First Nations Health and Wellbeing - The Lowitja Journal最新文献

{"title":"Cultural safety in practice: An evaluation of an online learning module series in preparing physiotherapy students for practice","authors":"Curtley Nelson,&nbsp;Allison Mandrusiak,&nbsp;Roma Forbes","doi":"10.1016/j.fnhli.2025.100065","DOIUrl":"10.1016/j.fnhli.2025.100065","url":null,"abstract":"<div><h3>Purpose</h3><div>Physiotherapists play an important role in the provision of safe and effective healthcare for First Nations Australians; however, little is known about how entry-level physiotherapy students can be supported to learn about cultural safety prior to engaging with First Nations Australians in professional healthcare settings. This study aimed to evaluate the effect of an online learning module in developing entry-level physiotherapy students’ cultural capabilities and awareness of cultural safety in preparation for professional practice and delivery of physiotherapy care for First Nations Australians.</div></div><div><h3>Methods</h3><div>This mixed methods study was implemented in a population of undergraduate and masters entry-level physiotherapy students at The University of Queensland, Australia. Participants engaged with a series of online modules, underpinned by constructivist pedagogical principles, integrated as a core component of their curriculum studies. Participants completed the Cultural Capability Measurement Tool (CCMT) before and after the intervention, and their perspectives on learning experiences were subsequently explored through qualitative focus group interviews, which were transcribed and subjected to reflexive thematic analysis.</div></div><div><h3>Main findings</h3><div>Total CCMT scores were significantly higher following completion of the online module series (<em>n</em> = 52; <em>P</em> &lt; .05) and statistically significant improvements were demonstrated across five individual items (items 5, 18, 19, 20 and 22). Three themes were generated from focus group data (<em>n</em> = 10): establishing a fundamental understanding of cultural safety in preparation for placement; online learning supports self-reflection; and seeking person-to-person reflection and experiences.</div></div><div><h3>Principal conclusions</h3><div>The results indicate that physiotherapy students’ cultural capabilities improved after completing the online learning module series. Participants highlighted that the module series developed their foundational knowledge of cultural safety and allowed them to engage in self-reflection prior to practical placement. Participants emphasised the desire to engage in person-to-person reflection following the self-paced online module series and expressed the need for additional opportunities to participate in immersive experiences with First Nations Australians to support their own cultural safety learning journey.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100065"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144138429","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reproductive injustice in action: The impact of the Supreme Court’s Dobbs decision on Indigenous and minority women","authors":"Margo Hill ,&nbsp;Frank Houghton ,&nbsp;Mary Ann Keogh Hoss","doi":"10.1016/j.fnhli.2024.100042","DOIUrl":"10.1016/j.fnhli.2024.100042","url":null,"abstract":"<div><div>The United States of America (USA) is a country founded upon an unholy trinity of genocide, slavery and ethnic cleansing. The impacts of this assault remain blatantly clear and can be seen across the whole country. A crucial insight into the state of USA society is afforded via its significant health inequities. Systemic and structural racism are widespread there, as are engrained racist attitudes and ideologies. One field in which this is particularly evident is maternal mortality. The racial dimensions of this iniquity are blatant and unacceptable. However, to compound an ongoing tragedy, the recent Supreme Court decision to roll back on abortion protections represents an assault that will have a highly disproportionate impact on Indigenous and minority pregnant women.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100042"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143550474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A network cross-cultural validation of the Parenting Sense of Competence Scale between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians","authors":"Pedro Henrique Ribeiro Santiago ,&nbsp;Alyssa Sawyer ,&nbsp;Joanne Hedges ,&nbsp;Michael Sawyer ,&nbsp;Lisa Jamieson","doi":"10.1016/j.fnhli.2025.100058","DOIUrl":"10.1016/j.fnhli.2025.100058","url":null,"abstract":"<div><h3>Purpose</h3><div>The Parenting Sense of Competence Scale (PSOC) is the most used instrument worldwide to measure parenting sense of competence. Considering that cultural differences influence parenting practices, an investigation of cross-cultural validity was required to ensure that PSOC scores can be compared between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians. To address this research gap, this study employed network psychometrics to investigate the cross-cultural validity of the PSOC between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians.</div></div><div><h3>Methods</h3><div>The study investigated the network psychometric properties of the PSOC instrument, specifically: (1) model estimation; (2) item redundancy; (3) dimensionality; (4) measurement invariance; (5) model fit; (6) criterion validity; and (7) reliability. The network model that was used was the Gaussian graphical model estimated with the graphical least absolute shrinkage and selection operator. Dimensionality was evaluated with exploratory graph analysis. Measurement invariance was evaluated via permutation testing. Data were from the South Australian Aboriginal Birth Cohort (n=178) and eMums study (n=107).</div></div><div><h3>Main findings</h3><div>The findings indicated that, after accounting for item redundancy, a revised 14-item version of the PSOC displayed the two theoretical dimensions of Efficacy and Satisfaction and was cross-culturally valid among Aboriginal and non-Aboriginal Australians.</div></div><div><h3>Principal conclusions</h3><div>The revised 14-item PSOC displayed excellent psychometric properties and is readily available to be used in Australia.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100058"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143817651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring medicine exposure in whānau Māori reported to the Aotearoa New Zealand National Poisons Centre","authors":"Chloe Light (Ngati Porou, Te Atiawa) ,&nbsp;Eeva-Katri Kumpula (Tauiwi) ,&nbsp;Liza Edmonds (Ngāpuhi, Ngāti Whātua) ,&nbsp;Amber Young (Taranaki, Ngā Mahanga)","doi":"10.1016/j.fnhli.2025.100066","DOIUrl":"10.1016/j.fnhli.2025.100066","url":null,"abstract":"<div><h3>Purpose</h3><div>The Aotearoa New Zealand National Poisons Centre (NPC) advises the public and health professionals on the management of any substance exposure (poisoning), including exposure to medicines occurring in unintended ways, such as overdose or administration to the wrong patient. This study aimed to i) identify the top five medicines most frequently resulting in exposure reported to the NPC in whānau Māori (Māori extended families); ii) identify the reasons for exposure to medicines in whānau Māori in contact with the NPC and the sites of exposure incidents; and iii) characterise the advice provided by the NPC in these cases.</div></div><div><h3>Methods</h3><div>This retrospective study used de-identified data from contact with the NPC during 2019–23 where the patients were of Māori ethnicity, to identify the medicines most frequently resulting in exposure in Māori kaumātua (age 65 years and over), pakeke (age 20 to 64 years), rangatahi Māori (age 13 to 19 years) and tamariki Māori (age 0 to 12 years). The sites where these exposures occurred, the reasons for exposures, and advice provided by NPC were characterised.</div></div><div><h3>Main findings</h3><div>The NPC provided advice in 7,493 records of patients who identified as Māori ethnicity and who had been exposed to at least one medicine. Paracetamol and ibuprofen were the most frequently reported medicines in all age groups except kaumātua, whose exposure most frequently involved metoprolol, acetylsalicylic acid and paracetamol. A clear majority of records were due to unintentional exposure (3,967; 53%) or therapeutic error (2,057; 27%), occurring amongst tamariki Māori (4,686; 63%), in residential settings (7,141; 95%), and being advised to manage at home or that no treatment was needed (5,317; 71%). Intentional exposure increased in rangatahi Māori over the study period (from 0.4 to 1.3 records/1,000 person-years).</div></div><div><h3>Principal conclusion</h3><div>Given the numbers of whānau Māori using the NPC services, there is a need for systematic support for whānau about the potential harm of medicines and how to safely manage medication. This study highlights the importance of safe storage of medicines at home to prevent tamariki Māori and rangatahi Māori from gaining unsafe access. Future research needs to explore ways of whānau Māori-led solutions for safer medicine storage and to explore solutions to reduce intentional exposure, especially in rangatahi Māori, and reasons why this may be increasing over time.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100066"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144230044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"You’ve got to have faith in the carers that are looking after you: Investigation into the care experiences of older Māori in aged residential care, community and Whānau settings in New Zealand","authors":"Karen Keelan (Ngāti Porou) PhD,&nbsp;Suzanne Pitama (Ngāti Rongomaiwahine) PhD,&nbsp;Tim Wilkinson (Pākehā) PhD,&nbsp;Cameron Lacey (Te Ati Awa) PhD","doi":"10.1016/j.fnhli.2025.100044","DOIUrl":"10.1016/j.fnhli.2025.100044","url":null,"abstract":"<div><h3>Purpose</h3><div>Despite having high health needs, older Māori, the Indigenous peoples of New Zealand, have lower service utilisation of aged residential care (ARC) services. This study aimed to examine the role of clinical healthcare professionals and the influence that whānau have, which may impede or facilitate older Māori utilisation of ARC, through the reported experiences of older Māori.</div></div><div><h3>Methods</h3><div>This study utilised a Kaupapa Māori research methodology as a critical lens to frame qualitative research methods. Interview data were collected from interviews with older Māori (<em>n</em> = 30) and whānau members (<em>n</em> = 18). Interviews were transcribed verbatim and analysed thematically.</div></div><div><h3>Main findings</h3><div>Three themes and associated subthemes were identified and aligned with the context of where older Māori receive care: ARC (Knowledge and awareness of tikanga-informed care practice, Interpersonal care and Trusting relationships with carers); Community-based services (Transitions and communication, Medication and management and Community care provision); and Whānau care settings (Value of whānau care and Carer burden and preserving whānau relationships).</div></div><div><h3>Principal conclusions</h3><div>Illuminating older Māori and whānau perspectives of care experiences is essential for understanding the impact of culture in clinical interactions and ARC service delivery. Advancing health equity through cultural safety education programs and building a culturally diverse health workforce is crucial to improving existing and future ARC service delivery.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100044"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143941950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ending rheumatic heart disease in Aboriginal and Torres Strait Islander communities: A systematic review of prevention programs in Australia","authors":"Yumeng Cai ,&nbsp;Lori J. Delaney ,&nbsp;Debby Lynch ,&nbsp;Jacqueline Cunninghame ,&nbsp;Mari Takashima ,&nbsp;Amanda Ullman ,&nbsp;Maree Toombs ,&nbsp;Antonella Martin ,&nbsp;Kate Thompson ,&nbsp;Karina Maxwell ,&nbsp;Jane Moore ,&nbsp;Catherine Kilgour ,&nbsp;Lorelle Holland","doi":"10.1016/j.fnhli.2024.100040","DOIUrl":"10.1016/j.fnhli.2024.100040","url":null,"abstract":"<div><h3>Purpose</h3><div>Australia has one of the highest incidences of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in the world, with a disproportionate disease burden on Aboriginal and Torres Strait Islander communities. This systematic review aimed to explore the effectiveness and cultural responsiveness of prevention programs to prevent, reduce and control RHD, to improve quality of life, and prioritise community engagement and empowerment.</div></div><div><h3>Methods</h3><div>A systematic review was conducted involving a comprehensive search of three databases (PubMed, Embase and CINAHL) and grey literature from Australian Indigenous websites and Google Scholar. Articles met inclusion criteria if they evaluated prevention programs, targeted ARF/RHD and centred Aboriginal and Torres Strait Islander communities in Australia. Data were extracted by three reviewers, and results were descriptively analysed. Study quality was appraised via the Mixed Methods Appraisal Tool and the Aboriginal and Torres Strait Islander Quality Appraisal Tool.</div></div><div><h3>Main findings</h3><div>Eleven peer reviewed articles were included. Prevention programs varied in their effectiveness and cultural responsiveness to reduce ARF and RHD. Overall, the studies scored higher for generalised methodological quality determined by the Mixed Methods Appraisal Tool than the measurement of cultural responsiveness via the Aboriginal and Torres Strait Islander Quality Appraisal Tool. Research engagement with Aboriginal and Torres Strait Islander communities addressed ways to improve screening strategies to identify ARF, awareness of RHD adherence to penicillin prophylaxis, community-led education and training, environmental health and community-centred traditional language to convey culturally responsive health messaging.</div></div><div><h3>Principal conclusions</h3><div>Further research is urgently needed in the provision of effective and culturally responsive prevention programs to reduce the incidence of ARF and RHD. Studies that centre Indigenous-led and community-based prevention programs that value self-determination, community agency and autonomy to advance holistic health and wellbeing for Aboriginal and Torres Strait Islander peoples offer promise in the elimination of ARF and RHD.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100040"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143419206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Prioritising the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples receiving home-based aged care: An exploratory study","authors":"Odette Pearson (Kuku Yalanji & Torres Strait Islander) ,&nbsp;Jonathon Zagler ,&nbsp;Matilda D’Antoine (Paakantyi) ,&nbsp;Tina Brodie (Yawarrawarrka & Yandruwandha) ,&nbsp;Kate Smith ,&nbsp;Aunty Martha Watts (Arabana) ,&nbsp;Tameeka Ieremia (Arabana) ,&nbsp;Graham Aitken (Yankunytjatjara) ,&nbsp;Alex Brown (Wadi Wadi & Yuin) ,&nbsp;Adriana Parrella","doi":"10.1016/j.fnhli.2024.100021","DOIUrl":"https://doi.org/10.1016/j.fnhli.2024.100021","url":null,"abstract":"<div><h3>Purpose</h3><p>To explore community and workforce perspectives on how the Home Care Package (HCP) program supports the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples.</p></div><div><h3>Methods</h3><p>This qualitative design study included semi-structured interviews and a focus group with Aboriginal and Torres Strait Islander peoples receiving an HCP (<em>n</em> = 15) and aged care workers providing service coordination to Aboriginal and Torres Strait Islander peoples (<em>n</em> = 7) across metropolitan, rural and remote areas of South Australia. Semi-structured interviews and the focus group took place between March 2022 and February 2023. Data were analysed using thematic analysis.</p></div><div><h3>Main findings</h3><p>Twenty-two participants were involved in this study. Seven themes representing how the HCP program supports, or could better support, the SEWB of clients were identified: 1) maintaining independence, 2) supporting grief and loss, 3) facilitating social connections, 4) promoting choice and control, 5) assessment and funding, 6) cross-sectoral support and 7) strengthening the workforce.</p></div><div><h3>Principal conclusions</h3><p>The findings contribute to a deeper understanding of the unique SEWB needs of Aboriginal and Torres Strait Islander peoples accessing home-based aged care services and have significant implications for current and future aged care reforms in Australia.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100021"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000123/pdfft?md5=285c6eaf94192d2e61947e4eda563cab&pid=1-s2.0-S2949840624000123-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141243334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Learning from COVID-19 communication with speakers of First Nations languages in Northern Australia: Yolŋu have the expertise to achieve effective communication","authors":"Anne Lowell ,&nbsp;Rachel Dikul Baker ,&nbsp;Rosemary Gundjarranbuy ,&nbsp;Emily Armstrong ,&nbsp;Alice Mitchell ,&nbsp;Brenda Muthamuluwuy ,&nbsp;Stuart Yiwarr McGrath ,&nbsp;Michaela Spencer ,&nbsp;Sean Taylor ,&nbsp;Elaine Läwurrpa Maypilama","doi":"10.1016/j.fnhli.2024.100033","DOIUrl":"10.1016/j.fnhli.2024.100033","url":null,"abstract":"<div><h3>Purpose</h3><div>Achieving effective communication about COVID-19 was recognised as crucial from the earliest stages of the pandemic. In the Northern Territory, where most First Nations residents primarily speak an Aboriginal language and few health staff share their languages and cultural backgrounds, achieving effective communication is particularly challenging. It is imperative that speakers of First Nations languages, who best understand their challenges and solutions, inform future health communication policy and practice. This study was conducted with one First Nations language group – Yolŋu<span><span>¹</span></span>, from North-East Arnhem Land – to share their experiences of COVID-19 communication.</div></div><div><h3>Methods</h3><div>Through a culturally responsive qualitative approach, a team of Yolŋu and other researchers engaged with Yolŋu community members and educators, and with Balanda<span><span>²</span></span> (non-Indigenous) staff who were involved in communicating about COVID-19 with Yolŋu. Data collection included in-depth interviews with 37 participants (27 Yolŋu, 10 Balanda) in their preferred languages, collaborative critical review of COVID-19 resources in Yolŋu languages, and documented researcher observations and reflections. The design was informed by extensive previous collaborative work in this context using culturally congruent methods.</div></div><div><h3>Main findings</h3><div>This study identified grave limitations in communication about COVID-19 with Yolŋu. COVID-19 communication was dominated by outsider prepared messages shared through social media and radio, often focusing on directives about what to do without explaining why. Inadequate engagement of Yolŋu in planning and implementation contributed to communication failure. Participants also identified how effective communication can be achieved: engaging local leaders and knowledge authorities at the outset to identify and implement locally relevant and feasible solutions; collaborative development of in-depth explanations matched to what Yolŋu want and need to know to make informed decisions; and face-to-face, ongoing communication in local languages by local educators, using communication processes aligned with Yolŋu cultural protocols and preferences.</div></div><div><h3>Principal conclusions</h3><div>Yolŋu have cultural knowledge, authority and processes to respond to health crises and communication challenges. However, during the COVID-19 pandemic, dominant culture health communication processes and priorities were privileged. Persisting with communication approaches that are not informed by relevant and available evidence is unethical and ineffective. Sustained community led approaches to health communication, supported by health services and systems, are crucial to achieve effective health communication with speakers of First Nations languages beyond the COVID-19 pandemic.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100033"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142660219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Challenges and lessons learnt implementing longitudinal studies of Aboriginal and Torres Strait Islander children and young people: A qualitative study","authors":"Catherine Lloyd-Johnsen ,&nbsp;Anita D’Aprano ,&nbsp;Sharon Goldfeld ,&nbsp;Sandra Eades Noongar","doi":"10.1016/j.fnhli.2024.100029","DOIUrl":"10.1016/j.fnhli.2024.100029","url":null,"abstract":"<div><h3>Purpose</h3><p>Scant attention has been paid to the experiences of researchers engaged in cohort studies of minority populations such as Indigenous children and their families. This qualitative study aimed to explore the practical challenges, strategies and solutions used by researchers representing 10 prospective cohort studies of Australian Aboriginal and Torres Strait Islander children and young people.</p></div><div><h3>Methods</h3><p>Eighteen researchers, 44.5% of whom identified as Aboriginal, were interviewed. Reflexive thematic analysis was conducted.</p></div><div><h3>Main findings</h3><p>Four overarching themes were generated from the dataset: (1) getting things just right; (2) build and nurture connections with community and staff; (3) ‘sit and yarn with them’: approaches to recruitment and retention; and (4) great responsibility. These themes underline the importance of developing early community partnerships to guide the scope and direction of the research, building a solid team of local Aboriginal researchers with community connections, and prioritising two-way learning and feedback loops from the beginning.</p></div><div><h3>Principal conclusions</h3><p>It is imperative to take a flexible and pragmatic approach to longitudinal studies involving Aboriginal children and their families that minimises participant burden while respecting local needs and priorities. Lessons learnt will be useful to new researchers undertaking, or planning to undertake, longitudinal research with First Nations populations.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100029"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000202/pdfft?md5=4e2f2c7ddb81bfda428df2112f862843&pid=1-s2.0-S2949840624000202-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142044555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Kaumātua (Elders) insights into Indigenous Māori approaches to understanding and managing pain: A qualitative Māori-centred study","authors":"Eva Morunga Te Rarawa, Ngā Puhi ,&nbsp;Debbie J. Bean Pākehā/New Zealand European ,&nbsp;Korina Tuahine Ngati Kahungunu ki Wairoa ,&nbsp;Karlee Hohepa Ngāpuhi/Tainui ,&nbsp;Gwyn N. Lewis Pākehā/New Zealand European ,&nbsp;Donald Ripia Ngāi Tūhoe, Ngāpuhi ,&nbsp;Gareth Terry Pākehā/New Zealand European","doi":"10.1016/j.fnhli.2024.100025","DOIUrl":"10.1016/j.fnhli.2024.100025","url":null,"abstract":"<div><h3>Purpose</h3><p>Chronic pain/mamae is a major public health problem worldwide, and disproportionately affects Indigenous populations impacted by colonisation. In Aotearoa New Zealand, Indigenous Māori experience a greater burden of chronic pain than non-Māori. However, pain services based on Western models are unlikely to adequately meet the needs of Indigenous peoples. Little is published about traditional Māori views of, or approaches to, managing mamae/pain, knowledge that is traditionally held by Kaumātua/Elders. Therefore, this study aimed to understand Kaumātua (Māori Elder) views on the effects of pain, traditional pain management practices and mātauranga Māori (Māori knowledge) relating to managing pain.</p></div><div><h3>Methods</h3><p>Fourteen Kaumātua participated in individual interviews or a hui/focus group. Methods honoured tikanga (Māori protocol) and centralised whanaungatanga (relationships). Interviews and the hui/focus group were transcribed, and reflexive thematic analysis was conducted.</p></div><div><h3>Main findings</h3><p>Three themes were developed: 1. <em>The multidimensional aspects of pain</em>. Pain stretched beyond the physical and encompassed emotional and mental trauma, wairua/spiritual pain, grief from the loss of loved ones, contamination of the environment or breaches of tikanga/protocol. Some mamae/pain was described as everlasting, passing between people or generations. 2<em>.Whakawhanaungatanga/relationships: Healing through connection.</em> Healing of pain was seen to occur through strengthening connections with people, the spiritual realm, the natural world and with papakāinga (one’s ancestral homeland). 3.<em>Tino Rangatiratanga/self-determination: Strength to self-manage pain.</em> Self-reliance to manage pain and self-determination to make health decisions were critical, and a stoical approach to pain was described. Stoicism was noted to avoid perceptions of weakness and burdening whānau/family, but may inhibit emotional expression, connection and healing.</p></div><div><h3>Principal conclusions</h3><p>Mātauranga Māori/Māori knowledge emphasises that pain and its healing should be considered multidimensional, incorporating physical, mental and relational components, existing in the spiritual realm and incorporating links between people, places, the past and future. Individuals may approach pain with a stoical approach, which has both positive and negative features. Pain services may wish to incorporate this knowledge of the spiritual, social and psychological aspects of pain and pain management to provide more meaningful care for people with pain.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100025"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000160/pdfft?md5=cbd4c06c3f060593a38cd4e02347defb&pid=1-s2.0-S2949840624000160-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141949607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}