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Advance Care Planning Among Adult Patients and Their End-of-Life Care Preferences. 成年患者的临终关怀规划及其临终关怀偏好。
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-02 DOI: 10.1177/00302228221143687
Chia-Jen Liu, Chun-Yi Yang, Ming-Hsuan Hsieh, Chih-Kuang Liu, Ming-Chih Chen, Sheng-Jean Huang, Te-Chun Yeh
{"title":"Advance Care Planning Among Adult Patients and Their End-of-Life Care Preferences.","authors":"Chia-Jen Liu, Chun-Yi Yang, Ming-Hsuan Hsieh, Chih-Kuang Liu, Ming-Chih Chen, Sheng-Jean Huang, Te-Chun Yeh","doi":"10.1177/00302228221143687","DOIUrl":"10.1177/00302228221143687","url":null,"abstract":"<p><p>To explore people's intentions to opt for a good death when planning for their end-of-life care, this study examined the type of end-of-life care preferred by patients receiving advance care planning (ACP) consulting services for five specified clinical and disability conditions and possible factors affecting their decision-making. This cross-sectional study analyzed 1303 hospital patients and 1032 nonhospital patients who attended a clinic providing ACP consulting services. This study revealed the following two results. First, patients who were older, were female, did not have an appointed surrogate decision-maker, and were nonhospital patients had a higher intention of not receiving life-sustaining treatments (LST) or artificial nutrition and hydration (ANH) under the five specified clinical and disability conditions. Second, people who were the least willing to receive LST or ANH under the following conditions (in descending order): permanent vegetative state, severe dementia, irreversible coma, other disease conditions recognized by the central competent authority, and end-of-life stage.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"837-850"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40459270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Racial Differences in Response to Chadwick Boseman's Colorectal Cancer Death: Media Use as a Coping Tool for Parasocial Grief. 对查德威克-博斯曼（Chadwick Boseman）罹患大肠癌一事的种族反应差异：媒体使用作为一种应对寄生性悲伤的工具。
Omega Pub Date : 2025-06-01 Epub Date: 2022-11-21 DOI: 10.1177/00302228221139345
Jessica G Myrick, Jessica F Willoughby, Meredith D Clark
{"title":"Racial Differences in Response to Chadwick Boseman's Colorectal Cancer Death: Media Use as a Coping Tool for Parasocial Grief.","authors":"Jessica G Myrick, Jessica F Willoughby, Meredith D Clark","doi":"10.1177/00302228221139345","DOIUrl":"10.1177/00302228221139345","url":null,"abstract":"<p><p>The August 2020 death of Black actor Chadwick Boseman, at age 43 from colon cancer was a notable public event. Given Boseman's popularity, particularly amongst Black audiences, and racial disparities in colorectal cancer rates, public responses to this news provided a window into potential racial differences in expressing and responding to parasocial grief, that is, grief at the loss of a public figure. Additionally, given how the movies he starred in were easily viewable by audiences stuck at home during the COVID-19 pandemic and given his popularity on digital spaces like Black Twitter, this case offers insights into how media use can help people cope with parasocial grief. We conducted a mixed-methods survey study of audience responses Boseman's death. Quantitative results reveal that Black audiences had different rates of social sharing and movie viewing than non-Black audiences, with additional insights emerging from a thematic analysis of the open-ended data.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"639-658"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12018714/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40505203","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Schoolchildren's Attitudes Toward Covid-19 Measures Scale: A Scale Development Study. 小学生对 Covid-19 测量量表的态度：量表开发研究。
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-02 DOI: 10.1177/00302228221141938
Meltem Kurtuncu, Nurten Arslan, Aylin Kurt
{"title":"Schoolchildren's Attitudes Toward Covid-19 Measures Scale: A Scale Development Study.","authors":"Meltem Kurtuncu, Nurten Arslan, Aylin Kurt","doi":"10.1177/00302228221141938","DOIUrl":"10.1177/00302228221141938","url":null,"abstract":"<p><p>For schools and academic studies to continue, children as well must adhere to the measures taken to prevent the spread of Covid-19. The aim of this study was to develop a scale to assess schoolchildren's attitudes toward Covid-19 measures. The sample of this study, which was designed in a methodological type, consisted of 205 children. This study was conducted at primary schools in Zonguldak, Turkey. The validity of content and construct was examined to evaluate the validity of the Schoolchildren's Attitudes toward Covid-19 Measures Scale. This scale is a valid and reliable measure for assessing the attitudes of schoolchildren toward Covid-19 measures. The results of the factor analysis indicated a scale with 28 items and six factors. Cronbach's alpha value for the overall scale is 0.928. According to the results of the analysis, the developed scale was found to have excellent content and construct validity and reliability for schoolchildren.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"747-761"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40559031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Spousal Mourning for Partners Living with Cognitive Impairment: The Interplay of Attachment and the Two-Track Model of Dementia Grief. 患有认知障碍的伴侣的配偶哀悼：依恋与痴呆症悲伤双轨模式的相互作用。
Omega Pub Date : 2025-06-01 Epub Date: 2022-11-25 DOI: 10.1177/00302228221142632
Alexander Manevich, Simon Shimshon Rubin, Michael Katz, Rachel Ben-Hayun, Judith Aharon-Peretz
{"title":"Spousal Mourning for Partners Living with Cognitive Impairment: The Interplay of Attachment and the Two-Track Model of Dementia Grief.","authors":"Alexander Manevich, Simon Shimshon Rubin, Michael Katz, Rachel Ben-Hayun, Judith Aharon-Peretz","doi":"10.1177/00302228221142632","DOIUrl":"10.1177/00302228221142632","url":null,"abstract":"<p><p>The aim of the present research was to study the interplay of <i>Attachment Theory</i> and the <i>Two-Track Model of Dementia Grief</i>. To examine the research hypotheses, a cross-sectional study was designed and included 122 participants (Mean age = 72.77) drawn from four groups: spouses of people living with mild to moderate cognitive impairment, spouses of people living with advanced cognitive impairment, widowed spouses of deceased dementia patients, and a control group. Participants completed a battery of self-report questionnaires. Results showed that secure attachment constitutes a significant protective factor with regard to bio-psycho-social symptomatology (Track I) as well as difficulties in the relational bond with the spouse and grief over their deterioration (Track II). The results of the research support integrating attachment-based insights into clinical work with spouses coping with the losses accompanying cognitive decline and the grief processes that are operant in these losses.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"811-836"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40707351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family Caregiver's Depression, Confidence, Satisfaction, and Burden Regarding End-of-Life Home Care for People With End-Stage Dementia. 家庭照顾者对终末期痴呆症患者临终家庭护理的抑郁、信心、满意度和负担。
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-27 DOI: 10.1177/00302228221147961
Gizell Green, Inbal Halevi Hochwald, Zorian Radomyslsky, Rachel Nissanholtz-Gannot
{"title":"Family Caregiver's Depression, Confidence, Satisfaction, and Burden Regarding End-of-Life Home Care for People With End-Stage Dementia.","authors":"Gizell Green, Inbal Halevi Hochwald, Zorian Radomyslsky, Rachel Nissanholtz-Gannot","doi":"10.1177/00302228221147961","DOIUrl":"10.1177/00302228221147961","url":null,"abstract":"<p><p>To detect differences between two care services units: regarding family-caregiver (FC) depression, perceived-burden and confidence in the provision of care to people with end-stage dementia (PWESD); examine predictors such as FC age, depression, confidence in the provision of care to PWESD and satisfaction with the community-home-care service to burden; and explore a mediation model.The participants were 139 FC, caring for PWESD living at home. The questionnaire was composed of FC background characteristics, perceived-burden, satisfaction with the community-home-care services, depression, and confidence in the provision of care to the PWESD. HCUs' FC felt significantly more burdened than HHUs' FC. Furthermore, satisfaction with the community-home-care services mediated the relationship between FC confidence in the provision of care to the PWESD and FC burden. The study results may affect the development of end-of-life care policies and services which meet the needs of PWESD and their FC.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"1041-1057"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10498104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Relationship Between Pre-Loss Grief, Preparedness and Psychological Health Outcomes in Relatives of People With Cancer. 癌症患者亲属失去亲人前的悲伤、准备和心理健康结果之间的关系。
Omega Pub Date : 2025-06-01 Epub Date: 2022-11-24 DOI: 10.1177/00302228221142675
Viktoria Schmidt, Julia Kaiser, Julia Treml, Anette Kersting
{"title":"The Relationship Between Pre-Loss Grief, Preparedness and Psychological Health Outcomes in Relatives of People With Cancer.","authors":"Viktoria Schmidt, Julia Kaiser, Julia Treml, Anette Kersting","doi":"10.1177/00302228221142675","DOIUrl":"10.1177/00302228221142675","url":null,"abstract":"<p><p>The aim of this study was to examine the simultaneous effects of pre-loss grief, preparedness for death and preparedness for caregiving on different psychological health outcomes in relatives of people with cancer. Two hundred ninety-nine relatives of people with cancer participated in a cross-sectional online survey. Participants were included if they spoke German and were 18 years or older. Multivariate regression analysis was conducted. Pre-loss grief was significantly associated with depression (β = .388, <i>p</i> < .001), anxiety (β = .429, <i>p</i> < .001), somatization (β = .221, <i>p</i> < .001) and satisfaction with life (β = -.205, <i>p</i> < .001). Preparedness for death was significantly associated with somatization (β = -.247, <i>p</i> < .001). Results suggest that people with high scores in pre-loss grief and low scores in preparedness for death are in need of early support. Interventions should address pre-loss grief and the various aspects of preparedness for death and take into account the psychological health in relatives of people with cancer. Future studies should investigate underlying mechanisms.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"798-810"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12018713/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40703896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Location of Death in Developed Countries: Are Hospitals a Primary Place of Death and Dying Now? 发达国家的死亡地点：医院现在是死亡的主要场所吗？
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-07 DOI: 10.1177/00302228221142430
Donna M Wilson, Lucas G Fabris, Arthur L B Martins, Qinqin Dou, Begoña Errasti-Ibarrondo, Kathleen A Bykowski
{"title":"Location of Death in Developed Countries: Are Hospitals a Primary Place of Death and Dying Now?","authors":"Donna M Wilson, Lucas G Fabris, Arthur L B Martins, Qinqin Dou, Begoña Errasti-Ibarrondo, Kathleen A Bykowski","doi":"10.1177/00302228221142430","DOIUrl":"10.1177/00302228221142430","url":null,"abstract":"<p><p>Hospitals used to be a common site of death and dying. This scoping project sought published and unpublished information on current hospital death rates in developed countries. In total, death place information was gained from 21 countries, with the hospital death rate varying considerably from 23.9% in the Netherlands to 68.3% in Japan. This major difference is discussed, as well as the problem that death place information does not appear to be routinely collected or reported on in many developed countries. Without this information, efforts to ensure high quality end-of-life (EOL) care and good deaths are hampered.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"781-797"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12018720/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10369249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas. 死得'好'：临终护理师的工作、护理和支持。
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-12 DOI: 10.1177/00302228221145798
Amy Dellinger Page, Jonelle H Husain, Ashley M Kvanvig
{"title":"Dying a 'Good' Death: The Work, Care, and Support of End-of-Life Doulas.","authors":"Amy Dellinger Page, Jonelle H Husain, Ashley M Kvanvig","doi":"10.1177/00302228221145798","DOIUrl":"10.1177/00302228221145798","url":null,"abstract":"<p><p>End-of-life doulas (EOLDs) are a growing population of care providers who focus on the wishes of the dying person in order to cultivate an environment of comfort, peace, and support from the point of terminal diagnosis, during the dying process, and following death. The purpose of this study was to document the time commitment of EOLDs to dying persons and their loved ones during the dying process, as well as their experiences navigating family dynamics working towards increased acceptance of death. A mixed-methods approach was utilized to gather data on EOLDs, consisting of a quantitative survey with 618 respondents and subsequent qualitative interviews conducted with 39 participants. Results indicated that the amount of time spent with dying persons and their loved ones varies widely and often depends on when the EOLD is contracted regarding services. Factors that impede and lead to great acceptance of death are discussed as well as the role of EOLDs in navigating family dynamics.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"932-954"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10379793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Help-Seeking Buffers the Impact of Grief on Quality of Life: A Study of Loss During the COVID-19 Pandemic. 寻求帮助可缓冲悲伤对生活质量的影响：对 COVID-19 大流行期间损失的研究。
Omega Pub Date : 2025-06-01 Epub Date: 2022-12-19 DOI: 10.1177/00302228221146337
Marlee R Salisbury, Cassandra R W Harmsen, Robert T Muller
{"title":"Help-Seeking Buffers the Impact of Grief on Quality of Life: A Study of Loss During the COVID-19 Pandemic.","authors":"Marlee R Salisbury, Cassandra R W Harmsen, Robert T Muller","doi":"10.1177/00302228221146337","DOIUrl":"10.1177/00302228221146337","url":null,"abstract":"<p><p>The COVID-19 pandemic has presented a global challenge for anticipating the support and treatment needs of bereaved individuals. However, no studies have examined how mourners have been coping with grief and which strategies may buffer negative mental health consequences. We examined the various coping strategies being used and which strategies best support quality of life. Participants completed self-report measures of demographic and loss-related characteristics, grief symptoms, quality of life (QOL), and coping strategies used. Despite help-seeking being one of the least endorsed coping strategies used, help-seeking was the only coping strategy that buffered the impact of grief on QOL for individuals with high grief severity. Results support predictions that grief may become a global mental health concern requiring increased accessibility and availability of grief therapies and professional supports for bereaved individuals during and in the aftermath of the pandemic.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"977-996"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9780555/pdf/10.1177_00302228221146337.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10433143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"I Do Not Think She Will Understand, This is Not a Situation for a Girl Like Her:" Disenfranchised Grief Among Adults with Intellectual and Developmental Disabilities in the Ultra-orthodox Jewish Society. "我想她不会理解的，这种情况不适合她这样的女孩："极端正统犹太教社会中智力和发育障碍成人被剥夺权利的悲伤。
Omega Pub Date : 2025-06-01 Epub Date: 2022-11-25 DOI: 10.1177/00302228221141941
Alon Zamir, Tova Band-Winterstein
{"title":"\"I Do Not Think She Will Understand, This is Not a Situation for a Girl Like Her:\" Disenfranchised Grief Among Adults with Intellectual and Developmental Disabilities in the Ultra-orthodox Jewish Society.","authors":"Alon Zamir, Tova Band-Winterstein","doi":"10.1177/00302228221141941","DOIUrl":"10.1177/00302228221141941","url":null,"abstract":"<p><p>This article examines the experience of aging ultra-Orthodox families alongside a person with intellectual and developmental disabilities (IDD) in relation to parents' illness and death, followed by grief. In-depth interviews were conducted with 14 family units. Each family unit included the person with IDD, a parent, and a sibling-a total of 43 participants. Three main themes emerged: A. The difficulty in confronting illness and dying of parents alongside a family member with IDD in an Ultra-Orthodox Context. B. Exclusion of the person with IDD from parents' memorial events. C. Religious ceremonies as a strategy for coping with mourning among persons with IDD. The discussion focuses on the concept of <i>disenfranchised grief</i> in a religious context and its impact on the family support system. Culturally sensitive therapeutic recommendations are made for professionals working with older ultra-Orthodox Jewish families alongside a person with IDD in the context of the subject.</p>","PeriodicalId":74338,"journal":{"name":"Omega","volume":" ","pages":"728-746"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40485258","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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