{"title":"Pattern and Risk Factors of Neural Tube Defects, Khartoum-Sudan","authors":"I. MohammedOmer","doi":"10.19080/GJIDD.2021.07.555716","DOIUrl":"https://doi.org/10.19080/GJIDD.2021.07.555716","url":null,"abstract":"Background: Neural tubes defects (NTDs) are abnormalities that occur during neurulation, which result in birth defects of the brain spine or spinal cord. They are due to multifactorial etiology, amongst which are genetic and environmental factors. Methods: This is a cross –sectional- case control study, conducted at Khartoum state in a one-year time, and aimed to identify the pattern and risk factors of NTDs. All newborns with any type of neural tube defect admitted to NICU in study area during the study period were selected. Data was collected using a questionnaire covering medical, social history and clinical examination. Results: Out of the 36785 delivered newborns during the study period, 103 had NTD. The types of NTDs include myelomeningocele 47(45.7%), anencephaly 18(17.5%), encephalocele 14(13.6%), myelomeningocele + hydrocephalus 11(10.7%) and meningocele 8(7.8%). Family history of NTDs was found in 11(10.7%) of the affected newborns siblings. Only about one third of the studied mothers received folic acid during pregnancy. Other risk factors include two (1.9%) of the mothers exposed to irradiation and hyperthermia each, and 7(6.8%) exposed to anti-epileptic drugs, Diabetic mothers were 12(11.7%). Positive family history of neural tube defects was found in 11(10.7%) affected newborns. 74.5% of the studied families were of low social class. Conclusion: The commonest types of NDTs among the studied newborns were myelomeningocele followed by anencephaly The most common risk factors of NTDs among the study group include low and irregular folic acid intake during pregnancy, previous family history, maternal diabetes and low social class.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47209234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Promoting Resilience, Independence and Self-Management in Intellectual Disability Services","authors":"Dinesh K Arya","doi":"10.19080/gjidd.2021.07.555713","DOIUrl":"https://doi.org/10.19080/gjidd.2021.07.555713","url":null,"abstract":"The concept of consumer empowerment to ensure health care and treatment is appropriate to meet their needs, is widely embraced. Most progressive caring services implement processes to enable consumers and their families to participate in all aspects of care planning, delivery and evaluation. This paper provides a framework to promote resilience and independence of people in intellectual disability service settings and describes processes providers can introduce to encourage people with intellectual disability to manage their own care and treatment. Implementing PRISM (Promoting Resilience, Independence and Self-Management) is facilitated by use of specific tools, protocols and methods to ensure people with intellectual disability are able to take change of their own care and treatment.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43101689","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Serotonergic and Cholinergic Systems Dysfunction in Autism Spectrum Disorders","authors":"B. Saberi","doi":"10.19080/gjidd.2021.07.555712","DOIUrl":"https://doi.org/10.19080/gjidd.2021.07.555712","url":null,"abstract":"","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42362720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Treatment of ADHD in Perinatal Women with Dual Diagnosis: A Comprehensive Pharmacological and Psychosocial approach","authors":"A. Gogne","doi":"10.19080/gjidd.2021.07.555724","DOIUrl":"https://doi.org/10.19080/gjidd.2021.07.555724","url":null,"abstract":"Attention deficit hyperactivity disorder (ADHD) is a chronic neurodevelopmental disorder affecting about 4.4 percent of adults in the United States, with females presenting more commonly with inattention rather than impulsivity and hyperactivity. The perinatal period, followed by transition to motherhood, presents greater challenges for women with ADHD as there is significant worsening of pre-existing deficits in executive functioning due to major hormonal changes, prolonged sleep deprivation, heightened social demands and abrupt discontinuation of stimulants. In this report, we discuss the case of M, a middle-aged woman suffering from inadequately treated ADHD, comorbid with Bipolar disorder, TBI (Traumatic Brain Injury) and history of substance use. We describe the patient’s clinical presentation during pregnancy, difficulties in engagement, and a treatment course with multiple complications. More specifically, we highlight our unique implementation of a long-term treatment approach to address her ADHD-related challenges during the postpartum period and subsequent years as M cares for her children with limited finances and social supports during a global pandemic. Finally, we emphasize outcomes of treatment and future directions for clinical research to design outpatient treatment models individualized to fit the complex needs of this population.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68372496","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Revisiting Authentic Assessments: When COVID-19 Restricts Traditional Intelligence Testing","authors":"A. F. Watkins","doi":"10.19080/gjidd.2020.07.555709","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555709","url":null,"abstract":"Intelligence testing is consistently and widely used by psychologists the world over. Intelligence testing is used as a primary tool for the identification of learning disabilities and typically administered in a closed setting. However, shortcomings of traditional intelligence tests are documented, and restrictions associated with the COVID-19 virus now make it difficult for the test taker and the test administrator to be in close proximity to each other. Authentic assessments, a measure of real and adaptive skills, warrant revisiting. This paper points to the shortcomings of traditional intelligence testing and lifts authentic assessment as a viable option.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47909192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A Perspective on Covid-19, Dementia, and Intellectual Disabilities","authors":"Kathleen M. Bishop","doi":"10.19080/gjidd.2020.07.555710","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555710","url":null,"abstract":"The impact of the COVID – 19 pandemics has affected the lives of billions of people around the world closing entire countries, isolating people from each other, and changing the day-to-day routines and habits. The US has been particularly hard hit economically, high loss of life, and the unknown lasting effects from the virus. Older adults have been particularly affected as the known risk factors such as cardiac disease, diabetes, and lung disease is more common in older adults [1]. Especially vulnerable group of people negatively affected by this disease has been older adults with intellectual disabilities (ID) and a diagnosis of Alzheimer’s disease and Related Dementias. Their caregivers have also been challenged with attempting to provide health care supports, residential care, and activities of daily living during a time of so many unknowns and losses [2].","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-12-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44202526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Case-Study: Mentalization-Based Treatment, A Time-Limited Approach, for A Boy with A Mild Intellectual Disability and Trauma","authors":"N. Muller","doi":"10.19080/gjidd.2020.07.555706","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555706","url":null,"abstract":"In this article, we present a clinical example of Mentalization-Based Treatment for Children (MBT-C) for the treatment of a boy with mild intellectual disability (MID). In the book about MBT-C a Time Limited approach [1] this treatment appeared to be very effective for children with an average IQ. Children with MID can also benefit from this treatment method. Dekker - van der Sande and Stekelenburg [2] emphasized the importance of mentalization promoting guidance for children with visual and intellectual disabilities. However, there are still few case studies of MBT-C in children with MID. A child with MID is identified as having an IQ score between 50-85 in combination with significant limitations in their (social) adaptive functioning. Children with MID learn primarily through experience and repetition and are less verbal compared to other children. This article employs a case study to demonstrate how an MBT-C therapist can properly attune this treatment method to children with MID.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42211335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Ethical Considerations in Addressing the Exclusion of Individuals with Intellectual and Developmental Disabilities from Scarce Resource Allocation in the Context of COVID-19","authors":"Sarah Mohiuddin","doi":"10.19080/gjidd.2020.07.555707","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555707","url":null,"abstract":"The creation of scarce resource allocation policies has had ripple effects throughout communities and health systems as the COVID-19 pandemic has led to increasing concern about access to essential medical services. These scare resource allocation policies have been criticized for commenting on patients’ age, comorbidities, and ability status as factors that should be taken into consideration by health professionals in deciding whether a particular patient should have access to potentially life-saving interventions when these interventions are in short supply. This is of particular significance to the disability community as hospitals and institutions are reviewing these policies in the context of increasing cases once again during the COVID-19 pandemic, where access to resources such as ventilators or therapeutics such as Remdesivir may again be limited. There has been a number of institutions that have already created policies excluding individuals with intellectual and developmental disabilities (IDD) from access to these interventions if they become limited in supply.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49232169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reflecting on the Conceptualization of Specific Learning Disabilities in the 21st Century","authors":"Maria Tzouriadou","doi":"10.19080/gjidd.2020.07.555708","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555708","url":null,"abstract":"Over the past years, learning disabilities (LD) or specific learning disabilities (SLD) have emerged as one of the most studied fields of developmental disabilities and have become synonymous with special education itself due to how frequently students are placed under this category. It is also the special education category which has brought the most disagreement among scholars, researchers, and educators to this day, given that, LD has not been established as a distinct discipline; that is until now no causal relationship has been determined between the phenomenology of LD and the factors which cause them. Despite formal definitions, a lack of understanding of their nature and their interpretation exists, which indicates that the main goal of a distinct discipline is not fulfilled yet [1,2].","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49302528","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adolescence and Development: Clinical Psychology and Psychoanalysis","authors":"Edgar Alfonso Acuña Bermúdez","doi":"10.19080/gjidd.2020.07.555705","DOIUrl":"https://doi.org/10.19080/gjidd.2020.07.555705","url":null,"abstract":"The passage through the adolescent period is somewhat messy and never in a straight line. In general terms, adolescence extends from the moment of sexual maturity until the age at which independence from the authority of the adult is ensured by law. In truth, the attainment of the goals in mental life that characterize the different phases of the adolescent period are often contradictory in their direction and also qualitatively heterogeneous; that is, this progression, digression, and regression alternate in evidence, since they temporarily comprise antagonistic goals. Regarding the choice of adolescent object, the mental and physical state that is generally associated with adolescence (both early adolescence and adolescence proper) has very different qualities from the pre-adolescent phase. The stage of body image representation in adolescence is important, since it is at this stage where the adolescent is faced with physical changes (growth of sexual organs, increased hormonal activity, reproductive capacity, among others), changes intellectual or emotional (ability to make self-value judgments, etc.) and three crises: identity, authority and sexual, fundamental aspects that influence the perception of their body. During adolescence proper, there is a decisive shift toward heterosexuality and a final and irreversible renunciation of the incestuous object.","PeriodicalId":93559,"journal":{"name":"Global journal of intellectual & developmental disabilities","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-11-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47947132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}