Manon Willekens, David De Coninck, Peter de Winter, Koen Matthijs, Steven Lierman, Ingrid Boone, Jaan Toelen
{"title":"Is blood thicker than water? Perceptions on the role of stepparents in medical decisions among minors.","authors":"Manon Willekens, David De Coninck, Peter de Winter, Koen Matthijs, Steven Lierman, Ingrid Boone, Jaan Toelen","doi":"10.1177/13674935231211217","DOIUrl":"10.1177/13674935231211217","url":null,"abstract":"<p><p>Alternative family configurations are becoming more prevalent, yet current legislative statutory does not support stepparents in medical decisions for their stepchildren. We investigate opinions of Belgian and Dutch adults regarding inclusion of stepparents in medical decision-making in minors. We make two observations. First, participants wanted stepparents to be involved in cases when medical information had to be shared or informed consent signed. Second, when stepparents object against previously approved medical interventions by a biological parent, respondents were less likely to support stepparents. Participants with stepchildren were likely to favour inclusion of stepparents in decision-making. Overall, our findings indicate that Belgian and Dutch adults view stepparents as potential executive actors in medical decision-making for minors, but not as primary decision-makers. This study is a first step in showing to what extent stepparents could be included in medical information and decision-making regarding stepchildren. We reflect on these findings in light of implications for medical practice and legislative shortcomings.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"397-407"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54232333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Being the nurse for my child at home: A qualitative analysis of parental recognition, appraisal, and reactions to childhood cancer in Ghana.","authors":"Adwoa Bemah Boamah Mensah, Humaima Nunoo, Kofi Boamah Mensah, Joshua Okyere, Veronica Millicent Dzomeku, Felix Apiribu, Kofi Agyenim Boateng, Comfort Asoogo, Edwina Opare-Lokko, Joe-Nat Clegg-Lamptey","doi":"10.1177/13674935231225715","DOIUrl":"10.1177/13674935231225715","url":null,"abstract":"<p><p>Parental involvement in childhood cancer care is of utmost importance, but the understanding of parental recognition, appraisal, and reactions to childhood cancer in settings such as Ghana is limited. We conducted an empirical phenomenological study to explore these aspects among Ghanaian parents. Twenty parents were purposively sampled to participate in semi-structured interviews between June and September 2022. All interviews were transcribed and analysed using an inductive thematic approach. We found that parents recognised symptoms through personal observation and their child's self-report, often perceiving them as non-severe. Emotional reactions upon receiving their child's cancer diagnosis included psychological distress, fear, doubts, and confusion. Enduring emotions experienced by parents were fears of disease recurrence and impending death of their child. Parents assumed the role of nurses at home, monitoring therapy effects, managing pain and symptoms, and dressing wounds. In conclusion, parents in Ghana play a crucial role in the recognition, diagnosis, and treatment pathways of childhood cancer. To enhance their ability to recognise symptoms and take timely actions, it is recommended to implement media programs and health education initiatives targeting parents.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"472-485"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139059139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Nurses' knowledge and attitudes regarding children's pain assessment and management in Nepal.","authors":"Jagamaya Shrestha-Ranjit, Uma Devi Ranjitkar, Tineke Water, Sulochana Shrestha, Chandrakala Sharma, Suzanna Mukhia, Jamuna Adhikari, Tulashi Adhikari, Archana Pandey, Muna Sharma, Apsara Pandey, Nibaran Joshi, Natalie Tuck","doi":"10.1177/13674935231195133","DOIUrl":"10.1177/13674935231195133","url":null,"abstract":"<p><p>Pain is frequently experienced by children in hospital, and international guidelines for appropriate pain assessment and management are available. Optimal management of paediatric pain has important long-term health, psychosocial, and economic benefits. However, evidence indicates that globally there are deficits in nurses' understanding of paediatric pain assessment and management. This study explored knowledge and attitudes regarding paediatric pain assessment and management among nurses at a tertiary children's hospital in Nepal. In this cross-sectional study all 140 nurses at a tertiary children's hospital in Nepal, were invited to complete the validated Paediatric Nurses Knowledge and Attitudes Survey. Findings revealed substantial deficits in nurse's knowledge and erroneous attitudes towards pain assessment and management in children. Test scores ranged from 14% to 56%, with mean scores of 38%, with no nurses achieving a recommended pass score of 80% regarding knowledge and attitudes in paediatric pain management. Consistent with previous research, nurses had insufficient knowledge and attitudes that did not reflect best practice regarding pain assessment and management in children. Education programmes targeting both trainees and registered nurses are essential to enable nurses to deliver evidence-based care and improve outcomes for children and their families.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"297-310"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12145466/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9979720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anilsa Suraia Pedro Gaspar Francisco, Maylli Daiani Graciosa, Sheila Cristina da Silva Pacheco, Luciana Sayuri Sanada
{"title":"Gross motor trajectories of pre-term and full-term infants under different parental educational approaches.","authors":"Anilsa Suraia Pedro Gaspar Francisco, Maylli Daiani Graciosa, Sheila Cristina da Silva Pacheco, Luciana Sayuri Sanada","doi":"10.1177/13674935231211954","DOIUrl":"10.1177/13674935231211954","url":null,"abstract":"<p><p>This study aimed to explore motor trajectories of Brazilian pre-term and full-term infants from 3 to 12 months old whose parents participated in an educational program and had received guidance on gross motor development. Forty-eight Brazilian infants aged 3 months old were divided into Group 1 (full-term infants and their parents who received only verbal guidance, <i>n</i> = 14), Group 2 (full-term infants with parents who received an educative folder in addition to the same verbal guidance, <i>n</i> = 23), and Group 3 (preterm infants with parents who received the same verbal guidance and educative folder, <i>n</i> = 11). The folder had similar information to the verbal guidance; nonetheless, it helped to teach parents and allowed later consultation at home. We applied Alberta Infant Motor Scale, Affordances in Home Environment for Motor Development-Infant Scale, and a questionnaire about infants' information at 3-, 6-, 9-, and 12-months old. In longitudinal comparison, all groups showed a significant difference for AIMS variables on total score and subscales; all subitems of AHEMD-IS; and time spent in prone, supine, sitting, and standing positions. In general, no differences were found between groups. Motor trajectory, home opportunities, and parental positioning practices were similar between full-term and preterm infants with different guidance approaches.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"408-423"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71488962","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"I saw myself as an important piece of a jigsaw puzzle: Parents experiences of their child's anaesthesia induction.","authors":"Sofia Almerud Österberg, Lisbet Andersson","doi":"10.1177/13674935231218039","DOIUrl":"10.1177/13674935231218039","url":null,"abstract":"<p><p>Anxiety in children, as well as their parents, is common in high-tech environments such as an operating room. This study aimed to describe parents' experiences of being present when their child is being anaesthetised. Twenty-four parents were interviewed and data were analysed using a descriptive phenomenological approach. Findings show that being present at a child's anaesthesia and surgery is a long, continuous process that begins at home. Parents struggle to face strong emotions in a special and frightening environment, focussing on their child's well-being while trying to remain control in this situation. Security and trust are vital, but it's challenging to relinquish control in an uncertain situation. Professional caregivers can promote trust and participation, but an awareness that something can go wrong affects parents on a deep level. In conclusion, parental presence at induction of anaesthesia is important but can be overwhelming and anxiety-inducing for some parents. Parents should be seen as a resource rather than a disturbance. Overall, the healthcare system should prioritise parents' involvement and seek to create an environment where they feel supported and included.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"444-455"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138441632","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kamran Abbasi, Parveen Ali, Virginia Barbour, Marion Birch, Inga Blum, Peter Doherty, Andy Haines, Ira Helfand, Richard Horton, Kati Juva, Jose F Lapena, Robert Mash, Olga Mironova, Arun Mitra, Carlos Monteiro, Elena N Naumova, David Onazi, Tilman Ruff, Peush Sahni, James Tumwine, Carlos Umaña, Paul Yonga, Chris Zielinski
{"title":"Ending nuclear weapons, before they end us.","authors":"Kamran Abbasi, Parveen Ali, Virginia Barbour, Marion Birch, Inga Blum, Peter Doherty, Andy Haines, Ira Helfand, Richard Horton, Kati Juva, Jose F Lapena, Robert Mash, Olga Mironova, Arun Mitra, Carlos Monteiro, Elena N Naumova, David Onazi, Tilman Ruff, Peush Sahni, James Tumwine, Carlos Umaña, Paul Yonga, Chris Zielinski","doi":"10.1177/13674935251340159","DOIUrl":"10.1177/13674935251340159","url":null,"abstract":"","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"293-296"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144210243","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Evaluation of healthcare professionals' experiences of taking telephone calls from parents of children with congenital heart disease. A risky business.","authors":"K Gaskin, A Seale, J Menzies","doi":"10.1177/13674935231222943","DOIUrl":"10.1177/13674935231222943","url":null,"abstract":"<p><p>The Congenital Heart Disease Standards for England indicate that parents and children should have access to a 24-h telephone advice service, however, little is known about existing services. This paper presents phase two of a mixed-methods service evaluation, which aimed to evaluate staff experiences of telephone communication with these parents. All nursing and support staff in a single specialist children's cardiac surgical centre were invited to participate in an online survey during July-November 2019. Data were descriptively and thematically analysed. Participants (<i>N</i> = 39) were predominantly nurses (<i>n</i> = 32, 82%) with 64.1% (<i>n</i> = 25) working in the speciality >10 years. Positive experiences included: signposting and preventing further deterioration; supporting families to get expert advice quickly; providing reassurance. Challenging experiences included: offering advice without being able to see the child, dealing with telephone calls alongside busy workload; and parents running out of medications and telephoning out of hours. In conclusion, taking telephone calls were perceived to be time consuming and are potentially high risk. A standardised approach to assessment, intervention and documentation was deemed necessary. Implementation of an updated parental early warning tool was recommended, along with staff and parental education.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"486-500"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12145469/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139089382","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah A Elliott, Shannon D Scott, Kelsey S Wright, Lisa Hartling
{"title":"Establishing priorities in child health: Giving parents and youth a voice.","authors":"Sarah A Elliott, Shannon D Scott, Kelsey S Wright, Lisa Hartling","doi":"10.1177/13674935231205041","DOIUrl":"10.1177/13674935231205041","url":null,"abstract":"<p><p>Parents and youth across Alberta were engaged to identify specific research questions that are a priority to them. Two lists, containing 27 topics were developed with local parent and youth advisory groups, and sent to participants via online questionnaires. Topics were rated from one (least important) to five (most important) and ranked in order of priority. Initial questionnaires were completed by 263 (46%) parents and 308 (54%) youth. Parents rated five topics (behaviour, learning, and developmental disorders; mental health; food, environment and lifestyle; quality of health care; and vaccines) and youth rated four topics (brain and nerve health; mental health; quality of health care; and vaccines) as a high priority. Research questions stemming from 4 parent (12 [5%]) and 6 youth (21 [7%]) focus group discussions were then ranked in a second questionnaire, completed by 43 (43%) parents and 56 (56%) youth. Parents' highest ranked research question was 'What is the effect of screen time on cognition and neurodevelopment for children and adolescents?', while the highest ranked question from youth was 'What are the early signs of anxiety and depression and when should an individual seek help?'. These topics highlight areas that are important to parents and youth where funding, research, and knowledge mobilization efforts should be directed.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"353-367"},"PeriodicalIF":1.3,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12145468/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41240979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Parental decision-making for non-urgent emergency department presentations in Victoria, Australia.","authors":"Joy Marbella, Daniel Terry, Blake Peck","doi":"10.1177/13674935251347759","DOIUrl":"https://doi.org/10.1177/13674935251347759","url":null,"abstract":"<p><p>Non-urgent paediatric Emergency Department presentations contribute to overcrowding, poor patient health outcomes, and burden acute healthcare services. A study was conducted to explore motivations and factors that influence decision-making processes of parents who presented their child to ED for non-urgent conditions. An exploratory study using a qualitative descriptive design was undertaken to address research aims. Semi-structured interviews were conducted with a purposive sample of eight parents who presented their child (birth to 14 years of age), to ED for non-urgent conditions. Parental decision-making regarding ED presentations were influenced by a constellation of factors; however, three main themes emerged. These included <i>Parental Anxiety</i>, <i>There is Only One Place</i>, and <i>Mitigating Perceived Delay or Inaccessibility</i>. As such, centred on how parents addressed their anxiety when a child was ill, accessibility and capacity of EDs to provide immediate relief to parents and children, and parents' perception that accessing other healthcare services impacted crucial time for treatment. EDs remain a preferred healthcare service to address non-urgent paediatric needs, despite adequate health literacy among participants. When improving models of care within EDs, non-urgent presentations must be considered, including management of parental anxiety, along with establishing non-urgent care adjacent to or integrated within an ED.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935251347759"},"PeriodicalIF":1.3,"publicationDate":"2025-05-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144188551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The efficacy of laughter-based interventions in children: A systematic review and meta-analysis.","authors":"Bomi Kim, Sunyeob Choi","doi":"10.1177/13674935251346886","DOIUrl":"https://doi.org/10.1177/13674935251346886","url":null,"abstract":"<p><p>This review aimed to analyze the effects of laughter-inducing therapy on anxiety, pain, and stress in children by synthesizing existing randomized controlled trials (RCTs). Researchers conducted a systematic literature review and meta-analysis, following the Cochrane Collaboration's methodology for systematic literature review and Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. We selected and evaluated 12 studies for quality using the Risk of Bias 2.0 tool. Seven studies were included in the meta-analysis, which showed that clown therapy produced a moderate effect on pain relief and a large effect on anxiety reduction in pediatric patients. In conclusion, this review highlights the potential of laughter-inducing therapies as an effective clinical intervention for reducing anxiety, pain, and stress in pediatric patients. These findings provide evidence supporting the use of laughter-based interventions as alternative or complementary approaches in medical settings. The review also underscores the need for further research across diverse clinical environments to validate the effectiveness of laughter-inducing therapies in broader pediatric populations. Overall, the incorporation of laughter-inducing therapy into clinical practice may play a valuable role in enhancing the overall well-being of pediatric patients.</p>","PeriodicalId":54388,"journal":{"name":"Journal of Child Health Care","volume":" ","pages":"13674935251346886"},"PeriodicalIF":1.3,"publicationDate":"2025-05-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144183544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}