Journal of hospice and palliative care最新文献_第3页

Hospice and Palliative Care Response Policy During the Coronavirus Disease 2019 (COVID-19) Pandemic in South Korea. 2019冠状病毒病（COVID-19）大流行期间韩国临终关怀和姑息治疗应对政策

Journal of hospice and palliative care Pub Date : 2025-12-01 DOI: 10.14475/jhpc.2025.28.4.138

Chang Gon Kim

{"title":"Hospice and Palliative Care Response Policy During the Coronavirus Disease 2019 (COVID-19) Pandemic in South Korea.","authors":"Chang Gon Kim","doi":"10.14475/jhpc.2025.28.4.138","DOIUrl":"10.14475/jhpc.2025.28.4.138","url":null,"abstract":"South Korea received international acclaim for its rapid response to the initial coronavirus disease 2019 (COVID-19) pandemic crisis through the \"K-Quarantine\" model, successfully managing it without closing its borders; however, terminally ill patients awaiting death in 19 public hospice facilities (83.4%/297 beds) had to vacate their beds to accommodate patients with COVID-19. This study examines and analyzed South Korea's hospice response policies during the pandemic. It draws on empirical data from domestic and international literature reviews and relevant websites. This study aimed to provide foundational data and policy recommendations for future pandemic preparedness. The findings revealed that, owing to the national response policy focused on infectious disease control and hospital bed allocation, 21 of the 88 inpatient hospice units in South Korea were closed, with their beds repurposed Therefore, hospice palliative care services became a \"negotiable service\" largely excluded from pandemic response policies. Strict visitation policies lowered hospice service utilization and disrupted service continuity. Emergency care support helped to mitigate care gaps; however, hospice care was limited in addressing patients' specialized needs, demonstrating structural fragmentation within the health and welfare systems. In conclusion, South Korea's hospice and palliative care response policy to the COVID-19 pandemic has failed to meet the essential goal of hospice palliative care: enhancing patient dignity and quality of life. To strengthen preparedness for future pandemics, designating specialized hospice institutions as essential health facilities, establishing infrastructure stabilization funds, developing a crisis-responsive payment systems, are essential.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 4","pages":"138-151"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12683176/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145717028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Text Network Analysis of Research on the Bereaved After Sudden Death Since 2000. 2000年以来猝死遗属研究的文本网络分析

Journal of hospice and palliative care Pub Date : 2025-12-01 DOI: 10.14475/jhpc.2025.28.4.160

Kyung-Ah Kang, Suk-Jung Han, Jiyoung Chun

{"title":"A Text Network Analysis of Research on the Bereaved After Sudden Death Since 2000.","authors":"Kyung-Ah Kang, Suk-Jung Han, Jiyoung Chun","doi":"10.14475/jhpc.2025.28.4.160","DOIUrl":"10.14475/jhpc.2025.28.4.160","url":null,"abstract":"Purpose: This study aimed to analyze research trends in those left behind after sudden bereavement in 2000, using text network analysis.Methods: This study structured and examined keywords in the abstracts of articles extracted from a web-based database. Five major databases (PubMed, Embase, Cochrane, CINAHL, and PsycInfo) were searched for key terms associated with bereavement and grief. After the data extraction, three dictionaries (thesaurus, exclusion, and definition) were created to refine the terms. A co-occurrence matrix was constructed, and text network analysis was performed to identify and visualize the core research topics.Results: In total, 108 studies on those left behind after bereavement were published, with <9 papers released annually. The top five words extracted from the studies on individuals left behind after bereavement were family, relationship, child, parent, and support. Cohesion analysis confirmed that the community could be divided into five categories (support by need, diseases and symptoms, changes due to bereavement, causes and processes of bereavement, and damage to the family) based on studies of individuals left behind after bereavement.Conclusion: Research addressing those left behind after sudden death is scarce, and only 108 studies were identified. These five clusters suggest that the research topics related to sudden bereavement represent distinct grief experiences characterized by unique psychological, social, and contextual features.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 4","pages":"160-168"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12683177/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145716934","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Shared Decision-Making with Palliative Care Specialist. 与姑息治疗专家共同决策。

Journal of hospice and palliative care Pub Date : 2025-12-01 DOI: 10.14475/jhpc.2025.28.4.131

Hsien-Liang Huang

{"title":"Shared Decision-Making with Palliative Care Specialist.","authors":"Hsien-Liang Huang","doi":"10.14475/jhpc.2025.28.4.131","DOIUrl":"10.14475/jhpc.2025.28.4.131","url":null,"abstract":"Shared decision-making (SDM) represents a central framework for achieving person-centered, value-concordant care in palliative and end-of-life settings. This review synthesizes current SDM concepts, practical models, and future directions relevant to palliative care specialists. Foundational models, such as the three-talk framework and the National Institute for Health and Care Excellence guidelines, emphasize iterative dialogue, informed preferences, and relational trust. In clinical practice, SDM is integrated with adaptive interdisciplinary approaches that align immediate treatment choices with long-term goals, particularly when combined with advance care planning. Examples such as SDM involving oncologists and palliative care specialists, as well as telehealth-based family conferences, illustrate measurable benefits in documentation, communication, and palliative engagement. Future priorities include addressing emotional distress, improving health literacy, and embracing relational autonomy in diverse cultural contexts. Emerging technologies such as artificial intelligence, large language models, and immersive virtual reality may offer promising tools for visualizing prognostic trajectories, supporting reflection, and enhancing empathy. Ultimately, SDM in palliative care transforms decision-making from a technical act into a moral and relational process, uniting evidence, compassion, and shared meaning to ensure that every medical choice honors the patient's dignity and values.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 4","pages":"131-137"},"PeriodicalIF":0.0,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12683174/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145717024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Dramatic Response to Palliative Radiotherapy in Advanced Eyelid Squamous Cell Carcinoma: A Case Report. 晚期眼睑鳞状细胞癌姑息性放疗疗效显著1例报告。

Journal of hospice and palliative care Pub Date : 2025-12-01 DOI: 10.14475/jhpc.2025.28.4.180

In Bong Ha, Byeong Sun Moon, Se-Il Go, Jung Hun Kang

引用次数: 0

Job Experiences, Stakeholder Expectations, and Policy Challenges of Early-Career Social Workers in Hospice and Palliative Care: A Qualitative Study. 安宁疗护与缓和疗护早期社工的工作经验、利益相关者期望与政策挑战：一项质性研究。

Journal of hospice and palliative care Pub Date : 2025-09-01 DOI: 10.14475/jhpc.2025.28.3.99

Jung-Won Lim, Soo Mi Jang, Jeehyun Sohn

{"title":"Job Experiences, Stakeholder Expectations, and Policy Challenges of Early-Career Social Workers in Hospice and Palliative Care: A Qualitative Study.","authors":"Jung-Won Lim, Soo Mi Jang, Jeehyun Sohn","doi":"10.14475/jhpc.2025.28.3.99","DOIUrl":"10.14475/jhpc.2025.28.3.99","url":null,"abstract":"Purpose: This study aimed to explore the job experiences of early-career social workers with <2 years of experience in hospice and palliative care, examine the expectations of related stakeholders, and propose policy recommendations for the advancement of this field.Methods: Two focus group interviews were conducted with 10 early-career social workers working in hospice and palliative care settings, and the findings were analyzed using a constant comparative method.Results: The analysis revealed that while early-career social workers experienced personal growth and a sense of fulfillment in their roles, they also faced various challenges as they adapted to the unique environment and intervention approaches of hospice and palliative care teams. Hospice social workers are expected to serve as communication bridges between patients, caregivers, and medical staff while fulfilling their core responsibilities. However, a considerable gap was observed between these expectations and the realities of their work. For the advancement of hospice and palliative care, self-reflection and identity formation by social workers are necessary for personal transformation, while policy-level measures such as human resource management, job systematization, and organizational and systemic reform are also required.Conclusion: This study provides valuable foundational data and clinical preparation guidelines for early-career social workers entering the hospice and palliative care field. Furthermore, it offers evidence supporting the policy and institutional changes essential for the continued development of hospice and palliative care.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 3","pages":"99-114"},"PeriodicalIF":0.0,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12409083/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Spiritual Well-Being and Care Burden among Families of Patients with Terminal Cancer: Is Emotional Distress a Crucial Thing? 晚期癌症患者家属的精神健康与照顾负担：情绪困扰是关键吗？

Journal of hospice and palliative care Pub Date : 2025-09-01 DOI: 10.14475/jhpc.2025.28.3.115

Chung Woo Lee, In Cheol Hwang, Yoo Jeong Lee

{"title":"Spiritual Well-Being and Care Burden among Families of Patients with Terminal Cancer: Is Emotional Distress a Crucial Thing?","authors":"Chung Woo Lee, In Cheol Hwang, Yoo Jeong Lee","doi":"10.14475/jhpc.2025.28.3.115","DOIUrl":"10.14475/jhpc.2025.28.3.115","url":null,"abstract":"Purpose: This study investigated the association between spiritual well-being and care burden among family caregivers of patients with terminal cancer.Methods: Data from 172 family caregivers from nine hospice care units in South Korea were analyzed using multivariate regression models. Spiritual well-being was measured using the Functional Assessment of Chronic Illness Therapy - Spiritual Well-being questionnaire, and the subjective care burden on family caregivers was assessed using the Caregiver Reaction Assessment tool.Results: The current study demonstrated a positive association between spiritual well-being and family caregivers' care burden, which is consistent with a previous study that evaluated anxiety. On the subscales, disrupted schedules were positively associated with the meaning/peace domain. Further analysis revealed that adjusting for emotional distress changed the direction of the association or mitigated the magnitude of the association.Conclusion: Among family caregivers of patients with cancer, spiritual well-being reflects their care burden, in which emotional distress may play an important role.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 3","pages":"115-119"},"PeriodicalIF":0.0,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12409081/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016893","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effects of Emergency Nurses' Life-Sustaining Treatment Withdrawal Knowledge, Role Perception, and Job Stress on Providing End-of-Life Care. 急诊护士生命维持治疗戒断知识、角色认知及工作压力对临终关怀的影响。

Journal of hospice and palliative care Pub Date : 2025-09-01 DOI: 10.14475/jhpc.2025.28.3.89

Hyun Ju Park, Eun Ah Hong, So Hyeon Min, Heeje Yun, Hyung Bok Lee, Won Ho Choi

{"title":"Effects of Emergency Nurses' Life-Sustaining Treatment Withdrawal Knowledge, Role Perception, and Job Stress on Providing End-of-Life Care.","authors":"Hyun Ju Park, Eun Ah Hong, So Hyeon Min, Heeje Yun, Hyung Bok Lee, Won Ho Choi","doi":"10.14475/jhpc.2025.28.3.89","DOIUrl":"10.14475/jhpc.2025.28.3.89","url":null,"abstract":"Purpose: This study aimed to identify predictors of end-of-life (EOL) care provided by emergency nurses in South Korea.Methods: A cross-sectional survey was conducted using a structured questionnaire. Data were collected using Google Forms between June 21 and 30, 2022. A total of 154 emergency nurses from 10 tertiary hospitals in a metropolitan area were recruited using convenience sampling, and 139 completed surveys were analyzed. Multiple linear regression was employed to examine the effects of nurses' knowledge of life-sustaining treatment withdrawal (knowledge), their perceptions of their role in the withdrawal process (role perception), and job stress on EOL care.Results: The mean scores for knowledge, role perception, job stress, and EOL care were 13.09±1.75 (max 6), 4.18±0.44 (max 5), 3.55±0.32 (max 4), and 2.48±0.40 (max 4), respectively. Among the EOL care subdomains, psychological domain scores were the highest. Multiple linear regression analysis indicated that nurses' role perception significantly predicted EOL care performance, particularly in the psychological (F=3.924, P=0.001) and spiritual (F=2.171, P=0.020) domains.Conclusion: Despite the challenging environment of the emergency department, nurses who recognize their important role in the process of life-sustaining treatment withdrawal are more likely to provide high-quality EOL care. The perception of nurses' roles is especially influential on psychological care performance, and alternative approaches may be necessary for spiritual care.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 3","pages":"89-98"},"PeriodicalIF":0.0,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12409082/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016880","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home-Based Palliative Care: Benefits, Challenges, Opportunities and Future Directions in a Super-Aged Society. 居家缓和疗护：超高龄社会的利益、挑战、机遇与未来方向。

Journal of hospice and palliative care Pub Date : 2025-09-01 DOI: 10.14475/jhpc.2025.28.3.81

Cheng-Pei Lin, Wei-Min Chu

{"title":"Home-Based Palliative Care: Benefits, Challenges, Opportunities and Future Directions in a Super-Aged Society.","authors":"Cheng-Pei Lin, Wei-Min Chu","doi":"10.14475/jhpc.2025.28.3.81","DOIUrl":"10.14475/jhpc.2025.28.3.81","url":null,"abstract":"Home-based palliative care (HBPC) has emerged as a critical model to address the complex needs of individuals with life-limiting illnesses, particularly in super-aged societies. This review explored the key components of HBPC and elaborated on its benefits, challenges, opportunities, and future directions, drawing on international evidence and practical frameworks. HBPC is reported to enhance the quality of life, reduce unnecessary hospitalizations, and increase the likelihood of patients dying in their preferred settings. Successful care delivery requires integrated multidisciplinary teams, effective symptom management, holistic care, and timely support from caregivers. However, barriers such as resource constraints, caregiver burden, and a lack of psychosocial support remain significant. Future directions and opportunities include integrating hospital-at-home models into routine HBPC services, strengthening the education of healthcare professionals and the public, and fostering compassionate communities to promote social engagement in end-of-life care. Advancing HBPC within diverse sociocultural contexts can bridge the gap between patient preferences and actual care delivery, offering a sustainable pathway to improve continuous palliative care provision for older adults globally.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 3","pages":"81-88"},"PeriodicalIF":0.0,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12409080/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145016905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The End-of-Life Experiences of Cancer Patients' Families in a Tertiary Hospital Providing Palliative Care Consultation During the COVID-19 Pandemic. 某三级医院姑息治疗会诊期间癌症患者家属的临终体验

Journal of hospice and palliative care Pub Date : 2025-06-01 DOI: 10.14475/jhpc.2025.28.2.40

Hyoung Suk Han, Mi Young Kim

{"title":"The End-of-Life Experiences of Cancer Patients' Families in a Tertiary Hospital Providing Palliative Care Consultation During the COVID-19 Pandemic.","authors":"Hyoung Suk Han, Mi Young Kim","doi":"10.14475/jhpc.2025.28.2.40","DOIUrl":"10.14475/jhpc.2025.28.2.40","url":null,"abstract":"Purpose: This study aimed to understand and explore the experiences of families of patients with cancer who died in a tertiary hospital providing palliative care consultation during the coronavirus disease 2019 (COVID-19) pandemic.Methods: Semi-structured interviews were conducted with bereaved families of patients with cancer who received palliative care consultations during the COVID-19 pandemic in a tertiary hospital in Seoul. The data were analyzed using a phenomenological research method.Results: During the COVID-19 pandemic, families experienced anxiety and guilt due to the limitations of caregiving opportunities and became aware of the lack of existing support systems. Thematic analysis revealed four essential themes family agitation in uncertainty, palliative care that gives strength in isolated situations, reflection on the indescribable loss, and appealing to the world regarding the desperate need for a support system.Conclusion: During the pandemic, families struggled to express love and fulfill caregiving roles, with caregivers facing increased emotional pressure and burnout. Communication between patients, families, and medical staff and comprehensive support for family members' end-of-life preparation are necessary. This will serve as basic data for understanding the experiences of families of dying patients with cancer at tertiary hospitals in the non-face-to-face era and for end-of-life care, including palliative care consultations in healthcare settings.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 2","pages":"40-55"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138586/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Influence of Hospice-Palliative Nursing Knowledge, Empathy, and Attitude toward End-of-Life Care on Spiritual Care Competence of Nurses in Long-Term Care Hospital. 安宁疗护知识、共情及临终关怀态度对长期照护医院护士精神关怀能力的影响

Journal of hospice and palliative care Pub Date : 2025-06-01 DOI: 10.14475/jhpc.2025.28.2.71

Hye Jin Lee, Mi Sook Park

{"title":"The Influence of Hospice-Palliative Nursing Knowledge, Empathy, and Attitude toward End-of-Life Care on Spiritual Care Competence of Nurses in Long-Term Care Hospital.","authors":"Hye Jin Lee, Mi Sook Park","doi":"10.14475/jhpc.2025.28.2.71","DOIUrl":"10.14475/jhpc.2025.28.2.71","url":null,"abstract":"Purpose: This study was conducted to identify the influence of hospice·palliative nursing knowledge, empathy, and attitudes toward end-of-life care on spiritual care competence of nurses in long-term care hospitals.Methods: The participants was 174 nurses who had worked for more than one clinical year and experienced end-of-life care more than one time in 14 long-term-care hospitals in C province. Data were collected using questionnaires which consisted of hospice·palliative care knowledge, empathy, attitude toward end of life care, and spiritual care competence. Data were analyzed using the Statistical Package for the Social Science (SPSS) WIN 29.0 statistical program.Results: The job satisfaction, education level, empathy and attitude toward end-of-life care explained 36.9% of spiritual care competence and major predictor variable for spiritual care competence was attitude toward end-of-life care of nurse.Conclusion: Based on the results of this study, in order to improve the spiritual care competence of nurses in long-term care hospitals, it is necessary to consider education level among nurses and improve their job satisfaction. Also, in order to enhance their empathy and positive attitude toward end-of-life care, it is needed to develop and apply various systematic programs for nurses in long-term care hospitals.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"28 2","pages":"71-80"},"PeriodicalIF":0.0,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12138589/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0