First Nations Health and Wellbeing - The Lowitja Journal最新文献

{"title":"Racism and cultural safety for Indigenous general practice trainees: An exploratory study of how to support training, careers and professional wellbeing","authors":"Talila Milroy (Yindjibarndi and Palyku),&nbsp;Jacqueline Frayne","doi":"10.1016/j.fnhli.2024.100038","DOIUrl":"10.1016/j.fnhli.2024.100038","url":null,"abstract":"<div><h3>Purpose</h3><div>Racism as a social determinant of health has known impacts on the physical and mental health of Indigenous peoples, which extends to Indigenous doctors in training and is a barrier to the growth of the Indigenous health workforce in Australia. This study aimed to explore racism and cultural safety within the professional experiences of Australian Indigenous general practice (GP) trainees, to elucidate barriers and facilitators to their training, careers and professional wellbeing.</div></div><div><h3>Methods</h3><div>A sequential exploratory mixed methods study was conducted in 2020 and 2021 through an initial quantitative online administered questionnaire followed by qualitative semi-structured interviews with Indigenous GP registrars, from either metropolitan or rural areas, undertaking GP training in Australia. The main outcome measures included online responses to the Measure of Indigenous Racism Experiences (MIRE) questionnaire, which measures several dimensions of racism, and data from thematic analysis of semi-structured interviews undertaken following the online questionnaire.</div></div><div><h3>Main findings</h3><div>The MIRE questionnaire responses revealed experiences of racism across multiple levels. These findings were integrated and expanded with the central themes drawn from the interviews. Themes focused on GP training and training environments and operated across interactions with peers, supervisors and patients. The identified themes were i) cultural identity, with the subthemes of professional wellbeing and professional goals and identity; ii) training challenges, including racism and career development; and iii) training facilitators, including specific support and mentorship.</div></div><div><h3>Principal conclusions</h3><div>Australian Indigenous GP trainees value their cultural identity in relation to their professional goals and wellbeing. However, challenges for trainees centre around the lack of cultural safety and presence of racism, which is pervasive across their professional life. Strategies to address this could include further provision of specific support, specific culturally safe training placements, networking and mentorship.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100038"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143419205","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Measuring resilience using Strong Souls in the Longitudinal Study of Indigenous Children: Evaluating psychometric properties using a Rasch measurement approach","authors":"Ella Gorman ,&nbsp;Roz Walker ,&nbsp;Helen Davis ,&nbsp;Carrington C.J. Shepherd ,&nbsp;Rhonda Marriott (Nyikina)","doi":"10.1016/j.fnhli.2024.100037","DOIUrl":"10.1016/j.fnhli.2024.100037","url":null,"abstract":"<div><h3>Purpose</h3><div>Rigorously evaluated psychometric instruments are necessary to measure constructs relevant to wellbeing, such as resilience. The availability of high-quality instruments for use with Aboriginal young people in Australia is growing but remains limited. This study used data from the Longitudinal Study of Indigenous Children (LSIC) to psychometrically evaluate the Resilience subscale from the social and emotional wellbeing (SEWB) instrument, Strong Souls, for a nationwide sample of Aboriginal adolescents, using alternative psychometric methods to previous research.</div></div><div><h3>Methods</h3><div>Using a Rasch measurement approach, cross-sectional data from Wave 9 of LSIC were used to ascertain the psychometric properties of the Resilience subscale from Strong Souls. Using the responses from 516 Aboriginal young people (age 11.5 to 13 years) to the 12-item scale, Rasch techniques were applied to determine item independence, response category adequacy, differential item functioning (DIF), person and item reliability, item fit and unidimensionality. Two versions of the instrument were evaluated: the full 12-item version, as completed by participants, and an 8-item version, as recommended for use by previous research based on different psychometric methods.</div></div><div><h3>Main findings</h3><div>Both versions of the instrument met several Rasch model requirements for reliable measurement, including demonstrations of unidimensionality (first off factor construct &lt; 2), item independence (all items Q_3∗ &lt; 0.30), and item fit statistics within an acceptable range (0.60 &lt; X &lt; 1.40). However, both instrument versions displayed less adequate person separation (PSI) and reliability (PRI) statistics (12-item scale: PSI = 1.18, PRI = 0.58; 8-item scale: PSI = 0.71, PRI = 0.33).</div></div><div><h3>Principal conclusions</h3><div>Using a Rasch measurement approach to psychometrically evaluate the Strong Souls Resilience subscale in a sample of Aboriginal young people from LSIC, this study provided novel evidence of the functioning of this popular instrument from an alternative psychometric perspective. With mixed results regarding meeting Rasch recommendations, these findings provide a strong evidence base for psychometric strengths as well as opportunities to improve the robustness of this instrument, and ultimately offer a tool that can more accurately inform services, policy and practice to effectively support resilience and wellbeing in Aboriginal young people.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100037"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143487465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What about the soles: We need the primary data in Aboriginal and Torres Strait Islander foot health to ‘Close the Gap’","authors":"James A. Charles (Kaurna) ,&nbsp;Elizabeth Tiernan ,&nbsp;Sara Jones","doi":"10.1016/j.fnhli.2024.100041","DOIUrl":"10.1016/j.fnhli.2024.100041","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100041"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143437998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Community acceptability of lowering the eligibility age of government funded bowel screening for Aboriginal South Australians to 40 years","authors":"Karla J. Canuto (Naghir Tribe of the Kulkalgul Clan) ,&nbsp;Eugene Warrior (Wirangu, Bungala, Kokatha and Antakerinya) ,&nbsp;Sharon Clarke (Wergaia, Wemba Wemba, Djadwajali and Gunditjmara) ,&nbsp;Nathan Rigney (Ngarrindjeri) ,&nbsp;Jie-Bin Lew ,&nbsp;Eleonora Feletto ,&nbsp;Katina D’Onise","doi":"10.1016/j.fnhli.2025.100045","DOIUrl":"10.1016/j.fnhli.2025.100045","url":null,"abstract":"<div><h3>Purpose</h3><div>Building on a study that found that lowering the age of bowel screening for Aboriginal and Torres Strait Islander peoples to 40 years would be cost-effective, this research examined the acceptability of lowering the bowel screening age for Aboriginal and Torres Strait Islander peoples in South Australia.</div></div><div><h3>Methods</h3><div>Aboriginal community members aged &lt; 50 years were recruited to form Aboriginal men’s (16 men) and women’s (nine women) bowel cancer screening councils. The councils were presented with detailed information relating to the topic and deliberated over two days.</div></div><div><h3>Main findings</h3><div>The men’s and women’s councils were unanimous in their support for reducing the age of bowel screening for Aboriginal and Torres Strait Islander peoples. The councils identified barriers to reducing the age at participation, and participation in screening in general. Both councils were highly engaged in the process of the two-day deliberation.</div></div><div><h3>Principal conclusions</h3><div>Lowering the age range for Aboriginal and Torres Strait Islander peoples participating in the bowel screening program to 40 years was acceptable to both Aboriginal bowel cancer screening councils.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100045"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684277","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"First Peoples’ cultural medicines: A review of Australian health policies using an Indigenous critical discourse analysis approach","authors":"Alana Gall (Pakana, Truwulway) ,&nbsp;Mike Stephens ,&nbsp;Zyana Gall (Pakana, Truwulway) ,&nbsp;Danielle Armour (Kamilaroi) ,&nbsp;Nicole Hewlett (Melukerdee, Palawa) ,&nbsp;Michelle Kennedy (Wiradjuri) ,&nbsp;Theresa Sainty (Pakana, Truwulway) ,&nbsp;Allyra Hulme (Wiradjuri) ,&nbsp;Jon Wardle ,&nbsp;Megan Campbell ,&nbsp;Andrew T. Gall (Pakana, Truwulway) ,&nbsp;Amie Furlong ,&nbsp;Kate Anderson","doi":"10.1016/j.fnhli.2025.100046","DOIUrl":"10.1016/j.fnhli.2025.100046","url":null,"abstract":"<div><h3>Purpose</h3><div>First Peoples in Australia tend to have shared holistic understandings of health and wellbeing that emphasise strong interconnections among family, community, culture and Country. Central to this holistic health framework is First Peoples’ cultural medicines, which most First Peoples use or want to use, and have been used for millennia to heal the bodies, minds and spirits of First Peoples. This review aimed to explore and document the inclusion and representation of cultural medicines across national level policies and practice guidelines for health professionals. These policies intend to support effective and appropriate healthcare for all Australians, including First Peoples.</div></div><div><h3>Methods</h3><div>Australian national health policies that guide the practice of Australian Health Practitioner Regulation Agency registered health professionals and Aboriginal and Torres Strait Islander health workers/Indigenous liaison officers were systematically reviewed to explore their representation of cultural medicines in these policies. The review was informed by Indigenous critical discourse analysis that was modified to suit the review context. National level health policies from March to June 2023 were mapped and 52 policies eligible for inclusion were identified. Policies were downloaded and imported into NVivo for analysis. NVivo text search queries were conducted and nine policies were found to include any content about cultural medicines.</div></div><div><h3>Main findings</h3><div>Three overarching themes were found: 1) Absence of national leadership; 2) Disproportionate onus placed on Aboriginal and/or Torres Strait Islander health practitioners; and 3) Lack of detail and actionable directives. There was a distinct lack of representation of cultural medicines in national health policies, with most of these policies not providing any clear guidance for health professionals. The responsibility was too heavily placed on First Peoples health professionals to lead the healthcare related to cultural medicines.</div></div><div><h3>Principal conclusions</h3><div>The significant lack of national leadership and actionable directives around cultural medicines is concerning. To uphold cultural safety and the rights of Australia’s First Peoples, it is critical to have clear policy guidance, resources and training that support all Australian health professionals to engage with cultural medicines and see it as part of their responsibility.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100046"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143829695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A methodological approach to generate local solutions that promote Aboriginal and Torres Strait Islander social and emotional wellbeing on Kaurna Country, Australia","authors":"Anna Dawson ,&nbsp;Eugene Warrior (Kokatha/Narungga) ,&nbsp;Odette Pearson (Kuku Yalanji/Torres Strait Islander) ,&nbsp;Mark Boyd ,&nbsp;Judith Dwyer ,&nbsp;Kim Morey (Anmatyerre/Eastern Arrernte) ,&nbsp;Tina Brodie (Yawarrawarrka/Yandruwandha) ,&nbsp;Kurt Towers (Wiradjuri) ,&nbsp;Sonia Waters (descendent of three generations of Stolen Generations women, with connection to Ooldea on the Far West Coast of South Australia) ,&nbsp;Cynthia Avila ,&nbsp;Courtney Hammond (Eastern Arrernte/Tanganekald) ,&nbsp;Katherine Lake ,&nbsp;Uncle Frank Lampard (Ngarrindjeri/Kaurna) ,&nbsp;Uncle Frank Wanganeen (Kaurna/Narungga) ,&nbsp;Olive Bennell (Wiradjuri) ,&nbsp;Darrien Bromley (Narungga/Adnyamathanha) ,&nbsp;Toni Shearing (Narungga/Kokatha) ,&nbsp;Nathan Rigney (Ngarrindjeri) ,&nbsp;Schania Czygan (Kuku Yalanji) ,&nbsp;Nikki Clinch (Badimia/Yamatji) ,&nbsp;Alex Brown (Yuin)","doi":"10.1016/j.fnhli.2025.100043","DOIUrl":"10.1016/j.fnhli.2025.100043","url":null,"abstract":"<div><div>Aboriginal and Torres Strait Islander communities are diverse, strong and faced with adverse social circumstances and unacceptable health and wellbeing outcomes wrought by colonisation. The need for strengths-based initiatives that tailor services according to local knowledges is well accepted, yet few studies have evaluated self-determined strategies to redress the social determinants of health. We describe a research approach where principles of Indigenous methodology guide application of implementation science methods to generate, implement and evaluate local solutions from the perspectives of Aboriginal and Torres Strait Islander peoples. Partnerships with local communities and service organisations are paramount. The co-design phase collected critical insights regarding community needs, challenges and service gaps, and identified shortfalls in local strategic policy. A co-designed theory of systems change articulates mechanisms to strengthen policy, optimise the health and social service system, and empower and connect communities. A developmental approach to the implementation and evaluation of individual, community and service system initiatives will generate new evidence regarding efforts to tackle social factors and promote wellbeing.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100043"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143697482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"First Nations perspectives about youth pregnancy and parenthood in Western Sydney, Australia: A qualitative study","authors":"Simon Graham (Narungga) ,&nbsp;Kacey Martin (Ngāti Pikiao) ,&nbsp;Kristy Gardner (Kamilaroi) ,&nbsp;Mitchell Beadman (Yuin and Wonnarua) ,&nbsp;Michael F. Doyle (Bardi) ,&nbsp;Reuben Bolt (Yuin, Wandandian, Ngarigo) ,&nbsp;Dean Murphy ,&nbsp;Stephen Bell ,&nbsp;Carla Treloar ,&nbsp;Annette J. Browne ,&nbsp;Peter Aggleton ,&nbsp;Karen Beetson (Mandandanji) ,&nbsp;Megan Brooks ,&nbsp;Jessica R. Botfield ,&nbsp;Ben Davis ,&nbsp;Jessica Wilms (Wiradjuri) ,&nbsp;Bronwyn Leece ,&nbsp;Linda Stanbury ,&nbsp;Joanne Bryant","doi":"10.1016/j.fnhli.2025.100047","DOIUrl":"10.1016/j.fnhli.2025.100047","url":null,"abstract":"<div><h3>Purpose</h3><div>Significant improvements have been made in Aboriginal and Torres Strait Islander peoples’ (First Nations) maternal and perinatal outcomes over the past decade, such as decreasing rates of smoking and preterm birth and increasing birthweights. In Australia, higher rates of adolescent pregnancy are reported among First Nations compared with non-First Nations people. Having a baby during adolescence (youth pregnancy) increases the risk of poorer maternal and perinatal outcomes, including social outcomes such as poverty and educational attainment. This study examined First Nations peoples’ perspectives about youth pregnancy and parenthood in Western Sydney, Australia.</div></div><div><h3>Methods</h3><div>Sixty-eight First Nations people aged ≥16 years living in Western Sydney, Australia were interviewed in 2019–20. Interview data were analysed using thematic analysis.</div></div><div><h3>Main findings</h3><div>Approximately half of the participants were aged ≥18 years. Most participants lived with family and around half were high school students. Four themes relating to youth pregnancy and parenthood were identified: 1) youth pregnancy was normalised (e.g. ‘There’s always some young person in [the] community pregnant, if not several… it’s celebrated as well. It’s not so much of a negative thing’); 2) a desire to avoid youth pregnancy (e.g. ‘I think young people try and avoid pregnancy because they don’t wanna be a teen mum’); 3) gendered experiences of youth pregnancy and parenthood (e.g. ‘I don’t think a teenage boy would have like time like for a baby’); and 4) perspectives of caring responsibilities within families (e.g. ‘I feel like within Aboriginal communities, it’s always seen as the oldest kid has to kind of help out the parent’).</div></div><div><h3>Principal conclusions</h3><div>Although youth parenthood was acceptable in communities, most participants wanted young people to avoid pregnancy and parenthood. There was a clear community approach to raising children, especially from the oldest children helping out with child raising.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100047"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143684279","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reproductive injustice in action: The impact of the Supreme Court’s Dobbs decision on Indigenous and minority women","authors":"Margo Hill ,&nbsp;Frank Houghton ,&nbsp;Mary Ann Keogh Hoss","doi":"10.1016/j.fnhli.2024.100042","DOIUrl":"10.1016/j.fnhli.2024.100042","url":null,"abstract":"<div><div>The United States of America (USA) is a country founded upon an unholy trinity of genocide, slavery and ethnic cleansing. The impacts of this assault remain blatantly clear and can be seen across the whole country. A crucial insight into the state of USA society is afforded via its significant health inequities. Systemic and structural racism are widespread there, as are engrained racist attitudes and ideologies. One field in which this is particularly evident is maternal mortality. The racial dimensions of this iniquity are blatant and unacceptable. However, to compound an ongoing tragedy, the recent Supreme Court decision to roll back on abortion protections represents an assault that will have a highly disproportionate impact on Indigenous and minority pregnant women.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100042"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143550474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A network cross-cultural validation of the Parenting Sense of Competence Scale between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians","authors":"Pedro Henrique Ribeiro Santiago ,&nbsp;Alyssa Sawyer ,&nbsp;Joanne Hedges ,&nbsp;Michael Sawyer ,&nbsp;Lisa Jamieson","doi":"10.1016/j.fnhli.2025.100058","DOIUrl":"10.1016/j.fnhli.2025.100058","url":null,"abstract":"<div><h3>Purpose</h3><div>The Parenting Sense of Competence Scale (PSOC) is the most used instrument worldwide to measure parenting sense of competence. Considering that cultural differences influence parenting practices, an investigation of cross-cultural validity was required to ensure that PSOC scores can be compared between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians. To address this research gap, this study employed network psychometrics to investigate the cross-cultural validity of the PSOC between Aboriginal and Torres Strait Islander and non-Aboriginal and Torres Strait Islander Australians.</div></div><div><h3>Methods</h3><div>The study investigated the network psychometric properties of the PSOC instrument, specifically: (1) model estimation; (2) item redundancy; (3) dimensionality; (4) measurement invariance; (5) model fit; (6) criterion validity; and (7) reliability. The network model that was used was the Gaussian graphical model estimated with the graphical least absolute shrinkage and selection operator. Dimensionality was evaluated with exploratory graph analysis. Measurement invariance was evaluated via permutation testing. Data were from the South Australian Aboriginal Birth Cohort (n=178) and eMums study (n=107).</div></div><div><h3>Main findings</h3><div>The findings indicated that, after accounting for item redundancy, a revised 14-item version of the PSOC displayed the two theoretical dimensions of Efficacy and Satisfaction and was cross-culturally valid among Aboriginal and non-Aboriginal Australians.</div></div><div><h3>Principal conclusions</h3><div>The revised 14-item PSOC displayed excellent psychometric properties and is readily available to be used in Australia.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100058"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143817651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ending rheumatic heart disease in Aboriginal and Torres Strait Islander communities: A systematic review of prevention programs in Australia","authors":"Yumeng Cai ,&nbsp;Lori J. Delaney ,&nbsp;Debby Lynch ,&nbsp;Jacqueline Cunninghame ,&nbsp;Mari Takashima ,&nbsp;Amanda Ullman ,&nbsp;Maree Toombs ,&nbsp;Antonella Martin ,&nbsp;Kate Thompson ,&nbsp;Karina Maxwell ,&nbsp;Jane Moore ,&nbsp;Catherine Kilgour ,&nbsp;Lorelle Holland","doi":"10.1016/j.fnhli.2024.100040","DOIUrl":"10.1016/j.fnhli.2024.100040","url":null,"abstract":"<div><h3>Purpose</h3><div>Australia has one of the highest incidences of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in the world, with a disproportionate disease burden on Aboriginal and Torres Strait Islander communities. This systematic review aimed to explore the effectiveness and cultural responsiveness of prevention programs to prevent, reduce and control RHD, to improve quality of life, and prioritise community engagement and empowerment.</div></div><div><h3>Methods</h3><div>A systematic review was conducted involving a comprehensive search of three databases (PubMed, Embase and CINAHL) and grey literature from Australian Indigenous websites and Google Scholar. Articles met inclusion criteria if they evaluated prevention programs, targeted ARF/RHD and centred Aboriginal and Torres Strait Islander communities in Australia. Data were extracted by three reviewers, and results were descriptively analysed. Study quality was appraised via the Mixed Methods Appraisal Tool and the Aboriginal and Torres Strait Islander Quality Appraisal Tool.</div></div><div><h3>Main findings</h3><div>Eleven peer reviewed articles were included. Prevention programs varied in their effectiveness and cultural responsiveness to reduce ARF and RHD. Overall, the studies scored higher for generalised methodological quality determined by the Mixed Methods Appraisal Tool than the measurement of cultural responsiveness via the Aboriginal and Torres Strait Islander Quality Appraisal Tool. Research engagement with Aboriginal and Torres Strait Islander communities addressed ways to improve screening strategies to identify ARF, awareness of RHD adherence to penicillin prophylaxis, community-led education and training, environmental health and community-centred traditional language to convey culturally responsive health messaging.</div></div><div><h3>Principal conclusions</h3><div>Further research is urgently needed in the provision of effective and culturally responsive prevention programs to reduce the incidence of ARF and RHD. Studies that centre Indigenous-led and community-based prevention programs that value self-determination, community agency and autonomy to advance holistic health and wellbeing for Aboriginal and Torres Strait Islander peoples offer promise in the elimination of ARF and RHD.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100040"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143419206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}