Huajun Sun, Xiaorong Li, Xiaomeng Yu, Fangshi Li, Tingting Zhang, Jiahui Song, Yue Du, Hongliang Liu
{"title":"Impact assessment of the ophthalmology discipline construction project at Tianjin Medical University Eye Hospital.","authors":"Huajun Sun, Xiaorong Li, Xiaomeng Yu, Fangshi Li, Tingting Zhang, Jiahui Song, Yue Du, Hongliang Liu","doi":"10.1186/s12961-025-01388-8","DOIUrl":"10.1186/s12961-025-01388-8","url":null,"abstract":"<p><strong>Objectives: </strong>Research impact is an emerging measure of research achievement alongside traditional academic outputs such as publications. We present the results of applying the Framework to Assess the Impact from Translational Health Research (FAIT) to the ophthalmology discipline construction project at Tianjin Medical University Eye Hospital.</p><p><strong>Methods: </strong>Data were gathered via in-depth interviews and document analysis to report on the three major FAIT methods: the Payback Framework, an assessment of costs against monetized outcomes and a narrative account of the impact generated from ophthalmology discipline construction project. FAIT was applied from September 2022 to August 2023.</p><p><strong>Results: </strong>The discipline construction project supported 64 graduate students in graduating, 15 members of the discipline team were newly employed as graduate student mentors, 12 continuing education projects were approved, 24 research projects were approved, 116 papers were published, 5 monographs were edited, nine academic conferences were held, one Chinese Medical Science and Technology Award was won, 21 patents were authorized and two technology transfers were realized. In addition, 12 expert consensuses were formulated, and 11 new technologies and projects were carried out. More than 60 science popularization activities were held, more than 270 science popularization articles were published, more than 10 000 diabetes patients were screened via eyeground exam, and one expert service base was built. Moreover, 2 scientific research systems were updated, 4 talent systems were updated, 12 medical systems were updated, 2 medical systems were formulated and 1 financial system was formulated. The total cost of the discipline construction project is ¥1.542 million RMB. Outcomes from the discipline construction project that could be monetized were in total ¥290.5 million RMB, indicating a return of ¥1.9 RMB for every yuan.</p><p><strong>Conclusions: </strong>The ophthalmology discipline construction project has successfully met expectations and has achieved good outcomes. The evaluation results are comprehensive and objective; the representation of return on investment ratio is simple yet effective, which can help decision-makers understand the project well.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"108"},"PeriodicalIF":3.2,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12403601/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144951662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jelle Keuper, Karin Hek, Lilian H D van Tuyl, Ronald Batenburg, Robert Verheij
{"title":"Correction: Determinants of consent for electronic health information exchange: an observational retrospective study.","authors":"Jelle Keuper, Karin Hek, Lilian H D van Tuyl, Ronald Batenburg, Robert Verheij","doi":"10.1186/s12961-025-01391-z","DOIUrl":"https://doi.org/10.1186/s12961-025-01391-z","url":null,"abstract":"","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"106"},"PeriodicalIF":3.2,"publicationDate":"2025-08-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12395673/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144951640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Mihail-Vasile Pruteanu, Alina Moroșanu, Georgeta Zegan, Constantin Bogdan Mihăilă, Elena Mihaela Cărăușu
{"title":"Highlighting global inequities in health services quality research: a systematic review and quantitative evidence (2014-2023).","authors":"Mihail-Vasile Pruteanu, Alina Moroșanu, Georgeta Zegan, Constantin Bogdan Mihăilă, Elena Mihaela Cărăușu","doi":"10.1186/s12961-025-01376-y","DOIUrl":"https://doi.org/10.1186/s12961-025-01376-y","url":null,"abstract":"<p><strong>Background: </strong>Health service quality is important for adequate and equitable health systems. However, research on this topic may reflect imbalances in global scientific production, visibility and collaboration. This study examines global trends and disparities in health service quality research over the past decade, focusing on thematic priorities, geographic distribution and structural inequities.</p><p><strong>Objectives: </strong>This review aims to (1) analyse the evolution of the quality of health services literature over time, assessing published articles and their impacts; (2) identify key trends, themes and significant contributions; (3) examine the geographical distribution of contributions to identify which nations excel in this area; (4) identify the key journals, authors and affiliations that significantly improve the quality of health services research; (5) assess the main factors that influence the citation impact of high-quality health services research; and (6) identify gaps in the quality of health services literature and suggest future research directions based on bibliometric insights.</p><p><strong>Methods: </strong>A systematic review was conducted following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) 2020 guidelines. We integrated bibliometric analysis (using co-word networks, citation counts and keyword trends) with econometric modelling to map and synthesize publication patterns, visibility and thematic priorities. Specifically, panel regression was applied to examine the structural and content-related predictors of citation impact across a longitudinal dataset of peer-reviewed studies (2014-2023). The combination of bibliometric and econometric methods enhanced the analytical depth of the systematic review, enabling quantification of disparities and explanatory insights beyond descriptive synthesis.</p><p><strong>Results: </strong>Out of 9121 records identified, 8857 articles were included in the final analysis. The included studies covered a broad range of regions and languages. Global publication volume increased steadily, peaking in 2021. Three dominant research themes were identified: patient experience, service delivery and health outcomes. Institutions from high-income countries, particularly those in North America and Europe, accounted for the most output and citations. Articles in English had significantly higher visibility than non-English publications. Citation impact was positively associated with international collaboration and reference count but negatively associated with title length and excessive keyword use.</p><p><strong>Limitations of evidence: </strong>The review relied on a single database [Web of Science (WoS)], which may have excluded relevant articles indexed elsewhere. Citation lag affected newer studies. The bibliometric nature of the study limits direct conclusions on the quality of interventions or clinical outcomes.</p><p><strong>Conclusions: <","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"105"},"PeriodicalIF":3.2,"publicationDate":"2025-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12376348/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144951643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Andria Hanbury, Emily Parker, Rebecca Lawton, Jayne Marran, Jane Schofield, Laurie Cave, Lynn McVey, Emma Eyers, Peter Van der Graaf, Roman Kislov
{"title":"The benefits for health care staff of involvement in applied health research: a scoping review.","authors":"Andria Hanbury, Emily Parker, Rebecca Lawton, Jayne Marran, Jane Schofield, Laurie Cave, Lynn McVey, Emma Eyers, Peter Van der Graaf, Roman Kislov","doi":"10.1186/s12961-025-01365-1","DOIUrl":"10.1186/s12961-025-01365-1","url":null,"abstract":"<p><strong>Background: </strong>Initiatives are increasingly encouraging health and social care staff involvement in research, with evidence for patient and organisational level benefits. There is less evidence of the benefits for staff and whether this varies by type of involvement. This scoping review aimed to identify the different ways staff are involved in applied health research, the benefits experienced, and whether this varies by type of involvement. This will help to inform leaders in service organisations, funders, and researchers about how to maximise such benefits.</p><p><strong>Methods: </strong>The scoping review followed the JBI methodology. Four databases were searched: CINAHL, MEDLINE, PsycINFO and Scopus. Grey literature was identified via Google, Google Scholar and relevant websites. Records had to be UK-based, published in English between 2003 and 2023 and cover applied health and care research, health care staff involvement and report on benefits. Text was extracted from records, coded afterwards, and quality checked. The benefits were distilled by four research active health care staff. Descriptive statistics and narrative synthesis were used to report the results.</p><p><strong>Findings: </strong>In total, 49 records were reviewed, 42 records were from the database search and 7 from the grey literature search. Records were most commonly journal articles (n = 44), covering multiple care settings (n = 15) and mixed professional groups (n = 24), used qualitative methods (n = 22) and focussed on clinical academic roles (n = 21). Six benefits of involvement in research were distilled: personal fulfilment, general competencies/skills, connections/networks, opportunities for learning, opportunities for leading improvements in practice, and using evidence more effectively. Records that focussed on the more intensive clinical academic roles reported more examples of opportunities for leading improvements in practice, and the building of connections and social support. Non-clinical academic records more frequently reported that involvement in research provided opportunities for learning.</p><p><strong>Conclusions: </strong>These findings support efforts to involve staff in research, with a range of benefits associated with enhanced job satisfaction, even when research involvement is in a less intense form, such as participation in a study. These findings can be used to encourage involvement, with recommendations for future research to review the benefits for social care staff, and to examine more directly the effect on staff wellbeing and retention.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"104"},"PeriodicalIF":3.2,"publicationDate":"2025-08-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12359832/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144872828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jelle Keuper, Karin Hek, Lilian H D van Tuyl, Ronald Batenburg, Robert Verheij
{"title":"Determinants of consent for electronic health information exchange: an observational retrospective study.","authors":"Jelle Keuper, Karin Hek, Lilian H D van Tuyl, Ronald Batenburg, Robert Verheij","doi":"10.1186/s12961-025-01377-x","DOIUrl":"10.1186/s12961-025-01377-x","url":null,"abstract":"<p><strong>Background: </strong>Sharing of patient electronic health record (EHR) data between healthcare providers can enhance quality and efficiency of healthcare provision, and patient safety. Health information exchange is allowed only with explicit patient consent. In the Netherlands, patient consent and the exchange of information is organized nationally. Consent status is recorded routinely in general practice EHRs. This study examines how various characteristics at the individual and general practice level influence this consent for electronic health information exchange (HIE).</p><p><strong>Methods: </strong>Routine EHR data from general practices and out-of-hours primary care services participating in the Nivel Primary Care Database were analysed for the period 2017-2019, just before the coronavirus disease 2019 (COVID-19) pandemic outbreak. Bivariate chi-squared test analysis and multilevel logistic regression analysis, adjusted for practice-level clustering, were conducted for each of the 3 observed years to assess whether consent for electronic HIE (\"yes\" or \"no\") was associated with the individual's health and healthcare utilization, demographics, neighbourhood characteristics (socioeconomic position, degree of urbanization, area deprivation), and general practice characteristics (practice type, EHR system, practice size).</p><p><strong>Results: </strong>Between 2017 and 2019, 38-45% of the individuals provided consent for electronic HIE. Individuals with a higher number of different prescriptions or those with long-lasting health problems or chronic diseases had lower odds of providing consent, in each of the 3 years. This result also applied to female and older individuals (aged ≥ 65 years). In contrast, individuals from below-average socioeconomic position neighbourhoods living in deprived urban or hardly urbanized regions generally had higher odds of providing consent.</p><p><strong>Conclusions: </strong>In contrast to what was expected, patient groups with higher healthcare utilization were less, or as likely to provide consent for HIE compared with individuals with no or lower healthcare utilization. This implies that the population most likely to benefit from HIE is, in fact, less likely to profit from it. Further research is needed to determine whether these differences arise from individual trust, privacy concerns, transparency issues or other factors such as physicians' HIE beliefs. Optimizing the national HIE system in the Netherlands requires considering multiple influencing factors, on both the individual level and practice level.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"103"},"PeriodicalIF":3.2,"publicationDate":"2025-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12333170/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144798935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anita Kothari, Shannon L Sibbald, Chris McCutcheon, Whitney Berta, Robin Urquhart, Tanya Horsley, Leigha Comer, Ian D Graham
{"title":"How does integrated knowledge translation work? A realist review.","authors":"Anita Kothari, Shannon L Sibbald, Chris McCutcheon, Whitney Berta, Robin Urquhart, Tanya Horsley, Leigha Comer, Ian D Graham","doi":"10.1186/s12961-025-01374-0","DOIUrl":"10.1186/s12961-025-01374-0","url":null,"abstract":"<p><strong>Background: </strong>Integrated knowledge translation (IKT), or research co-production, is a research approach where researchers and knowledge users carry out a study as equal partners. A growing evidence base demonstrates that IKT produces research findings that are useful, usable and used. Despite knowing how IKT works, we have yet to ascertain how it operates. We conducted a realist review to examine the key mechanisms thought to explain how IKT approaches work in relation to the generation of research in the healthcare sector.</p><p><strong>Methods: </strong>The research question was the following: what are the necessary conditions (context) and key mechanisms that explain the success of IKT in the healthcare sector? We conducted the review in two phases. During phase 1, we collaborated with knowledge users and scoped the literature to develop preliminary program theories. In phase 2, we inductively tested the preliminary program theories against the literature. We searched OVID Medline, Embase, PsycINFO, the Cumulative Index of Nursing and Allied Health Literature, Social Sciences Abstracts, and ABI Inform for empirical articles published between 2002 and 2017. An updated search included Embase and OVID Medline articles published between 2017 and 2020. The review includes 84 papers. We included articles written in English that focused on the health sector; encompassed the co-generation of research with researchers, policy-makers, administrators and/or practitioners; and evaluated the IKT approach. In analysing the retained articles, we produced three program theories by looking for common patterns and challenging and refining these theories.</p><p><strong>Results: </strong>We postulate three program theories about how teams of researchers and knowledge users work to generate research. We identified three important conditions: infrastructure, role clarity and power sharing. Under particular infrastructure arrangements, effective partnerships are mechanisms that lead to the production of research findings relevant to knowledge users. Role clarity also triggers effective partnerships. With power sharing, synergy is a mechanism that leads to the use of findings.</p><p><strong>Conclusions: </strong>We identified different conditions (contextual factors), including infrastructure, role clarity and power sharing, in which IKT produces research findings that are of relevance to knowledge users and used in health settings. Effective partnerships are necessary but an insufficient mechanism for actual use of research findings, and must occur before the mechanism of partnership synergy. This work contributes to our understanding of how to enhance the uptake of evidence by presenting three program theories and a consolidated, mid-range theory of IKT.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"102"},"PeriodicalIF":3.2,"publicationDate":"2025-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323222/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144788905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ethical and regulatory requirements for conducting researcher-driven large-scale multinational genetic haematological studies: the INHERENT experience.","authors":"Antonella Didio, Viviana Giannuzzi, Natasha Archer, Esther Gani, Sabina Sblano, Emmanuel Peprah, Petros Kountouris, Fedele Bonifazi","doi":"10.1186/s12961-025-01375-z","DOIUrl":"10.1186/s12961-025-01375-z","url":null,"abstract":"<p><strong>Background: </strong>The International Hemoglobinopathy Research Network (INHERENT) focuses on studying genetic modifiers through large, multi-ethnic genome-wide association studies involving paediatric and adult patients with haemoglobinopathies. The growing integration of genetics and genomics into global healthcare has highlighted the need for standardized policies on biospecimen and data handling. This study describes the necessary ethical and regulatory framework for conducting multinational, researcher-driven genetic studies on humans.</p><p><strong>Methods: </strong>Key areas related to the INHERENT study were identified through collaborative research. A review of the grey literature was performed, consulting official sources. An online survey was conducted to identify the local rules.</p><p><strong>Results: </strong>Despite the availability of 33 international documents applicable to the three key areas of our investigation, i.e. personal data processing, clinical research and biospecimen management, there is no unique reference for genetic studies without investigational drugs, i.e. outside the scope of good clinical practice. Specific laws and guidelines/recommendations governing the processing of personal data and privacy have been released in most of the 32 surveyed countries. As an example, discordances were found regarding the requirement to get approval from the ethics committees.</p><p><strong>Conclusions: </strong>Such heterogeneity challenges the scientific community in conducting these genetic studies. This study calls for further efforts to harmonize international standards for genetic research.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"101"},"PeriodicalIF":3.2,"publicationDate":"2025-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323221/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144788904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Huri Balikubiri, Anna Kemp-Casey, Andre Q Andrade, Elizabeth E Roughead
{"title":"Elements of healthcare delivery required to facilitate the clinical governance of hospital pharmacy services: a document review.","authors":"Huri Balikubiri, Anna Kemp-Casey, Andre Q Andrade, Elizabeth E Roughead","doi":"10.1186/s12961-025-01378-w","DOIUrl":"10.1186/s12961-025-01378-w","url":null,"abstract":"<p><strong>Background: </strong>Clinical governance of hospital pharmacy services aims to ensure the delivery of pharmaceutical care that maximizes positive outcomes for patients. Good clinical governance incorporates service-related data to evaluate and improve care delivery. National-level clinical governance frameworks available in Australia provide limited information on auditable metrics to evaluate hospital pharmacy services. This study reviews healthcare governance documents to determine the goals and desirable elements of healthcare delivery and the information to measure to inform the clinical governance of hospital pharmacy services.</p><p><strong>Methods: </strong>A purposive online search was conducted to identify healthcare governance documents describing the clinical governance approach for general healthcare and hospital pharmacy services in Australia, New Zealand, England, Canada and the United States. Documents for general healthcare settings were reviewed to identify the goals and desirable elements of healthcare delivery. Pharmacy governance documents were then reviewed to contextualize the identified elements of care to hospital pharmacy services and to determine the information to measure to inform clinical governance.</p><p><strong>Results: </strong>The objective of delivering quality healthcare was included in all documents. Quality healthcare was described in the documents as healthcare that is patient-centred, safe, effective, integrated, timely, equitable, efficient and reliable. These factors were considered desirable elements of healthcare delivery that promote positive patient outcomes. The performance measures to evaluate and improve hospital pharmacy services delivery covered pharmacists' clinical activities, pharmaceutical care outcomes, stakeholder feedback and medication incidents and risks.</p><p><strong>Conclusions: </strong>Measuring the extent to which the desirable elements of care are evident in the performance of clinical pharmacists' activities and the associated outcomes of care may provide useful information to facilitate the clinical governance of hospital pharmacy services.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"100"},"PeriodicalIF":3.2,"publicationDate":"2025-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323264/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144784161","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Shaping the future of primary care in Canada: trainee insights on patient and public engagement in health system transformation research.","authors":"Ashley Chisholm, Meghan Gilfoyle, Maggie MacNeil, Carolyn Melro","doi":"10.1186/s12961-025-01366-0","DOIUrl":"10.1186/s12961-025-01366-0","url":null,"abstract":"<p><p>Access to healthcare in Canada remains a significant issue, with over one in five people lacking attachment to a regular primary care provider. To address this, patients, health professionals, researchers and policymakers are advocating for health system transformation aimed at improving access and achieving the quintuple aim. As a result, research funding increasingly prioritizes health system transformation. However, whilst collaborative approaches such as integrated knowledge translation (IKT) are critical for success, trainees face barriers to integrating patient and public engagement into their research. These challenges include limited time and resources, difficulties in developing meaningful partnerships, tensions between independent intellectual contributions and collaborative research and academic structures that reinforce power imbalances. This commentary presents four trainee experiences that demonstrate successful capacity-building initiatives for trainees to embed patient and public engagement in health system transformation research. The first case study focusses on the Patient Expertise in Research Collaboration (PERC), which supports Transdisciplinary Understanding and Training on Research-Primary Health Care (TUTOR-PHC) trainees in incorporating patient perspectives into primary healthcare research. The second highlights the role of the Integrated Knowledge Translation Research Network (IKTRN) in building trainee capacity through funding. The third explores a trainee experience with the ACCESS Open Minds Network (AOM). The fourth describes a trainee experience within a co-design study, the Enhancing Physical and Community MoBility in OLDEr Adults with Health Inequities Using CommuNity Co-Design (EMBOLDEN). These case studies provide insights into effective strategies for overcoming barriers to patient and public engagement in research. However, opportunities for such engagement remain uneven and depend on limited funding. To foster sustainable support, academic institutions must integrate these capacity-building initiatives, promoting a future of primary care in Canada that is inclusive, patient-centred and responsive to evolving population needs.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"98"},"PeriodicalIF":3.2,"publicationDate":"2025-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323194/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144784162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jade D Rae, Winnie Chen, Sophie Diarra, Nhung Nghiem, Rebecca H Chisholm, An Tran-Duy, Freya Shearer, Angela Devine
{"title":"Web-based models to inform health policy: A scoping review.","authors":"Jade D Rae, Winnie Chen, Sophie Diarra, Nhung Nghiem, Rebecca H Chisholm, An Tran-Duy, Freya Shearer, Angela Devine","doi":"10.1186/s12961-025-01367-z","DOIUrl":"10.1186/s12961-025-01367-z","url":null,"abstract":"<p><p>Health policies must be continually updated as new evidence is generated to ensure the optimal delivery of health interventions and prevention measures. Models are often used to study health problems, but their complexity limits their use by policy-makers. One way to facilitate their use among non-modellers is to develop user-friendly interfaces and make them available online. We conducted a scoping review of journal articles to identify and describe the currently available, interactive, freely available web-based health models that aim to inform health policy relevant to any disease or health issue affecting human populations. This scoping review included 16 web-based models covering 13 diseases or health issues, of which the most common were coronavirus disease 2019 (COVID-19) and malaria. The most common model outputs were epidemiological indicators (14/16), such as case numbers, incidences, or results from diagnostic screening, followed by the cost of implementing the intervention or health measure of interest (10/16). Model validation was performed in 6 of the 16 studies by comparing the model results with the previously published evidence or comparing simulated outcomes with observed data. Sensitivity and scenario analyses were conducted for 62.5% of models (10/16); however, in most cases, the user can perform these analyses by changing the model parameters in the user interface. This review explores the potential of web-based models to support health policy decisions and resource allocation. Despite their limited number, the 16 interactive web-based health models provide valuable insights into various health issues, primarily infectious diseases. The usability of the currently available web-based health models is impacted by the accuracy of the model description, the ability of the user to alter parameter values and the model assumptions that limit their generalizability. Such models must be validated and incorporate appropriate sensitivity analyses to be reliable and helpful to policy-makers.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"99"},"PeriodicalIF":3.2,"publicationDate":"2025-08-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12323111/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144784163","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}