Will Boles, Lauren Nguyen, Thad Tatum, Jarrod Wall, Alexandria Van Dall, Anjali Niyogi, Anna Sacks, Bruce Reilly, Claire Mulhollem, Ashley Wennerstrom
{"title":"A Qualitative Program Evaluation of a Digital Peer Support Group for Formerly Incarcerated People.","authors":"Will Boles, Lauren Nguyen, Thad Tatum, Jarrod Wall, Alexandria Van Dall, Anjali Niyogi, Anna Sacks, Bruce Reilly, Claire Mulhollem, Ashley Wennerstrom","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objectives: </strong>A qualitative program evaluation of the Formerly Incarcerated Peer Support (FIPS) group, a peer-led mutual support group for formerly incarcerated people, was conducted to understand participant perceptions of (1) digital delivery via Zoom, (2) curriculum content, (3) roles of group participants, and (4) therapeutic value of FIPS group as it relates to traumatic experiences in prison and ongoing challenges after release.</p><p><strong>Methods: </strong>Using a community-based participatory action research approach, a qualitative evaluation was conducted with participants in either the 2020 or 2021 curriculum. Semi-structured interviews were conducted via Zoom, transcribed, de-identified, coded, and analyzed via applied thematic analysis and results reviewed with participants.</p><p><strong>Results: </strong>Of 75 formerly incarcerated participants, 20 interviews were conducted and recorded (n = 20). All participants were male, 85% were Black, and the average age was 54.8 years old. Zoom delivery was not preferred, but feasible. Most appreciated the comprehensive and holistic curriculum that enabled peers to gain practical and emotional social support in different areas of life after release. The facilitator's experience with prison programs and relationships within peer networks was essential for recruitment and retention. Participants described (1) feelings of acceptance, (2) examples of teaching and learning from peers' improved insight, trigger management, response modification to stressors, and (3) improved understanding within relationships with those who have not been incarcerated.</p><p><strong>Conclusions: </strong>Digital delivery of peer-led psychosocial support groups for formerly incarcerated people is feasible and impactful. Future research can further characterize the lingering impacts of institutional traumas and quantify changes.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"167-182"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amanda J Young, Amanda Maresh, Shammara Pope, Rae Blaylark, Sangeetha Lakshmanan, L'Oreal Stephens, Rebecca Aderojou, Emily Meier, Gary Gibson, Amanda Okolo, Shamaree Cromartie, Niani Coker, Susan Paulukonis, Jennifer Fields, Mandip Kaur, Jay Desai
{"title":"Improving the Lives of People with Sickle Cell Disease: Community Organizations and Epidemiologists Working Together.","authors":"Amanda J Young, Amanda Maresh, Shammara Pope, Rae Blaylark, Sangeetha Lakshmanan, L'Oreal Stephens, Rebecca Aderojou, Emily Meier, Gary Gibson, Amanda Okolo, Shamaree Cromartie, Niani Coker, Susan Paulukonis, Jennifer Fields, Mandip Kaur, Jay Desai","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>The Centers for Disease Control and Prevention's Sickle Cell Data Collection (SCDC) program comprises multidisciplinary teams, which include community-based organizations. Partnering with community-based organizations (CBOs) is a novel approach to ensure that SCDC data are actionable.</p><p><strong>Objective: </strong>To better understand areas for mutual capacity building, we explored the relationships and dynamics between CBO and data teams within the SCDC program in 10 states.</p><p><strong>Methods: </strong>We conducted semi-structured interviews with CBO (n = 13) and SCDC (n = 10) participants and then categorized and compared text from each interview and across states. Six themes emerged.</p><p><strong>Lessons learned: </strong>Transparency and trust are essential. Early CBO engagement and leadership are needed for trust and agreed upon priorities.</p><p><strong>Conclusions: </strong>Participants contextualized trust, the most prominent theme, within discussions of racism and health inequities. Relationships between the CBO and data teams bring hard data and human experience together for advocacy, education, improved care, and a platform for the SCD voice.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 3","pages":"371-380"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11424017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Samantha Sabo, Dulce J Jiménez, Alexandra Samarron Longorio, Omar Gomez, Melissa Liebert, Miriam Adriana Cuautle, Sara Shuman, Jill Guernsey de Zapien, Shefali Milczarek-Desai
{"title":"<i>Aquí Entre Nos</i> (Just Between Us): Engagement of Hotel Housekeepers During Sociopolitical and Environmental Change.","authors":"Samantha Sabo, Dulce J Jiménez, Alexandra Samarron Longorio, Omar Gomez, Melissa Liebert, Miriam Adriana Cuautle, Sara Shuman, Jill Guernsey de Zapien, Shefali Milczarek-Desai","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Aquí Entre Nos (Between Us) is a community-based participatory research project to engage rural, ethno-racially diverse hotel housekeepers in a right to work state during a time of national anti-immigrant policy, wildfires and emergence of a global pandemic.</p><p><strong>Objectives: </strong>We aimed to (1) build trust and social support with the hotel housekeeping community, (2) learn about the occupational health, safety, and workers' rights challenges, strategies, and solutions held by workers, and (3) develop a workforce-driven research and action agenda to improve labor and health conditions.</p><p><strong>Methods: </strong>Participatory mixed methods rooted in popular education are described to form an advisory board and engage the workforce.</p><p><strong>Lessons learned: </strong>Trusted relationships built through community organizing around immigration, housing, and minimum wage were critical to engage and drive a worker centered research agenda.</p><p><strong>Conclusions: </strong>Despite challenges, housekeeper advisors defined a research agenda that addressed immediate-and long-term needs of the workforce.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"213-223"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471417","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sirry M Alang, Abby S Letcher, Hasshan Batts, Carol Moeller, Nyann Biery, Mary Mitsdarffer, Autumn M Kieber-Emmons, Jose Rivera, Melanie Johnson
{"title":"Community-engaged Research Partnerships as Healing Spaces for Health Professionals and Researchers.","authors":"Sirry M Alang, Abby S Letcher, Hasshan Batts, Carol Moeller, Nyann Biery, Mary Mitsdarffer, Autumn M Kieber-Emmons, Jose Rivera, Melanie Johnson","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Drawing from collective experiences in our capacity building project: Health Equity Activation Research Team for Inclusion Health, we argue that while community-engaged partnerships tend to focus on understanding health inequities and developing solutions, they can be healing spaces for health professionals and researchers. Data were obtained from a 15-month participatory ethnography, including focus groups and interviews. Ethnographic notes and transcripts were coded and analyzed using both deductive and inductive coding. Practices of radical welcome, vulnerability, valuing the whole person, acknowledging how partnerships can cause harm, and centering lived experience expertise in knowledge creation processes were identified as key characteristics of healing spaces. Ultimately, health professionals and researchers work within the same social, political and economic contexts of populations with the worst health outcomes. Their own healing is critical for tackling larger systemic changes aimed at improving the well-being of communities harmed by legacies of exclusion.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"287-293"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471541","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ingie H Osman, Aparea Smith, Antonio Williams, Katie Pierson, Eric Ryu, Rebecca J Shlafer
{"title":"Partnering to Address Health Inequities among Incarcerated Populations: Prisons, Jails, and COVID-19 Vaccination.","authors":"Ingie H Osman, Aparea Smith, Antonio Williams, Katie Pierson, Eric Ryu, Rebecca J Shlafer","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Incarcerated people have been disproportionately affected by the COVID-19 pandemic and face significant challenges to COVID-19 vaccine confidence.</p><p><strong>Objectives: </strong>(1) Describe our partnerships with community members directly impacted by incarceration, (2) discuss the partnership's process for co-developing and implementing project interventions to increase COVID-19 vaccine confidence, and (3) share lessons learned from this unique community-engaged partnership.</p><p><strong>Methods: </strong>An advisory board of 14 formerly incarcerated community members participated in this project. Their wisdom and experience led to the development and implementation of interventions to increase confidence in COVID-19 vaccines among incarcerated people.</p><p><strong>Lessons learned: </strong>Valuable lessons learned were centering community, leaning into trusted sources of information, acknowledging historical and present harms, and investing in community-engaged work.</p><p><strong>Conclusions: </strong>Centering lived experiences of those directly impacted by incarceration has been crucial to increasing vaccine confidence among this population. Doing so reinforced the importance of long-term investments in community-based collaborations with communities impacted by incarceration.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"193-201"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Morgan M Medlock, Richard Schottenfeld, Mustafa Abdul-Salaam, Charles Bay, Imani Brown, Gloria Thombs-Cain, Kevin Charles, Ernest Clover, Kendrick E Curry, Lazetta Nelson, Jasmine Thompson, Denise Scott, Imani Walker, Carla Williams
{"title":"The Community is the Cure: How African American Washington, DC Residents Informed Opioid Treatment Engagement.","authors":"Morgan M Medlock, Richard Schottenfeld, Mustafa Abdul-Salaam, Charles Bay, Imani Brown, Gloria Thombs-Cain, Kevin Charles, Ernest Clover, Kendrick E Curry, Lazetta Nelson, Jasmine Thompson, Denise Scott, Imani Walker, Carla Williams","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Recent data indicate rising opioid overdose deaths among African American residents of Washington, DC.</p><p><strong>Objectives: </strong>We highlight a community-informed approach to assessing attitudes toward opioid use disorder treatment among DC residents (February 2019 to March 2020).</p><p><strong>Methods: </strong>A listening tour with trusted community leaders led to the formation of a Community Advisory Board (CAB). When the COVID-19 pandemic commenced in March 2020, community dialogues became exclusively virtual. The CAB partnered with academic leaders to co-create project mission and values and center the community's concerns related to opioid use and its causes, treatment structure, and facilitators of effective engagement.</p><p><strong>Results: </strong>Interview guides were created for the engagement of community members, using values highlighted by the CAB. The CAB underscored that in addition to opioid problems, effective engagement must address community experience, collective strengths/resilience, and the role of indigenous leadership.</p><p><strong>Conclusions: </strong>Engaging community prior to project implementation and maintaining alignment with community values facilitated opioid use disorder assessments. Community-informed assessments may be critical to building community trust.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"235-245"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471550","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Terrinieka W Powell, Amanda Forr, Sydney Johnson, Taylor Clinton, James Gaither, Janesse Brewer, Matthew Z Dudley, Joni Holifield, Paige Wilson, Lori Rose Benson, Lindsey Harr, Daniel A Salmon, Tamar Mendelson
{"title":"The Voices on Vax Campaign: Lessons Learned from Engaging Youth to Promote COVID Vaccination.","authors":"Terrinieka W Powell, Amanda Forr, Sydney Johnson, Taylor Clinton, James Gaither, Janesse Brewer, Matthew Z Dudley, Joni Holifield, Paige Wilson, Lori Rose Benson, Lindsey Harr, Daniel A Salmon, Tamar Mendelson","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>The Voices on Vax campaign was a collaborative effort that engaged youth to create an interactive website and social media presence to increase COVID vaccine confidence and uptake among African American families in Baltimore, Maryland.</p><p><strong>Objectives: </strong>To describe lessons learned and offer recommendations for future health communication campaigns involving youth ambassadors and virtual platforms.</p><p><strong>Methods: </strong>We collected website analytics and limited data from pop-up surveys on the Voices on Vax website, as well as reflections from the youth ambassadors about their experiences.</p><p><strong>Lessons learned: </strong>Challenges included difficulties engaging the priority population and methodological limitations of our campaign's impact evaluation. Successes included our focus on youth and adaptive engagement strategies.</p><p><strong>Conclusions: </strong>We recommend using techniques to maximize engagement by the priority population, conducting in-person outreach, incorporating mixed methods data collection, and providing a mix of structured training and creative freedom to youth ambassadors.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 3","pages":"345-353"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Training Dental Teams to Address Community Health: Necessary Partnerships and Evaluation of an Evidence-Based Curriculum.","authors":"Shawnda Schroeder, Julie Reiten","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Annually, 27 million Americans visit a dental professional but not a physician. Dental professionals must recognize that they are members of their patients' primary care teams. Continuing education must then prepare them to appropriately serve their specific communities.</p><p><strong>Objectives: </strong>The objective of this paper was to describe the implementation of an evidence-based model to train dental professionals on how to respond to community-level health needs. The paper details crucial partnerships and provides evidence and key considerations for replicating the curriculum to improve population health.</p><p><strong>Methods: </strong>The Extension for Community Healthcare Outcomes (ECHO) model was used in one state where dental health care use is challenging for persons living rural, eligible for Medicaid, aging, and those who are American Indian. This formative evaluation knowledge assessments, data on participants' changes in clinical care practice, web analytics, and artifact review to assess effective implementation strategies and necessary community partnerships.</p><p><strong>Conclusions: </strong>Successful implementation of the curriculum required active participation and partnership with state provider associations, the office of Medicaid, the state Board of Dental Licensure, and others. Without engaged partners, the curriculum would not have been community relevant, nor would it have had case presentation from local providers. In a state with only 427 practicing dentists, live attendance ranged between 9 and 22 dental team members, with between 11 and 91 views of the recorded sessions. Using the evidence-based ECHO model, which requires community health partnerships, is a cost-effective, and accessible, method to offering community specific education for dental providers across a large geographic region.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 3","pages":"407-414"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Edgar Villarreal-Jimenez, Jose Antonio Lores-Peniche, Ingris Pelaez-Ballestas, Gabriela Cruz-Martín, Daniela Flores-Aguilar, Hazel García, Arturo Velazco Gutiérrez, Hugo Ayora-Manzano, Kenia López, Adalberto Loyola-Sanchez
{"title":"Co-design of a Community-based Rehabilitation Program to Decrease Musculoskeletal Disabilities in a Mayan-Yucateco Municipality","authors":"Edgar Villarreal-Jimenez, Jose Antonio Lores-Peniche, Ingris Pelaez-Ballestas, Gabriela Cruz-Martín, Daniela Flores-Aguilar, Hazel García, Arturo Velazco Gutiérrez, Hugo Ayora-Manzano, Kenia López, Adalberto Loyola-Sanchez","doi":"10.1353/cpr.2023.a907971","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907971","url":null,"abstract":"Abstract: Background: Chronic musculoskeletal (MSK) diseases are an important cause of disability in the Mayan community of Chankom in Yucatán, Mexico. Objective: To understand a community-based participatory research (CBPR) strategy implemented in Chankom to design a community-based rehabilitation (CBR) program for people living with MSK diseases. Methods: Qualitative descriptive thematic analysis from an ethnographic work conducted in Chankom, during the implementation of a CBPR strategy from 2014 to 2017. Results: Four main themes describe the main processes that formed our CBPR strategy: 1) forming and maintaining an alliance between academic and community members, 2) prioritizing community needs, 3) integrating local and global knowledge and 4) shared-decision-making. This CBPR strategy allowed the design of a CBR program formed by six main interventions: 1) health services coordination, 2) personal support, 3) community venous blood sampling services, 4) community specialized services, 5) health promotion, and 6) health transportation services. Conclusions: Co-designing a CBR program for people living with chronic MSK diseases in Chankom was possible through an extensive community engagement work structured around four main processes, including the essential principles of CBPR. The designed CBR program includes culturally sensitive interventions aimed at improving the quality, availability, accessibility, and acceptability of health care services. Moreover, the program mainly addressed the \"health\" component of the World Health Organization–CBR matrix, suggesting a need for a new CBPR cycle after it is implemented and evaluated in the future.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"14 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}