Mehmet D. Sulu, Orhan Aydin, Ronald C. Martella, Emine Erden, Zafer Ozen
{"title":"A Meta-Analysis of Applied Behavior Analysis-Based Interventions for Individuals with Autism Spectrum Disorders (ASD) in Turkey","authors":"Mehmet D. Sulu, Orhan Aydin, Ronald C. Martella, Emine Erden, Zafer Ozen","doi":"10.1007/s40489-023-00421-2","DOIUrl":"https://doi.org/10.1007/s40489-023-00421-2","url":null,"abstract":"<p>Interventions based on the principles of applied behavior analysis (ABA) have been determined to be evidenced-based practices and are widely used with individuals with autism spectrum disorders (ASD) across the world. Originally developed in the USA, implementation of these interventions has become widespread in the last decade in Turkey. Given the significance of culture in guiding ABA practices, this meta-analysis investigated the prevalence and the magnitude effects of ABA-based interventions and whether specific participant and intervention characteristics moderated such effects in Turkey. Seventy-one ABA-based intervention studies were assessed based on What Works Clearinghouse (WWC, Kratochwill et al., <i>Remedial and Special Education</i>, 34(1), 26–38, 2013) design standards (DSs) including (a) systematic manipulation of independent variables, (b) interrater reliability, (c) three demonstrations of the intervention effect, and (d) adequate number of data points collected for each condition. Forty-three studies that met WWC (Kratochwill et al., <i>Remedial and Special Education</i>, 34(1), 26–38, 2013) DSs were analyzed and calculated with baseline-corrected tau (Tarlow, <i>Behavior Modification, 41</i>(4), 427–467, 2017). Furthermore, performance-criteria-based effect size values (PCES; Aydin and Tanious, <i>Journal of Applied Behavior Analysis</i>, 2021) were calculated for 27 studies that had mastery criteria. While the overall tau appeared to be large 0.71 (<i>p</i> = 0.072, se = 0.254), the overall effect size for PCES revealed a small effect of 0.73. The comparisons of all sub-categories’ effect sizes of moderator variables were not statistically significant based on Kruskal Wallis or Mann Whitney U tests. Additionally, findings revealed that studies were predominantly implemented by highly trained researchers in segregated one-on-one settings, and did not include adults with ASD nor challenging behavior. Overall, there has been significant growth in ABA-based interventions in Turkey that show promise in improving the lives of individuals with ASD. However, further research and cultural considerations are essential for a comprehensive understanding of their impact in the Turkish context. Findings from two different effect size analyses and recommendations for future studies are discussed.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"21 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2024-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139078326","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Moon Young Savana Bak, Ana D. Dueñas, Amber M. Reilly, Qichao Pan, Hamdi Abas
{"title":"The Demographics of Autistic Individuals in Social Communication Evidence-Based Practice: a Systematic Review","authors":"Moon Young Savana Bak, Ana D. Dueñas, Amber M. Reilly, Qichao Pan, Hamdi Abas","doi":"10.1007/s40489-023-00424-z","DOIUrl":"https://doi.org/10.1007/s40489-023-00424-z","url":null,"abstract":"<p>Social communication, like all inter-human behaviors, are highly affected by an individual’s intersectional identities and memberships of diverse communities. The current systematic literature review investigated the reporting practices of participant demographics and the extent to which under-represented autistic groups were included in social communication intervention studies in the 2020 National Clearinghouse on Autism Evidence and Practice report. Results show inconsistencies and gaps in reporting participant variables as well as a general lack of representation of diverse autistic communities in social communication intervention research. The results highlight the limitations of current racial categories and considerations for complex intersectional identities. Recommendations for future researchers are also discussed.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"26 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-12-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138818737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Diagnostic Assessment of Autism in Children Using Telehealth in a Global Context: a Systematic Review","authors":"Panos Katakis, Georgia Lockwood Estrin, Jeanne Wolstencroft, Shermina Sayani, Ellie Buckley, Venus Mirzaei, Michelle Heys, David Skuse","doi":"10.1007/s40489-023-00408-z","DOIUrl":"https://doi.org/10.1007/s40489-023-00408-z","url":null,"abstract":"<p>Reflecting the significant delays in autism assessments globally, studies have explored whether autism assessments conducted via telehealth are feasible and accurate. This systematic review investigated the psychometric properties of autism assessment tools for children administered via telehealth and examined the diagnostic accuracy of telehealth assessment procedures compared to care-as-usual in-person assessments. Relevant databases (MEDLINE, Embase and PsycInfo) were searched for eligible studies (PROSPERO: CRD42022332500). In total, 18 studies were included, collectively assessing 1593 children for autism. Telehealth assessments for autism were largely comparable to in-person assessments, with a diagnostic agreement of 80–88.2%. Individual behavioral observation tools, diagnostic interviews, and clinician-administered screening tools demonstrated acceptable validity. For many children, diagnostic decision-making can be expedited without loss of validity using telehealth.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"22 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Effects of Physical Activity Interventions in Children with Autism Spectrum Disorder: a Systematic Review and Network Meta-analysis","authors":"Yinhua Li, Yanqing Feng, Jiugen Zhong, Zhi Zou, Wanting Lan, Yingying Shen, Jiaheng Gong, Benxuan Zhao, Cong Tong, Cindy Hui-Ping Sit, Xiaohui Hou","doi":"10.1007/s40489-023-00418-x","DOIUrl":"https://doi.org/10.1007/s40489-023-00418-x","url":null,"abstract":"<p>We conducted a network meta-analysis to assess and rank the efficacy of different physical activities on motor function, social function, communication, and stereotyped behavior in children with autism spectrum disorder. PubMed, EBSCO, Cochrane Library, and Web of Science databases were searched through May 25, 2023. A total of 37 studies involving 1200 participants and 17 interventions were included in our study. Based on the ranking probabilities, Tai Chi Chuan and fundamental motor skill intervention were ranked as possibly the most effective intervention for motor function and communication, respectively. Kata techniques had the highest probability of being best for stereotyped behavior and social function. This review provides valuable information that physical activity can be a useful strategy in the management of autism spectrum disorder.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"4 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529498","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Experience of Raising Girls with Autism Spectrum Disorder: a Systematic Review of Qualitative Research Studies","authors":"Nicola Hopkins, Jane Iles, Rose-Marie Satherley","doi":"10.1007/s40489-023-00419-w","DOIUrl":"https://doi.org/10.1007/s40489-023-00419-w","url":null,"abstract":"<p>Autistic females often present differently to autistic males, which can lead to difficulties obtaining a diagnosis and subsequent support. Parenting an autistic daughter has been linked to additional parenting stress compared to parenting an autistic son. However, research in this area is limited. A systematic review was undertaken to synthesise qualitative studies on parental experiences of raising autistic females. Nine studies met the inclusion criteria and thematic synthesis was completed. Six themes were created. The analysis found issues with diagnosis and differences in lived experience compared to autistic males can present significant challenges. Parents can struggle with a range of negative emotions or feel overwhelmed. However, studies also found benefits to parenting an autistic daughter, such as increased confidence in parenting.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"1 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138543058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Listening to the Perspectives of Autistic Adolescents on Inclusive Education: a Systematic Literature Review","authors":"Samantha E. Goldman, Kimberly N. Preece","doi":"10.1007/s40489-023-00416-z","DOIUrl":"https://doi.org/10.1007/s40489-023-00416-z","url":null,"abstract":"<p>Autistic adolescents are increasingly educated in inclusive settings. This likely affects their education and experiences in a variety of ways, yet their opinions on their inclusive educational experiences are rarely sought. Autistic adolescents should be given the opportunity to share their opinions on their inclusive experiences to help identify structural issues that limit their success, as well as the school supports they desire. This literature review synthesizes the opinions of autistic adolescents on their experiences in inclusive education. After identifying 23 eligible studies in a systematic search, five overarching themes were identified relating to (1) negotiating identity, (2) peer interactions, (3) teacher characteristics, (4) instructional practices, and (5) classroom and school environment. Limitations and implications for future research and practice are discussed, including the need to conduct studies on this topic in the USA and to solicit the perspectives of female autistic adolescents more actively.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"25 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529499","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ying Hao, Yao Du, Saijun Zhang, Lin Sun, Gina Keene, Toshikazu Ikuta
{"title":"Effectiveness of Telehealth Social Communication Intervention on Language Skills Among Children with Autism Spectrum Disorder: a Systematic Review and Meta-analysis","authors":"Ying Hao, Yao Du, Saijun Zhang, Lin Sun, Gina Keene, Toshikazu Ikuta","doi":"10.1007/s40489-023-00411-4","DOIUrl":"https://doi.org/10.1007/s40489-023-00411-4","url":null,"abstract":"<p>This systematic review and meta-analysis evaluated the effectiveness of telehealth social communication intervention on language skills of children with autism spectrum disorder (ASD). Twenty-one studies were included, among which 17 were single subject experimental design (SSED). Language outcomes were categorized into five linguistic domains (phonology, morphology, syntax, semantics, and pragmatics), and meta-analysis was planned for each domain. Meta-analysis was only performed for pragmatic outcomes, due to the small number of studies that included outcomes in other domains. The results showed significant pre- to post-intervention improvement, thus supporting the use of telehealth social communication intervention to improve pragmatic skills among children with ASD. More diverse measures should be used to target linguistic domains beyond pragmatics. The predominant use of SSED warrants large-scale studies for robust evidence in the future.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"7 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David, Judith Peth
{"title":"Multidimensional Burden on Family Caregivers of Adults with Autism Spectrum Disorder: a Scoping Review","authors":"Sophia Dückert, Petia Gewohn, Hannah König, Daniel Schöttle, Alexander Konnopka, Pascal Rahlff, Kai Vogeley, Holger Schulz, Nicole David, Judith Peth","doi":"10.1007/s40489-023-00414-1","DOIUrl":"https://doi.org/10.1007/s40489-023-00414-1","url":null,"abstract":"<p>Family caregivers often play a critical role in supporting their relative(s) with autism spectrum disorder (ASD) across the lifespan. This can lead to great burdens on family caregivers themselves. However, to date, the potential burden on family caregivers has not been in the focus of research, particularly, with respect to caregiver burden as relatives with ASD advance to adulthood. Thus, this scoping review aimed to (a) systematically map research regarding multiple dimensions of caregiver burden on family caregivers of adults with ASD (i.e., time dependence, developmental, physical, social, emotional, and financial burden) and (b) identify interventions designed to reduce such burden. A total of <i>N</i> = 33 eligible studies highlighted the impact of caregiving demands for adults with ASD, mainly focusing on emotional burden of caregiving (<i>n</i> = 27), reporting decreased mental quality of life and mental health. Findings gave indications on all other dimensions of caregiver burden, but evidence is lacking. No study was identified that provided evidence for specific interventions to reduce or to prevent caregiver burden. Findings highlighted the urgent need for more research on this topic and the development of strategies to support family caregivers of adults with ASD.</p>","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"5 1","pages":""},"PeriodicalIF":3.8,"publicationDate":"2023-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138529488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emma Frickel, Caitlyn Mahony, Sophia Bam, Erin Buchanan, Mignon van der Watt, Colleen O’Ryan
{"title":"Molecular Autism Research in Africa: Emerging Themes and Prevailing Disparities","authors":"Emma Frickel, Caitlyn Mahony, Sophia Bam, Erin Buchanan, Mignon van der Watt, Colleen O’Ryan","doi":"10.1007/s40489-023-00415-0","DOIUrl":"https://doi.org/10.1007/s40489-023-00415-0","url":null,"abstract":"Abstract African populations are consistently underrepresented in molecular research on autism spectrum disorders (ASD). Yet, Africa’s genetic diversity could reveal novel mechanisms associated with ASD etiology. We review the molecular ASD research from Africa between 2016–2022, highlighting region-specific limitations, opportunities, and areas of progress. We emphasize a need to advance null-hypothesis based molecular studies in Africa, particularly in critically understudied Sub-Saharan African (SSA) populations. Using South Africa as a case study, we show that this geographical disparity is not solely attributable to sociocultural barriers nor to an absence of molecular research infrastructure. We emphasize the importance of interdisciplinary collaboration within SSA and internationally to harness existing infrastructure for the expansion of molecular ASD research in Africa.","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"23 3","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134991362","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Treating Substance Abuse in Patients with Autism Spectrum Disorder—a Systematic Review","authors":"Mariana Vieira, Bianca H. Yeep, Irene P. Carvalho","doi":"10.1007/s40489-023-00409-y","DOIUrl":"https://doi.org/10.1007/s40489-023-00409-y","url":null,"abstract":"","PeriodicalId":46647,"journal":{"name":"Review Journal of Autism and Developmental Disorders","volume":"121 33","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-11-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135136448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}