Palliative medicine reports最新文献

筛选
英文 中文
Designing and Developing Interprofessional Learning Experiences in Palliative Care: A Collaborative Workshop Approach. 设计与发展缓和疗护的跨专业学习经验:合作工作坊方法。
IF 1.1
Palliative medicine reports Pub Date : 2025-04-16 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0081
Carolyn Kezar, Justine McGiboney, Michael D Barnett, Richard Taylor, Rebecca Edwards, Ella H Bowman, Elizabeth McAlister, Moneka A Thompson, Tara Schapmire, Chao-Hui Sylvia Huang
{"title":"Designing and Developing Interprofessional Learning Experiences in Palliative Care: A Collaborative Workshop Approach.","authors":"Carolyn Kezar, Justine McGiboney, Michael D Barnett, Richard Taylor, Rebecca Edwards, Ella H Bowman, Elizabeth McAlister, Moneka A Thompson, Tara Schapmire, Chao-Hui Sylvia Huang","doi":"10.1089/pmr.2024.0081","DOIUrl":"https://doi.org/10.1089/pmr.2024.0081","url":null,"abstract":"<p><strong>Background: </strong>Team-based care is vital in palliative care, but there is limited interprofessional education (IPE) among health care providers, leading to siloed learning. This project addresses this gap by developing a workshop focused on the active dying process, promoting shared competencies among palliative medicine, geriatrics, nursing, and psychology subspecialty learners.</p><p><strong>Objective: </strong>We aimed to design, implement, and evaluate an Interprofessional Education Exchange (IPEX) Death and Dying workshop to foster interdisciplinary collaboration and improve participants' comfort with palliative care competencies.</p><p><strong>Design: </strong>A full-day, case-based workshop was developed using the Analysis, Design, Development, Implementation, Evaluation model, emphasizing experiential and collaborative learning.</p><p><strong>Setting/subjects: </strong>Two workshops were held at a tertiary southeastern academic university in the United States (US) in 2022 (cohort 1) and 2023 (cohort 2). A total of 25 participants, including palliative medicine fellows, geriatric medicine fellows, advanced nurse practitioner students, and psychology residents, completed the workshops.</p><p><strong>Measurements: </strong>Participants' comfort with palliative care competencies, perceptions of interprofessional collaboration, and qualitative feedback were assessed using post-workshop surveys.</p><p><strong>Results: </strong>Participants' comfort in providing anticipatory guidance, addressing spiritual distress, and supporting grief and bereavement improved. Interprofessional collaboration and professional growth, particularly in communication and understanding each other's roles and responsibilities in caring for the actively dying, also increased.</p><p><strong>Conclusions: </strong>The collaborative IPEX Death and Dying workshop has been shown to enhance competencies and foster interprofessional collaboration among palliative care subspecialty learners across four disciplines. This model holds potential for broader implementation across health care settings to improve care for the seriously ill patients.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"28-37"},"PeriodicalIF":1.1,"publicationDate":"2025-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040550/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144046048","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Intensive End-of-Life Care: Implementation of a Canadian Guideline-Based Order Set for the Withdrawal of Life-Sustaining Therapy in the Intensive Care Unit. 强化临终关怀:加拿大基于指南的重症监护室生命维持治疗退出命令集的实施。
IF 1.1
Palliative medicine reports Pub Date : 2025-04-10 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0091
Alison Knapp, Jennifer M O'Brien, Maria Cruz, Mary Ellen Walker, Joann Kawchuk, Carol Brons, Sabira Valiani
{"title":"Intensive End-of-Life Care: Implementation of a Canadian Guideline-Based Order Set for the Withdrawal of Life-Sustaining Therapy in the Intensive Care Unit.","authors":"Alison Knapp, Jennifer M O'Brien, Maria Cruz, Mary Ellen Walker, Joann Kawchuk, Carol Brons, Sabira Valiani","doi":"10.1089/pmr.2024.0091","DOIUrl":"https://doi.org/10.1089/pmr.2024.0091","url":null,"abstract":"<p><strong>Background: </strong>An increasing number of patients receive end-of-life care in the intensive care unit (ICU). Death often occurs in the ICU after a decision has been made to withdraw life-sustaining therapies. In 2016, Downar et al. published Canadian consensus guidelines to standardize practices for withdrawal of life-sustaining therapy in the ICU. In this study, we sought to understand the feasibility and acceptability of implementing an order set, nursing flowsheet, and nursing care plan based on these guidelines in two ICUs in Saskatchewan, Canada.</p><p><strong>Methods: </strong>We used a hybrid effectiveness-implementation design, engaging a steering committee of ICU health care providers and leadership to guide implementation. We conducted a six-month pilot implementation. We collected data in the three months pre-implementation, during the six-month implementation period, and for three months post-implementation. To evaluate implementation outcomes, we used the Consolidated Framework for Implementation Research to develop semi-structured interviews and feasibility surveys. To measure effectiveness outcomes, bedside nurses completed Quality of Death and Dying surveys, and we performed a patient chart review.</p><p><strong>Results: </strong>The intervention materials added to the burden of paperwork of bedside health care providers but helped them provide quality end-of-life care, meet the needs of patients and their families, and lessen ethical tensions between symptom control and hastening death. There was no difference in cumulative sedative dosing and time to death after extubation in the pre-implementation, implementation, or post-implementation periods. A significant increase in symptom assessment (pain, dyspnea, and agitation) using standardized tools was observed during the implementation and post-implementation periods. There was an improvement in holistic care outcomes post-implementation.</p><p><strong>Conclusions: </strong>We implemented current Canadian best-practice guidelines for providing end-of-life care in the ICU using a multidisciplinary approach. This study offers insight into how standardized symptom assessment and medication titration can be incorporated into the complex ICU environment.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"161-170"},"PeriodicalIF":1.1,"publicationDate":"2025-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040528/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144045033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Desire to Die Communication Training for Professionals: Developing Online Formats. 渴望死亡专业人士的沟通培训:发展在线形式。
IF 1.1
Palliative medicine reports Pub Date : 2025-04-10 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0075
Kathleen Boström, Thomas Dojan, Axel Doll, Thomas Montag, Raymond Voltz, Kerstin Kremeike
{"title":"Desire to Die Communication Training for Professionals: Developing Online Formats.","authors":"Kathleen Boström, Thomas Dojan, Axel Doll, Thomas Montag, Raymond Voltz, Kerstin Kremeike","doi":"10.1089/pmr.2024.0075","DOIUrl":"https://doi.org/10.1089/pmr.2024.0075","url":null,"abstract":"<p><strong>Background: </strong>Severely ill patients often express a desire to die, which can turn into suicidality. To support health professionals in managing this issue, we initially created a two-day face-to-face training to enhance self-confidence, knowledge, attitudes, and skills. Due to the increasing need for more accessible formats, we aimed to transition this training online and develop a complementary website.</p><p><strong>Methods: </strong>Multimethod approach to develop and evaluate an online training and a website on dealing with the desire to die in palliative care in Germany. This involved: (1) reviewing literature on effective didactic elements, (2) digitalizing the face-to-face training and creating the website with ongoing expert feedback, and (3) piloting and evaluating these resources through online surveys.</p><p><strong>Results: </strong>We retrieved suggestions for the development of online trainings and websites from <i>n</i> = 39 publications. Through these results and expert discussion, an online version of our training and a website were developed. For evaluation, we conducted two trainings (face-to-face (<i>n</i> = 8) and online (<i>n</i> = 19)) with multiprofessional participants. All improved significantly in self-confidence after the training without differences between online and face-to-face training. Website evaluation of usability, comprehension, information quality, presentation, and sustainability by <i>n</i> = 71 users yielded favorable feedback with improvement suggestions for structure and plain language.</p><p><strong>Conclusions: </strong>Dealing with the desire to die can be taught not only face to face but also through online training and an educational website. This can ensure low-threshold access to scientifically sound information and training units for those health professionals confronted with the desire to die.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"38-49"},"PeriodicalIF":1.1,"publicationDate":"2025-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040540/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144025763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient, Provider, and Health System Determinants of Hospice Length of Stay. 病人、提供者和健康系统决定安宁疗护时间的长短。
IF 1.1
Palliative medicine reports Pub Date : 2025-04-03 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0077
Eliza Thompson, Daniel Sanchez Pellecer, Gregory J Hanson, Shealeigh A Inselman, Jenn M Manggaard, Kevin J Whitford, Jacob J Strand, Rozalina G McCoy
{"title":"Patient, Provider, and Health System Determinants of Hospice Length of Stay.","authors":"Eliza Thompson, Daniel Sanchez Pellecer, Gregory J Hanson, Shealeigh A Inselman, Jenn M Manggaard, Kevin J Whitford, Jacob J Strand, Rozalina G McCoy","doi":"10.1089/pmr.2024.0077","DOIUrl":"https://doi.org/10.1089/pmr.2024.0077","url":null,"abstract":"<p><strong>Background: </strong>Benefits of hospice care, such as improvement in quality of life and reduced costs, depend on duration of enrollment in hospice services, making timely hospice referral essential. Patient-, provider-, and system-level factors associated with hospice referral timing and length of stay (LOS) are unclear.<sup>1-6</sup>.</p><p><strong>Objective: </strong>To review existing hospice referral patterns to identify patient- and system-level factors associated with hospice LOS.</p><p><strong>Methods: </strong>We performed a retrospective review of all adult patients referred from our institution (located in Rochester, Minnesota, USA) to a nonprofit hospice agency between 2013 and 2017. The primary dependent variable was hospice LOS. Patient-level variables included demographic characteristics, place of residence, and hospice diagnosis. System-level variables included referral setting and provider-specific variables, such as title and gender. Statistical analyses were performed using multivariate logistic regression.</p><p><strong>Results: </strong>A total of 2072 patients were referred to hospice during the study period. Patient-level factors associated with LOS included hospice diagnosis and place of residence. Patients referred for cancer had a higher odds of a long LOS, while patients from long-term care facilities had a higher odds of a short LOS. System-level factors associated with LOS included provider gender and title. Referral by a female provider or by a physician, rather than an advanced practice provider, was associated with a lower odds of a short LOS.</p><p><strong>Conclusion: </strong>Based on a review of hospice referral patterns, the integration of hospice care into subspecialty practices, long-term care facilities, and advanced practice education could be an effective strategy to improve hospice LOS.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"144-152"},"PeriodicalIF":1.1,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040557/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144044474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Real-World Insights: End-of-Life Care for Patients with Terminal Gastric Cancer at Home. 真实世界的洞察:家庭对胃癌晚期患者的临终关怀。
IF 1.3
Palliative medicine reports Pub Date : 2025-04-02 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0104
Hiroaki Yamane, Aki Yoshimitsu, Etsushi Akimoto, Tomoyuki Abe, Motoi Yamane
{"title":"Real-World Insights: End-of-Life Care for Patients with Terminal Gastric Cancer at Home.","authors":"Hiroaki Yamane, Aki Yoshimitsu, Etsushi Akimoto, Tomoyuki Abe, Motoi Yamane","doi":"10.1089/pmr.2024.0104","DOIUrl":"10.1089/pmr.2024.0104","url":null,"abstract":"<p><strong>Background: </strong>As the Japanese population continues to age, home health care provision has greater significance. However, the number of patients with terminal cancer receiving end-of-life care at home remains limited, and predicting the prognosis of patients with terminal-stage gastric cancer is challenging.</p><p><strong>Objective: </strong>To analyze the real-world data of patients with terminal gastric cancer receiving end-of-life care at home to provide insights into their care and health outcomes.</p><p><strong>Design: </strong>A two-center retrospective study.</p><p><strong>Setting/subjects: </strong>This study focused on terminal patients with gastric cancer who died at home between 2021 and 2024 in Japan. A total of 27 participants (14 males and 13 females) were included in the study, with a median age of 78 years.</p><p><strong>Measurements: </strong>First, we analyzed the detailed clinical course of the patients during home care. Second, we performed a comparative analysis by dividing the patients into two groups based on median overall survival (OS).</p><p><strong>Results: </strong>The median OS during home care was 22 days. The patients were divided into two groups: long OS (OS-L) and short OS (OS-S). Strong opioid use and home oxygen therapy were recorded in 22 and nine patients, respectively. In the OS-S group, oral intake was significantly reduced (25.0% vs. 66.7%, <i>p</i> = 0.032). There was a notable difference in serum albumin levels between the two groups (2.8 vs. 2.4 mg/dL, <i>p</i> = 0.038). The neutrophil-to-lymphocyte ratio (NLR)/albumin was significantly higher in the OS-S group compared to the OS-L group (1.0 vs. 2.3, <i>p</i> = 0.032).</p><p><strong>Conclusions: </strong>Oral intake, serum albumin level, and NLR/albumin were important prognostic factors in end-of-life care at home of patients with terminal gastric cancer.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"137-143"},"PeriodicalIF":1.3,"publicationDate":"2025-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040547/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144044476","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Description of a National Initiative to Train and Implement Processes of Primary Palliative Care in the Public Health System in Brazil. 描述在巴西公共卫生系统中培训和实施初级姑息治疗过程的国家倡议。
IF 1.3
Palliative medicine reports Pub Date : 2025-03-17 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0090
Maria Perez Soares D'Alessandro, Leonardo Bohner Hoffmann, Hieda Ludugerio de Souza, Fábio Holanda Lacerda, Fernanda Spiel Tuoto, Ana Paula Mirarchi Vieira Maiello, Daniel Felgueiras Rolo, Taís Milene Santos de Paiva, Eliana Maria Ribeiro Dourado, Carina Tischler Pires, Vânia Bezerra, Daniel Neves Forte
{"title":"Description of a National Initiative to Train and Implement Processes of Primary Palliative Care in the Public Health System in Brazil.","authors":"Maria Perez Soares D'Alessandro, Leonardo Bohner Hoffmann, Hieda Ludugerio de Souza, Fábio Holanda Lacerda, Fernanda Spiel Tuoto, Ana Paula Mirarchi Vieira Maiello, Daniel Felgueiras Rolo, Taís Milene Santos de Paiva, Eliana Maria Ribeiro Dourado, Carina Tischler Pires, Vânia Bezerra, Daniel Neves Forte","doi":"10.1089/pmr.2024.0090","DOIUrl":"10.1089/pmr.2024.0090","url":null,"abstract":"<p><strong>Objective: </strong>To describe the first national project in Brazil to systematically bring palliative care (PC) knowledge and practices to public health services.</p><p><strong>Materials and methods: </strong>Descriptive case study of \"Palliative Care Program in the SUS-hospital care, specialized outpatient care and home care,\" based on three main pillars and carried out in five stages.</p><p><strong>Results: </strong>The program took place from 2020 to 2024. Part of its fundamental design was the customization of PC initiatives to be implemented in the health care services based on the local reality of each region and its available resources. The target services were clusters of three public or philanthropic health care services comprising one hospital, one specialized outpatient clinic, and one home care service that allowed for the continual care of the patients.</p><p><strong>Discussion: </strong>Considering the Brazilian territorial extension and the complexity of the public health system, the project was innovative in adding competence and management processes in PC without burdening the services. Remote activities and reduced visits made the project low-cost, allowing it to be scaled up and viable even in a country of continental proportions.</p><p><strong>Conclusions: </strong>The field teams had the opportunity to listen to the health professionals of the public system, who were struggling with work overloads and a population in dire PC needs, giving them a voice and enabling the adjustment of the project's interventions based on their reality. These ongoing and timely adjustments at the same time engaged local leaders and improved the interventions sought.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"116-121"},"PeriodicalIF":1.3,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12976726/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147500493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers. 在老年痴呆症患者生命的最后一周支持家庭照顾者:一项对失去亲人的家庭照顾者的调查。
IF 1.1
Palliative medicine reports Pub Date : 2025-03-05 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0088
Hinke E Hoffstädt, Maartje S Klapwijk, Iris D Hartog, Yvette M van der Linden, Bart J A Mertens, Arianne Stoppelenburg, Jenny T van der Steen
{"title":"Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers.","authors":"Hinke E Hoffstädt, Maartje S Klapwijk, Iris D Hartog, Yvette M van der Linden, Bart J A Mertens, Arianne Stoppelenburg, Jenny T van der Steen","doi":"10.1089/pmr.2024.0088","DOIUrl":"10.1089/pmr.2024.0088","url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of people with dementia in nursing homes may need support from healthcare providers, especially when death is approaching.</p><p><strong>Objective: </strong>To increase our understanding of family caregivers' experiences in their relative's last week of life before and during the pandemic, their needs for emotional, practical, and spiritual support, and the extent to which those needs are accommodated by healthcare providers.</p><p><strong>Design: </strong>Survey among bereaved family caregivers of people with dementia recruited from six nursing homes in the Netherlands in 2018-2019 and 2020-2022.</p><p><strong>Results: </strong>The questionnaire was completed by 165 family caregivers (response rate: 55%). Most respondents (79%) rated the overall care they received as \"excellent,\" \"very good,\" or \"good.\" More respondents reported a need for emotional (74%) and practical (64%) support than for spiritual support (37%). Emotional and practical support were more commonly \"always\" or \"most of the time\" provided (63% and 51%, respectively) than spiritual support (22%). Differences existed in the presence of practical, emotional, and spiritual support needs (<i>p</i> < 0.001) and the frequency in which those support types were provided when there was a need (<i>p</i> < 0.001). The overall care that was received was more likely to be rated as \"excellent\" or \"very good\" when a higher frequency of emotional (<i>p</i> < 0.001), spiritual (<i>p</i> < 0.002), or practical (<i>p</i> < 0.001) support was reported. Before and during the pandemic, family caregivers' responses were mostly similar.</p><p><strong>Conclusion: </strong>Family caregivers had support needs that were not always met, which was especially the case for spiritual support needs. Healthcare providers should be trained to accommodate support needs and refer to appropriate support services when necessary.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"105-115"},"PeriodicalIF":1.1,"publicationDate":"2025-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Psychometric Evaluation of the Chinese Version of the Quality-of-Life Questionnaire for Patients with Multiple Myeloma. 多发性骨髓瘤患者生活质量问卷中文版的心理测量学评价。
IF 1.1
Palliative medicine reports Pub Date : 2025-03-03 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0086
Chao Liu, Li Wang, Yin Wu, Qian Jiao, Bianhong Yang, Yuan Jian
{"title":"Psychometric Evaluation of the Chinese Version of the Quality-of-Life Questionnaire for Patients with Multiple Myeloma.","authors":"Chao Liu, Li Wang, Yin Wu, Qian Jiao, Bianhong Yang, Yuan Jian","doi":"10.1089/pmr.2024.0086","DOIUrl":"10.1089/pmr.2024.0086","url":null,"abstract":"<p><strong>Background: </strong>Patients with multiple myeloma (MM) frequently endure a range of disease-related and treatment-related symptoms that significantly impact their quality of life. The Quality of Life Questionnaire Multiple Myeloma Module 20-item (QLQ-MY20) questionnaire developed by European Organization for Research and Treatment of Cancer (EORTC) was to evaluate the quality of life in patients with myeloma. However, it had not been evaluated in China. This study aimed to validate the Chinese version of the EORTC QLQ-MY20 questionnaire in terms of its reliability, validity, and sensitivity.</p><p><strong>Methods: </strong>The EORTC QLQ-MY20 questionnaire was translated into Chinese and was completed by 140 Chinese patients with MM. The analysis included assessing content validity using the scale-level content validity index, evaluating construct validity through exploratory factor analysis, and calculating reliability statistics.</p><p><strong>Results: </strong>The scale-level content validity index/unanimity was 0.875, and the scale-level content validity index/average was 0.915. Through exploratory factor analysis, the Chinese version of QLQ-MY20 demonstrated a test-retest reliability of 0.857. The Cronbach's α coefficient was 0.887, with the three dimensions having coefficients of 0.879, 0.809, and 0.786, respectively. The Kaiser-Meyer-Oklin value was 0.927, and the eigenvalues for the three common factors were 10.127, 2.831, and 1.124, respectively. The overall variance contribution rate was 74.112%.</p><p><strong>Conclusions: </strong>The Chinese edition of the EORTC QLQ-MY20 is deemed a reliable and valid instrument for evaluating the quality of life in Chinese patients with MM.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"98-104"},"PeriodicalIF":1.1,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947649/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Design, Implementation, and Evaluation of a Multidisciplinary Palliative Care Curriculum for Obstetrician Gynecologist Residents. 妇产科住院医师多学科姑息治疗课程的设计、实施和评估。
IF 1.1
Palliative medicine reports Pub Date : 2025-02-28 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2024.0082
Lindsay W Brubaker, Marisa R Moroney, Aneesa Thannickal, Meredith J Alston, Josephine H Amory, Amanika Kumar, Carolyn Lefkowits
{"title":"Design, Implementation, and Evaluation of a Multidisciplinary Palliative Care Curriculum for Obstetrician Gynecologist Residents.","authors":"Lindsay W Brubaker, Marisa R Moroney, Aneesa Thannickal, Meredith J Alston, Josephine H Amory, Amanika Kumar, Carolyn Lefkowits","doi":"10.1089/pmr.2024.0082","DOIUrl":"10.1089/pmr.2024.0082","url":null,"abstract":"<p><strong>Abstract: </strong>Palliative care focuses on providing relief from the stress and symptoms of serious illness. Obstetrician gynecologists (OBGYNs) manage a variety of complex clinical situations ranging from delivering a cancer diagnosis to caring for a neonatal demise to symptom management, all of which fall within the realm of palliative care. Palliative care is relevant to the practice of OBGYNs, yet residents rarely receive formal primary palliative care training. We sought to design, implement, and evaluate a dedicated curriculum on palliative care for OBGYN residents.</p><p><strong>Abstract: </strong>We performed a needs assessment of an OBGYN residency at a single institution. This information was used to develop a multidisciplinary palliative care curriculum. Post-curriculum surveys were distributed and analyzed. Descriptive statistics were utilized.</p><p><strong>Abstract: </strong>Our needs assessment identified a lack of knowledge and competency in palliative care concepts and skills. Using this information, we created a multidisciplinary palliative care curriculum, including clinical experiences, chalk talks, and online didactics. Post-curriculum surveys revealed a marked improvement in both knowledge base and perceived competence. Feedback was overwhelmingly positive; residents indicated that the curriculum was both a valuable use of time and would impact their provision of care in the future.</p><p><strong>Abstract: </strong>A dedicated palliative care curriculum is an impactful addition to OBGYN training.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"90-97"},"PeriodicalIF":1.1,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring Psychotherapy Approaches for Dyspnea: A Systematic Review Protocol. 探索呼吸困难的心理治疗方法:一项系统评价方案。
IF 1.1
Palliative medicine reports Pub Date : 2025-02-21 eCollection Date: 2025-01-01 DOI: 10.1089/pmr.2025.0002
Jun Kako, Kohei Kajiwara, Masamitsu Kobayashi, Yoshiyasu Ito, Kanako Ichikura, Yoshinobu Matsuda, Takashi Yamaguchi
{"title":"Exploring Psychotherapy Approaches for Dyspnea: A Systematic Review Protocol.","authors":"Jun Kako, Kohei Kajiwara, Masamitsu Kobayashi, Yoshiyasu Ito, Kanako Ichikura, Yoshinobu Matsuda, Takashi Yamaguchi","doi":"10.1089/pmr.2025.0002","DOIUrl":"10.1089/pmr.2025.0002","url":null,"abstract":"<p><strong>Introduction: </strong>Dyspnea, a common and debilitating symptom, affects over half of the patients with cancer, with increasing frequency and severity as the end of life approaches. It substantially affects the daily lives of patients by contributing to anxiety, depression, fatigue, and reduced physical activity, ultimately diminishing their quality of life. Although pharmacological treatments remain standard, nonpharmacological interventions, including psychotherapy, are increasingly recommended owing to their safety and accessibility. Psychotherapy is particularly relevant for alleviating psychological distress associated with dyspnea; however, research on its efficacy in managing dyspnea among patients with cancer is limited. This systematic review aims to synthesize evidence on the following four key psychotherapy techniques for managing dyspnea: mindful breathing, guided imagery, progressive muscle relaxation, and meditation. The review will assess the optimal delivery methods, evaluate the quality of existing studies, and provide clinical recommendations for implementing these interventions in cancer care.</p><p><strong>Method and analysis: </strong>This review adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocols. A systematic search will be conducted on some databases such as PubMed. Relevant studies will also be identified through reference lists and manual searches of key journals. The search terms will include keywords related to dyspnea and psychotherapeutic techniques. Four independent reviewers will screen and assess the articles, extracting data using a standardized charting form. The quality of the studies will be assessed using the Mixed Methods Assessment Tool. The results will be summarized via a psychotherapeutic technique, providing a comprehensive overview of the interventions and their applicability.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"84-89"},"PeriodicalIF":1.1,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947646/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信
小红书