Journal of Child Health Care最新文献_第2页

Pain assessment and treatment in hospitalized infants, children, and young people. 住院婴儿、儿童和青少年的疼痛评估和治疗。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-03-22 DOI: 10.1177/13674935231163399

Kristina G Holm, Janne Weis, Marianne Eg, Betty Nørgaard, Claus Sixtus, Helle Haslund-Thomsen, Helena Hansson, Anne Brødsgaard, Ragnhild Maastrup

{"title":"Pain assessment and treatment in hospitalized infants, children, and young people.","authors":"Kristina G Holm, Janne Weis, Marianne Eg, Betty Nørgaard, Claus Sixtus, Helle Haslund-Thomsen, Helena Hansson, Anne Brødsgaard, Ragnhild Maastrup","doi":"10.1177/13674935231163399","DOIUrl":"10.1177/13674935231163399","url":null,"abstract":"Pain in hospitalized infants, children, and young people (ICYP) is a well-known phenomenon but remains undertreated. This study aimed to examine documented pain management practices provided for ICYP and compare practices adopted in neonatal and pediatric units. This national retrospective multi-center study was conducted in 40 of the 42 Danish neonatal and pediatric units in November 2020. Data were collected from the medical records of ICYP admitted to a participating unit. We performed a total of 846 medical record audits of which pain was assessed in 51.9% of the ICYP. Pain assessment was documented for more infants (57.8%) than for children and young people (CYP) (47.4%) (p = 0.003). CYP more often received pain treatment (37.7%) than infants (6.9%, p < 0.0001) and more frequently had a pain treatment plan (50.8% versus 10.2%, p < 0.0001). Use of non-pharmacological treatment was documented for 6.3% of the ICYP. Our findings indicate that pain assessment is insufficiently documented in Danish neonatal and pediatric units. Among cases in which pain scores indicated that the patient had experienced pain, pain treatment was documented in a larger proportion of the pediatric population than in the neonatal population.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"747-759"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9169822","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'A team around the child' professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the UK. 一个围绕儿童“专业人员”在儿童姑息治疗服务中未满足的需求、获取和期望的经验的团队，英国的一项现象学研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-03-22 DOI: 10.1177/13674935221147716

Georgina Constantinou, Erica J Cook, Elaine Tolliday, Gurch Randhawa

{"title":"'A team around the child' professionals' experiences of unmet needs, access and expectations in children's palliative care services, a phenomenological study in the UK.","authors":"Georgina Constantinou, Erica J Cook, Elaine Tolliday, Gurch Randhawa","doi":"10.1177/13674935221147716","DOIUrl":"10.1177/13674935221147716","url":null,"abstract":"This study aims to understand the experiences of professionals involved in caring for families of children with life-limiting illnesses to ascertain unmet needs, access issues and expectations of services.A phenomenological approach comprising semi-structured interviews with professionals from various services was used. Interviews that happened between July and November 2018 were audio-recorded, transcribed verbatim and thematically analysed based on descriptive phenomenology.In total, 29 interviews were conducted. Findings showed how essential collaborative working was for becoming a team around the child. Barriers to this include complex working relationships, overprotectiveness of families, roles and responsibilities and use of independent care records. The pressures of waiting times and the impact of staffing shortages affected the experiences of providing care. The reality of meeting families' expectations was shaped by family networking, online research and previous services resistance, which was influential in more challenging interactions. Expectations of care were also impacted by misunderstandings and anxieties surrounding access to services. Overall, professionals were concerned about families being used as a bottomless caring resource and stressed the need for short breaks to alleviate parents.Interventions that educate families and professionals on these services and how they can benefit the child and family would be well received.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"729-746"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11607849/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9210996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Children's complex health: Maternal experiences of care and decision making. 儿童复杂健康:母亲的护理经验和决策。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-03-01 DOI: 10.1177/13674935231158456

Eleanor Willis, Rosemary Godbold

{"title":"Children's complex health: Maternal experiences of care and decision making.","authors":"Eleanor Willis, Rosemary Godbold","doi":"10.1177/13674935231158456","DOIUrl":"10.1177/13674935231158456","url":null,"abstract":"An increasing number of children with complex life-limiting and life-threatening conditions are being cared for at home by their parents. Negative impacts on maternal health are now being recognised. This study sought to voice parental experiences to determine what matters most; explore day-to-day decision making and Advance Care Planning; and to inform local service development. Seven mothers from one community nursing service were interviewed using a semi-structured qualitative approach during the Coronavirus disease 2019 pandemic. Seven data-driven themes were identified following six phase thematic analysis: cherishing normality; navigating the system; being proactive; meaningful connections; beginner to expert - and back; they're not any child - they're my child; and Coronavirus disease 2019 pandemic. Practice implications include early discussion of what matters most and benefits of written plans to ensure fair access to treatment for children with complex health. Mothers highlighted that sharing their story enhanced their sense of coping and purpose. Increased support at times of vulnerability and permission to explore decisions were highly valued.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"786-803"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11607856/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9259513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Self-care management among children and adolescents with diabetes mellitus in Malaysia. 马来西亚儿童和青少年糖尿病患者的自我保健管理。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-04-08 DOI: 10.1177/13674935231168911

Noor Shafina Mohd Nor, Azriyanti Anuar Zaini, Muhammad Yazid Jalaludin

{"title":"Self-care management among children and adolescents with diabetes mellitus in Malaysia.","authors":"Noor Shafina Mohd Nor, Azriyanti Anuar Zaini, Muhammad Yazid Jalaludin","doi":"10.1177/13674935231168911","DOIUrl":"10.1177/13674935231168911","url":null,"abstract":"The study aimed to evaluate diabetes self-care among diabetic children and adolescents and compare with glycaemic control. Summary of Diabetes Self-Care Activities (SDSCA) questionnaire was distributed to patients aged 10-18 years with types 1 and 2 diabetes mellitus (DM) at paediatric diabetes clinics in Malaysia. Haemoglobin A1c levels were measured after questionnaire completion. A total of 106 patients completed the questionnaire with a mean age of 13.91 (± SD 2.48) years. Mean haemoglobin A1c and SDSCA score were 9.78 (± SD 2.43)% and 19.09 (± SD 5.81), respectively. Type 1 DM patients had significantly higher haemoglobin A1c (10.11 95% CI [9.62, 10.59] vs 8.38 95% CI [7.13, 9.62]). Total score was higher in type 1 DM although not statistically significant (19.32 95% CI [18.21, 20.43] vs 18.08 95% CI [14.28, 21.87]). Blood glucose testing score was significantly higher in type 1 DM (5.24 95% CI [4.82, 5.66] vs 3.50 95% CI [2.23, 4.77]). There was statistically significant negative correlation between score in diet subcategory and haemoglobin A1c. In conclusion, self-care activities among diabetic children and adolescents are still suboptimal. Self-care activities on blood glucose testing are significantly better in type 1 DM. Diet section correlated well with glycaemic control necessitating further research.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"804-814"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9629060","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Influence of parental anxiety and beliefs about medicines on feeding and exercise in children living with asthma. 父母焦虑和药物观念对哮喘患儿喂养和运动的影响

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-04-25 DOI: 10.1177/13674935231171453

Rebecca Clarke, Gemma Heath, Prasad Nagakumar, Claire Farrow

{"title":"Influence of parental anxiety and beliefs about medicines on feeding and exercise in children living with asthma.","authors":"Rebecca Clarke, Gemma Heath, Prasad Nagakumar, Claire Farrow","doi":"10.1177/13674935231171453","DOIUrl":"10.1177/13674935231171453","url":null,"abstract":"This study's primary objective was to establish differences in beliefs about medicines, levels of asthma-related anxiety and diet and exercise behaviours between parents of children with well controlled and poorly controlled asthma. Secondary objectives were to explore how asthma control might shape relationships between parental cognitions and parenting practices concerning paediatric asthma. Parents of children with asthma aged 10-16 years (N = 310) completed standardised questionnaires measuring beliefs about medicines, parental asthma-related anxiety, parenting attitudes towards child activity, parental feeding and asthma control. Parents of children with poorly controlled asthma reported significantly greater asthma medication necessity and concern, asthma-related anxiety, control of child activity, pressure to exercise and unhealthy feeding practices. Moderation analyses indicated that the relationship between parental concern about asthma medicine and parental control of child activity was strongest in children with poorly controlled asthma. Also, the relationship between parental asthma-related anxiety and use of food to regulate child emotion was only significant when asthma was poorly controlled. Parental beliefs about asthma medicines and asthma-related anxiety may indirectly influence asthma outcomes through unhealthy parenting practices around exercise and diet. Eliciting and understanding parents' perceptions of asthma medications and anxiety may facilitate personalised interventions to improve asthma control.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"865-879"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11607838/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9727869","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Enhancing father involvement by increasing flexibility: Meeting fathers halfway.

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 DOI: 10.1177/13674935241295804

Simon P Byrne, Alina Morawska

引用次数: 0

Pediatric clinicians' perspectives on assessing concerns about young children's social-emotional wellbeing in primary care. 儿科临床医生对在初级保健中评估幼儿社会情感健康问题的看法。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-03-14 DOI: 10.1177/13674935231163362

James L Merle, Allison J Carroll, Nivedita Mohanty, Cady Berkel, Courtney Scherr, Matthew M Davis, Lauren S Wakschlag, Justin D Smith

{"title":"Pediatric clinicians' perspectives on assessing concerns about young children's social-emotional wellbeing in primary care.","authors":"James L Merle, Allison J Carroll, Nivedita Mohanty, Cady Berkel, Courtney Scherr, Matthew M Davis, Lauren S Wakschlag, Justin D Smith","doi":"10.1177/13674935231163362","DOIUrl":"10.1177/13674935231163362","url":null,"abstract":"We surveyed pediatric primary care clinicians working in Federally Qualified Health Centers about their perceptions of children's social-emotional wellbeing. We identified clinician's current methods for assessing social-emotional wellbeing in practices, perceived implementation barriers to providing behavioral health care, and interest in adopting a validated, low-burden developmentally sensitive parent-report instrument for screening for social-emotional wellbeing in young children. We surveyed 72 PCCs working in FQHCs from 9 US states. Analyses included examining central tendencies, correlations, analysis of variance, and group differences via t-tests. Average PCC perceptions of social-emotional wellbeing importance for overall health were statistically significantly higher than their confidence in providing care for common social-emotional wellbeing concerns (mean difference = 1.31, 95% CI = 1.13-1.49). PCCs expressed low satisfaction with currently available screening measures for identifying concerns in social-emotional wellbeing. Fewer than half of clinicians reported using any standardized parent-reported measure for identifying concerns in social-emotional wellbeing. Assessment methods and decision tools that improve clinician confidence concerning risk indications are needed, particularly at the critical early childhood period. Policymakers and payers ought to facilitate funding mechanisms that support pediatric PCCs in identifying early concerns in social-emotional wellbeing and providing referral guidance to evidence-based interventions to support parents and caregivers.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"700-714"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10500037/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10622886","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'Provision of safety netting information during child health consultations; a systematic narrative review of caregivers' perspectives'. 在儿童健康咨询期间提供安全网信息;一个系统的叙述回顾照顾者的观点”。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-04-28 DOI: 10.1177/13674935231158197

Dave Owen, Sue Latter

{"title":"'Provision of safety netting information during child health consultations; a systematic narrative review of caregivers' perspectives'.","authors":"Dave Owen, Sue Latter","doi":"10.1177/13674935231158197","DOIUrl":"10.1177/13674935231158197","url":null,"abstract":"Safety netting (SN) provides specific information to caregivers identifying need to re-consult. SN is often used to bridge diagnostic uncertainty for first-contact healthcare professionals. This systematic narrative review investigated experiences of caregivers' regarding SN information received during acute child health consultations. Searches between April and December 2021 of six bibliographic databases (CINAHL, PsycINFO, BNI, EMCARE, MEDLINE and Web of Science) identified 3258 records. No studies were excluded based on quality and nine papers were included; the Mixed Methods Appraisal Tool was used to critically analyse papers and findings were summarised narratively. Four themes emerged: Importance of receiving Red-Flag-Symptom information, influences of specific mediums for information transfer to caregivers, key principles of SN as desired by caregivers and contextual influences of information transfer to caregivers. Quality of evidence was fair; review findings could provide underpinning principles to enable first-contact clinicians to enhance their person-centred approach to SN practice. There was a paucity of evidence generally, with a relatively small number of studies that captured specific SN activity during consultations. More research is also needed to capture the full-breadth of first-contact clinicians, particularly in non-clinical settings such as the home or school.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"927-946"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9360177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Child maltreatment and pediatric pain: A survey of healthcare professionals' pain knowledge and pain management techniques. 儿童虐待和儿童疼痛:医疗保健专业人员的疼痛知识和疼痛管理技术的调查。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-04-05 DOI: 10.1177/13674935231167965

Sarah Campbell, Matthew Baker, Kelly McWilliams, Shanna Williams

{"title":"Child maltreatment and pediatric pain: A survey of healthcare professionals' pain knowledge and pain management techniques.","authors":"Sarah Campbell, Matthew Baker, Kelly McWilliams, Shanna Williams","doi":"10.1177/13674935231167965","DOIUrl":"10.1177/13674935231167965","url":null,"abstract":"Children who have been maltreated are at an increased risk of having their pain under-recognized and undertreated by healthcare professionals, and thus, are more susceptible to adverse outcomes associated with undertreated pain. This study's aims were to examine: (1) if healthcare professionals' pediatric pain knowledge is associated with their pain assessment methods, (2) if maltreatment-specific pain knowledge is associated with consideration of child maltreatment when deciding on a pain management strategy, and (3) if pediatric pain knowledge would relate to maltreatment-specific pain knowledge. A sample (N = 108) of healthcare professionals responded to a survey designed to examine their current knowledge and utilization of pediatric pain assessment and management with emphasis on the effects of child maltreatment. Findings revealed healthcare professionals' knowledge of pediatric pain is independent of their pain assessment and management practices. However, general pain knowledge was associated with maltreatment-specific pain knowledge and generally, healthcare professionals were knowledgeable of child maltreatment's impact on pediatric pain. Participants who considered a history of maltreatment were also more likely to employ sensitive questioning strategies when asking children about their pain.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"774-785"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11607853/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9621946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Feeling stretched: Parents' narratives about challenges to resilience when their child has a tracheostomy. 感到紧张:当孩子接受气管切开术时，父母讲述了他们对恢复能力的挑战。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-12-01 Epub Date: 2023-04-12 DOI: 10.1177/13674935231169409

Alison Flynn, Karen Whittaker, Adam J Donne, Lucy Bray, Bernie Carter

{"title":"Feeling stretched: Parents' narratives about challenges to resilience when their child has a tracheostomy.","authors":"Alison Flynn, Karen Whittaker, Adam J Donne, Lucy Bray, Bernie Carter","doi":"10.1177/13674935231169409","DOIUrl":"10.1177/13674935231169409","url":null,"abstract":"This study aimed to examine how parents develop personal resilience when facing the challenges of caring for a child with tracheostomy. This study employed a longitudinal qualitative design. Unstructured narrative interviews with 12 parents (from nine families) whose child had a new tracheostomy were undertaken at three time points over 12 months. Data were analysed using a socio-narratology method. Findings reveal the journey parents experienced, how their feelings changed and the processes involved in developing resilience over the first 12 months of their child having a tracheostomy. Stories told by parents early in their journey revealed emotional upheaval, negative emotions, stress and shock. Due to medical need, parents had little or no choice for their child to have a tracheostomy. Once their child's life was out of danger, parents started to reframe their experiences and beliefs. Resilience played a major part in how parents perceived and faced their situation, allowing them to deal with what came their way and to move forward with their lives. Different aspects of resilience such as self-awareness, grit, gratitude, internal locus of control and reframing came to the fore at different time points. Parents talked feeling stretched by the challenges they faced and how they reframed their perspectives about their child's tracheostomy. Parents' resilience and reframing is discussed in relation to the ABC-X model. This study identifies a theoretical model that explains this process of change, this results in transferable knowledge, useful for understanding and explaining the experience of other parents and families.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"815-828"},"PeriodicalIF":1.3,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11607837/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9283410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0