Journal of applied research in intellectual disabilities : JARID最新文献_第3页

Use of dementia care mapping in the care for older people with intellectual disabilities: A mixed-method study. 痴呆护理制图在老年智障患者护理中的应用:一项混合方法研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-08-18 DOI: 10.1111/jar.12794

Feija D Schaap, Geke J Dijkstra, Sijmen A Reijneveld, Evelyn J Finnema

{"title":"Use of dementia care mapping in the care for older people with intellectual disabilities: A mixed-method study.","authors":"Feija D Schaap, Geke J Dijkstra, Sijmen A Reijneveld, Evelyn J Finnema","doi":"10.1111/jar.12794","DOIUrl":"https://doi.org/10.1111/jar.12794","url":null,"abstract":"Background: The ageing of people with intellectual disabilities, with associated morbidity like dementia, calls for new types of care. Person-centred methods may support care staff in providing this, an example being Dementia Care Mapping (DCM). DCM has been shown to be feasible in ID-care. We examined the experiences of ID-professionals in using DCM.Methods: We performed a mixed-methods study, using quantitative data from care staff (N = 136) and qualitative data (focus-groups, individual interviews) from care staff, group home managers and DCM-in-intellectual disabilities mappers (N = 53).Results: DCM provided new insights into the behaviours of clients, enabled professional reflection and gave new knowledge and skills regarding dementia and person-centred care. Appreciation of DCM further increased after the second cycle of application.Conclusion: DCM is perceived as valuable in ID-care. Further assessment is needed of its effectiveness in ID-care with respect to quality of care, staff-client interactions and job performance.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"149-163"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12794","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38287259","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Risk factors for falls among adults with intellectual disabilities: A narrative review. 智力残疾成人跌倒的危险因素:一项叙述性综述。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-17 DOI: 10.1111/jar.12805

John Pope, Maria Truesdale, Michael Brown

{"title":"Risk factors for falls among adults with intellectual disabilities: A narrative review.","authors":"John Pope, Maria Truesdale, Michael Brown","doi":"10.1111/jar.12805","DOIUrl":"https://doi.org/10.1111/jar.12805","url":null,"abstract":"Background: The prevalence of falls involving people with intellectual disabilities (ID) is high in comparison with the general population. There has been little evidence to date on the contributing risk factors. The objective of this review was to identify risk factors for people with intellectual disabilities.Method: Literature searches were conducted using electronic databases to explore evidence on the subject, and narrative synthesis was employed to analyse the results.Results: Seven risk factors were identified: decreasing physical ability, epilepsy, paretic conditions, impulsiveness, previous falls, incontinence and non-use of assistive equipment. Thematic analysis identified factors across the four concepts: the person, the situation, ongoing and protective factors.Conclusion: Factors for falls involving people with intellectual disabilities are dynamic and multifactorial. Some are specific to the population; however, further research is required to develop the understanding of the possible reasons. The findings have implications across policy, education, practice and research.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"274-285"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12805","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38395023","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study. 轻度智障人士在向全科医生寻求医疗帮助时会遇到什么困难?定性研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-13 DOI: 10.1111/jar.12796

Mariska Oosterveld-Vlug, Marloes Oldenkamp, Mathilde Mastebroek, Hennie Boeije

{"title":"What difficulties do people with mild intellectual disabilities experience when seeking medical help from their GP? A qualitative study.","authors":"Mariska Oosterveld-Vlug, Marloes Oldenkamp, Mathilde Mastebroek, Hennie Boeije","doi":"10.1111/jar.12796","DOIUrl":"https://doi.org/10.1111/jar.12796","url":null,"abstract":"Background: People with intellectual disabilities often have low health literacy as a result of their limited language comprehension. The aim of this study was to explore the difficulties Dutch people with intellectual disabilities experience during the process of considering and seeking medical help from their GP. The study was intended as input for an online intervention supporting health literacy.Methods: A qualitative study, in which 12 semi-structured interviews were conducted with people with mild intellectual disabilities and 4 with relatives of people with mild intellectual disabilities. The interviews were analysed following the principles of thematic analysis.Results: Difficulties were experienced in the following activities: assessing and proactively reacting to health complaints, processing health information, communicating with a GP and retaining information from the consultation. Support workers and relatives play an important role in all these activities.Conclusions: To increase the capacity of people with intellectual disabilities to manage their health and seek care from their GP, it is important to support them in the activities they find difficult. Recommendations resulting from the study have been incorporated in an online intervention.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"178-189"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12796","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38472661","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 7

"They just get it" an exploration of father's experiences and perceptions of a support group for men caring for children with disabilities and/or developmental delay. “他们只是得到它”的父亲的经验和看法的一个支持小组的男人照顾残疾和/或发育迟缓的孩子的探索。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-10-12 DOI: 10.1111/jar.12804

Molly Batchelor, Sabine Maguire, Julia Shearn

{"title":"\"They just get it\" an exploration of father's experiences and perceptions of a support group for men caring for children with disabilities and/or developmental delay.","authors":"Molly Batchelor, Sabine Maguire, Julia Shearn","doi":"10.1111/jar.12804","DOIUrl":"https://doi.org/10.1111/jar.12804","url":null,"abstract":"Background: Support groups available to parents/carers of children with a disability or developmental delay (DDD) are predominately attended by women. Limited data exists reporting experiences of the few male-only support groups. This paper examines experiences of fathers of children with DDD attending a male-only support group from South Wales.Method: All fifteen members from a support group for fathers/male carers of children with DDD were invited to take part in qualitative interviews and seven participated. The data were analysed following Braun and Clarke's (Qualitative research in psychology, 2006, 3:77) thematic framework.Results: Within the group, fathers felt understood by similarly situated men, and a sense of connectivity and belonging. Fathers perceived exclusion elsewhere, including mixed-gender groups. Fathers felt permission to talk in a way consistent with their male identities, and valued receiving, and giving, support.Conclusions: Mixed-gender support groups may not meet the needs of fathers, and there are potential benefits in providing male-only groups.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"263-273"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12804","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38483654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Bidirectional longitudinal associations of fatness with physical fitness in adolescents with Down syndrome. The UP&DOWN Longitudinal study. 唐氏综合症青少年肥胖与体质的双向纵向关联。纵向纵向研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-08-12 DOI: 10.1111/jar.12788

Rocío Izquierdo-Gomez, Irene Esteban-Cornejo, Veronica Cabanas-Sánchez, Ariel Villagra, Óscar L Veiga, David Martinez-Gómez

{"title":"Bidirectional longitudinal associations of fatness with physical fitness in adolescents with Down syndrome. The UP&DOWN Longitudinal study.","authors":"Rocío Izquierdo-Gomez, Irene Esteban-Cornejo, Veronica Cabanas-Sánchez, Ariel Villagra, Óscar L Veiga, David Martinez-Gómez","doi":"10.1111/jar.12788","DOIUrl":"https://doi.org/10.1111/jar.12788","url":null,"abstract":"Background: The aim of this study was to examine the bidirectional longitudinal associations of several markers of fatness and physical fitness in adolescents with Down syndrome.Methods: This study comprised a total of 111 adolescents (41 females), aged from 11 to 20 years with complete data at the baseline. We had a drop-out of <10% from the baseline to the 2-year follow-up. The ALPHA health-related fitness test battery for youth was used.Results: Our results show that all fatness variables at the baseline were associated with a 2-year change in cardiorespiratory fitness (β ranging from -0.32 to -0.38; all p < .05), but not with muscular and motor fitness (p > .05). However, no associations were found between physical fitness components as predictors and fatness indicators (p > .05).Conclusions: Results suggest that reducing fatness during adolescence might represent a modifiable factor to improve cardiorespiratory fitness at the 2-year follow-up, but not vice versa since associations were not bidirectional.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"90-98"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12788","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38265631","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Construct validity of the Actiwatch-2 for assessing movement in people with profound intellectual and multiple disabilities. Actiwatch-2用于评估重度智障及多重残障人士运动的建构效度。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-07-29 DOI: 10.1111/jar.12789

Helena J M van Alphen, Aly Waninge, Alexander E M G Minnaert, Wendy J Post, Annette A J van der Putten

{"title":"Construct validity of the Actiwatch-2 for assessing movement in people with profound intellectual and multiple disabilities.","authors":"Helena J M van Alphen, Aly Waninge, Alexander E M G Minnaert, Wendy J Post, Annette A J van der Putten","doi":"10.1111/jar.12789","DOIUrl":"https://doi.org/10.1111/jar.12789","url":null,"abstract":"Background: Valid measures to assess either small or assisted performed movements of people with profound intellectual and multiple disabilities (PIMD) are required. We analysed the construct validity of the Actiwatch-2 to assess movement in people with PIMD.Method: Twenty-two persons with PIMD were video recorded while wearing an Actiwatch-2. We used 15s-partial-interval recording to record upper body movement, body position and activity situation. Multilevel analyses were used to evaluate if the Actiwatch-2, based on produced counts, could detect changes in these factors.Results: The presence versus absence of upper body movement and an activity situation in which participants were involved versus not involved resulted in significantly higher counts, with a large variety in predicted counts between participants. No relationship between body position and counts was found.Conclusions: The Actiwatch-2 seems able to assess obvious upper body movement in people with PIMD, and whether there is involvement in an activity situation.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"99-110"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12789","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38204367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

Take it personal! Development and modelling study of an indicated prevention programme for substance use in adolescents and young adults with mild intellectual disabilities and borderline intellectual functioning. 亲力亲为！针对有轻度智力障碍和边缘智力功能的青少年和年轻成年人的药物使用的预防计划的开发和模型研究。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-29 DOI: 10.1111/jar.12808

Esmée P Schijven, Joanneke E L VanDerNagel, Roy Otten, Jeroen Lammers, Evelien A P Poelen

{"title":"Take it personal! Development and modelling study of an indicated prevention programme for substance use in adolescents and young adults with mild intellectual disabilities and borderline intellectual functioning.","authors":"Esmée P Schijven, Joanneke E L VanDerNagel, Roy Otten, Jeroen Lammers, Evelien A P Poelen","doi":"10.1111/jar.12808","DOIUrl":"10.1111/jar.12808","url":null,"abstract":"Background: This paper describes the theory and development of Take it personal! an indicated prevention programme aimed at reducing substance use in individuals with mild intellectual disabilities and borderline intellectual functioning.Method: The process of the development of Take it personal! followed the steps of the Intervention Mapping protocol. Take it personal! is based on the theory that personality traits are an important construct to understand substance use (14-30 years old). A small modelling study was conducted with six adolescents to examine the feasibility, user-friendliness and potential effectiveness of the intervention.Results: The results showed that the intervention has good feasibility and user-friendliness. Post-intervention evaluation of frequency, binge drinking and problematic use indicated that use was lower than at pre-intervention.Conclusions: Take it Personal! can be a promising preventive intervention designed to reduce substance use in individuals in this target group. A larger scale study is needed to draw further conclusions.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"307-315"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7820965/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38431371","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mealtime support for adults with intellectual disabilities: Understanding an everyday activity. 对智障成人的用餐时间支持:了解日常活动。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-16 DOI: 10.1111/jar.12790

Marcus Redley

{"title":"Mealtime support for adults with intellectual disabilities: Understanding an everyday activity.","authors":"Marcus Redley","doi":"10.1111/jar.12790","DOIUrl":"https://doi.org/10.1111/jar.12790","url":null,"abstract":"Background: Mealtime support has a direct bearing on the diet-related health of men and women with intellectual disabilities as well as opportunities for expressing dietary preferences.Method: Semi-structured interviews with a sample of direct support staff providing mealtime support to adults with intellectual disabilities.Results: When managing tensions between a person's dietary preferences and ensuring safe and adequate nutrition and hydration, direct support staff are sensitive to a wide range of factors. These include the following: clinical advice; service users' rights to choose; their (in)capacity to weigh up risks; how service users communicate; the constituents of a healthy diet; and a duty to protect service users' health.Conclusions: Those responsible for setting standards and regulating the care practices need to look beyond too simple ideas of choice and safety to recognize ways in which providing support at mealtimes is a complex activity with serious consequences for people's health and well-being.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"111-117"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12790","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38388314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study. 有智力残疾和无智力残疾的成年人中健康问题流行率的比较:一项全面的行政人口研究

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-07-31 DOI: 10.1111/jar.12785

Martin McMahon, Chris Hatton

{"title":"A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study.","authors":"Martin McMahon, Chris Hatton","doi":"10.1111/jar.12785","DOIUrl":"https://doi.org/10.1111/jar.12785","url":null,"abstract":"Introduction: There is considerable international research indicating health disparities between people with and without intellectual disabilities. It is important that comparative studies use representative population samples. This study compares a total administrative population of adults with intellectual disability to a random stratified general population sample.Methods: An administrative population of 217 adults with intellectual disability and a random stratified sample of 2,350 adults without intellectual disability participated. A questionnaire using the International Classification of Diseases (ICD-10) Chapter Headings was administered to all participants to enable a like-for-like comparison.Findings: Unadjusted comparisons identified that adults with intellectual disability have a greater prevalence of health problems. These problems start early in adulthood and continue throughout life. However, they were less likely to experience cancers and musculoskeletal diseases.Conclusions: These findings are consistent with the hypothesis that adults with intellectual disabilities have greater prevalence rates of health problems than the general population.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"316-325"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12785","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38221078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 27

Robot-mediated therapy to reduce worrying in persons with visual and intellectual disabilities. 以机器人为媒介的治疗，减少视力和智力残疾人的担忧。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-22 DOI: 10.1111/jar.12801

Evelien van Wingerden, Emilia Barakova, Tino Lourens, Paula S Sterkenburg

{"title":"Robot-mediated therapy to reduce worrying in persons with visual and intellectual disabilities.","authors":"Evelien van Wingerden, Emilia Barakova, Tino Lourens, Paula S Sterkenburg","doi":"10.1111/jar.12801","DOIUrl":"10.1111/jar.12801","url":null,"abstract":"Background: The study explored the use of a robot-mediated therapeutic intervention in persons with visual and intellectual disabilities.Method: Three robot-mediated intervention sessions were developed to teach three coping skills for worrying. Effectiveness was examined using a multiple-baseline case study design (N = 7). Baseline, pre-intervention and post-intervention assessments included social validity, severity of worrying (PSWQ-C-NL), and observations by caregivers (SDQ). Short checklists on worrying were repeated throughout baseline and intervention stages. Transcripts of the sessions were analysed for participants' emotional openness.Results: Social validity was equally high before and after the intervention. The intervention did not impact the severity of worrying, although mentor caregivers reported a lower impact of personal difficulties for participants. We found no change in self-disclosure towards the robot over sessions.Conclusions: The participants' positive responses warrant further exploration of using robot-mediated therapy for persons with visual and intellectual disabilities. Recommendations for additional adaptations are discussed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"229-238"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/50/76/JAR-34-229.PMC7821017.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38405873","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0