Journal of Child Health Care最新文献_第4页

Reported costs of children with medical complexity-A systematic review. 复杂病症儿童的报告成本--系统回顾。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-06-24 DOI: 10.1177/13674935221109683

Michael Sidra, Meghan Sebastianski, Arto Ohinmaa, Sholeh Rahman

{"title":"Reported costs of children with medical complexity-A systematic review.","authors":"Michael Sidra, Meghan Sebastianski, Arto Ohinmaa, Sholeh Rahman","doi":"10.1177/13674935221109683","DOIUrl":"10.1177/13674935221109683","url":null,"abstract":"Examining reported costs for Children with Medical Complexity (CMCs) is essential because costing and resource utilization studies influence policy and operational decisions. Our objectives were to (1) examine how authors identified CMCs in administrative databases, (2) compare reported costs for the CMC population in different study settings, and (3) analyze author recommendations related to reported costs. We undertook a systematic search of the following databases: Medical Literature Analysis and Retrieval System Online, Excerpta Medica dataBase, Cumulative Index to Nursing and Allied Health Literature, and Cochrane Library with a focus on CMCs as a heterogeneous group. The most common method used n = 11 (41%) to identify the CMC population in administrative data was the Complex Chronic Conditions methodology. The majority of included studies reported on health care service costs n = 24 (89%). Only n = 3 (11%) of the studies included costs from the family perspective. Author recommendations included standardizing how costs are reported and including the family perspective when making care delivery or policy decisions. Health system administrators and policymakers must consider the limitations of reported costs when assessing local costing studies or comparing costs across jurisdictions.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40397899","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Are we at risk of commodifying lived experience in childhood disability research? 在儿童残疾研究中，我们是否面临着生活经验商品化的风险？

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2024-05-05 DOI: 10.1177/13674935241253919

Jim Reeder

引用次数: 0

Randomised controlled trial of the Healthy Living Triple P-Positive Parenting Program for families of children with type 1 diabetes. 针对 1 型糖尿病患儿家庭的 "健康生活三P-积极育儿计划 "随机对照试验。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-08-11 DOI: 10.1177/13674935221116694

Amy E Mitchell, Alina Morawska, Aditi Lohan, Ania Filus, Jennifer Batch

{"title":"Randomised controlled trial of the Healthy Living Triple P-Positive Parenting Program for families of children with type 1 diabetes.","authors":"Amy E Mitchell, Alina Morawska, Aditi Lohan, Ania Filus, Jennifer Batch","doi":"10.1177/13674935221116694","DOIUrl":"10.1177/13674935221116694","url":null,"abstract":"This randomised controlled trial examined the efficacy of a brief, group-based parenting program in improving child and family outcomes for families of children with type 1 diabetes. Families (N = 50) of children (2-10 years) with type 1 diabetes were randomly allocated to intervention (n = 22) or care-as-usual (n = 28). Assessments (pre-intervention, post-intervention and 6-month follow-up) evaluated parent- and child-reported parenting behaviour, child behaviour/adjustment and child quality of life (primary outcomes); and metabolic control (routinely-collected blood glucose data), parents' self-efficacy with diabetes management, diabetes-specific child behaviour difficulties, family quality of life, parents' diabetes-related and general parenting stress and observed parent and child behaviour (secondary outcomes). Intent-to-treat analyses indicated greater rate of improvement over time for families allocated to intervention compared to care-as-usual for use of corporal punishment (primary caregivers only), and confidence with managing children's emotions/behaviours, parent-rated child quality of life and adjustment to the child's illness (secondary caregivers only). There were no other intervention effects. Although families found the intervention useful, low levels of psychosocial problems at baseline limited the scope for group-level improvement and there was limited evidence for intervention efficacy. Individually-tailored measures of goal-specific behaviour change may be considered in future research.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40698002","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Incidence of child maltreatment diagnosis in electronic health records of a large integrated healthcare system: 2001-2018. 大型综合医疗保健系统电子健康记录中儿童虐待诊断的发生率：2001-2018 年。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-08-08 DOI: 10.1177/13674935221116485

Sonya Negriff

引用次数: 0

Sociodemographic differences in opioid use and recovery following ambulatory pediatric urologic procedures. 门诊儿科泌尿外科手术后阿片类药物使用和恢复的社会人口差异。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-09-03 DOI: 10.1177/13674935221124738

Terry Zhu, Zoë G Baker, Melissa Trabold, Lorraine I Kelley-Quon, Michael F Basin, Ragini Vazirani, Jiayao Chen, Paul J Kokorowski

{"title":"Sociodemographic differences in opioid use and recovery following ambulatory pediatric urologic procedures.","authors":"Terry Zhu, Zoë G Baker, Melissa Trabold, Lorraine I Kelley-Quon, Michael F Basin, Ragini Vazirani, Jiayao Chen, Paul J Kokorowski","doi":"10.1177/13674935221124738","DOIUrl":"10.1177/13674935221124738","url":null,"abstract":"Our aim was to examine associations between sociodemographic factors and postoperative opioid use and recovery among pediatric patients undergoing outpatient urologic procedures. We retrospectively evaluated 831 patients undergoing ambulatory urologic procedures from 2013 to 2017 at an urban pediatric hospital. Patients were evaluated for days of opioid use and days until return to baseline behavior. Differences in outcomes by race/ethnicity, primary language, median neighborhood household income, and health insurance type were analyzed using negative binomial regression models. Overall, patients reported a median of 1.0 day (IQR: 2.0) of postoperative opioid use and 3.0 days (IQR: 6.0) of recovery time. After controlling for covariates, patients with non-English speaking parents took opioids for 26.5% (95% CI: 11.4-41.7%) longer and had 27.8% (95% CI: 8.1-51.0%) longer recovery time than patients with English-speaking parents. Hispanic patients took opioids for 27.5% (95% CI: 0.1-54.9%) longer than White patients. Patients with public insurance used opioids for 47.6% (95% CI: 5.0-107.4%) longer than privately insured patients. Non-English speaking, Hispanic, and publicly insured patients had a longer duration of postoperative opioid use than primarily English-speaking, White, and privately insured patients, respectively. Identifying these disparities is important for designing equitable postoperative care pathways.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40351713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Development of a framework for the collaborative adaptation of service models for child and family health in diverse settings (CASCADES). 制定在不同环境中合作调整儿童和家庭健康服务模式的框架 (CASCADES)。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-09-27 DOI: 10.1177/13674935221129003

Deborah A Stockton, Cathrine Fowler, Deborah Debono, Joanne Travaglia

{"title":"Development of a framework for the collaborative adaptation of service models for child and family health in diverse settings (CASCADES).","authors":"Deborah A Stockton, Cathrine Fowler, Deborah Debono, Joanne Travaglia","doi":"10.1177/13674935221129003","DOIUrl":"10.1177/13674935221129003","url":null,"abstract":"The impact of health service access disparities has significant implications for society. The importance of addressing health and social inequities is never more critical than in the early years of a child's life. Despite advances in healthcare implementation, there is a lack of an evidence-based framework to specifically guide the adaptation of child and family health (CFH) service models for different community contexts. This paper describes the development of a framework for the adaptation of community-based CFH service models. Drawing on the findings of an integrative review and Delphi study, Participatory Action Research was used to test the framework, resulting in the Framework for Collaborative Adaptation of Service Models for Child and Family Health in Diverse Settings (CASCADES). The Framework uses the analogy of a waterfall to represent the iterative process of collecting information to inform each step. The framework supports a collaborative co-design approach to build a comprehensive understanding of the target community to inform the adaptation and evaluation of evidence-based interventions appropriate to the local context. The ultimate aim is to enable the delivery of services that are contextually relevant for local communities and provide greater access to effective, accessible services to support children and their families.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11141087/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40377848","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Incomplete immunization and associated factors among children 12-23 months in Aletawondo district, Sidama zone, South Ethiopia: Across-sectional study. 埃塞俄比亚南部西达马区 Aletawondo 县 12-23 个月儿童未完成免疫接种情况及相关因素：横断面研究。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-10-25 DOI: 10.1177/13674935221133463

Binyam Tayu, Nebiyu Melaku, Kebede Tefera, Achamyelesh Gebretsadik

{"title":"Incomplete immunization and associated factors among children 12-23 months in Aletawondo district, Sidama zone, South Ethiopia: Across-sectional study.","authors":"Binyam Tayu, Nebiyu Melaku, Kebede Tefera, Achamyelesh Gebretsadik","doi":"10.1177/13674935221133463","DOIUrl":"10.1177/13674935221133463","url":null,"abstract":"Immunization is one of the most cost-effective and commonly used public health strategies for preventing child mortality. The goal of this study was to determine the prevalence of incomplete immunization and associated variables in children aged 12-23 months in the Aleta Wondo district of Southern Ethiopia. The researchers utilized a community-based cross-sectional study approach. A modified World Health Organization-Expanded Program on Immunization cluster sampling method was used to choose 634 mothers/caregivers of children aged 12-23 months. Data were collected by trained data collectors between March and April 2019. Descriptive statistics and logistic regression were done. In this study, 138 (21.8%) of children were not completed their immunization. Mothers who were literate [AOR = 2.1; (95% CI: 1.1, 4.2)]. Home birth [AOR = 2.9; (95% CI: 1.7, 5.3)], walking time from home to vaccination site [AOR = 1.95; (95% CI: 1.1,3.3)], inconvenience times for vaccination service [AOR = 2.4; (95% CI: 1.3,4.5)], postponing vaccination session schedule [AOR = 2.4; (95% CI:1.1,5.4)], households not visited by health extension workers [AOR = 4.1; (95% CI: 2.2,7.4)], poorer knowledge about child immunization [AOR = 4; (95% CI:2.2,7.5)] were factors associated with incomplete immunization. Incomplete immunization was higher compared to the national target. It is necessary to strengthen the program by enhancing the number of outreach sites considering the size of the target group.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40570829","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition. 管理意外的生命--照顾者的职业生涯"：父母照顾患有非恶性临终病症儿童的经历。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-06-01 Epub Date: 2022-10-12 DOI: 10.1177/13674935221132920

Jayne Price, Fiona Hurley, Gemma Kiernan

{"title":"'Managing an unexpected life - a caregiver's career': Parents' experience of caring for their child with a non-malignant life-limiting condition.","authors":"Jayne Price, Fiona Hurley, Gemma Kiernan","doi":"10.1177/13674935221132920","DOIUrl":"10.1177/13674935221132920","url":null,"abstract":"Parents of children with non-malignant life-limiting conditions frequently accept roles that exceed the conventional activities of parenting in relation to the intensity, complexity and temporal nature of the family caregiver experience. This paper explores the prevalent and all-consuming experiences of parents caring for their children. A qualitative descriptive study design was used. Twenty-three parents (both mothers and fathers) were interviewed. Transcribed interview data were analyzed using thematic analysis. 'Managing an unexpected life' was the central concept when parents recounted ongoing efforts to address the emotional and practical effects of their child's condition on their life and that of their family. Analysis revealed three main distinct but interrelated themes within the concept of 'Managing an unexpected life' helping us enhance our understanding of parents' experiences: 'Striving for normality', 'Becoming the expert' and 'Fighting for your child'. Findings suggest that the central concept of 'Managing an unexpected life' appeared to be in keeping with a caregiver's career. Findings likewise suggest the need for improved and focused support and services to enhance parents' career caregiving.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11141083/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"33502965","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

An Australian survey of health professionals' perceptions of use and usefulness of electronic medical records in hospitalised children's pain care. 澳大利亚关于医疗专业人员对住院儿童疼痛护理中电子病历的使用和实用性的看法调查。

IF 1.9 4区医学

Journal of Child Health Care Pub Date : 2024-05-29 DOI: 10.1177/13674935241256254

Nicole Pope, Janelle Keyser, Dianne Crellin, Greta Palmer, Mike South, Denise Harrison

{"title":"An Australian survey of health professionals' perceptions of use and usefulness of electronic medical records in hospitalised children's pain care.","authors":"Nicole Pope, Janelle Keyser, Dianne Crellin, Greta Palmer, Mike South, Denise Harrison","doi":"10.1177/13674935241256254","DOIUrl":"https://doi.org/10.1177/13674935241256254","url":null,"abstract":"Pain in hospitalised children is common, yet inadequately treated. Electronic medical records (EMRs) can improve care quality and outcomes during hospitalisation. Little is known about how clinicians use EMRs in caring for children with pain. This national cross-sectional survey examined the perceptions of clinician-EMR users about current and potential use of EMRs in children's pain care. One hundred and ninety-four clinicians responded (n = 81, 74% nurses; n = 21, 19% doctors; n = 7, 6% other); most used Epic (n = 53/109, 49%) or Cerner (n = 42/109, 38%). Most (n = 84/113, 74%) agreed EMRs supported their initiation of pharmacological pain interventions. Fewer agreed EMRs supported initiation of physical (n = 49/113, 43%) or psychological interventions (n = 41/111, 37%). Forty-four percent reported their EMR had prompt reminders for pain care. Prompts were perceived as useful (n = 40/51, 78%). Most agreed EMRs supported pain care provision (n = 94/110, 85%) and documentation (n = 99/111, 89%). Only 39% (n = 40/102) agreed EMRs improved pain treatment, and 31% (n = 32/103) agreed EMRs improved how they involve children and families in pain care. Findings provide recommendations for EMR designs that support clinicians' understanding of the multidimensionality of children's pain and drive comprehensive assessments and treatments. This contribution will inform future translational research on harnessing technology to support child and family partnerships in care.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141176663","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

'I don't want him to always be so far behind': Parental perceptions of child independence in the context of extreme prematurity; a qualitative study. 我不想让他总是落后那么多"：父母对极度早产儿独立性的看法；一项定性研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-05-27 DOI: 10.1177/13674935241256545

Emmi Suonpera, Katie Gallagher, Neil Marlow, Anne Lanceley

{"title":"'I don't want him to always be so far behind': Parental perceptions of child independence in the context of extreme prematurity; a qualitative study.","authors":"Emmi Suonpera, Katie Gallagher, Neil Marlow, Anne Lanceley","doi":"10.1177/13674935241256545","DOIUrl":"10.1177/13674935241256545","url":null,"abstract":"This study addresses the paucity of research on parents of extremely preterm adolescents (born <27 weeks of gestation) and their experiences within the framework of parental determinism. We conducted semi-structured interviews with twenty-two mothers and one father. Data were analysed thematically, revealing three overarching themes and eight subthemes shaping parental accounts. These themes centred on parental ambitions for their children, their perceptions of their child's abilities, and the parenting behaviours employed to support parental aspirations. Parents' actions were influenced by their ambitions and the belief that they could impact their child's future independence. While some parents adopted 'trusting', non-intensive parenting behaviours, those anticipating challenges for their child's future independence resorted to intensive parenting practices. These findings align with the concept of parental determinism, emphasising the perceived causal link between present parental actions and future child outcomes. In the context of extreme prematurity, a nuanced understanding of parental perceptions regarding their child's future independence aligned with a delicate balance between hope and realistic aspiration is crucial for enhancing parental support and well-being.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-05-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141154430","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0