First Nations Health and Wellbeing - The Lowitja Journal最新文献

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Takarangi: Developing a framework for a large program of research towards decolonisation and racial justice Takarangi:为非殖民化和种族正义的大型研究项目制定框架
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2025-01-01 DOI: 10.1016/j.fnhli.2025.100067
Arama Rata (Ngāti Maniapoto, Taranaki, and Ngāruahine) , Waikaremoana Waitoki (Ngāti Hako, Ngāti Mahanga) , Nabilah Husna Binte Abdul Rahman (Malay and Tamil) , The WERO Research Team
{"title":"Takarangi: Developing a framework for a large program of research towards decolonisation and racial justice","authors":"Arama Rata (Ngāti Maniapoto, Taranaki, and Ngāruahine) ,&nbsp;Waikaremoana Waitoki (Ngāti Hako, Ngāti Mahanga) ,&nbsp;Nabilah Husna Binte Abdul Rahman (Malay and Tamil) ,&nbsp;The WERO Research Team","doi":"10.1016/j.fnhli.2025.100067","DOIUrl":"10.1016/j.fnhli.2025.100067","url":null,"abstract":"<div><div>Large, multi-year research programs have the potential to yield transformative and impactful research outcomes, particularly for research programs working towards emancipatory and decolonial aims. In large, multi-year projects, there is a need for epistemological, ontological and axiological consistencies across the projects involved. However, few studies have been conducted to guide researchers working in such programs through the critical, ethical and reflexive processes needed to achieve theoretical coherence. Drawing from the works of Indigenous scholars and literature on anti-oppressive research approaches within the fields of anti-racism and decolonisation, this paper outlines how WERO (Working to End Racial Oppression), a multi-year research program based in Aotearoa New Zealand, developed the Takarangi research framework to address this large knowledge gap. The framework is based on the Takarangi, an ancient double spiral pattern prominent in Māori carving that circles inwards and outwards, visually capturing how multiple and interrelated elements are at play in the production of knowledge. The Takarangi aids researchers within teams to reflexively consider how their social positioning, ontology, axiology, ethics, epistemology and research goals shape all aspects of their research process, from community engagement to transformative action. While the Takarangi framework was built within and for a particular context of knowledge production, in detailing the processes involved in its development and implementation, this paper aimed to enable researchers working with Indigenous, racialised and minoritised communities to flexibly interpret, build upon and implement the Takarangi model to support their own projects, institutes and programs of research.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100067"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144549484","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
You’ve got to have faith in the carers that are looking after you: Investigation into the care experiences of older Māori in aged residential care, community and Whānau settings in New Zealand 你必须对照顾你的护理人员有信心:对新西兰老年住宿护理,社区和Whānau环境中老年人护理经验的调查
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2025-01-01 DOI: 10.1016/j.fnhli.2025.100044
Karen Keelan (Ngāti Porou) PhD, Suzanne Pitama (Ngāti Rongomaiwahine) PhD, Tim Wilkinson (Pākehā) PhD, Cameron Lacey (Te Ati Awa) PhD
{"title":"You’ve got to have faith in the carers that are looking after you: Investigation into the care experiences of older Māori in aged residential care, community and Whānau settings in New Zealand","authors":"Karen Keelan (Ngāti Porou) PhD,&nbsp;Suzanne Pitama (Ngāti Rongomaiwahine) PhD,&nbsp;Tim Wilkinson (Pākehā) PhD,&nbsp;Cameron Lacey (Te Ati Awa) PhD","doi":"10.1016/j.fnhli.2025.100044","DOIUrl":"10.1016/j.fnhli.2025.100044","url":null,"abstract":"<div><h3>Purpose</h3><div>Despite having high health needs, older Māori, the Indigenous peoples of New Zealand, have lower service utilisation of aged residential care (ARC) services. This study aimed to examine the role of clinical healthcare professionals and the influence that whānau have, which may impede or facilitate older Māori utilisation of ARC, through the reported experiences of older Māori.</div></div><div><h3>Methods</h3><div>This study utilised a Kaupapa Māori research methodology as a critical lens to frame qualitative research methods. Interview data were collected from interviews with older Māori (<em>n</em> = 30) and whānau members (<em>n</em> = 18). Interviews were transcribed verbatim and analysed thematically.</div></div><div><h3>Main findings</h3><div>Three themes and associated subthemes were identified and aligned with the context of where older Māori receive care: ARC (Knowledge and awareness of tikanga-informed care practice, Interpersonal care and Trusting relationships with carers); Community-based services (Transitions and communication, Medication and management and Community care provision); and Whānau care settings (Value of whānau care and Carer burden and preserving whānau relationships).</div></div><div><h3>Principal conclusions</h3><div>Illuminating older Māori and whānau perspectives of care experiences is essential for understanding the impact of culture in clinical interactions and ARC service delivery. Advancing health equity through cultural safety education programs and building a culturally diverse health workforce is crucial to improving existing and future ARC service delivery.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100044"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143941950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ending rheumatic heart disease in Aboriginal and Torres Strait Islander communities: A systematic review of prevention programs in Australia 在原住民和托雷斯海峡岛民社区结束风湿性心脏病:澳大利亚预防计划的系统回顾
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2025-01-01 DOI: 10.1016/j.fnhli.2024.100040
Yumeng Cai , Lori J. Delaney , Debby Lynch , Jacqueline Cunninghame , Mari Takashima , Amanda Ullman , Maree Toombs , Antonella Martin , Kate Thompson , Karina Maxwell , Jane Moore , Catherine Kilgour , Lorelle Holland
{"title":"Ending rheumatic heart disease in Aboriginal and Torres Strait Islander communities: A systematic review of prevention programs in Australia","authors":"Yumeng Cai ,&nbsp;Lori J. Delaney ,&nbsp;Debby Lynch ,&nbsp;Jacqueline Cunninghame ,&nbsp;Mari Takashima ,&nbsp;Amanda Ullman ,&nbsp;Maree Toombs ,&nbsp;Antonella Martin ,&nbsp;Kate Thompson ,&nbsp;Karina Maxwell ,&nbsp;Jane Moore ,&nbsp;Catherine Kilgour ,&nbsp;Lorelle Holland","doi":"10.1016/j.fnhli.2024.100040","DOIUrl":"10.1016/j.fnhli.2024.100040","url":null,"abstract":"<div><h3>Purpose</h3><div>Australia has one of the highest incidences of acute rheumatic fever (ARF) and rheumatic heart disease (RHD) in the world, with a disproportionate disease burden on Aboriginal and Torres Strait Islander communities. This systematic review aimed to explore the effectiveness and cultural responsiveness of prevention programs to prevent, reduce and control RHD, to improve quality of life, and prioritise community engagement and empowerment.</div></div><div><h3>Methods</h3><div>A systematic review was conducted involving a comprehensive search of three databases (PubMed, Embase and CINAHL) and grey literature from Australian Indigenous websites and Google Scholar. Articles met inclusion criteria if they evaluated prevention programs, targeted ARF/RHD and centred Aboriginal and Torres Strait Islander communities in Australia. Data were extracted by three reviewers, and results were descriptively analysed. Study quality was appraised via the Mixed Methods Appraisal Tool and the Aboriginal and Torres Strait Islander Quality Appraisal Tool.</div></div><div><h3>Main findings</h3><div>Eleven peer reviewed articles were included. Prevention programs varied in their effectiveness and cultural responsiveness to reduce ARF and RHD. Overall, the studies scored higher for generalised methodological quality determined by the Mixed Methods Appraisal Tool than the measurement of cultural responsiveness via the Aboriginal and Torres Strait Islander Quality Appraisal Tool. Research engagement with Aboriginal and Torres Strait Islander communities addressed ways to improve screening strategies to identify ARF, awareness of RHD adherence to penicillin prophylaxis, community-led education and training, environmental health and community-centred traditional language to convey culturally responsive health messaging.</div></div><div><h3>Principal conclusions</h3><div>Further research is urgently needed in the provision of effective and culturally responsive prevention programs to reduce the incidence of ARF and RHD. Studies that centre Indigenous-led and community-based prevention programs that value self-determination, community agency and autonomy to advance holistic health and wellbeing for Aboriginal and Torres Strait Islander peoples offer promise in the elimination of ARF and RHD.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100040"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143419206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Indigenous oral health: A matter of rights 土著居民口腔健康:一个权利问题
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2025-01-01 DOI: 10.1016/j.fnhli.2025.100069
Madison Cachagee (Omushkego Mushkegowuk) , Brianna Poirier (Canadian) , Michael Larkin (Kokatha) , Lisa Jamieson (New Zealander)
{"title":"Indigenous oral health: A matter of rights","authors":"Madison Cachagee (Omushkego Mushkegowuk) ,&nbsp;Brianna Poirier (Canadian) ,&nbsp;Michael Larkin (Kokatha) ,&nbsp;Lisa Jamieson (New Zealander)","doi":"10.1016/j.fnhli.2025.100069","DOIUrl":"10.1016/j.fnhli.2025.100069","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"3 ","pages":"Article 100069"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144330308","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prioritising the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples receiving home-based aged care: An exploratory study 优先考虑接受居家养老服务的土著居民和托雷斯海峡岛民的社会和情感福祉:探索性研究
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100021
Odette Pearson (Kuku Yalanji & Torres Strait Islander) , Jonathon Zagler , Matilda D’Antoine (Paakantyi) , Tina Brodie (Yawarrawarrka & Yandruwandha) , Kate Smith , Aunty Martha Watts (Arabana) , Tameeka Ieremia (Arabana) , Graham Aitken (Yankunytjatjara) , Alex Brown (Wadi Wadi & Yuin) , Adriana Parrella
{"title":"Prioritising the social and emotional wellbeing of Aboriginal and Torres Strait Islander peoples receiving home-based aged care: An exploratory study","authors":"Odette Pearson (Kuku Yalanji & Torres Strait Islander) ,&nbsp;Jonathon Zagler ,&nbsp;Matilda D’Antoine (Paakantyi) ,&nbsp;Tina Brodie (Yawarrawarrka & Yandruwandha) ,&nbsp;Kate Smith ,&nbsp;Aunty Martha Watts (Arabana) ,&nbsp;Tameeka Ieremia (Arabana) ,&nbsp;Graham Aitken (Yankunytjatjara) ,&nbsp;Alex Brown (Wadi Wadi & Yuin) ,&nbsp;Adriana Parrella","doi":"10.1016/j.fnhli.2024.100021","DOIUrl":"https://doi.org/10.1016/j.fnhli.2024.100021","url":null,"abstract":"<div><h3>Purpose</h3><p>To explore community and workforce perspectives on how the Home Care Package (HCP) program supports the social and emotional wellbeing (SEWB) of Aboriginal and Torres Strait Islander peoples.</p></div><div><h3>Methods</h3><p>This qualitative design study included semi-structured interviews and a focus group with Aboriginal and Torres Strait Islander peoples receiving an HCP (<em>n</em> = 15) and aged care workers providing service coordination to Aboriginal and Torres Strait Islander peoples (<em>n</em> = 7) across metropolitan, rural and remote areas of South Australia. Semi-structured interviews and the focus group took place between March 2022 and February 2023. Data were analysed using thematic analysis.</p></div><div><h3>Main findings</h3><p>Twenty-two participants were involved in this study. Seven themes representing how the HCP program supports, or could better support, the SEWB of clients were identified: 1) maintaining independence, 2) supporting grief and loss, 3) facilitating social connections, 4) promoting choice and control, 5) assessment and funding, 6) cross-sectoral support and 7) strengthening the workforce.</p></div><div><h3>Principal conclusions</h3><p>The findings contribute to a deeper understanding of the unique SEWB needs of Aboriginal and Torres Strait Islander peoples accessing home-based aged care services and have significant implications for current and future aged care reforms in Australia.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100021"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000123/pdfft?md5=285c6eaf94192d2e61947e4eda563cab&pid=1-s2.0-S2949840624000123-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141243334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Learning from COVID-19 communication with speakers of First Nations languages in Northern Australia: Yolŋu have the expertise to achieve effective communication 从 COVID-19 与澳大利亚北部原住民语言使用者的交流中学习:土著居民拥有实现有效沟通的专业知识
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100033
Anne Lowell , Rachel Dikul Baker , Rosemary Gundjarranbuy , Emily Armstrong , Alice Mitchell , Brenda Muthamuluwuy , Stuart Yiwarr McGrath , Michaela Spencer , Sean Taylor , Elaine Läwurrpa Maypilama
{"title":"Learning from COVID-19 communication with speakers of First Nations languages in Northern Australia: Yolŋu have the expertise to achieve effective communication","authors":"Anne Lowell ,&nbsp;Rachel Dikul Baker ,&nbsp;Rosemary Gundjarranbuy ,&nbsp;Emily Armstrong ,&nbsp;Alice Mitchell ,&nbsp;Brenda Muthamuluwuy ,&nbsp;Stuart Yiwarr McGrath ,&nbsp;Michaela Spencer ,&nbsp;Sean Taylor ,&nbsp;Elaine Läwurrpa Maypilama","doi":"10.1016/j.fnhli.2024.100033","DOIUrl":"10.1016/j.fnhli.2024.100033","url":null,"abstract":"<div><h3>Purpose</h3><div>Achieving effective communication about COVID-19 was recognised as crucial from the earliest stages of the pandemic. In the Northern Territory, where most First Nations residents primarily speak an Aboriginal language and few health staff share their languages and cultural backgrounds, achieving effective communication is particularly challenging. It is imperative that speakers of First Nations languages, who best understand their challenges and solutions, inform future health communication policy and practice. This study was conducted with one First Nations language group – Yolŋu<span><span><sup>1</sup></span></span>, from North-East Arnhem Land – to share their experiences of COVID-19 communication.</div></div><div><h3>Methods</h3><div>Through a culturally responsive qualitative approach, a team of Yolŋu and other researchers engaged with Yolŋu community members and educators, and with Balanda<span><span><sup>2</sup></span></span> (non-Indigenous) staff who were involved in communicating about COVID-19 with Yolŋu. Data collection included in-depth interviews with 37 participants (27 Yolŋu, 10 Balanda) in their preferred languages, collaborative critical review of COVID-19 resources in Yolŋu languages, and documented researcher observations and reflections. The design was informed by extensive previous collaborative work in this context using culturally congruent methods.</div></div><div><h3>Main findings</h3><div>This study identified grave limitations in communication about COVID-19 with Yolŋu. COVID-19 communication was dominated by outsider prepared messages shared through social media and radio, often focusing on directives about what to do without explaining why. Inadequate engagement of Yolŋu in planning and implementation contributed to communication failure. Participants also identified how effective communication can be achieved: engaging local leaders and knowledge authorities at the outset to identify and implement locally relevant and feasible solutions; collaborative development of in-depth explanations matched to what Yolŋu want and need to know to make informed decisions; and face-to-face, ongoing communication in local languages by local educators, using communication processes aligned with Yolŋu cultural protocols and preferences.</div></div><div><h3>Principal conclusions</h3><div>Yolŋu have cultural knowledge, authority and processes to respond to health crises and communication challenges. However, during the COVID-19 pandemic, dominant culture health communication processes and priorities were privileged. Persisting with communication approaches that are not informed by relevant and available evidence is unethical and ineffective. Sustained community led approaches to health communication, supported by health services and systems, are crucial to achieve effective health communication with speakers of First Nations languages beyond the COVID-19 pandemic.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100033"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142660219","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Challenges and lessons learnt implementing longitudinal studies of Aboriginal and Torres Strait Islander children and young people: A qualitative study 开展土著居民和托雷斯海峡岛民儿童及青少年纵向研究的挑战和经验教训:定性研究
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100029
Catherine Lloyd-Johnsen , Anita D’Aprano , Sharon Goldfeld , Sandra Eades Noongar
{"title":"Challenges and lessons learnt implementing longitudinal studies of Aboriginal and Torres Strait Islander children and young people: A qualitative study","authors":"Catherine Lloyd-Johnsen ,&nbsp;Anita D’Aprano ,&nbsp;Sharon Goldfeld ,&nbsp;Sandra Eades Noongar","doi":"10.1016/j.fnhli.2024.100029","DOIUrl":"10.1016/j.fnhli.2024.100029","url":null,"abstract":"<div><h3>Purpose</h3><p>Scant attention has been paid to the experiences of researchers engaged in cohort studies of minority populations such as Indigenous children and their families. This qualitative study aimed to explore the practical challenges, strategies and solutions used by researchers representing 10 prospective cohort studies of Australian Aboriginal and Torres Strait Islander children and young people.</p></div><div><h3>Methods</h3><p>Eighteen researchers, 44.5% of whom identified as Aboriginal, were interviewed. Reflexive thematic analysis was conducted.</p></div><div><h3>Main findings</h3><p>Four overarching themes were generated from the dataset: (1) getting things just right; (2) build and nurture connections with community and staff; (3) ‘sit and yarn with them’: approaches to recruitment and retention; and (4) great responsibility. These themes underline the importance of developing early community partnerships to guide the scope and direction of the research, building a solid team of local Aboriginal researchers with community connections, and prioritising two-way learning and feedback loops from the beginning.</p></div><div><h3>Principal conclusions</h3><p>It is imperative to take a flexible and pragmatic approach to longitudinal studies involving Aboriginal children and their families that minimises participant burden while respecting local needs and priorities. Lessons learnt will be useful to new researchers undertaking, or planning to undertake, longitudinal research with First Nations populations.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100029"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000202/pdfft?md5=4e2f2c7ddb81bfda428df2112f862843&pid=1-s2.0-S2949840624000202-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142044555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Kaumātua (Elders) insights into Indigenous Māori approaches to understanding and managing pain: A qualitative Māori-centred study Kaumātua(长老)对土著毛利人理解和管理疼痛方法的见解:以毛利人为中心的定性研究
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100025
Eva Morunga Te Rarawa, Ngā Puhi , Debbie J. Bean Pākehā/New Zealand European , Korina Tuahine Ngati Kahungunu ki Wairoa , Karlee Hohepa Ngāpuhi/Tainui , Gwyn N. Lewis Pākehā/New Zealand European , Donald Ripia Ngāi Tūhoe, Ngāpuhi , Gareth Terry Pākehā/New Zealand European
{"title":"Kaumātua (Elders) insights into Indigenous Māori approaches to understanding and managing pain: A qualitative Māori-centred study","authors":"Eva Morunga Te Rarawa, Ngā Puhi ,&nbsp;Debbie J. Bean Pākehā/New Zealand European ,&nbsp;Korina Tuahine Ngati Kahungunu ki Wairoa ,&nbsp;Karlee Hohepa Ngāpuhi/Tainui ,&nbsp;Gwyn N. Lewis Pākehā/New Zealand European ,&nbsp;Donald Ripia Ngāi Tūhoe, Ngāpuhi ,&nbsp;Gareth Terry Pākehā/New Zealand European","doi":"10.1016/j.fnhli.2024.100025","DOIUrl":"10.1016/j.fnhli.2024.100025","url":null,"abstract":"<div><h3>Purpose</h3><p>Chronic pain/mamae is a major public health problem worldwide, and disproportionately affects Indigenous populations impacted by colonisation. In Aotearoa New Zealand, Indigenous Māori experience a greater burden of chronic pain than non-Māori. However, pain services based on Western models are unlikely to adequately meet the needs of Indigenous peoples. Little is published about traditional Māori views of, or approaches to, managing mamae/pain, knowledge that is traditionally held by Kaumātua/Elders. Therefore, this study aimed to understand Kaumātua (Māori Elder) views on the effects of pain, traditional pain management practices and mātauranga Māori (Māori knowledge) relating to managing pain.</p></div><div><h3>Methods</h3><p>Fourteen Kaumātua participated in individual interviews or a hui/focus group. Methods honoured tikanga (Māori protocol) and centralised whanaungatanga (relationships). Interviews and the hui/focus group were transcribed, and reflexive thematic analysis was conducted.</p></div><div><h3>Main findings</h3><p>Three themes were developed: 1. <em>The multidimensional aspects of pain</em>. Pain stretched beyond the physical and encompassed emotional and mental trauma, wairua/spiritual pain, grief from the loss of loved ones, contamination of the environment or breaches of tikanga/protocol. Some mamae/pain was described as everlasting, passing between people or generations. 2<em>.Whakawhanaungatanga/relationships: Healing through connection.</em> Healing of pain was seen to occur through strengthening connections with people, the spiritual realm, the natural world and with papakāinga (one’s ancestral homeland). 3.<em>Tino Rangatiratanga/self-determination: Strength to self-manage pain.</em> Self-reliance to manage pain and self-determination to make health decisions were critical, and a stoical approach to pain was described. Stoicism was noted to avoid perceptions of weakness and burdening whānau/family, but may inhibit emotional expression, connection and healing.</p></div><div><h3>Principal conclusions</h3><p>Mātauranga Māori/Māori knowledge emphasises that pain and its healing should be considered multidimensional, incorporating physical, mental and relational components, existing in the spiritual realm and incorporating links between people, places, the past and future. Individuals may approach pain with a stoical approach, which has both positive and negative features. Pain services may wish to incorporate this knowledge of the spiritual, social and psychological aspects of pain and pain management to provide more meaningful care for people with pain.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100025"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000160/pdfft?md5=cbd4c06c3f060593a38cd4e02347defb&pid=1-s2.0-S2949840624000160-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141949607","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
‘We know what our communities need’: What the Indigenous health sector reveals about pandemic preparedness in urban Indigenous communities in Australia 我们知道我们的社区需要什么":土著卫生部门对澳大利亚城市土著社区大流行病防备工作的启示
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100019
Bronwyn Fredericks , Abraham Bradfield , James Ward , Shea Spierings , Sue McAvoy , Troy Combo , Agnes Toth-Peter
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引用次数: 0
Volume 2: Reclaiming First Nations Narratives 第二卷:收复原住民的叙述
First Nations Health and Wellbeing - The Lowitja Journal Pub Date : 2024-01-01 DOI: 10.1016/j.fnhli.2024.100039
Catherine Chamberlain (Trawlwoolway/Palawa)
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引用次数: 0
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