Topics in Spinal Cord Injury Rehabilitation最新文献

{"title":"Yoga as Therapy: Reasonable Movements That Rejuvenate the Mind and Body After Spinal Cord Injury.","authors":"Himani Prajapati, W Ben Mortenson, Krista L Best, William C Miller","doi":"10.46292/sci25-00083","DOIUrl":"10.46292/sci25-00083","url":null,"abstract":"<p><strong>Background: </strong>People with spinal cord injury (SCI) experience long-term physical, emotional, and social challenges. Although adaptive yoga may support physical function and psychosocial well-being, its integration into rehabilitation and community care remains limited.</p><p><strong>Objectives: </strong>To explore the experiences and perceptions of yoga for people with SCI, drawing perspectives from people with SCI, healthcare providers (HCPs), and certified yoga therapists.</p><p><strong>Methods: </strong>Using a qualitative descriptive approach, we conducted semi-structured interviews with 20 participants: people with SCI (<i>n</i> = 10), HCPs (<i>n</i> = 4), and certified yoga therapists (<i>n</i> = 6). Interviews were audio-recorded, transcribed verbatim, and thematically analyzed.</p><p><strong>Results: </strong>Four interconnected themes were identified. Breaking Barriers to Participation highlighted financial, transportation, and access-related challenges that limited engagement in adapted yoga. Meeting People Where They Are: Yoga Therapists' Adaptability in Action emphasized the importance of instructor adaptability and inclusive teaching practices, while also describing situations where limited instructor knowledge of SCI shifted the burden of adaptation onto participants. Perceiving Benefits of Doing Yoga captured participants' experiences of physical engagement, mind-body reconnection, emotional regulation, and social inclusion. Finally, Yoga as a Pathway to Long-Term Wellness and Community Integration reflected healthcare professionals' views of yoga as a potential bridge between rehabilitation and community living, alongside perceived barriers to confident recommendation and integration.</p><p><strong>Conclusion: </strong>Adaptive yoga was perceived as a promising person-centered and holistic approach for individuals with SCI. Addressing barriers related to training, access, and clinical pathways could support safer, more inclusive delivery. Cross-sector collaboration is key to embedding yoga into long-term wellness and rehabilitation systems.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"169-184"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460157/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Adherence to Mandibular Advancement Device Therapy for Obstructive Sleep Apnea in Chronic Spinal Cord Injury: A Mixed-Methods Study.","authors":"Lenka Honzatkova, Marnie Graco, Jiri Kriz","doi":"10.46292/sci25-00093","DOIUrl":"10.46292/sci25-00093","url":null,"abstract":"<p><strong>Background: </strong>Obstructive sleep apnea (OSA) is common among individuals with spinal cord injury (SCI). Whilst continuous positive airway pressure (CPAP) remains the primary treatment, adherence is low in SCI. Mandibular advancement devices (MADs) offer a viable alternative. Our prior research has demonstrated that MADs effectively treat moderate-to-severe OSA in chronic SCI.</p><p><strong>Objectives: </strong>To estimate adherence to MADs, report common side effects, and explore the barriers and enablers to using MADs from the perspectives of individuals with SCI.</p><p><strong>Methods: </strong>Individuals with chronic SCI with an apnea-hypopnea index (AHI) ≥15/hour received a custom-made MAD. They attended appointments at 1 week and 1, 3, and 6 months after treatment initiation. Questionnaires and semistructured interviews were completed to assess adherence and side effects and to explore the participants' experience of using MAD.</p><p><strong>Results: </strong>Forty participants were included, and 35 completed the study. After 1 month, 65% (26/40) met adherence criteria (≥4 hours/ night). At 6 months, adherence had increased to 70% (28/40). Adherent participants experienced significantly greater improvements in the AHI than nonadherent participants (19.4 ± 15.7 vs. 10.7 ± 5.2; <i>P</i> = .02). Motivating factors for accepting treatment included alleviating daytime fatigue and snoring and receiving care in the familiar rehabilitation facility. Temporary side effects, such as tooth discomfort or excessive salivation, were not reasons for discontinuation.</p><p><strong>Conclusion: </strong>MADs are an acceptable, well-tolerated treatment for OSA in SCI, with adherence rates approximately 3 times higher than reported for CPAP. Improving access to MADs could significantly increase the number of people with SCI being effectively treated for OSA.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"109-121"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460168/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Proceedings for a Webinar on Aging with Spinal Cord Injury: Opening a Conversation.","authors":"Michael Stillman, Kim Anderson-Erisman, Leslie R Morse, Kristofer Feeko, Ryan Solinsky, Suzanne Groah, Marie Protesto, Ruth Black","doi":"10.46292/sci25-00076","DOIUrl":"10.46292/sci25-00076","url":null,"abstract":"<p><p>Between 1940 and 2010, life expectancy doubled for people with spinal cord injury (SCI). In response to this survival trend, literature emerged examining how people grow older with SCI. While some authors posited that people with SCI age prematurely, others focused on the incidence of coexisting conditions over the course of an injury. These latter data are important in that they can help individuals with SCI, their care partners, and clinicians anticipate medical needs, but they fail to capture the subjective experience of aging with SCI. To date, no work has examined the complex health-related challenges that may attend longer standing injuries or whether and how the presentation and management of coexisting conditions change over time. Given this dearth of knowledge around the real-world experiences of aging with SCI, the authors hosted a community-focused, peer-led, Zoom-based conference addressing medical challenges specific to growing older with SCI. Focusing on bone health, chronic pain, blood pressure management, and neurogenic bladder, invited speakers presented cases and a moderator facilitated discussions between attendees. In this report, we summarize the concerns and questions that arose during the conference and propose topics for future investigation.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"161-168"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460113/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148713997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving and Monitoring Adherence to Exercise Interventions Involving Persons with a Spinal Cord Injury: Actionable Strategies.","authors":"Matteo Ponzano, Jennifer R Tomasone, Kenneth S Noguchi, Haley A Berrisford, Kathleen A Martin Ginis","doi":"10.46292/sci25-00078","DOIUrl":"10.46292/sci25-00078","url":null,"abstract":"<p><p>The Physical Activity Special Interest Group of the International Spinal Cord Society (ISCoS) formed an international panel that established consensus-based recommendations to improve the methodological quality of exercise intervention research involving persons with a spinal cord injury (PwSCI). This article presents guidance on using the group's 12 recommendations for supporting and monitoring adherence to exercise interventions. Topics covered include the use of behavior change theories and techniques, physical activity counseling, and strategies to facilitate quality exercise participation experiences. Recommendations for monitoring exercise adherence are also discussed along with advantages, disadvantages, and practical examples of different monitoring techniques. The adoption and reporting of strategies to maximize and monitor adherence is an important step toward improving the overall quality of SCI exercise research.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 2","pages":"56-65"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13215345/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148057558","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Beyond One Size Fits All: Identifying Distinct Resilience Profiles in Spinal Cord Injury.","authors":"Angela Hanks Philippus, Mary D Sammel, Allan V Prochazka, Kimberley R Monden","doi":"10.46292/sci25-00108","DOIUrl":"10.46292/sci25-00108","url":null,"abstract":"<p><strong>Background: </strong>Resilience plays a critical role in adaptation following spinal cord injury (SCI), yet there is no consensus on how resilience is defined or measured. Current unidimensional approaches may miss important patterns in resilience responses that could inform targeted interventions.</p><p><strong>Objectives: </strong>To identify distinct subgroups of individuals with SCI based on resilience patterns using latent class analysis (LCA) and examine their associations with demographic, injury-related, and psychosocial factors.</p><p><strong>Methods: </strong>We conducted a cross-sectional analysis of 10,634 adults with SCI from the National SCI Model System Database who completed the Spinal Cord Injury-Quality of Life Resilience short form (SCI-QOL-R-SF) between 2016 and 2021. LCA identified response patterns across the 8 SCI-QOL-R-SF items. Polytomous logistic regression examined factors related to class membership. Linear regression assessed relationships between resilience classes and life satisfaction and depression symptoms.</p><p><strong>Results: </strong>A 3-class solution provided optimal fit: high resilience (40.5%), medium resilience (38.4%), and low resilience (21.1%). Classes demonstrated a clear gradient pattern of responses from \"always\" to \"sometimes\" on the SCI-QOL items. Significant predictors of class membership included sex, age, employment status, self-care behaviors, health status, time since injury, and social support. Resilience class was the strongest predictor of both life satisfaction (accounting for 14% of variance) and depression symptoms (12.2% of variance), with large effect sizes between classes.</p><p><strong>Conclusion: </strong>Distinct resilience patterns exist among individuals with SCI and strongly predict psychosocial outcomes. These findings support tailored interventions targeting specific resilience profiles to improve life satisfaction and reduce depression in this population.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"137-148"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102065/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"High-Intensity Interval Training in Individuals with Subacute Motor Incomplete Spinal Cord Injury: An Explorative Randomized Controlled Trial.","authors":"Maxime J van Oort, Ilse J W van Nes, Dick H J Thijssen, Lise M Wilders, Maria T E Hopman, Nelleke G Langerak","doi":"10.46292/sci25-00101","DOIUrl":"https://doi.org/10.46292/sci25-00101","url":null,"abstract":"<p><strong>Background: </strong>Spinal cord injury (SCI) causes major functional limitations. The subacute phase offers a critical window to optimize recovery. High-intensity interval training (HIIT) may improve cardiorespiratory fitness (CRF) in chronic complete SCI, but evidence in subacute incomplete SCI is limited.</p><p><strong>Objectives: </strong>To evaluate the effects of 6 weeks of HIIT on CRF compared with usual care in subacute motor incomplete SCI.</p><p><strong>Methods: </strong>In this explorative randomized controlled trial, participants with subacute incomplete SCI were assigned to HIIT or usual care. HIIT involved 2 to 3 weekly arm-ergometry sessions. Usual care consisted of individualized inpatient rehabilitation fitness, mainly focusing on strength training. Primary outcomes were relative peak oxygen uptake (VO₂peak) and absolute peak power output (PPO), measured by cardiopulmonary exercise testing. Pre-post changes across all participants were analyzed with the Wilcoxon signed-rank test and between-group differences with the Mann-Whitney <i>U</i> test.</p><p><strong>Results: </strong>Of 19 randomized participants, 7/10 completed HIIT (70%), and all 9 completed usual care (100%). Across groups, relative VO₂peak increased from 18.0 (12.5-23.7) to 20.3 (14.4-24.8) mL/kg/min and absolute PPO increased from 63 (35-75) to 73 (45-85) watts post intervention (both <i>P</i> _S = .003), with no between-group differences. A higher proportion of HIIT participants (57%) achieved clinically meaningful VO₂peak improvements compared with usual care (33%).</p><p><strong>Conclusion: </strong>Inpatient rehabilitation, through HIIT or usual care, improved CRF in individuals with subacute motor incomplete SCI. Although between-group differences were not found, a greater proportion of HIIT participants achieved clinically meaningful CRF improvements, suggesting that HIIT may improve CRF in this population.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 2","pages":"96-109"},"PeriodicalIF":1.2,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13215339/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148057560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Meaningful Engagement in Exercise Intervention Research Involving People with Spinal Cord Injury: Seven Practical Recommendations.","authors":"Heather L Gainforth, Alanna Shwed, Alexandra Walters, Kim D Anderson, John Chernesky, Femke Hoekstra, Camilla M Larsen, James Laskin","doi":"10.46292/sci25-00081","DOIUrl":"10.46292/sci25-00081","url":null,"abstract":"<p><strong>Introduction: </strong>Exercise intervention research involving people with spinal cord injury (SCI) has often excluded the perspectives and priorities of people with SCI, contributing to tokenism and misalignment between research and community needs. While consensus-based principles emphasize the importance of meaningful engagement, research teams lack concrete guidance on how to operationalize this engagement in practice.</p><p><strong>Objectives: </strong>To outline 7 consensus-based \"how-to\" recommendations that support research teams in meaningfully engaging research users, including people with SCI, throughout the design, delivery, evaluation, and dissemination of exercise intervention research.</p><p><strong>Methods: </strong>A multidisciplinary authorship team with extensive experience in SCI research and engagement co-developed the recommendations through a series of collaborative meetings. The team synthesized insights from lived experience, engagement literature, and pragmatic examples. Minimum expectations were defined through internal consensus using an online survey and iterative team discussions.</p><p><strong>Results: </strong>Seven recommendations were developed to emphasize flexibility and iteration: (1) adopt a principled and relational approach to engagement; (2) engage early and often with diverse research users; (3) commit to supporting a safe, welcoming, and inclusive environment; (4) establish shared decision-making processes; (5) recognize, compensate, and credit diverse forms of expertise; (6) utilize communication practices that are clear, accessible, and responsive; and (7) regularly reflect on, evaluate, and iterate engagement.</p><p><strong>Conclusion: </strong>These recommendations serve as baseline expectations to support research teams in avoiding tokenism and embedding meaningful engagement into exercise intervention research. Implementation requires individual, team, and system-level change. Sustained, non-tokenistic engagement depends not only on procedural guidance but also on institutional supports and shifts in academic culture.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 2","pages":"5-18"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13215351/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148057591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mixed-Methods Evaluation of the Pilot True Grit SCI Residential Program for Young Adults with Spinal Cord Injury.","authors":"Keara McNair, Aaron Dallman, Kassandra Boyd, Corinne Calvanico","doi":"10.46292/sci25-00107","DOIUrl":"10.46292/sci25-00107","url":null,"abstract":"<p><strong>Background: </strong>Young adults with spinal cord injury (SCI) face unique challenges during the transition to adulthood, including limited access to community-based programs that address participation, independence, and resilience.</p><p><strong>Objectives: </strong>To evaluate the pilot True Grit SCI program, a 5-day residential camp designed to support the transition to adulthood for young adults with SCI.</p><p><strong>Methods: </strong>This qualitatively driven, embedded mixed-methods study employed a realist evaluation framework guided by social cognitive theory. Six male participants with SCI (ages 16-20 years) attended the July 2024 pilot program. Quantitative measures included the Goal Attainment Scale (GAS), SCI-QOL Resilience Short Form, and Pediatric Measure of Participation (PMoP), administered at baseline and 3-month follow-up. Qualitative data were collected through semi-structured post-camp interviews. Data were analyzed descriptively and thematically, with integration through triangulation.</p><p><strong>Results: </strong>All participants demonstrated progress toward individualized goals, with mean GAS improvement of +1.67 (<i>SD</i> 0.82). Resilience outcomes varied, with 3 participants improving and 3 declining. Participation scores increased modestly, with the largest gains among those with lower baseline scores. Qualitative analysis identified 4 themes: building community and belonging, shared experiences foster confidence to try new things, overcoming barriers and redefining identity, and envisioning futures and inspiring others. Integration of findings demonstrated that peer-supported, structured programming both reinforced observed goal attainment and contextualized variable resilience outcomes.</p><p><strong>Conclusion: </strong>The evaluation of the True Grit SCI pilot suggests that short-term residential programming demonstrated the potential to promote resilience, participation, and self-efficacy among young adults with SCI. Variability in follow-up highlights the need for ongoing community supports to sustain gains.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 3","pages":"56-67"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13460073/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148714019","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Longitudinal Impact of Time and Negative Health Events on Physical Independence and Social Participation After Spinal Cord Injury.","authors":"Philip S Requejo, Susan Robinson-Whelen, Lisa Lighthall Haubert, Lynn A Worobey, Kim D Anderson, Kimberley R Monden, Michelle Meade, James S Krause","doi":"10.46292/sci25-00128","DOIUrl":"10.46292/sci25-00128","url":null,"abstract":"<p><strong>Background: </strong>Many individuals aging with spinal cord injury (SCI) experience health complications that threaten independence and participation. However, little is known about how negative health events (NHEs) and time since injury shape long-term functional and psychosocial outcomes for individuals with SCI.</p><p><strong>Methods: </strong>Participants were from a national longitudinal dataset of over 13,000 participants from the SCI Model Systems. Participants had 2 or more follow-up assessments of functional and psychosocial outcomes (CHART-SF and SWLS) and NHEs (composite of pain interference, rehospitalization, perceived health decline, and poor self-rated health). Multilevel modeling assessed the effects of time since injury, NHEs, and their interactions on functional and psychosocial outcomes. Latent profile analysis (LPA) was used to identify functional and psychosocial profiles under differing NHE burden.</p><p><strong>Results: </strong>Greater NHE burden predicted significant declines across all CHART-SF domains and SWLS (<i>P</i> < .001), whereas time since injury showed small or nonsignificant effects once NHEs were accounted for. Although NHEs adversely affected all groups, baseline functioning and the magnitude of decline varied by demographic and injury characteristics. LPA identified a 4-class solution, including a subgroup (11%) showing high functioning and life satisfaction despite elevated NHE burden, reflecting adaptive stability.</p><p><strong>Conclusion: </strong>NHEs-not aging alone -are key drivers of decline. However, a meaningful subgroup demonstrates adaptive stability despite significant health adversity, which is characteristic of resilience. Understanding and facilitating mechanisms that foster such adaptive capacity (e.g., psychosocial coping, support, behavioral adaptations) may inform individualized approaches for successful aging with SCI.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 Suppl 1","pages":"24-34"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13102060/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147785416","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bladder and Bowel Dysfunction, Cognitive Appraisals of Disability, and Life Satisfaction in Individuals With Pediatric-Onset Spinal Cord Injury.","authors":"Olivia E Clark, Kyle Deane, Lawrence C Vogel, Kathy Zebracki","doi":"10.46292/sci25-00068","DOIUrl":"10.46292/sci25-00068","url":null,"abstract":"<p><strong>Background: </strong>Individuals with pediatric-onset spinal cord injury (SCI) represent a distinct group; management can be more complex than in adult-onset SCI. Changing medical needs, transfer of responsibility, and cognitive appraisals of disability may all impact life satisfaction in pediatric-onset SCI. Further, bladder/bowel management over many years may be time-consuming and socially disruptive. Cognitive appraisal of disability has been linked to life satisfaction and functioning in pediatric-onset SCI.</p><p><strong>Objectives: </strong>This study examines associations between bladder/bowel accidents, bowel management, cognitive appraisals, and life satisfaction in pediatric-onset SCI.</p><p><strong>Methods: </strong>Part of a larger study, 180 adults who sustained SCI age ≤18 and received treatment at a pediatric rehabilitation hospital system were interviewed. Participants were 55.6% male, 83.3% White, 38.6 years at interview, and 13.1 years at injury; 66.1% had complete injury, and 51.1% had paraplegia. Participants reported demographics/medical needs via semi-structured interview. Cognitive appraisals and life satisfaction were assessed using Appraisals of DisAbility Primary and Secondary Scale-Short Form and Satisfaction with Life Scale. Pairwise correlations with all constructs of interest and multivariable linear regressions using bowel program duration and cognitive appraisals as predictors of life satisfaction were conducted.</p><p><strong>Results: </strong>Correlations align with literature suggesting associations between bladder accident frequency/bowel program duration and negative appraisals of disability (<i>r</i> = .17-.22, <i>P</i> < .05) and bowel program duration and reduced life satisfaction (<i>r</i> = -.29, <i>P</i> < .01). Increased bowel program duration is associated with reduced growth and resilience appraisals (<i>r</i> = .32, <i>P</i> < .001). Regressions indicate that increased bowel program duration and negative appraisals (fearful despondency, overwhelming disbelief, negative perceptions) are associated with reduced life satisfaction (<i>R</i> ² = .12-.24).</p><p><strong>Conclusion: </strong>Findings suggest interventions targeting bowel management efficiency and cognitive appraisals may improve life satisfaction in this population.</p>","PeriodicalId":46769,"journal":{"name":"Topics in Spinal Cord Injury Rehabilitation","volume":"32 1","pages":"136-144"},"PeriodicalIF":1.4,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12926792/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147285438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}