Journal of Child Health Care最新文献_第4页

Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities. 从家长的角度看影响家长与青少年就 1 型糖尿病进行沟通以及协商自我管理责任的因素。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-18 DOI: 10.1177/13674935221146009

Caroline Rawdon, Sophia M Kilcullen, Nuala Murphy, Veronica Swallow, Pamela Gallagher, Veronica Lambert

{"title":"Parents' perspectives of factors affecting parent-adolescent communication about type 1 diabetes and negotiation of self-management responsibilities.","authors":"Caroline Rawdon, Sophia M Kilcullen, Nuala Murphy, Veronica Swallow, Pamela Gallagher, Veronica Lambert","doi":"10.1177/13674935221146009","DOIUrl":"10.1177/13674935221146009","url":null,"abstract":"Adolescence is an important time in which young people take on type 1 diabetes (T1D) self-management responsibility. Parents are key facilitators of this process. Little is known about parents' experiences of communicating with their children about T1D during adolescence. Semi-structured interviews were conducted with 32 parents (24 mothers and 8 fathers) of adolescents (11-17 years) living with T1D to explore how parents communicate about T1D and self-management with their adolescent children. Parents were recruited through two national child and adolescent diabetes and endocrine clinics and online advertisement through a national diabetes advocacy organisation. Interviews were transcribed verbatim and thematically analysed. Six themes were identified: parent factors, quality of the parent-adolescent relationship, communication strategies, adolescent factors, communication triggers and family/system factors. Understanding factors that impact communication about self-management between parents and adolescents will enable healthcare professionals to provide support and targeted interventions as parent and adolescent roles change over time.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"514-535"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459864/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10441897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurses' and midwives' contributions to a public health response to keeping children safe from abuse and neglect - a Delphi study. 护士和助产士对保护儿童免受虐待和忽视的公共卫生对策的贡献--德尔菲研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-27 DOI: 10.1177/13674935231153248

Lauren E Lines, Tracy A Kakyo, Alison E Hutton, Julian M Grant

{"title":"Nurses' and midwives' contributions to a public health response to keeping children safe from abuse and neglect - a Delphi study.","authors":"Lauren E Lines, Tracy A Kakyo, Alison E Hutton, Julian M Grant","doi":"10.1177/13674935231153248","DOIUrl":"10.1177/13674935231153248","url":null,"abstract":"Nurses and midwives can be instrumental to global efforts to address child abuse and neglect through a public health approach of prevention and early intervention. However, there is limited understanding of nurses' and midwives' roles, and no international or local guidelines to inform and evaluate their safeguarding practices. The aim of this modified Delphi study was to build consensus on the nature and scope of nursing and midwifery practice in safeguarding children in Australia. Sixty-four statements located within seven clusters were developed from a literature review and nursing and midwifery practice standards. Participants (N = 102) were nurses and midwives working with children in diverse contexts. They were asked to indicate the importance of each statement to their practice setting. Consensus (80%) was achieved on all statements in Round Two. Findings highlight that participating nurses and midwives agreed safeguarding children is a core component of their practice in diverse child-focussed settings. Findings can inform ongoing discussions about development of nursing and midwifery practice standards and guide effective workforce preparation, education, support and resourcing. Further research about ongoing development of nursing and midwifery roles in safeguarding children is essential to explore how to most effectively mobilise these professions to prevent child abuse and neglect.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"610-623"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457461/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10624491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study. 通过与家庭对话的方式制定出院干预措施，帮助他们为在家照顾患有慢性病的儿童做好准备：混合方法研究。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-28 DOI: 10.1177/13674935231159827

Vanessa Medeiros da Nóbrega, Claudia Silveira Viera, Elisiane Lorenzini, Eliane Tatsch Neves, Altamira Pereira da Silva Reichert, Elenice Maria Cecchetti Vaz, Neusa Collet

{"title":"Hospital discharge intervention developed in a dialogical way with families to prepare them to care for children with chronic diseases at home: Mixed methods study.","authors":"Vanessa Medeiros da Nóbrega, Claudia Silveira Viera, Elisiane Lorenzini, Eliane Tatsch Neves, Altamira Pereira da Silva Reichert, Elenice Maria Cecchetti Vaz, Neusa Collet","doi":"10.1177/13674935231159827","DOIUrl":"10.1177/13674935231159827","url":null,"abstract":"A convergent parallel mixed methods design with qualitative data collection embedded in a quasi-experimental study was developed to examine the potential of three modalities of preparation for hospital discharge of the families of children with chronic diseases in terms of uncertainty levels and management of the disease at home. Caregivers of these children were divided into three groups: two experimental groups and one control group. Two scales were applied: one measured family management, and the other evaluated uncertainties in relation to the disease. In addition, an in-depth interview was conducted. Wilcoxon's test and the integrated response index were used in data analysis to compare performance between the groups. Inductive thematic analysis was employed for the qualitative data. The data were integrated, comparing the groups before and after preparation for hospital discharge. Twenty-five family caregivers completed this study. Data integration showed that the intervention group, in which the families developed planning to prepare for discharge in a dialogical way with professionals, presented better perceptions regarding care management when compared to structured guide and usual care groups. Participation of families in planning for hospital discharge showed a reduction in uncertainties regarding the disease and better care management of children at home.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"637-657"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10795380","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Parental beliefs regarding adult and child motorcycle helmet-wearing practices in Vietnam. 越南父母对成人和儿童佩戴摩托车头盔做法的看法。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-09 DOI: 10.1177/13674935221150296

Paul B Jantz, Thi L Trinh

引用次数: 0

Supporting families during pediatric critical illness: Opportunities identified in a multicenter, qualitative study. 在儿科危重病期间为家庭提供支持：多中心定性研究发现的机遇。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-02-07 DOI: 10.1177/13674935231154829

Jessica M Jarvis, Taylor Huntington, Grace Perry, Susan Zickmund, Serena Yang, Patrick Galyean, Neethi Pinto, R Scott Watson, Lenora M Olson, Ericka L Fink, Aline B Maddux

{"title":"Supporting families during pediatric critical illness: Opportunities identified in a multicenter, qualitative study.","authors":"Jessica M Jarvis, Taylor Huntington, Grace Perry, Susan Zickmund, Serena Yang, Patrick Galyean, Neethi Pinto, R Scott Watson, Lenora M Olson, Ericka L Fink, Aline B Maddux","doi":"10.1177/13674935231154829","DOIUrl":"10.1177/13674935231154829","url":null,"abstract":"Critical illness resulting in a pediatric intensive care unit (PICU) admission is a profoundly stressful experience for a child and their family. Increasing evidence for emotional and behavioral sequelae post-PICU emphasizes a need to provide better support for families throughout this period of care and recovery. The aim of this qualitative investigation was to identify salient and modifiable aspects of a critical care experience that can be addressed to better support families of critically ill children. Individual semi-structured interviews were conducted with 26 caregivers of children who survived a PICU admission. Interviews were audio-recorded and transcribed verbatim; themes were identified via thematic analysis. Caregivers were enrolled using convenience sampling from seven tertiary care PICUs in the Eunice Kennedy Shriver National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network. Themes from caregiver interviews were identified within two overarching categories containing three themes each. Advice for future PICU families: (1) Be intentional about caring for your own well-being, (2) speak up, ask questions, and challenge decisions you're not comfortable with, and (3) continue to engage with your child. Characteristics of a satisfactory PICU experience: (1) A caregiver-provider relationship of mutual trust established through clear communication and respectful collaboration, (2) hospital environments that provide physical and social supports to maintain humanity in healthcare, and (3) preparing families for care transitions. Targeted, interdisciplinary approaches to partner with families during critical care may improve their PICU experience and contribute to improved long-term outcomes for PICU survivors.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"624-636"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10404638/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10328134","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effect of M technique massage on behavioral state and weight gain in preterm neonates: A randomized controlled trial. M手法按摩对早产新生儿行为状态和体重增加的影响：随机对照试验

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-02 DOI: 10.1177/13674935221147714

Mona Alinejad-Naeini, Farshad Heidari-Beni, Parisa Mohagheghi, Soroor Sohrabi

{"title":"The effect of M technique massage on behavioral state and weight gain in preterm neonates: A randomized controlled trial.","authors":"Mona Alinejad-Naeini, Farshad Heidari-Beni, Parisa Mohagheghi, Soroor Sohrabi","doi":"10.1177/13674935221147714","DOIUrl":"10.1177/13674935221147714","url":null,"abstract":"This study aimed to investigate the effect of M technique massage on behavioral state and weight gain in preterm neonates admitted to neonatal intensive care unit (NICU). This was a randomized controlled trial study in which a total of 64 preterm neonates were randomly allocated to intervention and control group. Intervention group received M technique massage and control group received routine care. Neonatal weight and behavioral state were measured for two weeks. After intervention, no statistically significant difference was found between groups in terms of neonatal weight (mean difference: 44.03, 95% CI [-180.66, 268.74]). At baseline, the mean score for behavioral state response was 5.84 ± 2.20 (mean ± SD) in control group and 5.68 ± 2.15 (mean ± SD) in intervention group and the difference was not significant (mean difference: 0.16, 95% CI [-1.21, 1.52]), but 2 weeks later, and also, after intervention, a statistically significant difference was found between groups (mean difference: 2.16, 95% CI [1.19, 3.17]) and (mean difference: 3.03, 95% CI [2.15, 3.91]), respectively, meaning that it was significantly lower in intervention group compared with control group. According to the findings, massage with M technique in premature neonates can have a positive effect on behavioral state, but no effect on their weight gain.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"551-564"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10452115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Identifying research priorities with children, youth, and families: A scoping review. 确定儿童、青年和家庭的研究重点：范围审查。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-16 DOI: 10.1177/13674935231151748

Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison

{"title":"Identifying research priorities with children, youth, and families: A scoping review.","authors":"Shokoufeh Modanloo, Quinn Correll, Rhonda Correll, Nathalie Major, Michelle Quinlan, Jessica Reszel, Jodi Wilding, Zhi Lin Zhou, Linda S Franck, Denise Harrison","doi":"10.1177/13674935231151748","DOIUrl":"10.1177/13674935231151748","url":null,"abstract":"Increased patient advocacy has resulted in a shift toward more active patient engagement in the research. A scoping review was conducted to explore the literature on healthcare research priority settings wherein children, youths, or their families were involved in the priority-setting process. Six databases including MEDLINE, CINAHL, PsycINFO, Embase, Web of Science, and Global Health and the James Lind Alliance website were searched up until September 2019. All primary studies involving children (<18 years of age) or families in developing research priorities in health care were included. All retrieved references were uploaded into Covidence, and two independent reviewers screened the search results. Descriptive thematic analysis was used to identify common themes. A total of 30 studies with 4247 participants were included. Less than half of the participants (n = 1237, (33%) were pediatric patients and their families. A total of 455 research priorities were identified. Three common themes emerged: (i) quality of care delivery, (ii) self-efficacy in health behaviors, and (iii) community engagement in care. This scoping review revealed priority research health topics from the perspectives of children, youths, or their families. The findings may be used as a foundation for future research to improve the health outcomes of children, youths, or their families according to their identified priorities.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"592-609"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11459867/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10590572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patterns of service provision in child and adolescent mental health care in Australia. 澳大利亚儿童和青少年心理保健服务的提供模式。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-20 DOI: 10.1177/13674935221146381

Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez

{"title":"Patterns of service provision in child and adolescent mental health care in Australia.","authors":"Luis Salvador-Carulla, Mary Anne Furst, Hossein Tabatabaei-Jafari, John Mendoza, Denise Riordan, Elizabeth Moore, Daniel Rock, Lauren Anthes, Nasser Bagheri, Jose A Salinas-Perez","doi":"10.1177/13674935221146381","DOIUrl":"10.1177/13674935221146381","url":null,"abstract":"Standard description of local care provision is essential for evidence-informed planning. This study aimed to map and compare the availability and diversity of current mental health service provision for children and adolescents in Australia. We used a standardised service classification instrument, the Description and Evaluation of Services and DirectoriEs (DESDE) tool, to describe service availability in eight urban and two rural health districts in Australia. The pattern of care was compared with that available for other age groups in Australia. Outpatient care was found to be the most common type of service provision, comprising 212 (81.2%) of all services identified. Hospital care (acute and non-acute) was more available in urban than in rural areas (20 services [9.7%] vs 1 [1.8%]). The level of diversity in the types of care available for children and adolescents was lower than that for the general adult population, but slightly higher than that for older people in the same areas. Standardised comparison of the pattern of care across regions reduces ambiguity in service description and classification, enables gap analysis and can inform policy and planning.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"536-550"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10390601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized. 家庭式护理：儿童住院期间，家长与护士在日常生活中的合作。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2023-01-06 DOI: 10.1177/13674935221149778

Hildegunn Sundal

{"title":"Home-like care: Collaboration between parents and nurses in everyday situations when children are hospitalized.","authors":"Hildegunn Sundal","doi":"10.1177/13674935221149778","DOIUrl":"10.1177/13674935221149778","url":null,"abstract":"When children are hospitalized, parents and nurses need to collaborate. This study aims to investigate how parents and nurses experience collaborating and sharing responsibilities and tasks when providing home-like care for hospitalized children in everyday situations. This qualitative study used a hermeneutic phenomenological approach with observations and interviews and was conducted in a general medical pediatric unit. Twelve parents of eleven hospitalized children between the ages of 1 and 6 years with various medical diagnoses and seventeen nurses who cared for those children participated in the study. Parents and nurses collaborated and shared responsibilities and tasks to provide home-like care for hospitalized children in everyday situations by making mealtimes seem familiar, maintaining customary sleeping patterns, adapting washing and dressing routines, and facilitating play and activity. Parents and nurses collaborated to maintain a familiar rhythm in an unfamiliar environment to enhance the children's well-being. The nurses' degree of involvement in the children's everyday situations varied from little to moderate to strong, with parents assuming the main responsibilities. Nurses' involvement in children's everyday situations was variable, depending on the complexity of the situations.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"565-577"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11457426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10481997","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome. 功能性残疾和社会支持在小儿活动过度埃勒斯-丹洛斯综合征患者心理结果中的作用。

IF 1.3 4区医学

Journal of Child Health Care Pub Date : 2024-09-01 Epub Date: 2022-12-09 DOI: 10.1177/13674935221143822

Keely H Bieniak, Brad T Tinkle, Susan T Tran

{"title":"The role of functional disability and social support in psychological outcomes for individuals with pediatric hypermobile ehlers-danlos syndrome.","authors":"Keely H Bieniak, Brad T Tinkle, Susan T Tran","doi":"10.1177/13674935221143822","DOIUrl":"10.1177/13674935221143822","url":null,"abstract":"Hypermobile Ehlers-Danlos syndrome (hEDS) includes physical symptoms of chronic pain, fatigue, gastrointestinal dysfunction, and joint subluxations/dislocations. This study aims to fill a research gap regarding the psychosocial well-being in pediatric hEDS by assessing relationships between functional disability, social support, and mental health. Increased functional disability is hypothesized to be associated with increased mental health challenges, specifically anxiety and depression, and general social support is hypothesized to moderate this relationship, such that higher perceived social support will mitigate the negative psychological impacts of functional disability. Gender's influence on mental health in pediatric hEDS is also explored. Thirty-four youth with pediatric hEDS recruited from a United States Midwest multidisciplinary genetics clinic completed self-report questionnaires. Results demonstrate associations between functional disability and mental health, and social support and mental health independently; however, moderation was not found. Functional disability and social support each have a unique influence on the mental health of children with pediatric hEDS and should each receive clinical attention. Exploratory analyses into the influence of gender provide a groundwork for future studies.","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"486-500"},"PeriodicalIF":1.3,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10431138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0