Journal of applied research in intellectual disabilities : JARID最新文献

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Childhood and Adulthood Predictors of Community Participation by Autistic Adults With and Without Intellectual Disability.
Journal of applied research in intellectual disabilities : JARID Pub Date : 2025-01-01 DOI: 10.1111/jar.70001
Lauren A Cameron, Bruce J Tonge, Patricia Howlin, Stewart L Einfeld, Roger J Stancliffe, Kylie M Gray
{"title":"Childhood and Adulthood Predictors of Community Participation by Autistic Adults With and Without Intellectual Disability.","authors":"Lauren A Cameron, Bruce J Tonge, Patricia Howlin, Stewart L Einfeld, Roger J Stancliffe, Kylie M Gray","doi":"10.1111/jar.70001","DOIUrl":"10.1111/jar.70001","url":null,"abstract":"<p><strong>Background: </strong>Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood.</p><p><strong>Method: </strong>Eighty-four autistic adults (mean age 34 years; 67% with co-occurring intellectual disability) initially recruited as children and adolescents, participated in the current study. Community participation frequency and variety were measured in adulthood. Childhood and adulthood predictors of community participation were investigated.</p><p><strong>Results: </strong>Participants engaged in the community an average of 18.2 times (range 0-49) over the previous 30-day period, in an average of 6.3 different activities (range 0-13). Childhood and adulthood factors (autism symptoms, intellectual disability, living arrangements) were associated with community participation.</p><p><strong>Conclusion: </strong>Areas for additional support and resources were identified.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"38 1","pages":"e70001"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11666882/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142883761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Proxy-report in individuals with intellectual disability: A scoping review. 智力残疾患者的代理报告:范围综述。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-09-01 DOI: 10.1111/jar.13013
Stephanie L Santoro, Karen Donelan, Melissa Constantine
{"title":"Proxy-report in individuals with intellectual disability: A scoping review.","authors":"Stephanie L Santoro,&nbsp;Karen Donelan,&nbsp;Melissa Constantine","doi":"10.1111/jar.13013","DOIUrl":"https://doi.org/10.1111/jar.13013","url":null,"abstract":"<p><strong>Background: </strong>Views can be collected from individuals (self-report) or others on their behalf (proxy-report).</p><p><strong>Objective: </strong>We aimed to review the literature on methods and statistical approaches used to evaluate observer versus self-report responses from individuals with intellectual disability or Down syndrome.</p><p><strong>Methods: </strong>A series of key questions related to statistical approaches and data collection methods were formulated a priori to inform the search strategy and review process. These addressed the topics of self-report in individuals with intellectual disability, including Down syndrome. Using the National Library of Medicine database, PubMed, detailed literature searches were performed. The quality of available evidence was then evaluated, the existing literature was summarised, and knowledge gaps and research needs were identified.</p><p><strong>Results: </strong>Fifty relevant original articles were identified which addressed at least one key question. Study details, including: research design, internal validity, external validity, and relevant results are presented. Review of studies of individuals with intellectual disability which used a variety of statistical approaches showed mixed agreement between self-report and proxy-report.</p><p><strong>Conclusion: </strong>Few studies identified to-date have used self-report from individuals with Down syndrome, but lessons from the existing intellectual disability literature can guide researchers to incorporate self-report from individuals with Down syndrome in the future.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"35 5","pages":"1088-1108"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9378492/pdf/nihms-1810992.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10132656","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 13
Video-blogs and linguistic simplification for students with intellectual disability. 为智障学生提供视频博客和语言简化服务。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-09-01 Epub Date: 2022-06-20 DOI: 10.1111/jar.13016
Inmaculada Fajardo, Vicenta Ávila, Pablo Delgado, Nadina Gómez-Merino, Ladislao Salmerón
{"title":"Video-blogs and linguistic simplification for students with intellectual disability.","authors":"Inmaculada Fajardo,&nbsp;Vicenta Ávila,&nbsp;Pablo Delgado,&nbsp;Nadina Gómez-Merino,&nbsp;Ladislao Salmerón","doi":"10.1111/jar.13016","DOIUrl":"https://doi.org/10.1111/jar.13016","url":null,"abstract":"<p><strong>Background: </strong>The Internet provides individuals with intellectual disability with access to information and participation in a broader society, but it also presents risks when content is difficult to comprehend. This study aimed to test whether students with intellectual disability enhanced their comprehension of online blogs as a function of the format (text vs. video) and linguistic simplification.</p><p><strong>Method: </strong>Young students with intellectual disability read or watched text and video-blog posts about environment, health, society, and technology in their original version or a linguistically simplified/easy-to-read version. Then, they completed tests that assessed their reading processing (e.g., calibration) and comprehension of blog content.</p><p><strong>Results: </strong>Participants predicted that they would correctly answer 80% of the comprehension questions, but their average comprehension of the blog posts was 55%, regardless of the condition. Previous levels of students' reading comprehension skills predicted their blog comprehension scores and interacted with format and simplification. Those participants with higher reading comprehension skills learned more from non-simplified than from simplified blog posts while those with lower levels of reading comprehension skills did not benefit from linguistic simplification nor video-blog format although the difference with regard to higher comprehenders was lower in the video and simplified conditions.</p><p><strong>Conclusions: </strong>Improving reading comprehension abilities of students with intellectual disability is essential to prevent the digital divide while linguistic simplification is not a useful accommodation and even counterproductive for higher reading comprehenders.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":" ","pages":"1217-1230"},"PeriodicalIF":0.0,"publicationDate":"2022-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/ce/33/JAR-35-1217.PMC9545102.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40058621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children. 父母对加拿大试点诊所的满意度,该诊所减少了幼儿自闭症谱系障碍和智力残疾评估和诊断的等候名单。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-05-31 DOI: 10.1111/jar.13012
Marjorie Morin, M. Rivard, D. Morin, Catherine Mello, Patrick Coulombe
{"title":"Parents' satisfaction with a Canadian pilot clinic to reduce waiting lists for the assessment and diagnosis of autism spectrum disorder and intellectual disability in young children.","authors":"Marjorie Morin, M. Rivard, D. Morin, Catherine Mello, Patrick Coulombe","doi":"10.1111/jar.13012","DOIUrl":"https://doi.org/10.1111/jar.13012","url":null,"abstract":"BACKGROUND\u0000A large body of evidence suggest that parents of young children with autism spectrum disorder or intellectual disability experience low levels of satisfaction with the diagnostic evaluation process. This study sought to document parents' satisfaction with the services of a pilot clinic implemented in Québec, Canada.\u0000\u0000\u0000METHOD\u0000Two-hundred fifty-nine (259) parents were recruited following their child's diagnosis. A mixed methods approach was used to investigate parents' satisfaction globally and with specific aspects of the assessment process.\u0000\u0000\u0000RESULTS\u0000Parents expressed overall high satisfaction with the assessment process. Parental satisfaction with specific aspects of the assessment process was negatively related to paternal stress, fathers' unemployment and household income and positively related to maternal stress.\u0000\u0000\u0000CONCLUSIONS\u0000This pilot clinic could meet parents' needs at this crucial moment in their care and services trajectory. The factors associated with satisfaction in the present study may inform future improvements to its services.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"2009 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"82594733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Electronic assistive technology use and supported employment. 电子辅助技术的使用和支持就业。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-05-20 DOI: 10.1111/jar.13005
Parker Heman, D. Rhodes, Carol Cox
{"title":"Electronic assistive technology use and supported employment.","authors":"Parker Heman, D. Rhodes, Carol Cox","doi":"10.1111/jar.13005","DOIUrl":"https://doi.org/10.1111/jar.13005","url":null,"abstract":"BACKGROUND\u0000Level of electronic assistive technology use by people with intellectual disabilities is lower than for other disability groups.\u0000\u0000\u0000METHODS\u0000In this mixed-methods exploratory study during the pandemic, staff (online survey) and executive administration (focus group) from a regional supported employment service provider in the Midwest US were surveyed about use of and barriers to use of electronic assistive technology for their clients with intellectual disabilities.\u0000\u0000\u0000RESULTS\u0000Forty percent of staff reported 'not' using any of the assistive technologies with their clients. Executive administration perceived that they should be providing technology resources to clients and staff. Both groups rated expense, access, and complexity as barriers to assistive technology use at the client's worksite.\u0000\u0000\u0000CONCLUSIONS\u0000Identifying the types of assistive technologies that can be most easily accessed and most cost-effective, including lower-cost consumer market devices, as employment supports for people with intellectual disabilities may be a first step in helping to overcome perceived barriers to use.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"27 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"78155314","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Living arrangements and satisfaction of current arrangement among autistic adults reported by autistic individuals or their caregivers. 由自闭症个体或其照顾者报告的自闭症成人的生活安排和当前安排的满意度。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-05-15 DOI: 10.1111/jar.13003
Wei Song, Stacy Nonnemacher, Kaitlin K Miller, K. Anderson, L. Shea
{"title":"Living arrangements and satisfaction of current arrangement among autistic adults reported by autistic individuals or their caregivers.","authors":"Wei Song, Stacy Nonnemacher, Kaitlin K Miller, K. Anderson, L. Shea","doi":"10.1111/jar.13003","DOIUrl":"https://doi.org/10.1111/jar.13003","url":null,"abstract":"BACKGROUND\u0000Living arrangements is an essential component of the social environments for autistic adults. The need to understanding the status and experience of living arrangements has been highlighted.\u0000\u0000\u0000AIM\u0000This study examined living arrangements and satisfaction with current arrangements of autistic adults reported by autistic adults or caregivers of autistic adults.\u0000\u0000\u0000METHODS\u0000This study used data from a statewide survey of autistic adults or caregivers.\u0000\u0000\u0000RESULTS\u0000Older autistic adults and those employed and had higher financial resources were more likely to live alone or with a roommate or spouse than to live with family or in a supervised setting. Correlates of greater satisfaction included being young, either men or women (vs. non-binary adults), public insurance, fewer service needs, no or one mental health diagnosis (vs. two or more), no psychiatric emergency room or hospitalisation history, and living with a roommate or spouse (vs. living with family).\u0000\u0000\u0000CONCLUSION\u0000This cross-sectional study adds to the literature on the status of living arrangements and satisfaction with living arrangements among autistic adults. Future research is needed to investigate contributing factors to the satisfaction of living arrangements and quality of life among autistic adults.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"323 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-05-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76301857","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
Where to next? Experiences of adults with intellectual disability after they complete a university program. 接下来要去哪里?智力残疾成人在完成大学课程后的经历。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-04-26 DOI: 10.1111/jar.13000
Charlotte Gobec, F. Rillotta, P. Raghavendra
{"title":"Where to next? Experiences of adults with intellectual disability after they complete a university program.","authors":"Charlotte Gobec, F. Rillotta, P. Raghavendra","doi":"10.1111/jar.13000","DOIUrl":"https://doi.org/10.1111/jar.13000","url":null,"abstract":"BACKGROUND\u0000Adults with intellectual disability who attended higher education programs have reported increasing self-determination, developing social skills and forming relationships. However, there is limited evidence about what adults with intellectual disability do after they complete such programs. This study investigated the experiences of adults with intellectual disability after they completed an inclusive higher education university program in Australia.\u0000\u0000\u0000MATERIALS & METHODS\u0000This qualitative study used a phenomenological approach. Semi-structured interviews were conducted with adults with intellectual disability who had completed the program (N = 6). Data were thematically analysed and interpreted using Bronfenbrenner's ecological systems theory.\u0000\u0000\u0000RESULTS\u0000Participants developed lasting connections with mentors and staff but not with peers. Some participants accessed more opportunities, returned to study, increased topic-specific knowledge, and developed life skills; however, others faced challenges with transition from the program.\u0000\u0000\u0000DISCUSSION\u0000Findings highlight a need to explore ways to enhance the transition from the program to the wider university environment and/or employment. Suggestions for practice are provided to help inform future development of inclusive higher education programs for adults with intellectual disability.\u0000\u0000\u0000CONCLUSION\u0000With appropriate support adults with intellectual disability can experience positive post-university outcomes and opportunities; however, limited social interaction with informal supports such as peers, challenges the inclusive model.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"130 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"73951864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Interventions for health-related physical fitness and overweight and obesity in children with intellectual disability: Systematic review and meta-analysis. 智力残疾儿童健康相关体质、超重和肥胖的干预措施:系统回顾和荟萃分析
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-04-20 DOI: 10.1111/jar.12999
Aiwei Wang, Yang Gao, Jingjing Wang, T. Brown, Yan Sun, Siyue Yu, T. K. Tong, L. Zhong, S. S. Fong, F. Dutheil, J. Baker
{"title":"Interventions for health-related physical fitness and overweight and obesity in children with intellectual disability: Systematic review and meta-analysis.","authors":"Aiwei Wang, Yang Gao, Jingjing Wang, T. Brown, Yan Sun, Siyue Yu, T. K. Tong, L. Zhong, S. S. Fong, F. Dutheil, J. Baker","doi":"10.1111/jar.12999","DOIUrl":"https://doi.org/10.1111/jar.12999","url":null,"abstract":"BACKGROUND\u0000Poor health-related physical fitness (HRPF) and overweight and obesity are common health problems for children with intellectual disability. This study aimed to review existing lifestyle intervention studies, and identify effective strategies for this population.\u0000\u0000\u0000METHODS\u0000A systematic search was undertaken in three databases. The random-effects model was used to pool the weighted results by inverse variance methods, and the I2 statistic was applied to assess heterogeneity among the included studies.\u0000\u0000\u0000RESULTS\u0000Most of the identified interventions (27/29) adopted physical activity (PA). For obesity-related outcomes, the results showed no significant effect of PA studies on reducing obesity. For HRPF outcomes, significant effects were found on 6-min walk distance (51.86 m, 95% CI [16.49, 87.22], p < .05).\u0000\u0000\u0000CONCLUSIONS\u0000PA is the predominant intervention component adopted and may contribute to improving cardiopulmonary fitness; but the lack of research limits our ability to draw any confirmed conclusion on obesity-related outcomes and other HRPF outcomes.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"90952522","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 4
A feasibility study on social competence intervention for Chinese adolescents and adults with comorbid autism spectrum disorder and intellectual disability. 社会能力干预对中国青少年和成人自闭症谱系障碍和智力残疾的可行性研究。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2022-04-11 DOI: 10.1111/jar.12998
Brenda Tsang, C. Leung, R. W. S. Chan
{"title":"A feasibility study on social competence intervention for Chinese adolescents and adults with comorbid autism spectrum disorder and intellectual disability.","authors":"Brenda Tsang, C. Leung, R. W. S. Chan","doi":"10.1111/jar.12998","DOIUrl":"https://doi.org/10.1111/jar.12998","url":null,"abstract":"BACKGROUND\u0000Social competence training for individuals with comorbid autistic spectrum disorder (ASD) and intellectual disability was scarce and had methodological limitations in sample sizes and outcome measures.\u0000\u0000\u0000AIMS\u0000The current study addressed the limitations and reported a social competence intervention for adolescents and adults with ASD and intellectual disability in Hong Kong, the CBT-CSCA (Mild Intellectual Disability).\u0000\u0000\u0000MATERIALS & METHODS\u0000Thirty-three participants (aged 14-44 years, with an FSIQ 55-70) completed the 15-session intervention in a community centre. A pre-post intervention design was employed. Outcome measures included proxy-ratings on participants' social competence, autistic symptoms and behavioural problem, and participants' weekly self-evaluation on knowledge acquisition and confidence in applying skills.\u0000\u0000\u0000RESULTS\u0000Significant improvements were shown in proxy-reported negative social behaviours, autistic symptoms and overall behavioural problems. Participants also reported satisfactory knowledge gain and confidence in applying content learnt after each session.\u0000\u0000\u0000DISCUSSION\u0000The CBT-CSCA (Mild Intellectual Disability) is based on an established model and validated studies on ASD population. It demonstrated its applicability and emerging effectiveness in individuals with ASD and mild intellectual disability.\u0000\u0000\u0000CONCLUSION\u0000The study supports that social competence training remains a centrality intervention approach for individuals with ASD and intellectual disability.","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"26 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"76072708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
A person-centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia-A participatory action study. 以人为本的方法对智障和痴呆患者实施社会心理干预——参与性行动研究。
Journal of applied research in intellectual disabilities : JARID Pub Date : 2021-01-01 Epub Date: 2020-08-18 DOI: 10.1111/jar.12795
Karen Watchman, Kate Mattheys, Michael McKernon, Heather Strachan, Federico Andreis, Jan Murdoch
{"title":"A person-centred approach to implementation of psychosocial interventions with people who have an intellectual disability and dementia-A participatory action study.","authors":"Karen Watchman,&nbsp;Kate Mattheys,&nbsp;Michael McKernon,&nbsp;Heather Strachan,&nbsp;Federico Andreis,&nbsp;Jan Murdoch","doi":"10.1111/jar.12795","DOIUrl":"https://doi.org/10.1111/jar.12795","url":null,"abstract":"<p><strong>Background: </strong>Numbers of people with an intellectual disability and dementia present a global health and social challenge with associated need to reduce stress or agitation and improve quality of life in affected individuals. This study aimed to identify effectiveness of psychosocial interventions in social care settings and, uniquely, explore use of photovoice methodology to develop dialogue about dementia.</p><p><strong>Methods: </strong>This mixed-method participatory action study used individualised goal-setting theory with 16 participants with intellectual disability and dementia, and 22 social care staff across 11 sites. Five co-researchers with intellectual disability were part of an inclusive research team collecting data using existing and bespoke tools including photovoice. Analysis used descriptive and inferential statistics and framework analysis.</p><p><strong>Results: </strong>Seventy four percentage of individual goals met or exceeded expectations with reduction in some \"as required\" medication. Qualitative findings include themes of enabling care and interventions as tools for practice. Photovoice provided insight into previously unreported fears about dementia.</p><p><strong>Conclusions: </strong>Individualized psychosocial interventions have potential to reduce distress or agitation.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"34 1","pages":"164-177"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12795","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38286809","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
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