Journal of applied research in intellectual disabilities : JARID最新文献_第4页

Mealtime support for adults with intellectual disabilities: Understanding an everyday activity. 对智障成人的用餐时间支持:了解日常活动。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-16 DOI: 10.1111/jar.12790

Marcus Redley

{"title":"Mealtime support for adults with intellectual disabilities: Understanding an everyday activity.","authors":"Marcus Redley","doi":"10.1111/jar.12790","DOIUrl":"https://doi.org/10.1111/jar.12790","url":null,"abstract":"Background: Mealtime support has a direct bearing on the diet-related health of men and women with intellectual disabilities as well as opportunities for expressing dietary preferences.Method: Semi-structured interviews with a sample of direct support staff providing mealtime support to adults with intellectual disabilities.Results: When managing tensions between a person's dietary preferences and ensuring safe and adequate nutrition and hydration, direct support staff are sensitive to a wide range of factors. These include the following: clinical advice; service users' rights to choose; their (in)capacity to weigh up risks; how service users communicate; the constituents of a healthy diet; and a duty to protect service users' health.Conclusions: Those responsible for setting standards and regulating the care practices need to look beyond too simple ideas of choice and safety to recognize ways in which providing support at mealtimes is a complex activity with serious consequences for people's health and well-being.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"111-117"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12790","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38388314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study. 有智力残疾和无智力残疾的成年人中健康问题流行率的比较:一项全面的行政人口研究

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-07-31 DOI: 10.1111/jar.12785

Martin McMahon, Chris Hatton

{"title":"A comparison of the prevalence of health problems among adults with and without intellectual disability: A total administrative population study.","authors":"Martin McMahon, Chris Hatton","doi":"10.1111/jar.12785","DOIUrl":"https://doi.org/10.1111/jar.12785","url":null,"abstract":"Introduction: There is considerable international research indicating health disparities between people with and without intellectual disabilities. It is important that comparative studies use representative population samples. This study compares a total administrative population of adults with intellectual disability to a random stratified general population sample.Methods: An administrative population of 217 adults with intellectual disability and a random stratified sample of 2,350 adults without intellectual disability participated. A questionnaire using the International Classification of Diseases (ICD-10) Chapter Headings was administered to all participants to enable a like-for-like comparison.Findings: Unadjusted comparisons identified that adults with intellectual disability have a greater prevalence of health problems. These problems start early in adulthood and continue throughout life. However, they were less likely to experience cancers and musculoskeletal diseases.Conclusions: These findings are consistent with the hypothesis that adults with intellectual disabilities have greater prevalence rates of health problems than the general population.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"316-325"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12785","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38221078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 27

Robot-mediated therapy to reduce worrying in persons with visual and intellectual disabilities. 以机器人为媒介的治疗，减少视力和智力残疾人的担忧。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-09-22 DOI: 10.1111/jar.12801

Evelien van Wingerden, Emilia Barakova, Tino Lourens, Paula S Sterkenburg

{"title":"Robot-mediated therapy to reduce worrying in persons with visual and intellectual disabilities.","authors":"Evelien van Wingerden, Emilia Barakova, Tino Lourens, Paula S Sterkenburg","doi":"10.1111/jar.12801","DOIUrl":"10.1111/jar.12801","url":null,"abstract":"Background: The study explored the use of a robot-mediated therapeutic intervention in persons with visual and intellectual disabilities.Method: Three robot-mediated intervention sessions were developed to teach three coping skills for worrying. Effectiveness was examined using a multiple-baseline case study design (N = 7). Baseline, pre-intervention and post-intervention assessments included social validity, severity of worrying (PSWQ-C-NL), and observations by caregivers (SDQ). Short checklists on worrying were repeated throughout baseline and intervention stages. Transcripts of the sessions were analysed for participants' emotional openness.Results: Social validity was equally high before and after the intervention. The intervention did not impact the severity of worrying, although mentor caregivers reported a lower impact of personal difficulties for participants. We found no change in self-disclosure towards the robot over sessions.Conclusions: The participants' positive responses warrant further exploration of using robot-mediated therapy for persons with visual and intellectual disabilities. Recommendations for additional adaptations are discussed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"229-238"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/50/76/JAR-34-229.PMC7821017.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38405873","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset. 肯特综合数据集中学习障碍健康检查和急诊住院的关联数据分析。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-10-04 DOI: 10.1111/jar.12799

Zara Cuccu, Tom Bourne, Gerrard Abi-Aad, Samantha Bennett

{"title":"Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset.","authors":"Zara Cuccu, Tom Bourne, Gerrard Abi-Aad, Samantha Bennett","doi":"10.1111/jar.12799","DOIUrl":"https://doi.org/10.1111/jar.12799","url":null,"abstract":"Background: People with learning disabilities have higher rates of admitted patient care than the general population. This study explored emergency hospital admissions during 2018/19 in association with learning disability health check recording in general practice within the Kent Integrated Dataset during 2016/17 to 2018/19.Methods: Multiple logistic regression evaluated the odds of emergency hospital admission by sex, age, deprivation, residence, risk score, long-term conditions, severe health needs and health check. During 2018/19, one or more emergency hospital admissions were recorded for 10.9% of the 5,759 persons recorded with learning disability.Results: There were lower odds of emergency hospital admission in persons having had learning disability health check in the past 3 years even after adjustment.Conclusions: Comparison to nationally representative research suggests a consistent finding of benefit from learning disability health check on indicators of unplanned care use, supporting the view that learning disability health checks facilitate the addressing of key health needs.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"211-217"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12799","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38551447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 4

Family network typologies of adults with intellectual disability: Associations with psychological outcomes. 智障成人的家庭网络类型：与心理结果的关联。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-07-25 DOI: 10.1111/jar.12786

Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Ad A Vermulst, Petri J C M Embregts

{"title":"Family network typologies of adults with intellectual disability: Associations with psychological outcomes.","authors":"Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Ad A Vermulst, Petri J C M Embregts","doi":"10.1111/jar.12786","DOIUrl":"10.1111/jar.12786","url":null,"abstract":"Background: Based on self-reported social capital, different typologies of family networks of people with intellectual disabilities were examined. Associations between behavioural and emotional problems or well-being and typologies were investigated.Method: 137 participants with mild intellectual disability were interviewed using the Family Network Method-Intellectual Disability to assess their emotionally supportive family relationships. Data on participants' well-being and behavioural and emotional problems were also gathered. Latent class analysis was used to identify family typologies based on social network measures.Results: Four distinguishable typologies were identified, two supportive and two less supportive. A small association was found with behavioural and emotional problems and one of the supportive typologies. Associations with constructs of well-being were found for both supportive and less supportive typologies.Conclusions: A variety of family types were found, with implications for sensitive professional support.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"65-76"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7818276/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38200004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Obesity in youth and adults with intellectual disability in Europe and Eurasia. 欧洲和欧亚地区智力残疾青年和成人的肥胖问题。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2020-03-01 DOI: 10.1111/jar.12667

Molly Sadowsky, R. McConkey, A. Shellard

引用次数: 5

Causal attribution and coping with parental dominance and deprecation in youth with mild intellectual disability. 轻度智障青少年的因果归因与应对父母支配和贬低。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2019-11-17 DOI: 10.1111/jar.12685

P. Kurtek

{"title":"Causal attribution and coping with parental dominance and deprecation in youth with mild intellectual disability.","authors":"P. Kurtek","doi":"10.1111/jar.12685","DOIUrl":"https://doi.org/10.1111/jar.12685","url":null,"abstract":"Although interactions among parents and Youth with Mild Intellectual Disability (MID) may be stressful at times, most studies focus on the effects of stressful interactions on the parents. This study considers the Youth's perspective - particularly their beliefs about the reason for the parent's actions as well as how they would respond in the situation. The RA-PD test (American Psychologist, 28, 2015, 107) was administered to 151 transition age youth with MID in Poland. The test includes vignettes that describe common situations in which the parent engages in Domination or Deprecation. The participants coping responses, based on a multi-axial approach developed by Hobfoll (Stress, culture, and community. The psychology and philosophy of stress, 1998, Springer, New York, NY), and attributions toward the parental figure in the scenarios, based on Kelley (American Psychologist, 28, 2015, 107), were coded by judges. Correlations between causal attribution and coping response showed a consistent pattern where positive attributions were associated with prosocial coping and negative attributions were significantly related to antisocial coping. The implications for improving coping, especially for Youth with aggressive and passive tendencies, are discussed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86393695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Relationship Between Intelligence Quotient and Aspects of Everyday Functioning and Participation for People Who Have Mild and Borderline Intellectual Disabilities. 轻度和边缘性智障人士的智商与日常功能和参与的关系。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2018-01-01 DOI: 10.1111/jar.12314

P. Arvidsson, M. Granlund

{"title":"The Relationship Between Intelligence Quotient and Aspects of Everyday Functioning and Participation for People Who Have Mild and Borderline Intellectual Disabilities.","authors":"P. Arvidsson, M. Granlund","doi":"10.1111/jar.12314","DOIUrl":"https://doi.org/10.1111/jar.12314","url":null,"abstract":"BACKGROUND This study explored the relationship between intelligence quotient (IQ) and aspects of everyday functioning/participation in individuals (age 16-40) who have a mild/borderline intellectual disability (IQ 55-85). METHOD Correlations were examined between IQ and (i) self-rated (n = 72) ability, participation as performance (how often an activity is performed), important participation restriction (not/seldom performing an activity perceived as important) and general well-being and (ii) proxy-rated (n = 41) ability and participation as performance. RESULTS No significant correlations between IQ and any of the explored measures were found. However, the effect sizes of the correlations between IQ and ability were considered as small but not negligible. CONCLUSIONS The results support the notion that IQ is a poor predictor of general aspects of everyday functioning in persons with mild/borderline intellectual disability. The result indicates that self-ratings partly generate other information than proxy ratings which may be important for assessments of supportive requirements and diagnosis.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"2619 1","pages":"e68-e78"},"PeriodicalIF":0.0,"publicationDate":"2018-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86587644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 6

Establishing core mental health workforce attributes for the effective mental health care of people with an intellectual disability and co-occurring mental ill health. 建立精神卫生工作人员的核心属性，以便对智力残疾和并存的精神疾病患者进行有效的精神卫生保健。

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-12-01 Epub Date: 2017-09-05 DOI: 10.1111/jar.12407

Janelle Weise, Karen R Fisher, Julian N Trollor

{"title":"Establishing core mental health workforce attributes for the effective mental health care of people with an intellectual disability and co-occurring mental ill health.","authors":"Janelle Weise, Karen R Fisher, Julian N Trollor","doi":"10.1111/jar.12407","DOIUrl":"https://doi.org/10.1111/jar.12407","url":null,"abstract":"Background: People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes.Methods: Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce. At the end of each Delphi round, descriptive analyses and thematic analyses were completed.Results: Consensus was reached among the participants for 102 attributes across 14 clinical domains. The results highlighted specific attributes in all areas of clinical practice, especially for communication (e.g., utilizes assistive communication technology), assessment (e.g., assess contributing factors to behaviours) and intervention (e.g., uses integrative interventions).Conclusion: A comprehensive strategy is required to facilitate the generalist mental health workforce to obtain these attributes.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"22-33"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12407","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35328844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 18

Lifestyle factors and Alzheimer's disease in people with Down syndrome. 唐氏综合症患者的生活方式因素与阿尔茨海默病

Journal of applied research in intellectual disabilities : JARID Pub Date : 2017-12-01 Epub Date: 2017-07-30 DOI: 10.1111/jar.12369

Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens

{"title":"Lifestyle factors and Alzheimer's disease in people with Down syndrome.","authors":"Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens","doi":"10.1111/jar.12369","DOIUrl":"https://doi.org/10.1111/jar.12369","url":null,"abstract":"Background: Lifestyle has previously been associated with the onset of Alzheimer's disease (AD) in the typically developing population, but research investigating this association in Down syndrome (DS) is limited.Method: Adults with DS and AD (n = 27) were compared to adults with DS without AD (n = 30) on physical activity, diet, weight, where participants currently lived, where participants had lived for the majority of their lives, educational attainment, occupational attainment and cognitive activity.Results: There was a significant difference between samples on where participants currently lived, with the majority of the clinical sample living in institutionalized settings and the majority of the control sample living in independent/supported living settings. This may reflect a tendency to move people once they start to deteriorate which, if correct, is contrary to clinical recommendations that people with AD should be supported to \"die in place.\"Conclusions: Further research into the way in which lifestyle factors, particularly living environment, could contribute to the increased risk of AD in adults with DS is required. This may support interventions aimed at preventing or delaying the onset of the disease.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"58-66"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12369","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35366181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2