Journal of hospice and palliative care最新文献

筛选
英文 中文
Spiritual Care Guide in Hospice∙Palliative Care. 安宁疗护-姑息关怀中的精神关怀指南
Journal of hospice and palliative care Pub Date : 2023-12-01 DOI: 10.14475/jhpc.2023.26.4.149
Kyung-Ah Kang, Do-Bong Kim, Su-Jin Koh, Myung-Hee Park, Hye Yoon Park, Deuk Hyoung Yoon, Soo-Jin Yoon, Su-Jeong Lee, Ji-Eun Choi, Hyoung-Suk Han, Jiyoung Chun
{"title":"Spiritual Care Guide in Hospice∙Palliative Care.","authors":"Kyung-Ah Kang, Do-Bong Kim, Su-Jin Koh, Myung-Hee Park, Hye Yoon Park, Deuk Hyoung Yoon, Soo-Jin Yoon, Su-Jeong Lee, Ji-Eun Choi, Hyoung-Suk Han, Jiyoung Chun","doi":"10.14475/jhpc.2023.26.4.149","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.4.149","url":null,"abstract":"<p><p>The Spiritual Care Guide in Hospice∙Palliative Care is evidence-based and focuses on the universal and integral aspects of human spirituality-such as meaning and purpose, interconnectedness, and transcendence-which go beyond any specific religion. This guide was crafted to improve the spiritual well-being of adult patients aged 19 and older, as well as their families, who are receiving end-of-life care. The provision of spiritual care in hospice and palliative settings aims to assist patients and their families in finding life's meaning and purpose, restoring love and relationships, and helping them come to terms with death while maintaining hope. It is recommended that spiritual needs and the interventions provided are periodically reassessed and evaluated, with the findings recorded. Additionally, hospice and palliative care teams are encouraged to pursue ongoing education and training in spiritual care. Although challenges exist in universally applying this guide across all hospice and palliative care organizations in Korea-due to varying resources and the specific environments of medical institutions-it is significant that the Korean Society for Hospice and Palliative Care has introduced a spiritual care guide poised to enhance the spiritual well-being and quality of care for hospice and palliative care patients.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 4","pages":"149-159"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10703561/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138806257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Proportion of Non-Medical Opioid Use of Prescription Opioids among Cancer Patients in Korea 韩国癌症患者非医疗使用阿片类处方药的比例
Journal of hospice and palliative care Pub Date : 2023-12-01 DOI: 10.14475/jhpc.2023.26.4.185
S. Go, Jung Hye Kwon, Sung Woo Park, Gyeong-Won Lee, Jung Hun Kang, Eduardo Bruera
{"title":"Proportion of Non-Medical Opioid Use of Prescription Opioids among Cancer Patients in Korea","authors":"S. Go, Jung Hye Kwon, Sung Woo Park, Gyeong-Won Lee, Jung Hun Kang, Eduardo Bruera","doi":"10.14475/jhpc.2023.26.4.185","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.4.185","url":null,"abstract":"Purpose Limited research has been conducted on the prevalence of non-medical opioid use (NMOU) in Korean cancer patients who have received prescription opioids (PO). This study aimed to identify the potential proportion of NMOU in cancer patients who had been prescribed opioids in Korea. Methods A retrospective cohort analysis was conducted on 14,728 patients who underwent cancer-related treatment between January 2009 and December 2019, using electronically collected data from a tertiary hospital in Korea. Information regarding the type and duration of opioid use was gathered. A detailed review of medical charts was carried out, focusing on patients who had been prescribed opioids for over 60 days beyond a 12-month period following the completion of their cancer treatment (long-term PO users). Results Out of the 5,587 patients who were prescribed PO and followed up for at least 12 months, 13 cases of NMOU were identified, representing 0.23% of the patient population. Among the 204 long-term PO users, the rate was 6.37% (13/204). The most commonly misused opioids were oxycodone and fentanyl. For the group confirmed to have NMOU, the median duration of prescription was 1,327 days in total. Of the 13 patients diagnosed with NMOU, 9 reported withdrawal symptoms, 3 exhibited craving behavior for opioids, and 1 experienced both symptoms. Conclusion This study found that 0.23% of cancer patients who had been prescribed opioids in Korea demonstrated NMOU. Despite this relatively low rate, careful monitoring is necessary to minimize the risk of NMOU in this population, especially among long-term PO users.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":" 23","pages":"185 - 189"},"PeriodicalIF":0.0,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138614269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trends and Meta-Analysis of Research on the Operation of Programs for Bereaved Families in South Korea. 韩国丧亲家庭项目运作研究的趋势和荟萃分析。
Journal of hospice and palliative care Pub Date : 2023-09-01 DOI: 10.14475/jhpc.2023.26.3.126
Myung-Nam Lee, Jung Won Suk, Hyunsook Zin Lee
{"title":"Trends and Meta-Analysis of Research on the Operation of Programs for Bereaved Families in South Korea.","authors":"Myung-Nam Lee,&nbsp;Jung Won Suk,&nbsp;Hyunsook Zin Lee","doi":"10.14475/jhpc.2023.26.3.126","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.3.126","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to analyze interventions for bereaved families and evaluate their effectiveness, with the ultimate goal of supporting evidence-based nursing for bereaved families.</p><p><strong>Methods: </strong>Research trends were identified based on a search of domestic databases from January 2000 to December 2022, and a meta-analysis was conducted on interventions for bereaved families. Forty-five papers were selected, and information was extracted on participants, research design, and interventions. A meta-analysis of seven papers was performed, and the effect size was calculated.</p><p><strong>Results: </strong>Fourteen papers dealt with interventions for middle-aged women who had lost their spouses, 20 used qualitative research methods, and 20 were on art therapy programs. Thirty studies had fewer than 10 participants, and most interventions had 60~120 minutes per session and 9~16 sessions in total. There were seven randomized controlled trials, and all studies included in the quality evaluation showed a low risk of bias. Four papers measured grief as an outcome, and the effect size was -1.9577 (95% CI -2.9206 to -0.9947), indicating that the treatment significantly decreased grief (P<0.001). Six papers measured depression as an outcome, and the effect size was -1.6775 (95% CI -2.1835 to -1.1716), showing that the treatment significantly decreased depression (P<0.001).</p><p><strong>Conclusion: </strong>Intervention programs for bereaved families were shown to be effective in relieving grief and depression. However, programs should be developed that target middle-aged men who have lost their spouses and children who have lost their parents. Randomized controlled trials should also be conducted on interventions to reduce grief and depression.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 3","pages":"126-139"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/40/3f/jhpc-26-3-126.PMC10542993.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41124810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge, Attitudes and Nursing Stress Related to Life-Sustaining Treatment among Oncology Nurses. 肿瘤科护士对维持生命治疗的认识、态度和护理压力。
Journal of hospice and palliative care Pub Date : 2023-09-01 DOI: 10.14475/jhpc.2023.26.3.112
Seul Lee, Suyoun Hong, Sojung Park, Soojung Lim
{"title":"Knowledge, Attitudes and Nursing Stress Related to Life-Sustaining Treatment among Oncology Nurses.","authors":"Seul Lee,&nbsp;Suyoun Hong,&nbsp;Sojung Park,&nbsp;Soojung Lim","doi":"10.14475/jhpc.2023.26.3.112","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.3.112","url":null,"abstract":"<p><strong>Purpose: </strong>This study investigated knowledge, attitudes, and nursing stress related to life-sustaining treatment among oncology nurses.</p><p><strong>Methods: </strong>A descriptive study design was used. Data were collected through a survey from April 1 to May 31, 2022. The participants were 132 nurses working in the oncology ward of a tertiary hospital in Seoul. Data were analyzed using the SPSS 25.0 program with descriptive statics, the independent t-test, analysis of variance, and Pearson correlation coefficients.</p><p><strong>Results: </strong>The average scores for knowledge, attitudes, and nursing stress related to life-sustaining treatment were 14.42, 3.29, and 3.96, respectively. Significant differences in knowledge about life-sustaining treatment were observed based on clinical experience (P=0.029) and education about life-sustaining treatment (P=0.044). Attitudes toward life-sustaining treatment varied significantly with education about life-sustaining treatment (P=0.014), while stress levels differed significantly across working units (P=0.004). A positive correlation was found between the dilemma of extending or stopping life-sustaining treatment (a subdomain of nursing stress) and attitudes toward life-sustaining treatment (r=0.260, P=0.003).</p><p><strong>Conclusion: </strong>There was no significant correlation between the nursing stress experienced by oncology nurses and their knowledge and attitudes toward life-sustaining treatment. However, a more positive experience with life-sustaining treatment education was associated with higher stress levels related to the dilemma of extending or stopping life-sustaining treatment. Therefore, it is crucial to develop strategies to manage this dilemma and reduce stress in the field.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 3","pages":"112-125"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/1e/a3/jhpc-26-3-112.PMC10542995.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41107707","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nurses' Perception and Performance of End-of-Life Care in a Tertiary Hospital. 三级医院护士对临终关怀的认知与表现。
Journal of hospice and palliative care Pub Date : 2023-09-01 DOI: 10.14475/jhpc.2023.26.3.101
Seo Yeon Jung, Hyun Seung Song, Ji Youn Kim, Hoi Jung Koo, Yong Soon Shin, Sung Reul Kim, Jeong Hye Kim
{"title":"Nurses' Perception and Performance of End-of-Life Care in a Tertiary Hospital.","authors":"Seo Yeon Jung,&nbsp;Hyun Seung Song,&nbsp;Ji Youn Kim,&nbsp;Hoi Jung Koo,&nbsp;Yong Soon Shin,&nbsp;Sung Reul Kim,&nbsp;Jeong Hye Kim","doi":"10.14475/jhpc.2023.26.3.101","DOIUrl":"10.14475/jhpc.2023.26.3.101","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to identify levels of perception and performance of end-of-life care among nurses and to investigate correlations between perception and performance.</p><p><strong>Methods: </strong>This cross-sectional descriptive survey included 321 nurses from a tertiary hospital in Seoul, Korea. The participants had at least 6 months of work experience and had been involved in end-of-life care at least once, in either ward or intensive care unit settings. A structured questionnaire was utilized to assess their perception and performance of end-of-life care.</p><p><strong>Results: </strong>The mean score for perception of end-of-life care was 3.23±0.34, while the score for performance of end-of-life care was 3.08±0.34. There was a significant positive correlation between nurses' perception of end-of-life care and their performance in this area (r=0.78, P<0.001).</p><p><strong>Conclusion: </strong>It is necessary to change perceptions regarding end-of-life care and to develop systematic and standardized education programs including content such as assessing the hydration status of dying patients, evaluating mental aspects such as suicidal ideation, and providing spiritual care for nurses working in end-of-life departments.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 3","pages":"101-111"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/c3/d0/jhpc-26-3-101.PMC10542992.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41164924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dignity and Dignity Therapy in End-of-Life Care. 临终关怀中的尊严和尊严治疗。
Journal of hospice and palliative care Pub Date : 2023-09-01 DOI: 10.14475/jhpc.2023.26.3.145
Yoojin Lim
{"title":"Dignity and Dignity Therapy in End-of-Life Care.","authors":"Yoojin Lim","doi":"10.14475/jhpc.2023.26.3.145","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.3.145","url":null,"abstract":"<p><p>Preserving dignity is a significant concern for individuals approaching the end of their lives, as they face an increasing number of conditions that can potentially compromise their dignity. This article discusses dignity therapy as one intervention method aimed at enhancing the psychological and spiritual well-being of patients with terminal illnesses. Dignity therapy is an empirically supported therapeutic intervention that interviews patients with nine questions about what is important to them and what they want to remember, culminating in the production of a document based on these conversations. This intervention serves as a valuable tool and framework, enabling clinical professionals to reflect on dignity. It also provides clinicians with a medium to connect with patients on a deeply human level.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 3","pages":"145-148"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/30/7f/jhpc-26-3-145.PMC10542991.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41174235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Application of Acceptance and Commitment Therapy (ACT) in Hospice and Palliative Care Settings. 接受和承诺疗法(ACT)在临终关怀和姑息治疗环境中的应用。
Journal of hospice and palliative care Pub Date : 2023-09-01 DOI: 10.14475/jhpc.2023.26.3.140
So-Young Park
{"title":"Application of Acceptance and Commitment Therapy (ACT) in Hospice and Palliative Care Settings.","authors":"So-Young Park","doi":"10.14475/jhpc.2023.26.3.140","DOIUrl":"10.14475/jhpc.2023.26.3.140","url":null,"abstract":"<p><p>Many terminally ill cancer patients grapple with a range of physical, psychological, and social challenges. Therefore, it is critical to offer effective psychological interventions to assist them in managing these issues and enhancing their quality of life. This brief communication provides a concise overview of acceptance and commitment therapy (ACT), along with empirical evidence of its application for patients, caregivers, and healthcare professionals in hospice and palliative care settings and an overview of future directions of ACT interventions in South Korea. ACT, a third-wave type of cognitive behavioral therapy, is a model of psychological flexibility that promotes personal growth and empowerment across all life areas. Currently, there is substantial evidence from overseas supporting the effectiveness of ACT on health-related outcomes among patients with various diseases, caregivers, and healthcare professionals. The necessity and significance of conducting ACT-based empirical research in hospice and palliative care settings in South Korea are discussed.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 3","pages":"140-144"},"PeriodicalIF":0.0,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/10/9a/jhpc-26-3-140.PMC10542994.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41167412","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Utilization of End-of-Life Care Rooms by Patients Who Died in a Single Hospice Unit at a National University Hospital in South Korea. 韩国国立大学医院单个临终关怀病房死亡患者使用临终关怀室的情况。
Journal of hospice and palliative care Pub Date : 2023-06-01 DOI: 10.14475/jhpc.2023.26.2.60
Gyu Lee Kim, Seung Hun Lee, Yun Jin Kim, Jeong Gyu Lee, Yu Hyeon Yi, Young Jin Tak, Young Jin Ra, Sang Yeoup Lee, Young Hye Cho, Eun Ju Park, Young In Lee, Jung In Choi, Sae Rom Lee, Ryuk Jun Kwon, Soo Min Son
{"title":"Utilization of End-of-Life Care Rooms by Patients Who Died in a Single Hospice Unit at a National University Hospital in South Korea.","authors":"Gyu Lee Kim,&nbsp;Seung Hun Lee,&nbsp;Yun Jin Kim,&nbsp;Jeong Gyu Lee,&nbsp;Yu Hyeon Yi,&nbsp;Young Jin Tak,&nbsp;Young Jin Ra,&nbsp;Sang Yeoup Lee,&nbsp;Young Hye Cho,&nbsp;Eun Ju Park,&nbsp;Young In Lee,&nbsp;Jung In Choi,&nbsp;Sae Rom Lee,&nbsp;Ryuk Jun Kwon,&nbsp;Soo Min Son","doi":"10.14475/jhpc.2023.26.2.60","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.2.60","url":null,"abstract":"<p><strong>Purpose: </strong>For the dignity of patients nearing the end of their lives, it is essential to provide end-of-life (EoL) care in a separate, dedicated space. This study investigated the utilization of specialized rooms for dying patients within a hospice unit.</p><p><strong>Methods: </strong>This retrospective study examined patients who died in a single hospice unit between January 1, 2017, and December 31, 2021. Utilizing medical records, we analyzed the circumstances surrounding death, the employment of specialized rooms for terminally ill patients, and the characteristics of those who received EoL care in a shared room.</p><p><strong>Results: </strong>During the 1,825-day survey period, deaths occurred on 632 days, and 799 patients died. Of these patients, 496 (62.1%) received EoL care in a dedicated room. The average duration of using this dedicated space was 1.08 days. Meanwhile, 188 patients (23.5%) died in a shared room. Logistic regression analysis revealed that a longer stay in the hospice unit was associated with a lower risk of receiving EoL care in a shared room (odds ratio [OR]=0.98, 95% confidence interval [CI] 0.97~0.99; P=0.002). Furthermore, a higher number of deaths on the day a patient died was associated with a greater risk of receiving EoL care in a shared room (OR=1.66, 95% CI 1.33~2.08; P<0.001).</p><p><strong>Conclusion: </strong>To ensure that more patients receive EoL care for an adequate duration in a private setting, additional research is necessary to increase the number of dedicated rooms and incorporate them into the hospice unit at an early stage.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 2","pages":"60-68"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/44/16/jhpc-26-2-60.PMC10519721.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41169591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Factors That Influence Attitudes toward Advance Directives among Female Cancer Patients. 癌症女性患者对先进指令态度的影响因素。
Journal of hospice and palliative care Pub Date : 2023-06-01 DOI: 10.14475/jhpc.2023.26.2.80
Aeri Kim, Kisook Kim
{"title":"Factors That Influence Attitudes toward Advance Directives among Female Cancer Patients.","authors":"Aeri Kim,&nbsp;Kisook Kim","doi":"10.14475/jhpc.2023.26.2.80","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.2.80","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to identify attitudes toward advance directives (ADs) among female cancer patients and factors related to ADs.</p><p><strong>Methods: </strong>The study was conducted at a university hospital in Seoul from September 19, 2020, to January 20, 2021. The participants were 153 patients diagnosed with gynecological cancer or breast cancer. Data were collected using questionnaires and included general characteristics, disease- and AD-related characteristics, knowledge and attitudes about ADs, and attitudes about dignified death. Data were analyzed using the t-test, analysis of variance, and multiple regression analysis.</p><p><strong>Results: </strong>Only 2% of the participants completed ADs. The mean score for attitudes toward ADs was 3.30, indicating a positive knowledge and attitude toward dignified death. The factors related to attitudes toward ADs were attitudes toward dignified death (β=0.25, P=0.001), experience discussing life-sustaining treatment (β=0.17, P=0.037), preferred time to have a consultation about ADs (β=0.19, P=0.046), intention to write ADs (β= 0.15, P=0.038), and Eastern Cooperative Oncology Group Performance Status (β=-0.37, P<0.001). The explanatory power of these variables for attitudes toward ADs was 38.5%.</p><p><strong>Conclusion: </strong>Overall, patients preferred to have a consultation about ADs when they were still active, mentally healthy, and able to make decisions. Education about ADs should be provided to patients on the first day of hospitalization for chemotherapy or while awaiting treatment in an outpatient setting so patients can write ADs and discuss them with family and friends.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 2","pages":"80-94"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/0f/f7/jhpc-26-2-80.PMC10519724.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41174989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Barriers to Effective Communication about Advance Care Planning and Palliative Care: A Qualitative Study. 关于预先护理计划和姑息治疗的有效沟通障碍:一项定性研究。
Journal of hospice and palliative care Pub Date : 2023-06-01 DOI: 10.14475/jhpc.2023.26.2.42
Hyosin Kim, Signe Peterson Flieger
{"title":"Barriers to Effective Communication about Advance Care Planning and Palliative Care: A Qualitative Study.","authors":"Hyosin Kim,&nbsp;Signe Peterson Flieger","doi":"10.14475/jhpc.2023.26.2.42","DOIUrl":"https://doi.org/10.14475/jhpc.2023.26.2.42","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this study was to identify barriers to effective conversations about advance care planning (ACP) and palliative care reported by health care and community-based service providers in Massachusetts, USA.</p><p><strong>Methods: </strong>This qualitative research analyzed open-ended responses to two survey questions, inquiring about perceived barriers to having conversations about ACP and palliative care with patients and consumers. Data were collected between November 2017 and June 2019 from nine organizations in Massachusetts, including health care provider organizations, health insurers, community-based organizations, and a nursing education institution. Two researchers reviewed and coded the responses and identified common themes inductively.</p><p><strong>Results: </strong>Across 142 responses, primary barriers to ACP included hesitation and lack of understanding and knowledge, discomfort and resistance among service providers, lack of staff knowledge, difficulties with follow-up, and differences in ACP policies across regions. Common barriers to palliative care were misconceptions about palliative care and lack of knowledge, service providers' lack of preparedness, and limited policy support and availability. Challenges relevant to both ACP and palliative care were fear and discomfort around serious illness discussions, lack of knowledge and awareness, discussions that occur too late, and cultural and language barriers.</p><p><strong>Conclusion: </strong>Health care practitioners and community-based professionals reported consumer-, service provider-, and system-level barriers to facilitating conversations about ACP and palliative care with patients experiencing serious illness. There is a need for more tools and support to strengthen service providers' ACP and palliative care competencies and to promote a structured approach to health care planning conversations.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"26 2","pages":"42-50"},"PeriodicalIF":0.0,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/6f/da/jhpc-26-2-42.PMC10519725.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41176056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
0
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
确定
请完成安全验证×
相关产品
×
本文献相关产品
联系我们:info@booksci.cn Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。 Copyright © 2023 布克学术 All rights reserved.
京ICP备2023020795号-1
ghs 京公网安备 11010802042870号
Book学术文献互助
Book学术文献互助群
群 号:604180095
Book学术官方微信