Zara Cuccu, Tom Bourne, Gerrard Abi-Aad, Samantha Bennett
{"title":"Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset.","authors":"Zara Cuccu, Tom Bourne, Gerrard Abi-Aad, Samantha Bennett","doi":"10.1111/jar.12799","DOIUrl":"https://doi.org/10.1111/jar.12799","url":null,"abstract":"<p><strong>Background: </strong>People with learning disabilities have higher rates of admitted patient care than the general population. This study explored emergency hospital admissions during 2018/19 in association with learning disability health check recording in general practice within the Kent Integrated Dataset during 2016/17 to 2018/19.</p><p><strong>Methods: </strong>Multiple logistic regression evaluated the odds of emergency hospital admission by sex, age, deprivation, residence, risk score, long-term conditions, severe health needs and health check. During 2018/19, one or more emergency hospital admissions were recorded for 10.9% of the 5,759 persons recorded with learning disability.</p><p><strong>Results: </strong>There were lower odds of emergency hospital admission in persons having had learning disability health check in the past 3 years even after adjustment.</p><p><strong>Conclusions: </strong>Comparison to nationally representative research suggests a consistent finding of benefit from learning disability health check on indicators of unplanned care use, supporting the view that learning disability health checks facilitate the addressing of key health needs.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"211-217"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12799","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38551447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Ad A Vermulst, Petri J C M Embregts
{"title":"Family network typologies of adults with intellectual disability: Associations with psychological outcomes.","authors":"Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Ad A Vermulst, Petri J C M Embregts","doi":"10.1111/jar.12786","DOIUrl":"10.1111/jar.12786","url":null,"abstract":"<p><strong>Background: </strong>Based on self-reported social capital, different typologies of family networks of people with intellectual disabilities were examined. Associations between behavioural and emotional problems or well-being and typologies were investigated.</p><p><strong>Method: </strong>137 participants with mild intellectual disability were interviewed using the Family Network Method-Intellectual Disability to assess their emotionally supportive family relationships. Data on participants' well-being and behavioural and emotional problems were also gathered. Latent class analysis was used to identify family typologies based on social network measures.</p><p><strong>Results: </strong>Four distinguishable typologies were identified, two supportive and two less supportive. A small association was found with behavioural and emotional problems and one of the supportive typologies. Associations with constructs of well-being were found for both supportive and less supportive typologies.</p><p><strong>Conclusions: </strong>A variety of family types were found, with implications for sensitive professional support.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"65-76"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7818276/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38200004","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Obesity in youth and adults with intellectual disability in Europe and Eurasia.","authors":"Molly Sadowsky, R. McConkey, A. Shellard","doi":"10.1111/jar.12667","DOIUrl":"https://doi.org/10.1111/jar.12667","url":null,"abstract":"BACKGROUND\u0000Information about obesity among people with intellectual disability comes mostly from small-scale, national samples in high-income countries. There are limited data from transnational studies.\u0000\u0000\u0000METHOD\u0000BMI scores had been obtained for over 25,000 youth and adults with intellectual disabilities drawn from 60 European and Eurasian countries. Their height and weight had been measured using standardized procedures when they attended Special Olympics Healthy Athletes events.\u0000\u0000\u0000RESULTS\u0000Binary logistic regression identified higher levels of obesity for athletes living in high-income countries, and for adult females, for those aged 30 years and over, and also for youth aged 8-13 years.\u0000\u0000\u0000CONCLUSIONS\u0000Participation in sports does not appear to have protected these athletes from obesity. Arguably, this remains the most pressing health issue for people with intellectual disability, particularly in Western Europe.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"8 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"87519861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Causal attribution and coping with parental dominance and deprecation in youth with mild intellectual disability.","authors":"P. Kurtek","doi":"10.1111/jar.12685","DOIUrl":"https://doi.org/10.1111/jar.12685","url":null,"abstract":"Although interactions among parents and Youth with Mild Intellectual Disability (MID) may be stressful at times, most studies focus on the effects of stressful interactions on the parents. This study considers the Youth's perspective - particularly their beliefs about the reason for the parent's actions as well as how they would respond in the situation. The RA-PD test (American Psychologist, 28, 2015, 107) was administered to 151 transition age youth with MID in Poland. The test includes vignettes that describe common situations in which the parent engages in Domination or Deprecation. The participants coping responses, based on a multi-axial approach developed by Hobfoll (Stress, culture, and community. The psychology and philosophy of stress, 1998, Springer, New York, NY), and attributions toward the parental figure in the scenarios, based on Kelley (American Psychologist, 28, 2015, 107), were coded by judges. Correlations between causal attribution and coping response showed a consistent pattern where positive attributions were associated with prosocial coping and negative attributions were significantly related to antisocial coping. The implications for improving coping, especially for Youth with aggressive and passive tendencies, are discussed.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2019-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86393695","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Relationship Between Intelligence Quotient and Aspects of Everyday Functioning and Participation for People Who Have Mild and Borderline Intellectual Disabilities.","authors":"P. Arvidsson, M. Granlund","doi":"10.1111/jar.12314","DOIUrl":"https://doi.org/10.1111/jar.12314","url":null,"abstract":"BACKGROUND This study explored the relationship between intelligence quotient (IQ) and aspects of everyday functioning/participation in individuals (age 16-40) who have a mild/borderline intellectual disability (IQ 55-85). METHOD Correlations were examined between IQ and (i) self-rated (n = 72) ability, participation as performance (how often an activity is performed), important participation restriction (not/seldom performing an activity perceived as important) and general well-being and (ii) proxy-rated (n = 41) ability and participation as performance. RESULTS No significant correlations between IQ and any of the explored measures were found. However, the effect sizes of the correlations between IQ and ability were considered as small but not negligible. CONCLUSIONS The results support the notion that IQ is a poor predictor of general aspects of everyday functioning in persons with mild/borderline intellectual disability. The result indicates that self-ratings partly generate other information than proxy ratings which may be important for assessments of supportive requirements and diagnosis.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"2619 1","pages":"e68-e78"},"PeriodicalIF":0.0,"publicationDate":"2018-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"86587644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Establishing core mental health workforce attributes for the effective mental health care of people with an intellectual disability and co-occurring mental ill health.","authors":"Janelle Weise, Karen R Fisher, Julian N Trollor","doi":"10.1111/jar.12407","DOIUrl":"https://doi.org/10.1111/jar.12407","url":null,"abstract":"<p><strong>Background: </strong>People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes.</p><p><strong>Methods: </strong>Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce. At the end of each Delphi round, descriptive analyses and thematic analyses were completed.</p><p><strong>Results: </strong>Consensus was reached among the participants for 102 attributes across 14 clinical domains. The results highlighted specific attributes in all areas of clinical practice, especially for communication (e.g., utilizes assistive communication technology), assessment (e.g., assess contributing factors to behaviours) and intervention (e.g., uses integrative interventions).</p><p><strong>Conclusion: </strong>A comprehensive strategy is required to facilitate the generalist mental health workforce to obtain these attributes.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"22-33"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12407","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35328844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens
{"title":"Lifestyle factors and Alzheimer's disease in people with Down syndrome.","authors":"Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens","doi":"10.1111/jar.12369","DOIUrl":"https://doi.org/10.1111/jar.12369","url":null,"abstract":"<p><strong>Background: </strong>Lifestyle has previously been associated with the onset of Alzheimer's disease (AD) in the typically developing population, but research investigating this association in Down syndrome (DS) is limited.</p><p><strong>Method: </strong>Adults with DS and AD (n = 27) were compared to adults with DS without AD (n = 30) on physical activity, diet, weight, where participants currently lived, where participants had lived for the majority of their lives, educational attainment, occupational attainment and cognitive activity.</p><p><strong>Results: </strong>There was a significant difference between samples on where participants currently lived, with the majority of the clinical sample living in institutionalized settings and the majority of the control sample living in independent/supported living settings. This may reflect a tendency to move people once they start to deteriorate which, if correct, is contrary to clinical recommendations that people with AD should be supported to \"die in place.\"</p><p><strong>Conclusions: </strong>Further research into the way in which lifestyle factors, particularly living environment, could contribute to the increased risk of AD in adults with DS is required. This may support interventions aimed at preventing or delaying the onset of the disease.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"58-66"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12369","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35366181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bettina Kuske, Christian Wolff, Uwe Gövert, Sandra Verena Müller
{"title":"Early detection of dementia in people with an intellectual disability - A German pilot study.","authors":"Bettina Kuske, Christian Wolff, Uwe Gövert, Sandra Verena Müller","doi":"10.1111/jar.12347","DOIUrl":"https://doi.org/10.1111/jar.12347","url":null,"abstract":"<p><strong>Background: </strong>This study investigated the application of a newly developed neuropsychological assessment, the Wolfenbütteler Dementia Test for Individuals with Intellectual Disabilities (WDTIM) in combination with the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID).</p><p><strong>Methods: </strong>The instruments were evaluated in a prospective 2-year follow-up study. A total of 102 people with an intellectual disability were assessed at 6-month intervals. Data were analysed using qualitative and statistical analyses.</p><p><strong>Results: </strong>Four groups of individuals emerged from the analysis: (1) confirmed suspicion, (2) no suspicion, (3) questionable suspicion and (4) early suspicion. Significant differences were found between groups 1 and 2. The WDTIM could be administered to 90%-100% of all participants exhibiting mild-to-moderate intellectual disability and to 50% with severe intellectual disability .</p><p><strong>Conclusions: </strong>The WDTIM was shown to have good applicability to people with mild-to-moderate intellectual disability and to be appropriate for detecting cognitive changes. Using the two instruments in combination achieved greater accuracy in reinforcing a dementia suspicion than did using the DSQIID alone.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"49-57"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12347","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34846485","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Development and evaluation of a manual for extended brief intervention for alcohol misuse for adults with mild to moderate intellectual disabilities living in the community: The EBI-LD study manual.","authors":"Christos Kouimtsidis, Katrina Scior, Gianluca Baio, Rachael Hunter, Vittoria Pezzoni, Angela Hassiotis","doi":"10.1111/jar.12409","DOIUrl":"https://doi.org/10.1111/jar.12409","url":null,"abstract":"<p><strong>Background: </strong>Extended brief interventions for alcohol misuse are effective in the general population. The process of manualising the first ever such intervention for people with mild to moderate intellectual disabilities in the UK is the focus of this study.</p><p><strong>Methods: </strong>The manual was an adaptation of existing manuals based on Motivational Enhancement and Cognitive Behaviour Therapy and was used in a feasibility randomized controlled trial, the EBI-LD study. The sessions were recorded and scored using an adapted version of the Yale Adherence and Competence Scale (YACS II). Feedback was provided by therapists. The trial is closed. Registered: isrctn.com; ISRCTN58783633.</p><p><strong>Results: </strong>The quality of the sessions provided was rated as good. Therapists were able to cover all topics within each session. Main challenges included session duration and homework task completion.</p><p><strong>Conclusions: </strong>We recommend the duration of the sessions to be extended to 40 min to accommodate carers in the session and to enhance their support in homework task completion.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"42-48"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12409","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35381651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liesbeth Mevissen, Robert Didden, Hubert Korzilius, Ad de Jongh
{"title":"Eye movement desensitisation and reprocessing therapy for posttraumatic stress disorder in a child and an adolescent with mild to borderline intellectual disability: A multiple baseline across subjects study.","authors":"Liesbeth Mevissen, Robert Didden, Hubert Korzilius, Ad de Jongh","doi":"10.1111/jar.12335","DOIUrl":"https://doi.org/10.1111/jar.12335","url":null,"abstract":"<p><strong>Background: </strong>This study explored the effectiveness of eye movement desensitisation and reprocessing (EMDR) therapy for post-traumatic stress disorder (PTSD) in persons with mild to borderline intellectual disability (MBID) using a multiple baseline across subjects design.</p><p><strong>Methods: </strong>One child and one adolescent with MBID, who met diagnostic criteria for PTSD according to a PTSD clinical interview (i.e., ADIS-C PTSD section), adapted and validated for this target group, were offered four sessions of EMDR. PTSD symptoms were measured before, during and after EMDR, and at six weeks follow-up.</p><p><strong>Results: </strong>For both participants, number of PTSD symptoms decreased in response to treatment and both no longer met PTSD criteria at post-treatment. This result was maintained at 6-week follow-up.</p><p><strong>Conclusions: </strong>The results of this study add further support to the notion that EMDR can be an effective treatment for PTSD in children and adolescents with MBID. Replication of this study in larger samples and using a randomized controlled design is warranted.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"34-41"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12335","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"34856968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}