{"title":"1915(c) Medicaid Waivers for Children With Severe Emotional Disturbance: Participant Characteristics, Enrollment, and Out-of-Home Service Use","authors":"Genevieve Graaf, Emily A Whitfield, L. Snowden","doi":"10.1177/10442073231157347","DOIUrl":"https://doi.org/10.1177/10442073231157347","url":null,"abstract":"Several states have invested in 1915(c) Home and Community Based Service (HCBS) Medicaid policies to improve outcomes and reduce costs for children and youth with significant behavioral health needs, or Severe Emotional Disturbance (SED). However, little is known about these programs and the children they serve. Through a retrospective cross-sectional analysis, this study aimed to understand if the program was successfully reaching its target population: children and youth with the highest clinical need, at the greatest risk for out-of-home care, and who may not otherwise be eligible for Medicaid through other avenues. Results describe the demographic, clinical, and service use characteristics of children and youth enrolled in one SED Waiver program, comparing them with those of similar, non-waiver enrolled children with behavioral health needs. Findings report that the waiver program examined rarely served children and families not otherwise eligible for Medicaid, but that waiver-enrolled children and youth had substantially more severe clinical need, were at higher risk for out-of-home placement and incurred greater public expenditures for service use. Findings suggest the program studied is serving children with more significant psychiatric needs, as the program intends, but points to the need for further research to understand the impacts of such programs on system and clinical outcomes.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44865942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Johanna S. Kester, Trenesha L Hill, Lauren Thompson, Corey L. Black, Veronica L. Coriano, Julia Bruton, Courtney N. Baker
{"title":"Variance in Autism Prevalence: Links With State-Level Autism Resources","authors":"Johanna S. Kester, Trenesha L Hill, Lauren Thompson, Corey L. Black, Veronica L. Coriano, Julia Bruton, Courtney N. Baker","doi":"10.1177/10442073231156940","DOIUrl":"https://doi.org/10.1177/10442073231156940","url":null,"abstract":"The prevalence of autism spectrum disorder (ASD) has varied over time and across the United States. This variability is likely related to external factors, such as regional differences in ASD-related resources. The study reported on here examined the links between ASD prevalence as measured by Individuals with Disabilities Education Act (IDEA) Part B child count data and four aspects of state infrastructure (health care and insurance policies, clinical resources, research infrastructure, and awareness-raising individuals/organizations). This study also investigated whether these constructs varied by geographical region. The data for this study were abstracted from publicly available databases. Information on state infrastructure was gathered from high-quality reports, resource guides, certificant registries, and databases. More comprehensive ASD-relevant insurance and health care policies, more clinical resources, and greater research infrastructure were associated with higher ASD state prevalence rates as measured by the IDEA Part B child count data. Prevalence of ASD was higher in eastern U.S. states compared with southern U.S. states, but state-level ASD resources did not statistically significantly differ across geographic regions. Implications for research, practice, and policy are discussed.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-03-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43575307","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using Data Mining and Time Series to Investigate ME and CFS Naming Preferences","authors":"Shaun Bhatia, L. Jason","doi":"10.1177/10442073231154027","DOIUrl":"https://doi.org/10.1177/10442073231154027","url":null,"abstract":"There have been numerous iterations of naming convention specified for Myalgic Encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS). As health care turns to “big data” analytics to gain insights, the Google Trends database was mined to ascertain worldwide trends of public interest in several ME- and CFS-related search categories between 2004 and 2019. Time series analysis revealed that though “Chronic Fatigue Syndrome” remains the predominant search category in the ME and CFS field, the interest index declined at a rate of 2.77 per month during the 15-year study period. In the same time period, the interest index in “ME/CFS Hybrid” terms increased at a rate of 3.20 per month. Potential causal mechanisms for these trends and implications for patient sentiment analysis are discussed.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45547524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Has Access to Paraprofessionals Changed? A Cross-Decade, Cross-Cohort Analysis","authors":"Michael A. Gottfried, C. Ozuna","doi":"10.1177/10442073221150611","DOIUrl":"https://doi.org/10.1177/10442073221150611","url":null,"abstract":"Due to shifts in society’s attitudes toward special education and changes in federal policies, such as Individuals with Disabilities Education Act and No Child Left Behind, more students with disabilities (SWDs) are beginning kindergarten in general education classrooms. As a result, schools and districts across the United States have needed to adjust their personnel resources to accommodate these changes to classroom demographics. This study aims to better understand how paraprofessional resources (i.e., availability and hours) have shifted before and after key federal legislation. We specifically examine the presence and hours worked by general and special education paraprofessionals in general education kindergartens. Using two nationally representative datasets from 1998 and 2010, we find that kindergartners with disabilities in 2010 have greater access to paraprofessionals (both general and special) in general education classrooms compared with children having disabilities from a decade earlier. Implications are discussed.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45884341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Disability Prevalence and Community-Level Allocation of Hurricane Harvey Federal Disaster Recovery Assistance in Texas","authors":"N. Malmin, D. Eisenman","doi":"10.1177/10442073221150609","DOIUrl":"https://doi.org/10.1177/10442073221150609","url":null,"abstract":"Disasters have severe implications for life and property, often requiring large-scale collective action to facilitate recovery. One key determinant of recovery is access to resources that mitigate damage losses and shorten disaster recovery trajectories. However, communities with the disabiled present may be excluded from such services despite federal mandates for equal access and reasonable accommodations. We examined Hurricane Harvey federal recovery assistance distributions based on underlying community disability profiles. Through cross-sectional quantile regression, we used Federal Emergency Management Agency (FEMA) direct-to-household administrative data at the zip code level regressed onto American Community Survey estimates of disability. We found that as the prevalence of disability increased in communities, the total dollar amount of FEMA direct-to-household assistance decreased, controlling for factors such as storm damage, poverty, population density, and race/ethnicity. Moreover, disability-related funding disparities were driven primarily by hearing-related disabilities, with disparities in funding widening as total assistance increased in communities. Such inequities in community-level funding have implications on how well communities may recover from disasters.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-01-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42870741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nicole Maestas, Tisamarie B. Sherry, Alexander Strand
{"title":"Opioid Use Among Social Security Disability Insurance Applicants, 2013–2018","authors":"Nicole Maestas, Tisamarie B. Sherry, Alexander Strand","doi":"10.1177/10442073221150613","DOIUrl":"https://doi.org/10.1177/10442073221150613","url":null,"abstract":"Opioid use is common among Social Security Disability Insurance (SSDI) beneficiaries who account for a disproportionate share of opioid-related hospitalizations and mortality. However, little is known about the prevalence of opioid use prior to SSDI enrollment. Understanding when opioid use is established and how it correlates with individual characteristics and community prescribing practices would inform policy approaches to reducing opioid-related harms among SSDI beneficiaries. We estimated the prevalence of opioid use among SSDI applicants by applying a natural language processing algorithm to SSDI application data. We find the prevalence of opioid use among SSDI applicants declined from 33% in 2013 to 24% in 2018. In contrast, the share of applicants with musculoskeletal impairments, which are commonly associated with pain, was unchanged. The share of applications reporting opioid use declined across both sexes, all age groups and education levels, and all regions. There was substantial variation, however, in the magnitude of decline by geography, with the smallest declines in parts of the Midwest and Southeastern United States. SSDI application rates and applications reporting opioid use were more likely to come from communities with higher opioid prescribing rates. Our estimates suggest most SSDI beneficiaries began opioid use prior to entering the SSDI program.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-01-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45867149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Systematic Review of Enrollment of Students With Disabilities in Charters Compared to Traditional Public Schools","authors":"Brenda K. Smith, Keith M. Christensen","doi":"10.1177/10442073221146567","DOIUrl":"https://doi.org/10.1177/10442073221146567","url":null,"abstract":"There is a perception that charter schools enroll students with disabilities at a lower rate than traditional public schools, despite federal laws that require charter schools to provide the same services as traditional public schools. This systematic review answers the question: What research exists that explores the representation of students with disabilities in charter schools and the proportionality of that representation in comparison to traditional public schools? The methodology for this review was based on the PRISMA (Preferred Reporting Items for Systematic review and Meta-Analyses) statement for reporting systematic reviews. Conclusions from this review include the limited amount of research on the topic, the difficulty of comparing enrollment percentages between state systems, and the difficulty in determining factors affecting the enrollment of students with disabilities in charter schools.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2023-01-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41834995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"On the Importance of the Americans with Disabilities Act at 30.","authors":"Peter Blanck","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>This article offers a glimpse of the Americans with Disabilities Act (\"ADA\") of 1990, as amended by the ADA Amendments Act of 2008 (\"ADAAA\"), at its 30th anniversary. It considers current issues before the courts, primarily legal cases from 2020 and 2021, and new questions in light of the COVID-19 pandemic, such the latitude of the ADA's antidiscrimination protections and its definition of disability. It provides a quick primer on the basics of the ADA: employment discrimination under Title I, antidiscrimination mandates for state and local governments under Title II, and commands to places of accommodation offering services to the public under Title III. The ADA at 30 remains a beacon for a future in which all people, regardless of individual difference, will be welcomed as full and equal members of society.</p>","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"2023 34","pages":"176-198"},"PeriodicalIF":1.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11404550/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Examining Differences in Self-Reported Health and Access to Health Care Among People With Early- and Late-Onset Disability","authors":"Kelsey S. Goddard, Jean P. Hall, Noelle K. Kurth","doi":"10.1177/10442073221142253","DOIUrl":"https://doi.org/10.1177/10442073221142253","url":null,"abstract":"The purpose of the study is to compare self-reported health and access to health care among people with early- and late-onset disability. Adults with disabilities 18 to 62 years of age participated in the 2018 National Survey on Health and Disability (NSHD), which is a nationally representative, internet-based survey that provides data related to health insurance and access to health care. A subsample of participants who reported age at disability onset ( n = 1,188) completed measures related to demographics, health status, health insurance, and access to health care services. Results show that people with early-onset disability were significantly more likely to receive Supplemental Security Income (SSI; p < .001), less likely to receive Social Security Disability Insurance (SSDI; p < .001), more likely to have Medicaid ( p < .001), and less likely to have Medicare ( p < .01). People with late-onset disability were more likely to report service limitations and were more likely to report fair/poor health ( p < .001). Overall, study findings suggest that people with late-onset disability report higher out-of-pocket health care expenditures, greater access limitations, and poorer health. Medical professionals and disability service providers should be mindful about assisting this population in locating appropriate health insurance coverage, health services, and financial assistance.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":" ","pages":""},"PeriodicalIF":1.6,"publicationDate":"2022-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45363693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Reshma P Nuri, Heather M Aldersey, Setareh Ghahari, Ahmed S Huque, Jahan Shabnam
{"title":"The Bangladeshi Rights and Protection of Persons With Disability Act of 2013: A Policy Analysis.","authors":"Reshma P Nuri, Heather M Aldersey, Setareh Ghahari, Ahmed S Huque, Jahan Shabnam","doi":"10.1177/10442073211066789","DOIUrl":"10.1177/10442073211066789","url":null,"abstract":"<p><p>The government of Bangladesh enacted the Rights and Protection of Persons with Disability Act of 2013 (the Act) in line with the United Nations Convention on the Rights of Persons with Disabilities. This article sheds light on the Act with particular emphasis on (a) support offered to children with disabilities (CWDs) and their families to address their needs; and (b) the extent to which the Act is in line with the international disability policy analysis framework. We compared the Act with the 18 core concepts of disability policy developed by Turnbull et al. (2001). The results affirm the government's effort toward Sustainable Development Goals in providing support to CWDs and their families. They indicate a high degree of congruency of the Act with the core concepts. The findings also highlight the need to embrace the concepts of autonomy, confidentiality, and family-centeredness in great detail in any policy initiatives pertaining to CWDs. Furthermore, the finding shows that collaboration and coordination among ministries are imperative to achieve the goal of policies related to disability. In addition, the results highlight the need for more budgetary allocation and robust monitoring systems to track the progress of policy initiatives. As policy implementation is affected by changes in global contexts such as the coronavirus disease 2019 pandemic, policymakers in Bangladesh and other low- and middle-income countries should ensure that emergency responses are disability-inclusive and appropriate for CWDs. To ensure a disability-inclusive response, it is critical to engage individuals with disabilities and their families in meaningful consultations to identify their needs.</p>","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":"33 3","pages":"178-187"},"PeriodicalIF":1.1,"publicationDate":"2022-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9650720/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40475317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}