Acta dermato-venereologica最新文献_第7页

Alopecia Areata: Impact on Patients' Quality of Life and Disease Perception: A Survey-Based Study. 斑秃：对患者生活质量和疾病认知的影响：一项基于调查的研究。

IF 3.7 4区医学

Acta dermato-venereologica Pub Date : 2025-07-19 DOI: 10.2340/actadv.v105.43318

Christian Vestergaard, Daniel de la Rosa Carrillo, Randeep Mandla, Anne Grete Frøstrup, Susanne T Gren, Petri Vänni, Anna-Kaisa Asikainen, Kristian Kofoed, Cato Mørk

{"title":"Alopecia Areata: Impact on Patients' Quality of Life and Disease Perception: A Survey-Based Study.","authors":"Christian Vestergaard, Daniel de la Rosa Carrillo, Randeep Mandla, Anne Grete Frøstrup, Susanne T Gren, Petri Vänni, Anna-Kaisa Asikainen, Kristian Kofoed, Cato Mørk","doi":"10.2340/actadv.v105.43318","DOIUrl":"10.2340/actadv.v105.43318","url":null,"abstract":"Alopecia areata significantly impacts patients' emotional and psychosocial well-being. This survey investigated patients' perspectives on disease severity and its impact on quality of life. The study evaluated whether disease assessment tools (Severity of Alopecia Tool, Dermatology Life Quality Index, and Patient Unique Stigmatization Holistic tool in dermatology) reflect patients' perceptions of their condition. The study was conducted as an anonymous social media survey in Norway and Denmark. The questionnaire was divided into 3 main sections: (i) demographics and disease characteristics; (ii) disease severity and QoL measures; and (iii) patient perception and psychosocial impact. A total of 360 individuals participated in the survey reporting alopecia areata as mild (15%), moderate (29%), or severe (58%). Some 61% reported alopecia areata to interfere with their daily or weekly activities. All disease assessment tools demonstrated an age-dependent pattern, where scores were highest in the youngest (< 30 years) responder group. The relationship between Dermatology Life Quality Index and Severity of Alopecia Tool scores was found to be weak (R-squared = 0.08). Similarly, the correlation between Dermatology Life Quality Index and self-reported disease severity was also weak (R-squared = 0.136). This study demonstrates that there is a clear need for the development of more comprehensive, validated, and patient-centred assessment tools that can accurately reflect the physical, emotional, psychological, and social challenges faced by individuals with alopecia areata.","PeriodicalId":6944,"journal":{"name":"Acta dermato-venereologica","volume":"105 ","pages":"adv43318"},"PeriodicalIF":3.7,"publicationDate":"2025-07-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12305969/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144666776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Awareness, Patient Behaviour, and Treatment Expectations in a French Cohort with Actinic Keratosis (REAKT Survey). 法国一群光化性角化病患者的意识、患者行为和治疗预期（REAKT调查）。

IF 3.7 4区医学

Acta dermato-venereologica Pub Date : 2025-07-19 DOI: 10.2340/actadv.v105.43351

Jean-Michel Amici, Pierre Lévy, Gregory Caillet, Chantal Touboul, Jean-Michel Joubert, Brigitte Dréno

{"title":"Awareness, Patient Behaviour, and Treatment Expectations in a French Cohort with Actinic Keratosis (REAKT Survey).","authors":"Jean-Michel Amici, Pierre Lévy, Gregory Caillet, Chantal Touboul, Jean-Michel Joubert, Brigitte Dréno","doi":"10.2340/actadv.v105.43351","DOIUrl":"10.2340/actadv.v105.43351","url":null,"abstract":"This study was undertaken to evaluate disease awareness, attitudes, and expectations in people with actinic keratosis (AK) in France. A total of 639 participants aged ≥ 40 years reporting AK lesions diagnosed by a physician were recruited from a representative general population panel. Data were collected on disease awareness, care experience, sun protection behaviour,, and treatment expectations. The proportion of participants endorsing correct statements about AK rarely exceeded 50%. Only 332 participants (52.0%) reported that they knew much about treatments and 134 (21.0%) never felt the need to request information; 545 participants (85.3%) reported that waiting times to see dermatologists were excessive; 160 treated participants (40.8%) reported lesion persistence after treatment; and 140 (35.3%) that certain treatments made their skin painful or unsightly. Sun protection was sub-optimal, with 145 participants (22.7%) rarely or never going out in the sun with protection and 334 (52.3%) rarely or never putting on sunscreen in the morning. The most frequently desired improvements to care were \"Treatments that make lesions disappear\" (n = 528; 82.6%), \"Treatments that are easy to use\" (n = 524; 82.0%) and \"Physicians to propose regular skin examinations\" (n = 510; 79.8%). In conclusion, better information and education for AK patients are needed, as well as more acceptable topical treatments.","PeriodicalId":6944,"journal":{"name":"Acta dermato-venereologica","volume":"105 ","pages":"adv43351"},"PeriodicalIF":3.7,"publicationDate":"2025-07-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12305970/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144666777","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Skin Erosion on the Nasal Root with Marked Right Eyelid Swelling: A Quiz. 鼻根皮肤糜烂伴右眼睑明显肿胀：小测验。

IF 3.7 4区医学

Acta dermato-venereologica Pub Date : 2025-07-19 DOI: 10.2340/actadv.v105.43874

Yoshihito Mima, Masako Yamamoto, Ken Iozumi

引用次数: 0

Melanoma during Ruxolitinib Treatment for Myelofibrosis. 鲁索利替尼治疗骨髓纤维化期间的黑色素瘤。

IF 3.7 4区医学

Acta dermato-venereologica Pub Date : 2025-07-19 DOI: 10.2340/actadv.v105.44196

Lingzhi Zhong, Houmin Li, Guangdong Wen

引用次数: 0

Cutaneous Mass with Indurated Erythema in the Right Popliteal Fossa: A Quiz. 右腘窝皮肤肿块伴硬化性红斑：一个小测验。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-11 DOI: 10.2340/actadv.v105.43722

Yoshihito Mima, Masako Yamamoto, Ken Iozumi

引用次数: 0

Tense Bullous Eruptions Arising in Porokeratosis: A Quiz. 角化症引起的紧张大疱：一个小测验。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-11 DOI: 10.2340/actadv.v105.43898

Tomoko Hirano, Naotomo Kambe, Kenji Kabashima

引用次数: 0

Allergic Contact Dermatitis in a Paediatric Population: A 20-year Nationwide Registry-based Study. 儿童人群的过敏性接触性皮炎：一项20年的全国性登记研究。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-10 DOI: 10.2340/actadv.v105.43557

Suvi-Päivikki Sinikumpu, Jari Jokelainen, Laura Huilaja

引用次数: 0

Multiple Erythematous Oedematous Plaques on the Neck of a 68-year-old Man: A Quiz. 68岁男子颈部多发性红斑水肿斑块：一个小测验。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-10 DOI: 10.2340/actadv.v105.43241

Phanitanun Phusanawiwat, Patcharawadee Thongkumkoon, Siri Chiewchanvit, Chatree Chai-Adisaksopha, Mati Chuamanochan

引用次数: 0

Occupational Sensitization to Colophony Subsequently Giving Rise to Both Environmental and Occupational Allergic Contact Dermatitis. 对松香的职业性致敏可引起环境和职业性过敏性接触性皮炎。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-10 DOI: 10.2340/actadv.v105.43296

Jakob Willner, Magnus Bruze, Jakob Dahlin, Kajsa Davidson Källberg, Cecilia Svedman

引用次数: 0

Assessing Atopic Dermatitis Control in Chinese Patients: Validation of the Chinese Version of Recap of Atopic Eczema Questionnaire (RECAP) and an Investigation into Its Interpretability. 评估中国患者的特应性皮炎控制：中文版特应性湿疹问卷（Recap）的验证及其可解释性的研究。

IF 3.5 4区医学

Acta dermato-venereologica Pub Date : 2025-07-08 DOI: 10.2340/actadv.v105.43458

Junfen Zhang, Shunmin Zhu, Liyan Yuan, Xiaoling Yu, Shiqi Ling, Jiao Zhang, Bin Yang

{"title":"Assessing Atopic Dermatitis Control in Chinese Patients: Validation of the Chinese Version of Recap of Atopic Eczema Questionnaire (RECAP) and an Investigation into Its Interpretability.","authors":"Junfen Zhang, Shunmin Zhu, Liyan Yuan, Xiaoling Yu, Shiqi Ling, Jiao Zhang, Bin Yang","doi":"10.2340/actadv.v105.43458","DOIUrl":"10.2340/actadv.v105.43458","url":null,"abstract":"The lack of a validated Chinese version of the Recap of Atopic Eczema questionnaire (RECAP) questionnaire limits its applicability. This prospective study, conducted at a Chinese tertiary hospital between April and November 2024, aimed to evaluate measurement properties of the Chinese RECAP. Participants completed RECAP and reference instruments at baseline, 1-3 days, and 4-6 weeks. Construct validity was evaluated through hypothesis testing, while reliability was assessed using standard error of measurement (SEMagreement) and intraclass correlation coefficient (ICCagreement). Interpretability of both single and change scores was examined using anchor-based methods. In total, 153 adults with atopic dermatitis (AD) (mean age 28.4 years, 51.0% male) were included, with approximately half having moderate-to-severe disease. Of the predefined hypotheses, 57.1% (single score) and 71.4% (change score) were confirmed. The SEMagreement was 1.99, and the ICCagreement was 0.96. Final RECAP bandings were established, with a binary cutoff of ≥ 11 defining uncontrolled AD. The Smallest Detectable Change was 5.5. while the Minimally Important Change was 3.5 using the receiver operating characteristics (ROC) method and 0.6 after adjustment via predictive modelling. Our finding confirmed that the Chinese RECAP is a valid, reliable, and responsive tool for evaluating eczema control. An improvement of ≥ 6 represents a real and clinically meaningful change.","PeriodicalId":6944,"journal":{"name":"Acta dermato-venereologica","volume":"105 ","pages":"adv43458"},"PeriodicalIF":3.5,"publicationDate":"2025-07-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12278773/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144590215","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0