Dídac Membrives-Barniol, Maria Carbó-Carreté, Joan Guàrdia-Olmos
{"title":"Supported Decision-Making Inventory: Psychometric Validation of the Catalan and Spanish Versions.","authors":"Dídac Membrives-Barniol, Maria Carbó-Carreté, Joan Guàrdia-Olmos","doi":"10.1111/jar.70295","DOIUrl":"https://doi.org/10.1111/jar.70295","url":null,"abstract":"<p><strong>Background: </strong>Supported decision-making is central to rights-based practice, but psychometric evidence in Catalan and Spanish is limited.</p><p><strong>Methods: </strong>The Supported Decision Making Inventory (SDMI) was translated and adapted for use in Catalan and Spanish. Content validity, internal structure, reliability, measurement invariance and construct-related evidence were examined in 510 adults with intellectual and developmental disabilities receiving services from providers in Catalonia.</p><p><strong>Results: </strong>Expert ratings provided content validity evidence. Confirmatory factor analysis supported the six-factor model (CFI = 0.925, TLI = 0.916, RMSEA = 0.055 and SRMR = 0.055) and scalar invariance across interview language. Reliability evidence varied across domains and subscales, with stronger estimates for environmental demands and decision-making supports than for personal factors. Construct-related evidence was stronger for environmental demands and decision-making supports than for personal factors.</p><p><strong>Conclusions: </strong>Findings support interpreting Catalan and Spanish SDMI scores at domain and subscale levels to assess supported decision-making and inform support planning.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70295"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13494446/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148802669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Billy Ridler, Julia Sterman, Jennifer Murray, Valerie Houghton, Natasha Spassiani
{"title":"Emergency Ambulance Healthcare for People With Intellectual Disabilities: A Scoping Review.","authors":"Billy Ridler, Julia Sterman, Jennifer Murray, Valerie Houghton, Natasha Spassiani","doi":"10.1111/jar.70293","DOIUrl":"10.1111/jar.70293","url":null,"abstract":"<p><strong>Background: </strong>People with intellectual disabilities experience a range of barriers when accessing healthcare. Ambulance services are uniquely placed within the healthcare system. Ambulance services are evolving to meet their full potential, with an increased focus on promoting health and tackling health inequalities. In this context it is timely to consider what is the experience of people with intellectual disabilities in relation to emergency ambulance healthcare.</p><p><strong>Method: </strong>Scoping review methodology was used to understand the experience of people with intellectual disabilities in relation to emergency ambulance healthcare.</p><p><strong>Results: </strong>Ten records were included in the review. Four core themes were identified: empathy, education, interprofessional working, and capacity and decision making. These themes represent enablers and barriers present for people with intellectual disabilities when accessing emergency ambulance healthcare.</p><p><strong>Conclusions: </strong>The scoping review has identified a significant gap in the literature, with the experience of people with intellectual disabilities being unknown.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70293"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13484159/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148802724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Femke Jonker, Samantha Bouwmeester, Peter de Looff, Robert Didden
{"title":"Adaptive Functioning in Clients With Intellectual Disabilities or Borderline Intellectual Functioning and Psychiatric Comorbidity.","authors":"Femke Jonker, Samantha Bouwmeester, Peter de Looff, Robert Didden","doi":"10.1111/jar.70292","DOIUrl":"10.1111/jar.70292","url":null,"abstract":"<p><strong>Background: </strong>Assessment of adaptive functioning is part of the classification of intellectual disability and borderline intellectual functioning and important in estimating support needs. Adaptive functioning may be impaired in clients with psychiatric comorbidity. We investigated relationships between adaptive functioning and psychiatric comorbidity in individuals with intellectual disabilities or borderline intellectual functioning using the ADAPT.</p><p><strong>Method: </strong>ADAPT scores of clients with comorbid psychiatric disorders were compared with those of clients without comorbidity (N = 4376).</p><p><strong>Results: </strong>In clients with intellectual disabilities, ASD was associated with lower ADAPT scores while depressive mood disorder was associated with higher ADAPT scores. We found a negative relationship between number of psychiatric disorders and mean total ADAPT score.</p><p><strong>Conclusion: </strong>When determining the severity of an intellectual disability or using the V-code borderline intellectual functioning, ASD and multiple comorbidities must be taken into account to prevent an intellectual disability or borderline intellectual functioning from being incorrectly classified.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70292"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13459975/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148708850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Views and Experiences of Families and Registered Nurses Regarding Hospital Care and Support of Children With Intellectual Disabilities: A Systematic Review.","authors":"Amirah Gadi, Lynne Marsh, Michael Brown","doi":"10.1111/jar.70296","DOIUrl":"10.1111/jar.70296","url":null,"abstract":"<p><strong>Background: </strong>Children with intellectual disabilities experience poorer health outcomes and persistent inequities in hospital care. No previous review has integrated perspectives of families, registered nurses (RNs), nursing students and nurse educators to examine how family partnerships, workforce preparation and clinical practice intersect. This review synthesises evidence on hospital care and support for children with intellectual disabilities.</p><p><strong>Methods: </strong>Following PRISMA guidelines, four databases (CINAHL, MEDLINE, APA PsycINFO and Embase) were searched from inception to October 2025. Study quality was appraised using the MMAT.</p><p><strong>Results: </strong>Twenty-eight studies were included, generating five themes: the significance of communication, partnership and family empowerment, environmental and systemic barriers, the role of education and professional development and emotional and psychological well-being.</p><p><strong>Conclusions: </strong>Improving hospital care requires effective communication, meaningful family partnerships, supportive environments and reasonable adjustments, greater professional preparedness and emotional support. No eligible studies explored nursing students' or nurse educators' perspectives, revealing an evidence gap.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70296"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13489723/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148802722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Madeline N Delage, Lynn L Cole, Emily L Speybroeck, Julianne Myers, Christie L M Petrenko
{"title":"Meeting the Needs of Neurodivergent Teens for Dialectical Behaviour Therapy: Challenges and Adaptation Strategies From Clinicians, Teens With Fetal Alcohol Spectrum Disorders and Caregivers.","authors":"Madeline N Delage, Lynn L Cole, Emily L Speybroeck, Julianne Myers, Christie L M Petrenko","doi":"10.1111/jar.70290","DOIUrl":"10.1111/jar.70290","url":null,"abstract":"<p><strong>Purpose: </strong>Neurodivergent teens experience elevated emotion dysregulation yet are excluded from treatment trials designed to address these challenges. Guided by implementation science, social model of disability and Dialectical Behaviour Therapy (DBT)'s biosocial model, this study explores the fit of DBT for neurodivergent youth, focusing on teens with fetal alcohol spectrum disorder (FASD).</p><p><strong>Methods: </strong>A needs assessment was conducted with teens with FASD, their caregivers, and DBT clinicians. The survey assessed fit of DBT, barriers/facilitators and adaptation priorities. Data analysis employed RADaR (rigorous and accelerated data reduction) and thematic narrative analysis.</p><p><strong>Results: </strong>Community members viewed DBT as promising for teens with FASD. They identified key barriers, including material complexity and a lack of neurodiversity-affirming practices. Clinicians reported limited training in FASD and offered concrete adaptation suggestions.</p><p><strong>Discussion: </strong>Findings highlight the value of living experience in informing inclusive intervention design and provide a foundation for adapting DBT to better support neurodivergent adolescents.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70290"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13447033/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148687016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Correction to \"Relationship Between Self-Regulation Strategies and Vocational Capacity Among Individuals With Intellectual Disabilities in Japan\".","authors":"","doi":"10.1111/jar.70289","DOIUrl":"10.1111/jar.70289","url":null,"abstract":"","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70289"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13434187/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148671433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah S Mire, Erik W Carter, Sara Tomek, Carlee Hollinger, Shannon R Eshman, Melody V Escobar
{"title":"How Do Parents Experience Overnight Respite? Parent-Reported Outcomes in Families of Children With Intellectual and Developmental Disabilities.","authors":"Sarah S Mire, Erik W Carter, Sara Tomek, Carlee Hollinger, Shannon R Eshman, Melody V Escobar","doi":"10.1111/jar.70288","DOIUrl":"10.1111/jar.70288","url":null,"abstract":"<p><strong>Background: </strong>Overnight respite care can be a lifeline for parents of children with intellectual and developmental disabilities. We explored the multifaceted parent-reported outcomes of respite and potential demographic variations related to this broad impact.</p><p><strong>Method: </strong>Parents (n = 178) reported respite effects on their personal well-being, spousal relationships, family relationships, spiritual needs and ability to complete other activities, which correspond to five subscales of the novel Respite Impact Survey.</p><p><strong>Results: </strong>Most parents agreed/strongly agreed with 22 of 23 items, particularly related to rest, recharge and relationships. Univariate ANOVAs revealed differences with small-to-moderate effect sizes based on child sex (η<sup>2</sup> = 0.03, 0.05), parent age (η<sup>2</sup> = 0.07, 0.13) and parent education level (η<sup>2</sup> = 0.06).</p><p><strong>Conclusion: </strong>Parents endorsed many benefits of overnight respite, with few differentiating effects observed within this sample. However, participants represented a relatively homogeneous and comparatively affluent group of parents connected to a single respite provider. Future research should include more racially and socioeconomically diverse samples to better understand how respite experiences may vary across families.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70288"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13411499/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148610913","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"To Work or Not to Work? Why Are People With Intellectual Disability Enrolled at Vocational Training Centres in Poland Willing or Unwilling to Take a Job?","authors":"Wojciech Otrębski, Ewa Zasępa","doi":"10.1111/jar.70277","DOIUrl":"10.1111/jar.70277","url":null,"abstract":"<p><strong>Background: </strong>The employment rates among people with intellectual disabilities are relatively low globally. Given that, the study aimed to determine why individuals with intellectual disabilities who received training at Polish Vocational Training Centres were willing or reluctant to take a job in the future and how their motivations for either were related to their socio-demographic characteristics.</p><p><strong>Methods: </strong>The study sample consisted of 1000 adults with intellectual disability, 547 men and 453 women aged 19-67 years, enrolled in VTC socio-occupational rehabilitation programmes. Their intentions regarding future employment were determined during one-on-one semi-structured interviews utilising the Me and My Work questionnaires.</p><p><strong>Results: </strong>The quantitative analysis of the interview data showed equal numbers of study participants who wanted to work after training and those who did not consider this option, preferring to stay at a VTC. The qualitative analysis provided more knowledge of what specifically motivated each group's preferences.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70277"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13390655/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148551457","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Madonna Hany Youssef Yanni, Mohammed Abdelbagi Elmubarak, Hind Majid Mohammed Al Ali, Nadia Essa Mohammed Ali AlShammar, Amina AlShammar, Noura Suhail Alabrach, David Forbes, Madhusudan Deepak Thalitaya
{"title":"Linguistic and Cultural Adaptation and Translation Into Arabic of the Dementia Screening Questionnaire for Individuals With Intellectual Disabilities (DSQIID): The DSQIID-A (Arabic).","authors":"Madonna Hany Youssef Yanni, Mohammed Abdelbagi Elmubarak, Hind Majid Mohammed Al Ali, Nadia Essa Mohammed Ali AlShammar, Amina AlShammar, Noura Suhail Alabrach, David Forbes, Madhusudan Deepak Thalitaya","doi":"10.1111/jar.70286","DOIUrl":"10.1111/jar.70286","url":null,"abstract":"<p><strong>Background: </strong>Dementia is highly prevalent globally with a fivefold increased risk in individuals with intellectual disabilities, particularly those with Down syndrome. Culturally and linguistically sensitive screening tools to aid diagnosis and referral are essential to assist this population. The Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID) is the most psychometrically validated assessment tool for this population; however, no validated version for Arabic-speaking populations exists.</p><p><strong>Methods: </strong>This study employed a structured Delphi Process, translating and culturally adapting the DSQIID into Arabic using Arabic-speaking bilingual experts to ensure linguistic and cultural diversity including initial and back translations and two expert Delphi rounds.</p><p><strong>Results: </strong>The translation and adaptation process identified a series of adaptations incorporating word equivalence, context sensitivity, synonym selections, tense differentiations, multiple meanings of words and cultural nuances.</p><p><strong>Conclusion: </strong>The outcome is a robust translated and adapted version called DSQIID-A (Arabic) ready for validation in clinical and community settings.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 4","pages":"e70286"},"PeriodicalIF":1.9,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13481815/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148802714","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effectiveness of Cognitive Strategy Instruction in Writing on Practical Writing Skills of Children With Mild Intellectual Disabilities.","authors":"Liu Yang, Xi Wen, Yanyu Chen","doi":"10.1111/jar.70258","DOIUrl":"10.1111/jar.70258","url":null,"abstract":"<p><strong>Background: </strong>Practical writing skills are of great importance for children's social communication and successful career development. However, individuals with intellectual disabilities are more likely to face challenges in practical writing.</p><p><strong>Method: </strong>This study employed a single-case multiple-probe design across participants to evaluate the effectiveness of cognitive strategy instruction on the practical writing skills of three children with mild intellectual disabilities in China. The instruction targeted three specific genres: leave requests, lost and found notices and greeting cards.</p><p><strong>Results: </strong>The cognitive strategy instruction in writing showed significant intervention and maintenance effects on all dimensions of the three participants' practical writing skills. The intervention demonstrated stronger effects on planning and organization skills than on language expression and checking and revising skills.</p><p><strong>Conclusions: </strong>The preliminary findings support the feasibility and effectiveness of cognitive strategy instruction in writing for teaching practical texts for children with mild intellectual disabilities.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"39 3","pages":"e70258"},"PeriodicalIF":1.9,"publicationDate":"2026-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148207150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}