Research Ethics最新文献_第3页

Who owns your consent? How REBs give away participants’ agency 谁拥有你的同意?reb如何放弃参与者的代理权

IF 1.7

Research Ethics Pub Date : 2023-06-14 DOI: 10.1177/17470161231180829

Janice Aurini, V. Iafolla

引用次数: 0

Reshaping consent so we might improve participant choice (II) – helping people decide 重塑同意，这样我们就可以改善参与者的选择(二)——帮助人们做决定

IF 1.7

Research Ethics Pub Date : 2023-06-12 DOI: 10.1177/17470161231176932

H. Davies, Rosie Munday, Maeve O’Reilly, Catriona Gilmour Hamilton, Arzhang Ardahan, S. Kolstoe, K. Gillies

引用次数: 0

Research ethics committee members’ perspectives on paediatric research: a qualitative interview study 研究伦理委员会成员对儿科研究的看法:一项定性访谈研究

IF 1.7

Research Ethics Pub Date : 2023-06-12 DOI: 10.1177/17470161231179663

Kajsa Norberg Wieslander, A. Höglund, Sara Frygner-Holm, T. Godskesen

引用次数: 0

Afterlife: the post-research affect and effect of software 来世:软件的后研究影响和效果

IF 1.7

Research Ethics Pub Date : 2023-06-10 DOI: 10.1177/17470161231178450

Nicolas E. Gold, Ian Lawson, N. Oxtoby

引用次数: 0

Deception and informed consent in studies with incognito simulated standardized patients: empirical experiences and a case study from South Africa 在模拟匿名标准化患者的研究中的欺骗和知情同意:经验经验和来自南非的案例研究

IF 1.7

Research Ethics Pub Date : 2023-05-22 DOI: 10.1177/17470161231174734

B. Daniels, J. Boffa, A. Kwan, S. Moyo

{"title":"Deception and informed consent in studies with incognito simulated standardized patients: empirical experiences and a case study from South Africa","authors":"B. Daniels, J. Boffa, A. Kwan, S. Moyo","doi":"10.1177/17470161231174734","DOIUrl":"https://doi.org/10.1177/17470161231174734","url":null,"abstract":"Simulated standardized patients (SPs) are trained individuals who pose incognito as people seeking treatment in a health care setting. With the method’s increasing use and popularity, we propose some standards to adapt the method to contextual considerations of feasibility, and we discuss current issues with the SP method and the experience of consent and ethical research in international SP studies. Since a foundational discussion of the research ethics of the method was published in 2012, a growing number of studies have implemented this method to collect data on the quality of care in a variety of settings around the world. We draw from that experience to provide empirical foundations for a popular approach to ethical approval of such studies in the United States and Canada, which has been to obtain a waiver of informed consent from the health care providers who are the subjects of the research. However, the majority of studies to date have evaluated quality of care outside the U.S., requiring additional ethical consideration when partnering with international institutions. We discuss these considerations in the context of a case study from a completed SP study in South Africa, where informed consent is constitutionally protected.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"177 1","pages":"341 - 359"},"PeriodicalIF":1.7,"publicationDate":"2023-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"74943045","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Systemic disruptions: decolonizing indigenous research ethics using indigenous knowledges 系统性破坏:利用本土知识去殖民化本土研究伦理

IF 1.7

Research Ethics Pub Date : 2023-04-20 DOI: 10.1177/17470161231169205

C. Fournier, S. Stewart, Joshua Adams, Clayton Shirt, Esha Mahabir

引用次数: 1

Researchers’ reflections on ethics of care as decolonial research practice: understanding Indigenous knowledge communication systems to navigate moments of ethical tension in rural Malawi 研究人员对护理伦理作为非殖民化研究实践的反思:理解土著知识传播系统，以导航马拉维农村伦理紧张的时刻

IF 1.7

Research Ethics Pub Date : 2023-04-14 DOI: 10.1177/17470161231169484

Mtisunge Isabel Kamlongera, Mkotama W Katenga-Kaunda

{"title":"Researchers’ reflections on ethics of care as decolonial research practice: understanding Indigenous knowledge communication systems to navigate moments of ethical tension in rural Malawi","authors":"Mtisunge Isabel Kamlongera, Mkotama W Katenga-Kaunda","doi":"10.1177/17470161231169484","DOIUrl":"https://doi.org/10.1177/17470161231169484","url":null,"abstract":"This article is autoethnographic, based upon the authors’ experiences and reflections upon encountered moments of ethical tension whilst conducting research in rural Malawi. Given that knowledge production, as a process, has been marred by colonial forms of power, the project was underpinned by efforts to achieve a decolonial approach to the research, including the research ethics. The authors share of their endeavours to counterbalance the challenges of power asymmetries whilst researching and working with an Indigenous community whose reality can be marginalised by the Western canon. The authors attempted to ensure that the values and customs of the researched community were respected and central to the research approach. When researchers are guided by local culture and customs, the participants are able to drive the research approach, incorporate their voice and share knowledge that is true to their context and reality. In this way, the research study is illustrative of how an ethics of care can help to facilitate decolonial research practice.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"57 1","pages":"312 - 324"},"PeriodicalIF":1.7,"publicationDate":"2023-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"85964180","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Research Responsibility Agreement: a tool to support ethical research 研究责任协议:支持伦理研究的工具

IF 1.7

Research Ethics Pub Date : 2023-04-07 DOI: 10.1177/17470161231166600

M. Murdock, Stephanie Erickson

{"title":"Research Responsibility Agreement: a tool to support ethical research","authors":"M. Murdock, Stephanie Erickson","doi":"10.1177/17470161231166600","DOIUrl":"https://doi.org/10.1177/17470161231166600","url":null,"abstract":"When engaging in community-based research, it is important to consider ethical research practices throughout the project. While current research practices require many investigators to obtain approval from an ethics review board before starting a project, more is required to ensure that ethical principles are applied once the investigations begin and after the investigations are complete. In response to this concern, as expressed by workers at a feminist non-profit during a community placement, we developed a tool to foster both greater ethical and feminist research practice in community-based research. Using feminist theories, methodologies, and concepts such as epistemic justice, epistemic trust, and coauthorship, a tool was developed to support researchers and other collaborators in building relationships of reciprocity. This tool, called the Research Responsibility Agreement (RRA) invites all members of a research project to explicitly reflect on their role in the research, their relationships with other collaborators, their responsibility to contributing meaningfully in the project, and their plans to remain accountable to one another. In doing so, the RRA adds to existing tools that support ethical research by sharing explicit reflections from all collaborators on how to prevent harm and by asking them to reflect on ethical practices beyond the initial stages of the project. The RRA also encourages greater engagement from researchers and collaborators toward building meaningful relationships with each other, and with participants, to work together in advancing social change. As a practical tool that promotes reflection, that builds relationships, and that holds all parties accountable to ethical and feminist research practices, the RRA has the potential to generate impactful change in community-based research projects and beyond. While the RRA is tailored to community-based research, it can be applied widely to any research project and has the potential to revolutionize how research relationships are built across disciplines.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"12 1","pages":"288 - 311"},"PeriodicalIF":1.7,"publicationDate":"2023-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84817675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Cannabis, research ethics, and a duty of care 大麻，研究伦理，和照顾义务

IF 1.7

Research Ethics Pub Date : 2023-04-07 DOI: 10.1177/17470161231164530

J. Wheeldon, J. Heidt

{"title":"Cannabis, research ethics, and a duty of care","authors":"J. Wheeldon, J. Heidt","doi":"10.1177/17470161231164530","DOIUrl":"https://doi.org/10.1177/17470161231164530","url":null,"abstract":"Despite growing evidence to the contrary, researchers continue to posit causal links between cannabis, crime, psychosis, and violence. These spurious connections are rooted in history and fueled decades of structural limitations that shaped how researchers studied cannabis. Until recently, research in this area was explicitly funded to link cannabis use and harm and ignore any potential benefits. Post-prohibition cannabis research has failed to replicate the dire findings of the past. This article outlines how the history of controlling cannabis research has led to various harms, injustices, and ethical complications. We compare commonly cited research from both the prohibition and post-prohibition eras and argue that many popular claims about the dangers of cannabis are the result of ethical lapses by researchers, journals, and funders. We propose researchers in this area adopt a duty of care in cannabis research going forward. This would oblige individual researchers to establish robust research designs, employ careful analytic strategies, and acknowledge limitations in more detail. This duty involves the institutional recognition by funders, journals, and others that cannabis research has been deliberately misconstrued to criminalize, stigmatize, and pathologize.","PeriodicalId":38096,"journal":{"name":"Research Ethics","volume":"12 1","pages":"250 - 287"},"PeriodicalIF":1.7,"publicationDate":"2023-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"80705854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Disclosing and Managing Non-Financial Conflicts of Interest in Scientific Publications. 科学出版物中非财务利益冲突的披露与管理。

IF 1.7

Research Ethics Pub Date : 2023-04-01 DOI: 10.1177/17470161221148387

David B Resnik

引用次数: 2