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Shared decision-making between patients and healthcare providers at rural health facilities in Eastern Uganda: an exploratory qualitative study.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-27 DOI: 10.1186/s12910-025-01172-x
Ranga Solomon Owino, Olivia Kituuka, Paul Kutyabami, Nelson K Sewankambo
{"title":"Shared decision-making between patients and healthcare providers at rural health facilities in Eastern Uganda: an exploratory qualitative study.","authors":"Ranga Solomon Owino, Olivia Kituuka, Paul Kutyabami, Nelson K Sewankambo","doi":"10.1186/s12910-025-01172-x","DOIUrl":"https://doi.org/10.1186/s12910-025-01172-x","url":null,"abstract":"<p><strong>Background: </strong>Shared decision-making in healthcare is a collaborative process where patients are supported to make informed decisions according to their preferences. Healthcare decisions affect patients' lives which necessitates patients to participate in decisions concerning their health. This study explored experiences and ethical issues related to shared decision-making in a rural healthcare setting.</p><p><strong>Methods: </strong>An exploratory qualitative study was conducted at Budumba Health Centre III and Butaleja Health Centre III in rural Eastern Uganda. In this study, 23 in-depth interviews were conducted among 12 healthcare providers and 11 patients. Data was analyzed thematically using NVivo-12 plus software.</p><p><strong>Results: </strong>Four themes emerged which included: Paternalistic cultures of care, challenges, strategies for improvement, and ethical issues. Patients at both facilities expressed the need to be involved in decision-making processes. However, many stressed that they are not engaged in decision-making about their health. Many healthcare providers noted that shared decision-making could improve patient prognosis but are faced with challenges related to low male involvement and the influence of cultural and religious practices, including myths and patriarchal attitudes which impact effective patient engagement. Ethical issues identified include concerns about informed consent, privacy and confidentiality, deception, and harm.</p><p><strong>Conclusions: </strong>This study highlighted the need for better sensitization of patients and comprehensive training for healthcare providers to minimize and resolve ethical issues that emerge during shared decision-making processes. Therefore, targeted interventions are needed to enhance decision-making processes in rural healthcare including but not limited to developing shared decision-making manual and continuous training of healthcare providers to ethically engage patients. Further research is needed to explore larger facilities with a bigger scope including patients under 18 years of age and and their surrogates.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"13"},"PeriodicalIF":3.0,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054338","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Aesthetic dentistry and ethics: a systematic review of marketing practices and overtreatment in cosmetic dental procedures.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-27 DOI: 10.1186/s12910-025-01169-6
Masoumeh Rostamzadeh, Farshad Rahimi
{"title":"Aesthetic dentistry and ethics: a systematic review of marketing practices and overtreatment in cosmetic dental procedures.","authors":"Masoumeh Rostamzadeh, Farshad Rahimi","doi":"10.1186/s12910-025-01169-6","DOIUrl":"https://doi.org/10.1186/s12910-025-01169-6","url":null,"abstract":"<p><strong>Background: </strong>The increasing societal emphasis on physical appearance, particularly influenced by social media, has led to a significant rise in demand for aesthetic dentistry procedures. This study aims to explore the ethical dimensions of marketing practices and the phenomenon of overtreatment in cosmetic dental procedures, highlighting the implications for patient care and professional integrity.</p><p><strong>Methods: </strong>A systematic literature review was conducted across four databases, yielding an initial 76 articles. After applying inclusion and exclusion criteria, 12 articles were selected for analysis. The review focused on ethical considerations, marketing practices, and overtreatment in aesthetic dentistry, employing narrative synthesis to extract relevant data.</p><p><strong>Results: </strong>The findings indicate that social media is a primary driver of patient expectations, often prioritizing aesthetic outcomes over health considerations. This trend raises ethical concerns about informed consent and autonomy. The commodification of dental care, fueled by aggressive marketing strategies, has resulted in a notable increase in overtreatment, where unnecessary procedures are performed to satisfy commercial pressures and idealized beauty standards. The review highlights a lack of robust ethical guidelines governing marketing practices in aesthetic dentistry, exacerbating these issues.</p><p><strong>Conclusions: </strong>The study underscores the urgent need for clear ethical frameworks to guide dental practitioners in balancing patient welfare with business interests. Recommendations include the implementation of ethics education in dental curricula, the development of comprehensive ethical guidelines, and fostering open communication between practitioners and patients. These measures are essential for enhancing informed decision-making and ensure that patient care remains the priority in aesthetic dentistry.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"12"},"PeriodicalIF":3.0,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical issues raised in the care of the elderly during the SARS-CoV-2 pandemic and possible solutions for the future: a systematic review of qualitative scientific literature.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-25 DOI: 10.1186/s12910-024-01149-2
Mohamed Amine Bouchlaghem, Zoé Estey-Amyot, Erika Ethier, Miruna Anohim, Marie-Laurence Ouellet-Pelletier, Lyse Langlois, Félix Pageau
{"title":"Ethical issues raised in the care of the elderly during the SARS-CoV-2 pandemic and possible solutions for the future: a systematic review of qualitative scientific literature.","authors":"Mohamed Amine Bouchlaghem, Zoé Estey-Amyot, Erika Ethier, Miruna Anohim, Marie-Laurence Ouellet-Pelletier, Lyse Langlois, Félix Pageau","doi":"10.1186/s12910-024-01149-2","DOIUrl":"10.1186/s12910-024-01149-2","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 pandemic has led governments worldwide to make ethically controversial decisions. As a result, healthcare professionals are facing several ethical dilemmas, especially in terms of healthcare services provided to senior citizens. Thus, the aim of this review is to identify and categorize ethical dilemmas as well as propose solutions regarding health care services for elderly individuals.</p><p><strong>Methods: </strong>A qualitative systematic review of the literature was undertaken in the first tier of the pandemic. All identified scientific and editorial articles published in English or French between December 2019 and October 2021 were included. An article was excluded if it was commercial, did not address an issue in the care of the elderly or present any qualitative data. Article eligibility was determined through a process of triangulation among three independent reviewers.</p><p><strong>Results: </strong>Initially, 69 articles met our inclusion criteria and were selected for this review. These studies can be divided into 2 distinct categories: scientific articles (17 studies) and expert opinion articles (52 articles). However, due to the large quantity of qualitative data that was extracted, only the results from the scientific literature are presented here. The analysis of the data of 17 studies has allowed the emergence of 2 main themes of ethical dilemmas: 1) access to care (3 subthemes: A) triage decisions for admission, B) access to the intensive care unit and C) vaccine allocation) and 2) infection control decisions (2 subthemes: (D) isolation and E) autonomy). Our results also revealed 4 categories of potential solutions to the encountered ethical dilemmas, namely, optimal protocols, enhanced communication, caregiver support and technological assistance (virtual team-based, AI).</p><p><strong>Conclusions: </strong>The ethical dilemmas that emerged from our results highlight the interest of a serious international discussion around the phenomena of ageism and its potential ethical implications for health care workers (be it under normal circumstances or exceptional circumstances such as those of a pandemic). We highly recommend that future research be undertaken to test the efficacy of the proposed solutions in providing age-friendly, dilemma-free health care and environments.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"10"},"PeriodicalIF":3.0,"publicationDate":"2025-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11763134/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143043420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Lay views in Southern France of the acceptability of refusing to provide treatment because of alleged futility.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-25 DOI: 10.1186/s12910-025-01171-y
María Teresa Muñoz Sastre, Paul Clay Sorum, Etienne Mullet
{"title":"Lay views in Southern France of the acceptability of refusing to provide treatment because of alleged futility.","authors":"María Teresa Muñoz Sastre, Paul Clay Sorum, Etienne Mullet","doi":"10.1186/s12910-025-01171-y","DOIUrl":"10.1186/s12910-025-01171-y","url":null,"abstract":"<p><strong>Aim: </strong>To carry out a detailed study of existing positions in the French public of the acceptability of refusing treatment because of alleged futility, and to try to link these to people's age, gender, and religious practice.</p><p><strong>Method: </strong>248 lay participants living in southern France were presented with 16 brief vignettes depicting a cancer patient at the end of life who asks his doctor to administer a new cancer treatment he has heard about. Considering that this treatment is futile in the patient's case, the doctor refuses to prescribe it. The vignettes were composed by systematically varying the level of four factors: likelihood of a positive effect, painfulness to the patient of the treatment, cost of the treatment, and attitude of the family.</p><p><strong>Results: </strong>Five main positions were identified. For 10%, refusing treatment was almost never acceptable. 35% judged acceptability in line with the level of painfulness. 19% judged acceptability consistent with an interaction between the painfulness of treatment and likelihood of positive effect. For 30% it was either almost always acceptable or always acceptable. 5% did not take a position.</p><p><strong>Conclusion: </strong>A range of positions regarding the acceptability of refusing to provide treatment on the basis of perceived futility was observed. These positions have been analyzed in terms of what physicians and medical ethicists would see as the four principles of medical ethics. This description of lay people's positions in terms of the principles of medical ethics present clinicians with a conceptual tool to improve communication and shared decision making.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"11"},"PeriodicalIF":3.0,"publicationDate":"2025-01-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11762517/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143043421","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Students' attitudes toward euthanasia and abortion: a cross-cultural study in three Mediterranean countries.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-23 DOI: 10.1186/s12910-025-01167-8
Ivana Tutić Grokša, Ana Depope, Tijana Trako Poljak, Igor Eterović, Toni Buterin, Robert Doričić, Mariana Gensabella, Maria Laura Giacobello, Josip Guć, Eleni Kalokairinou, Željko Kaluđerović, Iva Rinčić, Ivana Zagorac, Miltiadis Vantsos, Amir Muzur
{"title":"Students' attitudes toward euthanasia and abortion: a cross-cultural study in three Mediterranean countries.","authors":"Ivana Tutić Grokša, Ana Depope, Tijana Trako Poljak, Igor Eterović, Toni Buterin, Robert Doričić, Mariana Gensabella, Maria Laura Giacobello, Josip Guć, Eleni Kalokairinou, Željko Kaluđerović, Iva Rinčić, Ivana Zagorac, Miltiadis Vantsos, Amir Muzur","doi":"10.1186/s12910-025-01167-8","DOIUrl":"10.1186/s12910-025-01167-8","url":null,"abstract":"<p><strong>Introduction: </strong>Abortion and euthanasia are still one of the greatest bioethical challenges. Previous studies have shown that there are differences in attitudes towards these issues depending on socio-demographic characteristics and socio-cultural environment (country of residence). As part of the scientific research project EuroBioMed, we compared the attitudes of students from three Mediterranean countries towards abortion and euthanasia and examined them from the perspective of Mediterranean bioethics.</p><p><strong>Methods: </strong>A pen-to-paper survey was conducted on a convenient sample of students (N = 1097) from five universities and four fields of study (Medicine, Law, Theology and Philosophy) in Croatia, Greece and Italy to investigate their attitudes towards abortion and euthanasia. Three hypotheses were tested using t-test and ANOVA for differences in attitudes according to country, field of study, year of study, gender, religiosity, political orientation, financial status, and size of place of residence.</p><p><strong>Results: </strong>While attitudes towards abortion were not statistically significantly different between students from different countries, the analysis showed that students from Italy had more liberal attitudes towards euthanasia. Theology students had more conservative attitudes towards both abortion and euthanasia, while there were no differences between the other groups. Women, final year students, non-religious and politically left-oriented students had more liberal attitudes.</p><p><strong>Conclusion: </strong>The results provided an insight into students' attitudes towards abortion and euthanasia. Knowledge of the attitudes of these future experts can be valuable for the discussion of these issues. These results also provided a basis for a better understanding of the construct of Mediterranean bioethics.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"9"},"PeriodicalIF":3.0,"publicationDate":"2025-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11756114/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143029987","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Compliance with research participant protection guidelines by Nigerian medical journals.
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-22 DOI: 10.1186/s12910-025-01168-7
Adaora A Onyiaorah, Euzebus C Ezugwu
{"title":"Compliance with research participant protection guidelines by Nigerian medical journals.","authors":"Adaora A Onyiaorah, Euzebus C Ezugwu","doi":"10.1186/s12910-025-01168-7","DOIUrl":"10.1186/s12910-025-01168-7","url":null,"abstract":"<p><strong>Background: </strong>Stakeholders in medical research have roles in ensuring that research participants are protected. Medical journals play gatekeeping roles in the responsible conduct of research. They help guard against the publication of findings of unethical research, such as those with compromised participant welfare. Nigerian medical journals are being created to support the growing number of research enterprises. In this study, we aimed to determine the compliance of Nigerian medical journals with guidelines on research participant protection.</p><p><strong>Methods: </strong>This was a descriptive cross-sectional study of Nigerian medical journals and articles. We used a checklist to obtain information on journal characteristics and the presence of recommendations from the International Committee of Medical Journal Editors (ICMJE) on the protection of research participants in the journal instructions to authors and articles. The data were analysed via IBM SPSS version 23.</p><p><strong>Results: </strong>We studied 40 journals and 350 journal articles. Thirty-one (77.5%) journals required ethical approval and the Declaration of Helsinki statement in their instructions to the authors, while informed consent was present in 26 (65.0%) journals; 6 (15.0%) journals had no participant protection guidelines. Forty-one (11.7%) articles complied with all three recommendations on research participant protection, whereas 60 (17.1%) articles did not. Ethical approval was most common in 268 (76.6%) articles, whereas it was least common in statements on the Declaration of Helsinki in 50 (14.3%) articles. The presence of participant protection recommendations in instructions to authors was not associated with compliance with these recommendations in published articles (p > 0.05).</p><p><strong>Conclusion: </strong>Although there is fairly good compliance of Nigerian medical journals with research participant protection recommendations, there are still gaps, which highlight the need for remedial measures.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"8"},"PeriodicalIF":3.0,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11753085/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025356","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disparity in attitudes regarding assisted dying among physicians and the general public in Japan. 日本医生和公众对协助死亡态度的差异。
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-20 DOI: 10.1186/s12910-025-01166-9
Yoshiyuki Takimoto, Tadanori Nabeshima
{"title":"Disparity in attitudes regarding assisted dying among physicians and the general public in Japan.","authors":"Yoshiyuki Takimoto, Tadanori Nabeshima","doi":"10.1186/s12910-025-01166-9","DOIUrl":"10.1186/s12910-025-01166-9","url":null,"abstract":"<p><strong>Background: </strong>Recently, an increasing number of countries have been allowing voluntary active euthanasia (VAE) and physician-assisted suicide (PAS) as part of palliative care. Japan stands out as the most aged country in the developed world, and while the need for palliative care for older adults with dementia has been noted, there has been reluctance to openly address VAE and PAS.</p><p><strong>Methods: </strong>We conducted an online questionnaire survey using a vignette case to investigate the attitudes of Japanese physicians and the general public towards VAE and PAS, and the factors influencing these attitudes.</p><p><strong>Results: </strong>The findings revealed that Japanese physicians did not display support for euthanasia (2%) and assisted suicide (1%); however, the general public supported euthanasia (33%) and assisted suicide (34%). Notably, among the general public, males exhibited significantly higher support for PAS than females.</p><p><strong>Conclusion: </strong>Japanese physicians and the general public expressed a more negative stance towards VAE and PAS compared with their counterparts in Western countries. This disparity may be attributed to the influence of the Buddhist view of life and death and family-centeredness in the Japanese culture, which affects people's attitudes towards assisted dying. The gap between physicians and the general public could potentially lead to challenges in medical practice, thereby, necessitating the need for open discussions in the future.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"7"},"PeriodicalIF":3.0,"publicationDate":"2025-01-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11748524/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical dilemmas concerning orthodontic treatment among orthodontists in a sample from Saudi Arabia: a pilot study. 来自沙特阿拉伯的正畸医生样本中正畸治疗的伦理困境:一项试点研究。
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-16 DOI: 10.1186/s12910-024-01142-9
Nawaf H Al Shammary, Abdulrahman K Alshammari
{"title":"Ethical dilemmas concerning orthodontic treatment among orthodontists in a sample from Saudi Arabia: a pilot study.","authors":"Nawaf H Al Shammary, Abdulrahman K Alshammari","doi":"10.1186/s12910-024-01142-9","DOIUrl":"https://doi.org/10.1186/s12910-024-01142-9","url":null,"abstract":"<p><strong>Background: </strong>Ethics is based on moral principles that should be the foundation for every healthcare decision, however, ethical concepts can often be challenging to define in specific clinical scenarios. There are several instances where a practising clinician often finds it difficult to make a proper decision despite maintaining integrity and professionalism. The objective of the present study was to explore the ethical dilemma faced by orthodontists practicing in Saudi Arabia concerning orthodontic treatment.</p><p><strong>Method: </strong>This was a questionnaire-based cross-sectional study that was adapted from the scenarios of ethical dilemmas presented by Jerrold in 1998. Ten orthodontists from each province of Saudi Arabia were requested to participate in this study and the questionnaire were sent through email and their responses were analysed.</p><p><strong>Results: </strong>A total of 37 responses were obtained (out of 130) with a response rate of 28.46%. Among them 23 were female and 14 were male. Most participants belonged to the age group 30-39 years and most of them have clinical experience of more than 5 years. There was a wide variation in the responses among the participants in all the scenarios presented. The median likelihood of getting similar scenarios in their clinical practice in Saudi Arabia ranged from 3 to 3.5.</p><p><strong>Conclusion: </strong>There was a wide variation in the opinion among the practising orthodontists in Saudi Arabia in the scenarios presented. The presented scenarios are less likely to be perceived in the local context and some new situations of ethical dilemmas are identified.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"6"},"PeriodicalIF":3.0,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11737042/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Navigating ethics in HIV data and biomaterial management within Black, African, and Caribbean communities in Canada. 在加拿大的黑人、非洲人和加勒比社区中导航艾滋病毒数据和生物材料管理的伦理。
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-16 DOI: 10.1186/s12910-025-01161-0
Rusty Souleymanov, Bolaji Akinyele-Akanbi, Chinyere Njeze, Patricia Ukoli, Paula Migliardi, Linda Larcombe, Gayle Restall, Laurie Ringaert, Michael Payne, John Kim, Wangari Tharao, Ayn Wilcox
{"title":"Navigating ethics in HIV data and biomaterial management within Black, African, and Caribbean communities in Canada.","authors":"Rusty Souleymanov, Bolaji Akinyele-Akanbi, Chinyere Njeze, Patricia Ukoli, Paula Migliardi, Linda Larcombe, Gayle Restall, Laurie Ringaert, Michael Payne, John Kim, Wangari Tharao, Ayn Wilcox","doi":"10.1186/s12910-025-01161-0","DOIUrl":"https://doi.org/10.1186/s12910-025-01161-0","url":null,"abstract":"<p><strong>Background: </strong>This study explored the ethical issues associated with community-based HIV testing among African, Caribbean, and Black (ACB) populations in Canada, focusing on their perceptions of consent, privacy, and the management of HIV-related data and bio-samples.</p><p><strong>Methods: </strong>A qualitative community-based participatory research (CBPR) approach was employed to actively engage ACB community members in shaping the research process. The design included in-depth qualitative interviews with 33 ACB community members in Manitoba, Canada. The study was guided by a Community Guiding Circle, which contributed to study design, data analysis, and interpretation. A diverse sample was recruited through community agencies, social media, and flyers, with considerations for variations in age, gender, sexual orientation, and geographical location. The study employed iterative inductive thematic data analysis.</p><p><strong>Findings: </strong>Participants expressed significant concerns about the collection, sharing, and use of HIV data from healthcare encounters, revealing mistrust towards institutions like police, child welfare, and immigration accessing their health information. Their worries centered on the handling of biological samples, data misuse, potential human rights violations, HIV criminalization, deportations, challenging consent, privacy, and bodily autonomy principles. While open to contributing to medical research, they unanimously demanded greater transparency, informed consent, and control over the secondary use of their health data.</p><p><strong>Conclusions: </strong>The study underscores the need for culturally safe approaches in HIV testing and ethical governance in healthcare for ACB communities. It highlights the importance of prioritizing participant empowerment, ensuring transparency, practicing informed consent, and implementing robust data security measures to balance effective HIV information management with the protection of individual rights.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"5"},"PeriodicalIF":3.0,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11737225/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016923","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
High-reward, high-risk technologies? An ethical and legal account of AI development in healthcare. 高回报、高风险的技术?医疗保健领域人工智能发展的伦理和法律解释。
IF 3 1区 哲学
BMC Medical Ethics Pub Date : 2025-01-15 DOI: 10.1186/s12910-024-01158-1
Maelenn Corfmat, Joé T Martineau, Catherine Régis
{"title":"High-reward, high-risk technologies? An ethical and legal account of AI development in healthcare.","authors":"Maelenn Corfmat, Joé T Martineau, Catherine Régis","doi":"10.1186/s12910-024-01158-1","DOIUrl":"https://doi.org/10.1186/s12910-024-01158-1","url":null,"abstract":"<p><strong>Background: </strong>Considering the disruptive potential of AI technology, its current and future impact in healthcare, as well as healthcare professionals' lack of training in how to use it, the paper summarizes how to approach the challenges of AI from an ethical and legal perspective. It concludes with suggestions for improvements to help healthcare professionals better navigate the AI wave.</p><p><strong>Methods: </strong>We analyzed the literature that specifically discusses ethics and law related to the development and implementation of AI in healthcare as well as relevant normative documents that pertain to both ethical and legal issues. After such analysis, we created categories regrouping the most frequently cited and discussed ethical and legal issues. We then proposed a breakdown within such categories that emphasizes the different - yet often interconnecting - ways in which ethics and law are approached for each category of issues. Finally, we identified several key ideas for healthcare professionals and organizations to better integrate ethics and law into their practices.</p><p><strong>Results: </strong>We identified six categories of issues related to AI development and implementation in healthcare: (1) privacy; (2) individual autonomy; (3) bias; (4) responsibility and liability; (5) evaluation and oversight; and (6) work, professions and the job market. While each one raises different questions depending on perspective, we propose three main legal and ethical priorities: education and training of healthcare professionals, offering support and guidance throughout the use of AI systems, and integrating the necessary ethical and legal reflection at the heart of the AI tools themselves.</p><p><strong>Conclusions: </strong>By highlighting the main ethical and legal issues involved in the development and implementation of AI technologies in healthcare, we illustrate their profound effects on professionals as well as their relationship with patients and other organizations in the healthcare sector. We must be able to identify AI technologies in medical practices and distinguish them by their nature so we can better react and respond to them. Healthcare professionals need to work closely with ethicists and lawyers involved in the healthcare system, or the development of reliable and trusted AI will be jeopardized.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"4"},"PeriodicalIF":3.0,"publicationDate":"2025-01-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11734583/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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