Progress in Community Health Partnerships-Research Education and Action最新文献

{"title":"Cultivating an Ecosystem: A Qualitative Exploration of Sustainability in Long-Standing Community-Based Participatory Research Partnerships","authors":"P. Paul Chandanabhumma, Adena Gabrysiak, Barbara L. Brush, Chris M. Coombe, Eugenia Eng, Megan Jensen, Laurie Lachance, Peggy Shepard, Nina B. Wallerstein, Barbara A. Israel","doi":"10.1353/cpr.2023.a907970","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907970","url":null,"abstract":"Abstract: Background: While sustainability is crucial to the success of community-based participatory research (CBPR) partnerships, there is a lack of conceptual clarity on what defines sustainability and what characterizes sustainability-promoting practices in long-standing (in existence 6 years or longer) CBPR partnerships. Objectives: The aim of this article is to explore the definition of sustainability, as well as practices that influence sustainability from the perspectives of academic and community experts in long-standing CBPR partnerships. Methods: This qualitative analysis is part of Measurement Approaches to Partnership Success, a participatory mixed methods validity study that examined \"success\" and its contributing factors in long-standing CBPR partnerships. Thematic analysis of 21 semistructured interviews was conducted, including 10 academic and 11 community experts of long-standing CBPR partnerships. Results: The key defining components of sustainability we identified include: distinguishing between sustaining the work of the partnership and ongoing relationships among partners; working towards a common goal over time; and enduring changes that impact the partnership. We further identified strengthening and capacity building practices at multiple levels of the partnership that served to promote the sustainability of the partnership's work and of ongoing relationships among partners. Conclusions: Sustainability can be understood as supporting an ecosystem that surrounds the beneficial relationships between academic and community partners. Ongoing evaluation and application of practices that promote the sustainability of partnership activities and relationships may strengthen the long-term effectiveness of CBPR partnerships in advancing health equity.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Minimum Age for California's Juvenile Legal System: Lessons on Collaborative Research to Drive Legislative Change","authors":"Elizabeth S. Barnert, Laura S. Abrams","doi":"10.1353/cpr.2023.a907983","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907983","url":null,"abstract":"Most U.S. states lack a minimum age of juvenile legal jurisdiction, which leaves young children vulnerable to a harsh, punitive system that causes lifelong adverse health and social outcomes. However, partnership between academics, advocates, and policymakers can catalyze legislative change to set minimum ages.We, an academic pediatrician and social worker, describe our stakeholder-policymaker-academic partnered research that led to the passage of California Senate Bill 439, which excludes children under age 12 from eligibility for juvenile legal prosecution. To stimulate future efforts, we also describe how the initial partnership led to a national coalition through which we are partnering with stakeholders across the United States to influence minimum age laws nationwide.Stakeholder-policymaker-academic partners can contribute synergistically in the research-to-policymaking process.Through a stakeholder-policymaker-academic partnership, we were able to influence the passage of a minimum age law for the juvenile legal system in California. Lessons learned in this collaboration can be applied by researchers across disciplines who wish to influence policy.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Community–Academic Partnership to Explore and Address Cancer Disparities in Southwest Chicago Arab Americans","authors":"Perla Chebli, Itedal Shalabi, Nareman Taha, Naoko Muramatsu, Karriem Watson, Marian Fitzgibbon, Yamilé Molina, Sarah Abboud","doi":"10.1353/cpr.2023.a907961","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907961","url":null,"abstract":"Despite the need to consider multiple sources of evidence to guide locally and culturally relevant interventions, few studies have documented the process by which evidence is integrated.We leveraged a community-academic partnership to describe a participatory approach to integrating community and academic sources of evidence to inform cancer programming priorities in the Arab American (ArA) community in Southwest Chicago.Informed by Intervention Mapping, this study comprised three phases led by community and academic partners: 1) qualitative assessment of cancer-related priorities through eight focus groups with 48 ArA community members, 2) a focused literature review to identify models of cancer interventions implemented with ArAs, and 3) integration of focus group and literature review findings and development of a strategy for a community-based cancer program administered by the community partner.Focus groups revealed attitudes and beliefs across the cancer control continuum. The literature review highlighted two cancer interventions utilizing education, community health workers, and patient navigation components. Through facilitated discussions with community partners, we integrated community and academic sources of evidence to develop a comprehensive cancer program plan that is informed by the data we generated as well as our community partners' preferences and organizational capacity.Our participatory approach for integrating community and academic sources of evidence generated a locally relevant strategy to address cancer burden in the ArA community in Chicago. We discuss the benefits and challenges of utilizing this approach in intervention development.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community Partners' Perspectives on Partnering With an Academic Research Team to Promote Disability-inclusive Fitness Programming","authors":"Toni Liechty, Mina Woo, Laura A. Rice, Chung-Yi Chiu, Stacy Kirkpatrick, Kay Hankins, Elsie Hedgspeth, Ashley Nichols, Catherine Porter, Molly Smeltzer, Brynn Adamson","doi":"10.1353/cpr.2023.a907966","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907966","url":null,"abstract":"Community Partners' Perspectives on Partnering With an Academic Research Team to Promote Disability-inclusive Fitness Programming Toni Liechty, PhD, Mina Woo, MS, Laura A. Rice, PhD, Chung-Yi Chiu, PhD, Stacy Kirkpatrick, BS, Kay Hankins, BSN, OCN, Elsie Hedgspeth, BS, Ashley Nichols, BS, Catherine Porter, MS, Molly Smeltzer, MS, PT, and Brynn Adamson, PhD What Is the Purpose of this Study? • Assess community partners' experiences with a community–academic partnership that is designed to implement a fitness program for people with multiple sclerosis and promote inclusion for people with disabilities in community-based fitness programming. What Is the Problem? • Community-based fitness programs can support public health by providing access to physical activity opportunities for a vulnerable population with significant barriers. • Programs specifically designed for people with disabilities and staff training to promote inclusion for people with disabilities in general population programs is limited. • Partnerships between academic research teams and community-based fitness organizations can help to mitigate these challenges and improve services for people with disabilities What Are the Findings? • The academic–community partnership facilitated efficiency in serving community members with disabilities by combining complementary strengths of the academic team (e.g., specialized knowledge) and the community partners (e.g., facilities, community relationships). • The success of the partnership was facilitated by positive pre-existing relationships, well-aligned goals, and clear communication of expectations prior to implementation. • The success of the partnership was facilitated during and after partnership activities through ongoing communication and relationship-building, negotiating organizational differences, securing adequate resources, commitment and empathy from all partners, and leadership from a passionate champion. Who Should Care Most? • Managers of community-based fitness organizations who serve individuals with disabilities and/or who want to improve inclusivity in their services. • Academic research teams who want to partner directly with community-based fitness programs. [End Page e11] • Reach out to potential partners who may have complementary strengths and/or resources. • Seek out innovative strategies to more efficiently serve people with disabilities. • Be open to academic-community partnerships as a means to improve health and leisure services. [End Page e12] Toni Liechty Department of Recreation, Sport, and Tourism, University of Illinois at Urbana-Champaign Mina Woo Department of Recreation, Sport, and Tourism, University of Illinois at Urbana-Champaign Laura A. Rice Department of Kinesiology and Community Health, Center on Health, Aging, and Disability, University of Illinois at Urbana-Champaign Chung-Yi Chiu Department of Kinesiology and Community Health, Center on Health, Aging, and Disability, University of Illinois at Urban","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Leveraging Collaborative Partnerships to Protect the Human Rights of Children Involved in the United States' Juvenile Justice System","authors":"Melissa Coretz Goemann, Mikah Owen","doi":"10.1353/cpr.2023.a907985","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907985","url":null,"abstract":"Leveraging Collaborative Partnerships to Protect the Human Rights of Children Involved in the United States' Juvenile Justice System Melissa Coretz Goemann, JD and Mikah Owen, MD, MPH, MBA Keywords Policy, youth justice, collaborative research, legislative advocacy, juvenile legal system, minimum age In 2019, United States' courts with juvenile justice jurisdiction handled more than 720,000 youth delinquency cases.1 Research demonstrates that children and adolescents involved with the legal system often have complex and unmet social, developmental, legal, medical, and mental health needs.2 Given the unique needs of justice-involved youth, it is imperative that the United States treat children in a developmentally appropriate way and promote and protect the human rights of justice-involved youth. The core elements of a justice system that would protect children's human rights are outlined in a series of international guidelines, laws, and treaties that establish minimum standards for treatment of children in conflict with the law. Unfortunately, when it comes to protecting the human rights of children involved with the justice system, the United States routinely fails to meet international standards. In this issue of Progress in Community Health Partnerships: Research Education and Action, Drs. Elizabeth Barnert and Laura Abrams highlight one way in which the United States systematically fails to protect the human rights of children involved with the justice system. As described in their article, international standards and norms establish the minimum age of criminal responsibility at no younger than ages 12 to 14 years. Despite these international standards, the United States lacks federal protection from prosecution for children under 12 years of age. Furthermore, many U.S. states also lack a minimum age of criminal responsibility for children. The lack of federal and state protections can have devastating effects on children and families. Whether it is the arrest of a 6-year-old in Florida for throwing a temper tantrum in school3 or officers handcuffing and pepper spraying a 9-year-old in New York for a family disturbance call,4 news headlines and child narratives reveal the traumatic impact that arrest, prosecution, and incarceration can have on young children and their families. In addition to news headlines and firsthand accounts from children, scientific evidence confirms that courtrooms and detention facilities are no place for young children. Over the last two decades, advances in neuroscience and neuroimaging show the brain undergoes numerous structural and functional changes throughout childhood and the process of brain maturation is not complete until at least 26. Furthermore, research shows that the brain develops in stages, culminating in the maturation of the prefrontal cortex. The prefrontal cortex, sometimes referred to as the 'control center of the brain,' is the area of the brain responsible for a variety of executive functions,","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588423","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Advancing Health Equity: An Innovative Program for Building Community Engagement in Research","authors":"Alycia Santilli, Katherine LaMonaca, Kendra Carr, Bailee Rue, Karen D'Angelo, Jackson Higginbottom, Sofia Morales, Marquita A. Taylor, Genesis A. Vicente, Anna Lin-Schweitzer, Kathleen O'Connor Duffany","doi":"10.1353/cpr.2023.a907982","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907982","url":null,"abstract":"Abstract: Background: The Community Research Fellows (CRF) program seeks to mobilize New Haven residents with lower incomes or from communities of color who are educated and equipped to engage as equal partners in health research at Yale University. The training program combines curriculum-based information with 'on-the-ground' experience with Yale research projects, while building relationships between CRFs and researchers. The Community Alliance for Research and Engagement launched two consecutive cohorts of the program in 2018–2020. Objectives: To assess the effect of the CRF program on participants' knowledge of the research process and confidence to engage in research and participants' satisfaction and perspectives on the program. Methods: The evaluation of the CRF program included four components: 1) Pre- and Post- Program Surveys to assess change in confidence and self-reported knowledge. 2) Curriculum Feedback Satisfaction Survey to gauge satisfaction and make program improvements after each training session. 3) Post-Program CRF Interviews to explore their CRF experiences. 4) Research Team Surveys to assess program satisfaction and areas for improvement. Results: CRFs reported increased confidence and knowledge, personal and professional growth, and interest in community-engaged research. Overall, participants were very satisfied with each training module. Conclusions: The CRF program demonstrated that community members are well-suited, well-positioned, and eager to engage in and inform public health research. CRFs bring capacity and valuable perspective to research teams. The CRF training program offers an innovative approach to address power imbalances in research and to move towards more equitable community–university partnerships for improved health outcomes.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I Am Now Five Steps Ahead\": How Co-design Platforms Sustain Kenyan Community Health Volunteer Engagement","authors":"Hanna-Joy Renner, Naomi W. Makobu, Simon Mbugua, Wilson Karuri Kamiru, Dorothy Oluoch, Angela Donelson, Mary B. Adam","doi":"10.1353/cpr.2023.a907972","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907972","url":null,"abstract":"Abstract: Objectives: The aim of this study is to examine how humancentered design (HCD) as a platform for co-production might function to explain community health volunteer (CHV) motivation in self-directed and self-funded community health activities. Sustaining engagement has been difficult for CHVs who lack monetary incentives, expense reimbursement, and are rarely given opportunity to give their own voice to local health priorities. Design: Qualitative study utilized focus group discussions 12 months post intervention and included both an inductive and deductive level of analysis. Setting: Three community health units (CHU) representing Kenya's diversity were selected with the local Ministry of Health including peri-urban slum, rural agrarian, and a unit where informal day labor and rented housing was the norm. Participants: The participants were selected according to Kenya's community health strategy norms and had previously had the standard basic community health training. Intervention: A 3-day training rooted in HCD utilized multiple quality improvement tools (asset mapping, root cause analysis, key drivers) in order to help CHVs uncover unarticulated community needs and assumptions and encourage behavior change. Action plans with Plan-Do-Study-Act cycles were tracked longitudinally. Results: Key themes were self-interest, common goal, gratitude/indebtedness. Additional thematic analysis identified altruism as supporting sustained engagement. Conclusions: This study supports HCD as a platform for sustained CHV engagement. It builds the evidence for self-interest, common goal, and gratitude/indebtedness as sustaining factors. These factors are also seen in process-based theories that operationalize and measure trust building reciprocity cycles that mirror the iterative P-D-S-A cycles seen in HCD.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cultivating an Ecosystem: A Qualitative Exploration of Sustainability in Long-Standing Community-Based Participatory Research Partnerships","authors":"P. Paul Chandanabhumma, Adena Gabrysiak, Barbara L. Brush, Chris M. Coombe, Eugenia Eng, Megan Jensen, Laurie Lachance, Peggy Shepard, Nina B. Wallerstein, Barbara A. Israel","doi":"10.1353/cpr.2023.a907963","DOIUrl":"https://doi.org/10.1353/cpr.2023.a907963","url":null,"abstract":"While sustainability is crucial to the success of community-based participatory research (CBPR) partnerships, there is a lack of conceptual clarity on what defines sustainability and what characterizes sustainability-promoting practices in long-standing (in existence 6 years or longer) CBPR partnerships.The aim of this article is to explore the definition of sustainability, as well as practices that influence sustainability from the perspectives of academic and community experts in long-standing CBPR partnerships.This qualitative analysis is part of Measurement Approaches to Partnership Success, a participatory mixed methods validity study that examined \"success\" and its contributing factors in long-standing CBPR partnerships. Thematic analysis of 21 semistructured interviews was conducted, including 10 academic and 11 community experts of long-standing CBPR partnerships.The key defining components of sustainability we identified include: distinguishing between sustaining the work of the partnership and ongoing relationships among partners; working towards a common goal over time; and enduring changes that impact the partnership. We further identified strengthening and capacity building practices at multiple levels of the partnership that served to promote the sustainability of the partnership's work and of ongoing relationships among partners.Sustainability can be understood as supporting an ecosystem that surrounds the beneficial relationships between academic and community partners. Ongoing evaluation and application of practices that promote the sustainability of partnership activities and relationships may strengthen the long-term effectiveness of CBPR partnerships in advancing health equity.","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135588262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Warrior's Rest","authors":"Pepik Henneman","doi":"10.21428/d2eb3cdf.2625041e","DOIUrl":"https://doi.org/10.21428/d2eb3cdf.2625041e","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2023-06-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"79037085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Beyond the Manuscript: Perspectives of Community Partners Involved in an Academic Training to Address Clinicians’ Implicit Bias","authors":"E. Tumilty, J. Tjia, Leopoldo Negrón-Cruz","doi":"10.1353/cpr.2023.a900216","DOIUrl":"https://doi.org/10.1353/cpr.2023.a900216","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74698828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}