Journal of Child Health Care最新文献_第3页

Family caregivers' needs for information on pediatric cystic fibrosis: A qualitative study. 家庭照顾者对小儿囊性纤维化信息的需求：定性研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-11-26 DOI: 10.1177/13674935241303539

Samara Macedo Cordeiro, Helen Bras da Silva, Fernanda Machado Silva-Rodrigues

{"title":"Family caregivers' needs for information on pediatric cystic fibrosis: A qualitative study.","authors":"Samara Macedo Cordeiro, Helen Bras da Silva, Fernanda Machado Silva-Rodrigues","doi":"10.1177/13674935241303539","DOIUrl":"https://doi.org/10.1177/13674935241303539","url":null,"abstract":"Cystic fibrosis (CF) affects not just patients but also their families, highlighting the need for a comprehensive care approach. This descriptive qualitative study aimed to explore the informational needs of family caregivers of children with CF, focusing on how these needs can be addressed within a Patient and Family-Centered Care (PFCC) framework. The study was conducted at a public hospital in Brazil. Thirteen caregivers were interviewed, and their responses were analyzed using content analysis guided by PFCC principles. Analysis revealed three primary themes: Types of Information for Family Caregivers of Children and Adolescents with CF; sources of Information for Family caregivers of Children and Adolescents with CF; and Beyond Information: the need for emotional support and family-centered care in CF management. Caregivers sought comprehensive information about CF management from healthcare professionals and informal sources like social media. Our findings emphasize the diverse and evolving informational needs of family caregivers. Overall, this study underscores the necessity of incorporating PFCC principles, especially those addressing information sharing, in managing CF, extending beyond medical treatment to include emotional support and active family participation in care and decision-making processes.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241303539"},"PeriodicalIF":1.3,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142734754","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Investigating parental perspectives of the enablers and barriers to communication with their preterm infants: A narrative study. 调查父母对早产儿沟通的促进因素和障碍的看法：叙事研究

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-11-26 DOI: 10.1177/13674935241302437

Julia Petty, Celia Harding, Lisa Whiting

{"title":"Investigating parental perspectives of the enablers and barriers to communication with their preterm infants: A narrative study.","authors":"Julia Petty, Celia Harding, Lisa Whiting","doi":"10.1177/13674935241302437","DOIUrl":"https://doi.org/10.1177/13674935241302437","url":null,"abstract":"Learning to communicate with infants in a neonatal unit setting is challenging. Parents need time and support to feel confident and acquire skills that enable them to care for, be close to, and communicate with their infant. This qualitative, narrative-based study sought to investigate parents' understanding of factors that enhance or prevent the development of early communication and interaction between preterm infants and parents within a neonatal setting. Our study used a narrative interview approach with eight parents of premature infants, to explore the enablers and challenges to communication. Reflexive thematic analysis revealed four main themes: Impact of being in the neonatal unit, different communication strategies, communication barriers and an ongoing need for support at home. Our findings provide parental insight into communication between themselves and their premature infants. Overall, parents spoke highly of communication strategies that they were taught but it was clear they received varying advice and support, in the neonatal unit and post-discharge. There is a need for clear, consistent, and culturally appropriate communication strategies with greater awareness of how to facilitate them. Since failure to enable parent-infant interactions may potentially mean delayed language development, there is an essential need for tailored parent-accessible resources.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241302437"},"PeriodicalIF":1.3,"publicationDate":"2024-11-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142717828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Maintaining health-related quality of life and sense of belonging for pediatric patients with chronic illnesses by using a telepresence robot. 使用远程呈现机器人，保持儿科慢性病患者与健康相关的生活质量和归属感。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-11-21 DOI: 10.1177/13674935241301819

Clarissa Zillner, Gerda Rockenbauer, Agnes Turner, Martin Röhsner, Katrin Klebermass-Schrehof, Thomas Pletschko

{"title":"Maintaining health-related quality of life and sense of belonging for pediatric patients with chronic illnesses by using a telepresence robot.","authors":"Clarissa Zillner, Gerda Rockenbauer, Agnes Turner, Martin Röhsner, Katrin Klebermass-Schrehof, Thomas Pletschko","doi":"10.1177/13674935241301819","DOIUrl":"https://doi.org/10.1177/13674935241301819","url":null,"abstract":"Children with chronic illnesses often miss school, leading to negative outcomes like diminished health-related quality of life (HRQoL) and sense of belonging. Telepresence robots are suggested to keep these children connected to peers and education, yet little research has explored their impact. This study assessed effects of a telepresence system on HRQoL and sense of belonging in 29 patients with chronic illnesses aged 6 to 18 years, who were absent from school. Using a one-group pre-posttest design, participants completed questionnaires before and 6 months after receiving the robot. It was expected that HRQoL and sense of belonging would remain stable due to the robot. Wilcoxon tests indicated no decline in HRQoL (Z = -.958, 95% CI [-3.1, 8.3]) or sense of belonging (Z = -1.409, 95% CI [-0.3, 0.8]). Spearman correlations revealed a significant correlation between age and changes in school (rs = 0.621, 95% CI [0.200, 0.848]) and friends' subscales (rs = 0.579, 95% CI [-0.136, 829]), suggesting adolescents benefit particularly from the robot. Consistent with prior research, this study shows no change in psychosocial factors, indicating a stabilizing effect of telepresence robots and contributing to sustainable psychosocial care for pediatric patients.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241301819"},"PeriodicalIF":1.3,"publicationDate":"2024-11-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142683563","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes of health and social care professionals towards the use of blended diets for enteral tube feeding for children and young people. 医疗和社会护理专业人员对使用混合饮食为儿童和青少年进行肠管喂养的态度。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-11-19 DOI: 10.1177/13674935241299277

Gemma Phillips, Fiona McCullough, Pippa Hemingway

{"title":"Attitudes of health and social care professionals towards the use of blended diets for enteral tube feeding for children and young people.","authors":"Gemma Phillips, Fiona McCullough, Pippa Hemingway","doi":"10.1177/13674935241299277","DOIUrl":"10.1177/13674935241299277","url":null,"abstract":"Using a blended diet as an alternative to commercial formula is becoming more popular amongst parents and carers of children and young people (CYP) requiring long-term enteral tube feeding (ETF). Emerging evidence has demonstrated physiological and social benefits; however, families report feeling unsupported to use a blended diet in settings outside the home. This study aimed to explore the attitudes of health and social care staff towards the use of blended diets for CYP. Health and social care professionals with experience of blended diets were invited to partake in an online semi-structured qualitative interview. Thematic analysis was used to identify themes. Five participants from health, education and social care settings were interviewed. Online interviews worked effectively for data collection to allow flexibility to accommodate participants' care roles and avoid face-to-face contact necessary with Coronavirus disease 2019 restrictions. Three themes were identified in the data:• Change from medicalised enteral tube feeding practice.• Individual, person-centred approach.• Open support networks and responsibility.Findings showed that blended diets can be accommodated; however, barriers to implementation remain. Medicalisation of ETF continues to impair acceptance of blended diets whilst effective multi-disciplinary team communication and support facilitates its use in settings outside the home.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241299277"},"PeriodicalIF":1.3,"publicationDate":"2024-11-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142669740","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationship functioning and impact of health coverage models for parents of childhood cancer patients: A systematic review. 儿童癌症患者父母的关系功能和医疗保险模式的影响：系统综述。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-17 DOI: 10.1177/13674935241285473

Louisa Rygh, TyKera Marrow, Debra Sue Pate, Cynthia W Karlson

{"title":"Relationship functioning and impact of health coverage models for parents of childhood cancer patients: A systematic review.","authors":"Louisa Rygh, TyKera Marrow, Debra Sue Pate, Cynthia W Karlson","doi":"10.1177/13674935241285473","DOIUrl":"https://doi.org/10.1177/13674935241285473","url":null,"abstract":"The current systematic literature review aimed to summarize and evaluate existing literature regarding parental relationship functioning during and after childhood cancer, with an exploratory evaluation regarding the impact of national health coverage model (proxy for finances). This review used MEDLINE, PsychInfo, Embase, and CENTRAL search database. Articles were reviewed (N = 3060) against inclusion criteria, with 512 abstracts screened and 87 full-text retrieved and reviewed. Inclusion criteria: (1) childhood cancer, (2) measures parental relationship functioning, (3) English, and (4) new, empirical data. A modified version of the Downs and Black checklist was used to assess risk of bias. Narrative synthesis was used to present and discuss results. Final included articles (N = 36) revealed mostly positive or neutral findings across parental relationship functioning subdomains within 6 months (T1) and after 6 months (T2) of childhood cancer diagnosis. Sexual intimacy was negatively impacted across timepoints. Parental stress was higher than norms at T1. Marital conflict and adjustment were also worse at T1 but returned to previous levels at T2. Some variability in parental relationship functioning was observed among the different health coverage models, but these differences were not significant. Results support systematic screening and systems-based parent support programs for families of children with cancer. Mixed-methods studies examining parental relationships longitudinally and utilizing operational definitions for out-of-pocket spending are needed.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241285473"},"PeriodicalIF":1.3,"publicationDate":"2024-10-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142481003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Acceptability and feasibility of a group-based intervention to improve outcomes for children at risk for developmental delays in Kenya: A piloted randomized trial. 以小组为基础的干预措施的可接受性和可行性，以改善肯尼亚有发育迟缓风险的儿童的成果：随机试验试点。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-03 DOI: 10.1177/13674935241261744

Megan S McHenry, Brianna Alex, Anna Roose, Catherine Raciti, Eren Oyungu, Ananda R Ombitsa, Cleophas Cherop, Beatrice Kaniaru, Carolyne Cherop, Chandy C John, Rachel C Vreeman

{"title":"Acceptability and feasibility of a group-based intervention to improve outcomes for children at risk for developmental delays in Kenya: A piloted randomized trial.","authors":"Megan S McHenry, Brianna Alex, Anna Roose, Catherine Raciti, Eren Oyungu, Ananda R Ombitsa, Cleophas Cherop, Beatrice Kaniaru, Carolyne Cherop, Chandy C John, Rachel C Vreeman","doi":"10.1177/13674935241261744","DOIUrl":"https://doi.org/10.1177/13674935241261744","url":null,"abstract":"The Care for Child Development (CCD) program may improve child development outcomes in resource-limited settings, but has not yet been adapted to group-based settings to facilitate sustainable dissemination. In this study, we determined the acceptability and feasibility of a group-based CCD program, with evaluation of program outcomes for child development, home environment, and symptoms of maternal depression as secondary outcomes. We evaluated this adapted program using a 2 × 2 crossover-designed pilot study administered over 10 bi-weekly sessions. Acceptability and feasibility were assessed through focus group discussions using qualitative methods. Child development, home observations, and symptoms of maternal depression were evaluated at baseline, 6 months, and 12 months and assessed quantitatively. Twenty-six mother-child dyads participated. Overall, they perceived CCD as acceptable and feasible, and especially beneficial within its group-based format. Although there were no measured improvements in child development, improvements in stimulating home environments (mean difference 2.5, 95% C.I. [0.37, 4.72]) were found. Further scale-up of this intervention is needed to determine effectiveness.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241261744"},"PeriodicalIF":1.3,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Postoperative bowel function in children operated for Hirschsprung's disease in a low-income setting: Institution-based cross-sectional study. 在低收入地区接受赫氏普隆氏病手术的儿童术后肠道功能：基于机构的横断面研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-10-03 DOI: 10.1177/13674935241289159

Belachew Dejene Wondemagegnehu, Addisu Andargie

{"title":"Postoperative bowel function in children operated for Hirschsprung's disease in a low-income setting: Institution-based cross-sectional study.","authors":"Belachew Dejene Wondemagegnehu, Addisu Andargie","doi":"10.1177/13674935241289159","DOIUrl":"https://doi.org/10.1177/13674935241289159","url":null,"abstract":"Hirschsprung's disease is a common cause of lower intestinal obstruction in newborns. It has variable postoperative outcomes affecting quality of life. The study was aimed at assessing postoperative bowel function in children with Hirschsprung's disease. It was conducted on 120 children operated for Hirschsprung's disease. A structured questionnaire for bowel function score was used and analyzed using relevant statistical tests. Of the 120 children in the study, 97 (80.8%) were male with 49 (40.8%) diagnosed during neonatal age and others by 2 years of age. Ninety-three (77.5%) of them had the classic type. Diversion colostomy was done in 104 (86.6%), and two-staged endorectal pullthrough was performed in 62 (72.5%) of cases with a 16% rate of retained aganglionosis. Postoperative continence was excellent in 46 (57%) and good in 26 (32%) with an incontinence rate of 11%. None of the outcome predictor showed significant influence. Optimal postoperative bowel function was obtained in the majority of patients with two-stage procedures, and the overall outcome of bowel function in children was not influenced by age, gender, level of aganglionosis, and type of procedure. Longer follow-up periods are required for definitive information.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241289159"},"PeriodicalIF":1.3,"publicationDate":"2024-10-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142367342","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Practices for promoting a child's best interests in paediatric rehabilitation - Perspectives of professionals and parents. 在儿科康复中促进儿童最大利益的做法--专业人员和家长的观点。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-28 DOI: 10.1177/13674935241287880

Nea Vänskä, Salla Sipari, Leena Haataja

{"title":"Practices for promoting a child's best interests in paediatric rehabilitation - Perspectives of professionals and parents.","authors":"Nea Vänskä, Salla Sipari, Leena Haataja","doi":"10.1177/13674935241287880","DOIUrl":"https://doi.org/10.1177/13674935241287880","url":null,"abstract":"Practices for promoting a child's best interests in rehabilitation are not sufficiently understood. This study describes the practices from the perspectives of professionals and parents of children with disabilities. We conducted 11 interviews: 5 in focus groups with professionals (n = 27 [69%]), 3 with parents (n = 9 [23%]), and 3 individual interviews of paediatric neurologists (n = 3 [8%]). We used a qualitative approach, which included inductive content analysis, to examine the transcribed interview data. The practices for promoting a child's best interests consisted of collective framing of child-specific rehabilitation, fostering a fulfilling daily life for the child, and ensuring appropriate rehabilitation. This was enhanced by using child-specific practices and comprehensively understanding the child's rehabilitation in everyday life but was hindered by the absence of an established process and guidelines. The results highlighted substantial challenges in collaboration aligned with the child's best interests, enabling the child's active participation, and addressing the individual needs of the child and family. Promoting best interests through family-professional partnerships by using a systemic and ecological approach could guide the rehabilitation process and ensure the child's right to participate.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241287880"},"PeriodicalIF":1.3,"publicationDate":"2024-09-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Children's and parents' attitudes to and knowledge about HPV vaccination following a targeted information intervention. 有针对性的信息干预后，儿童和家长对 HPV 疫苗接种的态度和知识。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-27 DOI: 10.1177/13674935241272004

Eva Runngren, Karin Blomberg, Lina Schollin Ask, Emma Appelqvist, Madelene Danielsson, Mats Eriksson

{"title":"Children's and parents' attitudes to and knowledge about HPV vaccination following a targeted information intervention.","authors":"Eva Runngren, Karin Blomberg, Lina Schollin Ask, Emma Appelqvist, Madelene Danielsson, Mats Eriksson","doi":"10.1177/13674935241272004","DOIUrl":"https://doi.org/10.1177/13674935241272004","url":null,"abstract":"The aim of this study was to investigate Swedish children's and parents' attitudes and knowledge about human papillomavirus (HPV) vaccination a year after gender-neutral HPV vaccination was introduced in Sweden's national immunization program (NIP). Additional information about HPV and vaccine was provided in the extended immunazation program. In total, 276 parents and 206 children from 22 School Health Services responded to a web-based survey. Results showed that half of the children and about a third of the parents received additional Public Health Agency information about HPV vaccination, and a majority were satisfied. Parents considered HPV vaccination being important for their children's health, and both children and parents considered it important to vaccinate all genders against HPV. Both children and parents rated school nurses as most reliable source of HPV vaccination information. Teachers were also a common source of HPV and HPV vaccination information for children. Further research among teachers in Sweden is needed to explore their knowledge and abilities to inform students and parents about HPV and vaccination.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935241272004"},"PeriodicalIF":1.3,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142332451","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring how 'wish-granting' interventions foster wellbeing for children with life-threatening health conditions and their families: A qualitative study. 探索 "许愿 "干预如何促进患有危及生命健康疾病的儿童及其家庭的福祉：定性研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-27 DOI: 10.1177/13674935241287865

Gemma Heath, Cassandra Screti, Rebecca Knibb

引用次数: 0