Palliative medicine reports最新文献

{"title":"Mitigating Moral Injury for Palliative Care Clinicians.","authors":"Anne G Pereira, Mark Linzer, Leonard L Berry","doi":"10.1089/pmr.2022.0062","DOIUrl":"https://doi.org/10.1089/pmr.2022.0062","url":null,"abstract":"Palliative care clinicians (PCCs) in the United States face the combination of increasing burnout and a growing need for their services based on demographic changes and an increasing burden of serious illness. In addition to efforts to increase the number of PCCs and to train other clinicians in “primary palliative skills,” we must address the burnout in the field to address the growing gap between need for this care and capacity to provide it. To address burnout in PCCs, we must develop solutions with the unique contributors to burnout in this field in mind. PCCs are particularly susceptible to moral distress and moral injury faced by all clinicians, and these states are inextricably linked to burnout. We propose three solutions to address moral distress and moral injury in PCCs to reduce burnout. These solutions are grounded in the dilemmas particular to palliative care and in best evidence: first, to create space for PCCs to confront moral challenges head-on; second, to integrate ethics consultations into care of some patients cared for by PCCs; and third, to reassess care models for PCCs. These approaches can mitigate burnout and thus address the growing gap in our ability to provide high-quality palliative care for those patients in need.","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"24-27"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9994438/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9096492","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Differences in the Analgesic Effect of Opioids on Pain in Cancer Patients With Spinal Metastases.","authors":"Miho Takemura,&nbsp;Kazuyuki Niki,&nbsp;Yoshiaki Okamoto,&nbsp;Hiroshi Tamura,&nbsp;Tomohiro Kawamura,&nbsp;Makie Kohno,&nbsp;Yoshinobu Matsuda,&nbsp;Kenji Ikeda","doi":"10.1089/pmr.2023.0018","DOIUrl":"https://doi.org/10.1089/pmr.2023.0018","url":null,"abstract":"<p><strong>Background: </strong>Spinal metastasis pain includes both inflammatory and neuropathic pain, and opioids, which have only a μ-opioid receptor-stimulating effect, are generally less effective in neuropathic pain. However, no previous study has been conducted for the comparisons of the efficacy of opioids in treating spinal metastasis pain.</p><p><strong>Objective: </strong>To compare the efficacy of tapentadol and methadone with other opioids for back pain caused by a metastatic spinal tumor.</p><p><strong>Design: </strong>Retrospective cohort study.</p><p><strong>Setting/subjects: </strong>A total of 274 patients were enrolled, who started a tapentadol extended-release tablet, methadone tablet, hydromorphone extended-release tablet, oxycodone extended-release tablet, or transdermal fentanyl patch for cancer pain due to spinal metastasis in Japan from January 1, 2013 to October 31, 2021.</p><p><strong>Measurements: </strong>The primary endpoint, the difference in the numerical rating scale (NRS) scores before and seven days after each opioid administration, was compared among the five groups.</p><p><strong>Results: </strong>In patients with numbness, a decrease of the NRS score on day seven compared with before starting each opioid was significantly higher in the tapentadol group than those in the hydromorphone, oxycodone, and fentanyl groups and comparable to that in the methadone group. In patients without numbness, no significant differences were observed in decreases of the NRS scores on day seven among the five groups.</p><p><strong>Conclusions: </strong>Tapentadol and methadone may be more effective than hydromorphone, oxycodone, and fentanyl for cancer pain due to spinal metastasis with numbness.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"220-230"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10457616/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10465176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Survival Prediction of Patients Who Were Terminally Ill Using the EORTC QLQ-C15-PAL Scores and Laboratory Test Values.","authors":"Chikako Matsumura,&nbsp;Nanako Koyama,&nbsp;Kaho Okuno,&nbsp;Nobuhiko Nakamura,&nbsp;Morito Sako,&nbsp;Hideo Kurosawa,&nbsp;Takehisa Nomura,&nbsp;Yuki Eguchi,&nbsp;Kazuki Ohba,&nbsp;Yoshitaka Yano","doi":"10.1089/pmr.2023.0015","DOIUrl":"https://doi.org/10.1089/pmr.2023.0015","url":null,"abstract":"<p><strong>Background: </strong>Prognostics for patients with cancer is especially important for the supportive care of those who are terminally ill. We previously found that symptom scores as patient-reported outcomes (PROs)-such as dyspnea and fatigue scores-some biochemical parameters, the palliative performance scale (PPS) scores, and symptom clusters were useful prognostic factors; however, the predictability of a prognosis based on these factors remains unclear.</p><p><strong>Objective: </strong>To identify appropriate three-week survival predictive factor(s), in terms of performance, in patients who were terminally ill.</p><p><strong>Design: </strong>We collected symptom scores as PROs using the Japanese version of the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 15 Palliative Care (EORTC QLQ-C15-PAL).</p><p><strong>Setting/subjects: </strong>We used data from terminally ill patients with cancer who were hospitalized at the palliative care unit of the Higashisumiyoshi-Morimoto Hospital (Osaka, Japan) from June 2018 to December 2019 (<i>n</i> = 130), as well as additional data obtained from the same clinical study from January to March 2020 (<i>n</i> = 31).</p><p><strong>Measurements: </strong>To evaluate predictive performance, indices such as sensitivity, specificity, positive predictive value, negative predictive value, and overall accuracy were calculated.</p><p><strong>Results: </strong>We found that the presence of a symptom cluster showed high sensitivity but low specificity and that a higher PPS value (>30) showed high specificity but low sensitivity, suggesting that these factors could provide relevant information for survival prognosis (less than or equal to three weeks).</p><p><strong>Conclusion: </strong>Symptom clusters obtained from patients is important for effective supportive care of those who are terminally ill.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"202-207"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10457602/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10107376","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Characteristics of Developmental and Healing Process of Docetaxel-Induced Lower Limb Edema in Patients with Stage IV Breast Cancer: A Case Series.","authors":"Yuko Imakata,&nbsp;Junko Sugama,&nbsp;Sayumi Ichihashi,&nbsp;Fumiya Oohashi,&nbsp;Masato Kobayashi,&nbsp;Makoto Oe","doi":"10.1089/pmr.2022.0059","DOIUrl":"https://doi.org/10.1089/pmr.2022.0059","url":null,"abstract":"<p><strong>Background: </strong>Management of docetaxel-induced edema is important as severe edema may lead to discontinuation of chemotherapy. Patients with stage IV breast cancer (BC) treated with docetaxel have shown lower limb edema; however, details of its developmental and healing processes are unknown, and thus management strategies have not been established. The aim of this study was to investigate the characteristics of the development and healing process of docetaxel-induced lower limb edema in stage IV BC patients.</p><p><strong>Methods: </strong>This prospective observational study was conducted on patients with BC who were administered docetaxel between September 2020 and September 2021 at a National Hospital in Japan. Skin changes such as pitting test, circumference, along with ultrasound images and subjective symptom changes were evaluated. The progression of these changes was compared between patients with stage IV and non-stage IV disease.</p><p><strong>Results: </strong>Five patients were enrolled in the study, of which two and one patients with stage IV and non-stage IV disease, respectively, developed lower limb edema. Early signs of lower limb edema were observed in ultrasound images, 15 cm below the peroneal head, before edema was confirmed by the pitting test and subjective symptoms. In patients with stage IV disease, edema worsened to Grade 3, and reduced four months after the end of drug administration.</p><p><strong>Conclusion: </strong>For patients with stage IV disease, care should be initiated from the time the early signs are observed using ultrasound and continued for up to four months after the end of docetaxel administration.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"49-55"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9994445/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9100916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I Should at Least Have the Feeling That It […] Really Comes from Within\": Professional Nursing Views on Assisted Suicide.","authors":"Lena Dörmann,&nbsp;Friedemann Nauck,&nbsp;Karin Wolf-Ostermann,&nbsp;Henrikje Stanze","doi":"10.1089/pmr.2023.0019","DOIUrl":"https://doi.org/10.1089/pmr.2023.0019","url":null,"abstract":"<p><strong>Background: </strong>Due to a decision by the German Federal Constitutional Court of February 26, 2020, it is currently possible in Germany to avail of assisted suicide. The ruling has given rise to a controversial debate within the professional community as well as in society in general. Within this debate, little attention has been given to the role of nursing staff in assisted suicide. However, international studies show that nurses play an important role in assisted suicide.</p><p><strong>Objective: </strong>The aim of this study is to assess the views and attitudes of nurses from different care settings in Germany toward assisted suicide.</p><p><strong>Design: </strong>A qualitative research design was chosen to capture the subjective experience of nursing staff on suicide assistance. This was analyzed using the grounded theory method.</p><p><strong>Methods: </strong>With the help of a semi-structured, narrative-generating interview guide, in which five case vignettes are integrated, 20 interviews were conducted with nursing professionals from different care settings throughout Germany.</p><p><strong>Results: </strong>The analyzed phenomenon shows that nursing professionals need to understand the desire to die for themselves. The individual life situation of the respective patient is decisive. The action strategy based on being able to tolerate the wish to die determines how intensively they want to be involved before, during, and after assisted suicide. For nurses, however, it is undisputed that it is their professional role to accompany the patient in their \"existence\" and thus also in the context of assisted suicide.</p><p><strong>Conclusion: </strong>In view of the future development of assisted suicide in Germany, it seems necessary to prepare nursing professionals for activities related to assisted suicide by means of a curricular offer. In addition, nursing professionals should be supported in forming their own attitude to the issue.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"175-184"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10366272/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9882554","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing the Need for Pediatric Palliative Care in the Six Arab Gulf Cooperation Council Countries.","authors":"Qutaibah Alotaibi,&nbsp;Manjiri Dighe","doi":"10.1089/pmr.2022.0037","DOIUrl":"https://doi.org/10.1089/pmr.2022.0037","url":null,"abstract":"<p><strong>Background: </strong>Palliative care is an essential element of universal health coverage. However, palliative care services, particularly pediatric palliative care (PPC) services, are still inadequately developed in many countries, not least members of the Gulf Cooperation Council (GCC) (Bahrain, Kuwait, Oman, Qatar, Saudi Arabia, and the United Arab Emirates). Advocating for palliative care services requires data-driven estimates of the number of patients needing these services.</p><p><strong>Objective: </strong>To estimate the number of children living with life-threatening illnesses in the GCC countries requiring specialist and/or generalist palliative care service provision.</p><p><strong>Method: </strong>Descriptive analysis of published cross-sectional epidemiological data. Subjects were from general and age-specific populations from individual GCC countries. The quantitative data on child population and mortality were collected from 2019 primary and secondary data sources. The need for PPC was estimated using mortality, incidence, and prevalence data from the Institute for Health Metrics and the Global Cancer Observatory.</p><p><strong>Results: </strong>Our conservative analysis revealed that just under 22,000 children needed PPC in GCC countries in 2019, a minimum of 17.5 for every 10,000 children.</p><p><strong>Discussion: </strong>There is a significant need for PPC services, suggesting that the medical needs of the pediatric population are currently not being fully met. Nationwide PPC services are essential to improve the quality of life of thousands of children in GCC countries by changing policies, professional education, and providing funding to palliative programs. To our best knowledge, this is the first study to highlight the clear and urgent need for the development of PPC services in the GCC countries.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"36-40"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9994439/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9553204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Comparison of Symptom Severity and Progression in Advanced Cancer Patients Among Different Care Settings: A Secondary Analysis.","authors":"Ryuto Shiraishi,&nbsp;Yoshiyuki Kizawa,&nbsp;Masanori Mori,&nbsp;Isseki Maeda,&nbsp;Yutaka Hatano,&nbsp;Hiroto Ishiki,&nbsp;Tomofumi Miura,&nbsp;Naosuke Yokomichi,&nbsp;Maiko Kodama,&nbsp;Keiko Inoue,&nbsp;Sen Otomo,&nbsp;Takashi Yamaguchi,&nbsp;Jun Hamano","doi":"10.1089/pmr.2023.0011","DOIUrl":"https://doi.org/10.1089/pmr.2023.0011","url":null,"abstract":"<p><strong>Background: </strong>Most people in Japan wish to spend their final days at home, but the majority fail to do so; earlier studies indicated a more pronounced worsening of symptoms if treated at home.</p><p><strong>Objectives: </strong>This study compared the prevalence of symptom worsening and explored associated factors between patients with advanced cancer receiving palliative care in palliative care units (PCUs) and at home.</p><p><strong>Design: </strong>We conducted a secondary analysis of two multicenter, prospective cohort studies involving patients with advanced cancer receiving palliative care in PCUs or at home.</p><p><strong>Setting/subjects: </strong>One study was conducted at 23 PCUs (January to December 2017) and the other on 45 palliative home care services (July to December 2017) in Japan.</p><p><strong>Measurements: </strong>Symptom changes were categorized as stable, improved, or worse.</p><p><strong>Results: </strong>Of the 2998 registered patients, 2877 were analyzed. Among them, 1890 patients received palliative care in PCUs, and 987 at home. Patients receiving palliative care at home were more likely to have worsening of pain (17.1% vs. 3.8%; <i>p</i> < 0.001) and drowsiness (32.6% vs. 22.2%; <i>p</i> < 0.001) than those in PCUs. By multivariate logistic regression analysis, palliative care at home was significantly associated with worsening of the Palliative Prognostic Index dyspnea subscale in the unadjusted model (odds ratio, 1.42 [95% confidence interval, 1.08-1.88]; <i>p</i> = 0.014) but not for any symptoms in the adjusted model.</p><p><strong>Conclusions: </strong>After adjusting for patient background, the prevalence of symptom worsening was not different between patients with advanced cancer receiving palliative care at home and in PCUs.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"139-149"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10288302/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10073737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Outcome of Surgery as Part of Palliative Care of Patients with Symptomatic Advanced or Metastatic Extra-Abdominal High-Grade Soft Tissue Sarcoma.","authors":"Farhad Farzaliyev,&nbsp;Hans-Ulrich Steinau,&nbsp;Andrej Ring,&nbsp;Rainer Hamacher,&nbsp;Tobias Thiel,&nbsp;Henrik Lauer,&nbsp;Lars Erik Podleska","doi":"10.1089/pmr.2022.0063","DOIUrl":"https://doi.org/10.1089/pmr.2022.0063","url":null,"abstract":"<p><strong>Background: </strong>The modern multimodal treatment of malignant tumors has increased disease-specific survival and decreased the burden of tumor-associated complications. The main focus of palliative surgery is not based primarily on quantitative success parameters of tumor response but is instead mainly on the question of quality of life.</p><p><strong>Aim: </strong>The current study was conducted to analyze the clinical and oncological outcomes of palliative patients with soft tissue sarcoma.</p><p><strong>Design: </strong>Of 309 patients with extra-abdominal high-grade soft tissue sarcoma treated between August 2012 and December 2014, our retrospective analysis revealed 33 palliative patients for this study. All patients were evaluated and managed by a multidisciplinary team with expertise and experience in sarcoma treatment. The survival analysis was made using the Kaplan-Meier method.</p><p><strong>Results: </strong>The main sarcoma symptoms were pain (27.3%) and ulcerated tumors or shortly before ulceration (24.2%). Thirteen patients (39.4%) were operated on with negative margins, 15 (45.5%) with positive margins, 2 with tumor debulking (6.1%), and 3 patients (9.1%) were treated only with palliative hyperthermic isolated limb perfusion. Ten pedicle flaps were performed after sarcoma resection. The median operation time was 85 minutes (range, 37-216 minutes). The median hospitalization stay was 9.5 days (range, 3-27 days). No patients died during hospitalization. Twelve-month disease-free survival was 48.5% (95% confidence interval: 45.4-51.6).</p><p><strong>Conclusions: </strong>Palliative surgery of metastatic or advanced soft tissue sarcoma can improve the wound care and quality of life. Closed noninfected wounds enable further treatment options, such as chemotherapy, immunotherapy, and radiotherapy. This surgery should be considered during the discussion on interdisciplinary tumor boards.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"3 1","pages":"64-70"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10024585/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9508792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"End-of-Life Care of Acute Myeloid Leukemia Compared with Aggressive lymphoma in Patients Who Are Eligible for Intensive Chemotherapy: An Observational Study in a Japanese Community Hospital.","authors":"Masato Kokaji,&nbsp;Naoto Imoto,&nbsp;Miki Watanabe,&nbsp;Yutaro Suzuki,&nbsp;Shinji Fujiwara,&nbsp;Rie Ito,&nbsp;Toshiyasu Sakai,&nbsp;Satomi Yamamoto,&nbsp;Isamu Sugiura,&nbsp;Shingo Kurahashi","doi":"10.1089/pmr.2022.0056","DOIUrl":"https://doi.org/10.1089/pmr.2022.0056","url":null,"abstract":"<p><strong>Background: </strong>Patients with hematological malignancies (HMs) are reported to receive more aggressive care at the end of life (EOL) than patients with solid tumors. However, the reasons behind this occurrence are not fully understood.</p><p><strong>Objectives: </strong>To examine whether the care at EOL for HMs is mainly because of the disease characteristics or hematologists' attitudes and systems of care, we compared the EOL care of patients with acute myeloid leukemia (AML) and diffuse large B cell lymphoma (DLBCL).</p><p><strong>Design: </strong>We retrospectively analyzed the EOL care of patients with AML and DLBCL younger than 80 years who were receiving combination chemotherapy at a city hospital in Japan.</p><p><strong>Results: </strong>Fifty-nine patients with AML and 65 with DLBCL were included. Those with AML received chemotherapy more often within their last 30 days (48% vs. 19%, <i>p</i> < 0.001) and 14 days (37% vs. 1.5%, <i>p</i> < 0.001) of life, and consulted the palliative team less frequently (5.3% vs. 29%, <i>p</i> < 0.001). In the last 3 years, the mortality rate in hematological wards decreased from 74% to 29% in the DLBCL group, but only from 95% to 90% in the AML group. In multivariate analysis, AML (odds ratio [OR] 0.065) and death before 2018 (OR, 0.077) were significant factors associated with reduced referrals to specialized palliative teams.</p><p><strong>Conclusion: </strong>Patients with AML tend to have lesser access to specialized palliative care and fewer options for their place of death than those with DLBCL. Detailed EOL care plans are needed for these patients, considering the characteristics of the disease.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"71-78"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10029750/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9171384","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Phenomenological and Clinical Description of Pandemic Grief: How to Adapt Bereavement Services?","authors":"Melanie Vachon,&nbsp;Deborah Ummel,&nbsp;Alexandra Guité-Verret,&nbsp;Emilie Lessard,&nbsp;Dominique Girard","doi":"10.1089/pmr.2022.0060","DOIUrl":"https://doi.org/10.1089/pmr.2022.0060","url":null,"abstract":"<p><strong>Background: </strong>Some studies suggest that individuals having lost a loved one during the COVID-19 pandemic report higher levels of grief reactions than people bereaved from natural causes. Little is known about the lived and subjective experience of individuals who lost a loved one under confinement measures.</p><p><strong>Aim: </strong>This research aims to provide a phenomenological description of pandemic grief (PG) that can be useful in clinical settings and bereavement services.</p><p><strong>Methods: </strong>Seventy-six qualitative phenomenological interviews have been conducted with 37 individuals who have lost a loved one during the first wave of the pandemic. Interpretative phenomenological analysis was performed following Tracy's criteria for rigorous qualitative research.</p><p><strong>Results: </strong>The experience of PG comprises clinical manifestations and can be described as \"a type of grief occurring in the context of a pandemic, where applicable public health measures have precedence over end of life and caregiving practices as well as funeral rituals, overshadowing the needs, values, and wishes of the dying individuals and those who grieve them.\"</p><p><strong>Discussion/conclusion: </strong>This study is the first to provide a phenomenological and experiential understanding of PG. Our phenomenological description can be helpful in clinical settings such as bereavement services within palliative care teams.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"59-63"},"PeriodicalIF":0.0,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10024582/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9210025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}