Journal of hospice and palliative care最新文献_第3页

Knowledge and Perceptions of the End of Life among Tunisian Medical and Paramedical Staff. 突尼斯医务人员和辅助医务人员对生命终结的认识和看法。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.64

Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama

{"title":"Knowledge and Perceptions of the End of Life among Tunisian Medical and Paramedical Staff.","authors":"Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama","doi":"10.14475/jhpc.2024.27.2.64","DOIUrl":"10.14475/jhpc.2024.27.2.64","url":null,"abstract":"Purpose: End-of-life (EOL) care is a vulnerable period in an individual's life. Healthcare professionals (HPs) strive to balance the preservation of human life with respect for the patient's wishes. The aims of our study were to assess HPs' knowledge and perceptions of EOL care and to propose areas of improvement to improve the quality of care.Methods: We conducted a single-center, cross-sectional study involving HPs from a university hospital who encountered EOL care situations. We used a questionnaire divided into four sections knowledge, practice, perception, and training. We calculated the rate of correct answers and the collective competence index.Results: Eighty-six questionnaires were analyzed, with 82.5% (71/86) completed by medical respondents and 17.5% (15/86) by paramedical respondents. Most of the respondents, 71.8% (51/71), were interns and residents. The study focused on palliative care, medical assistance in dying, aggressive medical treatment, and euthanasia, finding adequate knowledge in the first three areas. Respondents assigned to the intensive care unit and those with more than 8 years of experience had significantly higher correct answer rates than their counterparts. Seventy-five percent of respondents (65/86) reported feeling that they had little or no mastery of EOL care, primarily attributing this to insufficient training and the unavailability of trainers.Conclusion: Based on the findings of our study, which we believe to be the first of its kind in Tunisia, we can conclude that HPs possess an acceptable level of knowledge regarding EOL care. However, they require more exposure and training to develop expertise in this area.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"64-76"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163178/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Inpatient Hospice Care in Korea during the COVID-19 Pandemic: A Preliminary Study. COVID-19 大流行期间韩国的住院病人临终关怀：初步研究。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.82

Youn Seon Choi, Sun Wook Hwang, In Cheol Hwang

引用次数: 0

An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care. 儿科临终关怀与姑息治疗的演变概念分析。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.51

Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha

{"title":"An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care.","authors":"Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha","doi":"10.14475/jhpc.2024.27.2.51","DOIUrl":"10.14475/jhpc.2024.27.2.51","url":null,"abstract":"Purpose: This study aimed to clarify the concept of pediatric hospice and palliative care through conceptual analysis. It also sought to identify the differences between related concepts such as pediatric death care and pediatric spiritual care, in order to provide foundational data for the development of nursing theory and knowledge.Methods: A conceptual analysis of pediatric hospice and palliative care was conducted using Rodgers' evolutionary method. Out of 5,013 papers identified, 28 were selected for detailed reading and analysis.Results: Pediatric hospice and palliative care encompasses physical, psychological, social, mental, spiritual, and family care for children with acute and chronic diseases with uncertain prognoses ahead of death, as well as their families. Effective pediatric hospice and palliative care will require multidisciplinary team nursing, effective communication, and supportive policies.Conclusion: The findings of this study suggest that providing pediatric hospice and palliative care will lead to improvements in pain relief for children and families, the efficiency of responses to death in children, and the quality of life for children and families. The significance of this study is that it clearly clarifies the concept by analyzing pediatric hospice and palliative care using an evolutionary method.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"51-63"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes toward Social Issues Related to Opioid Use among Palliative Care Physicians. 姑息治疗医生对阿片类药物使用相关社会问题的态度。

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.45

In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee

{"title":"Attitudes toward Social Issues Related to Opioid Use among Palliative Care Physicians.","authors":"In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee","doi":"10.14475/jhpc.2024.27.1.45","DOIUrl":"10.14475/jhpc.2024.27.1.45","url":null,"abstract":"Purpose: This study investigated palliative care physicians' attitudes regarding social issues related to opioid use.Methods: An email survey was sent to 674 physicians who were members of the Korean Society for Hospice and Palliative Care (KSHPC).Results: Data from 66 physicians were analyzed (response rate, 9.8%). About 70% of participants stated that their prescribing patterns were not influenced by social issues related to opioid use, and 90% of participants thought that additional regulations should be limited to non-cancer pain. Under the current circumstances, pain education for physicians is urgently needed, as well as increased awareness among the public. Half of the respondents identified the KSHPC as the primary organization responsible for providing pain education.Conclusion: Palliative care physicians' prescribing patterns were not influenced by social issues related to opioid use, and these issues also should not affect cancer pain control.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"45-49"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911981/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors that Influence Attitudes toward Advance Directives among Hemodialysis Patients. 影响血液透析患者对预先医疗指示态度的因素。

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.11

Minhee Cho, Hyunjoo Na

{"title":"Factors that Influence Attitudes toward Advance Directives among Hemodialysis Patients.","authors":"Minhee Cho, Hyunjoo Na","doi":"10.14475/jhpc.2024.27.1.11","DOIUrl":"10.14475/jhpc.2024.27.1.11","url":null,"abstract":"Purpose: Advance directives (ADs) are legal documents that outline a person's preferences or decisions regarding end-of-life care ahead of time. In Korea, there is insufficient awareness and knowledge about ADs among patients undergoing hemodialysis. This study explored the relationship between perceptions of a good death, knowledge about ADs, and attitudes toward ADs in this patient population.Methods: This cross-sectional survey enrolled 119 hemodialysis patients from a secondary hospital in 2021. The participants completed a self-administered questionnaire, and the data were analyzed using the t-test, analysis of variance, Pearson correlation coefficients, Spearman rank correlation coefficients, and multiple regression analysis.Results: The average score for perceptions of a good death among hemodialysis patients was 2.80 out of 4, with clinical symptoms identified as the most critical factor. The average scores for knowledge about ADs and attitudes toward ADs were 5.69 out of 9 and 2.79 out of 4, respectively. There was a positive correlation between perceptions of a good death and attitudes toward ADs (r=0.34, P<0.001), as well as between knowledge about Ads and attitudes toward ADs (r=0.19, P=0.037). Factors influencing attitudes toward Ads included employment status (β=0.22, P=0.011), education level (β=0.22, P=0.013), and perceptions of a good death (β=0.29, P=0.001), which accounted for 24.8% of the variance in attitudes toward ADs.Conclusion: A positive perception of a good death among patients undergoing hemodialysis was associated with a positive attitude toward ADs. Educational programs are needed to improve individuals' understanding of a good death and encourage the development of end-of-life care plans.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"11-20"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911983/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Clinical Experience of Nurses in a Consultative Hospice Palliative Care Service. 临终关怀姑息治疗咨询服务中护士的临床经验。

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.31

Sinyoung Kwon, Jinyee Byun

{"title":"Clinical Experience of Nurses in a Consultative Hospice Palliative Care Service.","authors":"Sinyoung Kwon, Jinyee Byun","doi":"10.14475/jhpc.2024.27.1.31","DOIUrl":"10.14475/jhpc.2024.27.1.31","url":null,"abstract":"Purpose: The purpose of this qualitative study was to employ Colaizzi's phenomenological research method to elucidate and understand the essence of practical experiences among consultative hospice palliative care nurses working in hospice institutions.Methods: The participants in the study were 15 consultative hospice palliative care nurses with over 1 year of work experience in institutions located in S City, I City, and K Province in South Korea. Data were collected from 23 in-depth interviews and analyzed using Colaizzi's phenomenological qualitative method.Results: The practical experiences of consultative hospice palliative nurses were categorized into five categories, 10 theme clusters, and 25 themes. The five categories included \"being aware of patients' situations at the time of transition to hospice palliative care,\" \"empathizing with patients and their families by putting oneself in the other's shoes,\" \"providing patient and family-centered end-of-life care,\" \"experiencing difficulties in practical tasks,\" and \"striving to improve hospice service quality.\"Conclusion: This study is significant in that it provides practical data for understanding the experiences of consultative hospice palliative care nurses caring for terminally ill patients. This could enhance our understanding of care solutions that effectively tackle the challenges consultative hospice palliative care nurses encounter while fulfilling their roles.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"31-44"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911980/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Palliative Care for Adult Patients Undergoing Hemodialysis in Asia: Challenges and Opportunities. 亚洲血液透析成人患者的姑息治疗：挑战与机遇。

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.1

Wei-Min Chu, Hung-Bin Tsai, Yu-Chi Chen, Kuan-Yu Hung, Shao-Yi Cheng, Cheng-Pei Lin

{"title":"Palliative Care for Adult Patients Undergoing Hemodialysis in Asia: Challenges and Opportunities.","authors":"Wei-Min Chu, Hung-Bin Tsai, Yu-Chi Chen, Kuan-Yu Hung, Shao-Yi Cheng, Cheng-Pei Lin","doi":"10.14475/jhpc.2024.27.1.1","DOIUrl":"10.14475/jhpc.2024.27.1.1","url":null,"abstract":"This article underscores the importance of integrating comprehensive palliative care for noncancer patients who are undergoing hemodialysis, with an emphasis on the aging populations in Asian nations such as Taiwan, Japan, the Republic of Korea, and China. As the global demographic landscape shifts towards an aging society and healthcare continues to advance, a marked increase has been observed in patients undergoing hemodialysis who require palliative care. This necessitates an immediate paradigm shift to incorporate this care, addressing the intricate physical, psychosocial, and spiritual challenges faced by these individuals and their families. Numerous challenges impede the provision of effective palliative care, including difficulties in prognosis, delayed referrals, cultural misconceptions, lack of clinician confidence, and insufficient collaboration among healthcare professionals. The article proposes potential solutions, such as targeted training for clinicians, the use of telemedicine to facilitate shared decision-making, and the introduction of time-limited trials for dialysis to overcome these obstacles. The integration of palliative care into routine renal treatment and the promotion of transparent communication among healthcare professionals represent key strategies to enhance the quality of life and end-of-life care for people on hemodialysis. By embracing innovative strategies and fostering collaboration, healthcare providers can deliver more patient-centered, holistic care that meets the complex needs of seriously ill patients within an aging population undergoing hemodialysis.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"1-10"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

End-of-Life Planning and the Influence of Socioeconomic Status among Black Americans: A Systematic Review. 美国黑人的临终规划和社会经济地位的影响：系统回顾

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.21

Chesney Ward, Katherine Montgomery

{"title":"End-of-Life Planning and the Influence of Socioeconomic Status among Black Americans: A Systematic Review.","authors":"Chesney Ward, Katherine Montgomery","doi":"10.14475/jhpc.2024.27.1.21","DOIUrl":"10.14475/jhpc.2024.27.1.21","url":null,"abstract":"Purpose: The purpose of this systematic review is to explore end-of-life (EOL) care planning and the impact of socioeconomic status (SES) among people who identify as Black or African American.Methods: The Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) were used to guide and inform this systematic review process. The following academic electronic databases with publications that reflected the interdisciplinary fields related to the research objective were searched APA PsycINFO, CINHAL, PubMed, Scopus, and Social Work Abstracts.Results: After the authors conducted the search, 14 articles (from 13 studies) ultimately met the criteria for inclusion. The results substantiated significant concerns highlighted in previous literature regarding SES and its relation to EOL planning, but also revealed an absence of original work and interventions to increase engagement in EOL planning among Black and African American populations.Conclusion: Black individuals deserve an equitable EOL experience. Researchers, practitioners, and policymakers need to move towards advocacy and action to meet this important need.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"21-30"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911982/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effects of Death Anxiety and Perceived End-of-Life Care Competencies on Fear of Terminal Care among Clinical Nurses 死亡焦虑和临终关怀能力对临床护士临终关怀恐惧的影响

Journal of hospice and palliative care Pub Date : 2023-12-01 DOI: 10.14475/jhpc.2023.26.4.160

Heewon Kim, So-Hi Kwon

{"title":"Effects of Death Anxiety and Perceived End-of-Life Care Competencies on Fear of Terminal Care among Clinical Nurses","authors":"Heewon Kim, So-Hi Kwon","doi":"10.14475/jhpc.2023.26.4.160","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.4.160","url":null,"abstract":"Purpose The aim of this study was to examine the effects of death anxiety and perceived end-of-life care competencies on the fear of terminal care among clinical nurses. Methods This correlational study was conducted from June to July 2021. The study included 149 clinical nurses employed at a tertiary hospital and seven other hospitals. The measurement tools used in this study were the Thanatophobia Scale (Cronbach’s α=0.87), the Death Anxiety Scale (Cronbach’s α=0.80), and the Scale of End-of-life Care Competencies (Cronbach’s α=0.94). These instruments were chosen to assess the levels of fear of terminal care, death-related anxiety, and competencies in end-of-life care. Results The mean score for fear of terminal care was 3.32±1.32. Differences in fear of terminal care were observed based on the working unit, position, number of patients requiring terminal care, and experience with end-of-life care education. Fear of terminal care was significantly positively correlated with death anxiety and significantly negatively correlated with end-of-life care competencies. In multiple regression analysis, the factors influencing fear of terminal care were attitudes toward end-of-life care competencies (β=-0.39, P<0.001), death anxiety (β=0.24, P<0.001), knowledge of end-of-life care competencies (β=-0.22, P=0.005), and behaviors related to end-of-life care competencies (β=-0.16, P=0.021). These factors explained 64.6% of the total variance (F=25.54, P<0.001). Conclusion This study suggests that developing nurses’ end-of-life care competencies and reducing death anxiety are crucial for managing the fear of terminal care. Therefore, providing end-of-life care education and psychological support programs is important.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"182 ","pages":"160 - 170"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138615003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Art Therapy in Patients with Terminal Cancer and Their Families: A Multiple Case Study 癌症晚期患者及其家属的艺术疗法：多案例研究

Journal of hospice and palliative care Pub Date : 2023-12-01 DOI: 10.14475/jhpc.2023.26.4.171

Nahyun Park, Im-Il Na, Sinyoung Kwon

{"title":"Art Therapy in Patients with Terminal Cancer and Their Families: A Multiple Case Study","authors":"Nahyun Park, Im-Il Na, Sinyoung Kwon","doi":"10.14475/jhpc.2023.26.4.171","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.4.171","url":null,"abstract":"Purpose The study explored the meaning of experiences within a family art therapy process among terminal cancer patients and their families. Methods Ten participants, including four terminal cancer patients currently admitted to the hospice ward at an inpatient hospice facility in S City and four caregiving family members, engaged in four cycles of family art therapy sessions. The sessions were conducted weekly or bi-weekly, and each lasted approximately 50 minutes. Results Nine cross-case themes emerged “feeling unfamiliar and intimidated by the idea of expressing my thoughts through art,” “trying to accept the present and positively overcome sadness,” “expressing hope through emotional bonds during the process of parting,” “conveying and preserving personal and family beliefs,” “feeling upset about family imbalances caused by deteriorating health,” “valuing togetherness and striving for stability amidst the current challenges,” “art as a medium of empowerment for patients and facilitator of family conversations, even amidst difficulties,” “sharing a range of emotions—not just joy, but concerns and sorrow—through art,” and “gratitude for art’s role in improving family communication and connection through artwork. Conclusion The findings of this study lead to several conclusions. First, patients and their families faced psychological challenges when confronted with impending death, yet they strove to remain optimistic by seeking meaning in their struggles. Second, families practiced open and expressive communication, sharing a spectrum of complex emotions with one another. Third, even as the patient’s condition worsened, resulting in family fatigue, their support and cohesion strengthened.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"2 7","pages":"171 - 184"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138621371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0