedo, Mary E Charlton, Michael J Goodheart, Jessica S Armer, Alyssa Noble, Anil K Sood, Susan K Lutgendorf
{"title":"Well-being and stress vulnerability in ovarian cancer survivors during the COVID-19 pandemic.","authors":"Rachel Telles, Sharaf Zia, Breanna B Greteman, Premal H Thaker, Frank Penedo, Mary E Charlton, Michael J Goodheart, Jessica S Armer, Alyssa Noble, Anil K Sood, Susan K Lutgendorf","doi":"10.1080/07347332.2023.2244474","DOIUrl":"10.1080/07347332.2023.2244474","url":null,"abstract":"<p><strong>Objective: </strong>This study was designed to examine (1) whether ovarian cancer (OC) survivors would have greater well-being vs. elevated distress compared to community members during a universal health stressor (COVID-19) and (2) how resources and risk factors at diagnosis predicted vulnerability to a subsequent health-related stressor.</p><p><strong>Methods: </strong>One hundred seventeen OC survivors were recruited from two academic medical centers and compared to a community-based sample on COVID-related distress and disruption. Latent class analysis identified differentially impacted groups of survivors.</p><p><strong>Results: </strong>Survivors reported lower distress than community members. Predictors of higher distress included shorter-term survivorship, greater disruption, and poorer emotional well--being (EWB) at diagnosis. Survivors were divided into high- and low-COVID-19-impact subgroups; high-impact individuals endorsed higher perceived stress and lower EWB at diagnosis.</p><p><strong>Conclusion: </strong>Survivors reported lower COVID-related distress than community participants. While depression at diagnosis did not predict later distress, EWB was a strong predictor of response to a novel health-related stressor.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"299-314"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10873467/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10173647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Carol Y Ochoa-Dominguez, Randall Y Chan, Lissette Cervantes, Matthew P Banegas, Kimberly A Miller
{"title":"Social support experiences of hispanic/latino parents of childhood cancer survivors in a safety-net hospital: a qualitative study.","authors":"Carol Y Ochoa-Dominguez, Randall Y Chan, Lissette Cervantes, Matthew P Banegas, Kimberly A Miller","doi":"10.1080/07347332.2023.2259365","DOIUrl":"10.1080/07347332.2023.2259365","url":null,"abstract":"<p><strong>Purpose: </strong>To describe the social support experiences of Hispanic/Latino parents while caregiving for childhood cancer survivors.</p><p><strong>Research approach: </strong>Semi-structured one-on-one interviews were conducted among 15 caregivers from a safety-net hospital in Los Angeles. A thematic analysis approach was used to analyze data.</p><p><strong>Findings: </strong>The positive influence of social support throughout their caregiving experience included (1) sharing information-enhanced knowledge, (2) receiving comfort and encouragement, (3) receiving tangible assistance reducing the caregiving burden, and (4) enhancing caregiving empowerment/self-efficacy. Sub-themes regarding the lack of social support included (1) being a single parent and (2) family and friends withdrawing after the child's cancer diagnosis.</p><p><strong>Conclusion: </strong>We found Hispanic/Latino parents strongly value social support as it enables them to have essential resources that support caregiving for their child and themselves. Efforts should ensure that caregivers are routinely screened to identify their supportive needs so that support services for caregivers can be optimized and tailored, as those with a lack of social support may experience excessive caregiver burden.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"398-411"},"PeriodicalIF":1.5,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10987392/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41165775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}