Palliative medicine reports最新文献

{"title":"Supporting Family Caregivers of Nursing Home Residents with Dementia in Their Last Week of Life: A Survey Among Bereaved Family Caregivers.","authors":"Hinke E Hoffstädt, Maartje S Klapwijk, Iris D Hartog, Yvette M van der Linden, Bart J A Mertens, Arianne Stoppelenburg, Jenny T van der Steen","doi":"10.1089/pmr.2024.0088","DOIUrl":"10.1089/pmr.2024.0088","url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of people with dementia in nursing homes may need support from healthcare providers, especially when death is approaching.</p><p><strong>Objective: </strong>To increase our understanding of family caregivers' experiences in their relative's last week of life before and during the pandemic, their needs for emotional, practical, and spiritual support, and the extent to which those needs are accommodated by healthcare providers.</p><p><strong>Design: </strong>Survey among bereaved family caregivers of people with dementia recruited from six nursing homes in the Netherlands in 2018-2019 and 2020-2022.</p><p><strong>Results: </strong>The questionnaire was completed by 165 family caregivers (response rate: 55%). Most respondents (79%) rated the overall care they received as \"excellent,\" \"very good,\" or \"good.\" More respondents reported a need for emotional (74%) and practical (64%) support than for spiritual support (37%). Emotional and practical support were more commonly \"always\" or \"most of the time\" provided (63% and 51%, respectively) than spiritual support (22%). Differences existed in the presence of practical, emotional, and spiritual support needs (<i>p</i> < 0.001) and the frequency in which those support types were provided when there was a need (<i>p</i> < 0.001). The overall care that was received was more likely to be rated as \"excellent\" or \"very good\" when a higher frequency of emotional (<i>p</i> < 0.001), spiritual (<i>p</i> < 0.002), or practical (<i>p</i> < 0.001) support was reported. Before and during the pandemic, family caregivers' responses were mostly similar.</p><p><strong>Conclusion: </strong>Family caregivers had support needs that were not always met, which was especially the case for spiritual support needs. Healthcare providers should be trained to accommodate support needs and refer to appropriate support services when necessary.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"105-115"},"PeriodicalIF":1.1,"publicationDate":"2025-03-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychometric Evaluation of the Chinese Version of the Quality-of-Life Questionnaire for Patients with Multiple Myeloma.","authors":"Chao Liu, Li Wang, Yin Wu, Qian Jiao, Bianhong Yang, Yuan Jian","doi":"10.1089/pmr.2024.0086","DOIUrl":"10.1089/pmr.2024.0086","url":null,"abstract":"<p><strong>Background: </strong>Patients with multiple myeloma (MM) frequently endure a range of disease-related and treatment-related symptoms that significantly impact their quality of life. The Quality of Life Questionnaire Multiple Myeloma Module 20-item (QLQ-MY20) questionnaire developed by European Organization for Research and Treatment of Cancer (EORTC) was to evaluate the quality of life in patients with myeloma. However, it had not been evaluated in China. This study aimed to validate the Chinese version of the EORTC QLQ-MY20 questionnaire in terms of its reliability, validity, and sensitivity.</p><p><strong>Methods: </strong>The EORTC QLQ-MY20 questionnaire was translated into Chinese and was completed by 140 Chinese patients with MM. The analysis included assessing content validity using the scale-level content validity index, evaluating construct validity through exploratory factor analysis, and calculating reliability statistics.</p><p><strong>Results: </strong>The scale-level content validity index/unanimity was 0.875, and the scale-level content validity index/average was 0.915. Through exploratory factor analysis, the Chinese version of QLQ-MY20 demonstrated a test-retest reliability of 0.857. The Cronbach's α coefficient was 0.887, with the three dimensions having coefficients of 0.879, 0.809, and 0.786, respectively. The Kaiser-Meyer-Oklin value was 0.927, and the eigenvalues for the three common factors were 10.127, 2.831, and 1.124, respectively. The overall variance contribution rate was 74.112%.</p><p><strong>Conclusions: </strong>The Chinese edition of the EORTC QLQ-MY20 is deemed a reliable and valid instrument for evaluating the quality of life in Chinese patients with MM.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"98-104"},"PeriodicalIF":1.1,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947649/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Design, Implementation, and Evaluation of a Multidisciplinary Palliative Care Curriculum for Obstetrician Gynecologist Residents.","authors":"Lindsay W Brubaker, Marisa R Moroney, Aneesa Thannickal, Meredith J Alston, Josephine H Amory, Amanika Kumar, Carolyn Lefkowits","doi":"10.1089/pmr.2024.0082","DOIUrl":"10.1089/pmr.2024.0082","url":null,"abstract":"<p><strong>Abstract: </strong>Palliative care focuses on providing relief from the stress and symptoms of serious illness. Obstetrician gynecologists (OBGYNs) manage a variety of complex clinical situations ranging from delivering a cancer diagnosis to caring for a neonatal demise to symptom management, all of which fall within the realm of palliative care. Palliative care is relevant to the practice of OBGYNs, yet residents rarely receive formal primary palliative care training. We sought to design, implement, and evaluate a dedicated curriculum on palliative care for OBGYN residents.</p><p><strong>Abstract: </strong>We performed a needs assessment of an OBGYN residency at a single institution. This information was used to develop a multidisciplinary palliative care curriculum. Post-curriculum surveys were distributed and analyzed. Descriptive statistics were utilized.</p><p><strong>Abstract: </strong>Our needs assessment identified a lack of knowledge and competency in palliative care concepts and skills. Using this information, we created a multidisciplinary palliative care curriculum, including clinical experiences, chalk talks, and online didactics. Post-curriculum surveys revealed a marked improvement in both knowledge base and perceived competence. Feedback was overwhelmingly positive; residents indicated that the curriculum was both a valuable use of time and would impact their provision of care in the future.</p><p><strong>Abstract: </strong>A dedicated palliative care curriculum is an impactful addition to OBGYN training.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"90-97"},"PeriodicalIF":1.1,"publicationDate":"2025-02-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959220/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring Psychotherapy Approaches for Dyspnea: A Systematic Review Protocol.","authors":"Jun Kako, Kohei Kajiwara, Masamitsu Kobayashi, Yoshiyasu Ito, Kanako Ichikura, Yoshinobu Matsuda, Takashi Yamaguchi","doi":"10.1089/pmr.2025.0002","DOIUrl":"10.1089/pmr.2025.0002","url":null,"abstract":"<p><strong>Introduction: </strong>Dyspnea, a common and debilitating symptom, affects over half of the patients with cancer, with increasing frequency and severity as the end of life approaches. It substantially affects the daily lives of patients by contributing to anxiety, depression, fatigue, and reduced physical activity, ultimately diminishing their quality of life. Although pharmacological treatments remain standard, nonpharmacological interventions, including psychotherapy, are increasingly recommended owing to their safety and accessibility. Psychotherapy is particularly relevant for alleviating psychological distress associated with dyspnea; however, research on its efficacy in managing dyspnea among patients with cancer is limited. This systematic review aims to synthesize evidence on the following four key psychotherapy techniques for managing dyspnea: mindful breathing, guided imagery, progressive muscle relaxation, and meditation. The review will assess the optimal delivery methods, evaluate the quality of existing studies, and provide clinical recommendations for implementing these interventions in cancer care.</p><p><strong>Method and analysis: </strong>This review adheres to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses protocols. A systematic search will be conducted on some databases such as PubMed. Relevant studies will also be identified through reference lists and manual searches of key journals. The search terms will include keywords related to dyspnea and psychotherapeutic techniques. Four independent reviewers will screen and assess the articles, extracting data using a standardized charting form. The quality of the studies will be assessed using the Mixed Methods Assessment Tool. The results will be summarized via a psychotherapeutic technique, providing a comprehensive overview of the interventions and their applicability.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"84-89"},"PeriodicalIF":1.1,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947646/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nursing Supports for Managing Nausea and Vomiting in Patients with Cancer Having a Prognosis of Months or Weeks: A Multisite Cross-Sectional Study of Palliative Care Nurses in Japan.","authors":"Masamitsu Kobayashi, Kohei Kajiwara, Kimiko Nakano, Yusuke Kanno, Miharu Morikawa, Yoshinobu Matsuda, Jun Kako","doi":"10.1089/pmr.2024.0093","DOIUrl":"10.1089/pmr.2024.0093","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to clarify the types of nursing support provided by palliative care unit (PCU) nurses in Japan to manage nausea and vomiting in patients with cancer who have a prognosis of months or weeks.</p><p><strong>Methods: </strong>This multisite cross-sectional study surveyed registered nurses from all 389 PCUs across Japan. Eligible participants were nurses providing direct care to patients. Data were collected via online surveys from October 2023 to March 2024. The frequency of 13 types of nursing supports for nausea and vomiting was evaluated using a five-point Likert scale, stratified by patient prognosis (months or weeks).</p><p><strong>Results: </strong>Of the 389 PCUs invited, 162 (41.6%) consented to participate. A total of 2448 nurses were invited, of which 539 (22.3%) responded. The most frequently implemented nursing supports were \"avoiding unpleasant odors,\" \"providing shaved ice or ice chips,\" \"providing fresh air,\" and \"gargling with cold water.\" These were consistently practiced by many nurses, regardless of patient prognosis. Conversely, specialized supports such as \"reiki,\" \"acupressure,\" \"guided relaxation exercises,\" \"therapeutic touch,\" and \"foot reflexology\" were rarely or seldom used.</p><p><strong>Conclusion: </strong>Noninvasive, simple nursing supports that do not require specialized knowledge or skills were frequently provided to patients with cancer who were experiencing nausea and vomiting, irrespective of their prognosis. However, nursing supports that require specialized knowledge and skills were rarely used. Further research is needed to evaluate the effectiveness of these nursing supports.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"71-75"},"PeriodicalIF":1.1,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11954575/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143755706","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What Have You Been Told? Awareness of Prognosis of Patients in an Italian Home Palliative Care Service.","authors":"Claudia Bolpagni, Federico Nicoli, Patrizia Borghetti, Matteo Rota, Giovanni Zaninetta, Michele Fortis","doi":"10.1089/pmr.2024.0072","DOIUrl":"10.1089/pmr.2024.0072","url":null,"abstract":"<p><strong>Background: </strong>In palliative care, investigating prognosis awareness is a milestone for effective and comprehensive patient intake care. The literature shows that over the past half-century, regarding prognoses, the data report less willingness to provide information, despite patients' wishes.</p><p><strong>Objective: </strong>To investigate the varying degrees of awareness of prognosis of patients and their caregivers admitted to an Italian Palliative Home Based Care Service.</p><p><strong>Design: </strong>A monocentric observational survey study with questionnaires created by the research team and completed by physicians, caregivers, and healthcare professionals (HCPs) during the intake. The assessment of any statistically significant differences was evaluated through McNemar's test.</p><p><strong>Subjects: </strong>Forty patients (±75 years old, 60% females) with an estimated prognosis of more than 10 days, and for whom there was an opportunity to provide informed consent, who were intake at the Home Palliative Care Service of the Domus Salutis Clinic in Italy, from January 1 to June 30, 2022 were recruited.</p><p><strong>Results: </strong>In total, 52% of patients were fully aware of their prognosis at the time of intake, although 75% had asked to be informed about their prognosis. Before death, the total percentage of patients who were aware of their prognosis was 72. Twenty percent of patients were informed of their prognosis during the course of treatment. The total number of patients aware of prognosis, from the caregiver's perspective before death, was 28 (71%). The postmortem questionnaire revealed that the team had discussed prognoses with 86% of patients.</p><p><strong>Conclusion: </strong>Periodic re-evaluation of prognosis awareness during the course of care is essential, awareness increased significantly.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"17-27"},"PeriodicalIF":1.1,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11959208/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143765906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Nursing Faculty Intervention for Teaching Primary Palliative Care in Baccalaureate Nursing Competency-Based Education.","authors":"Olga Ehrlich, Julie A Kruse, Alyssa Lackowski, Toni L Glover","doi":"10.1089/pmr.2024.0079","DOIUrl":"10.1089/pmr.2024.0079","url":null,"abstract":"<p><strong>Background: </strong>The American Association of Colleges of Nursing introduced hospice/palliative/supportive care as a focus area for baccalaureate nursing and identified pre-licensure competency-based education as essential for a safe and effective entry-to-practice nurse workforce. Yet many nursing educators lack knowledge and skills to teach competency-based primary palliative care (PPC).</p><p><strong>Method: </strong>We piloted an educational intervention for baccalaureate nursing faculty in developing a competency-based PPC learning activity. The intervention consisted of workshops during which pre- and posttest data were collected. Intervention materials included an open-access PPC faculty resource <i>Guide</i> and a <i>Learning Activity Template</i> developed by the first author.</p><p><strong>Results: </strong>Paired samples <i>t</i> tests demonstrated significant knowledge gains and changes in attitudes post-intervention in 17 of 20 areas assessed including \"I am confident in my ability to teach nursing students about end-of-life care.\" There was a statistically significant increase in the total palliative care score (all 20 areas assessed) from pretest (<i>M</i> = 70.25, standard deviation [<i>SD</i>] = 9.54) to posttest (<i>M</i> = 80.40, <i>SD</i> = 10.10), <i>t</i> (39) = 9.18, <i>p</i> < 0.001 [two-tailed]). The Cohen's <i>d</i> statistic (1.45) indicated a large effect size. Additionally, over half of the participants created unique learning activities (<i>n</i> = 22) for teaching competency-based PPC.</p><p><strong>Conclusion: </strong>This intervention addresses a faculty need in the context of new accreditation expectations. The open-access intervention materials shared in this article can be used to create course learning activities aligned with nursing needs for competency-based PPC. Future research should focus on effective faculty teaching interventions and reliable and valid assessment tools for faculty needs and student competency.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"61-70"},"PeriodicalIF":1.1,"publicationDate":"2025-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947636/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of High-Resolution Natural Sound with Inaudible High-Frequency Components on Healing, Symptoms, and Sleep Satisfaction in Terminally Ill Cancer Patients.","authors":"Yasutaka Shimotsuura, Keisuke Ishizuka, Takashi Kawaguchi, Kazue Umetsu, Mariko Harada, Yujiro Inoue, Emi Kubo, Kazuhiro Kosugi, Takashi Igarashi, Seiya Enomoto, Hidehiko Taniyama, Tetsuo Iwata, Takuhiro Yamaguchi, Yoshihisa Matsumoto, Tomofumi Miura","doi":"10.1089/pmr.2024.0089","DOIUrl":"10.1089/pmr.2024.0089","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to assess the effects of high-resolution natural sound with inaudible high-frequency components (HNIH) on healing, symptoms, sleep satisfaction, and autonomic nerve function among terminally ill cancer patients.</p><p><strong>Methods: </strong>We conducted a single-arm, open-label study of 4-hour HNIH for 20 terminally ill cancer patients. We evaluated the healing state, symptoms (Japanese version of the Edmonton Symptom Assessment System-Revised, ESAS-r-J), global impression, and heart rate variability at 30 minutes (T2) and 4 hours (T3) after starting HNIH and sleep satisfaction the next morning (T4).</p><p><strong>Results: </strong>A total of 18 participants were evaluated (mean age: 69.4 years; 33.3% female). Post-intervention, there was a nonsignificant increase in Healing Scale scores at T2 (mean difference: 5.3, 95% confidence interval [CI]: -1.2 to 11.8, <i>p</i> = 0.106), but a significant increase at T3 (mean difference: 6.6, 95% CI: 1.0 to 12.3, <i>p</i> = 0.024). Specific ESAS-r-J scores demonstrated significant improvements in anxiety (mean difference at T2: -1.2, 95% CI: -1.99 to -0.34, <i>p</i> = 0.008; T3: -1.2, 95% CI: -1.99 to -0.34, <i>p</i> = 0.008), tiredness (mean difference at T2: -0.6, 95% CI: -1.18 to -0.04, <i>p</i> = 0.037), and shortness of breath (mean difference at T2: -1.0, 95% CI: -1.72 to -0.28, <i>p</i> = 0.010). Moreover, 66.7% of participants reported improved general conditions at T2 and T3, whereas 50% reported enhanced sleep satisfaction at T4. Heart rate variability analysis revealed a decreased low-frequency/high-frequency ratio in 55.6% of participants at T2 and 44.4% at T3.</p><p><strong>Conclusions: </strong>The present single-arm study showed that HNIH potentially enhanced healing, alleviated symptoms such as anxiety, tiredness, and shortness of breath, and improved sleep satisfaction in terminally ill cancer patients.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"53-60"},"PeriodicalIF":1.1,"publicationDate":"2025-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947647/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"E-Learning to Fill Gaps in Serious Illness Communication Education: A Missing Piece or an Unfinished Puzzle?","authors":"Justin J Sanders","doi":"10.1089/pmr.2025.0004","DOIUrl":"10.1089/pmr.2025.0004","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"50-52"},"PeriodicalIF":1.1,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11947642/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143733520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluation of the Acute Basic Palliation Concept by Relatives and Health Care Professionals: An Observational Study of 40 Home-Dying Patients in Denmark.","authors":"Dorte Melgaard, Mike B Astorp, Johannes Riis, Inez Madeleine Jensen, Anne Louise Hartvig Skalborg, Matilde Alida Arendt Eriksen, Camilla Ly, Bensu Izgi, Line Elise Møller Hansen, Anne Lund Krarup","doi":"10.1089/pmr.2024.0062","DOIUrl":"10.1089/pmr.2024.0062","url":null,"abstract":"<p><p><b><i>Background:</i></b> Many individuals prefer to pass away in the comfort of their own homes, yet logistical obstacles often result in their admission to hospitals for end-of-life care. <b><i>Objectives:</i></b> To measure the effectiveness, as assessed by relatives and staff, of end-of-life care according to the acute basic palliation concept (ABPC) for patients discharged from an emergency department. <b><i>Methods:</i></b> An observational study of 40 consecutive actively dying patients who were discharged from Aalborg University Hospital, Denmark, using the ABPC. Effectiveness of end-of-life care was measured by questionnaires to relatives, discharging doctors and nurses, and municipality health staff. The ABPC comprised a physician checklist, instructions for medical professionals, a medication template to be personalized, an added standardized text to discharge papers, information pamphlets for patients and relatives, and a box of medicine and utensils. <b><i>Results:</i></b> Among the 40 included patients (mean age 84, standard deviation [SD] 7.7), four experienced improvements at home and resumed active treatment. The patients who died had an average survival time of 3.8 days (SD 7.5). According to relatives, 90% of patients died a dignified death without suffering. Municipality nurses rated the usefulness of the ABPC at 96 (interquartile range 88; 100) on a 0-100 scale, and all health care staff wanted to use the ABPC again. <b><i>Conclusion:</i></b> The ABPC showed great potential as a tool for discharging dying patients without specialized palliative needs to good-quality end-of-life care at home. The ABPC was widely accepted by relatives and all health staff. The ABCP is ready for large-scale testing with patient subgroups and economic analysis.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"6 1","pages":"6-16"},"PeriodicalIF":1.1,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11952682/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143755702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}