Laura Gallego-Alberto, José Ángel Martínez-Huertas, María Márquez-González, Isabel Cabrera, Javier Olazarán, Andrés Losada-Baltar
{"title":"'The flexible, the rigid and the ambivalent': a latent profile analysis in dementia caregiving regarding ambivalence, guilt, experiential avoidance, and dysfunctional beliefs.","authors":"Laura Gallego-Alberto, José Ángel Martínez-Huertas, María Márquez-González, Isabel Cabrera, Javier Olazarán, Andrés Losada-Baltar","doi":"10.1080/13607863.2024.2430530","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430530","url":null,"abstract":"<p><strong>Objectives: </strong>Taking care of a relative with dementia is linked to relevant consequences on the physical and psychological status of the caregiver. However, several variables, such as experiential avoidance, ambivalence, and guilt feelings or the presence of rigid beliefs about care, may influence the impact of the stressors derived from caregiving. The objective was to identify caregiving profiles based on these variables and to examine their correlates.</p><p><strong>Method: </strong>A total of 456 dementia caregivers participated.</p><p><strong>Results: </strong>The results of latent profile analysis yielded three distinct profiles: (1) flexible, (2) rigid, and (3) ambivalent. The ambivalent profile was mostly composed of younger women who reported higher levels of depression, anxiety, and desire to institutionalize their relative with dementia. The rigid profile showed a lower use of formal resources for caring.</p><p><strong>Conclusion: </strong>Our findings may help clinicians to identify highly vulnerable profiles in caregiving, which may be defined by being a younger woman, devoting fewer hours to caring, and reporting high stress associated with behavioral problems, and high levels of guilt and ambivalence.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-9"},"PeriodicalIF":2.8,"publicationDate":"2024-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142717805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dementia and the Deaf community: prevalence, assessment and management in people with hearing loss since childhood.","authors":"Isabelle Flower, Eithne Heffernan, Tom Dening","doi":"10.1080/13607863.2024.2430533","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430533","url":null,"abstract":"<p><strong>Objectives: </strong>Deaf people face complex challenges in accessing healthcare, particularly for age-related conditions, yet the Deaf community is largely overlooked in dementia research. This study explores healthcare issues in relation to dementia for older Deaf individuals, and perspectives of stakeholders regarding dementia and the Deaf community.</p><p><strong>Method: </strong>Combined approach of (1) narrative literature review using five online databases and grey literature and (2) semi-structured interviews with eight participants with lived experience or knowledge of the Deaf community and/or dementia. Interview data were analysed thematically and integrated with literature review findings.</p><p><strong>Results: </strong>People in the Deaf community exhibit higher rates of dementia risk factors (eg obesity, hypertension, diabetes, and depression). Under-diagnosis and under-treatment are more common, likely attributed to language barriers and insufficient Deaf awareness among healthcare staff. Research on the relationship between profound hearing loss and dementia, and the prevalence of dementia among Deaf people, is scarce. Practical changes are needed to tailor dementia assessments and services for Deaf people.</p><p><strong>Conclusion: </strong>Deaf awareness training, health-care information in sign language, and accessible dementia services are crucial for improving healthcare access and outcomes for Deaf people. Co-production with the Deaf community is required in future research and healthcare service improvement initiatives.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-10"},"PeriodicalIF":2.8,"publicationDate":"2024-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142692948","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lee-Fay Low, Annica Barcenilla-Wong, Kate Laver, Mark Yates, Caroline Gibson, Sam Shen, Danika Hall, Henry Brodaty, Dimity Pond, Tracy Comans, Monica Cations, Meredith Gresham, Liliana Laranjo, Edwin C K Tan, Lyn Phillipson
{"title":"Development of a model of help-seeking for dementia diagnosis by the person experiencing changes and family supporters.","authors":"Lee-Fay Low, Annica Barcenilla-Wong, Kate Laver, Mark Yates, Caroline Gibson, Sam Shen, Danika Hall, Henry Brodaty, Dimity Pond, Tracy Comans, Monica Cations, Meredith Gresham, Liliana Laranjo, Edwin C K Tan, Lyn Phillipson","doi":"10.1080/13607863.2024.2430537","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430537","url":null,"abstract":"<p><strong>Objectives: </strong>This paper aimed to develop a model to describe help-seeking for dementia diagnosis. The practical model is intended to guide public health interventions to increase help-seeking.</p><p><strong>Method: </strong>The model was developed by our multidisciplinary team based on qualitative semi-structured interviews in English (<i>n</i> = 33) and Chinese (<i>n</i> = 8) with older people, people with dementia and carers. The model was also informed by systematic reviews on help-seeking for dementia diagnosis, theories of help-seeking and further iterated based on feedback from a co-design group (<i>n</i> = 10).</p><p><strong>Results: </strong>The model starts with changes which might be symptoms of dementia being observed by the person or family/friends and ends in dementia assessment. Model steps are (1) The person deciding that the changes represent a health problem; (2) obtaining support or confirmation from family/friends that the changes are a health problem; (3) deciding to seek medical help; and (4) persuading the GP to facilitate dementia assessment. The model applies to English and Chinese-speaking Australians, though there were additional barriers for Chinese speakers. There are personal, family, community and health system barriers at each step.</p><p><strong>Conclusion: </strong>Interventions to improve diagnosis of dementia might target public knowledge of dementia symptoms and benefits of a diagnosis, and general practice.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-10"},"PeriodicalIF":2.8,"publicationDate":"2024-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693439","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ryan A Mace, Joshua E Cohen, Christopher Lyons, Christine Ritchie, Stephen Bartels, Olivia I Okereke, Bettina B Hoeppner, Judson Brewer, Jin Hui Joo, Ana-Maria Vranceanu
{"title":"Socio-ecological barriers to behavior change-oriented dementia prevention: a qualitative study of healthcare professionals' perspectives.","authors":"Ryan A Mace, Joshua E Cohen, Christopher Lyons, Christine Ritchie, Stephen Bartels, Olivia I Okereke, Bettina B Hoeppner, Judson Brewer, Jin Hui Joo, Ana-Maria Vranceanu","doi":"10.1080/13607863.2024.2430525","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430525","url":null,"abstract":"<p><strong>Objectives: </strong>This qualitative study aimed to: (1) identify socio-ecological barriers to behavior change-oriented dementia (AD/ADRD) prevention from the perspectives of healthcare professionals, and (2) propose strategies to address these barriers during a clinical trial for an AD/ADRD prevention program (<i>My Healthy Brain</i>).</p><p><strong>Method: </strong>Multidisciplinary healthcare professionals involved in geriatric care (<i>N</i> = 26, <i>M</i> experience > 17 years) from diverse clinics within a medical center participated in focus groups. Using the Socio-Ecological Model (SEM), 5 focus groups were conducted to identify individual, interpersonal, institutional, community, and societal barriers. The Expert Recommendations for Implementing Change (ERIC) framework informed evidence-based strategies to overcome these barriers.</p><p><strong>Results: </strong>Healthcare professionals identified barriers, including limited resources, language and technological barriers, provider dismissiveness, competing institutional priorities, underrepresentation of minority groups, and biases towards biomedical treatments. Strategies to address these barriers involved enhancing accessibility, increasing provider training and support, integrating interventions within clinic operations, fostering community partnerships, and addressing societal misconceptions and biases.</p><p><strong>Conclusion: </strong>Integrating SEM and ERIC frameworks yielded strategies that will be used in <i>My Healthy Brain</i> trial to enhance equity and responsiveness to diverse older adults. Our results can inform efforts to address multi-level barriers to AD/ADRD prevention and the larger contexts influencing risk factors.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-10"},"PeriodicalIF":2.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A Mahmoud, S Raghuraman, E Richards, S Morgan-Trimmer, V A Goodwin, R Anderson, L Allan
{"title":"Experience of carers for older people with delirium: a qualitative study.","authors":"A Mahmoud, S Raghuraman, E Richards, S Morgan-Trimmer, V A Goodwin, R Anderson, L Allan","doi":"10.1080/13607863.2024.2430526","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430526","url":null,"abstract":"<p><strong>Objectives: </strong>There is a gap in our understanding of the experiences and needs of carers for patients with delirium and a scarcity of research on the topic in the UK. This study aims to explore the needs and experiences of carers for person with delirium and offer suggestions to support them.</p><p><strong>Method: </strong>A qualitative interview study with carers of patients with delirium. Data were analysed using an abductive analysis approach.</p><p><strong>Results: </strong>Fourteen carers were interviewed. We identified four themes; carers' involvement in providing care for the person with delirium, carers' perspectives of caregiving, support for carers and impact for caregiving on carers. Carers felt a responsibility to support the patient and to obtain information on delirium and its management on their own. Caregiving for a person with delirium had an emotional impact on the carer and they needed to change their lifestyle to maintain their caregiving responsibilities, as a result of the limited support they had.</p><p><strong>Conclusion: </strong>More support for the carer in care plans with focus on emotional support, support groups for carers of people with delirium and assigning a case worker should be taken into consideration when developing interventions for people with delirium at home. These solutions may mitigate the impact of caregiving role on the mental and physical wellbeing of the carer for older person with delirium.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-8"},"PeriodicalIF":2.8,"publicationDate":"2024-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142693414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nikki-Anne Wilson, Nicolas Cherbuin, Kim Kiely, Kaarin J Anstey
{"title":"Change in visual acuity over a 12-year period predicts cognitive decline in older adults: identifying social engagement as a potential mediator.","authors":"Nikki-Anne Wilson, Nicolas Cherbuin, Kim Kiely, Kaarin J Anstey","doi":"10.1080/13607863.2024.2430529","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430529","url":null,"abstract":"<p><strong>Objectives: </strong>Deterioration in vision is an important dementia risk factor yet few studies have examined objectively measured changes in visual acuity over time. Visual decline may also reduce social engagement, highlighting the need to examine visual changes in concert with broader social function.</p><p><strong>Method: </strong>The relationship between change in visual acuity (logMAR) and cognitive decline was examined in 2,281 participants from the PATH study using hierarchical linear regression. Step 2 determined whether social network significantly enhanced model fit. Exploratory mediation analysis examined the indirect effect of vision change on overall cognition <i>via</i> social networks.</p><p><strong>Results: </strong>Adjusted models showed deterioration in visual acuity significantly predicted poorer cognition across domains (MMSE, β = -0.08, <i>p</i> <b>≤</b> 0.001; TMT B-A, β <i>=</i> 0.09<i>, p</i> = 0.004; SDMT, β <i>=</i> -0.07, <i>p</i> <b>≤</b> 0.001). Model 2 significantly improved model fit for overall cognition only (MMSE, <i>F<sup>change</sup></i>(1,1421)= 6.03, <i>p</i> = 0.014). The indirect effect of social network was marginally significant (β = -0.004, SE = 0.002, BCa 95%CI = -0.0088, -0.0002).</p><p><strong>Conclusion: </strong>Deterioration in visual acuity significantly predicted multi-domain cognitive decline highlighting the importance of visual screening and treatment for vision loss. Social engagement partially mediated the relationship between vision change and overall cognition suggesting psychosocial factors may help to reduce the impact of visual decline.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-7"},"PeriodicalIF":2.8,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Community- and individual-level social capital and cognitive function among older adults in China: a multilevel analysis.","authors":"Yuqi Yan, Nan Lu","doi":"10.1080/13607863.2024.2430535","DOIUrl":"https://doi.org/10.1080/13607863.2024.2430535","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to examine (a) the association of cognitive function with community- and with individual-level cognitive and structural social capital, and (b) the cross-level interaction effects of social capital on cognitive function among older adults in China.</p><p><strong>Method: </strong>Quota sampling was used to collect data from 800 respondents living in 20 communities in Tianjin and Shijiazhuang, China, in 2020. Multilevel analysis was conducted to examine the hypotheses.</p><p><strong>Results: </strong>Individual-level structural social capital was significantly associated with better cognitive function. Furthermore, individual-level cognitive social capital was negatively associated with cognitive function among older adults with low community-level structural social capital, whereas the above association was positive among those with high community-level structural social capital. Following the same pattern, the associations between community-level structural social capital and cognitive function varied by individual-level cognitive social capital.</p><p><strong>Conclusion: </strong>This research highlights the protective role of individual-level structural social capital in Chinese older adults' cognitive function. It also delivers in-depth insights into the varying associations between social capital and cognitive function across different communities or individuals. Future research and practices should focus on cultivating social capital at both levels, and pay attention to the cross-level interactions of social capital.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-9"},"PeriodicalIF":2.8,"publicationDate":"2024-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142677748","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jose Adrian Fernandes-Pires, María Márquez-González, Laura Garcia-Garcia, María Del Sequeros Pedroso-Chaparro, Isabel Cabrera, Karl Pillemer, Andrés Losada-Baltar
{"title":"Psychometric properties of the Partner Ambivalence Scale in middle-aged and older adults.","authors":"Jose Adrian Fernandes-Pires, María Márquez-González, Laura Garcia-Garcia, María Del Sequeros Pedroso-Chaparro, Isabel Cabrera, Karl Pillemer, Andrés Losada-Baltar","doi":"10.1080/13607863.2024.2427137","DOIUrl":"https://doi.org/10.1080/13607863.2024.2427137","url":null,"abstract":"<p><strong>Objectives: </strong>Ambivalent feelings in a partner relationship, characterized by simultaneous positive and negative emotional experiences, can significantly influence individuals' mental health. Traditionally measured indirectly, this study introduces the Partner Ambivalence Scale (PAS), developed for directly capturing the complexity of ambivalent emotions. This study aimed to analyze the psychometric properties of the PAS, and assess the effects of ambivalent feelings on partner relationship quality and depressive symptomatology.</p><p><strong>Method: </strong>390 individuals (60% women), 40 years or older (<i>M</i> = 60.88, SD = 10.7), and in a partner relationship, participated. Data collected included ambivalent feelings in couples, marital satisfaction, frequency of arguments, and depressive symptoms.</p><p><strong>Results: </strong>The exploratory factor analysis of the PAS yielded a one factor structure explaining 59% of the variance of ambivalent feelings. Higher ambivalent feelings were associated with lower marital satisfaction, higher frequency of disagreements, and higher depressive symptoms. Even when controlling for covariates, ambivalent feelings contributed significantly to the explanation of depress on.</p><p><strong>Conclusion: </strong>The PAS demonstrates good psychometric properties, making it suitable for use with middle-aged and older adults. Ambivalent feelings toward the partner are significant for understanding partner relationship quality and mental health and may increase vulnerability to depressive symptoms during middle and older age.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-8"},"PeriodicalIF":2.8,"publicationDate":"2024-11-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142650001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Participation in diverse social activities predicts fewer depressive symptoms.","authors":"Sangha Jeon, Susan Turk Charles","doi":"10.1080/13607863.2024.2424476","DOIUrl":"https://doi.org/10.1080/13607863.2024.2424476","url":null,"abstract":"<p><strong>Objectives: </strong>Engagement in a greater number and more diverse activities is associated with higher levels of well‑being. One reason may be that these activities provide opportunities for a variety of social interactions. To examine the importance of the social nature of daily activity, the current study examines the unique association between social activity variety and later depressive symptoms, after adjusting for non‑social activity variety.</p><p><strong>Method: </strong>Using data from the Health and Retirement Study (HRS), we included 5,160 adults in a cross‑sectional analysis from 2008 and 3,081 adults in a longitudinal analysis spanning 2008 to 2012, all of whom completed questionnaires on social activity participation and depressive symptoms.</p><p><strong>Results: </strong>Cross‑sectional findings indicated that social activity variety was related to lower severity of depressive symptoms, but not likelihood of having any depressive symptoms, after adjusting for health, sociodemographic covariates, and non‑social activity. Longitudinal results showed that participants with consistently high levels of social activity variety over four years experienced fewer depressive symptoms at follow‑up compared to those with low levels, even after adjusting for baseline depressive symptoms.</p><p><strong>Conclusion: </strong>Findings suggest that participation in a greater variety of social activities can be a protective factor against the severity of depressive symptoms.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-9"},"PeriodicalIF":2.8,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142633324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sera Levy, Karen Hirschman, Austin Matus, Gladys Thomas, Barbara Riegel, Rebecca Ashare
{"title":"Do coping style and future time perspective relate to surrogate decision-making preparedness? A cross-sectional analysis of heart failure caregivers.","authors":"Sera Levy, Karen Hirschman, Austin Matus, Gladys Thomas, Barbara Riegel, Rebecca Ashare","doi":"10.1080/13607863.2024.2424478","DOIUrl":"https://doi.org/10.1080/13607863.2024.2424478","url":null,"abstract":"<p><strong>Objectives: </strong>To assess if future time perspective (FTP) moderates the relationship between heart failure (HF) caregiver coping style and preparedness to make a surrogate medical decision.</p><p><strong>Method: </strong>Cross-sectional data was analyzed to assess associations among three different coping styles (i.e. avoidance, active, minimizing), FTP, and odds of feeling prepared to make a medical decision on behalf of a loved one with heart failure.</p><p><strong>Results: </strong>A total of 231 caregivers were included in analyses. No significant interaction effects emerged among coping style and FTP on odds of feeling prepared to make a surrogate medical decision. Caregiver burden was significantly and inversely related to feeling prepared across each coping style model. Reports of having the provider present for the medical wishes conversation was significantly related to odds of feeling prepared across each coping style model.</p><p><strong>Conclusion: </strong>FTP did not appear to moderate the relationship between coping styles and preparedness to make a medical decision on behalf of a loved one with heart failure. Future research should continue to explore possible characteristics that can be targeted to improve feelings of decision-making preparedness among caregivers of loved ones with HF.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"1-7"},"PeriodicalIF":2.8,"publicationDate":"2024-11-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142607495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}