Medical Humanities最新文献_第3页

Social suffering and caregiver burden in The Brothers Karamazov: the story of Captain Snegiryov. 《卡拉马佐夫兄弟》中的社会苦难和照顾者的负担：斯涅吉廖夫上尉的故事。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-24 DOI: 10.1136/medhum-2025-013334

Ana Cláudia Mesquita Garcia

{"title":"Social suffering and caregiver burden in The Brothers Karamazov: the story of Captain Snegiryov.","authors":"Ana Cláudia Mesquita Garcia","doi":"10.1136/medhum-2025-013334","DOIUrl":"https://doi.org/10.1136/medhum-2025-013334","url":null,"abstract":"This article offers a critical literary analysis of The Brothers Karamazov through the lens of literary humanism, focusing on dimensions of social suffering and caregiver burden in end-of-life contexts. These themes are examined through the story of Captain Snegiryov and his family, key figures in Dostoevsky's narrative. By analysing the captain's experience as a caregiver for his gravely ill son in the context of extreme poverty, this study highlights four central aspects: (1) social suffering within the framework of total pain, (2) the caregiver burden, (3) neglect by healthcare systems and institutions and (4) the role of compassionate communities in alleviating suffering. The portrayal of the captain's struggles resonates with contemporary issues in palliative care and social justice, illustrating how economic and structural vulnerabilities exacerbate caregiver burden and reinforce systemic inequalities. This article argues that literature provides valuable insights into the caregiving experience, revealing ethical dilemmas, emotional challenges and the urgent need for expanded support systems. By bridging literary analysis and palliative care discourse, this study underscores the critical need for interdisciplinary approaches to address caregiver distress and emphasises the role of community engagement in alleviating social suffering.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2025-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144973855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How failure-based language fails our patients. 基于失败的语言是如何让我们的病人失望的。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-24 DOI: 10.1136/medhum-2025-013279

Alexandra Balshi, Samantha A Lee

引用次数: 0

Diagnosis: undervalued. A psychoanalytic exploration of doctor strikes in the British National Health Service, 2023-2024. 诊断:低估。2023-2024年英国国家卫生服务部门医生罢工的精神分析探索。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013208

Sarah M Ramsey

{"title":"Diagnosis: undervalued. A psychoanalytic exploration of doctor strikes in the British National Health Service, 2023-2024.","authors":"Sarah M Ramsey","doi":"10.1136/medhum-2024-013208","DOIUrl":"10.1136/medhum-2024-013208","url":null,"abstract":"This work explores recent industrial action by doctors in the British National Health Service (NHS) through a psychoanalytic lens, exploring psychosocial context and the role of unconscious phantasy. Doctor strikes are conceptualised as a protest against devaluation. Expressed motivation for strike action, a real-term pay reduction, is symbolic of deeper societal devaluation of healthcare and those who provide it; pay restoration serves as a phantastic object through which amends can be made. Layers of holding and containment are identified, from the function of the health, or rather anti-death, service in containing deep-rooted anxiety around illness and death, to the holding, typically in limited supply, experienced by staff members working in health services, to the containing function individual staff provide for their patients.Strike action shatters the NHS as a container, primitive anxieties emerge and primitive defences are activated. Anger expressed through protest causes an impact, expressing a demand to be recognised and valued. The time and space of the strike has generative potential; implications of breaking the 'broken' NHS give impetus to finding a way forward. Exploration of unconscious phantasy underpinning industrial action and public response may bring insight to negotiations, enabling grounded and coherent solutions to be derived.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"397-407"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143573770","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Narrative medicine intervention on the obstetric-gynaecological work floor to discuss social stigmas around heavy menstrual bleeding using cocreated site-specific poetry. 叙事性医学介入妇产科工作层，通过共同创作的特定地点诗歌来讨论月经大出血的社会耻辱感。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013150

Heleen Eising, Elsemarijn Leijenaar, Ramsey Nasr, Renate van Leuken, Marlies Bongers, Megan Milota

{"title":"Narrative medicine intervention on the obstetric-gynaecological work floor to discuss social stigmas around heavy menstrual bleeding using cocreated site-specific poetry.","authors":"Heleen Eising, Elsemarijn Leijenaar, Ramsey Nasr, Renate van Leuken, Marlies Bongers, Megan Milota","doi":"10.1136/medhum-2024-013150","DOIUrl":"10.1136/medhum-2024-013150","url":null,"abstract":"Purpose: Stigmatisation and lack of awareness about many women's health concerns constitute a major public health problem. This study analyses the impact of a narrative medicine (NM) intervention designed for obstetrical-gynaecological (OB-GYN) professionals and patients in a teaching hospital. It used a cocreated, site-specific poem based on patient and clinician lived experience narratives to stimulate meaningful discussions on taboo topics and provide an opportunity for participants to learn from each other's perspectives and experiences.Method: This qualitative study employed a thematic analysis of 36 written reflections collected in three 1-hour NM sessions, along with follow-up interviews with 14 participants (aged≥18 years, fluently Dutch speaking).Results: Analysis of the anonymous written reflections and interviews indicates that OB-GYN professionals and patients valued the commissioned poem as an unexpected and engaging source of inspiration for exploring patients' perspectives. Participants were also deemed NM an appropriate approach to support multidisciplinary discussion. The written responses and interviews also highlighted valuable focus areas for a subsequent NM training.Conclusions: This study contributes to the field of NM teaching by showing that such interventions can be used in continuing education interventions in the workplace. Our site-specific artwork for a Dutch OB-GYN department encourages meaningful discussions between healthcare providers and patients. Poetry, in this case a cocreated, site-specific work, can reveal new facets of patients' perspectives and needs.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"360-366"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421098/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651361","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Women's health: who cares? Reproduction, resistance and reckoning. 女性健康：谁在乎？繁殖，抵抗和清算。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2025-013535

Sabina Dosani

引用次数: 0

Parental perspectives of trisomy 18: common threads of a life-limiting diagnosis. 父母对18三体的看法：限制生命的诊断的共同线索。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013188

Evelyn Armour, Melissa J MacPherson, Cheryl Mack, Michael van Manen

{"title":"Parental perspectives of trisomy 18: common threads of a life-limiting diagnosis.","authors":"Evelyn Armour, Melissa J MacPherson, Cheryl Mack, Michael van Manen","doi":"10.1136/medhum-2024-013188","DOIUrl":"10.1136/medhum-2024-013188","url":null,"abstract":"There is a narrative told among healthcare providers that the public stories of trisomy 18 do not reflect the experiences of the many families navigating this diagnosis. This is in the context of a recognised paradigm shift occurring in the treatment of children born with trisomy 18 from one focused solely on comfort to one that considers the potential of medical-surgical interventions to afford survival. This study aims to elicit and explore phenomenologically parents' narratives of trisomy 18. The focus is on the full spectrum of trisomy 18: whether it was diagnosed before or after birth, whether the child's life was of short or long duration and whether invasive or palliative care was sought. While trisomy 18 was not univocal of the children's stories, as a focus of this qualitative inquiry unified them. Healthcare providers may benefit from understanding how trisomy 18 may affect a particular diagnosis experience, whether made during pregnancy or the days after birth when parents are still getting to know their child. As parents live with this diagnosis, pregnancy and the life of their child may be shaped by an uncertainty of a life-limiting condition, whereby care is bounded by what is and is not possible. And, we may appreciate how trisomy 18 imparts meanings on ordinary and extraordinary moments for children and their families in a recognisable form. The understandings gained from this research may support healthcare professionals' reflective clinical practices as they care for children and their families affected by this diagnosis.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"352-359"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143442422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Architecture for mental health. 心理健康建筑。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013155

Roberto Rusca

{"title":"Architecture for mental health.","authors":"Roberto Rusca","doi":"10.1136/medhum-2024-013155","DOIUrl":"10.1136/medhum-2024-013155","url":null,"abstract":"The present study aims at establishing if anything has been learnt from 140 years of modern architecture when it comes to designing for inpatient mental health and to identifying how architecture can contribute to the development of low stress psychiatric units. Creative architects have generally rejected the 'classical language' of architecture. The principles of modern architecture can be applied to the design of psychiatric units. The effects of living conditions on the human mind had already been addressed in the 1920s. More recent studies have looked at links between ward design and aggression, aimed at identifying environmental stress-reducing factors. Environmental psychology studies, along with the work of 261 architects over a span of 140 years and of 32 major architectural firms, were reviewed. Aggression seems to be linked to factors such as crowding, noise, lack of privacy and the lack of stress-reducing positive distractions. Out of 261 architects, 22 (8.42%) designed hospital buildings and only five (1.91%) were involved in designing psychiatric hospitals. Out of 69 recently built modern hospitals, 18 were psychiatric hospitals (26.08%). Principles of modern architecture have been sporadically implemented in older hospital buildings, rarely in psychiatric units, more frequently in some recently built psychiatric hospitals, hopefully to create low stress environments that could speed up recovery, reduce costs, enhance staff satisfaction and recruiting.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"339-351"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143524565","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Evoking Brecht's A Worker's Speech to a Doctor: developing clinical skills, deepening understanding and promoting action on living and working conditions, or mobilisation for system reform or transformation? 唤起布莱希特的《工人对医生的演讲》：发展临床技能，加深对生活和工作条件的理解并促进行动，还是动员系统改革或转型？

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013159

Humairaa Karodia, William MacGregor, Dennis Raphael

{"title":"Evoking Brecht's A Worker's Speech to a Doctor: developing clinical skills, deepening understanding and promoting action on living and working conditions, or mobilisation for system reform or transformation?","authors":"Humairaa Karodia, William MacGregor, Dennis Raphael","doi":"10.1136/medhum-2024-013159","DOIUrl":"10.1136/medhum-2024-013159","url":null,"abstract":"Bertolt Brecht's 1938 poem 'A Worker's Speech to a Doctor' has been used by health educators to direct attention to the health-threatening effects of adverse living and working conditions. However, to date there has not been a systematic analysis of these evocations and their goals (eg, develop clinical skills through promotion of empathy, encourage action to improve living and working conditions, and/or calls for broad societal mobilisation for systemic reform or even replacement). Of particular concern and relevance is the context in which this poem is mentioned, how it was applied, and whether it is presented in fragments or its entirety, thereby leaving intact Brecht's critique of the capitalist economic system and its role in creating illness as well as the Doctor's complicity in this same system. This investigation revealed that while most of the 56 instances found in books, book chapters, journal articles, presentations, and blogs did draw attention to how living and working conditions shape health and in many cases their public policy antecedents, most did not include the entire poem, leaving out Brecht's critique and blunting his message. We suggest 'A Worker's Speech' and other Brecht's poems as a rich source for reflection, discussion, and action to promote health by health and social services workers, researchers, community activists, and the public.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"386-396"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Critical retelling of dental ethics told through 'George Washington's Complete Denture'. 通过《乔治·华盛顿的全口假牙》对牙科伦理的批判性重述。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-013151

Eleanor Fleming, Patricia Neville

{"title":"Critical retelling of dental ethics told through 'George Washington's Complete Denture'.","authors":"Eleanor Fleming, Patricia Neville","doi":"10.1136/medhum-2024-013151","DOIUrl":"10.1136/medhum-2024-013151","url":null,"abstract":"Dental ethics is a specialised branch of dentistry addressing ethical issues in dental practice. However, dental ethics and diversity are thought to be at odds within the practice of dentistry. Dentistry centres on ethical clinical practices which assume dental ethics are both value neutral and singular with no need for diverse perspectives. Dental ethics are thought to be static, and yet, they are dynamic and problematic in terms of values in dentistry: cosmetic dentistry and its aim for a white smile and the dentist as a clinician, businessperson when there are glaring oral health disparities in communities. In this paper, we use the artefact of George Washington's complete dentures to tell an alternative story of dentistry that demonstrates just how ethics and diversity are relevant to dentistry. As two dental educators and social scientists, we bring an interdisciplinary praxis to problematise dental ethics and reframe it through a diversity lens. Instead of having a monolithic discourse of dental ethics, we invite critical reflectivity to decentre white, Eurocentric bioethics. Using the implosion method, we deconstruct this dental object to connect it with global history, centring key ethical dilemmas often missed in dental ethics: settler colonialism, biopolitics, whiteness, power and racial capitalism. Every country has its own myth-making, and part of US oral health lore is this complete denture from the country's first president. The denture is problematic because it is possibly composed of teeth from enslaved African people. Unnamed African people are removed from history, and yet their teeth are national lore. As an object, the denture is not a mere artefact of history, but is celebrated to show a nation's founding father's connection to a profession. To celebrate the denture without appreciating these ethical dilemmas is to miss the importance of critically engaging history and context in both oral health practice and dental education.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"376-385"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143674744","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Negotiating uncertainties: care-seeking in an algorithmic society. 协商不确定性：算法社会中的求医。

IF 1.2 3区社会学

Medical Humanities Pub Date : 2025-08-21 DOI: 10.1136/medhum-2024-012921

Rui Liu, Susanne Lundin, Emma Eleonorasdotter

{"title":"Negotiating uncertainties: care-seeking in an algorithmic society.","authors":"Rui Liu, Susanne Lundin, Emma Eleonorasdotter","doi":"10.1136/medhum-2024-012921","DOIUrl":"10.1136/medhum-2024-012921","url":null,"abstract":"This article examines how different layers of health-related uncertainties emerge and intersect in an algorithmic society. We aim to understand how people's self-care practices co-evolve with digitalised health systems. Sweden stands out among Western countries due to the population's high digital consumption of medical and health products. We conceptualise health-related uncertainties as inherent in care-seeking. The uncertainties are embedded in an algorithmic society and hinge on what we term algorithmised medicine. Methods used are open-ended questionnaires and semistructured interviews with Swedish residents. We identify: First, people are aware of algorithm-embedded digital infrastructure and its impact on information access in everyday life. Second, people oscillate on a trust-distrust nexus in different contexts. And third, lived experiences of the body compete with medical advice and online information. We conclude that while formal health systems strive to be robust, access to medicines remains an uncertain practice at the interplay of medicine, algorithms and bodily experiences of sickness. This study contributes to the field of medical humanities by showing that the digital arena is a porous and emergent entity, with inseparable links to people's lived experiences.","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"415-422"},"PeriodicalIF":1.2,"publicationDate":"2025-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12421103/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0