Lauren Ramsey, Justin Waring, Laura Sheard, Daisy Halligan, Siobhan McHugh, Ruth Simms-Ellis, Joe Langley, Jenni Murray, Olivia Rogerson, Jane K O'Hara
{"title":"The Learn Together programme (part B): evaluating co-designed guidance to support patient and family involvement in patient safety incident investigations.","authors":"Lauren Ramsey, Justin Waring, Laura Sheard, Daisy Halligan, Siobhan McHugh, Ruth Simms-Ellis, Joe Langley, Jenni Murray, Olivia Rogerson, Jane K O'Hara","doi":"10.3389/frhs.2025.1520816","DOIUrl":"https://doi.org/10.3389/frhs.2025.1520816","url":null,"abstract":"<p><strong>Background: </strong>Expectations of patient and family involvement in investigations of healthcare harm are becoming conventional. Nonetheless, <i>how</i> people should be involved, is less clear. Therefore, the \"Learn Together\" guidance was co-designed, aiming to provide practical and emotional support to investigators, patients and families.</p><p><strong>Aim: </strong>To longitudinally evaluate use of the Learn Together guidance in practice-designed to support patient and family involvement in investigations of healthcare harm.</p><p><strong>Methods: </strong>A 15-month process evaluation took place across five sites, following 29 investigations in which the Learn Together guidance was used. Sites comprised two mental health and two physical health hospital Trusts, and an independent maternity investigatory body in England. Longitudinally, 127 interviews were conducted with investigators, patients, families, staff, and management. Interview and observational data were synthesized using Pen Portraits and analyzed using multi-case thematic analysis.</p><p><strong>Findings: </strong>The guidance supported the systematic involvement of patients and families in investigations of healthcare harm and informed them how, why, and when to be involved across settings. However, within hospital Trusts, investigators often had to conduct \"pre-investigations\" to source appropriate details of people to contact, juggle ethical dilemmas of involving vs. re-traumatizing, and work within contexts of unclear organizational processes and responsibilities. These issues were largely circumvented when investigations were conducted by an independent body, due to better established processes, infrastructure and resources, however independence did introduce challenge to the rebuilding of relationships between families and the hospital Trust. Across settings, the involvement of patients and families fluctuated over time and sharing a draft investigation report marked an important part of the process-perhaps symbolic of organizational ethos surrounding involvement. This was made particularly difficult within hospital Trusts, as investigators often had to navigate systemic barriers alone. Organizational learning was also a challenge across settings.</p><p><strong>Conclusions: </strong>Investigations of healthcare harm are complex, relational processes that have the potential to either repair, or compound harm. The Learn Together guidance helped to support patient and family involvement and the evaluation led to further revisions, to better inform and support patients, families and investigators in ways that meet their needs (https://learn-together.org.uk). In particular, the five-stage process is designed to center the needs of patients and families to be heard, and their experiences dignified, before moving to address organizational needs for learning and improvement. However, as a healthcare system, we call for more formal recognition, support and training for","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1520816"},"PeriodicalIF":1.6,"publicationDate":"2025-04-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12052829/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144001390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Fiona J Gilbert, Jo Palmer, Nick Woznitza, Jonathan Nash, Carla Brackstone, Lisa Faria, J Kevin Dunbar, Henry David Jeffry Hogg, Xiaoxuan Liu, Alastair K Denniston
{"title":"Data and data privacy impact assessments in the context of AI research and practice in the UK.","authors":"Fiona J Gilbert, Jo Palmer, Nick Woznitza, Jonathan Nash, Carla Brackstone, Lisa Faria, J Kevin Dunbar, Henry David Jeffry Hogg, Xiaoxuan Liu, Alastair K Denniston","doi":"10.3389/frhs.2025.1525955","DOIUrl":"https://doi.org/10.3389/frhs.2025.1525955","url":null,"abstract":"<p><p>Artificial intelligence (AI) projects in healthcare research and practice require approval from information governance (IG) teams within relevant healthcare providers. Navigating this approval process has been highlighted as a key challenge for AI innovation in healthcare by many stakeholders focused on the development and adoption of AI. Data privacy and impact assessments are a part of the approval process which is often identified as the focal point for these challenges. This perspective reports insights from a multidisciplinary workshop aiming to characterise challenges and explore potential solutions collaboratively. Themes around the variation in AI technologies, governance processes and stakeholder perspectives arose, highlighting the need for training initiatives, communities of practice and the standardization of governance processes and structures across NHS Trusts.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1525955"},"PeriodicalIF":1.6,"publicationDate":"2025-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12053471/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144058073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Molly L Daughtry, Kristen E Miller, David Brennan, Joseph B Brodine
{"title":"Patient engagement pilot for uncontrolled hypertension: implications for quality, safety, and population health.","authors":"Molly L Daughtry, Kristen E Miller, David Brennan, Joseph B Brodine","doi":"10.3389/frhs.2025.1474634","DOIUrl":"https://doi.org/10.3389/frhs.2025.1474634","url":null,"abstract":"<p><strong>Introduction: </strong>Traditional methods of hypertension management often fall short in ensuring timely intervention and sustained patient engagement. This study explores the implementation of a patient-generated health data (PGHD) system using a text-message based platform to enhance patient engagement and improve hypertension control across diverse populations.</p><p><strong>Methods: </strong>We conducted a patient engagement campaign at MedStar Health within the Maryland Primary Care Program (MDPCP), targeting patients with poorly controlled hypertension across 54 clinics. The intervention utilized the Twistle platform to send automated text messages to patients, encouraging them to submit their home blood pressure readings. Data collection was automated, and the intervention's effectiveness was assessed through engagement metrics and blood pressure control outcomes.</p><p><strong>Results: </strong>Over a 20-day period, 11,597 patients were targeted, with 9,216 successfully receiving and engaging with the intervention. Of these, 28.5% responded with a blood pressure reading. Follow-up adjustments in patient care plans were made based on 1,209 responses indicating improved control of hypertension. The initiative demonstrated significant improvement in patient engagement and quality of hypertension management.</p><p><strong>Discussion: </strong>The use of PGHD via text messaging significantly enhanced patient engagement and the management of hypertension, contributing to better quality outcomes and patient safety. This approach proved particularly effective in reaching and impacting patients in underserved communities, where traditional healthcare interactions are often limited. The findings support broader adoption of PGHD interventions in chronic disease management and underscore the potential for digital health tools to transform patient care by actively involving patients in their health management.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1474634"},"PeriodicalIF":1.6,"publicationDate":"2025-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12040916/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144059296","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Naomi A van Westen-Lagerweij, Elisabeth G Meeuwsen, Esther A Croes, Niels H Chavannes, Eline Meijer
{"title":"Identifying roles in smoking cessation care for different types of healthcare providers: a qualitative study with people who smoke.","authors":"Naomi A van Westen-Lagerweij, Elisabeth G Meeuwsen, Esther A Croes, Niels H Chavannes, Eline Meijer","doi":"10.3389/frhs.2025.1421429","DOIUrl":"https://doi.org/10.3389/frhs.2025.1421429","url":null,"abstract":"<p><strong>Objective: </strong>This study aimed to explore how people who smoke, in particular those with a lower socioeconomic position, perceive the roles of different healthcare providers in smoking cessation care.</p><p><strong>Methods: </strong>Three semi-structured focus groups were held with a total of 15 people who smoke in community centres situated in low socioeconomic position neighbourhoods in the Netherlands. The focus groups were part of a larger study aimed at improving the delivery of smoking cessation care within primary care. Focus group transcripts were thematically analysed.</p><p><strong>Results: </strong>Participants believed it is the role of the general practitioner to initiate a conversation about smoking and inform them about the options for quitting. A quit advice from a medical specialist carried most weight for several participants. Participants felt that pharmacists and doctor's assistants are insufficiently qualified to advise on quitting smoking.</p><p><strong>Conclusion: </strong>People who smoke and have a lower socioeconomic position seem to have clear ideas about the roles of different healthcare providers in smoking cessation care. These ideas appear to be tied to the perception of whether a healthcare provider is qualified to address smoking.</p><p><strong>Practice implications: </strong>Doctors can use their authority to address smoking and provide advice. Actions are needed to improve people's perceptions of non-physicians in smoking cessation care.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1421429"},"PeriodicalIF":1.6,"publicationDate":"2025-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12034643/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144028197","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Christina Schuler, Faith Agbozo, Emmanuel Bansah, Barbara Preusse-Bleuler, Richard Owusu, Riccardo E Pfister
{"title":"Context matters: examining factors influencing the implementation of evidence-based family systems care for small and sick newborns across the care continuum.","authors":"Christina Schuler, Faith Agbozo, Emmanuel Bansah, Barbara Preusse-Bleuler, Richard Owusu, Riccardo E Pfister","doi":"10.3389/frhs.2025.1383292","DOIUrl":"https://doi.org/10.3389/frhs.2025.1383292","url":null,"abstract":"<p><strong>Introduction: </strong>The health and wellbeing of small and sick newborns and their families can be enhanced through family systems care (FSC) along the care continuum. FSC encompasses a broader approach than family-centered care. FSC identifies individual and family strengths while acknowledging illness-related suffering and providing expertise to help soften it through relational family systemic interventions. Contextual factors of the targeted healthcare setting need to be understood to implement FSC. This study aims to assess healthcare professionals' perceptions of health system features that may influence the successful context-adapted implementation of FSC into the care continuum for small and sick newborns and their families in the Ghanaian healthcare setting.</p><p><strong>Methods: </strong>Cross-sectional data were collected from 143 healthcare professionals, comprising nurses, midwives, and physicians who provide maternal and newborn care at a secondary facility and 13 primary health facilities in the Hohoe Municipality, Ghana. The Context Assessment for Community Health (COACH) instrument, employing Likert scales ranging from 1 to 5 and including questions on training history, was used to collect data on FSC through self-administered interviews. Data were analyzed using descriptive statistics with STATA.</p><p><strong>Results: </strong>While 48.9% of healthcare professionals reported never receiving any didactic or school-based training, the majority (96.5%) indicated a need for in-service training in FSC. From the highest score of 5, the COACH dimension for <i>organizational resources</i> had the lowest score (2.8). <i>Community engagement</i>, <i>commitment to work</i>, <i>monitoring services for action</i>, and <i>informal payment</i> reported scores between 3.7 and 3.9. The highest scores were reported for the <i>leadership</i> and <i>work culture</i> dimensions, at 4.1 and 4.2, respectively. Among the different units of the care continuum, the largest variations were observed in the subdimensions of <i>organizational resources</i> (2.5-3.4) and <i>informal payment</i> (3.6-4.4).</p><p><strong>Conclusion: </strong>The COACH tool provided contextual guidance for developing training strategies to implement a contextually appropriate FSC program in Ghana, which is likely to be adaptable and relevant in other low- and middle-income countries. Healthcare professionals perceive themselves as committed, with a favorable work culture and a positive perception toward their leaders, but they report limited resources and challenges in accessing knowledge sources. These findings indicate a readiness for FSC training along the continuum of care in the perinatal period.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1383292"},"PeriodicalIF":1.6,"publicationDate":"2025-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12018503/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rafael Pinedo-Villanueva, Muhammad K Javaid, Angela Williams, Isabelle Whittle, Matilde Franceschini, Ben Johnson
{"title":"A literature review of the healthcare resource use and productivity burden of X-linked hypophosphataemia.","authors":"Rafael Pinedo-Villanueva, Muhammad K Javaid, Angela Williams, Isabelle Whittle, Matilde Franceschini, Ben Johnson","doi":"10.3389/frhs.2025.1285246","DOIUrl":"https://doi.org/10.3389/frhs.2025.1285246","url":null,"abstract":"<p><strong>Introduction: </strong>X-linked hypophosphataemia (XLH) is a rare, genetic, renal phosphate wasting disorder that causes a lifelong rapid progression of morbidities, which are associated with substantial humanistic and economic burden. A structured literature review was carried out to identify publications reporting healthcare resource use and productivity impact of XLH to provide a comprehensive description of the burden.</p><p><strong>Methods: </strong>Literature searches of the Embase®, Medline®, and EconLit electronic databases were carried out in August 2022 using free-text and subject heading search terms regarding XLH-related clinical morbidities and associated healthcare resource use, limited to English language records from 1992 onwards.</p><p><strong>Results: </strong>After screening by pre-specified inclusion/exclusion criteria, 22 publications were selected for inclusion in the review. Use of conventional pharmacological therapy with oral phosphate and/or active vitamin D was reported in 15 publications, in up to 100% of paediatric patients and 75% of adults. Findings indicated that a high proportion of patients with XLH undergo orthopaedic procedures/surgeries, including a history of osteotomy in up to 25% of paediatric patients and 61% of adults, and a history of growth plate stapling in up to 63% of paediatric patients and 20% of adults. A high prevalence of fractures (in up to 61% of adults) and use of assistive mobility devices was also reported. The findings highlighted a substantial prevalence of morbidities, either due to persistently low phosphate levels or complications of conventional therapy, that had directly associated healthcare resource use, including dental problems, hearing problems, hyperparathyroidism, and nephrocalcinosis. Healthcare resource use and associated clinical events were generally found to be higher in adults compared with paediatric patients, which is consistent with the natural history of XLH as a progressive lifelong condition. Studies also highlighted the negative impact of XLH on school attendance and the ability to work.</p><p><strong>Discussion: </strong>The results of this structured literature review emphasise the lifelong impact of XLH, showing that it is associated with a substantial economic burden, across many healthcare resource use categories including pharmacological therapy, management of pain and mobility, orthopaedic procedures, morbidities due to XLH or conventional therapy, and work/school productivity.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1285246"},"PeriodicalIF":1.6,"publicationDate":"2025-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12014534/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144008491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Annie Turner, Casey A Pederson, Eduardo Salgado, Allyson Dir, Zachary Adams, Tamika Zapolski, Leslie Hulvershorn, Matthew C Aalsma
{"title":"Characterizing caregivers of youth at risk for substance use and caregiver engagement in the youth legal system: a mixed methods approach.","authors":"Annie Turner, Casey A Pederson, Eduardo Salgado, Allyson Dir, Zachary Adams, Tamika Zapolski, Leslie Hulvershorn, Matthew C Aalsma","doi":"10.3389/frhs.2025.1455111","DOIUrl":"https://doi.org/10.3389/frhs.2025.1455111","url":null,"abstract":"<p><strong>Background: </strong>Increasing caregiver and family participation is a key feature underlying many strategies to improve success among youth on community supervision. However, engaging caregivers in probation services remains a challenge for juvenile probation officers (JPOs), especially in families with significant needs. The goal of this study was to gain a better understanding of caregivers of legally involved youth at risk for substance use and their engagement with the youth legal system from a legal staff perspective.</p><p><strong>Methods: </strong>In this mixed-methods study, qualitative interviews were conducted with <i>n</i> = 15 youth legal staff from two midwestern counties. In addition, surveys were analyzed from <i>n</i> = 72 caregivers of youth with recent legal involvement who were also at risk for substance use in the two counties to characterize caregivers and provide context to the staff interviews.</p><p><strong>Results: </strong>Qualitative themes identified from the staff interviews included defining caregiver engagement, barriers to caregiver engagement (e.g., financial barriers, transportation barriers, caregiver substance use, and lack of parenting skills), and strategies to increase caregiver engagement. Quantitative data from the caregiver surveys focused on demographics and life circumstances of caregivers in the counties studied.</p><p><strong>Conclusions: </strong>Results highlight a wide variability in degree of caregiver participation with the youth legal system and legal staff's approaches to caregivers as well as significant barriers that caregivers face in their attempt to be involved in their youth's lives and legal cases. Additional work is needed to explore the caregiver perspective and identify the impact of specific caregiver characteristics on their youth and their youth's legal outcomes.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1455111"},"PeriodicalIF":1.6,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12011872/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144063448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Breanna J Reyes, Stephenie Tinoco Calvillo, Angel Lomeli, Arleth A Escoto, Maria Linda Burola, Kelli L Cain, Linda Salgin, Maria Balbuena-Bojorquez, Anne-Marie Engler, Marva Seifert, Louise C Laurent, Nicole A Stadnick, Borsika A Rabin
{"title":"Understanding adaptations in a community-vetted COVID-19 testing program.","authors":"Breanna J Reyes, Stephenie Tinoco Calvillo, Angel Lomeli, Arleth A Escoto, Maria Linda Burola, Kelli L Cain, Linda Salgin, Maria Balbuena-Bojorquez, Anne-Marie Engler, Marva Seifert, Louise C Laurent, Nicole A Stadnick, Borsika A Rabin","doi":"10.3389/frhs.2025.1408940","DOIUrl":"https://doi.org/10.3389/frhs.2025.1408940","url":null,"abstract":"<p><strong>Background: </strong>Adaptations are expected when complex public health interventions are implemented in dynamically and rapidly changing real-world settings, as seen for many programs during the COVID-19 pandemic. Systematic documentation of adaptations to intervention components and strategies are critical when assessing their impact on implementation. Here, we report processes used for tracking and evaluating adaptations made during the CO-CREATE project, which aimed to address COVID-19 testing disparities in the San Ysidro US/Mexico border community.</p><p><strong>Methods: </strong>The study utilized a longitudinal, prospective, mixed methods approach to systematically document and assess adaptations across the pre-implementation, early and mid/late-implementation phases of the project. Aggregated from a combination of sources (i.e., meeting notes, Advisory Board transcripts, and periodic reflections), adaptations were entered weekly into an electronic database that captured information on 16 characteristics and were validated by study staff. The impacts of the adaptations were determined using a team consensus approach and based on the outcomes from the Reach, Effectiveness, Adoption, Implementation, and Maintenance framework. Each adaptation was evaluated to determine whether it increased, decreased, had no effect, or not applicable to the RE-AIM outcomes. Data were analyzed using descriptive statistics.</p><p><strong>Results: </strong>98 adaptations were identified, and most were identified by research staff (<i>n</i> = 79, 75.2%). Planned adaptations were defined as those discussed between at least two research team members prior to implementation. Unplanned adaptations were defined as a change made without shared discussion and agreement among at least 2 research team members. Most adaptations were planned (<i>n</i> = 93, 94.9%). Of those that were planned, (<i>n</i> = 21, 22.6%) occurred during pre-implementation, (<i>n</i> = 26, 28.0%) during early implementation, and (<i>n</i> = 46, 49.4%) during mid/late implementation. Of those that were unplanned, (<i>n</i> = 1, 20.0%) occurred during pre-implementation and (<i>n</i> = 4, 80.0%) occurred during implementation. Most adaptations (<i>n</i> = 45, 45.9%) had a positive impact (i.e., increase) on the efficiency of delivery of services, meaningful engagement of partners, and reach of community members through the program.</p><p><strong>Conclusion: </strong>This work describes our systematic and prospective approach to document and analyze adaptations over a two-year period and assesses the impact of these adaptations. Lessons learned from this work can be used to develop best practices for adapting interventions to ensure sustainable implementation and address disparities in public health and clinical programs.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1408940"},"PeriodicalIF":1.6,"publicationDate":"2025-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12009949/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144045304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Andrea Brambilla, Gabriele Mario Perotti, Valentina Villa, Isabella Nuvolari-Duodo, Antonio Triarico, Carlo Nicora, Stefano Capolongo
{"title":"Healthcare workers and adult patients preferences of hospital built environment. Survey in ordinary surgery and medical oncology ward at the Italian National Oncology Institute.","authors":"Andrea Brambilla, Gabriele Mario Perotti, Valentina Villa, Isabella Nuvolari-Duodo, Antonio Triarico, Carlo Nicora, Stefano Capolongo","doi":"10.3389/frhs.2025.1546103","DOIUrl":"https://doi.org/10.3389/frhs.2025.1546103","url":null,"abstract":"<p><strong>Background: </strong>Experience is an important factor in hospitalisation and treatment processes, especially in oncology. The preferences of patients and health workers have recently been increasingly considered as key elements for supporting clinical and organisational performances. The relationship between staff and patients preferences and the quality of hospital built environment is also an important aspect but it is still underexplored in the scientific literature.</p><p><strong>Aim: </strong>The study aims to understand both qualitatively and quantitatively how the hospital built environment influences the well-being of patients and staff in ordinary surgery and medical oncology ward of a national institute for oncology in Northen Italy.</p><p><strong>Methods: </strong>The research was carried out according to the following methodological sequence: (i) identification of the target and setting; (ii) elaboration of a questionnaire with 22 items; (iii) administration of the questionnaire on a sample of patients and health professionals; (iv) data collection in a dedicated database; (v) data analysis and interpretation.</p><p><strong>Results: </strong>A total of 521 adult oncology patients and 311 health workers participated in the study. The findings highlight differences and similarities of preferences among patients and staff regarding built environment features that are reported in scientific literature. For example, patients shows limited interest in the possibility of having a single room (only 31% report it as very important), while from the staff point of view, there is a predominantly importance-oriented distribution with 51% and 83% of the respondents that consider this to be of great relevance respectively for their practice and for the patient experience.</p><p><strong>Conclusion: </strong>The findings underline the importance of considering the perspectives of oncological patients and healthcare workers in the assessment of oncology wards for future evidence-based hospital design.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1546103"},"PeriodicalIF":1.6,"publicationDate":"2025-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12010251/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144044095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén
{"title":"Person-centred care as an evolving field of research: a scoping review.","authors":"Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén","doi":"10.3389/frhs.2025.1534178","DOIUrl":"https://doi.org/10.3389/frhs.2025.1534178","url":null,"abstract":"<p><strong>Introduction: </strong>Changes in policy towards a healthcare approach viewing patients as persons provide calls for person-centred healthcare practices. The objective of this scoping review was to present an overview of the international literature on PCC.</p><p><strong>Methods: </strong>Database-specific search string including index terms and free text words related to PCC were constructed to identify relevant literature indexed in PubMed, Scopus, PsychINFO, CINAHL and Web of Science. Two different methods of combined manual and computer-assisted screening were applied to identify citations to be included in the review.</p><p><strong>Results: </strong>In total, 1,351 publications were included, whereof theoretical and empirical studies were most prevalent in the sample. For the latter, the most common setting was hospital care. The study population was most often health professionals or patients. The most frequently used term was patient-centred, followed by person-centred and family-centred. Research from six continents was included. An exploration of collaborations and research clusters has revealed several clusters.</p><p><strong>Discussion: </strong>This review provides a snapshot of the literature on PCC. The lack of clarity in terminology presents barriers to comprehensively overviewing the vast amount of available research within the field, which in turn presents challenges for research-based policy and practice development.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1534178"},"PeriodicalIF":1.6,"publicationDate":"2025-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12006168/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}