Palliative medicine reports最新文献

{"title":"Acceptance of Digital Health Technologies in Palliative Care Patients.","authors":"Stefan Wicki, Ian C Clark, Manuel Amann, Sebastian M Christ, Markus Schettle, Caroline Hertler, Gudrun Theile, David Blum","doi":"10.1089/pmr.2023.0062","DOIUrl":"10.1089/pmr.2023.0062","url":null,"abstract":"<p><strong>Background: </strong>Digital health technologies have potential to transform palliative care (PC) services. The global aging population poses unique challenges for PC, which digital health technologies may help overcome. Evaluation of attitudes and perceptions combined with quantification of prior use habits favor an understanding of psychological barriers to PC patient acceptance of digital health technologies including artificial intelligence (AI).</p><p><strong>Objectives: </strong>We aimed to evaluate the attitudes and perceptions of PC patients regarding a broad range of digital health technologies used in their routine monitoring and treatment and identify barriers to use.</p><p><strong>Methods: </strong>We used a 39-item questionnaire to evaluate acceptance and use of smartphone-based electronic patient report outcome measures, wearables, AI, data privacy, and virtual reality (VR) in 29 female and male PC inpatients.</p><p><strong>Results: </strong>A majority of patients indicated an interest in (69.0%) and positive attitude toward (75.9%) digital health technologies. Nearly all (93.1%) patients believe that digital health technologies will become more important in medicine in the future. Most patients would consider using their smartphone (79.3%) or wearable (69.0%) more often for their health. The most feasible technologies were smartphones, wearables, and VR. Barriers to acceptance included unfamiliarity, data security, errors in data interpretation, and loss of personal interaction through AI.</p><p><strong>Conclusion: </strong>In this patient survey, acceptance of new technologies in a PC patient population was high, encouraging its use also at the end-of-life.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"5 1","pages":"34-42"},"PeriodicalIF":0.0,"publicationDate":"2024-01-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10797306/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Acknowledgment of Reviewers 2023.","authors":"","doi":"10.1089/pmr.2024.29003.ack","DOIUrl":"https://doi.org/10.1089/pmr.2024.29003.ack","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"5 1","pages":"1-2"},"PeriodicalIF":0.0,"publicationDate":"2024-01-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10833311/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139673812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Detailed Clinical Characteristics, Interventions, and Long-Term Outcomes of Patients With Gastric Cancer Who Received the Best Supportive Care Without Any Anticancer Treatment","authors":"Y. Arihara, R. Shibuya, M. Ono, N. Suzuki, Ginji Omori, Y. Ikeda, Hajime Nakamura, M. Yamada, T. Abe, K. Takada, M. Maeda","doi":"10.1089/pmr.2023.0066","DOIUrl":"https://doi.org/10.1089/pmr.2023.0066","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"109 44","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138608490","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Improving Advanced Care Planning for Hospitalized Patients With Heart Failure","authors":"Tobin Mathew, Akash H Patel, Kyle DiGrande, N. D. Michelis, Behram P. Mody, Dawn Lombardo","doi":"10.1089/pmr.2023.0035","DOIUrl":"https://doi.org/10.1089/pmr.2023.0035","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"66 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139017982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Need for Improvement in Death Pronouncements in Palliative Care Units","authors":"J. Hamano, Kento Masukawa, S. Tsuneto, Y. Shima, Tatsuya Morita, Y. Kizawa, M. Miyashita","doi":"10.1089/pmr.2023.0053","DOIUrl":"https://doi.org/10.1089/pmr.2023.0053","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"1164 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139014116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Trends in Palliative Care Utilization in Deceased Veterans With Heart Failure","authors":"Mitchell Wice, James L. Rudolph, Lan Jiang, Hal M. Edmonson, John S. Page, Wen-Chih Wu, Julio C. Defillo-Draiby","doi":"10.1089/pmr.2023.0067","DOIUrl":"https://doi.org/10.1089/pmr.2023.0067","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"224 ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138987135","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Impact of Low-Dose Dronabinol Therapy on Cognitive Function in Cancer Patients Receiving Palliative Care: A Case-Series Intervention Study","authors":"","doi":"10.1089/pmr.2023.0024","DOIUrl":"https://doi.org/10.1089/pmr.2023.0024","url":null,"abstract":"","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"21 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138627047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient and Clinician Stakeholder Perspectives on a Patient Portal Questionnaire Eliciting Illness and Treatment Understanding and Core Health-Related Values.","authors":"William E Rosa, Jaime Gilliland, Meghan McDarby, Judith E Nelson, Anjali V Desai, Andrew S Epstein","doi":"10.1089/pmr.2023.0057","DOIUrl":"10.1089/pmr.2023.0057","url":null,"abstract":"<p><strong>Introduction: </strong>Person-centered communication is foundational to cancer care. In pilot research, a questionnaire eliciting patients' illness and treatment understanding (ITU) and core health-related values (HRV) through the electronic patient portal demonstrated feasibility, acceptability, and efficacy. The aim of this study was to elicit stakeholder feedback to refine the design of the portal-based intervention, remain end-user centered, and optimize future system-wide integration.</p><p><strong>Methods: </strong>Between April and June 2023, we purposively sampled patients and clinicians from a previous pilot study to participate in a 20-30-minute semistructured interview about their opinions of and experiences with the portal questionnaire on ITU and HRV. An interdisciplinary coding team used a two-phase rapid analysis to identify themes, subthemes, and illustrative participant quotations.</p><p><strong>Results: </strong>Fourteen patients (mean age = 68 years) and 12 clinicians participated (total <i>n</i> = 26). Colorectal cancer was the commonest malignancy (64%) among patients. Clinicians were mostly physicians (50%), nurse practitioners (33%), and registered nurses (17%), with two-thirds having >15 years of experience in their specialty. Analysis generated four themes: (1) clinical utility of questionnaire, (2) barriers to questionnaire implementation, (3) considerations and strategies for modifying the questionnaire, and (4) considerations and strategies for questionnaire implementation. Themes captured key information about incorporating this questionnaire into clinical practice.</p><p><strong>Conclusion: </strong>Patients with cancer and their clinicians found a portal-based ITU and HRV questionnaire clinically useful to improve multiple aspects of person-centered communication. Participant recommendations about questionnaire timing and sharing of questionnaire responses with the clinical team will inform future questionnaire implementation and scaling in clinical settings.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"316-325"},"PeriodicalIF":0.0,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10712361/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138813574","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Family Ties at End-of-Life: Characteristics of Nursing Home Decedents With and Without Family.","authors":"Caroline E Stephens, Djin Tay, Eli Iacob, Michael Hollinghaus, Rebecca Goodwin, Brenna Kelly, Ken Smith, Lee Ellington, Rebecca Utz, Katherine Ornstein","doi":"10.1089/pmr.2023.0023","DOIUrl":"10.1089/pmr.2023.0023","url":null,"abstract":"<p><strong>Background: </strong>Little is known about nursing home (NH) residents' family characteristics despite the important role families play at end-of-life (EOL).</p><p><strong>Objective: </strong>To describe the size and composition of first-degree families (FDFs) of Utah NH residents who died 1998-2016 (<i>n</i> = 43,405).</p><p><strong>Methods: </strong>Using the Utah Population Caregiving Database, we linked NH decedents to their FDF (<i>n</i> = 124,419; spouses = 10.8%; children = 55.3%; siblings = 32.3%) and compared sociodemographic and death characteristics of those with and without FDF members (<i>n</i> = 9424).</p><p><strong>Results: </strong>Compared to NH decedents with FDF (78.3%), those without (21.7%) were more likely to be female (64.7% vs. 57.1%), non-White/Hispanic (11.2% vs. 4.2%), less educated (<9th grade; 41.1% vs. 32.4%), and die in a rural/frontier NH (25.3% vs. 24.0%, all <i>p</i> < 0.001). Despite similar levels of disease burden (Charlson Comorbidity score 3 + 37.7% vs. 38.0%), those without FDF were more likely to die from cancer (14.2% vs. 12.4%), Chronic Obstructive Pulmonary Disease (COPD) (6.0% vs. 4.0%), and dementia (17.1% vs. 16.6%, all <i>p</i> < 0.001), and were less likely to have 2+ hospitalizations at EOL (20.5% vs. 22.4%, <i>p</i> < 0.001).</p><p><strong>Conclusions: </strong>Among NH decedents, those with and without FDF have different sociodemographic and death characteristics-factors that may impact care at EOL. Understanding the nature of FDF relationship type on NH resident EOL care trajectories and outcomes is an important next step in clarifying the role of families of persons living and dying in NHs.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"308-315"},"PeriodicalIF":0.0,"publicationDate":"2023-11-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10664558/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138464907","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pulmonologists' Perspectives on and Access to Palliative Care for Patients With Idiopathic Pulmonary Fibrosis in South Carolina.","authors":"Kathleen Oare Lindell,&nbsp;Mohan Madisetti,&nbsp;Tracy Fasolino,&nbsp;MaryChris Pittman,&nbsp;Patrick Coyne,&nbsp;Timothy P M Whelan,&nbsp;Martina Mueller,&nbsp;Dee W Ford","doi":"10.1089/pmr.2023.0038","DOIUrl":"https://doi.org/10.1089/pmr.2023.0038","url":null,"abstract":"<p><strong>Background: </strong>Idiopathic pulmonary fibrosis (IPF) is a serious illness with an unpredictable disease course and survival rates comparable with some cancers. Patients with IPF suffer considerable symptom burden, declining quality of life, and high health care resource utilization. Patients and caregivers report many unmet needs, including a desire for more education regarding diagnosis and assistance with navigating disease trajectory. Compelling evidence suggests that palliative care (PC) provides an extra layer of support for patients with serious illness.</p><p><strong>Research question: </strong>The purpose of this survey was to gain perspectives regarding PC for patients with IPF by board-certified pulmonologists in South Carolina (SC).</p><p><strong>Study design and methods: </strong>A 24-item survey was adapted (with permission) from the Pulmonary Fibrosis Foundation PC Survey instrument. Data were analyzed and results are presented.</p><p><strong>Results: </strong>Pulmonologists (<i>n</i> = 32, 44%) completed the survey; 97% practice in urbanized settings. The majority agreed that PC and hospice do not provide the same service. There were varying views about comfort in discussing prognosis, disease trajectory, and addressing advance directives. Options for ambulatory and inpatient PC are limited and early PC referral does not occur. None reported initiating a PC referral at time of initial IPF diagnosis.</p><p><strong>Interpretation: </strong>Pulmonologists in SC who participated in this survey are aware of the principles of PC in providing comprehensive care to patients with IPF and have limited options for PC referral. PC educational materials provided early in the diagnosis can help facilitate and guide end-of-life planning and discussions. Minimal resources exist for patients in underserved communities.</p>","PeriodicalId":74394,"journal":{"name":"Palliative medicine reports","volume":"4 1","pages":"292-299"},"PeriodicalIF":0.0,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10616941/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71429879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}