Bronwyn Fredericks , Abraham Bradfield , James Ward , Shea Spierings , Sue McAvoy , Troy Combo , Agnes Toth-Peter
{"title":"‘We know what our communities need’: What the Indigenous health sector reveals about pandemic preparedness in urban Indigenous communities in Australia","authors":"Bronwyn Fredericks , Abraham Bradfield , James Ward , Shea Spierings , Sue McAvoy , Troy Combo , Agnes Toth-Peter","doi":"10.1016/j.fnhli.2024.100019","DOIUrl":"https://doi.org/10.1016/j.fnhli.2024.100019","url":null,"abstract":"<div><h3>Purpose</h3><p>In 2021, during the height of the COVID-19 pandemic, researchers from the University of Queensland sought greater understanding of how responses to the pandemic impacted the spread or mitigation of virus in Indigenous communities in southeast Queensland, Australia. This article used a systems thinking methodology to critically unpack the strengths and challenges associated with pandemic responses during COVID-19 in urban Brisbane, Australia.</p></div><div><h3>Methods</h3><p>The findings from three Indigenous-led workshops held in 2020 with Indigenous and non-Indigenous stakeholders from the urban health sector were documented. By visually mapping the dynamics that influence the outcomes of health responses, this study found that holistic understandings of complex problems such as COVID-19 can be gained, and more effective policy implemented. Drawing on the insights provided by stakeholders from state, federal and community representative bodies, it discussed how infection rates, socioeconomic conditions, age-specific responses, Indigenous participation and treatment in the workforce, media and communications, and vaccinations are key determinants that shape positive or adverse outcomes during pandemics.</p></div><div><h3>Main findings</h3><p>This research found by addressing issues relating to mobility; incentivising protective behaviours; engaging in coordinated responses; improving cultural literacy; and limiting overcrowding that preparedness and responses to COVID-19 and future pandemics may improve.</p></div><div><h3>Principal conclusion</h3><p>This study, led by Indigenous scholars at the University of Queensland, examines the health and social outcomes of Indigenous peoples and health workers during pandemics in urban settings. The study incorporates systems thinking, emphasising new approaches to complex problems. The research highlighted systemic challenges in pandemic responses, emphasising the need for policy reform, particularly in areas like housing. However, applying these insights into practice remains challenging, and further investigation into the practical application of systems thinking in Indigenous health is needed.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100019"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294984062400010X/pdfft?md5=549e50cdf73c36ca5c63b335a47a8664&pid=1-s2.0-S294984062400010X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141249898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Volume 2: Reclaiming First Nations Narratives","authors":"Catherine Chamberlain (Trawlwoolway/Palawa)","doi":"10.1016/j.fnhli.2024.100039","DOIUrl":"10.1016/j.fnhli.2024.100039","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100039"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142743041","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anita D’Aprano , Leah Lindrea-Morrison (Yorta Yorta) , Emma Stubbs (Pitjantjatjara, Yankunytjatjara, Arabana and Adnyamathanha) , Jodie Bisset (Arabana and Eastern Arrernte) , Alison Wunungmurra (Dhalwangu Yolngu) , Cassie Boyle (Walmarnpa and Warumungu) , Charmaine Hull (Adnyamathanha) , Jeannie Campbell (Anmatjere) , Marjorie Naylon (Western Arrernte) , Raelene Brunette (Warumungu and Garrawa) , Sam Simpson , Isabel Brookes
{"title":"Pre-testing a culturally adapted developmental outcome measure for Aboriginal and Torres Strait Islander children","authors":"Anita D’Aprano , Leah Lindrea-Morrison (Yorta Yorta) , Emma Stubbs (Pitjantjatjara, Yankunytjatjara, Arabana and Adnyamathanha) , Jodie Bisset (Arabana and Eastern Arrernte) , Alison Wunungmurra (Dhalwangu Yolngu) , Cassie Boyle (Walmarnpa and Warumungu) , Charmaine Hull (Adnyamathanha) , Jeannie Campbell (Anmatjere) , Marjorie Naylon (Western Arrernte) , Raelene Brunette (Warumungu and Garrawa) , Sam Simpson , Isabel Brookes","doi":"10.1016/j.fnhli.2024.100034","DOIUrl":"10.1016/j.fnhli.2024.100034","url":null,"abstract":"<div><h3>Purpose</h3><div>Early childhood is of critical importance in building a foundation for children’s lifelong development. Developmental outcome measures used within dominant Western cultures lack cultural appropriateness and validity in the Australian Aboriginal and Torres Strait Islander population. The Ages & Stages Questionnaire-STEPS for Measuring Aboriginal Child Development (ASQ-STEPS) is a culturally adapted developmental outcome measure that is being developed for Australian Aboriginal and Torres Strait Islander children aged one to four years. This paper aimed to describe the pre-testing process for the ASQ-STEPS prototype; the functionality of the ASQ-STEPS prototype in practice; and the acceptability of the culturally adapted Ages & Stages Questionnaires, Third Edition (ASQ-3) items and accompanying illustrations for caregivers and practitioners in two Australian Aboriginal and Torres Strait Islander communities.</div></div><div><h3>Methods</h3><div>The study was conducted in partnership with two Aboriginal community-controlled health services. Participants included practitioners who would administer the ASQ-STEPS, caregivers and their children aged 1 to 48 months. Study measures included the ASQ-STEPS pre-testing prototype, observation record, post-administration meeting record and focus group/semi-structured interviews.</div></div><div><h3>Main findings</h3><div>Three practitioners and 18 caregivers participated. Of the 18 caregivers, 15 provided feedback through focus groups or interviews. The findings showed that the ASQ-STEPS was acceptable to caregivers and practitioners. They reported that the ASQ-STEPS items were clear and easy to understand. The caregivers and practitioners made several important recommendations for modifications to the culturally adapted ASQ-STEPS. This has led to an improved prototype ready for validation.</div></div><div><h3>Principal conclusions</h3><div>This pre-testing study found that caregivers and practitioners made several important recommendations for modifications to the culturally adapted ASQ-STEPS. This step has led to an improved prototype that is ready for validation and highlights the value of engaging and consulting with partners in the pre-testing phase, to better understand the community needs and co-create the final tool. To date, there has been a scarcity of literature providing detailed accounts of the pre-testing process in the cultural adaptation of a child development screening tool or outcome measure. While some studies outside this area have provided a more detailed framework to follow, this study includes a detailed account of the pre-testing process in the Aboriginal and Torres Strait Islander context, incorporating strong Aboriginal and Torres Strait Islander governance, which can be used as an example for future research projects.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100034"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142704667","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lorelle Holland , Claudia Lee , Maree Toombs , Andrew Smirnov , Natasha Reid
{"title":"Resisting the incarceration of Aboriginal and Torres Strait Islander children: A scoping review to determine the cultural responsiveness of diversion programs","authors":"Lorelle Holland , Claudia Lee , Maree Toombs , Andrew Smirnov , Natasha Reid","doi":"10.1016/j.fnhli.2024.100023","DOIUrl":"10.1016/j.fnhli.2024.100023","url":null,"abstract":"<div><h3>Purpose</h3><div>National and global resistance opposes the criminalisation and punitive punishment of Aboriginal and Torres Strait Islander children with complex needs, including harmful incarceration practices of children as young as 10 years of age. The aim of this scoping review is to understand the available evidence regarding culturally responsive diversion programs for Aboriginal and Torres Strait Islander children.</div></div><div><h3>Methods</h3><div>Six databases were searched (PuBMed, Informit, Embase, CINAHL, Web of Science and PsycINFO). Further evidence was retrieved from Google Scholar and state and territory youth justice websites. Studies met criteria if they were from Australia, were diversion programs and included Aboriginal and Torres Strait Islander children aged between 10 to 18 years of age. The cultural responsiveness of the included diversion programs was synthesised by applying a decolonised and Indigenist Social and Emotional Wellbeing (SEWB) Framework. Studies were assessed according to seven domains of the SEWB Framework.</div></div><div><h3>Main findings</h3><div>Thirty-one studies met inclusion criteria. Fifteen types of diversion programs were identified, and they varied widely in their cultural responsiveness. Ten studies were scored in the high range, 16 studies were scored in the medium range and five studies were scored in the low range in cultural responsiveness.</div></div><div><h3>Principal conclusions</h3><div>A range of different types of diversionary programs were evaluated. Culturally responsive programs were Indigenous-led, placed based, holistic, life-course, and healing and family centred.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100023"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141846306","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Michele Garrett , Belinda Ihaka Te Aupōuri , Rinki Murphy , Timothy Kenealy
{"title":"Diabetes-related foot interventions to improve outcomes for Indigenous peoples in high-income countries: A scoping review","authors":"Michele Garrett , Belinda Ihaka Te Aupōuri , Rinki Murphy , Timothy Kenealy","doi":"10.1016/j.fnhli.2024.100031","DOIUrl":"10.1016/j.fnhli.2024.100031","url":null,"abstract":"<div><h3>Purpose</h3><p>Indigenous peoples from high income countries experience health disparities attributable to the ongoing legacy of colonisation and racism, including higher rates of diabetes and associated complications, including diabetes foot disease, in comparison to the relevant resident population. Providing culturally safe care through well-organised diabetes foot interventions can improve outcomes. This scoping review describes the range of publications detailing diabetes foot interventions that incorporated Indigenous peoples.</p></div><div><h3>Methods</h3><p>This scoping review followed the PRISMA-Scoping Review guide. Indigenous Māori perspectives were included in all stages of the review. Eligible publications described diabetes foot interventions that included Indigenous peoples from high-income countries. Key study characteristics included country, Indigenous population, intervention description, foot-related outcomes, and alignment with the CONSIDER statement domains for reporting on Indigenous involvement in health research.</p></div><div><h3>Main findings</h3><p>A total of 32 publications met the eligibility criteria, with publications from Australia (n = 14), Canada (n = 6), USA (n = 6), New Zealand (n = 2), Greenland (n = 2) and Nauru (n = 2). Primary prevention interventions were predominant (n=20) with a focus on increasing foot screening rates (n=16). Other interventions included health promotion and education (n=4), comprehensive foot interventions (n=5), foot care services embedded in undergraduate podiatry education, a diabetic foot ulcer management protocol, and a service brokerage model. Only 2 studies of the 29 evaluated reported all the CONSIDER statement domains.</p></div><div><h3>Principal conclusions</h3><p>Few publications described improved outcomes for Indigenous peoples and most interventions for diabetes-related foot disease overlooked Indigenous perspectives and health beliefs concerning feet. The CONSIDER statement provides useful guidance for all stages of research with Indigenous peoples and our findings suggest reporting Indigenous engagement could be strengthened.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100031"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000226/pdfft?md5=5230ad3b44d7f5c1ebdd1d82989d4a4f&pid=1-s2.0-S2949840624000226-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142048158","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bep Uink (Noongar) , Rebecca Bennett (non-Aboriginal) , Sian Bennett (Gamilaroi) , Dameyon Bonson (Aboriginal and Torres Strait Islander) , Braden Hill (Nyungar Wardandi)
{"title":"Considering First Nations LGBTIQ+ identity in anti-racist healthcare: Relations between comfort in healthcare, microaggressions and wellbeing","authors":"Bep Uink (Noongar) , Rebecca Bennett (non-Aboriginal) , Sian Bennett (Gamilaroi) , Dameyon Bonson (Aboriginal and Torres Strait Islander) , Braden Hill (Nyungar Wardandi)","doi":"10.1016/j.fnhli.2024.100027","DOIUrl":"10.1016/j.fnhli.2024.100027","url":null,"abstract":"<div><p>First Nations scholars and practitioners have increasingly called for anti-racist healthcare to address disparate health outcomes between First Nations and non-First Nations Australians. However, these arguments largely miss the significant negative impact that colonial heterosexism and cisgenderism (i.e. discrimination and marginalisation of queer and transgender peoples) have on LGBTIQ+ (lesbian, gay, bisexual, transgender, intersex, queer/questioning) First Nations peoples’ wellbeing. To address this gap, survey data from 63 First Nations LGBTIQ+ adults in Western Australia were utilised to illustrate the impact of racism, heterosexism and cisgenderism in healthcare settings on First Nations LGBTIQ+ peoples’ wellbeing. This study examined relations between participant wellbeing and 1) their comfort in being asked about their LGBTIQ+ and First Nations identity by a health provider, and 2) their experiences of race-based and LGBTIQ+-based discrimination (microaggressions) in broader community settings. Higher comfort in being asked about LGBTIQ+ identity was associated with higher wellbeing, whereas experiencing LGBTIQ+-based microaggressions within First Nations communities was associated with lower wellbeing. These findings add to the literature by showing that First Nations LGBTIQ+ patients experience additional discrimination. This paper also discusses findings with reference to settler-colonial racism (i.e. the racism enacted against First Nations LGBTIQ+ peoples to maintain settler norms and control) and offers suggestions for updating anti-racist healthcare.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100027"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000184/pdfft?md5=f0ba581787110fa4cd9ce23d40b205bf&pid=1-s2.0-S2949840624000184-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142048443","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paul Saunders Biripi , Alison Barnes Wiradjuri , Ryan Dashwood Yuin , Aunty Kerrie Doyle Eora
{"title":"Learning across the life course: A trans-education approach to develop Indigenous intercultural potential in healthcare","authors":"Paul Saunders Biripi , Alison Barnes Wiradjuri , Ryan Dashwood Yuin , Aunty Kerrie Doyle Eora","doi":"10.1016/j.fnhli.2024.100032","DOIUrl":"10.1016/j.fnhli.2024.100032","url":null,"abstract":"<div><div>Indigenous peoples of Australia experience significant inequalities in a range of public systems, including healthcare. A recognised contributor to disparate outcomes within healthcare is an interculturally uninformed healthcare workforce who can often be unconscious of what is required to ensure effective service provision for Indigenous patients, families and communities. Dissonant and reactive intercultural education and training pathways have long been implemented to address this workforce issue – to little avail. Considering the tenets of effective intercultural development – including life-long exposure and immersion, and regular, ongoing self-reflection – it is little surprise that dissonant, stand-alone education and training has proved to be ineffective in changing attitudes, behaviours and approaches to engaging with and treating Indigenous patients and their families. To address this, a trans-educational framework that centres critical consciousness and spans education stages from primary through to post-graduate education is proposed. Such a framework can provide sweeping benefits to health students and professionals, as well as general society more broadly. A trans-education approach would directly address patient-reported experience measures and transcend the health sector to aid in addressing deep-rooted social issues impacting Indigenous communities, such as racism, implicit bias and social exclusion.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100032"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142528026","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Thank you to Reviewers","authors":"","doi":"10.1016/j.fnhli.2024.100035","DOIUrl":"10.1016/j.fnhli.2024.100035","url":null,"abstract":"","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100035"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142660220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katie Brett (Kamilaroi) , Emma Doherty , Nerissa Riley (Kamilaroi) , Aneata Nean (Kamilaroi) , Melanie Kingsland , John Wiggers , Susan Thomas , Amy E. Anderson , Sophie Dilworth , Kristy Crooks (Euahlayi)
{"title":"Antenatal care assessing and addressing alcohol consumption during pregnancy: A qualitative study of Aboriginal women’s experiences and strategies for culturally appropriate care in an Australian local health district","authors":"Katie Brett (Kamilaroi) , Emma Doherty , Nerissa Riley (Kamilaroi) , Aneata Nean (Kamilaroi) , Melanie Kingsland , John Wiggers , Susan Thomas , Amy E. Anderson , Sophie Dilworth , Kristy Crooks (Euahlayi)","doi":"10.1016/j.fnhli.2024.100022","DOIUrl":"https://doi.org/10.1016/j.fnhli.2024.100022","url":null,"abstract":"<div><h3>Purpose</h3><p>Pregnancy care guidelines in many countries recommend that alcohol consumption is addressed for all women as part of routine antenatal care. Considerations should be given to providing culturally appropriate care for First Nations women. Limited studies have explored the perceptions of Aboriginal and Torres Strait Islander women in Australia regarding such care. This study aimed to explore Aboriginal and Torres Strait Islander women’s experiences and acceptance of receiving antenatal care addressing alcohol consumption from maternity services, as well as their suggestions for culturally appropriate strategies for positive care experiences.</p></div><div><h3>Methods</h3><p>Nine yarning groups were conducted across a large local health district in New South Wales, Australia, between November 2017 and October 2018. Aboriginal and Torres Strait Islander women who had attended a maternity service within the last two years were purposively recruited through existing networks. An Aboriginal-led Indigenist and community-based participatory action research approach and yarning were used to explore the women’s experiences and suggestions for culturally appropriate care. Three Aboriginal researchers facilitated the yarning groups. Yarning groups were transcribed and analysed using thematic analysis.</p></div><div><h3>Main findings</h3><p>Thirty-nine Aboriginal and Torres Strait Islander women participated in the yarning groups. The women reported mixed experiences of antenatal care regarding alcohol consumption during pregnancy; however, they were largely accepting of receiving such care from their antenatal providers. Two main themes that centred around empowerment and safety were identified. The women suggested that these could be addressed with the following approaches: i) all pregnant women should be asked and informed about the risks of alcohol; ii) continuity of care models should be used; iii) holistic approaches should be used; and iv) support should be given without judgement and fear of reporting.</p></div><div><h3>Principal conclusions</h3><p>Aboriginal and Torres Strait Islander women want and expect to receive antenatal care around alcohol consumption during pregnancy. To inform their receipt of culturally appropriate care, Aboriginal and Torres Strait Islander women need to be engaged in decision-making about the implementation of pregnancy guidelines in maternity services.</p></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100022"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949840624000135/pdfft?md5=070be13234469086b78f1d310d02a922&pid=1-s2.0-S2949840624000135-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141424628","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Corinne Reid , Roz Walker , Kim Usher , Debra Jackson , Carrington Shepherd , Rhonda Marriott Nyikina Nation, Australia
{"title":"Exploring practical and ethical dilemmas when conducting research with small population groups in First Nations communities: Privileging stories as data, and data as stories","authors":"Corinne Reid , Roz Walker , Kim Usher , Debra Jackson , Carrington Shepherd , Rhonda Marriott Nyikina Nation, Australia","doi":"10.1016/j.fnhli.2024.100026","DOIUrl":"10.1016/j.fnhli.2024.100026","url":null,"abstract":"<div><h3>Purpose</h3><div>When working with small population groups, answering consequential research questions to rigorous scientific standards can be challenging due to limited sample sizes impacting statistical power. Creating translational solutions can be additionally challenging when cultural and language differences exist. Therefore, researchers must learn to walk in two worlds. This paper explores practical and ethical dilemmas encountered when conducting research with small population groups in First Nations communities, and the opportunities afforded by privileging stories as data, and data as stories.</div></div><div><h3>Methods</h3><div>This study drew on experiences of co-researching with small groups of First Nations young people and Elders in diverse communities, to elucidate the importance of co-designing context-responsive methodologies and developing shared methodological language to achieve meaningful outcomes. While small samples typically produce less precise and generalisable findings, they can be particularly powerful for the communities involved and produce important findings with the potential to inform policymakers, service providers and practitioners to enhance population outcomes. Shared, iterative, reflective practice identified that conventional methods of research design and data analysis, and highly technical scientific language, were often not fit for purpose; therefore, innovative approaches are needed to progress urgent issues impacting wellbeing.</div></div><div><h3>Main findings</h3><div>Co-designing innovative methodologies that align with both Indigenous ways of knowing and scientific paradigms is both possible and powerful. Specifically, this study centred knowledge production on curating stories: the gathering of rich individual stories (idiographic design using mixed methods case studies) to generate high-impact knowledge; and systematically drew together a rich tapestry of many stories (idiothetic design using integrative analysis of case studies) to distil locally relevant cumulative wisdom and attain a bridge to more generalisable findings that inform theory development (as a more viable alternative to using nomothetic, large-scale research design). While individual stories were initially privileged as data, the importance of collective (larger scale) data as ‘community stories’ was also found to be useful and accessible in a community context; data must be translatable as meaningful stories to guide action.</div></div><div><h3>Principal conclusions</h3><div>Drawing on mixed methods provided rich stories capturing both a breadth and depth of understanding of complex issues.</div></div>","PeriodicalId":100532,"journal":{"name":"First Nations Health and Wellbeing - The Lowitja Journal","volume":"2 ","pages":"Article 100026"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142528025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}