“粉色是我最不喜欢的颜色”：性少数女性和伴侣应对乳腺癌的经历。

IF 1.5 4区医学 Q4 PSYCHOLOGY, SOCIAL

Journal of Psychosocial Oncology Pub Date : 2025-10-09 DOI:10.1080/07347332.2025.2567399

Elizabeth K Arthur, Megan E Gandy, Eric Sette, John A Fuller, Laura K Flora, Julia M Applegate, Jennifer Suchland, Katie Klakos, Michele Battle-Fisher, Clara N Lee

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引用次数: 0

摘要

目的：缺乏描述性少数女性（SMW）和幸存者伴侣乳腺癌护理经历的研究。采用社区参与的方法，我们描述了性少数乳腺癌幸存者在质量、以人为本的护理和生活质量方面的障碍。方法：对性少数乳腺癌幸存者及其伴侣进行简短调查和60分钟的定性访谈。数据分析采用NVivo应用专题分析软件。研究结果：参与者包括幸存者（n = 14）、伴侣（n = 5）和既是幸存者又是伴侣的个体（n = 4）。三个主题描述了性取向对癌症经历的影响；癌症治疗对性行为、性别体验和两性关系的影响；并为其他SMW幸存者和乳腺癌临床医生提供建议。结论：乳腺癌护理服务存在显著差距，需要临床教育、资源和干预措施来改善SMW乳腺癌护理。

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"Pink is my least favorite color": experiences of sexual minority women and partners navigating breast cancer.

Purpose: Studies describing breast cancer care experiences of sexual minority women (SMW) and partners of survivors are lacking. Using a community-engaged approach, we characterized barriers to quality, person-centered care and quality of life outcomes in sexual minority breast cancer survivors.

Methods: Sexual minority breast cancer survivors and partners participated in a brief survey and 60-minute qualitative interview. Data were analyzed using applied thematic analysis using NVivo software.

Findings: Participants were survivors (n = 14), partners (n = 5), and individuals who were both survivors and partners (n = 4). Three themes describe the influence of sexual orientation on the cancer experience; influence of cancer treatment on sexuality, gender experience, and relationships; and advice for other SMW survivors and breast cancer clinicians.

Conclusions: Significant gaps in breast cancer care delivery were identified, warranting clinical education, resources, and interventions to improve SMW breast cancer care.

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来源期刊

Journal of Psychosocial Oncology PSYCHOLOGY, SOCIAL-

CiteScore

4.20

自引率

0.00%

发文量

期刊介绍： Here is your single source of integrated information on providing the best psychosocial care possible from the knowledge available from many disciplines.The Journal of Psychosocial Oncology is an essential source for up-to-date clinical and research material geared toward health professionals who provide psychosocial services to cancer patients, their families, and their caregivers. The journal—the first interdisciplinary resource of its kind—is in its third decade of examining exploratory and hypothesis testing and presenting program evaluation research on critical areas, including: the stigma of cancer; employment and personal problems facing cancer patients; patient education.