Tidsskrift for Forskning i Sygdom og Samfund最新文献_第6页

Doing Illness 做的疾病

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116968

Christian Lenemark

{"title":"Doing Illness","authors":"Christian Lenemark","doi":"10.7146/tfss.v16i31.116968","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116968","url":null,"abstract":"Through three case studies, the article explores how digital media have been used in recent years to depict and comprehend experiences of cancer. It first investigates the illness blog, specifically Swedish journalist and musician Kristian Gidlund’s immensely popular blog In My Body, in which he, from 2011 to 2013, shared the narrative of his struggle with an aggressive, incurable, and ultimately deadly stomach cancer. It continues by discussing Italian engineer, artist, and hacker Salvatore Iaconesi’s digital open-source project La Cura – The Cure (2012), which has great relevance from both the digital and the medical humanities perspectives in the way Iaconesi uses his personal narrative of brain cancer to encourage people to join his struggle to find a cure. Finally, it analyzes the American couple Ryan and Amy Green’s videogame That Dragon, Cancer (2016). A game differing significantly from video and computer games in general and from other games taking cancer as their subject by letting the player enter the role of caregiver to a small child dying of cancer. Expanding on Lisa Diedrich’s theoretical concept of “doing illness”, the article emphasizes the performative dimension of narrating illness in digital media, considering how these authors and creators negotiate with narrative, cultural, and medial scripts when portraying their cancer experiences. It highlights the interactive and participatory dimension of doing illness in digital media, by exploring how the blog, open-source project, and videogame both invite and limit the audience’s opportunities to interact and participate with the illness narrative conveyed.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"89 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116452262","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Text and Context 文本和语境

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116954

L. Nesby, Cathinka Dahl Hambro

引用次数: 1

Cancer narratives on social media as ‘small stories’ 社交媒体上的癌症叙事是“小故事”

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116969

C. Stage

{"title":"Cancer narratives on social media as ‘small stories’","authors":"C. Stage","doi":"10.7146/tfss.v16i31.116969","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116969","url":null,"abstract":"Cancer narratives shared on social media platforms have received increased academic interest over the last decade but often without sufficiently acknowledging the media specific narrative affordances of these platforms. The article will address this problem, by first presenting a ‘small stories’ approach to studying illness narrative on social media and then putting the approach to work in a case study of a Danish cancer patient’s Instagram profile (@jannelivsnyder66). The paper argues, that the storytelling practices on the profile can be analytically approached by focusing on the interplay between three co-constitutive levels of interaction: 1) a level of the desired illness narrative and position that the narrator, influenced by available cultural discourses and interaction with followers, hopes to be able to tell; 2) a level of sharing everyday posts, which can either support or disturb the desired narrative; 3) a level of follower responses, where relations between the desired narrative and singular posts are monitored through processes of liking and commenting. Followers of social media cancer narratives should in light of this not be understood as an audience witnessing an individual telling his/her “own” story, but rather as crucial contributors to the social interaction and co-creation of desired narratives, subject positions, narrative progress and tellability. In conclusion, the article thus stresses that cancer storytelling on social media, despite the strong biological connection of the disease to an individual body, emerges through inherently social processes of reading, liking, commenting, monitoring and co-deciding narrative practices.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"5 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"133204514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The included outlaw 包括不法分子

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116957

I. Ramberg

{"title":"The included outlaw","authors":"I. Ramberg","doi":"10.7146/tfss.v16i31.116957","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116957","url":null,"abstract":"This article presents an analysis of Amalie Skram’s 1895 novel Professor Hieronimus, with an emphasis on the seclusion aspect of this patient narrative. In the article, I give a close reading of the novel where I make use of insights from theorists from different disciplines, such as Shoshana Felman, Erving Goffman and Giorgio Agamben. The intent of the analysis, is to show how Skram manages to expose the rigid social categories that characterize the total institution in which the novel’s protagonist, Else Kant, claims to be wrongfully lodged. Through a critical assessment of the institutional hierarchy, both social and medical, Amalie Skram makes her novel well-suited for the type of interdisciplinary readings that in the last couples of decades have expanded and become more accessible, thanks in part to the emergence of the field of literature and medicine. This development grants us the opportunity to revisit the works of the Scandinavian literary canon with a fresh theoretical perspective, where fiction bears the potential to articulate aspects of the patient experience that has yet to be encapsulated by theory. This article shows how this phenomenon includes studies that are not limited to this interdisciplinary field alone, meaning that a complex patient narrative such as Skram’s Professor Hieronimus is accessible to a broader theoretical material as well.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"28 1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128447028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A typical patient with depression? 一个典型的抑郁症患者?

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116959

H. S. Pedersen, A. Davidsen

{"title":"A typical patient with depression?","authors":"H. S. Pedersen, A. Davidsen","doi":"10.7146/tfss.v16i31.116959","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116959","url":null,"abstract":"In Denmark and internationally there is a push for enhanced collaboration between general practice and the psychiatric sector in the treatment of patients with depression. Linguistic and other qualitative studies into doctor-patient interaction have shown that general practitioners (GPs) and psychiatrists have different understandings of depression, which could hamper collaboration. The present study adds to linguistic research of the understanding of depression in the two sectors by examining healthcare communication in a context of representation: how doctors talk about their patients in interviews, rather than how they communicate with their patients in consultations. We demonstrate that the two groups of doctors have diverging representations of patients with depression. Most GPs present patients as individuals whose condition is explained by psychosocial circumstances; whereas psychiatrists predominantly present patients as categories. This difference is evidenced by how the two groups respond to the interviewer’s elicitation of patient stories. The GPs employ personal or specific narrative genres, whereas the psychiatrists use general narrative genres, indicating that the two groups occupy their own separate spaces within what is termed the narrative field. We also demonstrate that these different representations concur with variations in interactional patterns in the interview context, enhancing the gap between the professional identities of the two groups of doctors and, consequently, their conceptualizations of depression. The difference between the groups could be suggestive of cultural differences between the two sectors, caused by their different roles and working conditions in the health care system, which could pose a challenge to future cooperation.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"149 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122418821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bridging Disciplines 桥接的学科

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116960

L. Lauritzen

{"title":"Bridging Disciplines","authors":"L. Lauritzen","doi":"10.7146/tfss.v16i31.116960","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116960","url":null,"abstract":"In 2016, the Norwegian government announced that public health and life mastery would be an overarching topic in all the subjects in high schools. Empathy may predict mental health issues, and fiction can encourage empathy. This article illustrates narrative empathy through the Norwegian novel Begynnelser (Beginnings) (2017) by Carl Frode Tiller. The aim is, to give a theoretical account of combined methods and insights from literary studies and narrative medicine in order to investigate how narrative empathy can emphasize mental health and life mastery in Norwegian literature when taught in high school. The article draws upon the thoughts of Bloom, Nussbaum, van Lissa et al. and Bryant on empathy and its meaning, Suzanne Keen’s theory of narrative empathy and pedagogical perspectives from the field of narrative medicine, represented by Rita Charon. Begynnelser connects to the concept of life mastery and through a close reading of the novel in a sociocultural context, students can learn to recognize important details in the text. Character identification and narrative situation are two main techniques in narrative empathy and in the novel by Tiller. This article reflects upon, how students can identify with the main character, in terms of both categorical and situational empathy, and how the narrative situation can show the reader why the character’s life unfolded as it did. The teacher must adjust the texts and the tasks to the particular group of students, and remember that teaching should not be a therapy session.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116063030","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

‘Human First’: Teaching close reading and creative writing to medical students “以人为本”:教授医学生细读和创意写作

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116961

Sif Stewart-Ferrer, A. Rasmussen

{"title":"‘Human First’: Teaching close reading and creative writing to medical students","authors":"Sif Stewart-Ferrer, A. Rasmussen","doi":"10.7146/tfss.v16i31.116961","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116961","url":null,"abstract":"The University of Southern Denmark has introduced a mandatory course in Narrative Medicine into the curriculum of undergraduate medical students. It is part of a trajectory called ‘Human First’, which aims to improve the students’ empathic abilities by teaching them narrative competencies to draw on in their future clinical encounters as medical doctors. Although, theoretical accounts seem to make a strong case for the utility and value of educational interventions, such as courses in narrative medicine or medical humanities, there has been a lack of empirical studies providing evidence to support such accounts – especially those focusing on the long-term effects and impact on patient care. Our systematic literature search and review of empirical studies regarding the effects of teaching close reading of fictional texts and creative writing to medical and health care students, tentatively confirmed previous indications of positive effects. Larger, multi-site and more rigorous studies that assess the long-term impacts of these educational interventions and adjust for local variations are, however, still in short supply. Finally, we present critical reflections on whether empathy and similar phenomena are at all measurable and discuss the possibility of meaningfully evaluating the utility of curricular interventions such as narrative medicine courses.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"154 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"127338325","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Living with illness 与疾病共存

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116967

L. Nesby

引用次数: 0

“I’m sure that there is something healing in the writing process” “我相信在写作的过程中会有一些治愈的东西。”

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116963

H. Hansen, S. S. Laursen, A. Zwisler, Anders Juhl Rasmussen

{"title":"“I’m sure that there is something healing in the writing process”","authors":"H. Hansen, S. S. Laursen, A. Zwisler, Anders Juhl Rasmussen","doi":"10.7146/tfss.v16i31.116963","DOIUrl":"https://doi.org/10.7146/tfss.v16i31.116963","url":null,"abstract":"The University of Southern Denmark has introduced a mandatory course in Narrative Medicine into the curriculum of undergraduate medical students. It is part of a trajectory called ‘Human First’, which aims to improve the students’ empathic abilities by teaching them narrative competencies to draw on in their future clinical encounters as medical doctors. Although, theoretical accounts seem to make a strong case for the utility and value of educational interventions, such as courses in narrative medicine or medical humanities, there has been a lack of empirical studies providing evidence to support such accounts – especially those focusing on the long-term effects and impact on patient care. Our systematic literature search and review of empirical studies regarding the effects of teaching close reading of fictional texts and creative writing to medical and health care students, tentatively confirmed previous indications of positive effects. Larger, multi-site and more rigorous studies that assess the long-term impacts of these educational interventions and adjust for local variations are, however, still in short supply. Finally, we present critical reflections on whether empathy and similar phenomena are at all measurable and discuss the possibility of meaningfully evaluating the utility of curricular interventions such as narrative medicine courses.","PeriodicalId":110718,"journal":{"name":"Tidsskrift for Forskning i Sygdom og Samfund","volume":"36 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114457813","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Medicalized Literary Criticism in Fin de Siècle Norway 挪威医学化文学批评

Tidsskrift for Forskning i Sygdom og Samfund Pub Date : 2019-10-31 DOI: 10.7146/tfss.v16i31.116970

S. Warberg

引用次数: 0