Journal of Disability Policy Studies最新文献

Trends in Privacy of Adults With Intellectual and Developmental Disabilities Before and After the Home and Community-Based Services Final Rule 以家庭和社区为基础的服务》最终规则出台前后智力和发育障碍成人的隐私趋势

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-09-14 DOI: 10.1177/10442073241278555

Renáta Tichá, Sandra L. Pettingell, James Houseworth, Julie Bershadsky, Roger J. Stancliffe, John G. Smith

{"title":"Trends in Privacy of Adults With Intellectual and Developmental Disabilities Before and After the Home and Community-Based Services Final Rule","authors":"Renáta Tichá, Sandra L. Pettingell, James Houseworth, Julie Bershadsky, Roger J. Stancliffe, John G. Smith","doi":"10.1177/10442073241278555","DOIUrl":"https://doi.org/10.1177/10442073241278555","url":null,"abstract":"In 2014, the Centers for Medicare & Medicaid Services (CMS) launched the Home and Community-Based Services (HCBS) Final Rule intended to improve the quality of HCBS for people with disabilities. The Rule focuses on improving outcomes through person-centered services and supports. These outcomes include privacy and dignity. This study reviewed state compliance with the Final Rule by examining statewide transition plans and investigating the Final Rule’s impact on privacy outcomes of adults with intellectual and developmental disabilities (IDD). We compared cross-sectional National Core Indicators® (NCI®) Adult Consumer Survey (ACS) 2012 to 2013 and Adult In-Person Survey (IPS) 2018 to 2019 data. Privacy (people letting them know before entering their home; being alone with friends/visitors at home) increased after Final Rule implementation. Individuals in the 2018 to 2019 group had 36% and 29% higher odds of being asked for permission to enter their home and of being alone with friends/guests, respectively. Age, gender, severity of ID, and several co-occurring conditions were also predictive of improvement in privacy.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142267657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Need for Technology-Aided Instruction and Intervention Policy for Autistic Youth. 自闭症青少年对技术辅助教学的需求及干预政策

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-06-01 Epub Date: 2023-01-24 DOI: 10.1177/10442073221150603

Kari L Sherwood, Matthew J Smith, Mary A Eldredge

引用次数: 0

All Over the Map: State-Level Guidance for English Learners With Disabilities 全图：州级英语学习者指南

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-05-14 DOI: 10.1177/10442073241250276

Diana Baker, C. Leider, Hyejung Kim, Claudia Rinaldi, Patricia Garcia

引用次数: 0

Helping the Elderly Live Better With Dementia: Recent Developments in Japan’s Adult Guardianship System and Its Role in Geriatric Social Work Practice 帮助老年痴呆症患者更好地生活：日本成人监护制度的最新发展及其在老年社会工作实践中的作用

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-21 DOI: 10.1177/10442073241232706

Jiyuan Zhang, Zi Yan

引用次数: 0

Who Funds Published Disability Research in Australia? 谁在资助澳大利亚发表的残疾研究成果？

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-10 DOI: 10.1177/10442073241228840

Jennifer Smith‐Merry, Simon Darcy, Angela Dew, Bronwyn Hemsley, Christine Imms, Mary-Ann O’Donovan, Gisselle Gallego, Keith McVilly, John Gilroy, Gemma Carey, Kathy Ellem

{"title":"Who Funds Published Disability Research in Australia?","authors":"Jennifer Smith‐Merry, Simon Darcy, Angela Dew, Bronwyn Hemsley, Christine Imms, Mary-Ann O’Donovan, Gisselle Gallego, Keith McVilly, John Gilroy, Gemma Carey, Kathy Ellem","doi":"10.1177/10442073241228840","DOIUrl":"https://doi.org/10.1177/10442073241228840","url":null,"abstract":"In this article, we describe the sources of funding cited, and topics of research associated with that funding, in Australian disability research. We conducted a systematic search for publicly available peer-reviewed papers reporting the findings of Australian disability research studies focused on Australia in the 2018–2020 period. Papers identified were analyzed according to research topic, participant group, study methodology, and funding sources acknowledged. In total, 1,241 relevant papers were identified. Of these, 582 papers (47%) reported at least one funding source. Government sources accounted for most funding identified ( n = 487), followed by university sector ( n = 112), nongovernment organizations ( n = 99) and for-profit organization funding ( n = 17). The most funding went to intellectual disability (22%), autism (15%), and psychosocial disability (12%). Only 16 (1.3%) papers citing funding sources reported their research was conducted in partnership with people with disability. Research funding influences the priorities of disability research, how it is conducted, and its outputs. Funding therefore shapes the information available to build evidence-based systems of service and support for and with people with disability. It is essential that research funding policies are considered in relation to broader disability policy goals and the research priorities of the disability community.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139787375","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Who Funds Published Disability Research in Australia? 谁在资助澳大利亚发表的残疾研究成果？

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-10 DOI: 10.1177/10442073241228840

Jennifer Smith‐Merry, Simon Darcy, Angela Dew, Bronwyn Hemsley, Christine Imms, Mary-Ann O’Donovan, Gisselle Gallego, Keith McVilly, John Gilroy, Gemma Carey, Kathy Ellem

{"title":"Who Funds Published Disability Research in Australia?","authors":"Jennifer Smith‐Merry, Simon Darcy, Angela Dew, Bronwyn Hemsley, Christine Imms, Mary-Ann O’Donovan, Gisselle Gallego, Keith McVilly, John Gilroy, Gemma Carey, Kathy Ellem","doi":"10.1177/10442073241228840","DOIUrl":"https://doi.org/10.1177/10442073241228840","url":null,"abstract":"In this article, we describe the sources of funding cited, and topics of research associated with that funding, in Australian disability research. We conducted a systematic search for publicly available peer-reviewed papers reporting the findings of Australian disability research studies focused on Australia in the 2018–2020 period. Papers identified were analyzed according to research topic, participant group, study methodology, and funding sources acknowledged. In total, 1,241 relevant papers were identified. Of these, 582 papers (47%) reported at least one funding source. Government sources accounted for most funding identified ( n = 487), followed by university sector ( n = 112), nongovernment organizations ( n = 99) and for-profit organization funding ( n = 17). The most funding went to intellectual disability (22%), autism (15%), and psychosocial disability (12%). Only 16 (1.3%) papers citing funding sources reported their research was conducted in partnership with people with disability. Research funding influences the priorities of disability research, how it is conducted, and its outputs. Funding therefore shapes the information available to build evidence-based systems of service and support for and with people with disability. It is essential that research funding policies are considered in relation to broader disability policy goals and the research priorities of the disability community.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139847296","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Opioid Use Among Social Security Disability Insurance Applicants 社会保障残疾保险申请人中阿片类药物的使用情况

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-05 DOI: 10.1177/10442073241228838

April Yanyuan Wu, Denise Hoffman, Paul O’Leary

引用次数: 0

States’ Accountability for Facilitating Parent Involvement under IDEA 各州在 IDEA 下促进家长参与的责任

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-05 DOI: 10.1177/10442073241227576

B. Elbaum

{"title":"States’ Accountability for Facilitating Parent Involvement under IDEA","authors":"B. Elbaum","doi":"10.1177/10442073241227576","DOIUrl":"https://doi.org/10.1177/10442073241227576","url":null,"abstract":"Since the reauthorization of the Individuals with Disabilities Education Act (IDEA) in 2004, state IDEA programs have been required to report annually on a set of performance indicators. Indicator 8 of the Part B State Performance Plan is the “percent of parents who report that schools facilitated parent involvement as a means of improving services and results for children with disabilities.” The purpose of this study was to investigate whether changes over time in national and state-level performance on Indicator 8 provide evidence in support of the effectiveness of the accountability requirement related to parent involvement. Data were extracted from states’ Annual Performance Reports and other publicly available documents. Findings indicated that national performance on Indicator 8 increased from 63% in 2006 to 76% in 2018. Within-state change in performance from 2014 to 2019 ranged from –13.47% to +42.50%, with several states indicating dramatic year-to-year changes in their reported performance. The findings raise important questions about the extent to which the indicator in its current form can support the dual purpose of holding states accountable for their facilitation of parents’ involvement and supporting improvement efforts. Implications for both federal policy and state-level action are discussed.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139804571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

“A Hunt to Find Anything”: The Complexities of Finding and Sharing Disability-Related Information Among State Agency Staff "寻找一切"：国家机构工作人员查找和共享残疾相关信息的复杂性

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-05 DOI: 10.1177/10442073241227794

Emily R. Lanchak, Erik W. Carter, Elise D. McMillan

{"title":"“A Hunt to Find Anything”: The Complexities of Finding and Sharing Disability-Related Information Among State Agency Staff","authors":"Emily R. Lanchak, Erik W. Carter, Elise D. McMillan","doi":"10.1177/10442073241227794","DOIUrl":"https://doi.org/10.1177/10442073241227794","url":null,"abstract":"State agencies are charged with addressing the service and support needs of residents with and without disabilities. Undertaking this task effectively requires having familiarity with the array of available disability-related resources and programs—both within and beyond one’s own agency. We asked 212 staff from 13 state agencies about their awareness of local disability-related information and resources that could support their stakeholders. We were interested in understanding (a) their familiarity with available community resources impacting multiple areas of people’s lives, (b) their experiences accessing needed information or resources, and (c) the sources of information they find most helpful in their work. State agency staff reported moderate, but mixed, familiarity with resources for supporting an array of valued experiences and key service needs. Years of experience was modestly correlated with degree of familiarity in some areas. In addition, state agency staff considered fellow professionals and internet sources to be useful avenues for addressing disability-related information needs. We offer implications for policy and practice aimed at creating more seamless pathways for information and resource sharing within a state and across the country.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139804956","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

“A Hunt to Find Anything”: The Complexities of Finding and Sharing Disability-Related Information Among State Agency Staff "寻找一切"：国家机构工作人员查找和共享残疾相关信息的复杂性

IF 1.6 4区医学

Journal of Disability Policy Studies Pub Date : 2024-02-05 DOI: 10.1177/10442073241227794

Emily R. Lanchak, Erik W. Carter, Elise D. McMillan

{"title":"“A Hunt to Find Anything”: The Complexities of Finding and Sharing Disability-Related Information Among State Agency Staff","authors":"Emily R. Lanchak, Erik W. Carter, Elise D. McMillan","doi":"10.1177/10442073241227794","DOIUrl":"https://doi.org/10.1177/10442073241227794","url":null,"abstract":"State agencies are charged with addressing the service and support needs of residents with and without disabilities. Undertaking this task effectively requires having familiarity with the array of available disability-related resources and programs—both within and beyond one’s own agency. We asked 212 staff from 13 state agencies about their awareness of local disability-related information and resources that could support their stakeholders. We were interested in understanding (a) their familiarity with available community resources impacting multiple areas of people’s lives, (b) their experiences accessing needed information or resources, and (c) the sources of information they find most helpful in their work. State agency staff reported moderate, but mixed, familiarity with resources for supporting an array of valued experiences and key service needs. Years of experience was modestly correlated with degree of familiarity in some areas. In addition, state agency staff considered fellow professionals and internet sources to be useful avenues for addressing disability-related information needs. We offer implications for policy and practice aimed at creating more seamless pathways for information and resource sharing within a state and across the country.","PeriodicalId":46868,"journal":{"name":"Journal of Disability Policy Studies","volume":null,"pages":null},"PeriodicalIF":1.6,"publicationDate":"2024-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139864930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0