孤独症谱系障碍女童的养育经验:质性研究的系统回顾

IF 2.9 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL
Nicola Hopkins, Jane Iles, Rose-Marie Satherley
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引用次数: 0

摘要

女性自闭症患者的表现往往与男性自闭症患者不同,这可能导致难以获得诊断和随后的支持。与养育一个自闭症的儿子相比,养育一个自闭症的女儿会带来额外的养育压力。然而,这方面的研究是有限的。本文进行了一项系统综述,以综合对养育自闭症女性的父母经验的定性研究。9项研究符合纳入标准,完成了专题综合。共创建了六个主题。分析发现,与自闭症男性相比,诊断问题和生活经历的差异可能会带来重大挑战。父母可能会与一系列负面情绪作斗争,或者感到不知所措。然而,研究也发现了养育自闭症女儿的好处,比如增加了养育孩子的信心。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

The Experience of Raising Girls with Autism Spectrum Disorder: a Systematic Review of Qualitative Research Studies

The Experience of Raising Girls with Autism Spectrum Disorder: a Systematic Review of Qualitative Research Studies

Autistic females often present differently to autistic males, which can lead to difficulties obtaining a diagnosis and subsequent support. Parenting an autistic daughter has been linked to additional parenting stress compared to parenting an autistic son. However, research in this area is limited. A systematic review was undertaken to synthesise qualitative studies on parental experiences of raising autistic females. Nine studies met the inclusion criteria and thematic synthesis was completed. Six themes were created. The analysis found issues with diagnosis and differences in lived experience compared to autistic males can present significant challenges. Parents can struggle with a range of negative emotions or feel overwhelmed. However, studies also found benefits to parenting an autistic daughter, such as increased confidence in parenting.

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来源期刊
CiteScore
8.40
自引率
0.00%
发文量
51
期刊介绍: The Review Journal of Autism and Developmental Disorders publishes original articles that provide critical reviews of topics across the broad interdisciplinary research fields of autism spectrum disorders. Topics range from basic to applied and include but are not limited to genetics, neuroscience, diagnosis, applied behavior analysis, psychopharmacology, incidence, prevalence, etiology, differential diagnosis, treatment, measurement of treatment effects, education, perception and cognition. Topics across the life span are appropriate. In addition, given the high rates of comorbid conditions, the interface of sleep disorders, feeding problems, motor difficulties, ADHD, anxiety, depression and other disorders with autism spectrum disorders are appropriate. The Journal aims for an international audience as reflected in the editorial board.
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