Journal of Child Health Care最新文献

Relationship functioning and impact of health coverage models for parents of childhood cancer patients: A systematic review. 儿童癌症患者父母的关系功能和医疗保险模式的影响：系统综述。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-17 DOI: 10.1177/13674935241285473

Louisa Rygh, TyKera Marrow, Debra Sue Pate, Cynthia W Karlson

{"title":"Relationship functioning and impact of health coverage models for parents of childhood cancer patients: A systematic review.","authors":"Louisa Rygh, TyKera Marrow, Debra Sue Pate, Cynthia W Karlson","doi":"10.1177/13674935241285473","DOIUrl":"https://doi.org/10.1177/13674935241285473","url":null,"abstract":"The current systematic literature review aimed to summarize and evaluate existing literature regarding parental relationship functioning during and after childhood cancer, with an exploratory evaluation regarding the impact of national health coverage model (proxy for finances). This review used MEDLINE, PsychInfo, Embase, and CENTRAL search database. Articles were reviewed (N = 3060) against inclusion criteria, with 512 abstracts screened and 87 full-text retrieved and reviewed. Inclusion criteria: (1) childhood cancer, (2) measures parental relationship functioning, (3) English, and (4) new, empirical data. A modified version of the Downs and Black checklist was used to assess risk of bias. Narrative synthesis was used to present and discuss results. Final included articles (N = 36) revealed mostly positive or neutral findings across parental relationship functioning subdomains within 6 months (T1) and after 6 months (T2) of childhood cancer diagnosis. Sexual intimacy was negatively impacted across timepoints. Parental stress was higher than norms at T1. Marital conflict and adjustment were also worse at T1 but returned to previous levels at T2. Some variability in parental relationship functioning was observed among the different health coverage models, but these differences were not significant. Results support systematic screening and systems-based parent support programs for families of children with cancer. Mixed-methods studies examining parental relationships longitudinally and utilizing operational definitions for out-of-pocket spending are needed.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142481003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Acceptability and feasibility of a group-based intervention to improve outcomes for children at risk for developmental delays in Kenya: A piloted randomized trial. 以小组为基础的干预措施的可接受性和可行性，以改善肯尼亚有发育迟缓风险的儿童的成果：随机试验试点。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-03 DOI: 10.1177/13674935241261744

Megan S McHenry, Brianna Alex, Anna Roose, Catherine Raciti, Eren Oyungu, Ananda R Ombitsa, Cleophas Cherop, Beatrice Kaniaru, Carolyne Cherop, Chandy C John, Rachel C Vreeman

{"title":"Acceptability and feasibility of a group-based intervention to improve outcomes for children at risk for developmental delays in Kenya: A piloted randomized trial.","authors":"Megan S McHenry, Brianna Alex, Anna Roose, Catherine Raciti, Eren Oyungu, Ananda R Ombitsa, Cleophas Cherop, Beatrice Kaniaru, Carolyne Cherop, Chandy C John, Rachel C Vreeman","doi":"10.1177/13674935241261744","DOIUrl":"https://doi.org/10.1177/13674935241261744","url":null,"abstract":"The Care for Child Development (CCD) program may improve child development outcomes in resource-limited settings, but has not yet been adapted to group-based settings to facilitate sustainable dissemination. In this study, we determined the acceptability and feasibility of a group-based CCD program, with evaluation of program outcomes for child development, home environment, and symptoms of maternal depression as secondary outcomes. We evaluated this adapted program using a 2 × 2 crossover-designed pilot study administered over 10 bi-weekly sessions. Acceptability and feasibility were assessed through focus group discussions using qualitative methods. Child development, home observations, and symptoms of maternal depression were evaluated at baseline, 6 months, and 12 months and assessed quantitatively. Twenty-six mother-child dyads participated. Overall, they perceived CCD as acceptable and feasible, and especially beneficial within its group-based format. Although there were no measured improvements in child development, improvements in stimulating home environments (mean difference 2.5, 95% C.I. [0.37, 4.72]) were found. Further scale-up of this intervention is needed to determine effectiveness.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Postoperative bowel function in children operated for Hirschsprung's disease in a low-income setting: Institution-based cross-sectional study. 在低收入地区接受赫氏普隆氏病手术的儿童术后肠道功能：基于机构的横断面研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-03 DOI: 10.1177/13674935241289159

Belachew Dejene Wondemagegnehu, Addisu Andargie

{"title":"Postoperative bowel function in children operated for Hirschsprung's disease in a low-income setting: Institution-based cross-sectional study.","authors":"Belachew Dejene Wondemagegnehu, Addisu Andargie","doi":"10.1177/13674935241289159","DOIUrl":"https://doi.org/10.1177/13674935241289159","url":null,"abstract":"Hirschsprung's disease is a common cause of lower intestinal obstruction in newborns. It has variable postoperative outcomes affecting quality of life. The study was aimed at assessing postoperative bowel function in children with Hirschsprung's disease. It was conducted on 120 children operated for Hirschsprung's disease. A structured questionnaire for bowel function score was used and analyzed using relevant statistical tests. Of the 120 children in the study, 97 (80.8%) were male with 49 (40.8%) diagnosed during neonatal age and others by 2 years of age. Ninety-three (77.5%) of them had the classic type. Diversion colostomy was done in 104 (86.6%), and two-staged endorectal pullthrough was performed in 62 (72.5%) of cases with a 16% rate of retained aganglionosis. Postoperative continence was excellent in 46 (57%) and good in 26 (32%) with an incontinence rate of 11%. None of the outcome predictor showed significant influence. Optimal postoperative bowel function was obtained in the majority of patients with two-stage procedures, and the overall outcome of bowel function in children was not influenced by age, gender, level of aganglionosis, and type of procedure. Longer follow-up periods are required for definitive information.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Practices for promoting a child's best interests in paediatric rehabilitation - Perspectives of professionals and parents. 在儿科康复中促进儿童最大利益的做法--专业人员和家长的观点。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-28 DOI: 10.1177/13674935241287880

Nea Vänskä, Salla Sipari, Leena Haataja

{"title":"Practices for promoting a child's best interests in paediatric rehabilitation - Perspectives of professionals and parents.","authors":"Nea Vänskä, Salla Sipari, Leena Haataja","doi":"10.1177/13674935241287880","DOIUrl":"https://doi.org/10.1177/13674935241287880","url":null,"abstract":"Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals (n = 27 [69%]), 3 with parents (n = 9 [23%]), and 3 individual interviews of paediatric neurologists (n = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Children's and parents' attitudes to and knowledge about HPV vaccination following a targeted information intervention. 有针对性的信息干预后，儿童和家长对 HPV 疫苗接种的态度和知识。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-27 DOI: 10.1177/13674935241272004

Eva Runngren, Karin Blomberg, Lina Schollin Ask, Emma Appelqvist, Madelene Danielsson, Mats Eriksson

{"title":"Children's and parents' attitudes to and knowledge about HPV vaccination following a targeted information intervention.","authors":"Eva Runngren, Karin Blomberg, Lina Schollin Ask, Emma Appelqvist, Madelene Danielsson, Mats Eriksson","doi":"10.1177/13674935241272004","DOIUrl":"https://doi.org/10.1177/13674935241272004","url":null,"abstract":"The aim of this study was to investigate Swedish children's and parents' attitudes and knowledge about human papillomavirus (HPV) vaccination a year after gender-neutral HPV vaccination was introduced in Sweden's national immunization program (NIP). Additional information about HPV and vaccine was provided in the extended immunazation program. In total, 276 parents and 206 children from 22 School Health Services responded to a web-based survey. Results showed that half of the children and about a third of the parents received additional Public Health Agency information about HPV vaccination, and a majority were satisfied. Parents considered HPV vaccination being important for their children's health, and both children and parents considered it important to vaccinate all genders against HPV. Both children and parents rated school nurses as most reliable source of HPV vaccination information. Teachers were also a common source of HPV and HPV vaccination information for children. Further research among teachers in Sweden is needed to explore their knowledge and abilities to inform students and parents about HPV and vaccination.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring how 'wish-granting' interventions foster wellbeing for children with life-threatening health conditions and their families: A qualitative study. 探索 "许愿 "干预如何促进患有危及生命健康疾病的儿童及其家庭的福祉：定性研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-27 DOI: 10.1177/13674935241287865

Gemma Heath, Cassandra Screti, Rebecca Knibb

引用次数: 0

Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities. 从家长的角度看影响家长与青少年就 1 型糖尿病进行沟通以及协商自我管理责任的因素。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-18 DOI: 10.1177/13674935221146009

Caroline Rawdon, Sophia M Kilcullen, Nuala Murphy, Veronica Swallow, Pamela Gallagher, Veronica Lambert

{"title":"Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities.","authors":"Caroline Rawdon, Sophia M Kilcullen, Nuala Murphy, Veronica Swallow, Pamela Gallagher, Veronica Lambert","doi":"10.1177/13674935221146009","DOIUrl":"10.1177/13674935221146009","url":null,"abstract":"Adolescence is an important time in which young people take on type 1 diabetes (T1D) self-management responsibility. Parents are key facilitators of this process. Little is known about parents' experiences of communicating with their children about T1D during adolescence. Semi-structured interviews were conducted with 32 parents (24 mothers and 8 fathers) of adolescents (11-17 years) living with T1D to explore how parents communicate about T1D and self-management with their adolescent children. Parents were recruited through two national child and adolescent diabetes and endocrine clinics and online advertisement through a national diabetes advocacy organisation. Interviews were transcribed verbatim and thematically analysed. Six themes were identified: parent factors, quality of the parent-adolescent relationship, communication strategies, adolescent factors, communication triggers and family/system factors. Understanding factors that impact communication about self-management between parents and adolescents will enable healthcare professionals to provide support and targeted interventions as parent and adolescent roles change over time.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459864/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10441897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurses' and midwives' contributions to a public health response to keeping children safe from abuse and neglect - a Delphi study. 护士和助产士对保护儿童免受虐待和忽视的公共卫生对策的贡献--德尔菲研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-27 DOI: 10.1177/13674935231153248

Lauren E Lines, Tracy A Kakyo, Alison E Hutton, Julian M Grant

{"title":"Nurses' and midwives' contributions to a public health response to keeping children safe from abuse and neglect - a Delphi study.","authors":"Lauren E Lines, Tracy A Kakyo, Alison E Hutton, Julian M Grant","doi":"10.1177/13674935231153248","DOIUrl":"10.1177/13674935231153248","url":null,"abstract":"Nurses and midwives can be instrumental to global efforts to address child abuse and neglect through a public health approach of prevention and early intervention. However, there is limited understanding of nurses' and midwives' roles, and no international or local guidelines to inform and evaluate their safeguarding practices. The aim of this modified Delphi study was to build consensus on the nature and scope of nursing and midwifery practice in safeguarding children in Australia. Sixty-four statements located within seven clusters were developed from a literature review and nursing and midwifery practice standards. Participants (N = 102) were nurses and midwives working with children in diverse contexts. They were asked to indicate the importance of each statement to their practice setting. Consensus (80%) was achieved on all statements in Round Two. Findings highlight that participating nurses and midwives agreed safeguarding children is a core component of their practice in diverse child-focussed settings. Findings can inform ongoing discussions about development of nursing and midwifery practice standards and guide effective workforce preparation, education, support and resourcing. Further research about ongoing development of nursing and midwifery roles in safeguarding children is essential to explore how to most effectively mobilise these professions to prevent child abuse and neglect.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457461/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10624491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study. 通过与家庭对话的方式制定出院干预措施，帮助他们为在家照顾患有慢性病的儿童做好准备：混合方法研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-28 DOI: 10.1177/13674935231159827

Vanessa Medeiros da Nóbrega, Claudia Silveira Viera, Elisiane Lorenzini, Eliane Tatsch Neves, Altamira Pereira da Silva Reichert, Elenice Maria Cecchetti Vaz, Neusa Collet

{"title":"Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study.","authors":"Vanessa Medeiros da Nóbrega, Claudia Silveira Viera, Elisiane Lorenzini, Eliane Tatsch Neves, Altamira Pereira da Silva Reichert, Elenice Maria Cecchetti Vaz, Neusa Collet","doi":"10.1177/13674935231159827","DOIUrl":"10.1177/13674935231159827","url":null,"abstract":"A convergent parallel mixed methods design with qualitative data collection embedded in a quasi-experimental study was developed to examine the potential of three modalities of preparation for hospital discharge of the families of children with chronic diseases in terms of uncertainty levels and management of the disease at home. Caregivers of these children were divided into three groups: two experimental groups and one control group. Two scales were applied: one measured family management, and the other evaluated uncertainties in relation to the disease. In addition, an in-depth interview was conducted. Wilcoxon's test and the integrated response index were used in data analysis to compare performance between the groups. Inductive thematic analysis was employed for the qualitative data. The data were integrated, comparing the groups before and after preparation for hospital discharge. Twenty-five family caregivers completed this study. Data integration showed that the intervention group, in which the families developed planning to prepare for discharge in a dialogical way with professionals, presented better perceptions regarding care management when compared to structured guide and usual care groups. Participation of families in planning for hospital discharge showed a reduction in uncertainties regarding the disease and better care management of children at home.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10795380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parental beliefs regarding adult and child motorcycle helmet-wearing practices in Vietnam. 越南父母对成人和儿童佩戴摩托车头盔做法的看法。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-09 DOI: 10.1177/13674935221150296

Paul B Jantz, Thi L Trinh

引用次数: 0