Journal of Child Health Care最新文献_第5页

Hospitalized children experience: Play heroes to build bridges between hospital days and everyday life. 住院儿童的经历：扮演英雄，在住院日和日常生活之间架起桥梁。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-09 DOI: 10.1177/13674935241253303

Sunniva Olsen, Malene Beck, Malene Boas, Anita Pedersen, Jannie Nissen, Charlotte Simonÿ

{"title":"Hospitalized children experience: Play heroes to build bridges between hospital days and everyday life.","authors":"Sunniva Olsen, Malene Beck, Malene Boas, Anita Pedersen, Jannie Nissen, Charlotte Simonÿ","doi":"10.1177/13674935241253303","DOIUrl":"https://doi.org/10.1177/13674935241253303","url":null,"abstract":"Play has positive effects on children's well-being and development. Play heroes, in Danish, called \"Legeheltene\", have worked, for the last 7 years, to improve play and movement for hospitalized children in Danish hospitals. However, the significance of this novel Danish intervention is insufficiently researched. This phenomenological-hermeneutic study explored how children experience interacting with a play hero when hospitalized at a Danish paediatric unit. Combined observations and interviews were performed with children from two paediatric departments. Data were analyzed with inspiration from the French philosopher Paul Ricoeur. Three themes were identified: \"A sense of familiarity,\" \"From loneliness to connectedness,\" and \"Becoming more powerful.\" Children experience that interaction with play heroes is existentially meaningful. Through playful activities, children experience that they are connected to their daily lives outside the hospital and their true selves. Bridges to children's everyday lives are built, leading to an improved sense of freedom, security, and the ability to manage difficult aspects of their hospital stay. Engagement with play heroes provides children with an experience of well-being and can be a positive direction in care provided to hospitalized children.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-05-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140900073","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Caregivers with limited English proficiency: Satisfaction with primary pediatric healthcare. 英语水平有限的护理人员：对初级儿科医疗服务的满意度。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-08 DOI: 10.1177/13674935241252479

Linda Thanh Duong, My-An Tran

{"title":"Caregivers with limited English proficiency: Satisfaction with primary pediatric healthcare.","authors":"Linda Thanh Duong, My-An Tran","doi":"10.1177/13674935241252479","DOIUrl":"https://doi.org/10.1177/13674935241252479","url":null,"abstract":"With a growing 25.5 million people in the United States experiencing limited-English proficiency (LEP), there is a concern over these individuals' experiences in healthcare. Health outcomes of LEP status are well-documented for adults in hospitals; however, less is known about patient experience, pediatric populations, and primary care settings. This study investigated differences in caregiver satisfaction between families with and without LEP receiving healthcare for their child. A sample of 25,118 caregivers whose children from birth to 17 years had met with any healthcare providers in the past year was used. Analyses consisted of unpaired t-tests comparing mean satisfaction of LEP and English-proficient (EP) caregivers in the domains of how often primary healthcare providers spent enough time with the child, listened, provided specific information, demonstrated sensitivity to the family's values, and made the respondent feel like a partner. In all aspects of caregiver satisfaction, mean satisfaction scores were significantly lower for LEP caregivers than EP caregivers. The largest drops were seen in perceived time and sensitivity. These results highlight a need to ensure LEP families receive equitable and high-quality primary care services, ultimately building trust in the healthcare system and improving children's health and well-being.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-05-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140892382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Factors associated with healthcare transition readiness for adolescents with chronic conditions: A cross-sectional study 与患有慢性病的青少年医疗保健过渡准备相关的因素：横断面研究

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-26 DOI: 10.1177/13674935241248859

Hye Seung Hong, YeoJin Im

{"title":"Factors associated with healthcare transition readiness for adolescents with chronic conditions: A cross-sectional study","authors":"Hye Seung Hong, YeoJin Im","doi":"10.1177/13674935241248859","DOIUrl":"https://doi.org/10.1177/13674935241248859","url":null,"abstract":"Healthcare transition readiness (HCTR) plays a vital role by fostering autonomy, self-management skills, and active involvement in healthcare, leading to positive health outcomes. This study aimed to examine the factors associated with HCTR in adolescents with chronic conditions (ACCs) including adolescents’ autonomy, parental overprotection, and autonomy support from healthcare providers (HCPs). This descriptive study included 107 adolescents aged 14–19 years (median age: 17 years, IQR = 1), recruited from online communities and support groups in South Korea. Data were analyzed using hierarchical linear regression. Our research has shown that HCTR is linked to a lower level of parental overprotection (β = −0.46, 95% CI [−0.59, −0.33]) and higher levels of autonomy support from HCPs (β = 0.46, 95% CI [0.36, 0.56]). Among general characteristics, we also found that having a transfer plan to adult care (β = 0.24, 95% CI [0.04, 0.44]) is significantly associated with HCTR. This study contributes to a broader understanding of HCTR by examining its associated factors in ACC. The results emphasize the pivotal roles of parental involvement, healthcare provider support, and structured transition to adult care in enhancing HCTR. These findings underscore the need for comprehensive assistance to ensure successful healthcare transitions.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-04-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140801411","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adolescents’ perspectives and experiences of accessing general practitioner services: A systematic review 青少年对全科医生服务的看法和体验：系统回顾

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-17 DOI: 10.1177/13674935241239837

Stephanie M Lawrence, Mohamad M Saab, Eileen Savage, Josephine Hegarty, Serena FitzGerald

{"title":"Adolescents’ perspectives and experiences of accessing general practitioner services: A systematic review","authors":"Stephanie M Lawrence, Mohamad M Saab, Eileen Savage, Josephine Hegarty, Serena FitzGerald","doi":"10.1177/13674935241239837","DOIUrl":"https://doi.org/10.1177/13674935241239837","url":null,"abstract":"Adolescents face issues regarding physical health, mental health, sexual health, drug and alcohol problems, stress, and peer pressure. Little is known about adolescents’ help-seeking behaviours in relation to health concerns. The general practitioner (GP) is usually the first point of contact for adolescents. The aim of this systematic review was to identify, describe, and summarize evidence on barriers and enablers experienced by adolescents when accessing GP-led primary care services. Systematic searches using four electronic databases (PsycINFO, MEDLINE, CINAHL, and SocINDEX) were conducted and the quality of the included studies was appraised. Six studies were included in this review. Findings indicate that barriers to GP access relate to trust, confidentiality, privacy, and communication. Adolescents also reported barriers such as transport, cost, and lack of information. Adolescents reported enablers being services that are sensitive to their needs, healthcare professionals who understand them, and services that are flexible regarding out of hours access. Listening to and acting on the voice of adolescents is important to developing youth-friendly services.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-04-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140608943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

‘They don’t know what to do with our children’: Experiences and views on feeding and swallowing from parents of children who use long-term ventilation 他们不知道该拿我们的孩子怎么办"：使用长期通气的儿童的父母对喂养和吞咽的经验和看法

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-09 DOI: 10.1177/13674935241242824

Sabrena Lee, Jeanne Marshall, Michael Clarke, Christina Smith

{"title":"‘They don’t know what to do with our children’: Experiences and views on feeding and swallowing from parents of children who use long-term ventilation","authors":"Sabrena Lee, Jeanne Marshall, Michael Clarke, Christina Smith","doi":"10.1177/13674935241242824","DOIUrl":"https://doi.org/10.1177/13674935241242824","url":null,"abstract":"Increasing use of paediatric long-term ventilation (LTV) has been reported around the world over the last two decades and it is anticipated that use of this medical intervention will continue to grow. Research has shown that children who use LTV have risk factors for feeding and swallowing difficulties which result in long-term reliance on non-oral feeding methods. This Patient and Public Involvement (PPI) activity explored experiences of parents of children with LTV on their children’s feeding and swallowing journeys. Individual and group interviews with seven parents were conducted. Interview data was then analysed using content analysis. Families discussed a range of themes including impacts on their family, facilitators and barriers to feeding and swallowing journeys, speech and language therapy (SLT) support, their family’s healthcare journey in relation to quality of life and future directions for research. This study highlighted potential key areas to explore when identifying ways to improve SLT care and research in feeding and swallowing for children who use LTV.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140565199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parents’ experiences of their child’s best interests during a hospital stay in Australia 澳大利亚住院期间父母对子女最大利益的体验

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-04-03 DOI: 10.1177/13674935241243101

Angela Afua Quaye, Mandie Foster, Lisa Whitehead, Inger Kristensson Hallström

引用次数: 0

Effect of vibratory device on the time of administration of vaccines and on patient satisfaction measures. 振动装置对疫苗接种时间和患者满意度的影响。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-03-31 DOI: 10.1177/13674935241242156

Amanda Thompson, Minna Leydorf Rodrigo, Alia Roberts, Jaylyn Waddell, Rebecca Carter

{"title":"Effect of vibratory device on the time of administration of vaccines and on patient satisfaction measures.","authors":"Amanda Thompson, Minna Leydorf Rodrigo, Alia Roberts, Jaylyn Waddell, Rebecca Carter","doi":"10.1177/13674935241242156","DOIUrl":"https://doi.org/10.1177/13674935241242156","url":null,"abstract":"Previous studies have demonstrated that Buzzy® is effective for pain reduction during vaccination. This study aimed to determine if Buzzy® would have an effect on either duration of vaccine administration and/or patient satisfaction. Pediatric patients aged birth to 18 years old receiving a vaccination were randomized to either a control group receiving no intervention, or the experimental group, utilizing Buzzy®. Time of administration was measured by the number of seconds required by nursing to administer vaccines. Patient satisfaction was measured with a survey given to guardians. Time required was reduced by almost 2 min when utilizing Buzzy®, with median time dropping to 190, 95% CI [26.99, 415.92] seconds from 333, 95% CI [51.35, 627.21] seconds. Patient satisfaction surveys showed positive impacts of using the device, with 100% that used the device reporting that it \"made a difference in the pain level experienced,\" but did not demonstrate statistical significance. This study shows that use of Buzzy® increases efficiency of appointments with possible positive effect on patient satisfaction.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-03-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140332285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study. 患有严重慢性疾病儿童的父母的心理健康：一项横断面调查研究。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-03-29 DOI: 10.1177/13674935241238485

Eden G Robertson, Lauren Kelada, Robert Ilin, Elizabeth Emma Palmer, Ann Bye, Adam Jaffe, Sean E Kennedy, Chee Y Ooi, Donna Drew, Claire E Wakefield

{"title":"Psychological wellbeing among parents of a child living with a serious chronic illness: A cross-sectional survey study.","authors":"Eden G Robertson, Lauren Kelada, Robert Ilin, Elizabeth Emma Palmer, Ann Bye, Adam Jaffe, Sean E Kennedy, Chee Y Ooi, Donna Drew, Claire E Wakefield","doi":"10.1177/13674935241238485","DOIUrl":"https://doi.org/10.1177/13674935241238485","url":null,"abstract":"Parents of a child with a chronic illness can experience greater distress than the average population, yet little is understood about differences between illness groups. This cross-sectional survey study aimed to compare parents' psychological distress and perceived wellbeing across five chronic illnesses. Parents from one Australian pediatric hospital completed the Kessler Psychological Distress Scale and seven purpose-designed items about their wellbeing. Data from 106 parents (cancer = 48, cystic fibrosis [CF] = 27, kidney disease = 12, gastrointestinal condition/disorder = 9, developmental and epileptic encephalopathy [DEE] = 10) was analysed using bivariate Pearson's Correlation and linear mixed-effects models. Parents' distress scores differed between groups (F(4,80) = 2.50, p = .049), with the DEE group reporting higher distress than the CF group (mean difference = 6.76, 95% CI [0.11, 13.42]). Distress scores were moderately correlated to parents' perceptions of their child's health and their own wellbeing. Parents' self-reported coping with their child's condition/treatments differed (F(4,81) = 3.24, p = .016), with the DEE group rating their coping as poorer than the CF group (mean difference = -25.32, 95% CI [-46.52, 4.11]). Across all groups, parents reported unmet needs, particularly for psychosocial support and practical/financial assistance. Support interventions may be most effective if tailored to the child's illness, with greater support potentially needed for parents who have a child with DEE and/or severe comorbidities.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-03-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140327419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adolescent and caregiver perceptions of addressing mental health in inflammatory bowel disease. 青少年和照顾者对解决炎症性肠病患者心理健康问题的看法。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-03-26 DOI: 10.1177/13674935241241350

Catalina Berenblum Tobi, Maihan Vu, Maria E Díaz-González de Ferris, Sherritta Semerzier, Michael D Kappelman, Neal A deJong

{"title":"Adolescent and caregiver perceptions of addressing mental health in inflammatory bowel disease.","authors":"Catalina Berenblum Tobi, Maihan Vu, Maria E Díaz-González de Ferris, Sherritta Semerzier, Michael D Kappelman, Neal A deJong","doi":"10.1177/13674935241241350","DOIUrl":"https://doi.org/10.1177/13674935241241350","url":null,"abstract":"Adolescents with inflammatory bowel disease (IBD) are at an increased risk of anxiety and depression compared to peers, but availability of mental health services in IBD clinics does not meet patients' needs, and use of primary care services for mental health screening and care is low. This study provides qualitative data regarding adolescent and caregiver perspectives on addressing mental health in IBD. Interviews were conducted with adolescents with IBD and caregivers of adolescents with IBD. Interview transcripts were coded and analyzed for prominent themes. Thirteen adolescents and fourteen caregivers were interviewed. Three primary themes emerged: mental health stigma makes discussing it more difficult, physician-adolescent trust makes conversations about mental health easier, and asking about mental health directly can help adolescents feel comfortable. Adolescents and caregivers highlighted the importance of considering each patient and their family individually when choosing how to discuss mental health. Fostering trust with adolescents with IBD is vital to addressing mental health. While encouraging standardized screening is important, the most patient-centered approach to mental health involves considering families individually to identify and address mental health challenges. Given the increased risk of anxiety and depression in pediatric patients with IBD, all providers encountering these patients should be equipped to discuss mental health non-judgmentally.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289665","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Consequences of the Coronavirus disease 2019 pandemic on child and adolescent mental, psychosocial, and physical health: A scoping review and interactive evidence map. 2019 年冠状病毒疾病大流行对儿童和青少年精神、社会心理和身体健康的影响：范围综述和互动证据图。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-03-19 DOI: 10.1177/13674935241238794

Liza Bialy, Sarah A Elliott, Alison Melton, Samina Ali, Shannon D Scott, Lisa Knisley, Lisa Hartling

{"title":"Consequences of the Coronavirus disease 2019 pandemic on child and adolescent mental, psychosocial, and physical health: A scoping review and interactive evidence map.","authors":"Liza Bialy, Sarah A Elliott, Alison Melton, Samina Ali, Shannon D Scott, Lisa Knisley, Lisa Hartling","doi":"10.1177/13674935241238794","DOIUrl":"https://doi.org/10.1177/13674935241238794","url":null,"abstract":"Effects of the Coronavirus disease 2019 (COVID-19) pandemic on children stem beyond immediate infectious and post-infectious risks. Our aim was to conduct a scoping review and produce an online Interactive Evidence Map (IEM) highlighting available literature around unintended effects of the pandemic on children's and adolescents' mental, psychosocial, and physical health. A search was run monthly in MEDLINE, PsycINFO, CENTRAL, and Cochrane COVID-19 Study Register from May 1st 2021 through April 30th 2022. All articles involving children and adolescents under 18 years of age relating to any unintended mental, psychosocial, and physical health consequences of the pandemic and resultant restrictions were included. Data were extracted and topics categorized, with corresponding data uploaded into EPPI-Reviewer and transferred to EPPI-Mapper for visualization. A total of 14,555 citations were screened and 826 (6%) articles included. Most articles reported on mental health outcomes, particularly anxiety (n = 309, 37%) and depression (n = 294, 36%). Psychosocial outcomes related to lockdowns such as loneliness (n = 120, 15%) and impact on adolescent relationships with others (n = 149, 18%) were also reported. Fewer articles examined physical consequences, but those that did mostly focused on child abuse (n = 73, 9%). Overall, currently mapped literature focuses on consequences related to mental health outcomes such as anxiety and depression.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177732","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0