Palliative medicine reports最新文献

{"title":"Psychological Barriers to the Use of Opioid Analgesics for Treating Pain in Patients With Advanced Recurrent Cancer: A Multicenter Cohort Study.","authors":"Takehiko Tsuno, Takashi Kawaguchi, Ryota Yanaizumi, Junichi Kondo, Keiko Kojima, Takashi Igarashi, Masaki Inoue, Tomofumi Miura, Akime Miyasato, Kanako Azuma, Hiroshi Hamada, Tomoya Saeki, Hironori Mawatari, Hiroyuki Ogura, Akira Kotani, Takuhiro Yamaguchi, Hideki Hakamata","doi":"10.1089/pmr.2023.0068","DOIUrl":"10.1089/pmr.2023.0068","url":null,"abstract":"<p><strong>Background: </strong>We aimed to gain insight into psychological barriers toward initiation of strong opioid analgesic use in patients with advanced recurrent cancer.</p><p><strong>Methods: </strong>This study included 46 patients who were prescribed with opioid analgesics for advanced recurrent cancer. The primary outcome was psychological barriers assessed using the Japanese version of the Barriers Questionnaire-II (JBQ-II). The secondary outcomes were psychological changes and pain relief one week after the induction of strong opioid analgesics.</p><p><strong>Results: </strong>The mean age of participants was 63.6 years. Furthermore, 26.1% had an Eastern Cooperative Oncology Group (ECOG) performance status of ≥3. The mean JBQ-II total score was 1.97 (95% confidence interval: 1.75-2.19). At the initiation of opioid therapy, there was no difference in the total scores between the baseline and one week later. Nevertheless, there was a significant difference in the subscale \"disease progression\" score (mean 2.97 vs. 2.59, difference in means 0.38, standard error 0.16, <i>p</i> = 0.026). Personalized Pain Goal (PPG) was achieved in about half of the participants, and a trend toward a higher score in the subscale \"harmful effects\" (concern about adverse events) was observed in those who did not achieve PPG.</p><p><strong>Conclusion: </strong>This study showed that patients with advanced recurrent cancer have psychological barriers to opioid induction. The relationship between the presence of psychological barriers before and after induction of opioid analgesics and the speed of pain improvement was determined. The results may provide fundamental information for prospective intervention studies to develop individualized education programs for patients with psychological barriers to opioids.Clinical Trial Registration Number UMIN000042443.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"5 1","pages":"43-52"},"PeriodicalIF":0.0,"publicationDate":"2024-01-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10797307/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139514005","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acceptance of Digital Health Technologies in Palliative Care Patients.","authors":"Stefan Wicki, Ian C Clark, Manuel Amann, Sebastian M Christ, Markus Schettle, Caroline Hertler, Gudrun Theile, David Blum","doi":"10.1089/pmr.2023.0062","DOIUrl":"10.1089/pmr.2023.0062","url":null,"abstract":"<p><strong>Background: </strong>Digital health technologies have potential to transform palliative care (PC) services. The global aging population poses unique challenges for PC, which digital health technologies may help overcome. Evaluation of attitudes and perceptions combined with quantification of prior use habits favor an understanding of psychological barriers to PC patient acceptance of digital health technologies including artificial intelligence (AI).</p><p><strong>Objectives: </strong>We aimed to evaluate the attitudes and perceptions of PC patients regarding a broad range of digital health technologies used in their routine monitoring and treatment and identify barriers to use.</p><p><strong>Methods: </strong>We used a 39-item questionnaire to evaluate acceptance and use of smartphone-based electronic patient report outcome measures, wearables, AI, data privacy, and virtual reality (VR) in 29 female and male PC inpatients.</p><p><strong>Results: </strong>A majority of patients indicated an interest in (69.0%) and positive attitude toward (75.9%) digital health technologies. Nearly all (93.1%) patients believe that digital health technologies will become more important in medicine in the future. Most patients would consider using their smartphone (79.3%) or wearable (69.0%) more often for their health. The most feasible technologies were smartphones, wearables, and VR. Barriers to acceptance included unfamiliarity, data security, errors in data interpretation, and loss of personal interaction through AI.</p><p><strong>Conclusion: </strong>In this patient survey, acceptance of new technologies in a PC patient population was high, encouraging its use also at the end-of-life.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"5 1","pages":"34-42"},"PeriodicalIF":0.0,"publicationDate":"2024-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10797306/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acknowledgment of Reviewers 2023.","authors":"","doi":"10.1089/pmr.2024.29003.ack","DOIUrl":"https://doi.org/10.1089/pmr.2024.29003.ack","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"5 1","pages":"1-2"},"PeriodicalIF":0.0,"publicationDate":"2024-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10833311/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139673812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Detailed Clinical Characteristics, Interventions, and Long-Term Outcomes of Patients With Gastric Cancer Who Received the Best Supportive Care Without Any Anticancer Treatment","authors":"Y. Arihara, R. Shibuya, M. Ono, N. Suzuki, Ginji Omori, Y. Ikeda, Hajime Nakamura, M. Yamada, T. Abe, K. Takada, M. Maeda","doi":"10.1089/pmr.2023.0066","DOIUrl":"https://doi.org/10.1089/pmr.2023.0066","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"109 44","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138608490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving Advanced Care Planning for Hospitalized Patients With Heart Failure","authors":"Tobin Mathew, Akash H Patel, Kyle DiGrande, N. D. Michelis, Behram P. Mody, Dawn Lombardo","doi":"10.1089/pmr.2023.0035","DOIUrl":"https://doi.org/10.1089/pmr.2023.0035","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"66 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139017982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Need for Improvement in Death Pronouncements in Palliative Care Units","authors":"J. Hamano, Kento Masukawa, S. Tsuneto, Y. Shima, Tatsuya Morita, Y. Kizawa, M. Miyashita","doi":"10.1089/pmr.2023.0053","DOIUrl":"https://doi.org/10.1089/pmr.2023.0053","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"1164 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139014116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Trends in Palliative Care Utilization in Deceased Veterans With Heart Failure","authors":"Mitchell Wice, James L. Rudolph, Lan Jiang, Hal M. Edmonson, John S. Page, Wen-Chih Wu, Julio C. Defillo-Draiby","doi":"10.1089/pmr.2023.0067","DOIUrl":"https://doi.org/10.1089/pmr.2023.0067","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"224 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138987135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of Low-Dose Dronabinol Therapy on Cognitive Function in Cancer Patients Receiving Palliative Care: A Case-Series Intervention Study","authors":"","doi":"10.1089/pmr.2023.0024","DOIUrl":"https://doi.org/10.1089/pmr.2023.0024","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"21 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138627047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient and Clinician Stakeholder Perspectives on a Patient Portal Questionnaire Eliciting Illness and Treatment Understanding and Core Health-Related Values.","authors":"William E Rosa, Jaime Gilliland, Meghan McDarby, Judith E Nelson, Anjali V Desai, Andrew S Epstein","doi":"10.1089/pmr.2023.0057","DOIUrl":"10.1089/pmr.2023.0057","url":null,"abstract":"<p><strong>Introduction: </strong>Person-centered communication is foundational to cancer care. In pilot research, a questionnaire eliciting patients' illness and treatment understanding (ITU) and core health-related values (HRV) through the electronic patient portal demonstrated feasibility, acceptability, and efficacy. The aim of this study was to elicit stakeholder feedback to refine the design of the portal-based intervention, remain end-user centered, and optimize future system-wide integration.</p><p><strong>Methods: </strong>Between April and June 2023, we purposively sampled patients and clinicians from a previous pilot study to participate in a 20-30-minute semistructured interview about their opinions of and experiences with the portal questionnaire on ITU and HRV. An interdisciplinary coding team used a two-phase rapid analysis to identify themes, subthemes, and illustrative participant quotations.</p><p><strong>Results: </strong>Fourteen patients (mean age = 68 years) and 12 clinicians participated (total <i>n</i> = 26). Colorectal cancer was the commonest malignancy (64%) among patients. Clinicians were mostly physicians (50%), nurse practitioners (33%), and registered nurses (17%), with two-thirds having >15 years of experience in their specialty. Analysis generated four themes: (1) clinical utility of questionnaire, (2) barriers to questionnaire implementation, (3) considerations and strategies for modifying the questionnaire, and (4) considerations and strategies for questionnaire implementation. Themes captured key information about incorporating this questionnaire into clinical practice.</p><p><strong>Conclusion: </strong>Patients with cancer and their clinicians found a portal-based ITU and HRV questionnaire clinically useful to improve multiple aspects of person-centered communication. Participant recommendations about questionnaire timing and sharing of questionnaire responses with the clinical team will inform future questionnaire implementation and scaling in clinical settings.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"316-325"},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10712361/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138813574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family.","authors":"Caroline E Stephens, Djin Tay, Eli Iacob, Michael Hollinghaus, Rebecca Goodwin, Brenna Kelly, Ken Smith, Lee Ellington, Rebecca Utz, Katherine Ornstein","doi":"10.1089/pmr.2023.0023","DOIUrl":"10.1089/pmr.2023.0023","url":null,"abstract":"<p><strong>Background: </strong>Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL).</p><p><strong>Objective: </strong>To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998-2016 (<i>n</i> = 43,405).</p><p><strong>Methods: </strong>Using the Utah Population Caregiving Database, we linked NH decedents to their FDF (<i>n</i> = 124,419; spouses = 10.8%; children = 55.3%; siblings = 32.3%) and compared sociodemographic and death characteristics of those with and without FDF members (<i>n</i> = 9424).</p><p><strong>Results: </strong>Compared to NH decedents with FDF (78.3%), those without (21.7%) were more likely to be female (64.7% vs. 57.1%), non-White/Hispanic (11.2% vs. 4.2%), less educated (<9th grade; 41.1% vs. 32.4%), and die in a rural/frontier NH (25.3% vs. 24.0%, all <i>p</i> < 0.001). Despite similar levels of disease burden (Charlson Comorbidity score 3 + 37.7% vs. 38.0%), those without FDF were more likely to die from cancer (14.2% vs. 12.4%), Chronic Obstructive Pulmonary Disease (COPD) (6.0% vs. 4.0%), and dementia (17.1% vs. 16.6%, all <i>p</i> < 0.001), and were less likely to have 2+ hospitalizations at EOL (20.5% vs. 22.4%, <i>p</i> < 0.001).</p><p><strong>Conclusions: </strong>Among NH decedents, those with and without FDF have different sociodemographic and death characteristics-factors that may impact care at EOL. Understanding the nature of FDF relationship type on NH resident EOL care trajectories and outcomes is an important next step in clarifying the role of families of persons living and dying in NHs.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"308-315"},"PeriodicalIF":0.0,"publicationDate":"2023-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10664558/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138464907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}