Journal of Psychosocial Oncology最新文献

{"title":"Disparities in health-related quality of life among lesbian, gay, and bisexual cancer survivors.","authors":"Michael A Hoyt,&nbsp;Katie Darabos,&nbsp;Karen Llave","doi":"10.1080/07347332.2023.2210548","DOIUrl":"10.1080/07347332.2023.2210548","url":null,"abstract":"<p><strong>Objective: </strong>This study compared health-related quality of life (HRQOL) among lesbian, gay, and bisexual (LGB) cancer survivors and their heterosexual counterparts in a US population-based sample of cancer survivors.</p><p><strong>Methods: </strong>The study utilized data from the <i>All of Us</i> research program. LGB survivors (<i>n</i> = 885) were matched for age, gender identity, marital status, income, education, and cancer site with heterosexual survivors (<i>n</i> = 885) using 1:1 propensity matching. Physical, mental, and social HRQOL were assessed with items from the Patient-Reported Outcomes Measurement Information System (PROMIS).</p><p><strong>Results: </strong>Relative to heterosexuals, LGB cancer survivors reported lower HRQOL in mental and social domains, but not in physical HRQOL. Older age was associated with higher HRQOL across domains. LGB survivors identifying as Black/African American were more likely to experience lower social HRQOL than White survivors.</p><p><strong>Conclusions: </strong>This study highlights several disparities in HRQOL that exist between LGB and heterosexual cancer survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9455511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A conceptual framework of the psychosocial elements that should be assessed in candidates for hematopoietic cell transplant: Social workers' and psychologists' perspectives.","authors":"Jill Randall,&nbsp;J Jay Miller","doi":"10.1080/07347332.2022.2104677","DOIUrl":"https://doi.org/10.1080/07347332.2022.2104677","url":null,"abstract":"<p><p><b>Background:</b> The aim of this work was to explicate a conceptual framework of psychosocial elements assessed in candidates for hematopoietic cell transplant (HCT) and to explore differences in the conceptualization based on the use of risk rating scales in clinical practice.<b>Methods:</b> Concept mapping is a mixed methods participatory approach to elicit and organize the ideas of a group of stakeholders and produce a composite conceptual framework. Participants were social workers and psychologists with experience assessing HCT candidates.<b>Results:</b> Participants brainstormed 114 psychosocial elements and conceptualized them into 12 distinct clusters: Transplant Mindset, Support System, Caregiver, Lodging and Transportation, Financial and Legal, Work, Demographic Characteristics, Mental Health, Communication, Educational and Resource Needs, Physical Functioning, and Cognition. Participants who used risk rating scales did not prioritize the importance of the clusters differently than those who did not.<b>Conclusions:</b> The conceptualization converges and diverges with the literature. Divergences are of particular interest since the perspectives of practicing psychosocial professionals have been largely absent from the literature. The conceptual framework can guide psychosocial providers in assessing patients. Assessing the caregiver is a high priority, as is evaluating the patient's mental health and mindset about transplant.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9632444","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lessons learned from a social worker's approach to advance care planning discussions with Chinese-immigrant oncology outpatients.","authors":"Mi Zhou,&nbsp;Toby Bressler,&nbsp;Alan Weinberg,&nbsp;Alison Snow","doi":"10.1080/07347332.2022.2103486","DOIUrl":"https://doi.org/10.1080/07347332.2022.2103486","url":null,"abstract":"<p><strong>Purpose: </strong>To examine Chinese-immigrant cancer patients' openness to advance care planning (ACP) in an outpatient oncology setting.</p><p><strong>Design: </strong>Retrospective review of social work assessment data.</p><p><strong>Sample: </strong>150 Chinese-immigrant patient charts were reviewed (55% Cantonese, 45% Mandarin).</p><p><strong>Methods: </strong>Data were summarized descriptively and with logistic regression analyses.</p><p><strong>Findings: </strong>Sixteen percent of patients had completed ACP prior to meeting with the oncology social worker (OSW). Twenty percent of patients agreed to complete a health care proxy (HCP) after receiving culturally-tailored education in their language of origin from the OSW, while 75% remained open to ongoing consideration of ACP and HCP completion.</p><p><strong>Conclusions: </strong>This study illuminates how Chinese immigrants engage in ACP discussions in an oncology setting.</p><p><strong>Implications for psychosocial provider: </strong>OSWs can play an integral role in advocating, educating, and intervening with this population and can assist the interdisciplinary team in understanding the importance of the cultural differences, even if the OSW's primary language differs from that of a patient's.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9688884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Diving deeper into distress screening implementation in oncology care.","authors":"Elizabeth A Rohan, Jennifer E Boehm, Ruvini Samarasinha, Karen Stachon, M Shayne Gallaway, Grace Huang, Diane Ng, Nanmathi Manian","doi":"10.1080/07347332.2023.2250774","DOIUrl":"10.1080/07347332.2023.2250774","url":null,"abstract":"<p><strong>Background: </strong>Responding to calls for additional research that identifies effective distress screening (DS) processes, including referral practices subsequent to screening and receipt of recommended care, we engaged in qualitative research as part of a larger (mixed methods) study of distress screening. This qualitative inquiry of oncology professionals across different facilities in the United States examined routine DS implementation, facilitators and challenges staff encounter with DS processes, and staff members' perceived value of DS.</p><p><strong>Participants and methods: </strong>We conducted key informant interviews and focus groups with staff in 4 Commission on Cancer (CoC)-accredited oncology facilities (a total of 18 participants) to understand implementation of routine DS within oncology care. We used a rigorous data analysis design, including inductive and deductive approaches.</p><p><strong>Results: </strong>Respondents believe DS enhances patient care and described ways to improve DS processes, including administering DS at multiple points throughout oncology care, using patient-administrated DS methods, and enhancing electronic health records infrastructure to better collect, record, and retrieve DS data. Respondents also identified the need for additional psychosocial staff at their facilities to provide timely psychosocial care.</p><p><strong>Conclusions: </strong>Results reinforce the value of DS in cancer care, including the importance of follow-up to screening with psychosocial oncology providers. Understanding and resolving the barriers and facilitators to implementing DS are important to ensure appropriate psychosocial care for people with cancer. Insights from oncology staff may be used to enhance the quality of DS and subsequent psychosocial care, which is an essential component of oncology care.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10964759/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10185783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Women's psychosexual experiences following radical radiotherapy for gynaecological cancer: A qualitative exploration.","authors":"Aoife Jennings,&nbsp;Laura O'Connor,&nbsp;Hannah Durand,&nbsp;Martina Finnerty","doi":"10.1080/07347332.2022.2114054","DOIUrl":"https://doi.org/10.1080/07347332.2022.2114054","url":null,"abstract":"<p><strong>Purpose: </strong>To explore psychosexual experiences of women following radical radiotherapy for gynaecological cancer.</p><p><strong>Methods: </strong>Seven women who had completed radical radiotherapy for gynaecological cancer were interviewed. Interviews were semi-structured, and data were analyzed using an interpretative phenomenological analysis (IPA) approach.</p><p><strong>Results: </strong>Five superordinate themes were constructed: (1) No desire for sex since completing treatment; (2) Fear; (3) Unmet information and support needs; (4) Partner support and needs; and (5) Communication. Fear of adverse consequences following sex inhibited return to sexual activity after treatment. Misconceptions and lack of knowledge were evident. Communicating sexual issues was a difficulty that transcended personal relationships, also evident in professional medical relationships.</p><p><strong>Conclusion: </strong>Simple measures, beginning with facilitating understanding and acceptance of psychosexual experiences, can help those experiencing psychosexual problems following radical radiotherapy. Encouraging discussion, providing options and practical knowledge, and clarifying misconceptions about risks from sex after cancer could improve outcomes for gynaecological cancer patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9990837","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Salary and student loan debt for oncology social workers: Findings from the oncology social work competencies, opportunities, roles and expertise (CORE) survey.","authors":"Ting Guan,&nbsp;Brad Zebrack,&nbsp;Shirley Otis-Green,&nbsp;Grace DesJardins","doi":"10.1080/07347332.2022.2101906","DOIUrl":"https://doi.org/10.1080/07347332.2022.2101906","url":null,"abstract":"<p><strong>Purpose: </strong>To better understand the current salaries and student loan debt levels among oncology social workers (OSWs).</p><p><strong>Design: </strong>Cross-sectional study using online survey.</p><p><strong>Sample: </strong>OSWs across a variety of cancer care settings in the U.S. (<i>n</i> = 1055).</p><p><strong>Methods: </strong>Salary and debt were collected via single ordinal variables. Crosstabs and chi-square tests were used to examine whether salary and debt differ by demographic and work-related characteristics.</p><p><strong>Findings: </strong>Median OSW salaries ranged from $60,001 to $70,000. Three-fourths of OSWs reported having student loan debt. Younger and recently graduated OSWs and OSWs of color were more likely to have greater student loan debt than their counterparts.</p><p><strong>Conclusions: </strong>Relative low salary and debt burden have important implications for securing a current and future OSW workforce.</p><p><strong>Implications for psychosocial policy: </strong>Adequate reimbursement and loan repayment opportunities for frontline OSWs will better secure this workforce. Advocacy efforts to identify OSWs qualified for loan forgiveness programs are warranted.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10853815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Sexual script flexibility after a prostate cancer diagnosis: Implications for sexual satisfaction.","authors":"Meghan K McInnis,&nbsp;Caroline F Pukall","doi":"10.1080/07347332.2022.2102958","DOIUrl":"https://doi.org/10.1080/07347332.2022.2102958","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate the relationship among sexual functioning, sexual script flexibility, and sexual satisfaction in individuals diagnosed with prostate cancer.</p><p><strong>Design: </strong>Cross-sectional online survey.</p><p><strong>Participants: </strong>Sixty-one men diagnosed with localized prostate cancer.</p><p><strong>Methods: </strong>Online survey of sexual functioning, sexual script flexibility, and sexual satisfaction. Ordinal logistic regression investigated predictors of sexual satisfaction.</p><p><strong>Findings: </strong>Greater sexual script flexibility was associated with a greater likelihood of being sexually satisfied.</p><p><strong>Conclusions: </strong>Helping patients explore different ways of being sexual after treatment could help with sexual satisfaction maintenance.</p><p><strong>Implications: </strong>Patients' sexual satisfaction may benefit from discussions of issues related to sexuality and ways to work around treatment-related sexual dysfunction with healthcare providers.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9634403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Hybrid-delivered cognitive behavioral symptom management and activity coaching intervention for patients undergoing hematopoietic stem cell transplant: Findings from intervention development and a pilot randomized trial.","authors":"Sarah A Kelleher, Hannah M Fisher, Kelly Hyland, Shannon N Miller, Grace Amaden, Allison Diachina, Alyssa S Pittman, Joseph G Winger, Anthony Sung, Samuel Berchuck, Greg Samsa, Tamara J Somers","doi":"10.1080/07347332.2022.2152519","DOIUrl":"10.1080/07347332.2022.2152519","url":null,"abstract":"<p><strong>Objective: </strong>Develop and pilot test a mobile health (mHealth) cognitive behavioral coping skills training and activity coaching protocol (HCT Symptoms and Steps) for hematopoietic stem cell transplant (HCT) patients.</p><p><strong>Design: </strong>Two-phase, mixed methods study.</p><p><strong>Sample: </strong>HCT patients and healthcare providers.</p><p><strong>Methods: </strong>Phase I was patient (n = 5) and provider (n = 1) focus groups and user testing (N = 5) to develop the HCT Symptoms and Steps protocol. Phase II was a pilot randomized trial (N = 40) to evaluate feasibility, acceptability, and pre-to-post outcomes (e.g., physical disability, pain, fatigue, distress, physical activity, symptom self-efficacy) compared to an education control.</p><p><strong>Findings: </strong>Qualitative feedback on symptoms, recruitment strategies, coping skills, and mHealth components (e.g., Fitbit, mobile app) were integrated into the protocol. HCT Symptoms and Steps were feasible and acceptable. Pre-post changes suggest physical disability and activity improved while symptoms (e.g., fatigue, distress) decreased.</p><p><strong>Conclusions: </strong>HCT Symptoms and Steps have strong feasibility and acceptability and shows promise for benefits. Larger, fully-powered randomized trials are needed to examine intervention efficacy.</p><p><strong>Implications: </strong>HCT Symptoms and Steps may reduce physical disability and improve health outcomes post-transplant.</p><p><strong>Clinical trial registration number: </strong>NCT03859765.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10247893/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10159267","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Appraisals of cancer, religious/spiritual coping, and hope in patients with colorectal cancer.","authors":"Maya Atlas, Tae L Hart","doi":"10.1080/07347332.2022.2108743","DOIUrl":"10.1080/07347332.2022.2108743","url":null,"abstract":"<p><strong>Purpose/objectives: </strong>To examine the extent to which religious/spiritual coping moderates the association between stress appraisals and hope among patients with colorectal cancer.</p><p><strong>Design/research approach: </strong>A longitudinal, prospective examination of hope, stress appraisals of cancer, and religious/spiritual coping through self-report questionnaires at baseline, 6-months, and 12-months post-surgery.</p><p><strong>Sample/participants: </strong>One hundred thirty-nine newly diagnosed patients with colorectal cancer recruited from tertiary medical centers.</p><p><strong>Findings: </strong>Challenge and threat appraisals predicted hope. Only the relationship between hope and challenge appraisals was significantly moderated by coping through religion/spirituality, such that those who were both low on challenge and low in religious/spiritual coping reported the lowest hope.</p><p><strong>Conclusions/interpretation: </strong>Hope is predicted by how people appraise their cancer. Hope was lowest among participants who reported both low challenge appraisals and religious/spiritual coping.</p><p><strong>Implications for psychosocial providers: </strong>Understanding how patients appraise their cancer and use religion/spirituality to cope may help providers understand which patients are at risk for low hope.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9931936/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9626104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prevalence and risk factors of self-reported financial toxicity in cancer survivors: A systematic review and meta-analyses.","authors":"Hua Jiang,&nbsp;Jianxia Lyu,&nbsp;Wenxuan Mou,&nbsp;Luxi Jiang,&nbsp;Yu Zeng,&nbsp;Ying Liu,&nbsp;Aiping Hu,&nbsp;Qinghua Jiang","doi":"10.1080/07347332.2022.2142877","DOIUrl":"https://doi.org/10.1080/07347332.2022.2142877","url":null,"abstract":"<p><strong>Background: </strong>Similar to the side effects of cancer treatment, financial toxicity (FT) can affect the quality of life of patients, which has attracted increasing attention in the field of oncology. Despite the fact that the estimated prevalence and risk factors of FT are widely reported, these results have not been synthesized.</p><p><strong>Objectives: </strong>This review is aimed to systematically assess the prevalence and risk factors of self-reported FT.</p><p><strong>Design: </strong>Systematic review and meta-analyses.</p><p><strong>Data sources: </strong>A computer search of English literature was conducted using databases of PubMed, EMBASE, Web of Science, PsycINFO, and CINAHL, and reference lists of the qualified articles were also included between January 2010 and September 2021. Observational studies that reported the prevalence or risk factors of FT using subjective measures were included.</p><p><strong>Methods: </strong>The systematic review was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. The risk of bias was assessed by the NIH observational cohort and cross-sectional study quality assessment tool. The data were extracted by two reviewers and listed in a descriptive table for meta-analyses.</p><p><strong>Results: </strong>In the 22 studies available for meta-analyses of pooled prevalence of FT, the result was estimated to be 45% (95% CI: 38% to 53%, I² = 97.3%, P < 0.001) based on a random-effects model. The pooled analysis identified 9 potential risk factors of FT (7 in β and 8 in OR): low income (OR = 2.48, 95% CI: 1.72 to 3.24, I² = 3.1%, P < 0.001), greater annual OOP (β = -4.26, 95% CI: -6.95 to -1.57, I² = 0%, P = 0.002), younger age (OR = 2.05, 95% CI: 1.56 to 2.54, I² = 0%, P < 0.001), no private insurance (OR = 1.69, 95% CI: 1.02 to 2.37, I² = 0%, P < 0.001), unmarried (OR = 1.10, 95% CI: 0.95 to 1.25, I² = 53,3%, P < 0.001), nonwhite (OR = 1.59, 95% CI: 1.33 to 1.85, I² = 0%, P < 0.001), advanced cancer (β = -4.74, 95% CI: -6.90 to -2.57, I² = 0%, P < 0.001), unemployed (β = -2.90, 95% CI: -5.71 to -0.63, I² = 75,7%, P < 0.001), more recent diagnosis (OR = 1.31, 95% CI: 1.04 to 1.57, I² = 0%, P < 0.001).</p><p><strong>Conclusion: </strong>This systematic review reported a pooled prevalence of self-reported FT of 45%. Low income, greater annual OOP (Out of pocket), younger age, unmarried, unemployed, nonwhite, no private insurance, advanced cancer, and more recent diagnosis constituted risk factors for self-reported FT. The research on risk factors for FT can provide a theoretical basis for medical staff to evaluate and intervene in the FT among cancer survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":null,"pages":null},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9684508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}