{"title":"Abstract A17: [Advocate Abstract:] Culturally sensitive outreach for clinical trials and research studies is key to addressing biologic contributors to health disparities","authors":"J. Holloway","doi":"10.1158/1538-7755.DISP17-A17","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-A17","url":null,"abstract":"Background: I will present a quick look at outcome disparities and some specific cases where there is a clear biologic basis for outcome disparities in cancer. It would also be relevant to look at some statistics of the racial makeup of participants in clinical trials. Data: I will incorporate the survey results from a high school student (who will be listed as a coauthor) that will address attitudes toward clinical trial participation, stratified by race. I will also present some of the strategies that a team I am leading at Howard University hopes to employ as they use social media and local outreach to increase enrollment of African American patients in the MBC project. Citation Format: Jamie Holloway. [Advocate Abstract:] Culturally sensitive outreach for clinical trials and research studies is key to addressing biologic contributors to health disparities [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr A17.","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"277 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116164527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Marisela Garcia, M. Serrano, Alejandro Fernandez, Katty Nerio, K. Ashing
{"title":"Abstract A25: Community research navigators: The bridge to increasing ethnic minority participation in clinical research","authors":"Marisela Garcia, M. Serrano, Alejandro Fernandez, Katty Nerio, K. Ashing","doi":"10.1158/1538-7755.DISP17-A25","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-A25","url":null,"abstract":"The participation of underserved ethnic minorities in clinical research is critical to achieving progress in cancer control. Ethnic minority patient accrual in clinical trials is a formidable challenge that requires patient trust, commitment, and overcoming of barriers. Racial and ethnic minorities make up about 40% of the United States population, yet are not well represented in research studies. Less than 10% of all patients with cancer enrolled in clinical trials are minorities. Diverse participation may lead to more generalizable results for under-represented groups, more best practices for prevention and treatment to specific minority groups, increase in knowledge and awareness of disparities about cancer, and a more accurate reflection of the United States9 increasingly diverse population. Although there is a proliferation of patient navigation programs to increase health care among the underserved, there is little known on its potential effects as a strategy to enhance minority clinical trial and biospecimen accrual. City of Hope has built a functional and sustainable program for addressing health inequity, which includes training a network of community research navigators (CRN) to address gaps in knowledge, medical mistrust, and access, and navigate participation and engagement of under-represented groups in research. The research navigator program draws from the patient navigation and promotora model and is a novel and innovative application to this approach. This approach has utility and applicability to address research participation barriers, including trust and referrals. It promises sustainability and cost effectiveness as trained CRNs can deliver the program. The Community Research Navigator (CRN) project enhances community advocates9 capacity by training community health leaders/promotoras as community research navigators (CRN) to widen the dissemination of the clinical trial and research participation enrollment for increased ethnic minority participation in clinical trials and health-related research. CRNs attended a 1-day training on clinical trials and research. The training included educating and encouraging individuals to proactively think about and discuss clinical trial participation with their family, friends, and health care providers; disseminating information about specific research studies, targeting the African and Latino communities; and referring individuals to specific biospecimen, clinical trials, and population studies. In total, we trained and mentored a team of 14 CRNs. Participants were 24-66 years old; most were female (86%), Latino (69%), and single (43%). After participating in the training, participants were more likely to correctly define HIPAA (p=.040) and the types of clinical trials (p=.038). In addition, CRNs were more likely to encourage clinical research participation among their family after the training (p=0.034). Further, we measured confidence in various domains, including: increase in confiden","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"129591752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Abstract C19: [Advocate Abstract:] Patient advocate program","authors":"Sandi Stanford","doi":"10.1158/1538-7755.DISP17-C19","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-C19","url":null,"abstract":"The poster will be the history, education, qualifications, scholarships for the Patient Advocate Program. It will include how it was developed, education programs, mentor program, qualifications, and responsibilities. Citation Format: Sandi Stanford. [Advocate Abstract:] Patient advocate program [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr C19.","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"79 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121171923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Klassen, A. Leader, A. Martinez-Donate, A. Villanueva, Suzanne Grossman, U. Perera, T. Lhamo, H. Juon
{"title":"Abstract B02: News they can use? The portrayal of breast cancer risk and prevention in print news and popular press for young women","authors":"A. Klassen, A. Leader, A. Martinez-Donate, A. Villanueva, Suzanne Grossman, U. Perera, T. Lhamo, H. Juon","doi":"10.1158/1538-7755.DISP17-B02","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-B02","url":null,"abstract":"Background: Inherited risk accounts for only 5-10% of breast cancers; furthermore, there is growing evidence regarding strategies for reduction of risk for breast cancer through primary prevention, including healthful diet, physical activity and body size, avoidance of alcohol and possibly tobacco, and breast feeding when possible. Although the median age of breast cancer diagnosis is 61, and there are likely unidentified critical time periods for each exposure, women may benefit most by establishing healthful behaviors early in life and maintaining them across adulthood. However, it is not well known how breast cancer risk and prevention is presented to young women, and how sources such as the media influence susceptibility, self-efficacy, and preventive behaviors, especially across diverse groups. Approach: Within a multiphase exploratory study, we analyzed a purposive sample of 79 examples from 2003-2017, U.S. and international English language print news, popular press, and websites targeted to young women from diverse ethnic and sexual identity backgrounds. Stories were coded, using both structured codes and qualitative memoing methods. Here, we focus on the extent to which news and popular stories contained messages congruent with prevention recommendations. Results: Our sample of stories included 43 from 29 different standard news sources, 32 from 10 popular magazines, and 1 from each of 4 websites. Stories appeared in both general-audience as well as ethnically targeted media, including O, Jet, Korean Times, and Philippines Today. Thirty-four percent of stories featured a personal narrative from someone experiencing breast cancer, or at risk, and celebrities were mentioned or quoted in 9% of stories. Groups mentioned for excess risk most often were those with family histories (19% of stories), followed by African-Americans (15%), poor women (14%), Latina women (10%), and Asian women (9%). Excess risk for LGBT women was mentioned in only 4% of stories. Forty three percent of stories had a positive prevention and/or survivorship tone, and only 15% had fear-inducing or fatalistic content without any actionable prevention recommendations. The top prevention strategies mentioned included diet (24%), exercise (22%), avoiding overweight/staying lean (22%), learning family history (20%), and limiting alcohol intake (19%). However, despite this generally positive content, our qualitative content analysis found that stories also tended to overemphasize young-onset breast cancers, without clarifying the age distribution of the disease, emphasized mammography screening and secondary over primary prevention, overemphasized hereditary risk, highlighted race-based differences, and contained frequent mentions of “magic bullet” prevention approaches, such as specific foods and supplements, rather than broader dietary strategies. Findings point to many areas for improved cancer prevention communication tailored to young women. Given the frequent coverage o","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"19 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121191183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
S. Strayhorn, Brook E. Harmon, Andrew Carter, J. Hébert
{"title":"Abstract B10: Prevalence of culturally tailored cancer messages in African-American churches","authors":"S. Strayhorn, Brook E. Harmon, Andrew Carter, J. Hébert","doi":"10.1158/1538-7755.DISP17-B10","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-B10","url":null,"abstract":"Objectives : 1) To examine the frequency of culturally tailored cancer messages present in African-American churches; 2) to examine the prevalence of culturally tailored cancer messages by cancer topic, type of media used, and media source. Method : Between July 2010 and June 2013, health-related print media were collected from 21 African-American churches in South Carolina (n=2,166). Content analysis methodology was used to code items as having culturally tailored messages or not. A review of the literature aided in the creation of a codebook used to determine whether items were “culturally tailored” to the African-American community. The Cohen9s kappa for this codebook was 0.74. These data were added to a previous codebook, which provided definitions for media types, media sources, and messages related to disease including cancer (Cohen9s kappa=.89). Pearson9s chi squared tests were conducted to determine the frequency of culturally tailored messages by cancer topic, type of media, and media source. We focused on the three most prevalent types of media (i.e., flyers, booklets/brochures, and magazines) and media sources (i.e., local health organizations, national health organizations, and church-made items) providing cancer messages in the dataset. Results : Of the 316 cancer messages, 118 (37%) were culturally tailored to African Americans. Cancer messages were significantly more likely to be culturally tailored than other types of disease messages (37% vs 19%, p Conclusion : Over one-third of cancer messages in this dataset were culturally tailored. However, the prevalence of culturally tailored messages differed across cancer sites, types of media publishing cancer messages, and sources of media. Additional research is needed to understand how these differences may impact cancer prevention and control behaviors among African Americans. Citation Format: Shaila Strayhorn, Brook Harmon, Andrew Carter, James Hebert. Prevalence of culturally tailored cancer messages in African-American churches [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstract nr B10.","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"64 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127051609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Abstract C21: Investing in public-private partnerships to address breast cancer disparities among African-American women (low-income) within a non-Medicaid ACA expansion state and Appalachian region","authors":"D. Calhoun, Patricia Matthews-Juarez","doi":"10.1158/1538-7755.DISP17-C21","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-C21","url":null,"abstract":"The purpose of this presentation is to demonstrate how a national network can address breast cancer disparities among low socioeconomic status (SES) female populations by investing in local infrastructure, and innovative public-private partnerships in a state (non-Medicaid expansion) located within the Appalachian region. Public Health Significance: Medically underserved populations are more likely to be diagnosed with a late-stage disease (e.g., cancer). Breast cancer incidence and mortality rates continue to vary by race, ethnicity, age, and geography along with socioeconomic status factors (e.g., level of education, household income, health insurance coverage, etc.). Breast cancer mortality rates among women continue to remain higher in specific regions (including the Appalachian and Southern regions). Among women, African-American (Black) women possess the highest breast-cancer mortality rates. Moreover, studies have revealed that Memphis, Tennessee is one of the 25 largest cities in the United States characterized by racial disparities associated with high breast-cancer mortality rates among African-American (Black/non-Hispanic) women. In an effort to address breast cancer disparities through partnerships, capacity-building, and ultimately stronger community-clinical linkages, SelfMade Health Network (SMHN)9s multidimensional approach involves an investment in some regions disproportionately characterized by high rates of breast cancer incidence or mortality. SMHN is the most recent member of the Centers for Disease Control and Prevention (CDC) Consortium of National Networks established to advance prevention efforts related to tobacco-related and cancer health disparities. With a specific focus on populations with low socioeconomic status (SES) characteristics, SMHN is jointly funded by the Division of Cancer Prevention and Control (DCPC) and Office on Smoking and Health (OSH) and is intended to complement other CDC-funded chronic disease program activities. One example of SMHN9s strategic approach to address breast cancer disparities (late-stage) among female adult populations with low SES characteristics included the establishment of a SMHN Regional Resource Lead Organization (RRLO) in a non-Medicaid expansion state located within the Appalachian region. One of the SMHN Regional Resource Lead Organizations (RRLOs) is Meharry Medical College located in Nashville, Tennessee. Description of Methods or Approaches: Meharry Medical College RRLO9s approach involved increased local infrastructure, capacity, and coordination through the establishment of innovative partnerships coupled with the adoption of community-based interventions and utilization of data (e.g., Geographic Information System, etc.) as well as community engagement (including a series of focus groups and roundtables). It also involved coordination among several counties to address breast cancer disparities, specifically among low-income and low-resourced women (primarily African-","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"22 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116864862","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Demetria J. Smith, C. T. Sauter, Chao Zhang, Zhengjia Chen, K. Gogineni
{"title":"Abstract B34: Patterns of BRCA testing at a safety net compared to a university hospital","authors":"Demetria J. Smith, C. T. Sauter, Chao Zhang, Zhengjia Chen, K. Gogineni","doi":"10.1158/1538-7755.DISP17-B34","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-B34","url":null,"abstract":"Introduction: The criteria for coverage of BRCA testing vary by insurance company, and out-of-pocket costs can be prohibitive for many. Previous studies investigating rates of BRCA testing analyzed patient populations consisting of predominantly white women and women with private insurance. This study compares the differences in rates of BRCA testing among women diagnosed with breast cancer at a safety net hospital affiliated with an academic medical center and a tertiary-care university hospital in order to determine any factors associated with or predictive of testing differences. Methods: Retrospective chart review was performed using a dataset obtained from the Georgia Tumor Registry of women seen at Grady Memorial Hospital (GMH) and Emory University Hospital (EUH) between 2010 and 2014 who were diagnosed with breast cancer between the ages of 20-70. Of the 1,142 EUH cases, 652 charts were randomly selected and all 532 GMH cases have been reviewed to date. Demographic information collected included age, race, insurance status, type of insurance, and mean and median household income based on zip code of residence. Records were reviewed for documentation of referral to genetic counseling, if testing was performed, and testing results. National Comprehensive Cancer Network (NCCN) guidelines for BRCA testing were used in the study to identify high-risk patients. Data analysis was performed using univariate analysis and multivariable logistic regression. Results: Data from 529 EUH charts and 468 GMH charts were included in the final analysis. Among GMH patients, 81.4% were black/African American, 5.6% were white/Caucasian, and 7.9% were Hispanic/Latina. Mean age at diagnosis was 49.3 (SD 8.1). Mean household income for GMH patients was $60,292 (SD $22,975). At time of diagnosis, 37.2% of GMH patients had Medicaid, 7.7% had Medicare, 24.4% had private insurance, and 29.9% were uninsured. Among EUH patients, 35.7% were black, 56.9% were white, and 1.1% were Latina. Mean age at diagnosis was 48.84 (SD 7.61). Mean household income of EUH patients was $82,284 (SD $30,422). At time of diagnosis, 13.4% of EUH patients had Medicaid, 1.3% had Medicare, 84.3% had private insurance, and 0.8% were uninsured. Black patients were more likely to be high risk. High-risk patients were tested at a higher rate than low-risk patients (38% vs 8%, p Conclusion: Hospital- and race-related disparities in rates of BRCA testing exist despite both hospitals being staffed by the same university-based oncology faculty. The data also suggest disparities related to insurance status and income. This raises concern for financial and logistical barriers impeding genetic counseling and testing in a safety net hospital setting despite a higher proportion of high-risk patients. Analysis is ongoing to determine whether high-risk patients are less likely to undergo BRCA testing in a safety net hospital compared to a university hospital setting. Interventions to increase BRCA testing an","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"90 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"123491567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Abstract C01: Awareness of oral cancer among betel quid users in a high-risk refugee community","authors":"D. DePalo, Lucy L. Shi, E. Bradford, Amy Y. Chen","doi":"10.1158/1538-7755.DISP17-C01","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-C01","url":null,"abstract":"Introduction: Chronic mastication of betel nut (BN), a psychoactive substance, has been associated with oral cancer. However, BN continues to be used regularly among members of South and Southeast Asian cultures, including within the refugee resettlement area of Clarkston, GA. Our objective is to understand usage patterns of BN in this high-risk refugee population and assess knowledge gaps that may explain this disconnect. Methods: Patients from two clinics in Clarkston, GA were approached for the study. Patients who reported familiarity with BN were administered a survey on BN usage and health awareness; subsequently, an educational brochure was reviewed, and a post-test was administered. Results and frequencies were analyzed using Microsoft Excel (Redmond, WA). Results: 48 patients familiar with BN were surveyed. The most common ethnic groups were South (71%) and Southeast Asian (20%). 64.6% reported use themselves and 68.1% reported use by a family member; the average length of use was 3.34 and 15.24 years, respectively (p=0.0041). 42.8% reported social use, 28.6% reported usage during celebrations only, and 28.6% reported daily use. 69.6% reported consuming the nut only in quid form, composed of a mixture of the nut, leaf, spices, and other additives; 10.8% were unaware of the ingredients used. 32.4% reported using BN with tobacco. With regards to addiction, 29.5% reported concern about the habit, 40.9% wished they or their relatives could quit, and 31.8% had tried to quit. Only 13.6% have ever received resources on cessation. In this cohort, 75% believed BN was harmful for health, 9.1% believed it was beneficial, and 15.9% were unsure. The most common reasons cited for harm were teeth discoloration (29.26%), cancer (29.26%), tobacco contents (14.6%), and addiction (14.6%). Only 52.3% in this cohort believed BN alone could cause cancer, while 18.2% did not and 29.5% were unsure. In contrast, 88.6% believed BN with tobacco could cause cancer. Similarly, awareness of oral cancer symptoms was also low; 68.8% recognized cheek pain, 18.8% recognized ear pain, and 70% recognized a picture of tongue cancer. Conclusions: Our study illustrates patterns of BN usage and demonstrates notable knowledge gaps regarding health consequences of BN and oral cancer presentations in a high-risk refugee community. Our findings also highlight a lack of educational resources available to our cohort, despite reported interest in quitting. As recreational BN usage becomes more widespread, community initiatives are important in driving cessation. Citation Format: Danielle K. Depalo, Lucy L. Shi, Ella Bradford, Amy Y. Chen. Awareness of oral cancer among betel quid users in a high-risk refugee community [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Underserved; 2017 Sep 25-28; Atlanta, GA. Philadelphia (PA): AACR; Cancer Epidemiol Biomarkers Prev 2018;27(7 Suppl):Abstrac","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"18 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130142057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zo Ramamonjiarivelo, D. Comer-HaGans, I. Chukwudozie, Shirley Spencer, Vida Henderson, B. Pittendrigh, J. Bello-Bravo, K. Watson, Catherine H Balthazar, Rupert Evans, R. Winn, A. Odoms-Young, K. Hoskins
{"title":"Abstract B31: Creating a mobile device-based educational animation for African American women with hereditary breast cancer risk","authors":"Zo Ramamonjiarivelo, D. Comer-HaGans, I. Chukwudozie, Shirley Spencer, Vida Henderson, B. Pittendrigh, J. Bello-Bravo, K. Watson, Catherine H Balthazar, Rupert Evans, R. Winn, A. Odoms-Young, K. Hoskins","doi":"10.1158/1538-7755.DISP17-B31","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-B31","url":null,"abstract":"Background: Women residing in predominantly African America (AA) communities on the south side of Chicago have a breast cancer (BC) mortality rate twice as high as women living in predominantly white communities on the north side of the city. The emerging precision health paradigm for BC control that bases screening and prevention on individual level of risk has the potential to narrow the mortality gap by providing effective enhanced screening and preventive measures to AA women at high risk. Implementing a precision medicine strategy will require cancer genetic risk assessment (CGRA) in the primary care setting and referral of women with familial BC risk for genetic counseling (GC). Our prior work with CGRA in primary care clinics in AA communities revealed that women with a family history of BC who meet criteria for genetic counseling are unlikely to attend a GC consultation even when they are referred by their primary care physician (PCP). We found a strong desire among AA women and their PCPs for culturally sensitive educational materials tailored to AA women at risk for hereditary BC to help them understand the purpose of genetic counseling. We are developing a scientific educational animation delivered on a mobile device platform that is designed to motivate AA women with familial BC risk to attend a genetic-counseling consultation. Methods: Scientific animations are an effective tool for educating individuals with low health literacy on the benefits of cancer screening. Scientific animations delivered on smart phones have been used successfully in low-resource countries to provide basic health information. The intervention will be a scientific animation that can be viewed on smart phones, which will be created through an iterative process and will incorporate key elements of culturally sensitive health behavior interventions. The initial step involves semistructured interviews to identify factors that motivated attendance or nonattendance at a GC consultation among AA women who meet national guidelines for genetic counseling based on family history of breast cancer and were referred for counseling by their PCP in an earlier study. The sample (n=20) includes both women who did and who did not attend a GC session. Themes identified in the qualitative interviews will be used to create the script for the animation. The script will be story-driven. We will conduct two “story circles” with a subgroup of women participating in the semistructured interviews. The story circle fosters a safe environment for learning across modes of intelligence, expertise, and praxis. Participants will be asked to relate their family9s experience with breast cancer in a story format, and to describe how that story affected them. Findings from the story circles will augment themes identified in semistructured interviews to create a storyline, script, and artwork for the animation that is based on the participants9 family experiences. We will then conduct focus group","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"17 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130645865","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Abstract B04: Communication about HPV: Shared knowledge and HPV vaccine uptake among parents and adolescents in rural eastern North Carolina","authors":"Essie Torres, A. Richman, Qiang Wu","doi":"10.1158/1538-7755.DISP17-B04","DOIUrl":"https://doi.org/10.1158/1538-7755.DISP17-B04","url":null,"abstract":"Introduction: Although vaccination against cancer is a significant breakthrough, uptake is low. HPV-vaccination rates among girls, ages 13-17, are less than ideal; nationwide, only 63% initiated and only 42% completed the 3-shot series in 2015. These rates are significantly lower among girls who are ethnic minorities, live in poverty, and live in rural areas. The initiation rate in rural North Carolina (NC) counties (17%) is half that for the state as a whole (66%), and is even lower (11%) in the few eastern NC counties studied to date. This study presents data that examine HPV knowledge among parents and their children, and if higher knowledge concordance rates influenced greater HPV uptake among adolescents. Methods: The study was conducted in two rural clinics in eastern North Carolina. Study participants included female and male English- and Spanish-speaking parents and their children (ages 9-17), who were uninsured or Medicaid-insured. Data from this study is from a larger study that assessed if electronic reminders increased HPV vaccine series completion among adolescents and HPV knowledge among parents of adolescents in eastern North Carolina. Parents and their adolescent child completed a baseline survey that was administered during enrollment after the child received the first HPV dose and it assessed their HPV knowledge, and factors that might influence HPV vaccination uptake. Shot records were obtained for all adolescent participants throughout the 2-year study. The final sample included 257 parent-child dyads. Results: Mean parental and child age was 38 and 12, respectively. Most identified as Black (60%) or Hispanic (28%), followed by White (10%). Completion rates for intervention and control groups were similar for HPV dose 2 (65% vs. 65%) and HPV dose 3 (35% vs. 30%), respectively. Those who reported provider recommendation of the vaccine were 1.8 times more likely to complete the series. In addition to doctor recommendation, we found that parents who thought that HPV can cause cancer in women were more likely to complete the 3-dose series. Parent knowledge about the relationship between HPV and cancer in women was low for this sample at baseline. Similarly, parents whose main reason for getting their child a HPV vaccine was to protect their child from HPV were more likely to complete the second dose of the vaccine. Up-to-date results will be reported during the presentation. Conclusion: This finding lends itself to the need for education among parents about the relationship of HPV and cancer. These results have implications for selecting communication strategies to reduce HPV-related health disparities. Citation Format: Essie Torres, Alice Richman, Qiang Wu. Communication about HPV: Shared knowledge and HPV vaccine uptake among parents and adolescents in rural eastern North Carolina [abstract]. In: Proceedings of the Tenth AACR Conference on the Science of Cancer Health Disparities in Racial/Ethnic Minorities and the Medically Und","PeriodicalId":254061,"journal":{"name":"Behavioral and Social Science","volume":"65 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2018-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134175026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}