Kim Nijhof, Fleur H Boot, Kirsten E Bevelander, Elske van Oostaijen, Jenneken Naaldenberg, Geraline L Leusink
{"title":"From Learning to Practice: Support Workers' Experiences With the TRAIN-ID Training Programme to Strengthen Health Support for People With Intellectual Disabilities.","authors":"Kim Nijhof, Fleur H Boot, Kirsten E Bevelander, Elske van Oostaijen, Jenneken Naaldenberg, Geraline L Leusink","doi":"10.1111/jar.70326","DOIUrl":"10.1111/jar.70326","url":null,"abstract":"<p><strong>Background: </strong>Support workers play a key role in everyday health support for people with intellectual disabilities. This study aimed to explore how training (the TRAIN-ID programme) can strengthen support workers' competencies to meet the health needs of people with intellectual disabilities.</p><p><strong>Method: </strong>This qualitative study explored 26 support workers' experiences with participating in the training programme through written reflections, focus groups immediately post-training and interviews three months later. Data were analysed using template analysis informed by the Kirkpatrick framework.</p><p><strong>Results: </strong>Positive experiences with the programme related to observing, discussing and following up health problems in practice. Furthermore, analysis indicates concrete pathways linking learning to intentions for behavioural change and perceived impact.</p><p><strong>Conclusions: </strong>Training programmes that recognise support workers' roles in health support strengthen support workers' ability to identify and respond to health concerns, thereby helping to address educational gaps and improving everyday health support for people with intellectual disabilities.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70326"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13682912/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149228963","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Essence of Support: A Phenomenological Study of Integrating Formal and Natural Supports to Enhance Quality of Life for Saudi Young Adults With Intellectual Disability.","authors":"Basmah F Alshahrani, Khalid M Abu-Alghayth","doi":"10.1111/jar.70322","DOIUrl":"https://doi.org/10.1111/jar.70322","url":null,"abstract":"<p><strong>Background: </strong>Integrated supports are vital for quality of life, yet experiences in Saudi Arabia remain under-explored. This study explored how young adults with intellectual disability and their families navigate the integration of formal and natural support systems.</p><p><strong>Methods: </strong>Using hermeneutic phenomenology, data were collected through initial and follow-up semi-structured interviews and two focus groups. The sample comprised 17 participants, including 10 young adults with intellectual disability living with their families and seven family members.</p><p><strong>Results: </strong>Two main themes emerged: the critical synergy between formal and natural supports in enhancing quality of life, and systemic barriers and future aspirations for integrated support. Findings highlight how collaborative care and partnerships reinforce skills and emotional well-being.</p><p><strong>Conclusion: </strong>Stronger connections between formal and natural supports may improve quality of life. The study underscores the need for an integrated partnership between families and specialised centres to foster independence and inclusion.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70322"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149198220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Medine Nur Özata Değerli, Begüm Zeynep Uzun, Hatice Abaoğlu
{"title":"Understanding Participation in Inclusive Education: Teachers' Perspectives on Children With Intellectual and Developmental Disabilities.","authors":"Medine Nur Özata Değerli, Begüm Zeynep Uzun, Hatice Abaoğlu","doi":"10.1111/jar.70321","DOIUrl":"https://doi.org/10.1111/jar.70321","url":null,"abstract":"<p><strong>Background: </strong>Understanding teachers' perspectives is essential for promoting the meaningful participation of children with intellectual and developmental disabilities in inclusive schools.</p><p><strong>Method: </strong>This qualitative phenomenological study explored primary school teachers' perspectives on the participation of children with intellectual and developmental disabilities in inclusive education. Semi-structured interviews were conducted with 28 primary school teachers working in Türkiye.</p><p><strong>Results: </strong>Teachers reported that inclusive education, when it supports children's active participation, enhances social skills, strengthens a sense of belonging, and promotes inclusion in the wider community. However, they also identified significant barriers, including overcrowded classrooms, long class periods, negative peer attitudes, and self-stigma. Although teachers expressed a commitment to inclusive practises, many reported insufficient experience, training, and confidence in supporting these children.</p><p><strong>Conclusions: </strong>Strengthening pre-service and in-service teacher training, revising curricula, and creating supportive classroom environments are essential for ensuring the meaningful participation of children with intellectual and developmental disabilities in inclusive education.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70321"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149198193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Feasibility and Preliminary Effectiveness of a Health and Wellbeing Intervention for Adults With Mild to Moderate Intellectual Disabilities.","authors":"Helen McCready, Ken van Someren, Ben Fitzpatrick","doi":"10.1111/jar.70320","DOIUrl":"10.1111/jar.70320","url":null,"abstract":"<p><strong>Background: </strong>Many adults with intellectual disabilities attend day services, yet few intervention studies report implementability and preliminary effectiveness within day services.</p><p><strong>Methods: </strong>Guided by the Medical Research Council framework, this study evaluated early-stage feasibility of an 8-week health and wellbeing intervention for adults with mild and moderate intellectual disabilities (n = 24). Feasibility, acceptability, and fidelity were assessed alongside pre-post outcomes, with exploratory analyses by intellectual disability level.</p><p><strong>Results: </strong>Retention was 100% and compliance was 73%. Outcome completion exceeded 80% for most measures, no adverse events occurred, and fidelity was satisfactory. Systolic blood pressure, muscular endurance and flexibility improved. Exploratory analyses suggested more favourable outcomes for participants with mild intellectual disabilities.</p><p><strong>Conclusion: </strong>The intervention was feasible and acceptable, with satisfactory fidelity, supporting progression with refinement. Preliminary health improvements were observed.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70320"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13678473/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149221167","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Deanna Gallichan, Chloe Deacon, Karen Gresty, Simon Rundle
{"title":"'It Makes Me Feel Confident': A Community Based Participatory Study of Experiences of Employment for People With Intellectual Disabilities.","authors":"Deanna Gallichan, Chloe Deacon, Karen Gresty, Simon Rundle","doi":"10.1111/jar.70310","DOIUrl":"10.1111/jar.70310","url":null,"abstract":"<p><strong>Background: </strong>A social enterprise brewery requested help from researchers to understand their employment opportunities for people with intellectual disabilities ('trainees'). A community-based participatory framework (CBPR) was used to develop the research.</p><p><strong>Method: </strong>Digital storytelling was selected to enable trainees to express their views about their work. Six participants created digital stories with support from researchers. Transcripts of the stories were analysed using reflexive thematic analysis.</p><p><strong>Findings: </strong>Three main themes were developed: 'Learning new skills'; 'We do good work'; and 'I belong at the brewery', each with several subthemes. One overarching theme, 'I feel more confident' was developed to represent the ways in which different aspects of the work had developed their confidence.</p><p><strong>Conclusion: </strong>Working within the brewery seemed to have both immediate and far-reaching benefits for participants. Further research would be needed to better understand the wider impact on the local community.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70310"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13677159/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149221148","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Exploring How Staff Engage in Conversations Around Sexuality With Adults With Intellectual Disabilities: A Qualitative Systematic Review.","authors":"Naoise Webb, Hannah O'Daly, Christine Linehan","doi":"10.1111/jar.70319","DOIUrl":"10.1111/jar.70319","url":null,"abstract":"<p><strong>Aims: </strong>This review explored how health and social care staff engage in sexuality-related conversations with adults with intellectual disabilities.</p><p><strong>Method: </strong>Electronic databases (PsycINFO, MEDLINE, CINAHL and Scopus) were searched from January 2006 to August 2025 following PRISMA guidelines. From the initial 1666 studies identified, a total of 23 were retained for narrative synthesis following quality assessment.</p><p><strong>Results: </strong>A total of 75 sexuality-related conversations were identified, of which 42 reflected real interactions (occurring [n = 39] or actively avoided [n = 3]) and 33 were hypothetical. Facilitators of conversations included trusting relationships, supportive organisational structures and targeted staff education. Key barriers included fear, stigma, role ambiguity and risk-averse service cultures. Findings highlighted a tension between growing recognition of sexual rights and risk-driven practice, underscoring the need for staff training, role clarity and rights-based policies to support open dialogue.</p><p><strong>Trial registration: </strong>PROSPERO: CRD42023454984.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 5","pages":"e70319"},"PeriodicalIF":1.9,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13681242/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149229512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Systemic Barriers and Emotional Complexities in the Transition to Adulthood: The Lived Experience of Parents of Individuals With Intellectual Disabilities in Italy.","authors":"Mariachiara Feresin, Elena Bortolotti","doi":"10.1111/jar.70294","DOIUrl":"https://doi.org/10.1111/jar.70294","url":null,"abstract":"<p><strong>Background: </strong>The transition to adulthood for individuals with intellectual disabilities (ID) is a complex process marked by significant challenges for families.</p><p><strong>Method: </strong>Using semi-structured interviews and thematic analysis with 17 parents of individuals with ID, this qualitative research examined transition obstacles, support systems, and emotional responses impacting family reorganization and life projects (LP) definition.</p><p><strong>Results: </strong>Parents reported difficulties in planning and implementing LP due to standardized approaches, a lack of structured employment pathways, and challenges navigating fragmented services. Emotionally, parents exhibited resilience, pride, and hope, alongside anxiety, frustration, and powerlessness regarding their children's future and the adequacy of support.</p><p><strong>Conclusions: </strong>The findings emphasize the need for holistic, family-centered support systems addressing practical and emotional needs. The LP framework is promising, but successful implementation requires bridging systemic gaps, enhancing service coordination, and empowering parents to improve outcomes for individuals with ID.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70294"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13474454/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148765452","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Supporting the Caregivers of Children With Developmental Disabilities in a Low-Resource Setting: What Are Their Needs?","authors":"Doreen Asantewa Abeasi, Nokuthula Gloria Nkosi","doi":"10.1111/jar.70280","DOIUrl":"10.1111/jar.70280","url":null,"abstract":"<p><strong>Background: </strong>Caregivers of children with developmental disabilities (DD) often face unmet needs that affect caregiving. This study explored the needs of such caregivers.</p><p><strong>Methods: </strong>A descriptive qualitative design was employed for this study. Caregivers of children with DD attending the Neurodevelopmental Clinic at Korle-Bu Teaching Hospital were purposively selected. Data were collected through semi-structured, in-depth interviews until saturation was achieved with fourteen (14) participants. The interviews were conducted between October 2021 and January 2022, and data were analysed using thematic analysis.</p><p><strong>Results: </strong>Four themes emerged: informational and training support, financial support, psychospiritual support and social support needs. Caregivers required comprehensive information and practical skills, financial assistance to meet care demands, psychological counselling and spiritual guidance to strengthen resilience and support from family, friends and community networks to ease caregiving burdens.</p><p><strong>Conclusion: </strong>Caregivers of children with DD have diverse unmet needs. Policies and programmes addressing these needs are essential to improve caregiver well-being and quality of life.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70280"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13402218/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148594862","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Animal-Assisted Therapy in Women With Severe-To-Profound Intellectual Disability: A Longitudinal Qualitative Study in Long-Stay Residential Care Within a Psychiatric Hospital.","authors":"Filipe Silva Carvalho, Nídia Duarte, Joana Petta","doi":"10.1111/jar.70299","DOIUrl":"https://doi.org/10.1111/jar.70299","url":null,"abstract":"<p><strong>Background: </strong>Evidence on animal-assisted therapy for adults with severe or profound intellectual disabilities in supported residential settings remains limited.</p><p><strong>Method: </strong>A longitudinal qualitative analysis of prospectively generated clinical and programme records was conducted in a long-stay residential unit for women with severe or profound intellectual disabilities. The 12-month programme comprised 40 weekly animal-assisted therapy sessions based on structured interaction with the dogs. The sessions were delivered by practitioners formally trained in animal-assisted interventions, accompanied by two trained therapy dogs. Records were analysed using reflexive thematic analysis.</p><p><strong>Results: </strong>Five themes were identified: increasing familiarity and observable engagement with the dogs; changes in observable psychomotor agitation; heterogeneous trajectories according to facilitation and support needs; anticipation, recognition and continuity across sessions; and the dogs as a shared focus for interpersonal interaction.</p><p><strong>Conclusions: </strong>The programme was feasible to deliver alongside usual care and was associated with non-linear patterns of observable participation and interaction.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70299"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13492226/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148802679","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correction to 'Fundamental Movement Skill Development in Children With Intellectual Disabilities: An 8-Week Coach-Led and Parent-Supported Intervention'.","authors":"","doi":"10.1111/jar.70291","DOIUrl":"10.1111/jar.70291","url":null,"abstract":"","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70291"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13437930/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148674694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}