Nicole Jones, Kenyetta Dotson, Kirk D Smith, Lawrence Reynolds, Kent Key, Mona Hanna-Attisha
{"title":"The Impact of Community Engagement in the Design and Implementation of the Flint Registry.","authors":"Nicole Jones, Kenyetta Dotson, Kirk D Smith, Lawrence Reynolds, Kent Key, Mona Hanna-Attisha","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>The Flint water crisis (FWC) was a public health tragedy caused by crumbling infrastructure, subverted democracy, and indifference toward a predominantly poor and Black community that resulted in lead-in-water exposure, Legionnaires' disease, and emotional and health-related trauma. Through the cooperation of community partners, the Flint Registry (FR) was conceived to track long-term health and improve public health via service connections.</p><p><strong>Objectives: </strong>This study sought to share the FR's community-partnered, multi-tiered engagement strategy and determine the efficacy of this strategy to engage the community and reach Flint residents.</p><p><strong>Methods: </strong>Community engagement and impact were measured by collecting and describing feedback from the community engagement strategies and by comparing the demographics of the enrollees recruited through community-engaged recruitment (CER) and non-CER methods. Enroll-ees indicated how they heard about the FR; CER involved direct interaction with a community member.</p><p><strong>Results: </strong>Community engagement strategies incorporated approximately 1,200 people and 7 funded organizations, impacting 22 key areas of FR design and implementation. More than 50% of enrollees heard about the FR through CER methods. They were, on average, more likely to be younger, female, Black/African American, and living outside of Flint during the FWC.</p><p><strong>Conclusions: </strong>Community engagement elevated voices of those impacted by the FWC. CER methods were as effective as non-CER methods. Although there were no differences in screened measures of social vulnerability, there were in age, gender, and race. CER methods may increase participation and build trust in populations which historically are hesitant to participate in public health efforts.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"155-166"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471552","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katherine Schwartz, Allyson L Dir, Matthew C Aalsma
{"title":"Lessons Learned in Forming an Academic-Community Partnership with Families Affected by the Juvenile Justice System.","authors":"Katherine Schwartz, Allyson L Dir, Matthew C Aalsma","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Families of youth involved in the juvenile justice system (YJJ) are integral to YJJ well-being, so it is important to consider the direct input of YJJ families as well as YJJ themselves in justice system reform efforts aiming to improve YJJ health outcomes.</p><p><strong>Objective: </strong>Our university research team partnered with one Midwest county's juvenile court, as well as YJJ family members, to form an advisory council to the juvenile court. We report lessons learned through a case study of this council.</p><p><strong>Methods: </strong>Researchers reviewed and analyzed council records, meeting minutes, and interviews of varied stakeholders, including system representatives, leaders of similar advisory councils, and individuals with lived experience of the juvenile justice system.</p><p><strong>Lessons learned: </strong>Council sustainability required addressing participation barriers, valuing authentic experiences, seeking out system-based champions, and identifying concrete opportunities for members to be heard.</p><p><strong>Conclusions: </strong>Investments in community health partnerships with YJJ families could improve system efforts to meet YJJ needs.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"183-191"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Treatment Barrier in Overdose Crisis: A Critical Participatory Action Study of an Inpatient Smoking Ban.","authors":"Casey Bohrman, Brie Radis, Brooke Feldman","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 4","pages":"e5"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Scott D Rhodes, Amanda E Tanner, Jorge Alonzo, Lilli Mann-Jackson, John W Chaffin, Manuel Garcia, Hannah J Erb, Ana D Sucaldito, Rachel E Williams Faller, Jeanette M Stafford, Laurie Russell, Peggy H Weil, Mohammed Sheikh Eldin Jibriel, Tucker McGuire, Aimee M Wilkin, Sandy K Aguilar-Palma, David M Kline
{"title":"Using <i>ENGAGED for CHANGE</i> to Develop a Multicultural Intervention to Reduce Disparities among Sexual and Gender Minorities in Appalachia.","authors":"Scott D Rhodes, Amanda E Tanner, Jorge Alonzo, Lilli Mann-Jackson, John W Chaffin, Manuel Garcia, Hannah J Erb, Ana D Sucaldito, Rachel E Williams Faller, Jeanette M Stafford, Laurie Russell, Peggy H Weil, Mohammed Sheikh Eldin Jibriel, Tucker McGuire, Aimee M Wilkin, Sandy K Aguilar-Palma, David M Kline","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Gay, bisexual, queer, and other men who have sex with men (GBQMSM) and transgender persons in Appalachia are at an increased risk for HIV, sexually transmitted infections (STIs), hepatitis C virus (HCV), mpox (formerly known as monkeypox) and are less likely to use prevention and care services.</p><p><strong>Objectives: </strong>Our community-based participatory research partnership sought to develop an intervention to increase use of HIV, STI, HCV, and mpox prevention and care services among diverse GBQMSM and transgender and nonbinary persons living in rural Appalachia.</p><p><strong>Methods: </strong>We used ENGAGED for CHANGE, a novel community-engaged participatory intervention development process, to integrate two evidence-based strategies-community-based peer navigation and mHealth-into a multi-cultural intervention.</p><p><strong>Results: </strong>The developed Appalachian Access Project intervention contains five modules to train GBQMSM and transgender and nonbinary persons to serve as peer navigators (known as \"community health leaders\") within their social networks. The modules are designed to increase awareness of HIV, STIs, HCV, and mpox and their prevention and care; provide guidance on how to promote use of services, including pre-exposure prophylaxis, syringe services, and medically supervised gender-affirming hormone therapy; improve understanding of social determinants of health; and increase ability to effectively communicate and apply social support strategies in person and through mHealth social media.</p><p><strong>Conclusions: </strong>The Appalachian Access Project intervention builds on the strong, preexisting social networks of GBQMSM and transgender and nonbinary persons. It is designed to meet the needs and priorities of underserved and minoritized communities in rural Appalachia through community-based peer navigation and mHealth.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 4","pages":"447-458"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluating the Impact and Effectiveness of Flint's Community Ethics Review Board (CBOP-CERB): A Pilot Study.","authors":"Stephanie Solomon Cargill, Bryan Spencer, Briah Spencer","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 1","pages":"e5-e6"},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140871990","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kristen Speakman, Nicole Neault, Ventura Lovato, Katie Cueva, Ivanka Szabo, Rebecca Wallis, Jennifer Richards, Allison Barlow
{"title":"Developing the Feast for the Future Program through a Community Visioning Process.","authors":"Kristen Speakman, Nicole Neault, Ventura Lovato, Katie Cueva, Ivanka Szabo, Rebecca Wallis, Jennifer Richards, Allison Barlow","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Three tribal communities in the Southwestern United States have a long-standing partnership with the Johns Hopkins Center for Indigenous Health (JHCIH).</p><p><strong>Objectives: </strong>In response to community concerns about obesity, three tribal communities and Johns Hopkins Center for Indigenous Health partnered to develop culturally relevant plans for a new program.</p><p><strong>Methods: </strong>Using a \"community visioning\" process, a community advisory board (CAB) from each community identified opportunities, challenges, goals, and visions for their communities. The CABs consulted with experts in pediatrics, nutrition, food distribution, agricultural restoration, and community and school gardening.</p><p><strong>Results: </strong>The CABs developed seven components for Feast for the Future: 1) Edible School Gardens; 2) Traditional Food-ways Education Program; 3) Community Gardens, Orchards, and Greenhouses; 4) Farmers Markets; 5) Farmers Workshops; 6) Family Gardens; and 7) a Mobile Grocery Store.</p><p><strong>Conclusions: </strong>A community-based participatory action research (CBPAR) process was critical to developing a culturally appropriate program that built on community strengths.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 1","pages":"121-129"},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140872618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bridging the Gap: Addressing Immigrant Health Through Community-initiated Screening Events.","authors":"Sally Moyce, Nathaniel Sisson, Madeline Metcalf","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 1","pages":"e3"},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140872945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alecia Fair, Leah Dunkel, Marquetta Frost, Tiffany Israel, Felicia Lane-MuMin, Lexie Lipham, Devan Ray, Meghan Spiroff, Brieanne Witte, Cathy Wolfsfeld, Bed, Yolanda Vaughn, Stephania T Miller
{"title":"2021 Community Engagement Studio Virtual Training Summit: Increasing the Diversity of Stakeholders Engaged in Research.","authors":"Alecia Fair, Leah Dunkel, Marquetta Frost, Tiffany Israel, Felicia Lane-MuMin, Lexie Lipham, Devan Ray, Meghan Spiroff, Brieanne Witte, Cathy Wolfsfeld, Bed, Yolanda Vaughn, Stephania T Miller","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>There are few methods that focus on engaging racial and ethnic minorities in research. The Meharry-Vanderbilt Community Engaged Research Core partnered with the University of Utah, the University of Michigan, and community/patient partners to convene a virtual summit to share the Community Engagement Studio (CE Studio) model, a structured and widely-used approach that facilitates community engagement in research.</p><p><strong>Objectives: </strong>The CE Studio Virtual Training Summit (Summit) goal was to prepare multi-stakeholder (e.g., researchers, community members) research teams to engage more racial/ethnic minorities in CE studios.</p><p><strong>Methods: </strong>Summit planning included (1) agenda development, including CE Studio training and a live CE Studio demonstration; (2) summit advertisement across several networks, including minority-serving institutions; and (3) development of pre-and post-Summit evaluations.</p><p><strong>Results: </strong>Among 50 registrants (76.7% academicians) that completed evaluations, more than 65% planned to increase engagement of racial/ethnic minorities in research and implement CE Studios as a result of the Summit. Increased confidence in all CE training areas was reported, including in conducting an effective CE Studio planning meeting (32.1% pre-Summit/90.3% post-Summit) and identifying and preparing patient/community stakeholders for engagement as CE Studio experts (46.4% pre-Summit/93.6% post-Summit).</p><p><strong>Conclusions: </strong>Virtual CE Studio training that includes multi-stakeholder planning partners can be an effective method for introducing the CE Studio model and preparing multi-stakeholder research teams to engage racial and ethnic minorities in CE Studios. This is particularly salient given that effective community engaged research methods and best practices are not currently being distributed through research programs at a pace consistent with the demands.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 2","pages":"277-285"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11756812/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using Give-Get Grids to Evaluate Community-Engaged Interprofessional Education Partnerships.","authors":"Leah Alexander, Christian Ketel, Carolyn Szetela, Jacinta Leavell, Amanda Waterman, Jessica Jones, Karen Winkfield","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Including community partners in interprofessional education (IPE) activities for health care trainees can engage students in learning experiences that engender an authentic appreciation for serving community health needs. Although such endeavors aim for mutual benefit for all participating partners, tools to assess the value of engagement with community partners could enhance transparency and follow-through for assessing the benefits of participation for the community partners.</p><p><strong>Objectives: </strong>Based on a give-get grid used to describe participants' expectations relative to IPE experiences, we developed a gave-got grid. It was used to evaluate community partners' experiences and outcomes after engaging in community-academic partnerships.</p><p><strong>Methods: </strong>Initial give-get grids completed by community partners were used to develop a gave-got grid, which served as a template for interviewing key community partner leaders after receipt of the project deliverable. Qualitative interviews were conducted and evaluated for common themes.</p><p><strong>Results: </strong>Four community partners completed gave-got interviews and noted that their contributions to the IPE program were substantial and acceptable in relation to their gains. They identified valuable participation outcomes, including fresh perspectives on their organizations' work, inspiration from diverse health professions trainees, trainees' expertise in bettering their community's health, and receiving essential deliverables for their community populations.</p><p><strong>Conclusions: </strong>Developing transparent aims that clearly outline what each community partner will give and what they hope to receive before engaging students in a learning experience can be mutually beneficial in developing community partnerships for Interprofessional Education. Such practices can enhance mutual understanding, respect, and responsiveness among health care trainees, community organizations, and their constituents.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 4","pages":"493-502"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah L Canham, Rachel Weldrick, Anne Cartledge, Hilary Chapple, Chris Danielsen, Dorothy Kestle, Michel Gauthier, Samantha Teichman
{"title":"\"We Need To Be at the Table\": Collaboration with Lived Experts.","authors":"Sarah L Canham, Rachel Weldrick, Anne Cartledge, Hilary Chapple, Chris Danielsen, Dorothy Kestle, Michel Gauthier, Samantha Teichman","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>The recognition of lived experience as an asset has led to increased involvement of individuals most affected by social or medical conditions in research.</p><p><strong>Objectives: </strong>This paper presents an example of a LE advisory group that co-conceptualized and executed a knowledge mobilization project on aging and homelessness within three Canadian cities (Vancouver, Calgary, and Montreal).</p><p><strong>Methods: </strong>We established the advisory group, determined the group's priorities and objectives, and fostered community engagement through webinars and in-person events.</p><p><strong>Lessons learned: </strong>We learned the importance of digital support to enable inclusion of advisors with experiences of homelessness, providing honoraria to for advisors' time and contributions, scheduling meetings on the same day and time each month, and dedicating meeting time for advisors' personal updates and experiences.</p><p><strong>Conclusions: </strong>This model can be replicated by other research teams studying homelessness, aging, or similar marginalized groups, enhancing the impact of research and knowledge mobilization efforts.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"18 4","pages":"523-531"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}