Topics in Spinal Cord Injury Rehabilitation最新文献

筛选
英文 中文
Familiarity and Use of Rehabilitation Technologies by Persons With Spinal Cord Injury: An Exploratory Quantitative Analysis. 脊髓损伤患者对康复技术的熟悉和使用:一项探索性定量分析。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-04-21 DOI: 10.46292/sci25-00123
Benjamin Dirlikov, Ashraf Gorgey, Nicholas H Evans, Karpagapriya Prabakaran, Candace Tefertiller, Chad Swank, Dannae Arnold, Thomas N Bryce, Jeffery W Rankin
{"title":"Familiarity and Use of Rehabilitation Technologies by Persons With Spinal Cord Injury: An Exploratory Quantitative Analysis.","authors":"Benjamin Dirlikov, Ashraf Gorgey, Nicholas H Evans, Karpagapriya Prabakaran, Candace Tefertiller, Chad Swank, Dannae Arnold, Thomas N Bryce, Jeffery W Rankin","doi":"10.46292/sci25-00123","DOIUrl":"10.46292/sci25-00123","url":null,"abstract":"<p><strong>Objectives: </strong>New technologies to support individuals living with spinal cord injury (SCI) are constantly evolving. This study explores current familiarity with and use of emerging rehabilitation technologies among individuals living with SCI.</p><p><strong>Methods: </strong>A self-report community survey for individuals living with SCI was developed by the Emerging Technology Special Interest Group within the Spinal Cord Injury Model Systems. This de-identified survey collected demographics, injury characteristics, and information on the familiarity and use of emerging rehabilitation technologies. Exploratory descriptive statistics and regression models were used to identify characteristics associated with technology familiarity and use.</p><p><strong>Results: </strong>Two hundred and forty-three participants completed the survey. Most participants were male, Caucasian, non-Hispanic, used government insurance, and experienced an incomplete SCI. Sixty-nine percent of respondents were familiar with the technologies listed in the survey. Of the technologies listed, functional electrical stimulation was used most frequently. Binary logistic regression analyses revealed that individuals with a longer time since injury were less likely to be familiar with [Exp(B): .957, <i>P</i> < .001] or use at least one of the emerging technologies [Exp(B): .931, <i>P</i> < .001].</p><p><strong>Conclusion: </strong>Sixty-nine percent (69%) of the respondents were familiar with the listed technologies. Of those, 77% had tried at least one technology, indicating significant interest within the SCI community. However, a greater time from injury was associated with decreased familiarity with these new technologies. Further understanding of the barriers affecting familiarity and adoption is critical to developing strategies that promote using emerging clinical interventions for individuals with SCI across the continuum of care.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"58-67"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102064/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785370","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mortality Due to COVID-19 Among Persons With Traumatic Spinal Cord Injury in the United States: 2020-2022. 美国创伤性脊髓损伤患者因COVID-19导致的死亡率:2020-2022
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-04-21 DOI: 10.46292/sci25-00118
Michael J DeVivo, Yuying Chen, Radhika Sharma
{"title":"Mortality Due to COVID-19 Among Persons With Traumatic Spinal Cord Injury in the United States: 2020-2022.","authors":"Michael J DeVivo, Yuying Chen, Radhika Sharma","doi":"10.46292/sci25-00118","DOIUrl":"10.46292/sci25-00118","url":null,"abstract":"<p><strong>Objectives: </strong>To quantify excess mortality due to COVID-19 among persons with traumatic spinal cord injury (TSCI).</p><p><strong>Methods: </strong>This cohort study was conducted at 31 SCI Model Systems and 3 Shriners Hospitals SCI units. Participants were persons with TSCI (<i>n</i> = 22,800) enrolled in the SCI Collaborative Survival Study Database with follow-up between January 1, 2020, and December 31, 2022. Main outcome measures were age- and sex-specific standardized mortality ratios (SMR), and 95% confidence intervals (CI) were calculated by age group, sex, injury severity, and years since injury.</p><p><strong>Results: </strong>There were 102 deaths in the TSCI study population due to COVID-19 among 1138 total deaths of known cause (9.0%) that occurred in 57,109 person-years of follow-up. COVID-19 deaths ranked fourth behind heart disease (17.4%), respiratory disease (16.0%), and cancer (12.2%). The overall COVID-19 SMR for TSCI was estimated to be 1.42 (95% CI 1.15-1.70). The SMR increased with increasing injury severity and was higher among persons who were younger than 60 years of age and who were at least 20 years post injury.</p><p><strong>Conclusion: </strong>Persons with TSCI had 42% greater risk of dying from COVID-19 than the general population of comparable age and sex. These findings emphasize the need for up-to-date COVID-19 vaccinations and prompt treatment with Paxlovid and/or other antiviral medications. Now that the latest COVID-19 variants are less lethal and effective vaccines and treatments are available, additional follow-up will be needed to determine whether COVID-19 and its long-term effects continue to have a significant negative impact on life expectancy among persons with TSCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"200-207"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102081/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Characterizing Neurological Status and Outcomes During Inpatient Rehabilitation in Persons With Nontraumatic Spinal Cord Injury: Early Findings From a Spinal Cord Injury Model Systems Feasibility Study. 表征非创伤性脊髓损伤患者住院康复期间的神经状态和结果:脊髓损伤模型系统可行性研究的早期发现。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-04-21 DOI: 10.46292/sci25-00122
Kazuko Shem, Einat Engel-Haber, Brittany Snider, Ana Valeria Aguirre Guemez, Steven Kirshblum, Seema Sikka, Ronald K Reeves
{"title":"Characterizing Neurological Status and Outcomes During Inpatient Rehabilitation in Persons With Nontraumatic Spinal Cord Injury: Early Findings From a Spinal Cord Injury Model Systems Feasibility Study.","authors":"Kazuko Shem, Einat Engel-Haber, Brittany Snider, Ana Valeria Aguirre Guemez, Steven Kirshblum, Seema Sikka, Ronald K Reeves","doi":"10.46292/sci25-00122","DOIUrl":"10.46292/sci25-00122","url":null,"abstract":"<p><strong>Background: </strong>The National SCI Model Systems (SCIMS) Database was established in 1973 to study longitudinal data from persons with traumatic SCI (TSCI). The SCIMS provides an ideal platform to explore the feasibility of a parallel data collection effort to understand the characteristics of individuals with nontraumatic SCI (NTSCI). In the current data collection cycle (2021-2026), all SCIMS centers gathered data specific to NTSCI.</p><p><strong>Objectives: </strong>To (1) describe the demographic and injury-specific characteristics of participants with NTSCI and (2) assess neurological changes from admission to discharge.</p><p><strong>Methods: </strong>The International Standards for Neurological Classification of Spinal Cord Injury (ISNCSCI) examination data of participants with NTSCI who were enrolled at an SCIMS center were extracted from the medical records at admission and discharge from inpatient rehabilitation. Data from 178 participants with NTSCI were analyzed.</p><p><strong>Results: </strong>Among the 93 participants who had adequate ISNCSCI data on admission, only 8.6% had neurological complete injuries. More participants had paraplegia (<i>n</i> = 58, 62.4%) than tetraplegia (<i>n</i> = 35, 37.6%). For participants with full ISNCSCI data at both admission and discharge (<i>n</i> = 47), there were significant improvements in the lower extremity motor score and pinprick and light touch scores on discharge.</p><p><strong>Conclusion: </strong>On admission to acute rehabilitation, more people with NTSCI had paraplegia than tetraplegia, and neurological incomplete injuries were more common. People with NTSCI experienced significant improvement in ISNCSCI neurological variables by the time of discharge from rehabilitation.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"188-199"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102075/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785406","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Operant Conditioning of the Motor Evoked Potential in Forearm Extensors of Individuals with Chronic Incomplete Cervical Spinal Cord Injury: Case Studies. 慢性不完全性颈脊髓损伤个体前臂伸肌运动诱发电位的操作性条件反射:个案研究。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-09-28 DOI: 10.46292/sci25-00106
Blair H S Dellenbach, Allison F Lewis, Roland K Cote, Alan M Phipps, Aiko K Thompson
{"title":"Operant Conditioning of the Motor Evoked Potential in Forearm Extensors of Individuals with Chronic Incomplete Cervical Spinal Cord Injury: Case Studies.","authors":"Blair H S Dellenbach, Allison F Lewis, Roland K Cote, Alan M Phipps, Aiko K Thompson","doi":"10.46292/sci25-00106","DOIUrl":"10.46292/sci25-00106","url":null,"abstract":"<p><strong>Background: </strong>Operant up-conditioning of the motor evoked potential (MEP) elicited by transcranial magnetic stimulation can increase corticospinal excitability for the ankle dorsiflexor and improve its activation in individuals with foot drop due to chronic incomplete spinal cord injury (SCI). It is unknown whether MEP up-conditioning can work similarly in the upper limb (UL).</p><p><strong>Objectives: </strong>As the first step in testing the possibility of MEP up-conditioning enhancing UL neurorehabilitation, we examined the effects of forearm extensor MEP up-conditioning in 6 adults with chronic incomplete cervical SCI.</p><p><strong>Methods: </strong>In a research laboratory setting, each participant completed 6 baseline and 24 MEP up-conditioning sessions, during which wrist or finger extensor MEPs were elicited with or without feedback on MEP size. MEP size, silent period (SP) duration, and EMG activity during maximum voluntary contraction (MVC) were measured in each session. Before and after 24 conditioning sessions, Action Research Arm Test (ARAT), Box and Block Test (BBT), and Spinal Cord Independence Measure III (SCIM III) were administered.</p><p><strong>Results: </strong>Over the course of study, MVC increased in all participants by 26% to 329%. MEP size increased in 4 participants by 95% to 204%. SP duration decreased in 4 participants by 22% to 38%. Functional scores increased by 2 to 7 points for SCIM III self-care score in 5 participants, by 1 to 10 points for ARAT in 4 participants, and by 4 to 6 blocks for BBT in 4 participants.</p><p><strong>Conclusion: </strong>These cases support that MEP up-conditioning can improve corticospinal drive and activation of forearm muscles and improve UL motor function in individuals with chronic incomplete cervical SCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 4","pages":"81-90"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13621289/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082372","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric Properties of the Four Square Step Test in Incomplete Spinal Cord Injury. 不完全性脊髓损伤四方步试验的心理测量特性。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-09-28 DOI: 10.46292/sci25-00141
Jennifer H Kahn, Kadi Glaser, Katherine Kyburz, Kylee Mosehart, Jane L Woodward, Keith E Gordon
{"title":"Psychometric Properties of the Four Square Step Test in Incomplete Spinal Cord Injury.","authors":"Jennifer H Kahn, Kadi Glaser, Katherine Kyburz, Kylee Mosehart, Jane L Woodward, Keith E Gordon","doi":"10.46292/sci25-00141","DOIUrl":"10.46292/sci25-00141","url":null,"abstract":"<p><strong>Background: </strong>Clinicians require reliable and valid measures to assess dynamic balance and fall risk in individuals with incomplete spinal cord injury (iSCI). Currently, no psychometrically sound measures exist for capturing higher-level balance impairments in this population. The Four Square Step Test (FSST) is a dynamic balance measure assessing a person's ability to step quickly in multiple directions over obstacles. The FSST has been established as reliable and valid for various neurological populations and is particularly suited for individuals who ambulate without assistance.</p><p><strong>Objectives: </strong>This study aimed to evaluate the validity and interrater reliability of the FSST in an ambulatory, chronic iSCI population.</p><p><strong>Methods: </strong>We used data from 23 participants to assess FSST convergent validity with established gait and balance measures. We used data from 11 participants, each assessed by multiple raters, to evaluate interrater reliability.</p><p><strong>Results: </strong>Spearman's rank correlations (ρ) revealed strong, significant correlations (all <i>P</i>s < .01) between the FSST and the Berg Balance Scale (ρ = -0.81), 10-Meter Walk Test self-selected (ρ = -0.77), 10-Meter Walk Test fast (ρ = -0.84), and Timed Up and Go (ρ = 0.81), indicating convergent validity. The intraclass correlation coefficient (ICC) between expert and novice raters was excellent (ICC = 1.0), confirming interrater reliability.</p><p><strong>Conclusion: </strong>Overall, the FSST demonstrated excellent reliability and validity, suggesting it is suitable for evaluating dynamic balance in high-functioning individuals with iSCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 4","pages":"56-62"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13621285/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Predicting Functional Walking at Discharge from Inpatient Rehabilitation After Traumatic Spinal Cord Injury: A Single-Site Retrospective Study. 预测创伤性脊髓损伤住院康复出院时的功能性行走:一项单点回顾性研究。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-09-28 DOI: 10.46292/sci26-00019
Jonathan E Ripic, Emily C Workman, Elizabeth Gray, Kwang-Youn A Kim, Matthew T Farley, Bing Chen, Monica A Perez
{"title":"Predicting Functional Walking at Discharge from Inpatient Rehabilitation After Traumatic Spinal Cord Injury: A Single-Site Retrospective Study.","authors":"Jonathan E Ripic, Emily C Workman, Elizabeth Gray, Kwang-Youn A Kim, Matthew T Farley, Bing Chen, Monica A Perez","doi":"10.46292/sci26-00019","DOIUrl":"10.46292/sci26-00019","url":null,"abstract":"<p><strong>Background: </strong>Predicting walking ability after spinal cord injury (SCI) is important to patients. Clinical prediction rules (CPR) have been developed to aid in predicting walking ability by 1 year but not by inpatient rehabilitation facility (IRF) discharge.</p><p><strong>Objectives: </strong>The purpose of this study was to identify a new threshold from the Canadian Outdoor Walking CPR (Jean-CPR) to determine accuracy in predicting household walking ability by discharge from IRF.</p><p><strong>Methods: </strong>This was a single-site retrospective analysis conducted at an IRF in the United States. The main predictor variables for walking ability were lumbar spinal level 3 and 5 motor and sacral level 1 light touch (LT) scores. We used train-test split modeling for the Jean-CPR to determine an optimal predictive threshold for household walking at discharge. The optimal threshold was applied to an independent testing group.</p><p><strong>Results: </strong>From a total of 573 patient records, a Jean-CPR score ≥50 predicted household walking by discharge from IRF with an area under the curve of 0.945 (95% CI 0.91-0.98, <i>P</i> < .0001). For those with American Spinal Injury Association Impairment Scale (AIS) B/C injuries, a Jean-CPR score ≥50 demonstrated an AUC of 0.847 and a sensitivity of 86.36%.</p><p><strong>Conclusion: </strong>This study is the first to validate a walking CPR in the early phases of SCI recovery. Future research may benefit from assessing the external validity of our results and assessing against clinician decision-making. Our results support the use of the Jean-CPR for predicting walking ability by discharge from an IRF.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 4","pages":"20-31"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13621292/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149082426","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Comparison of Biopsychosocial Features of Chronic Neuropathic Versus Musculoskeletal Pain in Adults with Spinal Cord Injury: Baseline Cross-Sectional Data from the EPIC-SCI Trial. 脊髓损伤成人慢性神经性疼痛与肌肉骨骼性疼痛的生物心理社会特征比较:EPIC-SCI试验的基线横断面数据。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-05-26 DOI: 10.46292/sci25-00033
Kathleen A Martin Ginis, Gabriel U Dix, Cameron Gee, Femke Hoekstra, Hashim Islam, Aleksandra Jevdjevic, Kenedy Olsen, Kierstyn Palmer, Kendra Todd, Bobo Tong, Andrea Townson, Joan Úbeda-Colomer, John L K Kramer
{"title":"A Comparison of Biopsychosocial Features of Chronic Neuropathic Versus Musculoskeletal Pain in Adults with Spinal Cord Injury: Baseline Cross-Sectional Data from the EPIC-SCI Trial.","authors":"Kathleen A Martin Ginis, Gabriel U Dix, Cameron Gee, Femke Hoekstra, Hashim Islam, Aleksandra Jevdjevic, Kenedy Olsen, Kierstyn Palmer, Kendra Todd, Bobo Tong, Andrea Townson, Joan Úbeda-Colomer, John L K Kramer","doi":"10.46292/sci25-00033","DOIUrl":"10.46292/sci25-00033","url":null,"abstract":"<p><strong>Objectives: </strong>To compare measures of pain intensity, pain interference, use of pain-coping strategies, conditioned pain modulation, inflammation, and subjective and social well-being in adults with spinal cord injury (SCI) and chronic neuropathic (NP) versus chronic musculoskeletal (MSK) pain.</p><p><strong>Methods: </strong>A natural groups, cross-sectional study design was used, with analyses of baseline data from the Exercise and Pain in Chronic Spinal Cord Injury (EPIC-SCI) trial (NCT04160858). The International Spinal Cord Injury Pain Basic Data Set (version 2.0) was administered during an interview to 35 men and 11 women with chronic SCI (<i>M</i> <sub>age</sub> 50.6, <i>SD</i> 14.1; <i>M</i> <sub>years post injury</sub> 16.5, <i>SD</i> 12.8). Participants completed standardized questionnaire measures of pain, pain coping, subjective well-being, and social well-being, provided a blood sample, and underwent conditioned pain modulation testing. Participants were grouped according to their primary pain problem: NP or MSK.</p><p><strong>Results: </strong>Participants whose primary pain problem was NP reported significantly greater pain intensity and pain-coping strategy use and showed more pain modulation and a different pattern of subjective well-being measures compared to participants with an MSK primary pain problem (<i>P</i>s < .05). Differences in overall bodily pain and proinflammatory cytokine concentrations were medium to large, and differences in pain interference and social well-being were small and not statistically significant (<i>P</i>s > .11).</p><p><strong>Conclusion: </strong>This is the first study to compare a comprehensive set of biopsychosocial variables across pain phenotypes in adults with chronic SCI. The results contribute to a deeper understanding of SCI pain phenotypes and their characteristics.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 2","pages":"135-145"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13215342/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148057514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Revision and Expansion of the International Spinal Cord Injury Urinary Tract Infection Basic Data Set. 国际脊髓损伤尿路感染基本数据集的修订和扩充。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-08-10 DOI: 10.46292/sci25-00117
Rochelle E Tractenberg, Suzanne L Groah, Sarah DiMeglio, Lance Goetz, Todd Linsenmeyer, Bonne Lee, Michael Kennelly, Claus Moser, Jürgen Pannek, Fin Biering-Sørensen
{"title":"Revision and Expansion of the International Spinal Cord Injury Urinary Tract Infection Basic Data Set.","authors":"Rochelle E Tractenberg, Suzanne L Groah, Sarah DiMeglio, Lance Goetz, Todd Linsenmeyer, Bonne Lee, Michael Kennelly, Claus Moser, Jürgen Pannek, Fin Biering-Sørensen","doi":"10.46292/sci25-00117","DOIUrl":"10.46292/sci25-00117","url":null,"abstract":"<p><strong>Background: </strong>International Spinal Cord Injury (SCI) Data Sets have been developed and disseminated worldwide since 2006 to establish minimum standards for clinical data collection. Basic data sets (BDSs) are intended to ensure a uniform minimum level of information across clinical settings and research projects. In 2013, an International SCI Urinary Tract Infection (UTI) Basic Data Set was published. This BDS defined UTI using the 1992 US National Institute on Disability and Rehabilitation Research criteria: \"new onset of symptoms plus bacteriuria, leukocyturia, and positive urine culture.\" Since its publication, multiple new clinical and research definitions of UTI have emerged, creating the need for revision.</p><p><strong>Objectives: </strong>To update the International SCI UTI Basic Data Set to reflect contemporary consensus definitions and improve global consistency in clinical data collection.</p><p><strong>Methods: </strong>A qualitative, 3-phase revision process was conducted. <i>Phase 1</i> involved a phenomenographic surface analysis of the content of the International SCI UTI, Lower Urinary Tract (LUT) Function, Urodynamics, and Core Data Sets, alongside items from the validated, patient-centered Urinary Symptom Questionnaires for Neurogenic Bladder (USQNB), which are differentiated by bladder management method (voiding, intermittent catheterization, and indwelling catheter). <i>Phase 2</i> consisted of a member check-in during which preliminary findings from the surface analysis were reviewed and refined with a subject matter expert. <i>Phase 3</i> involved structured discussion and consensus refinement by an international panel of subject matter experts.</p><p><strong>Results: </strong>The revision process produced an updated set of criteria for determining the likelihood of UTI in individuals with SCI, aligned with a recent (2024) international consensus study. A revised UTI Basic Data Set (version 2) was developed that includes 22 new variables intended to enhance the consistency and comparability of global clinical data collection; only 10 to 12 additional variables are required per case depending on bladder management method.</p><p><strong>Conclusion: </strong>The revised International SCI UTI Basic Data Set reflects contemporary consensus definitions and expands the scope of standardized variables, supporting more reliable and internationally harmonized clinical and research data collection for individuals with SCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"39-55"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460076/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Artificial Intelligence and Data Science for Spinal Cord Injury: Bridging Clinical and Computational Perspectives. 脊髓损伤的人工智能和数据科学:连接临床和计算视角。
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-08-10 DOI: 10.46292/sci25-00138
Olga Taran, Abel Torres-Espín, José Zariffa, Iris Leister, Louis P Lukas, Alessandro Napoli, Vanessa K Noonan, Gustavo Balbinot, Miklovana Tuci, Adam R Ferguson, Rüdiger Rupp, Linda Jones, Keith Tansey, Dennis Bourbeau, R James Cotton, Sarah Brüningk
{"title":"Artificial Intelligence and Data Science for Spinal Cord Injury: Bridging Clinical and Computational Perspectives.","authors":"Olga Taran, Abel Torres-Espín, José Zariffa, Iris Leister, Louis P Lukas, Alessandro Napoli, Vanessa K Noonan, Gustavo Balbinot, Miklovana Tuci, Adam R Ferguson, Rüdiger Rupp, Linda Jones, Keith Tansey, Dennis Bourbeau, R James Cotton, Sarah Brüningk","doi":"10.46292/sci25-00138","DOIUrl":"10.46292/sci25-00138","url":null,"abstract":"<p><p>Modern methods of data science have become powerful tools for analyzing complex, heterogeneous biomedical datasets, including those specific to spinal cord injury (SCI), enabling personalized predictions of recovery, identification of prognostic biomarkers, and insights into functional outcomes. This article summarizes the one-day Data Science Precourse, held at the 2025 annual scientific meeting of the American Spinal Injury Association (ASIA). The course was designed to illustrate advances in data science and their application to SCI research, while analyzing the unique challenges posed by SCI-specific data, such as sparse longitudinal measurements, variable injury characteristics, and diverse clinical and functional assessments. The precourse combined expert-led discussions with hands-on learning opportunities tailored for both clinical and data science audiences. Topics included addressing key challenges of artificial intelligence methods in SCI data analyses, such as learning from limited or incomplete datasets, implementing causal frameworks to understand recovery mechanisms, and ensuring robust and interpretable predictions for clinical decision-making. The event also showcased real-world applications of data science in SCI research, highlighting both solved and ongoing problems, including prognostic modeling, patient stratification, lesion analysis, and optimization of clinical trial design. The precourse culminated in the presentation by the winning teams of the 2025 ASIA Data Science Challenge.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"1-11"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460144/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714170","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Satisfaction with Life, Health, and Leisure-Time Physical Activity in Middle-Aged and Older Adults with a Spinal Cord Injury in Australia. 澳大利亚中老年脊髓损伤患者对生活、健康和休闲时间体育活动的满意度
IF 1.4
Topics in Spinal Cord Injury Rehabilitation Pub Date : 2026-01-01 Epub Date: 2026-05-26 DOI: 10.46292/sci25-00056
Laura Stendell, Peter W Stubbs, Kris Rogers, Arianne P Verhagen, Glen M Davis, James W Middleton, Mohit Arora, Ruth Marshall, Timothy Geraghty, Andrew Nunn, Camila Quel De Oliveira
{"title":"Satisfaction with Life, Health, and Leisure-Time Physical Activity in Middle-Aged and Older Adults with a Spinal Cord Injury in Australia.","authors":"Laura Stendell, Peter W Stubbs, Kris Rogers, Arianne P Verhagen, Glen M Davis, James W Middleton, Mohit Arora, Ruth Marshall, Timothy Geraghty, Andrew Nunn, Camila Quel De Oliveira","doi":"10.46292/sci25-00056","DOIUrl":"10.46292/sci25-00056","url":null,"abstract":"<p><strong>Objectives: </strong>To investigate the associations between leisure-time physical activity (LTPA) and (a) activity and participation, (b) satisfaction with life, (c) quality of life, and (d) perceived health in middle-aged and older Australians with a spinal cord injury (SCI).</p><p><strong>Methods: </strong>We performed a retrospective secondary analysis on the LTPA data from the Australian cohort of the International SCI Survey in participants over 45 years. We described the sample and their participation in LTPA using multivariable linear regression to estimate the association between the variables of interest and LTPA.</p><p><strong>Results: </strong>For 1281 participants over 45 years, the mean (±<i>SD</i>) age was 62.7 (±10.1) years, and the mean time since injury was 18.7 (±14.8) years. There was an association between total weekly participation in LTPA (in hours per week) and an increase in satisfaction with life (β = 0.13, 95% CI 0.08 to 0.18), perceived health rating (OR 0.94, 95% CI 0.93 to 0.96), and quality of life (OR 1.06, 95% CI 1.04 to 1.07) and a very minor decrease in activity and participation problems (β = -0.17, 95% CI -0.26 to -0.09). These associations were slightly stronger, albeit still weak, for moderate-to-heavy LTPA intensities.</p><p><strong>Conclusion: </strong>Both total weekly and moderate-to-heavy LTPA participation were weakly associated with better self-perceived health, quality of life, and satisfaction with life in individuals over 45 years with SCI in Australia. LTPA is not likely to have a clinically meaningful impact on reducing problems with activity and participation in this population.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 2","pages":"158-169"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13215344/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148057517","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信
小红书