Anthropology & Medicine最新文献_第8页

Surveillance life and the shaping of 'genetically at risk' chronicities in Denmark. 丹麦的监测生活和“基因风险”慢性病的形成。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-03-01 Epub Date: 2021-07-13 DOI: 10.1080/13648470.2021.1893654

Laura Louise Heinsen, Ayo Wahlberg, Helle Vendel Petersen

{"title":"Surveillance life and the shaping of 'genetically at risk' chronicities in Denmark.","authors":"Laura Louise Heinsen, Ayo Wahlberg, Helle Vendel Petersen","doi":"10.1080/13648470.2021.1893654","DOIUrl":"https://doi.org/10.1080/13648470.2021.1893654","url":null,"abstract":"Today, in the field of hereditary colorectal cancer in Denmark, more than 40,000 identified healthy individuals with an increased risk of cancer are enrolled in a surveillance program aimed at preventing cancer from developing, with numbers still growing. What this group of healthy individuals has in common is lifelong regular interaction with a healthcare system that has traditionally been geared towards treating the acutely and chronically ill. In this article, we explore how people living with an inherited elevated risk of colorectal cancer orient themselves towards their families' and their own predispositions as well as the lifelong surveillance trajectories that they have embarked upon - what we call surveillance life. Unlike prior critiques of predictive genetic testing as generative of 'pre-patients' or 'pre-symptomatically ill', we suggest that for those enrolled in lifelong surveillance programmes in welfare state Denmark, the relevance of risk fluctuates according to certain moments in life, e.g. at family reunions, when a close relative falls ill, in the time leading up to a surveillance colonoscopy or when enduring the procedures themselves. As such, rather than characterising surveillance life in terms of 'living with chronic risk' we show how 'genetically at risk' chronicities take shape as persons come to terms with a disease that possibly awaits them leading them to recalibrate familial bonds and responsibilities while leading lives punctuated by regular medical check-ups.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 1","pages":"29-44"},"PeriodicalIF":1.8,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13648470.2021.1893654","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39178632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

Merging care and prevention: preventive properties of antiretroviral drugs and HIV chronification in the case of Switzerland. 合并护理和预防:瑞士案例中抗逆转录病毒药物的预防特性和艾滋病毒的慢性化。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-03-01 Epub Date: 2021-09-20 DOI: 10.1080/13648470.2021.1949891

Noëllie Genre, Francesco Panese

引用次数: 0

Failing livers, anticipated futures and un/desired transplants. 肝脏衰竭，预期的未来和不希望的移植。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-03-01 Epub Date: 2022-02-21 DOI: 10.1080/13648470.2021.2017126

Julia Rehsmann

引用次数: 1

Poverty and neglected tropical diseases in the American Rural South, by Christine Crudo Blackburn and Macey Lively, Lanham, MD, Lexington Books, 2021 《美国南部农村的贫困和被忽视的热带病》，克里斯汀·克鲁多·布莱克本和梅西·莱弗利著，兰哈姆，医学博士，列克星敦出版社，2021年

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-02-04 DOI: 10.1080/13648470.2021.1994336

Sarah E. Smith, Baili Gall, Michael Smetana, Maegan McCane, Courtney Helfrecht

引用次数: 2

Vaccinal chronicity: immunotherapy, primary care, and the temporal remaking of lung cancer’s patienthood in Cuba 疫苗慢性性:古巴肺癌患者的免疫治疗、初级保健和时间重塑

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-01-02 DOI: 10.1080/13648470.2022.2041549

Nils Graber

{"title":"Vaccinal chronicity: immunotherapy, primary care, and the temporal remaking of lung cancer’s patienthood in Cuba","authors":"Nils Graber","doi":"10.1080/13648470.2022.2041549","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041549","url":null,"abstract":"Abstract The Cuban biotechnology industry is producing cancer immunotherapy, in particular, therapeutic vaccines that actively stimulate the immune system to stabilise the tumour. These products aim to transform metastatic malignancies into a chronic disease. Since 2010, this therapeutic concept has been integrated within a public health experiment, consisting of the large distribution of immunotherapies, including in primary healthcare centres, to enhance access and assess its effectiveness on a wider population of patients. Such experimental intervention, consisting of post-marketing clinical trials, has focused only on lung cancer, one of the most widespread and lethal cancers on the island. Combining interviews with ethnographic observations focusing on care performed by professionals, patients, and their relatives, this paper analyses the experience of lung cancer chronicity under this type of immunotherapy in Cuba. It shows how a certain form of continuity is made between prophylactic and therapeutic vaccination to shape a new temporality of cancer care, through the integration within primary care, constant access to biotechnology, and multiple care practices directed to strengthen the immunotherapy’s efficacy. If vaccinal chronicity remains fragile due to its experimental dimension and the fact that long-term survivorship is still an exceptional phenomenon, lung cancer patienthood is deeply transformed through a shared effort of the people and the state to provide more stable, meaningful, and inclusive care.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"13 1","pages":"45 - 60"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81925192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Chronicity and the patient’s decision-making work. The case of an advanced cancer patient 慢性与患者的决策工作。一个晚期癌症患者的病例

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-01-02 DOI: 10.1080/13648470.2022.2041546

S. Besle, A. Sarradon-Eck

{"title":"Chronicity and the patient’s decision-making work. The case of an advanced cancer patient","authors":"S. Besle, A. Sarradon-Eck","doi":"10.1080/13648470.2022.2041546","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041546","url":null,"abstract":"Abstract This paper focuses on the particular situation of an advanced cancer patient whose condition has taken a chronic turn. We argue that chronicity of this kind sometimes falls at the frontier of Evidence Based Medicine because the uncertainty about the patient’s condition can lead physicians to resort to clinical trials or non-licensed drugs to prevent the disease from progressing. This situation leaves plenty of scope for individual adjustments between patients and their doctors. Advanced cancer is regarded here not just as a biological event but as a chronic illness and a ‘negotiated reality’. We argue that the chronicity of advanced cancer patients’ situation broadens the patients’ scope for ‘work’, and we have called this specific type of patient’s work ‘decision-making work’. This paper is based on a case study focusing on Patrick, a middle-aged Frenchman with metastatic lung cancer who underwent oncological treatment for seven years and was strongly determined to find new therapeutic options even if this meant having to go abroad. He actively orchestrated his therapeutic itinerary by reorganising his relationships with the medical world and coordinating the physicians’ work. His particular social position enabled Patrick to bypass some of the current medical rules and to reorganise the usual pattern of distribution of medical responsibilities. The chronicity of his condition placed him at the very frontier of the health care system.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"36 1 1","pages":"76 - 91"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83608115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

The nebula of chronicity: dealing with metastatic breast cancer in the UK 慢性星云:处理转移性乳腺癌在英国

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-01-02 DOI: 10.1080/13648470.2022.2041547

Cinzia Greco

{"title":"The nebula of chronicity: dealing with metastatic breast cancer in the UK","authors":"Cinzia Greco","doi":"10.1080/13648470.2022.2041547","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041547","url":null,"abstract":"Abstract In this article, I explore how the concept of chronicity is mobilised by different actors in reference to metastatic breast cancer (MBC) and the transformation of the condition as a consequence of medical innovations. I do so by using data collected in the UK between 2017 and 2019 through in-depth interviews with medical professionals involved in the treatment of MBC and with patients living with MBC. I show how chronicity appears as a multidimensional and uncertain concept, which I analyse through the image of the nebula. While the medical literature tends to consider MBC chronic or on route to chronicisation, the medical professionals interviewed were uncertain as to whether MBC can be considered a chronic disease, and attempted to discuss chronicity through survival times, the kind of management possible for the disease, and how it compares to other conditions more commonly considered chronic. In some cases, the patients considered the idea of chronicity a source of hope or a way to link their condition to those of people with other diseases; however, they generally rejected the definition as inappropriate for their experience of the illness. Analysing the fluid uses of the concept of chronicity in the case of MBC contributes to the debate within medical anthropology on how medical categories acquire different values and uses and on the circulation of meanings between the biomedical context and the patient experience.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"63 1","pages":"107 - 121"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78261237","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

The friend within? The implantable cardioverter defibrillator between saving lives and chronically impairing them 内心的朋友?植入式心律转复除颤器在挽救生命和长期损害生命之间

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2022-01-02 DOI: 10.1080/13648470.2022.2041548

F. Barlocco

{"title":"The friend within? The implantable cardioverter defibrillator between saving lives and chronically impairing them","authors":"F. Barlocco","doi":"10.1080/13648470.2022.2041548","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041548","url":null,"abstract":"Abstract This article considers the way in which a medical technology, the implantable cardioverter defibrillator (ICD), by preventing fatal outcomes, in this case sudden death, deriving from cardiac diseases, and specifically hypertrophic cardiomyopathy, contributes to the development of a particular type of chronicity. While biomedicine celebrates technological advances in treatments and naturalises chronicity, focussing on life expectancy as a victory over the ‘acute’ aspects of the disease, the way in which patients live with the disease is left unquestioned. The article follows Smith-Morris’s (2010) perspective in seeing chronicity as the never-ending process of identifying with one’s disease, adding a focus on the role played by an embodied technology in relation to it. Based on participant observation in a clinical setting and interviews with clinicians, the article interrogates three key themes in the chronicity of cardiac patients implanted with an ICD: risk, quality of life and choice. The data shows a constant tension between managing a one-off potentially fatal ‘acute’ risk and life with serious disruptions due to the limitations imposed by the implanted device. The article argues that patients’ resources for facing the life and identity disrupted by the disease are limited by ideas of what living a diseased body is, which acritically follow discourses of ‘patient choice’ and a ‘technological imperative’ to avoid risk.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 1","pages":"61 - 75"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87190073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The movement for global mental health: critical views from South and Southeast Asia 全球精神卫生运动:来自南亚和东南亚的批评观点

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2021-12-02 DOI: 10.1080/13648470.2021.2007755

Arnav Sethi

{"title":"The movement for global mental health: critical views from South and Southeast Asia","authors":"Arnav Sethi","doi":"10.1080/13648470.2021.2007755","DOIUrl":"https://doi.org/10.1080/13648470.2021.2007755","url":null,"abstract":"Critiques of psychiatric knowledge and practise have raised several concerns relating to: identification of diagnostic criteria, classification of distinct clinical entities, holistic understandings of causation, ‘legitimate’ treatment modalities, and claims to a universal symptomatology and nosology. This timely volume contributes to these longstanding debates and reminds us about all that is at stake if ‘mainstream’ psychiatric treatment and services are ‘universalised’, or perhaps more appropriately, ‘globalised’. As the contributors, including anthropologists, sociologists, public health professionals, historians, and clinical psychiatrists point out, this is indeed the primary aim of the Movement for Global Mental Health (MGMH). The book is divided into four broad themes: Critical Histories, Limits of Global Mental Health, Alternatives and Afterwords. The conceptually rich introduction covers good ground as it defamiliarises taken for granted assumptions about mental disorders that the MGMH tends to accept uncritically. Each chapter addresses certain problematic assumptions about causation, treatment and pervasiveness of mental disorders.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"14 1","pages":"348 - 350"},"PeriodicalIF":1.8,"publicationDate":"2021-12-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78444318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

Six hours to study: temporality and ignorance in medical education. 六小时学习:医学教育的暂时性和无知。

IF 1.8 4区社会学

Anthropology & Medicine Pub Date : 2021-12-01 Epub Date: 2021-07-12 DOI: 10.1080/13648470.2021.1890943

Julia Knopes

{"title":"Six hours to study: temporality and ignorance in medical education.","authors":"Julia Knopes","doi":"10.1080/13648470.2021.1890943","DOIUrl":"https://doi.org/10.1080/13648470.2021.1890943","url":null,"abstract":"Individual scientists, clinicians, and other experts cannot have absolute knowledge of all of the theories, methods, models, and findings in their field of practice. Rather, these individuals make choices about the kind of information that will be most meaningful and impactful in their work, while choosing - or being compelled to choose - what knowledge to overlook or ignore: a process identified as sufficient knowledge. In biomedicine, medical students are socialized to deliberately decide what information matters most; so, too, do practicing physicians openly acknowledge that they make choices around knowledge in daily practice. Within this process, time is a critical factor that mediates epistemological decision-making. In other words, how does time bound or restrict what forms and depth of medical knowledge that physicians and future physicians prioritize? When would someone intentionally limit time in order to constrain the amount and types of information he, she, or they acquire? To answer these questions, this study draws upon interviews and participant observation conducted with students at a medical school in the American Midwest. This article seeks to answer the aforementioned questions and to provide a new framework for, and expand discussions of, agnotology in the anthropology of medicine.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"28 4","pages":"429-444"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13648470.2021.1890943","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39176710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1