First Nations Health and Wellbeing - The Lowitja Journal最新文献

{"title":"Research ACCORDing to whom? Developing a South Australian Aboriginal and Torres Strait Islander Health Research Accord","authors":"Kim Morey (Anmatyerre & Eastern Arrernte) ,&nbsp;Christine Franks (Yuin) ,&nbsp;Odette Pearson (Kuku Yalanji & Torres Strait Islander) ,&nbsp;Karen Glover (Mein:tnk & Wotjobaluk) ,&nbsp;Alex Brown (Yuin)","doi":"10.1016/j.fnhli.2023.100003","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100003","url":null,"abstract":"<div><p>Documents regarding ethical research conduct are available to guide researchers in the field of Aboriginal and Torres Strait Islander (Aboriginal) health, yet their implementation lacks consistency within and between research institutions. South Australia has taken a conscious approach to implement locally appropriate ethical practice in Aboriginal health research by developing a South Australian Aboriginal Health Research Accord (Accord).</p><p>The Accord was developed through an iterative mixed-methods approach, involving a literature review, stakeholder consultations and consensus-building process. The Accord comprises nine key principles that guide Aboriginal health research in South Australia: priorities, involvement, partnership, respect, communication, reciprocity, ownership, control, and knowledge translation and exchange. Each principle is presented with a summary explanation and description of its application in research practice. The Accord aims to guide researchers, universities, research institutes, consultants, governments and service providers in the appropriate processes required when developing and conducting health research with Aboriginal people in South Australia and can serve as a guide for ethics committees. It provides a voice for Aboriginal communities to inform researchers on how they would like health research to be conducted in their communities. Consistently applying the nine principles of the Accord will increase the impact and benefit of health research for Aboriginal people in Australia.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100003"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000037/pdfft?md5=a06849637b0416b7714b1d1e8a2a8f7d&pid=1-s2.0-S2949840623000037-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Time for a First Nations-led health and wellbeing research renaissance","authors":"Catherine Chamberlain (Trawlwoolway/Palawa) ,&nbsp;Janine Mohamed (Narungga/Kaurna)","doi":"10.1016/j.fnhli.2023.100006","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100006","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100006"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000062/pdfft?md5=f7192f3c351dc93b4f439b04be6211ab&pid=1-s2.0-S2949840623000062-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138548855","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Researching Indigenous people living with a disability: The urgent need for an intersectional and decolonising approach (BlakAbility)","authors":"Sheelagh Daniels-Mayes","doi":"10.1016/j.fnhli.2023.100004","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100004","url":null,"abstract":"<div><p>According to available data, significant numbers of Indigenous people live with a disability and encounter both racism and disability-related discrimination. Yet, research about the impact of these intersecting sites of discrimination remains vastly under-researched. This commentary argues that research using intersectionality embedded with decolonising knowledges and practices and Indigenous Standpoints on disability, that is informed and led by those with lived experience, is urgently needed.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100004"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000049/pdfft?md5=00743702b358c9e78ca1f8d30eaef1e7&pid=1-s2.0-S2949840623000049-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Do it for yourself: Australia’s first experience of universal eligibility for self-collection cervical screening increases access for Aboriginal and Torres Strait Islander women","authors":"Kristy Meiselbach (Gunditjmara) ,&nbsp;Claire Nightingale ,&nbsp;Sandy Anderson ,&nbsp;Amanda Ryan (Indigenous) ,&nbsp;Clare O’Reilly ,&nbsp;Marion Saville ,&nbsp;Lisa Whop (Wagadagam Gumulgal) ,&nbsp;Margaret Kelaher ,&nbsp;Julia Brotherton","doi":"10.1016/j.fnhli.2023.100002","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100002","url":null,"abstract":"<div><h3>Purpose</h3><p>Australia’s National Cervical Screening Program implemented a self-collection pathway in December 2017 that was specifically designed to engage never-screened and under-screened people with a cervix. Initially only available to those under-screened, a revised policy (implemented in July 2022) now allows all women and people with a cervix the choice to participate in cervical screening through self-collection. While self-collection offers opportunities for Aboriginal Community Controlled Organisations (ACCO) to increase cervical screening participation, implementation evidence is lacking.</p></div><div><h3>Methods</h3><p>Semi-structured interviews were conducted with Aboriginal women (n = 7) and health service staff (n = 2) at a regional Aboriginal Community Controlled Organisation, in November to December 2019, to identify barriers and facilitators to cervical screening participation. A co-design workshop followed in mid-2020 with participants reviewing data, leading to the design and implementation of a demonstration project – <em>Do it for yourself!</em> – providing universal access to self-collection in the context of a consultation.</p></div><div><h3>Main findings</h3><p>Thirty-seven women participated in <em>Do it for yourself!</em> between April 2021 and March 2022. One-third would not have participated in cervical screening if self-collection had not been available. Most women (84%) were confident that they had properly collected the sample. Most women who had screened before preferred self-collection (81%), would be more likely to screen on-time if self-collection was available (95%), and all would recommend the screening pathway. Universal access to self-collection appeared to engage Aboriginal women who would otherwise not have screened.</p></div><div><h3>Principal conclusions</h3><p>Early implementation experience demonstrated that self-collection, offered in the context of a consultation with a cervical screening provider, is highly acceptable and facilitates the engagement of women who would otherwise not have screened.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100002"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000025/pdfft?md5=6051dce989d67d36955690df6f97a840&pid=1-s2.0-S2949840623000025-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138739043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Is all that glitters gold? Assessing the quality and ethics of ‘gold standard’ randomised controlled trials conducted in Aboriginal and Torres Strait Islander settings","authors":"Joanne Luke (Stolen Generations - Alyawarre) ,&nbsp;Ebony Verbunt ,&nbsp;Muriel Bamblett (Yorta Yorta, Dja Dja Wurrung) ,&nbsp;Connie Salamone ,&nbsp;Sarah Gafforini ,&nbsp;Angela Zhang ,&nbsp;David Thomas ,&nbsp;Sandra Eades (Noongar) ,&nbsp;Lina Gubhaju ,&nbsp;Margeret Kelaher ,&nbsp;Amanda Jones","doi":"10.1016/j.fnhli.2023.100007","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100007","url":null,"abstract":"<div><h3>Purpose</h3><p>Evidence-based practice methods assign randomised controlled trials (RCTs) as the ‘gold standard’ study design for interventional research. However, privileging RCTs on the criterion of study design without consideration of their broader methodology can be problematic, particularly in Aboriginal and Torres Strait Islander settings. This review assessed RCTs conducted in Aboriginal and Torres Strait Islander settings for ‘standard quality’ and ‘ethical quality’.</p></div><div><h3>Methods</h3><p>The RCTs were retrieved from PubMed, Scopus and the Australian New Zealand Clinical Trials Registry between January 2000 and July 2021. Standard quality was assessed using the revised Cochrane risk-of-bias tool for randomized trials (RoB 2.0). To assess ethical quality, this review assessed whether research incorporated ethical principles of: Aboriginal and/or Torres Strait Islander ethics committee endorsement, organisational endorsement, governance, partnership, data sovereignty, priority setting, worldview, authorship, and involvement in design, implementation and/or evaluation.</p></div><div><h3>Main findings</h3><p>Seventy-three published RCTs were retrieved. For quality, 85% of RCTs were assessed as having a ‘high’ risk of bias, largely owing to issues with deviations from the intervention, missing outcome data and measurement biases. The RCTs varied greatly in terms of ethical quality, with most attending poorly to ethical principles of priority setting (12%), involving stakeholders in evaluation of intervention (18%) and data sovereignty (7%). The RCTs conducted with Aboriginal and/or Torres Strait Islander co-authors were ranked as having greater ethical quality.</p></div><div><h3>Principal conclusions</h3><p>This review found notable concerns with the standard and ethical quality of RCTs conducted in these settings. To improve the ethical quality of research there must be a greater focus on control and participation by Aboriginal and Torres Strait stakeholders.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100007"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000074/pdfft?md5=6c4f5273e4a47a0a71b1e7dbcaaa345c&pid=1-s2.0-S2949840623000074-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138839461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"‘Wellah planted a good seed’: How an online health and wellbeing program supported Aboriginal and Torres Strait Islander peoples during the COVID-19 pandemic","authors":"Stella Mulder ,&nbsp;Laura Thompson ,&nbsp;Sarah Sheridan ,&nbsp;Lena Charles ,&nbsp;Emily Munro-Harrison ,&nbsp;Helen Kennedy ,&nbsp;Ngaree Blow ,&nbsp;Stephanie J. Brown ,&nbsp;Graham Gee","doi":"10.1016/j.fnhli.2023.100005","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100005","url":null,"abstract":"<div><h3>Purpose</h3><p>With COVID-19 pandemic restrictions in place throughout Australia in 2021, Aboriginal-led Clothing The Gaps Foundation (CTGF) delivered a 6-week health and wellbeing program known as Wellah Together Online. The aim of the program was to strengthen the healthy lifestyle choices, resilience and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples. Three staff members from Victorian Aboriginal Community Controlled Health Organisation Goolum Goolum Aboriginal Co-operative participated to consider the feasibility of other organisations offering similar programs. Wellah Together was evaluated by an Aboriginal-led team at Murdoch Children’s Research Institute in collaboration with CTGF and Goolum Goolum. The evaluation aimed to (i) investigate the impact of the program; (ii) identify core elements of success; and (iii) provide guidance to Aboriginal and Torres Strait Islander organisations interested in developing similar programs.</p></div><div><h3>Methods</h3><p>The evaluation was a multi-method study including surveys and yarning circles. This paper reports on findings from the qualitative data collected through yarning circles with program participants, CTGF and Goolum Goolum staff.</p></div><div><h3>Main findings</h3><p>Forty-six people participated in the program; of these, 34 participated in the evaluation. Participants were overwhelmingly positive about the benefits of taking part in Wellah Together Online. These included: (i) increased knowledge and motivation in relation to health and wellbeing; (ii) increased social connection at a difficult time; and (iii) a stronger sense of cultural identity and belonging. Core elements of program success identified in the research were: (i) create an affirming and power-equal environment; (ii) deliver health education through active participation and fun; (iii) build engagement throughout the program; and (iv) centre Aboriginal and Torres Strait Islander knowledge and leadership. Considerations for other organisations included: (i) planning for diversity; (ii) the availability of existing resources; and (iii) the mode of delivery (online vs. in-person). Based on the findings, the evaluation team generated seven themes to support understanding of the underlying principles and approach of the program. These themes highlight the necessity of engaging with issues of cultural connection, identity and healing in designing health and wellbeing programs for Aboriginal and Torres Strait Islander peoples.</p></div><div><h3>Principal conclusions</h3><p>The findings of the evaluation highlight the importance of Aboriginal and Torres Strait Islander-designed programs in strengthening the health and social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples at all times, including times of social upheaval.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100005"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000050/pdfft?md5=3fc841dcdb2e43b781a523a5fc6c3d99&pid=1-s2.0-S2949840623000050-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Tackling Indigenous Smoking: A brief commentary on the population health program’s history","authors":"Tom Calma (Kungarakan and Iwaidja) ,&nbsp;Scott McLennan","doi":"10.1016/j.fnhli.2023.100009","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100009","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100009"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000098/pdfft?md5=06cc41c35e3eef0b2434f192cd572721&pid=1-s2.0-S2949840623000098-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138480491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stories of community strength: Reflecting on strong COVID-19 vaccination uptake among Aboriginal and Torres Strait Islander communities","authors":"Brianna Poirier Canadian ,&nbsp;Gustavo Soares Brazilian ,&nbsp;Madison Cachagee Omushkego Mushkegowuk ,&nbsp;Susan Hedges Yamatji ,&nbsp;Lisa Jamieson New Zealander ,&nbsp;Joanne Hedges Yamatji","doi":"10.1016/j.fnhli.2023.100008","DOIUrl":"https://doi.org/10.1016/j.fnhli.2023.100008","url":null,"abstract":"<div><p>Prioritising COVID-19 immunisation for Aboriginal and Torres Strait Islander peoples plays an important role in promoting social and racial justice. Despite the chronic under-resourcing of community health organisations, Aboriginal and Torres Strait Islander communities across Australia developed strong and successful public health responses to the pandemic. The unique stories of fortitude and resilience during critical stages of a major health crisis stream from strong community engagement and leadership, provision of culturally secure care, novel communication strategies, and efficient outreach. Acknowledging the critical role of Aboriginal Community Controlled Health Services in protecting the lives and wellbeing of Aboriginal and Torres Strait Islander peoples, this study utilised a mixed-methods approach to examine successful stories of mitigating community risk to COVID-19. An environmental scan and content analysis of online media sources and an examination of the temporal trends of COVID-19 vaccination (two, three and four doses completed) for Aboriginal and Torres Strait Islander communities across local government areas in Australia were examined. Stories of community strength illustrated how Aboriginal Community Controlled Health Services and the local communities in Naarm (Victoria), Bendigo (Victoria), Tharawall (New South Wales) and APY Lands (South Australia) developed strategies to mitigate the impacts of the pandemic. Creative solutions adopted by communities included repurposing existing resources, leveraging influence of community leaders, sharing information with community members in a meaningful way and promoting vaccination. High uptake of additional doses of COVID-19 vaccines were observed in communities across the country and in all levels of remoteness. Aboriginal and Torres Strait Islander leadership was critical for developing local solutions to the population, even under severely restricted and unprecedented circumstances.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"1 ","pages":"Article 100008"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840623000086/pdfft?md5=626179f1230f84e66907bcbf24b3b013&pid=1-s2.0-S2949840623000086-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138739042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}