Health Research Policy and Systems最新文献

{"title":"An international comparison of longitudinal health data collected on long COVID in nine high income countries: a qualitative data analysis.","authors":"Josephine Exley, Edmund Stubbs, Raphael Wittenberg, Nicholas Mays","doi":"10.1186/s12961-025-01298-9","DOIUrl":"10.1186/s12961-025-01298-9","url":null,"abstract":"<p><strong>Background: </strong>Long coronavirus disease (COVID) presents a significant health challenge. Long-term monitoring is critical to support understanding of the condition, service planning and evaluation. We sought to identify and examine longitudinal health data collected on long COVID to inform potential decisions in England regarding the rationale for data collection, the data collected, the sources from which data were collected and the methods used for collection.</p><p><strong>Methods: </strong>We included datasets in high-income countries that experienced similar coronavirus disease 2019 (COVID-19) waves to England pre-vaccine rollout. Relevant datasets were identified through literature searches, the authors' networks and participants' recommendations. We undertook semi-structured interviews with individuals involved in the development and running of the datasets. We held a focus group discussion with representatives of three long COVID patient organisations to capture the perspective of those with long COVID. Emergent findings were tested in a workshop with country interviewees.</p><p><strong>Results: </strong>We analysed 17 datasets from nine countries (Belgium, Canada, Germany, Italy, the Netherlands, New Zealand, Sweden, Switzerland and the United Kingdom). Datasets sampled different populations, used different data collection tools and measured different outcomes, reflecting different priorities. Most data collection was research (rather than health care system)-funded and time-limited. For datasets linked to specialist services, there was uncertainty surrounding how long these would continue. Definitions of long COVID varied. Patient representatives' favoured self-identification, given challenges in accessing care and receiving a diagnosis; New Zealand's long COVID registry was the only example identified using this approach. Post-exertion malaise, identified by patients as a critical outcome, was absent from all datasets. The lack of patient-reported outcome measures (PROMs) was highlighted as a limitation of datasets reliant on routine health data, although some had developed mechanisms to extend data collection using patient surveys.</p><p><strong>Conclusions: </strong>Addressing research questions related to the management of long COVID requires diverse data sources that capture different populations with long COVID over the long-term. No country examined has developed a comprehensive long-term data system for long COVID, and, in many settings, data collection is ending leaving a gap. There is no obvious model for England or other countries to follow, assuming there remains sufficient policy interest in establishing a long-term long COVID patient registry.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"37"},"PeriodicalIF":3.6,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11931811/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143700291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A bespoke rapid evidence review process engaging stakeholders for supporting evolving and time-sensitive policy and clinical decision-making: reflection and lessons learned from the Wales COVID-19 Evidence Centre 2021-2023.","authors":"Ruth Lewis, Alison Cooper, David Jarrom, Mala Mann, Rebecca-Jane Law, Deborah Edwards, Judith Carrier, Hannah Shaw, Tom Winfield, Llinos Haf Spencer, Jane Noyes, Helen Morgan, Jennifer Washington, Elise Hasler, Micaela Gal, Elizabeth Doe, Natalie Joseph-Williams, Adrian Edwards","doi":"10.1186/s12961-025-01297-w","DOIUrl":"10.1186/s12961-025-01297-w","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic presented policymakers with time-sensitive decision problems and a rapidly increasing volume of research, not all of which was robust, or relevant to local contexts. A bespoke evidence review process supporting stakeholder engagement was developed as part of the Wales COVID-19 Evidence Centre (WCEC), which could flexibly react to the needs of decision-makers, to address urgent requests within days or months as required.</p><p><strong>Aims: </strong>To describe and appraise the WCEC review process and methods and identify key learning points.</p><p><strong>Methods: </strong>Three types of rapid review products were used, which could accommodate the breadth of decision problems and topics covered. Stakeholder (including public) engagement was integrated from the onset and supported throughout. The methods used were tailored depending on the needs of the decision-maker, type of research question, timeframe, and volume and type of evidence. We appraised the overall process and compared the methods used with the most recent and relevant best practice guidance.</p><p><strong>Results: </strong>The remote collaboration between research teams, establishing a clear pathway to impact upfront, and the strong stakeholder involvement embedded in the review process were considered particular strengths. Several key learning points were identified, which focused on: enhancing stakeholders' abilities to identify focused policy-relevant research questions; the collection and storage of review protocols at a central location; tightening quality assurance process regarding study selection, data extraction and quality assessment; adequate reporting of methodological shortcuts and understanding by stakeholders; piloting of an algorithm for assigning study design descriptors, and a single quality assessment tool covering multiple study designs; and incorporate, where appropriate an assessment of the confidence in the overall body of evidence using GRADE or similar framework.</p><p><strong>Conclusions: </strong>The review process enabled a high volume of questions that were directly relevant to policy and clinical decision making to be addressed in a timely manner using a transparent and tailored approach.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"36"},"PeriodicalIF":3.6,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11927267/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143669792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Collaborative networks in community-based health and social care services: insights from Blackpool and the Fylde Coast (United Kingdom).","authors":"Kristof Santa, Zsofia Boda, Buket Kara, Jörg Huber, Heather Catt, Barbara Mezes","doi":"10.1186/s12961-025-01303-1","DOIUrl":"10.1186/s12961-025-01303-1","url":null,"abstract":"<p><strong>Background: </strong>Globally, health and social care systems have been responding to the demand for better integrated service delivery to tackle complex public health and socioeconomic challenges. Similarly, services in the United Kingdom strive for comprehensive, person-centred care to support health equity and improved quality of life. This study took place in Blackpool and the Fylde Coast, United Kingdom, where socioeconomic deprivation and health inequalities persist and effective collaboration among health and social care providers offers an opportunity to tackle such complex challenges. The study used social network analysis (SNA) to investigate collaboration patterns between organizations to identify key characteristics and areas for improved integration.</p><p><strong>Methods: </strong>Data were collected from March to June 2023. First, a comprehensive mapping exercise identified a total of 453 community-based providers who were invited to participate via email. Data on service provision were collected using an adapted version of the Template for Intervention Description and Replication (TIDieR) form from organizations' websites. Service descriptions were thematically categorized into 11 domains. A total of 44 organizations provided information on their collaborations through an online survey, reporting on collaborations across 321 organizations. SNA examined collaboration patterns via visualization and multivariate network regressions (MRQAP).</p><p><strong>Results: </strong>The mapping identified a great range of community-based support. The network density indicated relatively low overall collaboration (2.2%) among 321 organizations. Within the subset of 44 organizations who completed the questionnaire, collaborations were more frequent (15%). Collaboration ties were unevenly distributed, where some organizations had more connections. MRQAP showed that organizations within the same domain were more likely to collaborate. Some combinations, such as collaborations between housing, shelter and nutritional support with child and family support and mental health were significantly overrepresented.</p><p><strong>Discussion: </strong>The network had low density, highlighting the potential for more collaborations. The network appears fragmented, probably owing to a tendency for organizations to collaborate with others operating in the same service domain. The frequent collaborations between certain domains highlight the complex needs of local communities. Effective integrated care initiatives, data sharing and place-based partnership/voluntary, community, faith, social enterprise sector capacity-building programmes could build more resilient and interconnected networks that meet community needs.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"35"},"PeriodicalIF":3.6,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11912715/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143648248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Analysis for health system resilience against the economic crisis: a best-fit framework synthesis.","authors":"Zeynab Foroughi, Parvin Ebrahimi, Shahram Yazdani, Aidin Aryankhesal, Majid Heydari, Mohammadreza Maleki","doi":"10.1186/s12961-025-01285-0","DOIUrl":"10.1186/s12961-025-01285-0","url":null,"abstract":"<p><strong>Introduction: </strong>Countries, especially developing countries, are prone to economic crises, which are the consequences of various crises, including pandemics, climate crises, armed conflicts and migration. Therefore, policy-makers need a guiding framework for policy-making against the economic crisis that contributes to health system resilience. This study aimed to provide a holistic framework that guides health system policies before or during an economic crisis.</p><p><strong>Method: </strong>The study utilized the best-fit framework synthesis to enhance and adapt the Resilience Analysis Meta-Framework (RAMF) in the context of an economic crisis. The study analysed and compared the experiences of three high-income countries and three low-middle-income countries with the greatest diversity in terms of their context, shocks that caused the economic crises and their responses to them. The framework was expanded and adjusted on the basis of the adopted policies in the context of the economic crisis.</p><p><strong>Results: </strong>The adapted RAMF provides a holistic framework which shows the priority and relationships of various policy alternatives in each health system building block. This framework can be used as a guide to analyse any policy solution against the economic crisis by considering its necessary antecedent policies and consequence policies in other health system building blocks.</p><p><strong>Conclusions: </strong>Awareness in a health system via adapting appropriate cost control policies and governance structure can contribute to evidence-based cost control in all health system building blocks and need-based financing, drug and medical equipment procurement, human resource planning and service provision.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"33"},"PeriodicalIF":3.6,"publicationDate":"2025-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11907875/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143633542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementing a rapid-learning health system in early intervention services for psychosis: qualitative evaluation of its feasibility and acceptability.","authors":"Manuela Ferrari, Marianne-Sarah Saulnier, Srividya N Iyer, Marc-André Roy, Amal Abdel-Baki","doi":"10.1186/s12961-024-01281-w","DOIUrl":"10.1186/s12961-024-01281-w","url":null,"abstract":"<p><strong>Background: </strong>Heterogeneity in implementing essential evidence-based early intervention for psychosis services (EIS) components persists despite existing fidelity standards/guidelines in many countries. Rapid-learning health systems (RLHS) may remedy these challenges, improving service delivery through systematic data collection, analysis, feedback and capacity-building activities. SARPEP (Système Apprenant Rapide pour les Programmes de Premiers Épisodes Psychotiques) is the first Canadian RLHS for EIS. This paper presents qualitative findings from the mixed-method study that evaluated the feasibility and acceptability of SARPEP.</p><p><strong>Methods: </strong>We conducted six focus groups on the implementation of SARPEP with 25 participants from all SARPEP stakeholder groups; most were involved from project inception and throughout the 3-year implementation. The Reach, Effectiveness, Adoption, Implementation, Maintenance (RE-AIM) framework (Glasgow, et al., 2019) and Lessard's dimensions for learning health systems guided data collection and deductive analysis.</p><p><strong>Results: </strong>Reach: focus group participants reflected SARPEP reach and included all stakeholders involved (six service users, two family members, four psychiatrists, six managers, seven team leaders) who shared their experiences.</p><p><strong>Effectiveness: </strong>participants confirmed that SARPEP improved program capacity for data collection on core indicators and promoted evidence-based practices. Adoption: participants supported the selection of specific indicators and need to improve data-gathering technologies in the RLHS, even while challenges persisted regarding the integration of digital platform use by service users into routine care. Implementation and maintenance: all participants credited the RLHS with enabling mutual learning, self-reflection of programs and shared improvement of practices.</p><p><strong>Conclusions: </strong>SARPEP contributes to promote evidence-based care and a sense of belonging within the Quebec EIS network.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"34"},"PeriodicalIF":3.6,"publicationDate":"2025-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11909817/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143633611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A comprehensive review on cardiovascular disorders development due to salt intake: an emphasis on policy implementation.","authors":"Ian Osoro, M G Rajanandh","doi":"10.1186/s12961-025-01305-z","DOIUrl":"10.1186/s12961-025-01305-z","url":null,"abstract":"<p><p>Excessive salt consumption has been linked with the emergence of hypertension, which further leads to cardiovascular disease development among other medical conditions. This has resulted in leading world institutions such as the WHO coming up with relevant plans to minimize its use. Lower-middle-income countries (LMICs) have greatest burden of noncommunicable diseases (NCDs), with hypertension being a common condition. Reduction of salt intake is a great control measure in minimizing the rise in prevalence of hypertension or cardiovascular diseases. Many countries have agreed and even formulated their salt reduction policies as recommended by the WHO, however, the challenge is widely noted in implementation. Thus, few countries have been able to achieve the global WHO recommended standards of daily salt intake. Salt is the main source of sodium in our diets, which is an essential component responsible for the balance of the extracellular fluid volume but may lead to salt-induced hypertension when used excessively. The achievement of salt reduction is predicated on multiple factors such as knowledge, attitude and practice of the public. Therefore, localizing interventions with strategies such as public media campaigns, reformulation of processed foods (mandatory and voluntary) and front-of-packaging labelling awareness. Some of the reasons for failure in implementation include economic challenges, lack of visionary leadership, stakeholder struggles and poor planning and execution of strategies. This review aims to elaborate on the development of cardiovascular diseases or hypertension due to salt usage and the recent advancement regarding salt reduction policies. Further, we assess the need for proper implementation with the United Kingdom as a case study. In conclusion, most governments have made the right decisions in developing or recommending salt reduction strategies to the food industry. However, more focus is needed to ensure effective implementation of the plans.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"32"},"PeriodicalIF":3.6,"publicationDate":"2025-03-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11900108/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143604599","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Use of evidence to inform regional primary health care planning in Australia.","authors":"Alice Windle, Sara Javanparast, Toby Freeman, Fran Baum","doi":"10.1186/s12961-025-01308-w","DOIUrl":"10.1186/s12961-025-01308-w","url":null,"abstract":"<p><strong>Background: </strong>Use of evidence to inform health policy and planning decisions is important to ensure effective, efficient and equitable interventions, yet there has been little examination of decentralized, regional health bodies. This study aimed to examine the extent, purposes and sources of evidence used by Australian Primary Health Networks (PHNs) to inform regional primary health care planning, and explore conceptions of, and attitudes towards evidence.</p><p><strong>Methods: </strong>We conducted document analysis of all 31 PHNs' Needs Assessments, Activity Work Plans and Annual Reports, and conducted 29 interviews with key stakeholders from a sample of five PHNs.</p><p><strong>Results: </strong>We found that PHNs used evidence to identify health needs to a far greater extent than to inform the planning and development of primary health care interventions. The evidence used largely consisted of quantitative data from government sources. There was very little use of evidence from research or evaluation documents. Evidence from community and other stakeholder consultation was useful for complementing quantitative data with localized knowledge but was of questionable rigour. Conceptions of evidence were generally broad. Interviewees tended to favour quantitative evidence, and the evidence that aligned with their professional background.</p><p><strong>Conclusions: </strong>We recommend PHNs improve the use of intervention evidence and stakeholder engagement to inform effective, efficient and equitable local PHC initiatives. Developing more robust, transparent and standardized internal processes for evidence-informed program planning and evaluation, as well as maintaining and strengthening community and stakeholder participation in the planning process, will improve the robustness and effectiveness of planning.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"31"},"PeriodicalIF":3.6,"publicationDate":"2025-03-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11900053/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143604600","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Monitoring and adaptation of a system dynamics approach to prevent childhood overweight and obesity: findings from the LIKE programme.","authors":"Naomi de Pooter, Angie Luna Pinzon, Karen den Hertog, Teatske Altenburg, Vincent Busch, Coosje Dijkstra, Helga Emke, Meredith Overman, Carry Renders, Jacob Seidell, Arnoud Verhoeff, Mai Chinapaw, Karien Stronks, Wilma Waterlander","doi":"10.1186/s12961-025-01301-3","DOIUrl":"10.1186/s12961-025-01301-3","url":null,"abstract":"<p><strong>Background: </strong>There are few examples of public health programmes rooted in system dynamics methodology. The aim of this paper was to broaden the evidence-base on the implementation and evaluation of a system dynamics programme for obesity prevention, using the Lifestyle Innovations based on youth's Knowledge and Experience (LIKE) Programme as a case study. In LIKE, system dynamics principles were operationalized around three central pillars: the action programme is (1) rooted in a system-based understanding; (2) integrated in the local context and (3) dynamic.</p><p><strong>Methods: </strong>This study took place in an urban setting in Amsterdam, the Netherlands, as part of the LIKE programme. The action programme consisted of establishing thematic action groups around previously identified leverage points within the system of overweight-related behaviours among adolescents. An action monitoring register was used to monitor action development and implementation, including the targeted system level. To track action implementation and adaptation over time, we conducted an in-depth evaluation using ripple effects mapping and additional interviews for three action groups. This data was analysed by performing a thematic content analysis.</p><p><strong>Results: </strong>During the 6-year course of LIKE, 63 action ideas were formulated by 12 action groups, and 22 of these actions were implemented. Most of these implemented actions targeted lower system levels. A total of 9 of the 22 implemented actions were incorporated in existing initiatives. We observed that operationalization of system dynamics principles influenced the form of the action programme. Action ideas were dynamic in the sense that they changed over time or were abandoned because of growing system insights and/or factors within the wider context. This required shifting the focus from individual actions to the programme as a whole and formulating action ideas in terms of their function in changing the system, instead of on its form.</p><p><strong>Conclusions: </strong>Using LIKE as a case study, this study provides an example of the output of a system dynamics action programme. We show how leverage points can be used as a starting point to develop action ideas that target lower and higher system levels. This demands monitoring and evaluation that facilitates continuous customization of the programme.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"30"},"PeriodicalIF":3.6,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11881247/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143556692","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Partnered health research in Canada: a cross-sectional survey of perceptions among researchers and knowledge users involved in funded projects between 2011 and 2019.","authors":"Kathryn M Sibley, Leah K Crockett, Heather L Gainforth, Ian D Graham, Femke Hoekstra, Jeff S Healey, Masood Khan, Sara Kreindler, Kent C Loftsgard, Christopher B McBride, Kelly J Mrklas, Alexie J Touchette","doi":"10.1186/s12961-025-01299-8","DOIUrl":"10.1186/s12961-025-01299-8","url":null,"abstract":"<p><strong>Background: </strong>Engaging knowledge users in health research is accelerating in Canada. Our objective was to examine perceptions of partnered health research among individuals involved in funded Canadian partnered health research projects between 2011 and 2019.</p><p><strong>Methods: </strong>We invited 2155 recipients of 1153 funded projects to answer a questionnaire probing project characteristics and perceptions of partnered health research. We described and compared perceived effects of involving knowledge users in the project, team cohesion, capability, opportunity and motivation for working in partnership between two categories of respondents: project role [nominated principal investigators (NPIs), other researchers and knowledge users] and gender.</p><p><strong>Findings: </strong>We analysed data from 589 respondents (42% NPIs, 40% other researchers and 18% knowledge users; 56% women). Among the perceived effects variables, the proportion of ratings of significant influence of involving knowledge users in the project ranged between 12% and 63%. Cohesion, capability, opportunity and motivation variables ranged between 58% and 97% agreement. There were no significant differences between respondent groups for most variables. NPIs and women rated the overall influence of involving knowledge users as significant more than other respondent groups (p < 0.001). NPIs also reported higher agreement with feeling sufficiently included in team activities, pressure to engage and partnerships enabling personal goals (all p < 0.001).</p><p><strong>Conclusions: </strong>Most respondents held positive perceptions of working in partnership, although ratings of perceived effects indicated limited effects of involving knowledge users in specific research components and on project outcomes. Continued analysis of project outcomes may identify specific contexts and partnership characteristics associated with greater impact.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"28"},"PeriodicalIF":3.6,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11874841/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Attitudes and perceptions regarding knowledge translation and community engagement in medical research: the PERSPECT qualitative study.","authors":"Bogna A Drozdowska, Nora Cristall, Joachim Fladt, Tanaporn Jaroenngarmsamer, Arshia Sehgal, Rosalie McDonough, Mayank Goyal, Aravind Ganesh","doi":"10.1186/s12961-025-01306-y","DOIUrl":"10.1186/s12961-025-01306-y","url":null,"abstract":"<p><strong>Background: </strong>The medical research community widely endorses the importance of ensuring that research outputs are relevant and accessible to knowledge users, as well as the value of engaging the latter in the conduct of research to achieve these goals. However, it appears these principles are reflected in actual medical research practices to a limited extent. To better understand this dissonance, we conducted a qualitative investigation into the perspectives of key stakeholders on bridging the knowledge-to-action gap and patient and public engagement.</p><p><strong>Methods: </strong>The Priorities and Expectations of Researchers, Donors, Patients and the Public Regarding the Funding and Conduct of Medical Research (PERSPECT) qualitative study involved in-depth, semi-structured interviews with representatives of four stakeholder groups. Among other topics, participants were asked to discuss issues related to moving medical research knowledge into action (knowledge translation), including patient and public engagement during the research journey as a prerequisite to the success of this process. We analysed collected data employing an interpretative grounded theory approach. Data collection was ended once thematic saturation had been attained.</p><p><strong>Results: </strong>A total of 41 interviews were completed and analysed (with 10 patients, 10 members of the general public, 11 researchers and 10 funders). Many participants expressed a belief in the importance of engaging patients in the research process, as well as ensuring that study findings reach beyond academic communities. However, multiple challenges and barriers were identified to implementing these values in practice, including: researchers having limited knowledge and tools to foster partnerships with community members; research outputs being inaccessible to the wider public; and the public having insufficient capacity - in view of the required time, effort and knowledge - to assimilate findings and contribute to ongoing research. Cumulatively, interviews indicated a continuing disconnect between research and lay communities, where each stakeholder group holds some responsibility for improving the current paradigm.</p><p><strong>Conclusions: </strong>Existing gaps in communication, knowledge and relevant competencies are fuelling a disconnect between research and lay communities. Successfully moving research knowledge into action requires joint efforts of multiple stakeholder groups with support from external resources to ensure necessary training, expertise and credible dissemination platforms.</p>","PeriodicalId":12870,"journal":{"name":"Health Research Policy and Systems","volume":"23 1","pages":"29"},"PeriodicalIF":3.6,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11874800/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143541020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}