BMC Medical Ethics最新文献

{"title":"Determinants of willingness to share personal genomic data: a systematic review focused on health literacy.","authors":"Marleen Schmeiss, Renate Schramek","doi":"10.1186/s12910-026-01456-w","DOIUrl":"10.1186/s12910-026-01456-w","url":null,"abstract":"<p><strong>Background: </strong>Genomic medicine increasingly depends on patients' willingness to share genomic and medical data. While data sharing supports advances in personalised care, it also raises ethical and social concerns related to privacy, trust and participation. Understanding these factors requires attention to patients' health literacy and their capacity to interpret and act upon genomic information.</p><p><strong>Methods: </strong>A systematic review was conducted according to PRISMA guidelines to identify empirical studies published between 2015 and 2025 that explored patients' understanding of genomic information and their willingness to share data. Searches were performed in PubMed, Web of Science and Scopus. Eligible studies included qualitative, quantitative and mixed-methods designs. Findings were synthesised thematically and Nutbeam's model of health literacy was used in the discussion to interpret the results.</p><p><strong>Results: </strong>Fifteen studies met the inclusion criteria. Participants demonstrated basic understanding of genetic terms but limited knowledge of data infrastructures and governance. Trust was a central factor influencing willingness to share data, often compensating for limited genomic literacy. Moral and altruistic motives encouraged engagement, whereas financial considerations played a minor, context-dependent role.</p><p><strong>Conclusions: </strong>Data sharing in genomic medicine relies on more than factual knowledge. Strengthening health literacy through transparent, dialogue-based, and participatory approaches can promote informed, autonomous, and ethically responsible participation in genomic research.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13109877/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147700780","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ethical AI in healthcare: insights from European policy discourses.","authors":"Simona Curiello, Enrica Iannuzzi, Claudio Nigro","doi":"10.1186/s12910-026-01403-9","DOIUrl":"https://doi.org/10.1186/s12910-026-01403-9","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147693471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Moral character development in nursing students: a qualitative content analysis in Iran.","authors":"Pooneh Yousefi, Hoda Ahmari Tehran, Ensieh Madani, Hassan Boosaliki, Neda Yavari, Mansure Madani","doi":"10.1186/s12910-026-01443-1","DOIUrl":"https://doi.org/10.1186/s12910-026-01443-1","url":null,"abstract":"<p><strong>Background: </strong>Nursing is a moral profession requiring virtues such as compassion and integrity to deliver ethical care amid complex challenges like moral distress. Despite known influences on moral development, nursing students' own perceptions of factors shaping their moral character remain underexplored. Therefore, this study aimed to explore nursing students' perceptions of the factors contributing to the development of moral character.</p><p><strong>Methods: </strong>A qualitative descriptive study and conventional content analysis was used. Semi-structured interviews were conducted with 16 purposive-sampled nursing students (Bachelor's and Master's) at Hormozgan University of Medical Sciences, Iran, between June and August 2025. Data were analysed following Graneheim and Lundman's approach until data saturation (meaning saturation) was achieved. Trustworthiness was ensured through credibility, transferability, dependability, and confirmability strategies, guided by the COREQ checklist.</p><p><strong>Results: </strong>Four overarching themes emerged, encompassing 14 sub-themes: (1) inner motivations and values (four sub-themes: intrinsic motivation, personal/religious beliefs, psychological capital, self-reflection); (2) relational dynamics and communication (three sub-themes: role modeling, peer support, family/community influences); (3) moral learning in practice (three sub-themes: formal ethics education, staged clinical experiences, simulation training); and (4) systemic and organizational influences (four sub-themes: university culture, clinical ethical climate, professional norms, resource availability).</p><p><strong>Conclusion: </strong>Moral character development is a dynamic, multifaceted process shaped by personal conviction, social relationships, structured learning, and institutional contexts, underscoring the ethical significance of virtues like resilience and integrity in navigating moral distress. In this Iranian cohort, religious values and relational role models were particularly salient. These findings inform bioethics curricula and policy to strengthen moral resilience among nursing students, preparing them for ethical practice amid complex healthcare challenges.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147693521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Management discussion of laws and regulations on human genetic resources in China: a scoping review.","authors":"Qiuyu Sun, Yibo Liu, Jian Huang, Yaodong Zhang, Kaijuan Wang","doi":"10.1186/s12910-026-01458-8","DOIUrl":"https://doi.org/10.1186/s12910-026-01458-8","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147678592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Validity and reliability of the Oxford Utilitarianism Scale among obstetricians and gynecologists.","authors":"Ayşe Figen Türkçapar, Uğur Doğan, Nüket Örnek Büken","doi":"10.1186/s12910-026-01457-9","DOIUrl":"https://doi.org/10.1186/s12910-026-01457-9","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147663527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Direct to consumer genetic testing and gamete donor conception: ethical challenges.","authors":"Lucy Frith","doi":"10.1186/s12910-026-01449-9","DOIUrl":"https://doi.org/10.1186/s12910-026-01449-9","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147663514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Ethical perspectives of Brazilian community pharmacists: a pilot study.","authors":"Francielly Lima da Fonseca, Cristy Evelin Melo de Souza, Diogo Souza de Araujo, Lucas Tenorio Carmo do Nascimento Bezerra, Aline Santana Dosea, Alfredo Dias de Oliveira Filho, Alessandra Rezende Mesquita, Divaldo Pereira de Lyra","doi":"10.1186/s12910-026-01425-3","DOIUrl":"https://doi.org/10.1186/s12910-026-01425-3","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147655363","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Parent perspectives on neonatal research without prior consent: a mixed-methods interview study.","authors":"Stephanie A Kraft, Abigail Brickler, Abril Beretta, Rishabh Jain, Andrea Kelsh, Kaashif A Ahmad, Justin T Clapp, Neal W Dickert, Rebecca A Dorner, Katherine F Guttmann, Anup C Katheria, Stephanie K Kukora, Benjamin A Mooso, Elliott Mark Weiss","doi":"10.1186/s12910-026-01455-x","DOIUrl":"https://doi.org/10.1186/s12910-026-01455-x","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147655414","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Decision-making for ICU admission: is there a place for AI? Exploring and understanding meaning, experiences, and perspectives.","authors":"Ambre Sauvage, Antoine Guillon, Marie-France Mamzer","doi":"10.1186/s12910-026-01454-y","DOIUrl":"https://doi.org/10.1186/s12910-026-01454-y","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147635176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding clinical ethics situations: a co-created repertoire of practices.","authors":"Eric Racine, Bénédicte D'Anjou, Izadora Foster, Gabriel Saso-Baudaux, Claudia Barned, Jennifer A H Bell, Daniel Buchman, Lee de Bie, Adélaïde Doussau, Katherine Duthie, Pierrette Fortin, Gary Goldsand, Ann M Heesters, Kim Jameson, Monique Lanoix, Alexandra Olmos-Perez, Amanda Porter, Andréanne Talbot, Marika Warren, Randi Zlotnik Shaul","doi":"10.1186/s12910-026-01424-4","DOIUrl":"https://doi.org/10.1186/s12910-026-01424-4","url":null,"abstract":"","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":" ","pages":""},"PeriodicalIF":3.1,"publicationDate":"2026-04-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147610711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}