'That feels alien to me, to be honest': using Applied Thematic Analysis to co-produce a culturally adapted psychosocial intervention with Sikh carers of people living with dementia.

Abstract

Objectives: Dementia prevalence is increasing in the UK, and Punjabi Sikhs are at increased risk over the coming 30 years. Existing psychosocial interventions, such as Empowered Conversations, have been designed to reduce risk of burnout in informal carers; although, despite research highlighting the benefits of culturally adapted care, there are no interventions adapted specifically for Sikh carers.

Method: 90-minute interviews were held online with 10 Sikh carers of people living with dementia. They were presented with Empowered Conversations resources and suggested changes to adapt them for Sikh carers.

Results: Themes were identified through Applied Thematic Analysis: (1) delivery and logistics should be tailored to increase accessibility, (2) 'kind' course facilitators with knowledge of Sikhi, (3) cultural nuances are important to hold in mind, (4) resources should be tailored to Punjabi Sikh culture in a way that does not exclude, and (5) carers rarely consider themselves or their own needs.

Conclusion: Participants advised that various aspects of Punjabi Sikh culture would be invaluable for intervention developers and facilitators to consider, including attitudes towards gender, religious principles and family dynamics. Further research should apply similar methods to further cultural adaptation of support for carers of people living with dementia from minoritised ethnic backgrounds.