Journal of hospice and palliative care最新文献_第2页

The Use of Baclofen to Control Vertical Nystagmus in a Patient with Advanced Glioma: A Case Report. 使用巴氯芬控制胶质瘤晚期患者的垂直性眼球震颤：病例报告。

Journal of hospice and palliative care Pub Date : 2024-12-01 DOI: 10.14475/jhpc.2024.27.4.177

Luma Alfraihat, Sami Ayed Alshammary, Hassan Yousef Alghar

引用次数: 0

End-of-life Care, Comfort Care, and Hospice: Terms and Concepts. 临终关怀、舒适护理和安宁疗护：术语和概念。

Journal of hospice and palliative care Pub Date : 2024-12-01 DOI: 10.14475/jhpc.2024.27.4.162

Hyeon Ju Kim, Jung-Sik Huh

{"title":"End-of-life Care, Comfort Care, and Hospice: Terms and Concepts.","authors":"Hyeon Ju Kim, Jung-Sik Huh","doi":"10.14475/jhpc.2024.27.4.162","DOIUrl":"10.14475/jhpc.2024.27.4.162","url":null,"abstract":"Purpose: This study aims to clarify and standardize the terms and concepts associated with end-of-life care, specifically within the contexts of hospice and palliative care.Methods: We reviewed references pertaining to hospice and palliative care, including definitions of end-of-life care and comfort care. Two meetings were held with members of the medical terminology committee of the Korean Society for Hospice and Palliative Care, along with experts in the field, to establish a consensus on the terms used. In the first round, six experts participated, and in the second round, eight experts engaged in online meetings to brainstorm, exchange opinions, and review and discuss reference materials concerning terms related to hospice and palliative care.Results: Legal definitions do not always align with those used in clinical medical settings. Although it is challenging to define the period precisely, end-of-life care encompasses all diseases, including age-related infirmities, typically spanning 6 months to 1 year. Hospice care, in contrast, includes certain non-cancerous terminal diseases as well as terminal cancer, covering a period of 3 to 6 months. Comfort care generally refers to the care provided approximately 7 days before death.Conclusion: A conceptual understanding of terms related to end-of-life care must be reached through cultural and social consensus. Furthermore, end-of-life care should not be limited to cancer but extended to all diseases. In the future, the scope of end-of-life care should expand to encompass care for bereaved families, evolving into a more comprehensive concept of comfort care.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 4","pages":"162-166"},"PeriodicalIF":0.0,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11646819/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142847809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Content Analysis of Online Resources Regarding Needs for Advance Care Planning. 有关预先护理规划需求的在线资源内容分析。

Journal of hospice and palliative care Pub Date : 2024-09-01 DOI: 10.14475/jhpc.2024.27.3.87

Minju Kim, Jieun Lee

{"title":"Content Analysis of Online Resources Regarding Needs for Advance Care Planning.","authors":"Minju Kim, Jieun Lee","doi":"10.14475/jhpc.2024.27.3.87","DOIUrl":"https://doi.org/10.14475/jhpc.2024.27.3.87","url":null,"abstract":"Purpose: This study aimed to investigate advance care planning needs expressed online.Methods: This study collected data from online community posts and healthcare news sites. The search keywords included \"death,\" \"euthanasia,\" \"life-sustaining medical care,\" \"life-sustaining treatment,\" \"advance directives,\" \"advance medical directives,\" and \"advance care planning.\" Data collection spanned from February 2018 to February 14, 2020. Out of 2,288 posts, 1,190 were included in the final analysis. Data analysis was conducted using NVivo 12, a qualitative data analysis software program.Results: Content analysis categorized patients' advance care planning needs into eight themes, 11 theme clusters, and 33 meaningful statements. Similarly, care providers' advance care planning needs were categorized into eight themes, 14 theme clusters, and 42 meaningful statements. The identified themes of care needs included life-sustaining medical care, decision-making related to life-sustaining medical care, physical care, environmental care, supportive and spiritual care, respect, preparing for death, and family.Conclusion: This study identified care needs from the perspectives of patients and their families. The findings may serve as preliminary data for future research and clinical applications.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 3","pages":"87-98"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11387510/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302639","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Phased Plan for the Expansion of Hospice and Palliative Care. 扩大临终关怀和姑息治疗的分阶段计划。

Journal of hospice and palliative care Pub Date : 2024-09-01 DOI: 10.14475/jhpc.2024.27.3.103

So Young Park

{"title":"A Phased Plan for the Expansion of Hospice and Palliative Care.","authors":"So Young Park","doi":"10.14475/jhpc.2024.27.3.103","DOIUrl":"https://doi.org/10.14475/jhpc.2024.27.3.103","url":null,"abstract":"Palliative care is a comprehensive approach aimed at improving the quality of life for patients and their families. The symptom burden and care needs of patients with end-stage, non-malignant diseases are similar to those experienced by patients with advanced cancer. Therefore, the World Health Organization (WHO) has recommended the expansion of palliative care to encompass a broad spectrum of diseases. However, in Korea, the adoption of palliative care for non-malignant conditions remains markedly low, presenting numerous challenges that differ from those associated with cancer. Key barriers to implementing hospice care for non-malignant diseases include the difficulty in predicting end-of-life and a general lack of awareness about hospice palliative care among healthcare providers, patients, and their families. Additionally, there is a risk that suggesting palliative care to patients with non-malignant diseases might be misinterpreted as an endorsement by healthcare providers to cease treatment or abandon the patient. This article explores strategies to broaden the scope of hospice and palliative care for patients with non-malignant diseases.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 3","pages":"103-106"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11387512/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302638","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ethical and Practical Issues with the Use of Antimicrobial Agents during the End of Life. 生命末期使用抗菌药物的伦理和实践问题。

Journal of hospice and palliative care Pub Date : 2024-09-01 DOI: 10.14475/jhpc.2024.27.3.99

Amlak Bantikassegn

引用次数: 0

Early Hospice Consultation Team Engagement for Cancer Pain Relief: A Case Report. 安宁疗护咨询团队早期参与癌症疼痛缓解：病例报告

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.77

Jisoo Jeong

引用次数: 0

Knowledge and Perceptions of the End of Life among Tunisian Medical and Paramedical Staff. 突尼斯医务人员和辅助医务人员对生命终结的认识和看法。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.64

Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama

{"title":"Knowledge and Perceptions of the End of Life among Tunisian Medical and Paramedical Staff.","authors":"Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama","doi":"10.14475/jhpc.2024.27.2.64","DOIUrl":"10.14475/jhpc.2024.27.2.64","url":null,"abstract":"Purpose: End-of-life (EOL) care is a vulnerable period in an individual's life. Healthcare professionals (HPs) strive to balance the preservation of human life with respect for the patient's wishes. The aims of our study were to assess HPs' knowledge and perceptions of EOL care and to propose areas of improvement to improve the quality of care.Methods: We conducted a single-center, cross-sectional study involving HPs from a university hospital who encountered EOL care situations. We used a questionnaire divided into four sections knowledge, practice, perception, and training. We calculated the rate of correct answers and the collective competence index.Results: Eighty-six questionnaires were analyzed, with 82.5% (71/86) completed by medical respondents and 17.5% (15/86) by paramedical respondents. Most of the respondents, 71.8% (51/71), were interns and residents. The study focused on palliative care, medical assistance in dying, aggressive medical treatment, and euthanasia, finding adequate knowledge in the first three areas. Respondents assigned to the intensive care unit and those with more than 8 years of experience had significantly higher correct answer rates than their counterparts. Seventy-five percent of respondents (65/86) reported feeling that they had little or no mastery of EOL care, primarily attributing this to insufficient training and the unavailability of trainers.Conclusion: Based on the findings of our study, which we believe to be the first of its kind in Tunisia, we can conclude that HPs possess an acceptable level of knowledge regarding EOL care. However, they require more exposure and training to develop expertise in this area.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"64-76"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163178/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Inpatient Hospice Care in Korea during the COVID-19 Pandemic: A Preliminary Study. COVID-19 大流行期间韩国的住院病人临终关怀：初步研究。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.82

Youn Seon Choi, Sun Wook Hwang, In Cheol Hwang

引用次数: 0

An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care. 儿科临终关怀与姑息治疗的演变概念分析。

Journal of hospice and palliative care Pub Date : 2024-06-01 DOI: 10.14475/jhpc.2024.27.2.51

Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha

{"title":"An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care.","authors":"Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha","doi":"10.14475/jhpc.2024.27.2.51","DOIUrl":"10.14475/jhpc.2024.27.2.51","url":null,"abstract":"Purpose: This study aimed to clarify the concept of pediatric hospice and palliative care through conceptual analysis. It also sought to identify the differences between related concepts such as pediatric death care and pediatric spiritual care, in order to provide foundational data for the development of nursing theory and knowledge.Methods: A conceptual analysis of pediatric hospice and palliative care was conducted using Rodgers' evolutionary method. Out of 5,013 papers identified, 28 were selected for detailed reading and analysis.Results: Pediatric hospice and palliative care encompasses physical, psychological, social, mental, spiritual, and family care for children with acute and chronic diseases with uncertain prognoses ahead of death, as well as their families. Effective pediatric hospice and palliative care will require multidisciplinary team nursing, effective communication, and supportive policies.Conclusion: The findings of this study suggest that providing pediatric hospice and palliative care will lead to improvements in pain relief for children and families, the efficiency of responses to death in children, and the quality of life for children and families. The significance of this study is that it clearly clarifies the concept by analyzing pediatric hospice and palliative care using an evolutionary method.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"51-63"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes toward Social Issues Related to Opioid Use among Palliative Care Physicians. 姑息治疗医生对阿片类药物使用相关社会问题的态度。

Journal of hospice and palliative care Pub Date : 2024-03-01 DOI: 10.14475/jhpc.2024.27.1.45

In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee

{"title":"Attitudes toward Social Issues Related to Opioid Use among Palliative Care Physicians.","authors":"In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee","doi":"10.14475/jhpc.2024.27.1.45","DOIUrl":"10.14475/jhpc.2024.27.1.45","url":null,"abstract":"Purpose: This study investigated palliative care physicians' attitudes regarding social issues related to opioid use.Methods: An email survey was sent to 674 physicians who were members of the Korean Society for Hospice and Palliative Care (KSHPC).Results: Data from 66 physicians were analyzed (response rate, 9.8%). About 70% of participants stated that their prescribing patterns were not influenced by social issues related to opioid use, and 90% of participants thought that additional regulations should be limited to non-cancer pain. Under the current circumstances, pain education for physicians is urgently needed, as well as increased awareness among the public. Half of the respondents identified the KSHPC as the primary organization responsible for providing pain education.Conclusion: Palliative care physicians' prescribing patterns were not influenced by social issues related to opioid use, and these issues also should not affect cancer pain control.","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"45-49"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911981/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0