Journal of Communication in Healthcare最新文献

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Improving patient-clinician communication about sexual health care among cancer patients and survivors: the need for system-level resources to support clinician practice. 改善癌症患者和幸存者之间关于性保健的医患沟通:需要系统级资源来支持临床医生的实践。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-04-16 DOI: 10.1080/17538068.2026.2656971
Julia Stal, Serena Y Yi, Phuong Gallagher, David R Freyer, Kimberly A Miller
{"title":"Improving patient-clinician communication about sexual health care among cancer patients and survivors: the need for system-level resources to support clinician practice.","authors":"Julia Stal, Serena Y Yi, Phuong Gallagher, David R Freyer, Kimberly A Miller","doi":"10.1080/17538068.2026.2656971","DOIUrl":"https://doi.org/10.1080/17538068.2026.2656971","url":null,"abstract":"","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-5"},"PeriodicalIF":1.7,"publicationDate":"2026-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient-centered communication and psychological well-being among patients with chronic medical conditions. 慢性疾病患者以患者为中心的沟通与心理健康
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-09 DOI: 10.1080/17538068.2026.2640308
Asos Mahmood, Nikhil A Ahuja, Satish Kedia, Coree Entwistle
{"title":"Patient-centered communication and psychological well-being among patients with chronic medical conditions.","authors":"Asos Mahmood, Nikhil A Ahuja, Satish Kedia, Coree Entwistle","doi":"10.1080/17538068.2026.2640308","DOIUrl":"https://doi.org/10.1080/17538068.2026.2640308","url":null,"abstract":"<p><strong>Background: </strong>Chronic medical conditions (CCs) are the leading causes of morbidity and mortality in the U.S. Patients with CCs often experience anxiety, depression, and other mental or emotional health problems. Although patient-centered communication (PCC) practice may address mental health needs through opportunities for emotional expression, reassurance, and support, there is limited evidence on the effects of PCC on the psychological well-being of patients with CCs.</p><p><strong>Methods: </strong>Pooled cross-sectional data were extracted from the U.S. National Cancer Institute's Health Information National Trends Survey (HINTS5; Cycles 1-4; 2017-2020) for 9,199 respondents (≥18 years, reported ≥1 CC, non-Hispanic White = 65.7%). PCC was measured on a composite score scale (0-100). Psychological distress (anxiety and depression) was assessed using the Patient Health Questionnaire-4 (PHQ-4). We performed multivariable logistic regressions to investigate associations between PCC and psychological distress.</p><p><strong>Results: </strong>Nearly 20.4% of the patients experienced clinically significant anxiety, and 18.0% experienced depressive symptoms. With each additional unit increase on the PCC score scale, the odds of experiencing anxiety (aOR = 0.992; 95% CI: 0.986, 0.998) and depression (aOR = 0.989; 95% CI: 0.984, 0.995) decreased by approximately 1%.</p><p><strong>Conclusions: </strong>Our findings revealed that enhanced PCC is associated with reduced odds of anxiety and depression among patients with CCs. Integrating holistic care models will be crucial to addressing the complex needs of patients with CCs. Policymakers and healthcare providers could expand training programs to strengthen PCC skills and potentially enhance the mental well-being of patients with chronic medical conditions.</p><p><strong>Plain language abstract: </strong>This study examines the potential impacts of patient-centered communication (PCC) on mental health among patients with chronic disease. Analyzing data obtained from a U.S. national survey, the findings demonstrate that improved PCC is associated with lower levels of anxiety and depression. This suggests that healthcare providers' active engagement and more effective communication with patients can potentially improve their mental health and well-being. The findings highlight the importance of training healthcare providers in PCC practice to enhance the overall care and mental health of patients with chronic disease. Additionally, this research advocates implementing patient-centered, holistic care models to address both the physical and mental health needs of patients with chronic disease.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"1-12"},"PeriodicalIF":1.7,"publicationDate":"2026-03-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147379052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Pilot testing of an online cultural competency training utilizing an intersectionality framework. 利用交叉性框架的在线文化能力培训试点测试。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-08-20 DOI: 10.1080/17538068.2025.2547501
Charee M Thompson, Mardia J Bishop, Joseph M Maurice, Emily R Gerlikovski, Emily A Mendelson, Sara Babu, Tamika Alexander, Dan Cermak
{"title":"Pilot testing of an online cultural competency training utilizing an intersectionality framework.","authors":"Charee M Thompson, Mardia J Bishop, Joseph M Maurice, Emily R Gerlikovski, Emily A Mendelson, Sara Babu, Tamika Alexander, Dan Cermak","doi":"10.1080/17538068.2025.2547501","DOIUrl":"10.1080/17538068.2025.2547501","url":null,"abstract":"<p><strong>Background: </strong>Current cultural competency training aiming to decrease implicit bias amongst medical students, residents, and physicians shows mixed effectiveness. To address limitations in existing training, the authors developed an online training (a) grounded in an intersectional approach to patients' identities and the disparities they experience; and (b) focused on communication skills. The authors hypothesized that the training would increase learners' knowledge, attitudes, and communication efficacy.</p><p><strong>Methods: </strong>The authors developed an online training comprising modules on foundational concepts, communication skills, and population 'spotlights.' This first training iteration spotlights Black maternal health. Seventeen medical students, residents, and physicians completed a pre-training survey, the online training, and a post-training survey. The authors conducted paired samples t-tests in SPSS 28.0 statistical software to compare pre- and post-training scores for knowledge, attitudes toward addressing implicit bias and cultural competency, and communication efficacy, and analyzed closed-ended and open-ended responses to training evaluation items.</p><p><strong>Results: </strong>Significant increases in the outcome variables - knowledge, attitudes toward addressing implicit bias and cultural competency, and communication efficacy - occurred. Participants evaluated the training as effective overall, useful, and engaging, and provided feedback for improvements.</p><p><strong>Conclusions: </strong>The findings demonstrate that training centering on intersectionality, paired with skills-focused education, can enhance knowledge, attitudes, and communication efficacy.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"47-55"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144883994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Active offer of services in Canada's official languages: development of a patient experience questionnaire. 积极提供加拿大官方语言的服务:制定患者体验问卷。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2026-01-14 DOI: 10.1080/17538068.2025.2612396
Katrine Sauvé-Schenk, Sarah Pignac, Solange van Kemenade, Sébastien Savard, Denis Prud'homme, Jacinthe Savard
{"title":"Active offer of services in Canada's official languages: development of a patient experience questionnaire.","authors":"Katrine Sauvé-Schenk, Sarah Pignac, Solange van Kemenade, Sébastien Savard, Denis Prud'homme, Jacinthe Savard","doi":"10.1080/17538068.2025.2612396","DOIUrl":"10.1080/17538068.2025.2612396","url":null,"abstract":"<p><strong>Background: </strong>In the bilingual Canadian context, the use of a preferred official language with healthcare providers is linked to optimized communication, respectful patient-centered care, improved safety and quality of services. This study aimed to develop and test a questionnaire that measures patients' experience of how language was considered during an outpatient health encounter.</p><p><strong>Methods: </strong>French and English questions were drafted based on a literature review. Questionnaire content and flow were validated through focus groups with experts and service users. Question understanding and clarity was verified with cognitive interviews and pre-tests with diverse service users. The final questionnaire was pilot tested in three health organizations and temporal stability, and construct validity was verified.</p><p><strong>Results: </strong>Participants were nine anglophone and eleven francophone experts and service users for the focus groups, six anglophone and six francophone service users for the cognitive interviews, eleven anglophone and ten francophone service users for the pre-test. The resulting questionnaire has 31 experience-related questions organized under six themes: arrival/greeting, interpretation and translation services, language of health services, relationship with healthcare providers, visibility of official languages and follow-up. The questionnaire is completed online in French or English. The questionnaire was pilot tested with 199 participants in three sites. Temporal stability was moderate to good. Initial evidence of construct validity was demonstrated, suggesting that the questionnaire is adequate to evaluate patient experience.</p><p><strong>Conclusion: </strong>This questionnaire is the first known bilingual patient-experience tool, focused on the active offer of services in official languages during outpatient healthcare encounters, with preliminary validation.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"64-75"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145967366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A culturally relevant sexual health campaign for Latino gay and bisexual men in a Southern U.S. Metropolitan area. 美国南部都市地区拉丁裔同性恋和双性恋男性的文化相关性健康运动。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-09-30 DOI: 10.1080/17538068.2025.2565066
Carlos S Saldana, Lily Bonadonna, Raúl Perez, Karina I Gonzalez, Jane Y Scott, Joshua O'Neal, Gigi Pedraza, Sergio Mendez, Sebastian Gonzalez, Mario Zuluaga, Tania Negrete, Julieta Luciani, Eric Rangel, David P Holland, Valeria D Cantos
{"title":"A culturally relevant sexual health campaign for Latino gay and bisexual men in a Southern U.S. Metropolitan area.","authors":"Carlos S Saldana, Lily Bonadonna, Raúl Perez, Karina I Gonzalez, Jane Y Scott, Joshua O'Neal, Gigi Pedraza, Sergio Mendez, Sebastian Gonzalez, Mario Zuluaga, Tania Negrete, Julieta Luciani, Eric Rangel, David P Holland, Valeria D Cantos","doi":"10.1080/17538068.2025.2565066","DOIUrl":"10.1080/17538068.2025.2565066","url":null,"abstract":"<p><strong>Background: </strong>In Atlanta, HIV incidence is rising among Latino gay and bisexual cisgender men (LGBM). LGBM face unique barriers to accessing sexual health services, such as limited availability of culturally appropriate information. We developed a culturally relevant sexual health campaign aimed at enhancing service access in this group.</p><p><strong>Methods: </strong>Using qualitative methods, a two-phase approach was applied to conduct focus group discussions (FGDs) with key informants and LGBM. Phase 1 designed the campaign with input from marketing experts and community leaders. Phase 2 refined it based on LGBM feedback.</p><p><strong>Results: </strong>Key themes emphasized expert collaboration and LGBM engagement for creating clear messages, using trusted channels, and regularly evaluating and refining the campaign. Emphasis was also on avoiding stereotypes and addressing financial and immigration concerns.</p><p><strong>Conclusion: </strong>We offer a framework for developing a community-focused sexual health campaign to support public health efforts and improve service access for LGBM.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"56-63"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12921569/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145193421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Shifting sands: advocating for health equity in precarious times. 流沙:在不稳定时期倡导卫生公平。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2026-03-16 DOI: 10.1080/17538068.2026.2633034
Renata Schiavo
{"title":"Shifting sands: advocating for health equity in precarious times.","authors":"Renata Schiavo","doi":"10.1080/17538068.2026.2633034","DOIUrl":"https://doi.org/10.1080/17538068.2026.2633034","url":null,"abstract":"","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":"19 1","pages":"1-3"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147469500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A health literate evaluation of a reproductive health education program for young men with sickle cell disease. 对镰状细胞病青年男子生殖健康教育方案的健康素养评价。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-04-11 DOI: 10.1080/17538068.2025.2490419
Megan M Griffith, Joseph Walden, Sophia M Liles, Zachary A Colton, Mary Ann Abrams, Ben McCorkle, Albert Phillips, Toyetta Barnard-Kirk, Leena Nahata, Susan E Creary
{"title":"A health literate evaluation of a reproductive health education program for young men with sickle cell disease.","authors":"Megan M Griffith, Joseph Walden, Sophia M Liles, Zachary A Colton, Mary Ann Abrams, Ben McCorkle, Albert Phillips, Toyetta Barnard-Kirk, Leena Nahata, Susan E Creary","doi":"10.1080/17538068.2025.2490419","DOIUrl":"10.1080/17538068.2025.2490419","url":null,"abstract":"<p><strong>Background: </strong>Health literacy (HL) is known to be low among those with sickle cell disease (SCD). Reproductive health knowledge gaps exist among those with SCD, which drove the research team to create an education tool for adolescent males entitled, 'Fertility edUcaTion to Understand ReproductivE health in Sickle cell disease' (FUTURES) in 2023. This study sought to evaluate and revise FUTURES using HL tools and a community-advised review to improve clarity, understandability, actionability, and relatability.</p><p><strong>Methods: </strong>Four evaluators conducted a HL assessment of the original and revised FUTURES programs using the Patient Education Assessment Tool for Audio/Visual Materials (PEMAT-AV) and the modified Centers for Disease Control and Prevention Clear Communication Index (CDC-CCI-modified). Paired samples t-tests were used to compare PEMAT-AV and CDC-CCI-modified scores between the original and revised versions of FUTURES. Community advisory board feedback identified opportunities to improve program design.</p><p><strong>Results: </strong>HL assessment revealed high HL demand of the original FUTURES program. The revised program had significantly higher understandability and clarity scores and was re-designed to be more engaging and representative of the intended audience. However, the CDC-CCI-modified score fell below the recommended threshold and actionability remained unchanged.</p><p><strong>Conclusions: </strong>This study outlined an approach that prioritized HL and community voices when revising an education tool, which could be used in future efforts to design accessible and relatable patient education materials for this population and others. More work is needed to evaluate the impact of the HL revision process on patient knowledge and outcomes for this and other at-risk patient populations.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"4-12"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12353084/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144022694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adoption of contact-tracing mobile applications in Japan: the relationship with source credibility and privacy. 在日本采用接触者追踪手机应用程序:与来源可信度和隐私的关系。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-10-30 DOI: 10.1080/17538068.2025.2577426
Mariko Morimoto
{"title":"Adoption of contact-tracing mobile applications in Japan: the relationship with source credibility and privacy.","authors":"Mariko Morimoto","doi":"10.1080/17538068.2025.2577426","DOIUrl":"10.1080/17538068.2025.2577426","url":null,"abstract":"<p><strong>Background: </strong>Contact-tracing apps were introduced globally during the COVID-19 pandemic but saw limited adoption, hindering their effectiveness. This study, based on privacy calculus theory [Culnan MJ, Armstrong PK. Information privacy concerns, procedural fairness, and impersonal trust: an empirical investigation. Organiz Sci. 1999;10(1):104-15], examines how information source credibility and perceived privacy affect Japanese people's intention to adopt these apps. It also explores the moderating effects of trust in government and source credibility on this relationship and identifies the types of information influencing app adoption and perceived credibility.</p><p><strong>Method: </strong>An online survey was conducted with 400 Japanese Internet users aged 20-69, using a panel from a Tokyo-based marketing research firm. The sample was gender-balanced.</p><p><strong>Results: </strong>Participants identified 11 information sources for app adoption, with mass media being the primary source, followed by the national government, related ministries, and local government. Primary physicians were deemed the most credible source, followed by family, friends, and well-known physicians and scientists. The study found direct effects of source credibility and perceived privacy on app adoption intention and a moderating effect of source credibility on this relationship. However, trust in government did not moderate the relationship.</p><p><strong>Conclusion: </strong>This study highlights the importance of privacy and source credibility in influencing behavioral outcomes, emphasizing their role in the successful adoption of new technologies during future pandemics.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"13-24"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145402299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of a mental health promotion workbook for increasing knowledge and encouraging behavior changes. 对增加知识和鼓励行为改变的心理健康促进工作手册的评价。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-08-05 DOI: 10.1080/17538068.2025.2532296
Takashi Shimazaki, Takashi Yamauchi, Hironori Shimada, Machi Suka
{"title":"Evaluation of a mental health promotion workbook for increasing knowledge and encouraging behavior changes.","authors":"Takashi Shimazaki, Takashi Yamauchi, Hironori Shimada, Machi Suka","doi":"10.1080/17538068.2025.2532296","DOIUrl":"10.1080/17538068.2025.2532296","url":null,"abstract":"<p><strong>Background: </strong>The need to develop resources that promote mental health was more vital for preventing anxiety and depression and maintaining mental healthcare services during the prolonged COVID-19 pandemic. This study aimed to develop a mental health promotion workbook and confirm its feasibility.</p><p><strong>Methods: </strong>An online-based post-only assessment design trial of the workbook was conducted in December 2021. A total of 381 Japanese participants took part in the study. Data regarding how the participants perceived the message relevance of the workbook were assessed. In total, 54.9% of participants recognized the relevance of the workbook message.</p><p><strong>Results: </strong>Female (adjusted OR odds ratio [OR] = 1.63, 95% confidence interval [CI] = 1.03-2.59), participants with a higher disposable income (adjusted OR = 2.12, 95%CI = 1.35-3.34), and those who practiced mental health promotion behaviors (adjusted OR = 1.91, 95%CI = 1.20-3.02) most perceived the workbook message to be relevant. Favorably evaluated workbook content included knowledge of stress (53.6%) and patterns of leisure activities (48.3%). Manga-style information was favorably assessed by 20-29-year-olds. In addition, three assessment patterns of favorably evaluated content emerged: positive evaluations of all content, knowledge of stress content, and content related to behavior changes.</p><p><strong>Conclusion: </strong>The mental health promotion workbook developed in this study may contribute to increasing individuals' knowledge and interest in mental health following the COVID-19 period.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"33-46"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144785529","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Online community discourse on spinal cord injury research. 关于脊髓损伤研究的在线社区讨论。
IF 1.7
Journal of Communication in Healthcare Pub Date : 2026-03-01 Epub Date: 2025-04-19 DOI: 10.1080/17538068.2025.2491968
Salwa B A Malhas, Tanya A Barretto, Judy Illes
{"title":"Online community discourse on spinal cord injury research.","authors":"Salwa B A Malhas, Tanya A Barretto, Judy Illes","doi":"10.1080/17538068.2025.2491968","DOIUrl":"10.1080/17538068.2025.2491968","url":null,"abstract":"<p><strong>Background: </strong>Public perceptions of spinal cord injury (SCI) research can influence trust in scientific advancements and therapeutic interventions. Social media is a useful tool to provide insight into these perceptions and related values. This study examines comments to posts pertaining to SCI research reports on a widely used social media platform.</p><p><strong>Method: </strong>We used search term 'spinal cord injury' to collect posts and associated top-level comments spanning 2016-2023 from Reddit. Posts were included if they contained research reports on one of the following SCI interventions: biologic and synthetic materials; devices and technologies; physical and behavioral interventions; and pharmacological treatments. Each unique comment per Reddit post was coded for user self-identification, format, intervention, topic, and tone.</p><p><strong>Results: </strong>We retrieved and analyzed 994 comments from 24 posts<b><i>.</i></b> Key topics of interest were: scientific progress (52%, 514/994), study details (30%, 301/994), and ethical implications (24%, 237/994) across interventions. Comments were generally neutral in tone. Fifty-four comments were made by users who self-identified as persons with lived experience of a spinal cord-related condition. Ethics-related comments (237/994) were focused on the themes of access (35%, 84/237) and beneficence (24%, 58/237).</p><p><strong>Conclusion: </strong>The SCI community is actively using the social media platform Reddit to seek information about research and its ethical dimensions. Across users, a significant proportion of comments are on research progress, ethics and study information. The largest proportion of ethics-focused comments by self-identifiers are on agency, and then equally on access, values, and resilience; ethics-related comments by non-self-identifiers focus on access, and beneficence.</p>","PeriodicalId":38052,"journal":{"name":"Journal of Communication in Healthcare","volume":" ","pages":"25-32"},"PeriodicalIF":1.7,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143988530","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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