Journal of Child Health Care最新文献_第2页

A natural history of temporary tube feeding care at a children's hospital: A prospective audit of medical records. 儿童医院临时管饲护理的自然历史：医疗记录的前瞻性审计。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-11-11 DOI: 10.1177/13674935221138635

Maryanne Syrmis, Nadine Frederiksen, Claire Reilly, Kristie Bell

{"title":"A natural history of temporary tube feeding care at a children's hospital: A prospective audit of medical records.","authors":"Maryanne Syrmis, Nadine Frederiksen, Claire Reilly, Kristie Bell","doi":"10.1177/13674935221138635","DOIUrl":"10.1177/13674935221138635","url":null,"abstract":"This chart audit characterized the natural history of temporary tube feeding use at a children's hospital between 1 November 2018 and 30 November 2019. Data were collected from the decision-making phase until tube removal or 4 months post-tube insertion. Children's tube feeding journeys were described, and associations determined between patient and service-related variables and outcomes of tube feeding duration and being discharged with a feeding tube. Four hundred and 94 patients were followed with a median age of 1.0 years (IQR 3.6). Many had respiratory illnesses (n = 213, 43%) and received feeding tubes for inadequate oral intake related to acute illness (n = 279, 57%). Seventy-one new feeding tubes were inserted per month (SD 27.63). Fifty-nine per cent of patients (n = 290) received allied health consults. Although 40% of patients (n = 199) experienced complications, most patients (n = 460, 93%) ceased tube feeding within 4 months. Outcomes were associated with age, medical condition, reflux, primary reason for tube feeding, allied health consult, complication type, tube weaning plans and referral for longer-term feeding devices. Results highlighted a critical need for risk identification from the decision-making stage and standardization of practices during all phases of temporary tube feeding care.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40464634","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Supporting families during pediatric critical illness: Opportunities identified in a multicenter, qualitative study. 在儿科危重病期间为家庭提供支持：多中心定性研究发现的机遇。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-07 DOI: 10.1177/13674935231154829

Jessica M Jarvis, Taylor Huntington, Grace Perry, Susan Zickmund, Serena Yang, Patrick Galyean, Neethi Pinto, R Scott Watson, Lenora M Olson, Ericka L Fink, Aline B Maddux

{"title":"Supporting families during pediatric critical illness: Opportunities identified in a multicenter, qualitative study.","authors":"Jessica M Jarvis, Taylor Huntington, Grace Perry, Susan Zickmund, Serena Yang, Patrick Galyean, Neethi Pinto, R Scott Watson, Lenora M Olson, Ericka L Fink, Aline B Maddux","doi":"10.1177/13674935231154829","DOIUrl":"10.1177/13674935231154829","url":null,"abstract":"Critical illness resulting in a pediatric intensive care unit (PICU) admission is a profoundly stressful experience for a child and their family. Increasing evidence for emotional and behavioral sequelae post-PICU emphasizes a need to provide better support for families throughout this period of care and recovery. The aim of this qualitative investigation was to identify salient and modifiable aspects of a critical care experience that can be addressed to better support families of critically ill children. Individual semi-structured interviews were conducted with 26 caregivers of children who survived a PICU admission. Interviews were audio-recorded and transcribed verbatim; themes were identified via thematic analysis. Caregivers were enrolled using convenience sampling from seven tertiary care PICUs in the Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network. Themes from caregiver interviews were identified within two overarching categories containing three themes each. Advice for future PICU families: (1) Be intentional about caring for your own well-being, (2) speak up, ask questions, and challenge decisions you're not comfortable with, and (3) continue to engage with your child. Characteristics of a satisfactory PICU experience: (1) A caregiver-provider relationship of mutual trust established through clear communication and respectful collaboration, (2) hospital environments that provide physical and social supports to maintain humanity in healthcare, and (3) preparing families for care transitions. Targeted, interdisciplinary approaches to partner with families during critical care may improve their PICU experience and contribute to improved long-term outcomes for PICU survivors.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10404638/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10328134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effect of M technique massage on behavioral state and weight gain in preterm neonates: A randomized controlled trial. M手法按摩对早产新生儿行为状态和体重增加的影响：随机对照试验

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-02 DOI: 10.1177/13674935221147714

Mona Alinejad-Naeini, Farshad Heidari-Beni, Parisa Mohagheghi, Soroor Sohrabi

{"title":"The effect of M technique massage on behavioral state and weight gain in preterm neonates: A randomized controlled trial.","authors":"Mona Alinejad-Naeini, Farshad Heidari-Beni, Parisa Mohagheghi, Soroor Sohrabi","doi":"10.1177/13674935221147714","DOIUrl":"10.1177/13674935221147714","url":null,"abstract":"This study aimed to investigate the effect of M technique massage on behavioral state and weight gain in preterm neonates admitted to neonatal intensive care unit (NICU). This was a randomized controlled trial study in which a total of 64 preterm neonates were randomly allocated to intervention and control group. Intervention group received M technique massage and control group received routine care. Neonatal weight and behavioral state were measured for two weeks. After intervention, no statistically significant difference was found between groups in terms of neonatal weight (mean difference: 44.03, 95% CI [-180.66, 268.74]). At baseline, the mean score for behavioral state response was 5.84 ± 2.20 (mean ± SD) in control group and 5.68 ± 2.15 (mean ± SD) in intervention group and the difference was not significant (mean difference: 0.16, 95% CI [-1.21, 1.52]), but 2 weeks later, and also, after intervention, a statistically significant difference was found between groups (mean difference: 2.16, 95% CI [1.19, 3.17]) and (mean difference: 3.03, 95% CI [2.15, 3.91]), respectively, meaning that it was significantly lower in intervention group compared with control group. According to the findings, massage with M technique in premature neonates can have a positive effect on behavioral state, but no effect on their weight gain.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10452115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'Diagnosis, disclosure and stigma: The perspectives of Indonesian children with HIV and their families'. 诊断、披露和耻辱：印度尼西亚感染艾滋病毒儿童及其家庭的观点》。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-10-31 DOI: 10.1177/13674935221136229

Nuzul Qur'aniati, Linda Sweet, Anita De Bellis, Alison Hutton

{"title":"'Diagnosis, disclosure and stigma: The perspectives of Indonesian children with HIV and their families'.","authors":"Nuzul Qur'aniati, Linda Sweet, Anita De Bellis, Alison Hutton","doi":"10.1177/13674935221136229","DOIUrl":"10.1177/13674935221136229","url":null,"abstract":"This grounded theory study aimed to explore the subjective experiences of children living with Human Immunodeficiency Virus (HIV) from the perspective of children and their families in Indonesia. Twenty participants were interviewed, consisting of 12 children aged 9-18 years and eight family members. Using grounded theory analysis, this study identified three categories: 'coping with diagnosis', 'disclosing their status' and 'living with the stigma of HIV'. Participants responded with shock, denial, sadness, secrecy and often had misconceptions about the virus to the diagnosis of themselves or their children. After diagnosis, children with HIV and their families continuously lived with stigma stemming from individual and societal beliefs about the virus. This stigma manifested in actions such as isolation, disclosure avoidance, secrecy, deception and social rejection. Because of these stigmatisations, many of the participants decided not to disclose the child's HIV status and used status strategies such as telling lies, keeping secrets and keeping their distance. The participants offered insight into the need for comprehensive programs to address care gaps. This study highlights that health professionals need to develop practical guidelines to support families during the disclosure process, provide psychosocial care for children, and create stigma reduction interventions for children with HIV.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40436578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identifying research priorities with children, youth, and families: A scoping review. 确定儿童、青年和家庭的研究重点：范围审查。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-16 DOI: 10.1177/13674935231151748

Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison

{"title":"Identifying research priorities with children, youth, and families: A scoping review.","authors":"Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison","doi":"10.1177/13674935231151748","DOIUrl":"10.1177/13674935231151748","url":null,"abstract":"Increased patient advocacy has resulted in a shift toward more active patient engagement in the research. A scoping review was conducted to explore the literature on healthcare research priority settings wherein children, youths, or their families were involved in the priority-setting process. Six databases including MEDLINE, CINAHL, PsycINFO, Embase, Web of Science, and Global Health and the James Lind Alliance website were searched up until September 2019. All primary studies involving children (<18 years of age) or families in developing research priorities in health care were included. All retrieved references were uploaded into Covidence, and two independent reviewers screened the search results. Descriptive thematic analysis was used to identify common themes. A total of 30 studies with 4247 participants were included. Less than half of the participants (n = 1237, (33%) were pediatric patients and their families. A total of 455 research priorities were identified. Three common themes emerged: (i) quality of care delivery, (ii) self-efficacy in health behaviors, and (iii) community engagement in care. This scoping review revealed priority research health topics from the perspectives of children, youths, or their families. The findings may be used as a foundation for future research to improve the health outcomes of children, youths, or their families according to their identified priorities.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459867/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10590572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patterns of service provision in child and adolescent mental health care in Australia. 澳大利亚儿童和青少年心理保健服务的提供模式。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-20 DOI: 10.1177/13674935221146381

Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez

{"title":"Patterns of service provision in child and adolescent mental health care in Australia.","authors":"Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez","doi":"10.1177/13674935221146381","DOIUrl":"10.1177/13674935221146381","url":null,"abstract":"Standard description of local care provision is essential for evidence-informed planning. This study aimed to map and compare the availability and diversity of current mental health service provision for children and adolescents in Australia. We used a standardised service classification instrument, the Description and Evaluation of Services and DirectoriEs (DESDE) tool, to describe service availability in eight urban and two rural health districts in Australia. The pattern of care was compared with that available for other age groups in Australia. Outpatient care was found to be the most common type of service provision, comprising 212 (81.2%) of all services identified. Hospital care (acute and non-acute) was more available in urban than in rural areas (20 services [9.7%] vs 1 [1.8%]). The level of diversity in the types of care available for children and adolescents was lower than that for the general adult population, but slightly higher than that for older people in the same areas. Standardised comparison of the pattern of care across regions reduces ambiguity in service description and classification, enables gap analysis and can inform policy and planning.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10390601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome. 功能性残疾和社会支持在小儿活动过度埃勒斯-丹洛斯综合征患者心理结果中的作用。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-09 DOI: 10.1177/13674935221143822

Keely H Bieniak, Brad T Tinkle, Susan T Tran

{"title":"The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome.","authors":"Keely H Bieniak, Brad T Tinkle, Susan T Tran","doi":"10.1177/13674935221143822","DOIUrl":"10.1177/13674935221143822","url":null,"abstract":"Hypermobile Ehlers-Danlos syndrome (hEDS) includes physical symptoms of chronic pain, fatigue, gastrointestinal dysfunction, and joint subluxations/dislocations. This study aims to fill a research gap regarding the psychosocial well-being in pediatric hEDS by assessing relationships between functional disability, social support, and mental health. Increased functional disability is hypothesized to be associated with increased mental health challenges, specifically anxiety and depression, and general social support is hypothesized to moderate this relationship, such that higher perceived social support will mitigate the negative psychological impacts of functional disability. Gender's influence on mental health in pediatric hEDS is also explored. Thirty-four youth with pediatric hEDS recruited from a United States Midwest multidisciplinary genetics clinic completed self-report questionnaires. Results demonstrate associations between functional disability and mental health, and social support and mental health independently; however, moderation was not found. Functional disability and social support each have a unique influence on the mental health of children with pediatric hEDS and should each receive clinical attention. Exploratory analyses into the influence of gender provide a groundwork for future studies.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10431138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized. 家庭式护理：儿童住院期间，家长与护士在日常生活中的合作。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-06 DOI: 10.1177/13674935221149778

Hildegunn Sundal

{"title":"Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized.","authors":"Hildegunn Sundal","doi":"10.1177/13674935221149778","DOIUrl":"10.1177/13674935221149778","url":null,"abstract":"When children are hospitalized, parents and nurses need to collaborate. This study aims to investigate how parents and nurses experience collaborating and sharing responsibilities and tasks when providing home-like care for hospitalized children in everyday situations. This qualitative study used a hermeneutic phenomenological approach with observations and interviews and was conducted in a general medical pediatric unit. Twelve parents of eleven hospitalized children between the ages of 1 and 6 years with various medical diagnoses and seventeen nurses who cared for those children participated in the study. Parents and nurses collaborated and shared responsibilities and tasks to provide home-like care for hospitalized children in everyday situations by making mealtimes seem familiar, maintaining customary sleeping patterns, adapting washing and dressing routines, and facilitating play and activity. Parents and nurses collaborated to maintain a familiar rhythm in an unfamiliar environment to enhance the children's well-being. The nurses' degree of involvement in the children's everyday situations varied from little to moderate to strong, with parents assuming the main responsibilities. Nurses' involvement in children's everyday situations was variable, depending on the complexity of the situations.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10481997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring the implementation of child life services with facility dogs. 探索利用设施犬实施儿童生活服务。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-16 DOI: 10.1177/13674935221146382

Emily Goldstein, Sherwood Burns-Nader, Deborah Casper, Julie Parker

{"title":"Exploring the implementation of child life services with facility dogs.","authors":"Emily Goldstein, Sherwood Burns-Nader, Deborah Casper, Julie Parker","doi":"10.1177/13674935221146382","DOIUrl":"10.1177/13674935221146382","url":null,"abstract":"Many children's hospitals around the United States have programs in which a trained facility dog goes to work daily with a psychosocial healthcare worker, typically a Certified Child Life Specialist (CCLS). CCLSs help children and their families cope with the stress of a healthcare experience by utilizing evidence-based, developmentally appropriate interventions. The purpose of this study was to explore how CCLSs incorporate facility dogs into their treatments and gain their perspectives on handling a facility dog. Participants, four CCLSs, completed a checklist, which assessed patients seen by facility dogs for 10 workdays, and a semi-structured interview. Participants primarily saw patients of ages three to five years and aided with general anxiety and coping support. Findings indicated the dog's specific training, therapeutic value, and ability to bond with patients allowed these interactions to be successful and impactful. This study provides information about the benefits of facility dogs for child life programs and presents data for programs that are considering incorporating this therapeutic modality into their services offered.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10706653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Why are we still doing sucrose trials for newborns? 我们为什么还要对新生儿进行蔗糖试验？

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2024-09-09 DOI: 10.1177/13674935241280854

Denise Harrison, Melinda Cruz, Stephen McKeever

引用次数: 0