Anthropology & MedicinePub Date : 2022-06-01Epub Date: 2021-07-21DOI: 10.1080/13648470.2021.1893981
Chernelle Lambert, Paolo S H Favero, Luc Pauwels
{"title":"Making life stories visible: an ethnographic study of body mapping in the context of HIV and AIDS in South Africa.","authors":"Chernelle Lambert, Paolo S H Favero, Luc Pauwels","doi":"10.1080/13648470.2021.1893981","DOIUrl":"https://doi.org/10.1080/13648470.2021.1893981","url":null,"abstract":"<p><p>This paper analyses the lived experiences of people living with HIV in South Africa through the use of body mapping as a visual research method, by focusing on the physical and symbolic use of the body within the broader context of anthropology and medical anthropology. The study consists of an empirical analysis of the body maps themselves and the accompanied narratives of seven participants, six female and one male participant living with HIV in South Africa. Drawing upon theories and literature on theorising the body in medical anthropology and visual research, this study explores the significance of this practice as a visual research method in understanding the nuanced lived experiences of people living with HIV by highlighting the individuality of the body and emotions; embodied experiences: a bio-cultural approach; and the body politic: social injustice. The results of this study illustrate that body mapping is a unique visual research method, that explores the body as the vehicle in which we exist within the world, while containing a vast amount of layered interpretive and cultural meanings, which are key to understanding the lived experience of people from marginalised groups.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 2","pages":"175-192"},"PeriodicalIF":1.8,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13648470.2021.1893981","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39203894","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2022-06-01Epub Date: 2021-12-06DOI: 10.1080/13648470.2021.1994333
Gisella Orsini
{"title":"Compliance and resistance to treatment in an Italian residential Centre for eating disorders.","authors":"Gisella Orsini","doi":"10.1080/13648470.2021.1994333","DOIUrl":"https://doi.org/10.1080/13648470.2021.1994333","url":null,"abstract":"<p><p>The dominant biomedical model perceives eating disorders as mental disorders and its 'sufferers' as people who need to be healed. It follows that people diagnosed with an eating disorder are pressured to accept medical and psychological care due to the moral obligations that are associated with the sick role, as delineated by Parsons. This, however, does not necessarily imply that they are willing to heal. By analysing compliance and resistance to treatment in an Italian residential Centre for eating disorders, this paper suggests that patients may accept medical care in order to achieve objectives other than those for which power is exerted over them. By complying with treatment, patients may in fact attempt to (re)become anorexic or escape from their everyday environment and problems. It is therefore argued that biomedical power can be subverted from within through the adoption of what De Certeau defines as tactics.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 2","pages":"193-207"},"PeriodicalIF":1.8,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39782647","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2022-06-01Epub Date: 2020-08-24DOI: 10.1080/13648470.2020.1778427
Nayantara Sheoran Appleton
{"title":"Critical ethnographic respect: womens' narratives, material conditions, and emergency contraception in India.","authors":"Nayantara Sheoran Appleton","doi":"10.1080/13648470.2020.1778427","DOIUrl":"https://doi.org/10.1080/13648470.2020.1778427","url":null,"abstract":"<p><p>Emergency Contraceptive Pills (ECPs) are increasingly available over the counter as a form of hormonal birth control in India. As use of ECPs is increasing over time, this paper draws on ethnographic research in Dehradun, in Uttarakhand (Northern State) to highlight the everyday material conditions under which women create narrative around choice and agency regarding these ECPs. Women viewed ECPs as better options than abortion, appreciated the sense of empowerment these provided them because they could be consumed in houses where women had limited 'space and privacy;' and finally that ECPs and their advertisements could act as 'agents of social change.' Feminist scholarship on reproduction demonstrates that choice is a form of agency that is enacted within certain constraints. Using this framework, the research here highlights how women create narratives about ideas of contraceptive choice and notions of 'empowerment' when talking about ECPs and their advertisements. In revisiting the dilemma about women's agency and choice, this paper builds on Rosalind Gill's concept of 'critical respect' to propose 'critical ethnographic respect' as an ethnographic tool to help read women's responses and respectfully contextualise the materiality from within which these narratives emerge.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 2","pages":"141-159"},"PeriodicalIF":1.8,"publicationDate":"2022-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13648470.2020.1778427","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38302998","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Antimicrobial prescribing matters: the irreconcilability in moral ranking systems","authors":"K. Rynkiewich","doi":"10.1080/13648470.2021.1994331","DOIUrl":"https://doi.org/10.1080/13648470.2021.1994331","url":null,"abstract":"Abstract Antimicrobial resistance caused by widespread use of antimicrobials is a defining challenge of our time. This article presents antimicrobial prescribing among physicians as a morally irreconcilable endeavour. Particularly, the physician may have no good option when antimicrobial resistance is seen as both (1) a global threat to be addressed at the population level, and (2) a threat to the individual patient to be addressed in clinical practice. This research demonstrates that in practice, the physician is presented with an irreconcilable dilemma between caring for the population or caring for the individual. The author utilizes an extended ethnographic case study of infectious disease specialists to show that physicians are pressured to use antimicrobials more responsibly for the benefit of society, yet at the same time treat the individual patients with care by administering the most effective and appropriate agents. The author concludes by suggesting that there is no straightforward answer for the practicing physician, since what ultimately matters is unlikely to satisfy either moral ranking system.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"55 1","pages":"208 - 222"},"PeriodicalIF":1.8,"publicationDate":"2022-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"84476822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2022-03-01Epub Date: 2021-07-13DOI: 10.1080/13648470.2021.1893654
Laura Louise Heinsen, Ayo Wahlberg, Helle Vendel Petersen
{"title":"Surveillance life and the shaping of 'genetically at risk' chronicities in Denmark.","authors":"Laura Louise Heinsen, Ayo Wahlberg, Helle Vendel Petersen","doi":"10.1080/13648470.2021.1893654","DOIUrl":"https://doi.org/10.1080/13648470.2021.1893654","url":null,"abstract":"<p><p>Today, in the field of hereditary colorectal cancer in Denmark, more than 40,000 identified healthy individuals with an increased risk of cancer are enrolled in a surveillance program aimed at preventing cancer from developing, with numbers still growing. What this group of healthy individuals has in common is lifelong regular interaction with a healthcare system that has traditionally been geared towards treating the acutely and chronically ill. In this article, we explore how people living with an inherited elevated risk of colorectal cancer orient themselves towards their families' and their own predispositions as well as the lifelong surveillance trajectories that they have embarked upon - what we call surveillance life. Unlike prior critiques of predictive genetic testing as generative of 'pre-patients' or 'pre-symptomatically ill', we suggest that for those enrolled in lifelong surveillance programmes in welfare state Denmark, the relevance of risk fluctuates according to certain moments in life, e.g. at family reunions, when a close relative falls ill, in the time leading up to a surveillance colonoscopy or when enduring the procedures themselves. As such, rather than characterising surveillance life in terms of 'living with chronic risk' we show how 'genetically at risk' chronicities take shape as persons come to terms with a disease that possibly awaits them leading them to recalibrate familial bonds and responsibilities while leading lives punctuated by regular medical check-ups.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 1","pages":"29-44"},"PeriodicalIF":1.8,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/13648470.2021.1893654","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39178632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2022-03-01Epub Date: 2021-09-20DOI: 10.1080/13648470.2021.1949891
Noëllie Genre, Francesco Panese
{"title":"Merging care and prevention: preventive properties of antiretroviral drugs and HIV chronification in the case of Switzerland.","authors":"Noëllie Genre, Francesco Panese","doi":"10.1080/13648470.2021.1949891","DOIUrl":"https://doi.org/10.1080/13648470.2021.1949891","url":null,"abstract":"<p><p>Medication is closely involved in the subjective experience of chronic diseases, but also in the chronification process of illnesses which is described in this paper in the specific case of HIV. The development of antiretroviral drugs (ARVs) and the progressive recognition of their potential dual use as treatment as prevention (TasP) and pre-exposure prophylaxis (PrEP) reshape the experience of HIV and its transmission. Acknowledging the importance of a socioanthropological approach to drugs, this paper highlights how therapeutic strategies of treatment and prevention currently shape the process of HIV <i>chronification</i> and its experience for people concerned with ARVs in Switzerland, whether they are seropositive patients on lifelong treatment or seronegative people affected by the preventive properties of drugs.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 1","pages":"14-28"},"PeriodicalIF":1.8,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39433755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anthropology & MedicinePub Date : 2022-03-01Epub Date: 2022-02-21DOI: 10.1080/13648470.2021.2017126
Julia Rehsmann
{"title":"Failing livers, anticipated futures and un/desired transplants.","authors":"Julia Rehsmann","doi":"10.1080/13648470.2021.2017126","DOIUrl":"https://doi.org/10.1080/13648470.2021.2017126","url":null,"abstract":"<p><p>This article looks at liver transplants as life-prolonging treatment for chronic liver failure and examines the role anticipation plays in the context of chronic liver conditions. Based on anthropological fieldwork in Germany, this article draws on three exemplary patient accounts to show how the anticipatory experience of waiting for a liver transplant serves as an important period in transplant trajectories, and how the lack of a wait may have long-term consequences for patients' wellbeing. A focus on waiting and anticipation in the context of chronic livers enables new understandings of the complex temporal qualities that living with chronic conditions entails. As the sole long-term treatment available for failing livers, the possibilities of transplant medicine shape patients' anticipation of their future. Conversely, the particular futures that patients anticipate mould how they make sense of their transplant and their chronic pre- and post-transplant lives. This article shows that rather than offering a unilinear treatment with a clear-cut end, liver transplants, as treatment for a wide range of chronic conditions, reproduce chronic lives.</p>","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"29 1","pages":"92-106"},"PeriodicalIF":1.8,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39650197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah E. Smith, Baili Gall, Michael Smetana, Maegan McCane, Courtney Helfrecht
{"title":"Poverty and neglected tropical diseases in the American Rural South, by Christine Crudo Blackburn and Macey Lively, Lanham, MD, Lexington Books, 2021","authors":"Sarah E. Smith, Baili Gall, Michael Smetana, Maegan McCane, Courtney Helfrecht","doi":"10.1080/13648470.2021.1994336","DOIUrl":"https://doi.org/10.1080/13648470.2021.1994336","url":null,"abstract":"","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"171 1","pages":"345 - 347"},"PeriodicalIF":1.8,"publicationDate":"2022-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76209450","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Vaccinal chronicity: immunotherapy, primary care, and the temporal remaking of lung cancer’s patienthood in Cuba","authors":"Nils Graber","doi":"10.1080/13648470.2022.2041549","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041549","url":null,"abstract":"Abstract The Cuban biotechnology industry is producing cancer immunotherapy, in particular, therapeutic vaccines that actively stimulate the immune system to stabilise the tumour. These products aim to transform metastatic malignancies into a chronic disease. Since 2010, this therapeutic concept has been integrated within a public health experiment, consisting of the large distribution of immunotherapies, including in primary healthcare centres, to enhance access and assess its effectiveness on a wider population of patients. Such experimental intervention, consisting of post-marketing clinical trials, has focused only on lung cancer, one of the most widespread and lethal cancers on the island. Combining interviews with ethnographic observations focusing on care performed by professionals, patients, and their relatives, this paper analyses the experience of lung cancer chronicity under this type of immunotherapy in Cuba. It shows how a certain form of continuity is made between prophylactic and therapeutic vaccination to shape a new temporality of cancer care, through the integration within primary care, constant access to biotechnology, and multiple care practices directed to strengthen the immunotherapy’s efficacy. If vaccinal chronicity remains fragile due to its experimental dimension and the fact that long-term survivorship is still an exceptional phenomenon, lung cancer patienthood is deeply transformed through a shared effort of the people and the state to provide more stable, meaningful, and inclusive care.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"13 1","pages":"45 - 60"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"81925192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Chronicity and the patient’s decision-making work. The case of an advanced cancer patient","authors":"S. Besle, A. Sarradon-Eck","doi":"10.1080/13648470.2022.2041546","DOIUrl":"https://doi.org/10.1080/13648470.2022.2041546","url":null,"abstract":"Abstract This paper focuses on the particular situation of an advanced cancer patient whose condition has taken a chronic turn. We argue that chronicity of this kind sometimes falls at the frontier of Evidence Based Medicine because the uncertainty about the patient’s condition can lead physicians to resort to clinical trials or non-licensed drugs to prevent the disease from progressing. This situation leaves plenty of scope for individual adjustments between patients and their doctors. Advanced cancer is regarded here not just as a biological event but as a chronic illness and a ‘negotiated reality’. We argue that the chronicity of advanced cancer patients’ situation broadens the patients’ scope for ‘work’, and we have called this specific type of patient’s work ‘decision-making work’. This paper is based on a case study focusing on Patrick, a middle-aged Frenchman with metastatic lung cancer who underwent oncological treatment for seven years and was strongly determined to find new therapeutic options even if this meant having to go abroad. He actively orchestrated his therapeutic itinerary by reorganising his relationships with the medical world and coordinating the physicians’ work. His particular social position enabled Patrick to bypass some of the current medical rules and to reorganise the usual pattern of distribution of medical responsibilities. The chronicity of his condition placed him at the very frontier of the health care system.","PeriodicalId":8240,"journal":{"name":"Anthropology & Medicine","volume":"36 1 1","pages":"76 - 91"},"PeriodicalIF":1.8,"publicationDate":"2022-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"83608115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}